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How Do You Know If Your Scabies Treatment Worked?

Updated on March 27, 2017
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In college I studied anthropology and neuroscience. I live in San Diego with my wonderful family, and I enjoy travel, music, and exercise.

Scabies

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Many Wonder If Their Scabies Treatment Is Working

Many people who receive treatment for scabies feel as though the medication isn't working. This often leads to more anxious trips to the doctor—and the possibility of unnecessary additional treatments using potentially toxic drugs. On top of that, there is the additional cost and stress associated with searching for a true cure.

To mitigate these concerns, it is helpful to understand more about the proper treatment of scabies, and what to expect during the treatment phase.

In this article, I will share the story of my yearlong battle with scabies, followed by a series of confusing and worrisome reactions to the treatment. It is my hope that this information will save others from the anxiety and heartache I experienced.

What Is the Standard Treatment for Scabies?

Currently, the standard treatment for scabies is to apply a 5% permethrin cream to the entire body, including the head, as indicated on the label. It is advisable to be absolutely thorough, making sure to cover all skin underneath any hair or nails. In my family's case, it was necessary to apply the lotion to our faces, including just inside the nostrils and on the tops of the eyelids (even at the base of the eyelashes), since these were the locations where the mites were found. Consult with your physician regarding the proper application of the medicine for you.

The lotion should be left on overnight. In the morning, all clothes that have been worn by an infested person should be washed, along with that person's bedding and any other surfaces or items that have been touched that can be washed. It is probably not necessary, but it would be a good precaution, to clean and vacuum out the car. The individual should then wash the cream off of the body.

This exact routine should be followed a second time one week after the initial treatment, so as to kill any mites hatched from eggs that may have survived the initial treatment. There is no known medication that will kill the eggs, so the second treatment is an absolute necessity. All individuals within the household should follow this treatment protocol at the same time, even if they are not experiencing symptoms.

What Is Post-Scabies Syndrome?

You probably will not experience immediate relief following the first permethrin application because it takes 48-72 hours for the lotion to kill the mites. Even after that, the eggs and feces they leave behind in their burrows may continue to irritate the skin until the body absorbs or expels the debris.

You should know that even though your treatment has begun, you are still very likely to experience some itching. This is called post-scabies syndrome, and its cause is currently unknown. People who have this condition continue to experience scabies-like symptoms long after the mites have been successfully eradicated.

My dermatologist told me that it was once believed these symptoms arose because the body was still trying to expel debris left by the mites. However, when the skin of affected individuals was biopsied, there was often no evidence of any such debris. She said it is now thought that the body may be exhibiting a long-lasting immune reaction—either to the mites and their debris that was once but is no longer there, or possibly to the permethrin treatment itself.

As with any prescription drug, permethrin does have potential side effects. Before using it, you should be certain to discuss those side effects with your dermatologist or medical professional. If there is any concern, your doctor may be able to suggest a less-harsh alternative.

Here, my focus is on permethrin because it is currently the standard treatment, and it is what ultimately worked for my family.

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Even After I Started Treatment, It Looked Like I Still Had Scabies

My experience was that itchy bumps emerged in random places that were unaffected prior to treatment with permethrin, including on my face, arms, and legs. To my utter distress and confusion, these bumpy rashes were far worse than the original symptoms had been, and they seemed to be at their worst approximately one week following my second permethrin treatment. They continued to emerge periodically for about three months before everything finally went back to normal.

Whatever the cause of post-scabies syndrome, I now know that itchy bumps may continue to emerge for weeks, or even months, following successful treatment. If you talk to dermatologists who have a lot of experience with this condition, or if you read discussion forums online, you will find that many people report that these outbreaks occur in the very places the scabies' burrows had been prior to treatment. Others report excessive itchiness or twitching in the face after using permethrin.

