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Living With a Hearing Disability: Single-Sided Deafness (SSD)

Updated on April 23, 2017
Vanadis profile image

For as long as I remember I have been completely deaf in my right ear. This is my story of living with this condition.

Single-Sided Deafness

Single-sided deafness is more common than people think. As an invisible disability, it is often misunderstood or overlooked.

Single sided deafness (or SSD, as I will refer to it from now on) comes in varying levels, from partial to complete hearing loss in one ear. This article is about my personal experience. I will share my tips and advice for others who are living with the same condition.

Being Deaf in One Ear

For as long as I remember I have been completely deaf in my right ear.

The first time I realized my hearing was different from that of other kids was at a friend's birthday party. We were playing "Chinese Whispers," and I had to pass on a message that had been whispered into my completely deaf ear. The girl sitting next to me wasn't allowed to repeat what she'd said, and I didn't hear her at all. I had to make something up. The end result was hilarious, although at the time I felt more embarrassed and isolated by the experience.

I have two older sisters, and one of them has the same problem. My sister's SSD was not diagnosed until a hospital trip after she fell off a climbing frame at school. It was assumed that this was when she lost half her hearing—and my parents thought I was copying her when I said I was deaf in my right ear, too! My SSD was not confirmed until I was 5 years old. This leads us to believe the condition is hereditary, although the cause of our hearing loss has never been properly diagnosed.

It has, however, been closely monitored throughout our childhood. I lost count of the times I had to be called out of class at school for hearing tests, just to be told that that yes, I was still deaf in one ear! Oh, really? I hadn't noticed!

I once asked my mother why my sister and I had to keep having these tests. They often involved having incredibly loud, windy sounds played in my good ear, while attempting to hear beeps in my deaf one. Sometimes the windy sounds were so loud they gave me double vision! (I could often feel the vibrations of the beeps, so I was able to guess when there were sounds, which made the test quite useless.)

My mother explained that the purpose of the tests was to make sure my hearing didn't get worse (quite ironic considering the volume!). I then lived in fear of losing hearing in my good ear, too. I even believed I would be deaf by the time I grew up! Now, aged 30, and still with perfect hearing in my left ear, I can rest assured that this will not happen. But as a child it was confusing and scary.

While I'm sure the tests were intended to be helpful, they just made me feel like something was wrong with me, and made me fear for my hearing. These are all reasons I believe that there should be more comprehensive information available and a clear diagnosis of the type of hearing loss involved. This will also in turn help parents to know how to deal with a child with SSD.

If Your Child Has SSD

Growing up with single-sided deafness can be tough. Given time, we can learn to adapt and thrive, becoming successful adults with little to no hindrance in our daily lives. Here are things I wish my parents had known while I was growing up:

  • Do not make your child feel disabled. one of the biggest factors when it comes to dealing with SSD, or many disabilities, is that much of what gets you through life is how you view yourself and what you are capable of. We all have the power to achieve great things; being constantly told you cannot do this or that, or cannot function normally because of your hearing, will only hold you back. Your child will believe they are disadvantaged and may lack confidence in their abilities as a result. Yes, SSD has it's disadvantages. But I believe it has it's advantages too. Being deaf in one ear means the glass is half full- not half empty.
  • Do not assume your child can/cannot do things. SSD varies in severity, and as hearing occurs in the brain and not the ears, the condition may be processed differently depending on the individual. I for example have incredibly acute hearing in my left ear, which I believe compensates. I have heard that SSD can affect learning, speech, maths, reading and writing. As far as I am concerned, this is a myth- I have been fully proficient, in fact above average in all of these things. On the other hand, not hearing well in class has it's disadvantages, and it all depends on the method of teaching and level of background noise in the classroom.
  • Encourage your child to be open and explain to others about their condition. SSD is not something your child should be ashamed of. Unfortunately special treatment at school and teasing can cause them to feel otherwise, but they need to learn from early on that any issues people have are not their fault- it is often lack of understanding. Being open and telling friends and teachers about being deaf in one ear will help, but it should be something your child chooses to do when they are ready.
  • Do not make an issue out of it. Sometimes my mother would remind me of being deaf in one ear when I wasn't even thinking about it. She would often overcompensate or talk directly into my ear when I could have heard her perfectly fine otherwise. If your child feels their hearing is not an issue, don't make it one. Usually people with SSD can get by just fine without people having to shout or talk directly into their ear. Do not fuss over a child with SSD, or insist they get a hearing aid or corrective surgery. If your child is unhappy and wants to look into hearing aids/surgical help, do so. But be aware not all SSD can be corrected.

How SSD Impacts Your Life

I often forget I have what is considered to be a disability. It is only certain situations that remind me of it. In fact, I was blissfully unaware of what I was missing out on until quite recently, a few years ago, after reading several articles on the condition about certain abilities people with SSD are lacking:

  • Hearing in stereo: People with complete SSD are monoaural. They cannot hear in stereo, there is only one channel of sound.
  • Picking out and understanding a voice in a noisy environment: I had no idea that other people could home in on a voice in a noisy crowd and hear it clearly! When I listen to a conversation and there is background noise (especially other voices) the sounds all blur into one flat mono channel and are almost incomprehensible. People with normal hearing can selectively hear a single voice against background sounds and focus on it- which seems like magical eavesdropping to me!
  • Locating sound direction: One of the most awkward effects of SSD is the lack of ability to locate the direction of sound. Being called by friends in a crowd, or from across the street is an example of how embarrassing SSD can be. I used to spin around looking wildly in all directions trying to guess who was calling me and where the hell they were. I now tell everyone I know not to do this, because it is useless unless they have a neon sign above their heads to help me locate them in a crowd! However, they often forget and still call me across a busy street, which forces me to stand and wait until they become more visible.
  • Locating sound distance: Nor did I know people with normal hearing could locate the distance of sounds; don't they just get louder or quieter?
  • Social stigma: There is a social stigma surrounding deafness of any kind in the hearing world, and kids and adults alike often tease and joke about being deaf if you ask them to repeat something more than once. Yet, SSD is worlds apart from being truly deaf- you still have the gift of hearing, and you cannot relate to the deaf world. I cannot understand sign language, and as I can hear perfectly well so long as there is no excessive background noise, I do not feel the need to learn. I am hopeless at lip reading. People with SSD don't really fit into either world.
  • Lack of understanding: Many people do not understand SSD and treat those with it as though they are stupid. One such person was an old geography teacher I had. One day he asked me to fetch an Indian boy from another class to see him. Now there were two boys with similar names; one was called Jatinder and one was called Jeetender. I went and got the wrong boy didn't I? He mocked me in front of everyone when I got back and called me a 'handicap to the class'. This is a perfect example of how ignorant and insensitive teachers can be when dealing with SSD.

As far as I am concerned, I have never felt that my SSD was disabling- despite that spiteful geography teacher- yes it can lead to awkward situations at times, but I am just grateful that I can hear. I can listen to music, I can hear my own and others voices, and sounds of all kinds. My hearing in my left ear is better than some peoples hearing in both! I can hear high pitched frequencies that many others cannot. I have some musical skills and can play by ear, although musical ability and tone deafness have nothing to do with hearing ability (much as artistic ability and spacial awareness have nothing to do with sight). I may not be able to hear in stereo, locate the direction and distance of sound, or fully understand a conversation among other conversations, but the rest of the time I can hear well and I am grateful for it.

