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Losing My Eyesight to MacTel (Juxtafoveal Telangiectasia) - My Camera Shows Me Much More Than My Eyes

Eyes
Eyes
Source

MacTel is taking my sight

I'm losing my eyesight to a disease called MacTel, also known as Idiopathic Juxtafoveal Macular Telangiectasia. For years, I have had problems with my eyesight. Mostly, just little problems; nothing I couldn't live with.

I started to notice, however, that even with my glasses on I was closing one eye to read or look at the computer.

My mother thinks my computer caused my bad eyesight! It didn't. I’m starting to notice I’m not seeing things at a distance very well. Mailboxes and signs look like kids on bikes to me. The birds land in the feeder, and I can’t tell what they are anymore unless I go by color or general size. I said to my husband, "Look at the bird." He said, "It's a chipmunk."

My symptoms are blurred vision. Straight lines appear wavy or crooked. I can't read cans or the back of boxes anymore. Any kind of small print is just impossible. I notice now my eyes get a tired feeling easily. I have trouble with real bright colors; they hurt my eyes. Some days my eyes are better than others. If my eyesight is suddenly gone one morning I'm supposed to call the doctor. Duh!

My camera sees more than I do. I always have it on the table, and sometimes I use it to tell what things are. I have magnifying glasses all over the house. I now have trouble reading regular books, but my Nook works great. It lights up, and I can make the fonts larger.

This is not macular degeneration. Many people think it is.

Researching

I hate the thought of losing my eyesight, but I think one morning I may wake up and it will be gone. The doctor wrote the name of my condition for me, and this is what he wrote: MacTel, or Juxtafoveal Telangiectasia. I asked him for information, but he had none to give me. He really has not given me any hope of anything being done for this disease. I have had all sorts of tests done.

I had to do some research on the Internet and, believe me, there is not much on MacTel. It causes central vision loss in the eyes. It’s sort of a rare disease. The way I understand it, the blood vessels leak blood or clear fluid into the fovea. It makes things look distorted.

It can cause paracentral scotomas (blind spots).

Trees.
Trees. | Source

The Treatments

The doctor told me there was no treatment, but I found out that laser treatments or cryotherapy injections can be done. The doctor keeps telling me I have this from diabetes. I think if anything has caused it, it would be my heart disease, which I've had for 27 years.

Yet, I don't take medication for diabetes. I have also read they don't know what causes this disease.

A friend of mine wrote her eye doctor in Florida, and he said they should be doing more for me than they are. He mentioned all of the above items as being potentially helpful.

Eye Check Ups

I hate going for my eye checkups. Some days my eyes are better than other days, and if I go on a good day when I’m going for my glasses, I worry they will not give me strong-enough glasses.

Last week I went for my eye checkup and told the lady testing my eyes I could only see the first two letters on the chart. I told her if I turn my head almost upside down I could see the other letters. She said, “Well, do what you have to do.” I thought, is she kidding? I can’t wear my glasses upside down or keep my head upside down. I have cataracts that need to be removed, and I'm sure I could see much better if they were just removed. But because of my MacTel condition they won't remove them. I know I can’t bring back my eyes, but I wish I could stop them from getting worse.

The Amsler recording chart to me looks all wiggly.

Can I wear my camera

I wish I could wear my camera against my eyes all the time. It works great I see so much better. I can’t use the little box I have to use the eye hole to take pictures and now I'm having trouble telling if the picture I'm taking is blurry or not. I would hate to miss all the beauty I see all around me. Like the pictures I took yesterday and this morning in the yard.

If you see spaces in my writing please let me know because this is what I don't see. I type fast and sometimes type and put in spaces by accident and when I look and reread my hub I don't see those spaces.

I think it's pretty much time for me to check with a different doctor.

Our yard today was full of monarch butterflies I would hate to never see them again.

When I told my sister-in-law how I had to keep one eye closed. She said, "Oh no, you're going to get wrinkles on one side of your face." My sister-in-law is a sweet nice person. I thought it was so funny and typical of her. I wish I had her talent to make people laugh.