It is understandably very difficult for a person who has suffered the trauma of an infestation to ignore these newly emerging bumps—and maintain trust in the treatment. However, in my family's case, it was necessary to wait it out for a period of about a month. During that time, the outbreaks became fewer and farther between, and they also became gradually less severe. In the meantime, we found it helpful to use an anti-itching cream such as hydrocortisone, and, less frequently, an antihistamine to calm the body's immune reaction until the symptoms let up. However, again, when using these medications, it is extremely important to first consult with a physician. Hydrocortisone in particular is a steroid, which is associated with its own set of potentially serious side effects.

What If I'm Sure the Treatment Didn't Work?

Of course, it is important to recognize there may be alternative explanations for continued symptoms. Here are some very real possibilities:

  1. Inadequate coverage of the body with the permethrin cream. For instance, if your doctor told you not to use it on your head, it could leave some mites alive, in which case the entire treatment protocol would have to be repeated.
  2. Re-infestation could occur if clothing and bedding were not properly cleaned, if all members of the household were not properly treated, or if a person continues to come into contact with an infected person (perhaps someone they are dating or working with).
  3. Some strains of permethrin-resistant scabies have been reported. However, this seems to emerge primarily in populations that have chronic widespread problems with scabies infestations. It is unlikely to occur with just your average Joe who has contracted this condition only once.
  4. The biting and itching sensations could be due to one of several other mite species that are also known to affect humans, but that do not actually live and breed on humans (as scabies do). These generally include bird and rodent mites, which I will discuss in another article.

Are There Alternative Treatments?

In addition to permethrin, several other lotions are effective, including benzyl benzoate, sulfur in petrolatum, crotamiton, and lindane. Ivermectin (Stromectol), which is taken orally rather than applied as a lotion, is an anti-parasitic drug that is also effective. Tea tree oil has been shown to kill the mites—but it has not yet been approved for use, which means that it may not be entirely effective, may have undesirable side effects, or may not have been studied thoroughly.

I would beware of the many, many other bizarre treatments you might find online, as they are likely to be a waste of time, energy, and money. For instance, various bath ingredients may quell the itch but will ultimately do nothing to solve the underlying problem. There are several homeopathic treatments promoted online, but I cannot comment on their effectiveness as I do not have experience with them.

Learn More

General References:

Carey, Elea (medically reviewed by Laura Marusinec, MD). “Scabies Bites: How to Know If You've Been Bit and How to Treat.” June 29, 2016. HealthLine. Retrieved March 27, 2017.

Mayo Clinic Staff. “Scabies.” July 7, 2015. MayoClinic. Retrieved March 27, 2017.

“Scabies.” American Academy of Dermatology. Retrieved March 27, 2017.

More About My Experience:

To hear more about my family's difficult-to-diagnose-and-treat-yet-finally-successful battle with scabies, read my article called Atypical Scabies Symptoms.

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      livingthenightmare 5 years ago

      Thank you sincerely, for the most informative, extensive and comforting information on scabies infestations that I have found in these late night, frantic weeks of suffering- along with the fear that the "cream is not working". Benedry every night is helping greatly, as well as hydrocortizone cream. The benedryl especially calms the inflamation and eratic itching. I was desperatly afraid that nothing was having a "curing" effect, but thanks to you, in humble gratitute, I do have hope. Bless you for caring enough about the rest of us who are searching the net day in and day out for more info. You are an angel.

    • Samoa6 profile image
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      Samoa6 5 years ago from San Diego

      If these hubs help only one person, the writing will have been well worth the effort! Thanks for taking the time to comment.

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      Kathy 5 years ago

      Thank you for this information. My kids brought home scabies from school. We have all been treated twice, 2 weeks apart. My husband and kids don't have any itching and seemed to be 'cured' over night. I, however, keep getting these itchy bumps that come up and sting really bad. Though the Dr said it is not necessary to apply the cream above the neck, I put it from the top of our scalps to the soles of our feet. I wasn't about to take a chance! The rash isn't as persistent as it was in the beginning and comes and goes, but it is driving me nuts! I am so thankful to read about post scabies syndrome and some ways to ease my discomfort until my body heals itself from whatever is causing it, which I suspect is probably the permethrin cream.