A mono splitter I use for my headphones
A mono splitter I use for my headphones

How to deal with SSD

One of the key things I have found to help cope with SSD is humour, and the ability to laugh and not take my mistakes too seriously. Sometimes my brain interprets things people say as the most ridiculous things- which says quite a bit about my imagination! Comic relief has helped to get through awkward situations while growing up. I notice people don't hold back as much when it comes to making fun of this kind of disability either- someone in a wheelchair might not be the butt end of quite so many jokes (although I am sure such a disability is far worse in many ways).

Another important lesson I have learnt is to be open and tell people as soon as possible about being deaf in one ear. I don't like to introduce myself in this way—because I don't like to be identified as '"hat half deaf girl"—plus I like to give people time to regard me as normal before thinking they have to shout or talk to me slowly like a halfwit. But as soon as I feel comfortable I will explain. Particularly if someone asks why I keep swapping sides if they walk on my right hand side. The worst thing is for unsuspecting people to be rude or angry because they don't realize I have a hearing problem, and they think I am just being rude or not paying attention.

Most important of all—be grateful for what you do have. It's easy to feel miserable and full of self pity if you suffer from SSD, especially is you were not born with the condition like me and have experienced what you are now missing out on. But do not take for granted that you can still hear. Try to count your blessings and see the good side (no pun intended) of being deaf in one ear.

Annoying Things for People With SSD

  • Stereo headphones: these are he bane of anyone with single sided deafness. Fortunately mono splitters can be purchased that can be used to modify stereo headphones and blend all the sounds into one channel. There is nothing worse than listening to your favourite song, only to have the guitar solo omitted because it's playing on the wrong side of your head!
  • Surround sound: I think I feel a bit of resentment here because everyone says what an amazing effect this has. To me it just sounds like everything getting louder and quieter.
  • Noisy parties: Don't get me wrong, I love parties. What I don't love is the mash of sound blurring into one messy ball of incomprehensible noise. Meeting new people in this kind of environment can be very awkward, and explaining you cant hear them unless they sit on your 'good side' and (depending on the volume of the background noise) talk into your ear- which is often too intimate when first meeting people- can be perplexing.
  • Creepy sounds at night: Is that a burglar breaking in? Or is it a neighbour? Or even just the plumbing? Who knows? There is nothing more frustrating and unnerving than unidentified sounds coming from who knows where when you are alone at night (or even when you are not alone and your husband is sleeping and doesn't hear them!).
  • Busy junctions on roads: Car sounds everywhere. Too many directions to try to keep track of at once. Crossing the road here is suicide!
  • English cars: I am English, but I live in Spain. One of the great things for me about living in a country where people drive on the right rather than the left is being able to hear the driver (I don't drive myself). In English cars, the engine noise often drowns out any conversation. If I ever took driving lessons though, it would have to be in an English car so I could hear the instructor well!
  • Losing my mobile phone: Getting someone to call it is no good. I usually call it myself and assign my husband to the task of locating the sound.
  • People assuming you are being rude/ignoring them: I've been in situations where I am concentrating on something and there is background noise which I have learnt to ignore. If I reacted to every unidentified sound I'd be jumping all the time- and often this background noise is someone taking to me on my deaf side. I don't realize. They get mad.
  • People shouting/talking very slowly like you're dumb: Come on. This is so patronizing. Just stand on my correct side for goodness sake.
  • Reacting to loud noises: If there is a bang, everyone will jump and look in the direction of the sound to see what it was. I will often jump towards the sound and look in the opposite direction. It's better to train yourself not to react at all to avoid the ridicule.
  • Films with sound effects and music louder than the voices: No, just... no. This forces me to use subtitles.
  • Not being able to swap ears while on the phone: Okay, this is a bit petty, but sometimes my ear gets hot and tired! I often envy other people being able to swap during long phone conversations!

Cool Things for People With SSD

  • Being able to sleep in noisy environments: Laying with your good ear on the pillow is enough to muffle out troublesome sounds, and although you can still hear the alarm clock, you can use SSD as a good excuse if you want to sleep in!
  • Selective Hearing, literally: One of the ways my brain compensates for unidentified sounds is by filtering them out. Anything that doesn't sound close or important generally gets ignored- another good excuse for not listening to what you don't want to hear.
  • Being able to focus better without distraction: This works for me at least! It's so much easier to get lost into your own internal reality without so many external distractions. But then I've never had 'normal' hearing to compare..
  • Strategic placement for things you don't want to hear: If one of your friends munches popcorn too loud at the cinema, stick 'em on your deaf side! Sitting near the speakers in a pub? To the deaf side!
  • It saves on ear plugs: You only need to use one, at concerts and gigs and other situations where earplugs are needed. Although this does get strange looks admittedly. Also, you can save your hearing by turning your deaf side towards the loud music!
  • It forces you to use your brain more: More brain usage = more intelligence! I'm not sure if this can be proven, but I am pretty certain that my hearing issues have forced me to listen harder, think harder and try to keep more on the ball than others. I have overridden automatic base reactions such as jumping at noises, which takes a lot of discipline.
  • Using an awesome Steampunk style ear trumpet: This one is pushing it a bit, but how cool is that?

Do you have SSD, or do you know anyone with the condition?

See results

© 2011 Vanadis

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    • profile image

      SC 4 days ago

      I always knew there were things I was missing being born deaf in my left ear. Now at 49 NAION took away all useful sight from my right eye. Being different molded me into somewhat of a loner. Now I don't know where I fit in.

    • profile image

      Kira M 2 weeks ago

      After reading this, I have a genuine smile on my face. Born with ssd but just now finding out what my condition is called from this article at 22. I'm from a very small town. My school was ill prepared and I dealt with a lot of prejudice over my condition. Core teachers always put me in ap, though, so I would agree with it you there. Reading through so many comments, it's crazy to see how many people have related here. Not so alone.

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      Ashley 4 weeks ago

      Thank you so much for sharing I am 25 years old and last year I lost my hearing in my left ear due to Cholestoma. I have been struggling a lot with opening up and dealing with this. Being that I still have a few more surgeries ahead of me I am a little discouraged. Reading this article helped me realize that I am not in this alone and that there are several people in the world who struggle with SSD.

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      Krishna 5 weeks ago

      I am also having same problem.. Does anyone think why god gave us only one ear

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      DavidC 5 weeks ago

      SSD in left eat, diagnosed when I was 20 probably form birth (now 50) mild hearing loss in right. @Anamanri - know exactly what you mean. For teleconferencing try doing if from your own desk using a phone I work in an open plan office but find that a phone reduces interference, that's whats I do from mine when I can. When I'm in a meeting or I have to telephone conference in a communal room its harder but I'm lucky enough to be senior enough to tell people I'm half deaf and if I miss something I'll ask for it to be repeated and tough, get on with it. Remember a couple of things, one we're luckier than those that are totally deaf in both ears and two it doesn't stop us from being good at our jobs and sometimes better than others!

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      AnaManri 6 weeks ago

      I've been deaf on my left ear since I was 7. and with mild hearing loss on my right. I work as a scientist, now with the advance of technology meetings are all held by teleconference. has any of you ever encounter problems with this? specially since there are only open areas and everyone is talking on their phones, is getting so hard to cope and participate, my boss is treating me to fire me since I don't participate (the truth is that is so hard to the the conversation) and I stay behind. Do you have any tips or examples of how to make it better.

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      Jananne 6 weeks ago

      I've been deaf in my left ear since I was four (due to a mastoid operation). I agree with everything you say, especially the subtitles which I use virtually all the time.

      My problem is made worse (if thats possible) by extreme tinitus in my good ear.

      The thing that really gets me is people who have known me for years and my family, laughing when I don't hear something. I could literally scream sometimes! I'm 52 years old now, have had SSD for 48 years and yet people who should know better still make fun of me. When I'm having a "down in the dumps" time, it reduces me to tears.