Many pairs of glasses.
Many pairs of glasses. | Source

My Symptoms

  • Blurred vision for a very long time
  • Sunlight hurts my eyes, really hurts them. I can't see much of anything in the sun. While walking around the garden area, I couldn't tell what the flowers were this didn't happen to me last year. I don't have this problem if I have sunglasses on.
  • Objects either look far off when they're really close
  • I'm also now getting haziness over my eyes, and I'm not sure if it's MacTel or something else.

Now, I don't know if all these symptoms have to do with MacTel, but that is what I have noticed.

I keep my left eye closed while reading or watching TV. My face gets so sore from doing this. If I open my left eye it makes my eyesight blurry, but if I close it my right eye is so much better. It allows me to see without the interference of the left eye.

My left eye is the worst. When I close my right eye and look at the highway with my left eye the highway looks like there's an earthquake happening. You've seen it on TV when there's an earthquake and the road gets all wavy. This is the way the road looks to me. I would hate to have to give up driving.

Source
glasses.
glasses. | Source

If you had to lose something would you rather it be your hearing or your sight.

See results

Amsler recording chart

Mayo Clinic

Just an update for 2013. I did go to Mayo clinic to get my eyes checked. The minute the doctor walked in the room I knew I had picked the wrong doctor his attitude right away showed he wasn't going to do a thing for me. He went just by what was on my record and didn't do any test of his own. He did tell me I should be able to have cataracts removed but didn't seem to want to be the one to do it. He said I would never go blind but would not be able to drive or read. Well, how bad is it about as bad as it can get. He acted like it was nothing. I'm grateful I won't be completely blind.

When I got home the doctor I had here moved so now I have no doctor. I wonder if they fired him. I have to find someone so I'm still looking around.

I have trouble reading things like pages from Family Video below. I can see the first page but have to get a magnifying glass for the second page.

I ran into a friend recently and she put her finger on the lens of my glasses thinking it was falling out. It wasn't they are so thick now they look like they're falling out of my glasses.

Can't read.
Can't read.

Our Kids

Our kids are grown. They don't ask questions about my eyesight, and they look at me like they don't believe me when I mention it. I will only be able to get around our home and the yard, but will not be able to go outside the home and drive or be able to read.

It's 2015 now. I just recently went to the eye doctor. My right eye was a worse, mostly from cataracts. They are not ready to remove them. I knew my eyes were worse, but this last year I have not had enough time to worry about it.

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Comments 68 comments

moonlake profile image

moonlake 8 months ago from America Author

LaDonya, Thank you so much for stopping by and telling your story. I'm sure your information will help anyone who stops by this hub. I have been experiencing a blind spot in the center of my left eye. It started about two weeks ago guess I'm going to have to go in and get it checked. It would happen right now when I am so busy packing for a move.


LaDonya 8 months ago

Three years ago I was diagnosed with MacTel 2 (MacTel in both eyes) - the liquid form. Within a year I was disabled as "legally blind" which does not follow the little know information they have on it as taking around 10 years to lose your sight levels. My eyes continue to progressively worsen, and recently my diagnoses has been changed to MacTel 3. A rare condition within the rare condition. I wanted to share because MacTel 2 is not this aggressive, and if your eyes break at a rapid pace and you notice blood or an orange tinge in the liquid, be sure to tell your doctor. The MacTel 2 condition has no good treatment - avastin helps some but overall it is not a significant enough improvement to warrant that intervention - but if your MacTel 2 warps into MacTel 3 - the shots can help the extreme level of fluid left by the breaking and reduce leftover scarring by relieving some of the liquid, however temporarily, so every 6 week shots are best with MacTel 3. I did not know I had MacTel 3 for some time, just thought it was part of the MacTel 2 progression to break like that, so I have irreversible scarring that could have been lessened somewhat by a shot regime. Make sure you check with your doctor first sign of changes, even if you have been told there is no good treatment, known cause or cure. MacTel 2 can turn into MacTel 3 very rapidly. I have an excellent specialist - ranked #1 in USA and #3 worldwide on this disease. I use a big screen tv as a monitor and have 15% central left in my left eye only now. It can change on you quickly and even under the best of care can be seen as MacTel 2 until the excessive breakage begins. They are working on better treatments and the known cause and a cure, so stay hopeful! I hope this helps someone. Blessings!