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      Samoa6 5 years ago from San Diego

      Hi Kathy, I too suspect the permethrin cream is causing its own set of problems. I also wondered if 'spot treating' in between permethrin treatments out of a general paranoia that I might have missed something actually made the immune reaction worse. In any case, I hope you experience relief very soon. Thank you for commenting.

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      Jr. 5 years ago

      Samoa, One question...Did the itching in ur face continue after treament? If so,how long? Thanks.

    • Samoa6 profile image
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      Samoa6 5 years ago from San Diego

      Hi Jr., I didn't experience itching on my face so much as I felt crawling, but I did have a bit of itching on my arms and across my shoulder blades, with really tiny red pin prick bumps that were hardly noticeable to the eye. And yes, the itching went on and even got worse after permethrin treatment, with bigger bumps emerging in random places for around 3 months or so. However, during that period, the outbreaks became fewer and farther between, even though they continued to itch and looked horrible (much worse than when I actually had the infestation). Even as far as 6 months out I sometimes would get an itchy bump or rash, it seemed in response to something else I may have been allergic to, e.g., a new pair of earrings caused a rash behind my ear and partly down my neck, something I had never had prior to this experience. But it was manageable, not as bad as the rashes that came in the few months after the permethrin, and it went away in a couple of days. So I suppose you should expect the itching on your face to remain for some time, on and off. So long as you covered everything with your ointment, including underneath your hair, the bases of your eyelashes, and even just inside your nose and ears, you should probably just wait it out. If you continue to spot treat with the ointment (permethrin), you may just be making it worse.

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      Samoa6 5 years ago from San Diego

      One commenter warns against using permethrin on the face, as he/she has experienced long-lasting adverse side effects after doing this. Due to the unprofessional nature of the comment, I opted not to publish it here, however I do find it important to relay parts of this person's message, since it may be helpful to someone.

      The commenter is apparently experiencing twitching of the eyelids after using permethrin on the face. Although my family did not experience this, we did experience itchy rashes that persisted for months but eventually went away, as mentioned above. We did actually tape mites that were crawling on our faces, particularly on our eyelids and in our noses. It was these taped specimens that were eventually identified by a professional acarologist under a microscope, enabling us to seek proper treatment. After discussing this with our physician, he advised that we treat our entire bodies, including our faces, accordingly. And for the record, the medication label does in fact instruct users to cover the entire body, from the head to the soles of the feet. If we had not treated our faces, we would still have the problem today. While experiencing the itchy rashes after permethrin use, I did eventually find a dermatologist who had extensive experience with scabies, and who confirmed the face should indeed be treated, and that side effects such as itchy rashes are quite common and sometimes long-lasting. She made no mention of the potential for twitching, so this may be an uncommon and extremely unfortunate side effect.

      Given the potential for such side effects, I would recommend that anyone considering scabies treatments discuss options with a physician who can make a recommendation based on one's specific health status, medical history, and symptoms. I should hope this advice would be obvious, given that permethrin cream is a prescription drug, and therefore requires consultation with a physician before purchase or use.

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      pharmaceutical insert 5 years ago

      Follow the directions on your prescription label or the package label carefully, and ask your doctor or pharmacist to explain any part you do not understand. Use permethrin exactly as directed. Do not use more or less of it or use it more often than prescribed by your doctor.

      Permethrin should only be used on the skin or hair and scalp. Avoid getting permethrin in your eyes, nose, ears, mouth, or vagina. Do not use permethrin on your eyebrows or eyelashes.

      If permethrin gets in your eyes, flush them with water right away. If your eyes are still irritated after flushing with water, call your doctor or get medical help right away.

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      Lane 5 years ago

      Scabies rarely go on the head and face due to high acid ph levels. (The exception is with infants and the elderly.) If you're getting mites in your eyelashes, eyebrows, and scalp, ask your doctor about DEMODIX mites.