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      lena bean 6 weeks ago

      And then my family would tell me that God made up for it with my perfect vision because everyone in my family wears glasses or has some sort of vision problem. lol

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      lena bean 6 weeks ago

      Oh I can't tell you how comforting it is to see someone with the same problems as me. I've had SSD in my left ear since birth and I've always had these problems. I relate to almost everything you said but you forgot that annoying experience when you first tell someone and they get on your deaf side and whisper something and ask "Can you hear that?" Well I obviously can't, I'm DEAF. And then they gradually get louder until you can hear them from your good ear. Hehe know what I mean?

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      Pete 7 weeks ago

      You nailed it! I've had hearing problems for over 10 years now and over the past 2 years the hearing in my right ear has become useless. I spent the past 2 years trying to convince my audiologist that I needed bicros hearing aids. She kept making adjustments to my right hearing aid that just introduced more noise and distortion. Finally a new hearing test convinced her that bicros may be more helpful. The good news is that bicross minimizes the head shadow effect but all the other issues you speak of are still there. I am a senior citizen so I am fortunate that it didn't happen earlier in my life like so many others but it still is as frustrating.

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      Amanda 7 weeks ago

      Alright I agree with alot of you stuff you wrote. I have been deaf in my left ear since I was four. I was so sick always had ear infections all the time. I remember always doing the hearing test. And I would always wish so badly I would be able to hear it. That I would remember what they would do with my right ear on the test that I would do it when they would test me on my left side. I always feel everything is loud. It to the point I always have my head slightly tilted left so i can hear all around me. Yes i agree with not being able to switch when being on phone. Ugh. Lol! When i was you younger I had a friend of mine who was dear and had hearing aids. So she and I would put one of hers in mine. I guess I wanted so badly to hear in that ear and thought I could get a hearing Aid. And it would make it all better. Nope didn't work. I been made fun of. People get mad cause I cant hear them if the are to the left of me.. I feel the pain that you have experienced. I do too!!!

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      Gg 7 weeks ago

      Awesome article and I completely agree with everything here! :)

      I've been deaf in my left ear ever since I was born, never had any problems at all growing up!

      I didn't realise the significant differences until I was well into my 20s when my friends started teasing me (lovingly) about me looking the wrong way when I hear traffic.

      In fact many of my friends I met early in life had no idea I was half deaf because as a child, I never had a reason to tell them! I always had the habit of reading people's lips while they talked :) So I agree with your point that it definitely isn't a disability :)

      And I do love the fact that I can sleep through anything if I put my good ear in the pillow

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      Van 8 weeks ago

      thanks you, now, i realized that i'm not the only person with hearing problem. i can hear well with my right ear. but it really sometime being not normal. but i accepted myself as i am....

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      Will Kramer 2 months ago

      My biggest upset with the condition is my inability to realize how loud I'm getting when speaking while under a lot of stress or in an upsetting situation. I have been admonished all my life for being too loud.

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      Some bloke 2 months ago

      Thanks for sharing this post.

      The chinese whispers rang (painfully) true for me, worst experience was in highschool when we were doing it in German lessons, people started asking why I would point my left ear at the talker rather than the right that was next to them.

      I have always struggled with telling people about it, not sure why but I am sure you all understand the feeling.

      I am a quiet person by nature but I have always felt that my partial hearing has enhanced this, as you have mentioned conversations can be hard to follow. Personally I didn't participate in the conversations as I felt like an idiot asking people to repeat themselves or inventing what they said.

      Nowadays I have learnt ways to cope, when I go to meetings with people I work with I am the helpful one to offer to drive (Scotland), that way I can hear every word.

      In meetings, I position myself in a seat that will be able to cover the room with the good ear.

      But on the plus side, my left ears hearing is way superior to those two ear weirdos :). When I was a wee pup and doing the hearing tests at school my good ear could pick up above normal sounds, it was also the one that would hear the sound that was going to the other ear first.

      I have been deaf in my right ear since I was 2-3, it was the result of a weird complication when I had the mumps or measles (can't remember which it was tbh), my hearing level would be able to hear a jumbo jet taking off if I was 10m away from it, I don't plan on testing this!! Apparently it broke the three mini bones behind the ear drum,

      Sorry for the massive ramble, just nice to read that I am not the only one.

      As a note to anyone that hasn't had this all their days...

      Its not the end of the world,

      If you are in a relationship, tell them, if they are a decent person they will understand, also explains that your not being rude when you ignore them in some locations, you simply didn't hear it.

      If you work or are in education tell a teacher, lecturer, boss etc, they arent' going to sack you or isolate you. They also wont tell everyone but it will make life easier for you.

      Don't feel you need to tell everyone if you don't want to, but do tell those people who need to know or that you are comfy with.

      Find what works for you, for me it is picking out where I sit, becomes second nature after a while.

      Don't hide away because of it.

      I am 36 and get buy with this, can't imagine what it is like for the poeple posting that have newly had this but don't do anything stupid, take your time to re-adjust to the world. If it is too stressful speak to people, I strongly advise councilling, I have seen one for a different reason and it was the best thing I ever did.

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      Mel 2 months ago

      I had brain surgery for my inner ear and I lost total hearing to my left ear. I'm going crazy lately, I hate the world for this, I'm loosing my mind, the sound is so loud that I want to jump of the balcony and end it. I don't know what to do, some people say it's a blood cloth, some others have different opionins I just want my hearing back....help me, before I die!

    • profile image

      Donna Lambert 3 months ago

      I was wondering if anyone has this problem....I have SSD since I was two and I have trouble learning certain things if I have to listen and take notes. It seems like my mind goes into listen only mode with my good ear or concentrating on writing.note taking and then I miss what was being said in when I am being trained for a new position at work. I continually ask for instructions in writing so I can be able to listen and not have to take notes, but in my current position and being told they don't have the instructions in writing. It is now affecting my performance because I can only listen or write, but not both?

    • profile image

      sajan rokaya 4 months ago

      ..im 25 yrs old studying veterinary medicine in nepal ( mount everest) first i noticed that deafness @ age of 15 since then i have come in bachlor bt people in outside cant imagine the way i have travelled till now they are just interested on making fool to someone they cant imagine . sudeenly today i read your beautiful word that make me feel like i hav got really a good mate i just have adopted a hearing aid bt it is not peaceful then ur way of giving inspiration to peple like me

      im so grateful to u and i dont know how to express my pleasure to u thank u soo mch from deep of hrt n if u dont mind i want to see your photo feeling that how sweet u will be one second so if u dnt mind i wanna send u a friend request

      with due respect

      sajan rokaya

      nepal

    • profile image

      Bernarr Hamm 4 months ago

      Hell, between 3rd and 4th grade I had surgery on my left ear. They removed my eardrum, cut out auditory canal, and removed most of the nerves. A thin membrane separates my inner ear from my brain. Can I get a disability benefit from this?

    • profile image

      Nicole 4 months ago

      Hi,

      Im currently writing my college essay and I am writing about my hearing. I hope that the colleges understand the struggle about being able to only hear out of one ear. :)

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      Mike 5 months ago

      Hey, I am in the same situation. I was first diagnosed with this when I was 22 due to a sickness called Mumps. It happened so quick, In a matter of 3 days I lost my right ear totally. hearing aids don't work cos its profound and the only thing that will work is an implant through operation and I said no, I don't want that. Now I am 30 years old. I had tough times studying and working but I never gave up and never considered myself a person with disability. I however have some good news to share to this group. please everyone follow Prophet T.B Joshua on www. emmanuel.tv and pray with him. Just lay your hand on the TV screen, or your phone, tablet, any medium you are using to watch him. If you can too, fly to Nigeria, the church is called Synagogue church of all Nations. I have been praying with him and expecting my healing.