moonlake profile image

moonlake 8 months ago from America Author

Mary, I'm sorry to hear you have Mactel. I wish I could give you more information on it. My doctors are not telling me much just stronger glasses. I have not been able to think about it much in the last two years because of things going on in my life. I'm moving and will be closer to another clinic and hope I can find out more. I have noticed a larger spot in the center of my left eye. I want to find out if that is another change. There is a group on Facebook maybe that will help you. https://www.facebook.com/TheMactelGroup


Mary 8 months ago

Hi. I just found out my diagnosis of Mac Tel 2 March 30. 2016. I had been having problems since last Feb. and have been from eye Dr. to Neurologist, to family Dr. back to Neurologist and eye Dr. and finally a retinal specialist who diagnosed me. I am floored to say the least. I have vision loss in both corners of my eyes, right more than left. I could describe it more but I am sure you know. I have been searching for discussion boards on the disease to see what treatment others have had/ or getting. Each one I find has no comments for years or months. Am I to believe that is it? Nothing can be done? All I can do is sit and cry because I have so much living and seeing to do. The information I find is varied. I just would like to talk to someone with this disease to maybe get a better understanding. I feel lost.


moonlake profile image

moonlake 16 months ago from America Author

Vinayaga, sorry to hear you have MacTel it's an awful disease to have. I wish you luck with it. Maybe doctors will figure out something. Thank you for stopping by my hub.


Vinayaga 16 months ago

Hi Moon lake

I have been diagnosed with Mac tel last month.I am reading lots of article.My doctor also told me that there is no treatment for this.I am planning to get a second opinion but not expecting much. I love my job. I got 2 little kids. I am worried.I share your pain


moonlake profile image

moonlake 18 months ago from America Author

jill, Thank you for stopping by. I'm sorry to hear you have Mactel. It's awful to live with. I went to the doctor yesterday knowing my right eye was worse. He said my catracts in my right eye are worse but not ready to be removed. He increased my prescription and he said he wanted me to get polycarbonate lenses. It's safer he said and it would help keep my better right eye safer and my glasses would weigh so much. They keep asking me about diabetes but I don't have it and I have never had high blood pressure. I agree with you, the reading and looking up, everything looks blurry.


jill 18 months ago

I thank you so much for the detail you have given on the symptoms. I was diagnosed with mactel 3 years ago after being told I had macular degeneration for 12 years. I saw a new retinal specialist after mine retired. The Mactel diagnosis was confirmed by a noted retinal specialist at the Kresge Eye Institute. I am now part of the Mactel project in Ann Arbor, Mi. Just this week my new retinal specialist told me he is guessing that the distance bluriness I am experiencing may be due to cataracts and that I might consider having them removed.

I want to thank you for your blog as I have never understood what the progression of the symptoms is. I started having problems seeing clearly at a distance down the freeway some 10 years ago. Now the bluriness is at about 300 feet on the freeway. If reading for more than 5 minutes, when I look up, everything is blurry and it takes a long time for my eyes to readjust. They tell me this is due to dry eye and a corneal dystrophy. I am 66 and have never had diabetes or high blood pressure.

Thanks again.


Claudia Zahn 2 years ago

hello Moonlake,

I also have Mac Tel type 2. Dxed in Oct. 2012

Please join us on this site of people all over the world that have MacTel

http://www.inspire.com/groups/rare-disease-and-gen...

You will be glad you did!

Best wishes,

Claudia Zahn

Temple, NH USA


moonlake profile image

moonlake 3 years ago from America Author

FlourishAnyway, Your right I do need to go to someone that understand this diease more. Thanks so much for your concern and prayers and thanks for stopping by.


FlourishAnyway profile image

FlourishAnyway 3 years ago from USA

I am sorry, moonlake, for the stress and pain that this is so obviously causing you. Although I do not have the same condition that you have, I did lose the eyesight in my left eye due to MS completely about 10 years ago (although it eventually came back). I did not know, however, through the ordeal whether it was permanent or whether the other eye would be next. The terror and physical pain that I went through at the time were off the charts. The color red was very physically painful to me. I started seeing in black and white. My visual field narrowed then went dark. I had stabbing pains in my eye and even though I was blind in that eye in the dark there was a light source that felt like it was internal to my head. (The neurologist said it was probably neurons firing.) I felt isolated, like no one could who had their vision could understand. Please get a good doctor, even if you have to have someone take you a good distance to get to one. Aren't you in NC? If so, try Duke? How about flying to the Cleveland Clinic for good advice since you got a turd for a doctor at Mayo? You are in my thoughts and prayers.


moonlake profile image

moonlake 3 years ago from America Author

Indian Chef, Thank you I appreciate your concern. I hope something good happens soon too. Thanks for stopping by and for the vote.