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      Samoa6 5 years ago from San Diego

      Hi Lane,

      Thank you for your comments. Demodex mites are indeed a problem with some elderly or otherwise immuno-compromised individuals. However scabies infestations of the head and face are not limited to infants and the elderly. This is precisely the reason I have written this series of articles, i.e. to increase awareness. You, yourself, have posted the instructions from the scabies medication label, which clearly indicate one should cover the skin (btw, eyelids are skin), hair and scalp.

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      Charlotte 5 years ago

      Thank you for sharing this! So helpful! I suffered from scabies for almost 7 months before it was identified. I was so scared that I had not gotten rid of the infestion that I did 4 treatments of the permethrine cream (applying the cream twice for each treatment, 3 days to a week apart). I am now occasionally getting red itchy rashes on my hands and body that are worse than the scabies rash itself. Rashes with bumps come and go as well, but it is clear that my boyfriend and I both no longer have an infestation because the rashes and bumps are more random and are less frequent as our last treatment was about five weeks ago. The reason we were able to get so many treatments/tubes is because my boyfriend's mom is a Dermatologist (cosmetic, however, with no previous experience with scabies). Do you know of any long lasting conditions that arise from the treatment or scabies infestation? My rashes feel increasingly similar to Eczema, and I have heard this can be an issue. Thank you!

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      Samoa6 5 years ago from San Diego

      Hi Charlotte,

      The dermatologist I finally ended up with who seemed to have had a lot of experience with post scabies issues said that the itchy bumps etc. can continue to arise for months and months. For us, it was only about one month before the terrible rashes quit appearing, and about 3 months before we had really nothing appearing at all anymore. I have to say though, every now and then, even 6 months out, my husband and I both experience an itching or skin sensation that causes us to worry for a moment that we've been reinfested. Thankfully, it never lasts for longer than a day or so, on and off. I am really wondering if the permethrin treatment does a number on your immune system, causing it to over-react to various stimuli even after the mites are gone. I don't know anymore than that, but you may be able to get more information if you call around looking for a dermatologist who has extensive experience with this problem, i.e. maybe someone who has worked in group homes or possibly refugee camps where scabies are often pervasive and extremely difficult to eradicate entirely. If you do find anything more that you feel is helpful, please drop me a note so I can publish it here for others to see.

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      Dutp 5 years ago

      Does permethrin cream 5 kill head lice

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      Samoa6 5 years ago from San Diego

      Dutp - not sure about that - I've read that a 1% permethrin cream is used for head lice whereas a 5% is used for scabies, so by this logic, I suspect that it would, but it might be overkill, particularly given some of the longer term side effects that the 5% seems to be causing. You'd need to ask a doctor or pharmacist to find out the correct treatment option for certain.

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      Moses4 5 years ago

      Thanks so much! You have given me peace of mind. I am 7 months pregnant, and our daughter brought scabies home from daycare. I've been an emotional wreck about all this cleaning, worrying that everything I'm touching is reinfecting me and therefore my family, but hearing that the permethrin stays active in my system for a couple days and that I'll re-cream us in a week helps me to cope with all of this. Plus, I'm not worried that the treatment didn't work last night because I'm still itchy. I read horror stories online where people have been trying to rid themselves of scabies for 2+ yrs. And I'm not worried anymore. Thanks again.

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      Samoa6 5 years ago from San Diego

      Hi Moses4,

      Thanks for your comment. I, too, went a little crazy with the cleaning etc., but ultimately one series of two permethrin treatments that were one week apart did the trick for us. It just took a few months before we all (parents and toddlers both) stopped reacting to the permethrin. Best wishes for a speedy recovery, as well as for a healthy and safe pregnancy.