      You won't believe all kind of sicknesses that got healed even without going there. Just your faith or believe is enough to make you get your healing praying with him from your home, or own convenience through the internet. What Science can't solve, God can. I am not going to give up . I will regain my hearing again. Good luck to everyone too.

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      Dino 5 months ago

      Wow man, you are right on spot with everything you said in this article. Thank you very much. I even teared up when I was reading through this article. My right ear is completely dead. I was born like that.

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      Joy 5 months ago

      Wow! I can relate so much to this article except no one else in my family has SSD. I read somewhere that it affects people who are preemies like myself. I also agree its not impossible to do things like normal hearing but its definitely not easy. It could be worse though. Thank you for writing this.

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      Austin T. Murphy 5 months ago

      I became deaf in one ear about 9 months ago, most people that voted also are. I am a waiter and in college. In Neither environment have I encountered anyone with the same problem. (Or at least I don't know). Anyways it was really cool "hearing" lol, everything you had to say. So I'm wondering if there is like a group or something that we can chat on?

    • profile image

      Aksal 6 months ago

      This just happened to me and I'm scared and terrified. I feel like I'll lose my gf of only 3 months, my personality which used to be loud and gregarious. Please help me

    • profile image

      Samundra Thapa 6 months ago

      Hi,

      SSD is consider as handicap or disability. Is it possible to get any financial support from government if SSD people quit their job or chance to get scholarship during the time of study?thanks

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      Indian Guy not Jitender or Jatinder 6 months ago

      Your article was spot on! I discovered I was deaf in my left year when I was about 8-9 years old when I couldn't hear the dial-tone from the receiver on the landline.

      I did t tell my parents until I was about 16 and today my parents and my wife are the only one that knows.

      I seems to manage in most situations. Thank you for the wonderful post. By the way I was living in Sevilla until last year!

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      Thank You 7 months ago

      Thank you for this. It really help in a serious decision for my 8 year old daughter

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      Sherri Adams 7 months ago

      Just came across this and you were so dead on with everything. Can't wait for my husband to get home, so he can read this. Thanks.

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      Ruth 7 months ago

      i had a baby boy, and he has problem with his left ear.he cant hear anything, but the right is ok. the things was, he has an IQ above average. at the age of 18 months he can easily read letters, numbers, identify the colors and shapes. Thank you. This article can really help me.

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      Leigh 7 months ago

      I also have complete SSD in my right ear, it is something I've had since I was approx. 2yrs old (pos caused by whooping cough) As I don't know anyone else with this condition it has really helped me to use this article to explain to others.

      I have also found it impossible to register locally as someone with SSD, even though I have been told there are a number of jobs I would not be allowed to do due to health and safety risks.

      Its frustrating to be considered as having a disability on the one hand and then be told it doesn't count on the other.

      I've also found this to be the same with my dyslexia & Dyscalculia since being diagnosed.

      Has anyone else experienced this?

      Thanks again for the great article.

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      carly 7 months ago

      Hello Vanadis. Wow! You have just described my exact situation in this post! I am also living in Spain :P

      I recently experienced sudden hearing loss which has left me deaf in my left ear, along with having other issues such as tinnitus, pressure in my ear, difficulty hearing in background noise, sound sensitivity...

      You have explained it all really well, and hopefully this will help people to understand our difficulties. Great post :) Take care!

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      Jennie P 8 months ago

      Thanks :) still wrapping my head around my new deafness.

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      Awkward silent loner 9 months ago

      Man... im so glad to come across your article since i have exact same condition... to be honest ive never knew what SSD meant until ive google search it.. see my surprise lol. I've always considered myself as a "something wrong" girl because i was born this way... but later im became proud of myself to be me rather as a person whos been avoided because im strange... well.. im glad that i have found that is normal to be this way. :) thanks for explaning what SSD really meant!

    • Clare Mclaughlin profile image

      Clare Mclaughlin 9 months ago

      Hi Vanadis, thank you so much for writing this piece, I felt like I could have written it your experiences of SSD are identical to my own (thankfully not the ignorant Geography teacher, that sounded awful) I was wondering had you ever been told that corrective surgery would help? It was suggested to me but I don't want to get it as apart from surgery having risks more than anything the thought of that much change in my perception of the world put me off. There are times I feel it as a disadvantage, but mostly I feel it's part of what makes me me. So I was wondering if you could relate?

      Another downside I've become very aware of in recent years as I work in media and stage management, and work at a lot of gigs and festivals, that it's not even that I can't hear what's going on to my right but it feels like a void is there, I can't even sense when someone is standing right next to me on my right unless they are within my visual perception, have you experienced this?

      One other problem I discovered a few years ago was that there are only a few spots in the cinema I can sit and be able to hear everything well. I discovered it when I went to see a movie and sat near the front on the left of the screen, I couldn't make out what the characters were saying, everything was muffled. It was a new cinema and I thought it was their fault at first. Then I went to see the same film in the same screen but star in a more central seat, middle back and slightly to the right. The sound was magically better, I could hear everything clearly and now I have to make sure I get a seat in this position at the cinema otherwise I can't hear it well. Again, have you experienced this?

      Hope you don't mind all the questions, I often meet people with partial deafness in one ear but rarely the same as myself, so it's nice to chat and 'hear' from someone who's the same as myself :)

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      Jess 11 months ago

      I also have ssd on my right side and I feel like if I would have writen an article on living with ssd, it would have been almost identical to this! It's So accurate! I have only just started to research as I have never thought too much about it as having it from birth, I have never known anything else, so it is comforting to read this as it brings to light that most of the anxiety I suffer from has lot to do with my inability to hear on one side!

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      Daniel 11 months ago

      Hey there. I am born with ssd and I loved your article. I am now 30 and have never had any really serious issues with my hearing issue and therefore never researched the topic before. This is the first time I hear that the condition has a name. So your story is honestly one of the first I ever heard from others and it was SO refreshing to hear others with the same issues and advantages. Again thanks alot for your article. It made me really happy. :-)

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      Ian 11 months ago

      I have SSD since birth- I grew up in South Africa and attended school in SA during the 80's...

      My parents sent me to all kinds of specialists and such but nothing could be done about it and since I had normal hearing in my right ear- I wasnt considered disabled or anything relating to that.

      I was left alone to struggle with it and my parents thought I was putting it on as a kid..... I really struggled socially and in my education in school as they did not understand my issues or accommodate them- which resulted in me not getting a decent education ( sort of gave up due to not been able to understand most of what was going on in classes).

      I am now in my mid 40's unemployed, poor education with no social life or any friends as I now live in the UK so the accents make it even tougher to understand people in any social/busy environment- As one person put it "Self-enforced social exclusion" puts it best.

      I have been put in this jobcentre place in a classroom environment now with threats of sanctions to my money etc etc - all because they have a very limited understanding of what is wrong with me.

      I cannot understand over 70% of what's said in the class by anyone and its embarrassing as hell to keep asking ppl to repeat themselves.

      At this stage in my life with the way things are it has made me feel isolated, unwanted and suicidal at he prospects that the rest of my life has.....with the last 45 years been what they are with little to no help or understanding I have becoem disilluisioned with people and life as a whole.

      I gave up hope...but there is light at the end of ht tunnel for a lot of children and people that get this SSD now....

      A lot more information is available now and i only wish I had of looked into this many years ago as.