Indian Chef profile image

Indian Chef 3 years ago from New Delhi India

Moonlake I am really sorry about your eye sight and the disease you are suffering from. I hope soon someone finds a good cure for this . Voting it up.


moonlake profile image

moonlake 3 years ago from America Author

CraftytotheCore, Thank you, I can tell my eyes are worse. I use to at least open my left eye when I wasn't writing or reading but I seem to be keeping it closed more now and I get so tired doing that. I appreciate you coming by.


CraftytotheCore profile image

CraftytotheCore 3 years ago

I'm so sorry you have to go through this. My uncle has an eye disease. He gets injections in his eyes. I can't imagine that.

I can totally relate to what you said about the doctor having the attitude right off the bat that you knew he would not help. I've had my share of those recently too. Such a shame.


moonlake profile image

moonlake 3 years ago from America Author

Au fait, We have had to deal with Marshfield Clinic before and I am not crazy about them. We go to Wausau for most everything. I think for my eyes I may have to go to Madison. I have heard of a doctor there. My eyes have gotten worse. I often miss things. Thanks so much for prayers. Thank you for the vote, pin and share.


Au fait profile image

Au fait 3 years ago from North Texas

I'm so sorry to read about this issue you have with your eyes. Have you checked with the Marshfield Clinic? I haven't been up there in years, but they always used to be the go-to place for unusual health issues. Like some of your other commenters, I too pray that a solution will come along soon that will save your vision.

Voted up, useful, interesting, pinned to my 'Health' board, and will share.


moonlake profile image

moonlake 3 years ago from America Author

penny cranham, No time scale each person will lose their eye sight on their own time scale some faster than others.


penny cranham 3 years ago

is there any time scale for mac tel2


moonlake profile image

moonlake 3 years ago from America Author

blujayne, It sounds like we do have lots in common. I just hate that not much can be done attidude but all eye doctors seem to have that. Thanks so much for stopping by and leaving a comment.


blujayne 3 years ago

I am losing my eyesight to MacTel as well. I just learned this about three months ago after a very rapid decline in my vision. I found you while researching the idea of a second opinion. My eye doctor treated me for 3 months with Avastin injections and now has a kind of meh...not much can be done outlook. I love my camera too. It sounds like we have tons in common.


moonlake profile image

moonlake 3 years ago from America Author

DDE, Thank for stopping by. It does sound like you need to get your eye checked good luck I hope it won't be anything serious.


DDE profile image

DDE 3 years ago from Dubrovnik, Croatia

An interesting piece of information something I never heard of but also have a it of a weak vision in my left eye must have it checked, and the more opinions you have the more you can consider your options.


moonlake profile image

moonlake 3 years ago from America Author

Tom66, Thank you for all this information I will have check into it. I appreciate you stopping by and leaving your informative comment.


Tom66 3 years ago

Hi Moonlake,

I was diagnosed MacTel1 4 months ago and searched around for more informations.

MacTel-Project published the 5 years follow-up and confirmed that oxidative stress could cause the symptoms.

Estradiol is known to be neuron-protective and anti-oxidant, you should maybe ask your doctor to check your estrogen levels.

Moreover MacTel2 is completely unknown in Japan, MacTel1 start only after 60 y.o. (usually 40 y.o.).

Japanese people consume a lot of Soy products containing a phyto-estrogen: Genistein.

Maybe the same effects as Estradiol...

1) Anti-oxidative diet (remove free sugar!)

2) Soy products (soy milk, soy yogurt, tofu, miso soup)

3) Estradiol (eye drops?)

And finally don't give up !!!


moonlake profile image

moonlake 3 years ago from America Author

LadyFiddler, Thank you for the information will have to check that out. Thanks so much for stopping by and leaving a comment.