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      Mesha 5 years ago

      I want to thank you, it took so long for me to find a great post like yours and so much information and I didn't know I have to apply it to scalp and nails so I did another treatment. Well I do know this mess burns my face, but everything else is fine. I feel like it does do something to the immune system b.c. I feel sick breathing this stuff in. Well my question is, did you only wash your bedding sheets and pillows and any clothes you had on or did you even clean the mattress and sofas? I'm so worried. I'm ready to steam clean my beds and sofas and car. I know you said vacum the car but I'm freaking out with a cleaning spree. I feel like everything is infested. My boyfriend refuses to get treat and I don't know what to do. I'm so depressed. I'm scared to send my son back to school b.c. he brought it home from there. My mind is just screwed up, I cry day and night worried. Maybe b.c. I'm allergic to dust mites and to be infested with scabies is ten times worst to me. I fear my son (5 years) has it very bad. But your article has releived me some, except as far as the cleaning. My doc said use hot water, but what about the sofas and bed mattress?

    • Samoa6 profile image
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      Samoa6 5 years ago from San Diego

      Hi Mesha,

      Definitely wash clothes, sheets, blankets and even stuffed animals (if your son has them) in hot water, as your doctor said. Then you should dry them in a dryer because anything the hot water did not scorch or wash away will be dehydrated and therefore die from the heat in the dryer. The mites, when off of a host, are actually not that hard to kill. As for mattresses, it seems highly unlikely that a mite would make its way through the sheets and onto the mattress since they are not known to burrow or set up shop in random places. They are attracted to the CO2 and heat from your body (this is how they find a host) and spend most of their time under your skin. I would, as a precaution, vacuum the sofas and the inside of the car(s), including car seats for children, and if you are still worried, cover the sofas with a sheet for a few days so no one is sitting directly on a mite that may have dropped off onto the furniture when you were infested. This would be incredibly unlucky, but if it did happen, it would not be many mites - there are only believed to be 12-15 mites on any infested individual, so it's not like there are thousands of them falling off of your body and crawling around your house. It is important, and somewhat comforting, to remember these mites cannot live off of a host for longer than 48-72 hours. So, if possible, it might ease your mind to just leave your house for a long weekend after treatment, taking with you only recently-washed clothes that could not have been infested. Any mites that are in the house should die off by the time you return.

      Of greater concern, after reading your post, is the reaction your face is having to the permethrin treatment. As I've described in the article, it seems permethrin may be causing a whole host of problems on its own, sometimes irritating the skin even worse than the scabies, and in some cases for a very long time. If your face is itchy (nobody in our house had itchy faces during treatment, it was only after treatment that we began having rashes that were extremely itchy, even worse than the mites themselves), I would be worried about what the permethrin may cause down the line for you, so tell your dermatologist, who may be able to give you something else for your second round of treatment (you need to treat twice, one week apart). There is actually an oral treatment that probably won't elicit the skin reaction that permethrin does, but it can cause its own set of serious problems (with the liver), so you'll need to consult a doctor for appropriate options.

      Also of concern is your boyfriend's refusal to treat himself. People often don't know they have scabies until 4-6 weeks after infestation, and even at that, they don't always show the typical symptoms so still may not know they are infested. Your boyfriend could therefore be infested and not know it, and thus continue to re-infest you or your son, particularly if he is frequently sharing a bed with you or holding your son (scabies is believed to occur commonly in younger children since they are held so often, putting them at greater risk of contact with an infected person). I would have a very serious discussion with your boyfriend before allowing him to stay at your house or touch either one of you until he agrees to treat himself. Also, you'll need to let the school know, if they don't already, so that anyone who has been in contact with your son knows he/she has a possibility of being infested too.

      Please let me know if you have any other questions and I will try my best to answer. In the meanwhile, I am keeping my fingers crossed for you and wish you a speedy recovery.

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      Mesha 5 years ago

      Thank You so much. I don't know what I would do without you right now. You're such a helper. Better than my doctor. I will be in touch!

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      Mesha 5 years ago

      I actually do have a question. Did you have any issues with your mouth and tongue? Bumps, swollen, or ne reaction?