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      HC 11 months ago

      thank you so much for this article it made me feel better to know that there are other

      people out there who understand what is going on thanks a million

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      Kishore G 12 months ago

      Great post.

      I suffered sudden neural hearing loss in one ear two years ago. Since then I have experienced all the issues that you mention. Though tinnitus is another issue that bothers me. Sometimes tinnitus gets loud enough to overshadow other issues due to SSD.

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      Livewithit 12 months ago

      Hey, Tom,

      Sorry your friends are giving you a hard time! Yeah, it sucks, but it gets better. It helps if you use a little humor instead of getting mad at your 'friends.' Find a couple of people who could be understanding, they would be worth so much more than the bucket of people who are being mean to you!

      Please know that it does get better the older you get! See the good in your wonderful life!

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      Tom 12 months ago

      I have permanent SSD and I get made fun of it at least 5-10 times a day and I am not over exaggerating. It pisses me off so much because these people are my friends and evrytime I say "What?" I get made fun of for itfdor the next 5 minutes straight. This is a condition that my 'friends' have bullied me over and make me wish constantly that this is something that I was born without. The worst part about my friends bullying me about it is the fact that I constantly feel alone. I doubt this will get read by anyone, but if you did take the time to read this and you have this happening to you also then know that you aren't alone.

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      Feria 12 months ago

      I have SSD and English is my second language and guess what...I live in USA now...with this issue, my life is more challenging , especially at work!

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      Donna 12 months ago

      I am 62. When I was 61, leaving a meeting at work, I suddenly felt dizzy and couldn't hear. My ear was ringing and clicking so bad that I couldn't stand it.Thought I was having a stroke! I went to an ear doctor and had an MRI. He said it was neurological. I tried steroids and it has come back slightly, but still VERY muffled and if the "good" ear is covered….forget it.

      I too can't tell where sound is coming from. I spin around saying "Where are you" to everyone. My kids and husband are supportive. It's so frustrating!.

      I got my nails done the other day and the guy had a mask on and tried to speak. I felt like an idiot. I realized then how much I depend on lip reading. I also tell my everyone to stay on my left side so I can hear them.

      When my husband snores, I just lay on the good ear lol… Definitely has it's perks. Thanks for the humor and the candidness. It really helped.

      Thank you for this article!

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      Millie 13 months ago

      Hi! I also have SSD and struggle with it. I always find it hard in school to concentrate in loud classrooms and loose my temper a lot. I have also found it hard to find articles about people who have SSD and are born with it. Like you I was also born deaf in one ear. One thing you didn't mention was tinnitus and how people with SSD struggle with it.

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      ALex 13 months ago

      Is it me, or do you have magical mind reading abilities.... Wait... you didn't mention the constant flow of "WHAT HAPPENED TO YOUR EAR!", the most annoying question for someone with single sided grade 3 microtia. But I still think you have mind reading skills.

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      Brooke 13 months ago

      I couldn't help but laugh when you were talking about hearing someone call you and you looking all around. My dad has done this many times with the car horn in a parking lot and I just stand there looking around like,'this isn't helping' I have no idea how long I've had SSD but I remember noticing it when I was 17. I thought my head phones were broke LOL. But I have no idea when or how it happened. I had it tested and my ear drum is 100% deaf but my nerves are good. I'm 25 now and I'm going to see a doctor tomorrow for it. I'm not sure if it can be fixed but I'm almost scared to have it fixed. What if I don't like having both ears, what if it's too much noise, ya know? Cause I can't sleep on my right side, it's too much noise. I guess I'll find out tomorrow. But I can totally relate to everything you put in this article.

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      Dr Jacqueline Payne 13 months ago

      Thank you Vanadis for your excellent article, but thank you also to everyone who has contributed their experiences since this article was first posted. I have just read through all of them.

      I do not have SSD but I write for patient.info and have been updating the "Hearing Problems" leaflet. There is very little about SSD out there and we had received feedback asking for the leaflet to include strategies to help someone who has SSD. I have tried to summarise a lot of what I have read here to include in the leaflet. Unfortunately there is no way that I can credit you all on the patient.info site for your contribution but wanted to thank you and hope that knowing that your comments here will get a wider audience will be appreciated.

      Best wishes and I hope you all enjoy the benefits of SSD, though perhaps not the Steampunk trumpet!

      Jacqueline

      PS The updated "Hearing Problems" leaflet should go on the site in the next week or two

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      Kiba 13 months ago

      I suddenly got SSD for no reason that the docs know of, "prob a virus". It's been a surprising adjustment, harder than I thought. Great article. Being a electronic engineer and finding headphones a pain, just got a sports head buds set, ripped out the left bud and added my own plug to make it mono, works great! No extra bit sticking out of phone.

      I recommend it.

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      AM 13 months ago

      Hi! I just found out I have SSD today. I am 30 yrs old. Your article made me smile and gave me hope.

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      zion kairua 13 months ago

      bro im not evening kidding you just wrote the story of my life I thought I was the only one but yeahh thanks for the advice

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      Catherine W 14 months ago

      Thank you for writing such a brilliant article. You have totally captured my experiences of SSD. I was diagnosed with SSD when I was 8 years old, but probably had it since I was born or when I had measles when I was 4 years old (nobody is certain because I had 'glue ear'!). Having lived with the condition for 40+ years I have just been told I have 'disability' because the condition has lasted more than 12 months! I have managed to live this long without a label, why do I need one now? Does anyone else consider themselves as having a disability?

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      anil 14 months ago

      is ssd comes in handicap category

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      Yvonne 14 months ago

      Hi, thank you for the best article ever written. I lived with this for more then 50 years. I can totally relate to everything you wrote. I don't think I've had a laugh that good in ages. My family and friends know I spent most of my life living the "Sprint" commercial! It definitely has its advantages & disadvantages and you just gotta roll with the punches! I believe this has made me a high achiever by all means and I am grateful to have "the one good ear!" Lol

      My classmate was born deaf in the opposite ear, (our parents hung out while pregnant?) and all we did was bang heads in the hallway at our lockers until we changed sides our senior year! I like to believe we are all special! Thanks again

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      Casey 14 months ago

      I've had SSD since I was 5 years old, I lost my hearing in my left ear following an infection from having my tonsils and adenoids out.

      I had hearing tests all the way though school and yet it wasn't until I was 18 that I actually had written confirmation from the hospital to say that the nerve in my left ear was completely dead.

      Everything you listed is spot on!

      The hearing in my right ear is perfect,

      and I love how surprised people act when I say I can actually only hear in one ear.

      Thanks for writing this, it made my day :)

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      Will62 15 months ago

      I think God gave me the gift of Single sided deafness so I can sleep without hearing my

      Wife snore. At times it can be very useful, and other times annoying. I went deaf in my left

      Ear within 20 seconds at 50 years old. At first they thought brain tumor when it happened that fast, but after many tests and MRI's they still don't know why. I even had two 1800.00

      Shots of steroids thru the eardrum. I still get dizzy at times and struggle with the downside of this so called Mineares disease but life goes on, you do get used to it. All I can say is be careful and watch out for cars, they come out of nowhere at times. Your other senses become more keen to your surroundings and you will adapt. I do have fun with it, this disability can frustrate people around you and especially your wife. I tell people deal with it, I do! I have a lot more compassion for those that are completely deaf. One of my customers is completely deaf and he told me he would teach me sign language if I went deaf in the other ear. That was my biggest fear at first but it hasn't happened for the past thirteen years. If this has happened to you don't worry you will adapt and you will be ok. Just my two cents, hope this helps someone, there's lots of us out there!