LadyFiddler profile image

LadyFiddler 3 years ago from Somewhere in the West

hmmm i am very sorry to hear about this cruel disease that can take your whole eye sight. I too wear glasses 13yrs now i am just 25yrs old and my eyes are dim i won't ever like to lose my sight or hear of people who do just makes it even more sad.

My friend husband was having some eye problems and she has this medicine book of various home remedies which there is a Bragg's apple cider vinegar cure you can google it to know how to mix it. Only the braggs vinegar eh don't try heinz and they'll tell you what to do okay. I myself tried it and it will burn for a few seconds but close your eyes tightly with you put the drops after your eyes will feel very fresh and clean.

My friend husband is seeing much better also a dog and a man eye was cured from cataracs from the braggs you can do your research.

please try it at least in one eye first


moonlake profile image

moonlake 3 years ago from America Author

rslj123, Thank you for stopping by. You are the first person that I have heard any say that they had laser treatment.

I'm sorry to hear about your eyes. I would bery much appreciate you letting me know how it goes with your eyes. At least the doctors are talking about it mine won't even do that.


rslj123 3 years ago

Hi. I'm really glad to find this blog. I was diagnosed with mactel 11 years ago when I still lived in the UK. I had cold laser treatment and the eye has been stable since the treatment although i lost some central vision which could not be restored. Since the end of January 2013, the other eye is affected and affects all of central vision with the same symptoms you describe. I've seen 3 specialists up to now, and it's looks as if they going to try cold laser again (they're still deciding). I'll let you know how I get on. But I agree with the other comments, try different doctors and and find a good specialist.


moonlake profile image

moonlake 3 years ago from America Author

rajan jolly, Each day I can tell it's getting worse. I now have trouble seeing things on the TV. I'm going to keep trying to find something that can be done. Thanks so much for stopping by and leaving a comment.


rajan jolly profile image

rajan jolly 3 years ago from From Mumbai, presently in Jalandhar,INDIA.

Like onlygrace, this is the first time I'm learning about this eye disease. I can understand how difficult it is to know there is no treatment like your doc says. But docs do have different experiences and maybe you will find one who has an answer to your problem. I wish you luck and stay positive.


moonlake profile image

moonlake 3 years ago from America Author

onlygrace, Thanks for stopping by and for the encouraging words.


onlygrace profile image

onlygrace 3 years ago

It's my first time hearing the term "mactel disease". I know it's hard to lose an eyesight. Be strong, don't give up, there must be a cure for your disease.


moonlake profile image

moonlake 3 years ago from America Author

vespawoolf, I think you're right about the research. I'm also going to try and find a better doctor here. The clinic I went to was pretty upset when I canceled all appointments with them. A few days later I got a letter from my retinal doctor saying he was moving. Makes me wonder if I wasn't the only one that didn't like him.


vespawoolf profile image

vespawoolf 3 years ago from Peru, South America

I hope all goes well. I just think sometimes it takes research and perseverance to find the right doctor, but he's out there!


moonlake profile image

moonlake 3 years ago from America Author

vespawoolf, I thought I heard about one at the UW Wisconsin so I'm going to check it out. When holidays are over I will start looking for someone. Thanks so much for stopping back I appreciate your concern.


vespawoolf profile image

vespawoolf 3 years ago from Peru, South America

I really believe there's a doctor out there who can help! It's just finding him that's difficult, but I will certainly let you know if I hear of one. Please don't lose hope.


moonlake profile image

moonlake 3 years ago from America Author

vespawoolf, My trip to Mayo was pretty useless. I had a doctor that came in with an attitude and I could see he was not going to help. He said I would never go blind but would not be able to drive or read. If I could just find a doctor willing to remove the cataracts that would help so much. If the cataracts stay I will be blind.


vespawoolf profile image

vespawoolf 3 years ago from Peru, South America

My goodness, I'm so sorry you're losing your eyesight! I know you enjoy beauty and it must be very difficult to have a disease for which there is no cure. Medical treatments are always improving, though, so I think there's hope that something could be found to at least slow down the digression of your vision. My heart goes out to you.


moonlake profile image

moonlake 4 years ago from America Author

wilderness, Thank you for stopping by and leaving a comment. I will keep looking maybe after holidays and if the world is going to end on December 21, 2012 why bother. I'm not going through all those test if I don't have to. Haha


wilderness profile image

wilderness 4 years ago from Boise, Idaho

So sorry to hear of your mac tel. From my fight with cataracts, and my mother's with macular degeneration, I understand what it means to lose your sight and sympathize greatly with you fight.