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      Chris d 15 months ago

      I lost my hearing in my right ear when I was 5. This article accurately describes many of my experiences, both in my childhood and adult life.

      However, I am only recently realising the impact SSD has had on my life. Anxiety in busy social situations is common for me. I just struggle too much to follow the conversations. On top of this, I wish people would appreciate how tiring it is to keep up in noisy environments.

      That being said, I will take you advice and make more of a joke of it. Plus, telling people earlier rather than later will definitely make like easier.

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      ree dee 15 months ago

      We just confirmed my daughters unilateral moderate hearing loss she is almost 3 years old. they caught it at her newborn screening. we are going to get her hearing aids as per her ENT and audiologist. Thank you for showing us what she is going through and we love the comment that ssd makes you more intelligent. we see it already- she is above average in all areas not connected to hearing. Its not a coincidence, G-d created her like that its something we thank Him for every day.

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      Victoria 18 months ago

      I've just recently learned that my 5 year old daughter has SSD, just like you her left ear is her "good" ear. I want to thank you for writing this article, it helps me to understand better what she is going through and will go through.

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      navisk3 18 months ago

      Nicely written article. People with SSD in management positions gets problem as he/she uncomfortable in meetings , client interactions and get togethers. Any latest technology/instruments to overcome SSD, please share.

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      Charil 19 months ago

      I've had SSD since I was sixteen (viral infection + TMJ), and I NEVER knew there was a proper term for it until now! I've always felt so alone, and reading this article and the comments, honestly I started to cry a little hahah. Finally, there are people who understand what it's like! I've always felt so alone. Too hearing for the deaf community and too deaf for the hearing community. The article put it into words perfectly. Reading this really made my night a lot better, after a very odd day at work, and though it's a few years old by now, I just wanted to post my appreciation to you for having written it. Thank you!

      And yes, the ability to lay on my good ear and get a nice peaceful night's sleep is one that I very much appreciate :)

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      zaib 20 months ago

      i have had ssd but am happy and enjoying cool life with my one ear :)

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      Shelley H 20 months ago

      Hello, I found this article very interesting in that I've had ssd for as far back as I can remember (I'm 57). I've never known why or when it occurred so believe possibly was born with it. Most noticeably as a teen I was told that some people thought I was stuck up and didn't respond to their comments when in fact I did not hear them. I have had numerous hearing tests that indicate profound deafness on my left side with exceptional hearing on the right. I had a very good laugh about the positive points of ssd. I have no issue at this point in my life of explaining my ssd but I did have problems stating the fact when I was younger. I still experience anxiety within a crowded room but accept missing out on some of the information. I am blessed to have one good ear.

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      Don 20 months ago

      I have had SSD since as long as I can remember. All the symptoms you describe I can relate to. I realize most of these issues after the fact. When I was in college , classes that had lecturers were hard for me and classes with visual aids I did well in. I didnt realize this until many years after college. I didnt realize that hearing people can hear clearly through background noise as well as locate noise direction. I never thought it was a huge problem until recently, I am 65 years old now and look back on my life and realize how lucky I was to be successful in my occupation with this problem. If I had to work with the public like in service related I would be lost and could not hold the job for this handicap. A few years ago I had some kind of virus in my good ear and went deaf for a short period of time. It was stressful not knowing if you would ever hear again. I had to have injections of Dexamethasone in my eardrum and soon regained my hearing. This happened a second time the same year and panic set in again, it took two more treatments to get my hearing back. I dont think most doctors are that knowledgeable about hearing problems. One DR. said I had a virus the other said I had an auto immune defeicency. Who knows , I agree there are some positives , when I got drafted to go to Viet Nam I was rejected, might have saved my life. I find myself choosing hobbies that have no background noise, like golf, skiing, hunting , fishing , backpacking. I also think it is funny I like being with women who have loud clear voices. I hate social affairs that have lots of people talking with background music. As life goes on I jokingly tell myself , maybe in the next life I will get two good ears. Great article I wish everyone who knows me could read it , maybe they would understand better what I go through. thank again.

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      Hello 21 months ago

      I too have been deaf in my left ear most likely since birth, as it was discovered at my first hearing test (in Finland every child's hearing is tested) at the age of four. I can completely relate to this article! As a musician, I struggle weekly especially when performing, and I really hate how I miss out so many things such as stereo audio etc. I wish that I could hear normally someday, even for a few minutes just to hear what my violin truly sounds like! It feels good to know that out there are others who are spinning around when called and who just give up on group conversations in loud spaces because listening is too tiresome. Thankfully I've got lovely friends who acknowledge my ssd and choose my right side or let me choose my place at a restaurant.

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      Mitchell B. 22 months ago

      I have had SSD since a traumatic incident when I was three. Although my deafness is in my left ear, I found myself relating to everything you said. Thank you for this, you put a smile on my face! :)

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      ianken51 23 months ago

      I developed SSD in my right ear at around 40 yrs old. When a teenager I was in Army Cadets and some idiot shot a blank cartridge out of a gun right next to my right ear.

      Over the years my right side hearing progressively worsened until a heavy cold silenced that ear for good.

      I found out about it when I went to see an audiologist after my cold had eased but my hearing was still non-existent. After the tests he asked when was the gun shot noise which deafened me? Gosh it was so long ago I'd all but forgotten it. Then I said that the only incident was some 28 years previous and related my story.

      Yup. He said. That would have been the cause. The damage was done when I had enough hairs in my inner ear to compensate. However, with aging and the heavy flu bout what was left of the hairs have all flattened. Result SSDeafness.

      He said there was nothing to be done, so I've lived with it since. Now I'm 64 and pretty much cope day by day. But my family still don't seem to be able to make the adjustment. I think because there's no outward indicator.

      As I've aged I find I get confused and often give up trying to listen in crowded parties. I usually seek quiet to get some relief for a while. But what really ticks me off is being stuck in the middle of two diagonal conversations. I get bits of each and no real sense from either. Sometimes the result can be quite amusing (mixing bits of conversation) and I have a quiet little laugh.

      But what really frustrates me is how people seem to insist on starting to talk and the finish their conversation while walking away. Now I don't even try to make sense of these fractured conversations. I simply ignore them and when asked why I didn't do such and such, or why don't I listed, I just say "I know what you're about to say. And YES. I am DEAF!" Usually has the desired result.

      Oh. And it makes sleeping easier as I can place my good ear on the pilow and never hear my wife snoring. It also saves on ear plugs as well. Laugh here.

      I love music and really hate it when a record splits channels between ears. On head phones I only get 1/2 the benefit...iTunes please install mono for partially deaf people.

      I've learned to appreciate sub-titles and tend to rely on them. I loathe suuround sound and the current Hollywood fad on near utter silence followed a nano-second later by ear busting explosions.

      But, you know, if I only have to loose my hearing, I guess life's not too bad. I can cope even if those around me can't adjust after all these years. I can see, walk, talk, taste, sorta hear, and enjoy life. So although I have a disability, it could have been worse. :-)

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      Elaine 2 years ago

      Thank you for helping explain SSD for me. We have just found out this week that our daughter who is 12 has had SSD since birth. Your article has really helped us understand something we had never even heard of four days ago.

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      Rimuzin 2 years ago

      This article was really helpfull.. I have lived with SSD and recently had an accident because on a busy road I could not locate a sound.. This article explains the points so clearly...Now, i will forward this to all who does not understand what SSD or wants to know about it.