Keep looking, moonlake - technology and knowledge change all the time. Something could always change in either area, but you can't depend on any one doctor to be aware of everything even in their own speciality.


moonlake profile image

moonlake 4 years ago from America Author

coffeegginmyrice, Thank you so much for stopping by and leaving a comment. I'm hoping my sight will get better but I don't think it will. Who knows maybe they will come up with a cure in my lifetime. I appreciate you stopping by.


coffeegginmyrice profile image

coffeegginmyrice 4 years ago from Toronto, Ontario

You have Visions- these are the inner vision and your vision capturing the wonder of life and sharing to all of us your talents here. Keep up your hopes and pray to heal your vision to perfection. Take good care, moonlake!


moonlake profile image

moonlake 4 years ago from America Author

Retro2, If you look on my hub you will find a place with people that have Mactel go and blog about it. I just found this not sure if you had found it.


moonlake profile image

moonlake 4 years ago from America Author

Retro2, It sounds like your hearing the same thing my doctor has said "Nothing can be done." Maybe Mayo will have some other ideas. If I go there and they say nothing can be done than I will be ok with that. I would like to have my cataracts removed I think that may help. Not sure if even Mayo will do that. You can always send me an email through hubpages and I would be glad to discuss this with you.

Please let me know how your appointment with the doctor goes. Thanks so much for stopping back by.


Retro2 4 years ago

Moonlake, thank you so much for your reply. I will be very interested to hear how you make out at Mayo Clinic. I know this disorder is rare, but we can't be the only two people that have it. I will be going to Columbia University on Aug 30 th for my one year examination. It will tell me how the progression of this is going. My doctor there tells me never to let anyone do anything to my eyes. I understand that some of the treatments doctors have tried for this actually makes it worse.

I hope you will receive some helpful answers from the doctors at the Clinic.

. Sometime it would be helpful to discuss the details of our symptoms and see how they compare and the ways our overall vision is effected. Thanks again for your post. Regards, retro


moonlake profile image

moonlake 4 years ago from America Author

Retro2,

They have gave me so little information on this disease. In Sept I go to Mayo Clinic and maybe than I will get more information. Like you I don't know anyone else with this. I'm sorry that you have this but it is nice to hear from someone that knows what I am talking about. Thank you for stopping by.


Retro2 4 years ago

Hi moonlake, I also have juxtafovial telangiectasia type 2. Was diagnosed in 2010. I am so excited to hear your posts, as I have never been able to find another person who actually has this also. I searched the web ever since being diagnosed and never found anyone else. I hear every word you are saying about the hopelessness and lack of resolve for this terrible condition. I live in New Jersey and have been seeing a really top retinal specialist at Columbia Univ. would love to share more with you if you are still monitoring this web page.


moonlake profile image

moonlake 4 years ago from America Author

Cathleena Beams, Thank you, I'm now just waiting to hear from Mayo Clinic. Hoping they have received my records. Thanks so much for stopping by I appreciate it.


Cathleena Beams profile image

Cathleena Beams 4 years ago from Lascassas, Tennessee

Moonlake - I hope when you get your second opinion, it will be good news and that corrective action is taken in the near future to restore your sight.


moonlake profile image

moonlake 4 years ago from America Author

Ely Maverick, I'm sorry to hear that. It's terrible when you can't see. Thank you, so much for stopping by.


Ely Maverick profile image

Ely Maverick 4 years ago from The Beautiful Archipelago of the Philippines

Visual problems dominate my days for many years now. I have to wear those heavy spectacles in order to have a glimpse with what I write.


moonlake profile image

moonlake 4 years ago from America Author

tillsontitan, Thank you, I will try to see what I can do to see another doctor. I don't believe this doctor does care what is going on with my eyes. My daughter-in-law said if I get to another doctor I may find out the doctors here are completely wrong about what is going on with my eyes.