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      Grzegorz 2 years ago

      My son has SSD, he is 11 years old wonerful boy but SSD causes a lot of problem in school and many comon sitauation in the street in laudly schop ....... I don't know why and when he lost hearing, we finded out this when he was 7 years old. If I might give him my ear a wouldn't have a doubt but it it is impossible. I add that he is very cheerful boy and a very good pupil. We wait when medicine world will explore way how to fix his defness. I'm sorry for my english, we are from Poland.

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      Banana 2 years ago

      This was an incredibly informative and funny article, thanks so much for writing it! I was really happy to find this, it helped me a lot!

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      Lori 2 years ago

      Thank you for writing this! I was born deaf in my right ear and have experienced every one of your points. I had to LOL when I read about "Reacting to loud noises". I can so relate!

      In some situations I forewarn people that I am deaf in one ear. This is important especially when I'm on an airplane and am conversing with someone sitting on my deaf side. This is so that they understand why I turn my head around to face the back of their seat so that I can hear them. (otherwise, they think I'm pretty weird!). I also tell people that I first meet so that they don't think that I'm ignoring them.

      It can be a pain for sure but there are the good points as you mentioned. Thanks again!

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      Livewithit 2 years ago

      I am a 64 year old mom with a loving family, and I was born with SSD and a flap of cartilage instead of an ear. Yeah, it sucks, yeah, you have to make adjustments, but there are worse things in life !

      Growing up in the 50s and 60s, my family and I kept "my condition" a secret. I never got my ears pierced, never wore my hair in a ponytail. I was voted "Class Daydreamer" in high school, which was so much cooler than having kids know about my deformed ear.

      I worked in a greenhouse for a while. If you have SSD you can imagine how that worked out!

      I got my masters degree in education and was a successful, respected and fun-loving teacher. I couldn't be a classroom teacher because the SSD prevented me from locating sounds quickly and nipping the annoying clicks, whistles and whispers in the bud. Devil's in the details! So I worked as Special Ed teacher for decades!

      Honestly, you can get a passport, have a family, sing, live a full and wonderful life! The SSD is just speed bump on the wonderful road of your life! Minimize it! My biggest regret? That I can't hear the wind in stereo as it rushes by my head!

      Thank you for your wonderful, thoughtful article! We special SSD people need to know about each other! In 60+ years I had never heard the term SSD or thought of myself as a person with a disability!

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      Kelly 2 years ago

      My daughter has been deaf in her right ear since birth and has a BAHA, are there any college scholarships for students with SSD

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      SSD love 2 years ago

      @z55177

      People can be so insensitive... Just because I mishear your order and ask you to repeat it (I do repeat back to them what they said to double-check I didn't mishear) or I repeat it back wrong (small sandwich instead of small salad), doesn't give you the right to get impatient and rude with me.

      "Relate much"

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      SSD love 2 years ago

      Hi welcome me to the group I'm so glad that I found this article... Thank you so much.. I feel so welcome to this article... I feel that I'm not alone anymore with this situation.. Unlike before... Anyway i'm searching about my condition (SSD) but then im so lucky that i found this article.. And I'm hoping somebody will help me about my confusion or prob. because I'm planning to apply at Canada.. But I'm afraid to be rejected at medical test... Which will be the reason to deny my visa... Is anybody know about my situation... As far as I know if you are deaf the immigration department will not accept ur visa application.. Im so depress about that.. I really want to achive my goal but im losing hope now bec of my disability... Is anyone knows about this kind of situation? Do I still have a chance to pas the medical exam.. Or get visa approved either? Please help...

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      SSD LOVE 2 years ago

      Hi welcome me to the group I'm so glad that I found this article... Thank you so much.. I feel so welcome to this article... I feel that I'm not alone anymore with this situation.. Unlike before... Anyway i'm searching about my condition (SSD) but then im so lucky that i found this article.. And I'm hoping somebody will help me about my confusion or prob. because I'm planning to apply at Canada.. But I'm afraid to be rejected at medical test... Which will be the reason to deny my visa... Is anybody know about my situation... As far as I know if you are deaf the immigration department will not accept ur visa application.. Im so depress about that.. I really want to achive my goal but im losing hope now bec of my disability... Is anyone knows about this kind of situation? Do I still have a chance to pas the medical exam.. Or get visa approved either? Please help...

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      A R. Marak 2 years ago

      i'm SSD too... Sometimes i feel so worth losted... And gifted to...

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      Harry 2 years ago

      I'm 32 - and can totally relate to this article.

      Other awkward situations I would like to mwention are dinner parties and sports events with people sitting on your deaf side. I have found that people tend to compensate by talking louder directly into your deaf ear ! Also working in a large open plan office - with your boss sitting on your deaf side can cause a whole raft of issues. That said - being honest - and upfront can help - however in my competitive industry honesty can highlight weakness and make you an easy target for ridicule . I have developed a few social coping mechanisms - sitting a little back at dinner tables - telling people my ear is a little "bunged up" when I've got someone on my right I can't hear well - and standing (where possible) in club/loud situations. The trick is early on to ask to change locations / seats early on - simply saying you can hear "better" in your other ear ..... This is often better than barely being able to hear someone and hence not connecting with the conversation . Also location hearing can be improved with a little practice and intuition . Thanks for this post

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      Ger 2 years ago

      Hi, I have only recently been diagnosed with SSD and am still coming to terms with it. The article really helped me to see how to deal with situations and find others who understand. Since losing hearing I have not been to any parties or out drinking and was wondering what the effects are? Are nightclubs now much more difficult? Does drink affect balance more etc... ?

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      rahul mishra 3 years ago

      dear sir,

      I am deaf in one ear.

      Can i get a 40% physical disability certificate

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      elena 3 years ago

      Hi! I've been deaf in one ear since I was 3. I'm 19 now. I totally relate to the article. I think I cope well with it, and I'm starting to joke about it so that's good.

      I had an hard time with it while in high school because my class was really noisy and overcrowded. I wouldn't hear people calling me and I couldn't always correctly locate them, so I had to keep turning my head hoping to see them. Some of them thought it was funny and... I don't wanna remember that.

      Now that I'm starting to drive, my bad ear is the right one, the passenger seat is on the right... jeez, I have to strain my hearing and use all my brain to understad what's going on there.

      I'm very good at lips reading tho, so in some social situations (pubs, clubs and where it's noisy but I am free to position myself) I have it quite easy.

      I'm going to try the CROS hearing aid, let's see how it goes. I'm a bit scared to go around with a hearing aid, don't know what others are going to think. I know I shouldn't care, but I'm pretty worried.

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      stacey 3 years ago

      I have SSD as well, and its pretty difficult at times, I feel alone, and feel as if people pitty me after ive told them about it.

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      Robert 3 years ago

      I became profoundly deaf in one ear and lost the use of my balance organ just about a year ago. I am bookmarking this page for those moments when it gets difficult to cope. It's reassuring to read that the things I find difficult are completely normal with SSD, and great to read all the positives! Thank you

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      Sarah 3 years ago

      Hey, Thanks. Really great article, can't believe that it has taken me this long to look up info about SSD. I have been deaf in my right ear since I was three, I am now 36. I was diagnosed with Whooping cough and this apparently damaged the nerves to my brain, causing permanent total deaf in one ear.

      I love the bit about spinning round to find your friends, I totally do the same thing when trying to locate someone shouting at me from a distance. My friends and family have also finally got used to me suddenly changing sides on them when we are out walking down the street. Its so hard to walk straight when your neck is craning so far to right that you are nearly looking backwards, just so that you can hear what they are saying.

      Great to know there are many more SSD people out there, managing to have successful lives whilst learning to live with a hidden disability.

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      Ram 3 years ago

      I feel extremely connected in reading through your article. I have been suffering due to SSD from the age of 15 and it had a serious impact on my male personality and it gradually eroded my confidence and i was unable to find my sexual partner for quite a long time and i made a compromise in selecting my partner at last when i married at around the age of 30.I am now 40 and here i would like to present some thing that i have written in my personal diary few weeks back before i saw your article. I would be glad if you can reply to my post.Please read these following lines ..

      I always have a feel that because of my disability, which has become quite glaring now, I can be ridiculed in public by people and so I tend to act in a very submissive and lenient way with the people and I will try to become close with the people by opening some of my other weaknesses and also by treating my own self very shabbily in a very self deprecating manner, I believe that I will not give roam for others to hurt me. It is more like hurting my own self before others do. What really happens is, many people will pity me and due to sympathy may treat me like a child and will not hurt me. But whether this has worked out or not is a big question. The question that I have to ask myself is whether a Disabled person can live a dignified life in this world. I am not fully crippled but still in some places it is quite obvious that I am disabled to a good degree. Though there are advantages in living like a kid, but for a matured human being it is extremely bad in getting treated like a kid. It is important for me, to change my behavior and I should not let others to take control of me. I am not getting things done through a stern assertiveness but by going down from my level and through submission of my ego. Whether really I like this kind of behavior is a serious question? I feel hurt and impotent

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      Lauren 3 years ago

      Can't believe how scarily true this post is, I knew people suffered from this but I didn't know it was this common.. I myself have suffered with SSD from an early age.. my mum always used to shout me from downstairs and obviously I could never hear her, she thought it was just me being ignorant and choosing not to hear her so one day she took me the hospital to get my ears syringed thinking this would work and still my hearing was no better. I then went through all the necessary tests and the MRI scan confirmed it. I've always had good grades at school and it has never stopped me from doing what I want to do. Everyone who knows me knows to automatically jump to my right (good) ear so I can hear them properly :).

      Can I just ask as well when anyone was diagnosed with this did the doctor say this could prevent you from travelling to tropical countries, because the vaccinations people need before they travel there's something in that that could make you go completely deaf? bare in mind this was a long time ago the doctor told me this when I was diagnosed but every time I have mentioned it now to new doctors they haven't a clue what I am on about!?

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      Louisa 3 years ago

      Can I please copy your photo of the ear which says 'out of order' onto my blog?

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      Jamie 3 years ago

      Thanks so much for this article! I was born deaf on one side and never knew why I could never locate my phone when it was ringing and hear where sounds came from! Now i know it's not just me and that loads more people suffer just like me!

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      graeme 3 years ago

      Thank you so much for writing this article, I too had no idea that ssd was so common. I lost my hearing in my left ear completely by the time I was 6 due to problems with my ear drum and repeated infections which meant repeated operations to cut out all the internal components of my ear. Now I'm 29 I have no memory of what it was like to be able to hear in both ears and everything you talked about in your article rung true with me. My dad also had the same thing happen to him when he was 3 years old which led me to believe it was hereditary. We're having our first daughter in 4 weeks and I'll be keeping this article for her to read if she turns out to have ssd. Again thank you for writing this article.

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      Tess 3 years ago

      your article is spot on. I have had ssd since birth. And can relate to everyones comments as well. For me as a child it was very confusing especially in school. Teachers did not have an understanding of ssd. It was a very frustrating time for me. And I fell victim to bullying.

      Now as an adult I have embraced my life and have learned that life is about adjustments.

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      Raghav 3 years ago

      Very descriptive article, I can relate to almost everything in there..... complete deafness in my right year since birth.... And some nice tips in it too, next time i go to a movie with someone who knows the dialogues, they r sitting to my right.

      ps: things u forgot:-

      1) Easy to tune out your mom when she scolds u, but if she says "what did i just say", ur screwed

      2) friends who know about ur condition give you their awesome ear phones once they have damaged one side, i have a whole collection, everything from skullcandy to bose, courtesy of a music loving friend, who breaks a new one every 6 weeks

      3) sometimes people who know about it, including family, dont exactly realise how it can affect u in everyday life, and it gets awkward... really awkward, dont even remember how many extra scoldings i got from my mom for "not paying attention", coz thats the only i could explain not listening to things....

      4) I use 3 alarm clocks and still sleep through em while the entire corridor in my hostel woke up from em, left ear tighly against the pillow again.... then again.... my roomate's alarm doesn't wake me :P

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      Justin 3 years ago

      Im 25 and lost 98% of my hearing in my right ear when I was 19.. just woke up from a nap and my ear started ringing and never heard a sound out of that ear again.. I had the bone anchored hearing aid (Baja, Ponto) and it was nice at first, but jusr sits in my drawer now.. some of you might benefeit.. do the research

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      Claudine 3 years ago

      Great article. I can totally relate to all of your experiences. I can hear on my left ear and totally deaf in my right ear. It's good to know that I'm not the only one who suffers with SSD. It motivates me to do more and never pity myself about my situation. I'm thankful because at least I can still hear. Thank you for writing this article! :-)

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      Daniel 3 years ago

      I love this article . I became SSD after having a tumor removed from the hearing nerve on my left side in 2005 and have had SSD since Many of these things you mention in this article I have experienced and just would like to say its is difficult to deal with on certain days but others are better hang in there everyone with SSD and be strong

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      Linda 3 years ago

      Fantastic article. This could have been written about my experience. The chinese whispers game was a favourite at my old Guide unit. I hated it, until one leader realised and simply reversed the way round the circle the game went. Another example of somebody being prepared to adapt, but treat a child normally. awesome. My favourite was being able to sleep in University halls of residence even when the person in the room above me had really poor taste in music and liked to play it late into the night.

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      Kerry 3 years ago

      I can totally relate to all of this! I've been half deaf in one ear for 3 years now since I was 16, I don't know why! I have a hearing aid and I don't find it helps at all, the screeching of it distracts and frustrates me so much. Sometimes I find it really overwhelming especially when you become the topic of peoples jokes. I never knew you could get a mono splitter so I am definitely going to have to invest in one because I love music and barely hearing it on my headphones is an actual nightmare!

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      claire b 3 years ago

      Wow! Made me smile and feel sad at the same time.i have 2sons that are h.o.h. my 14yr old has recently had 2operations on his left ear to remove chlosteatoma. It had damaged his bones in the ear and they have made his ear canal larger now and he wears and aid to help him at school. He lip reads alot and is tired after school but copes really well. Although i knew some of what u wrote u opened my eyes even more to it now.my other son who is h.o.h is 3yrs old. He had his first set of h.aids at 10wks old.his h.tests r never the same at the moment. All we know is he is mild in the left and moderate in the right. He is amazing as his speech and learning is on target and above for his age and i owe that to my eldest son because of his understanding and experience in the deaf world. Thanku so much for writing this. :)

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      Angie W 3 years ago

      I was so happy to find your article...gave me something to relate to! I have SSD after, get this, holding in a sneeze! Oye...the specialists said that my eardrum is fine but they think I tore a tiny membrane way in the inner ear, which can obviously never be repaired. It was very nice to see that others feel the same as I do...and PS I really want that sign in the photo for when I'm in areas with alot of people! lol

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      RFB 3 years ago

      Your description was perfect for me, except for your "deaf side", which is the opposite from mine. I have perforation of my left eardrum and you said all the things I often have to explain to people when they try to whisper something at my ear. (Oh lord, please don't.)

      Thanks for sharing this in such perfect words. I have already spread the article to my entire family, so that they will finally understand why I actually enjoy some consequences of my partial deaf.