Thanks, so much for stopping and for prayers.


tillsontitan profile image

tillsontitan 4 years ago from New York

While you have a well written hub the subject is a sad one. Your photos are beautiful. That being said, you really, really need to get another doctor. The Mayo Clinic sounds like a good idea. Don't rely on one doctor who isn't helping you and from what you write doesn't seem to really care. Please go to the Mayo Clinic and see what can be done! I will keep you in my prayers.


moonlake profile image

moonlake 4 years ago from America Author

Joyce, Thanks I will start looking tomorrow. With all that has been going on I haven't had a chance to start looking. After my friend talked to her doctor I knew I had to do something.

Thank you, for the comment and for the vote.


writer20 profile image

writer20 4 years ago from Southern Nevada

Moonlake, I'm so sorry to read your hub today but PLEASE find another doctor because the one your seeing doesn't seemed to care.

Voted up awesome and interesting, Joyce. GO AND FIND ANOTHER VERY SOON.


moonlake profile image

moonlake 4 years ago from America Author

If I can find a doctor that would do it I'm willing to take the chance on having the cataracts removed. I think they are a good part of my problem. My sister also had the lens implants and she doesn't have to wear glasses. I don't think that will happen with me because of the Mactel but the cataract removel may help. Thanks, so much for stopping by.


Pamela99 profile image

Pamela99 4 years ago from United States

moonlake, I am glad to hear you are going to Mayo Clinic since that are so well known for top quality medical care. I think that is a smart move on your part. I had cataract surgery a few years ago due to long term prednisone use. I wish they could do that for you also, as I got lens implants that corrected my vision. I had worn glasses since I was 13 and now I don't need them. Good Luck.


moonlake profile image

moonlake 4 years ago from America Author

Pamela99, I have a family member that lives by Mayo clinic and he has wanted me to come there and I think that's what I'm going to do. I need to at least get it checked by someone else. I may get the same answer but I would like to have another opinion.

Thanks so much for stopping by I appreciate it.


Pamela99 profile image

Pamela99 4 years ago from United States

Moonlake, I am sorry to hear that and I am not familiar with that disease. I write about a lot of diseases since my profession was nursing. I would certainly get a second or even a third opinion as necessary. All eye doctors are not created equal. A family member had a bad experience with one, then I found someone in my church had an even worse experience with the same doctor. I wish you the best and sure hope your vision doesn't get worse. Vision or hearing is a very tough choice.


moonlake profile image

moonlake 4 years ago from America Author

diogenes, This clinic has been here for years. I stop going to them 30 years ago because I hated the place. Than had to go back there because there was nothing else available I just hated it. Thanks Bob for stopping by.


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moonlake 4 years ago from America Author

Peggy W, Thanks, Peggy I will keep looking and trying to find a different doctor that comes up with something else that can be done. Thank you so much for stopping by.


moonlake profile image

moonlake 4 years ago from America Author

kashmir56, Thanks, for stopping by I'm so glad you got your eyesight back. I will keep looking but in all of this I have to make sure the insurance will let me change. Thanks again.


diogenes profile image

diogenes 4 years ago from UK and Mexico

The smart mouth comment from the eye tester is typical of today's world where no one gives a damn!

Hope it doesn't get much worse.

Bob


Peggy W profile image

Peggy W 4 years ago from Houston, Texas

I am so glad that you are searching for a new doctor. Explore all of your options! You will be in my thoughts and prayers. Wishing you well always!


kashmir56 profile image

kashmir56 4 years ago from Massachusetts

Hi moonlake sorry to hear about your eye sight,but i hope you find someone that will do more for you and do some treatments that can help you. I know how you feel because i was losing my eye sight as well. I just had surgery on both of my eyes and now have my eye sight back. Hang in there and keep searching for someone that can help you,you are in my thoughts and prayers.

Vote up and more !!!


moonlake profile image

moonlake 4 years ago from America Author

rebeccamealey, I will in fact I start on Monday checking around for a new doctor. Thanks so much for stopping by.


rebeccamealey profile image

rebeccamealey 4 years ago from Northeastern Georgia, USA

Good luck. Keep searching for ways to deal with your vision problem. Don't give up. There seems to be so many options out there!

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