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      Samoa6 5 years ago from San Diego

      Hi Mesha,

      Before we figured out that we had scabies, and therefore before we treated ourselves, I sometimes felt small bumps on my tongue that were not itchy or swollen, but just felt like something needed to be scraped off. I have never read anything suggesting that scabies go inside your mouth, and you are definitely not supposed to be putting the permethrin inside your mouth, so I may have just been having a random immune reaction to the infestation. I did not, however, have any such problem during or after treatment. You should definitely talk to your dermatologist about this, since it may be a reaction to the permethrin, and a lot of people seem to be having adverse reactions to permethrin for indefinite periods of time. The good thing though, at least in our family's case, is that the reactions we were having, which were not in the mouth but on the skin pretty much at random places all over our bodies, did eventually subside. But it took months.

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      mesha 5 years ago

      Okay, well I didn't put it in my mouth but my face of course and I also may just be having an allergic reaction to the drug and I do get those bumps you mentioned, but I will call my doc. Tomorrow, thank you. By the way Happy Mothers Day!

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      need peace 5 years ago

      Hi

      My son and I have been treating for scabies for 5 months now. We were told not to treat our faces and scalps so we didn't at first. However after the 3rd time we treated face down. The last 2 trtmts we did scalp down. that was 4 weeks ago. I am still getting non itchy bumps while the old ones have not gone away. Last week my son woke up with a red burning itchy rash on his neck and less so on his back and stomach. Also in his armpits. Throughout the day it spread but tgen disappated. The rash seems to be healing somewhat but he is still very itchy and my bumps wont go away. I also feel like i have dust on my eyebrows and sometimes feel movement on my eyelashes. we have treated, sigh, 13 times in 5 mo, the last 2 scalp down. ive washed and cleaned everything. my bed is wrapped. Im at my wits end. I can not use this cream again but this ju doesn't seem yo end. What am i doing wrong? please help. Thank you

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      Samoa6 5 years ago from San Diego

      need peace,

      Your symptoms sound identical to what our family experienced. And the advice you received from your doctor to not treat your head was also the same advice we initially received. This is outdated information. If you read the instructions on the permethrin label, it says to treat the head, including under your hair, but not to do the eyebrows or eyelashes (presumably so it doesn't end up getting in your eyes), and not to get it in your eyes, nose or mouth etc. In my case, I felt the mites on my eyelashes as well as just inside my nose, so I treated both areas even though the drug label says not to, and was just very careful not to get it in my eyes. This worked for me, however one person who previously left a comment on this article claimed she treated her face and has now had non-stop twitching of the eyelids for 3-4 months. Not to mention that many more people (myself included) seem to have experienced immune reactions (prolonged itchy rashes, seemingly caused by permethrin, that appear in various places on the body for months after treatment) that are very similar to the actual scabies symptoms themselves. So it may be that permethrin is causing you and your son's persistent rashes. The fact that you have used it so many times may even have made the problem worse. However the fact that you still feel crawling on your eyelids is a bit disturbing, especially if you did not treat this area because you were following the instructions on the drug label (which I am not qualified to advise against - you'll need to talk to a doctor). In other words, you'll need to determine if it is possible that you've missed something due to inadequate coverage, or if you are simply having a reaction to the permethrin even though the mites are already gone, or alternatively, if you are continually coming into contact with another infested person.

      I think the first thing you might want to do is call around to find a dermatologist who has a lot of experience with scabies, and who is aware of "post scabies syndrome" and all of the problems that permethrin treatment seems to be causing. If you get someone with no experience, you are only going to continue to repeat this frustrating experience over and over again. Next, make sure this doctor knows how many times you have treated with permethrin, and ask for an alternative treatment. There is an oral drug called ivermectin or stromectol that is supposedly effective in killing scabies as well as other parasites. I believe it is a bit more expensive, and some doctors are hesitant to prescribe it because it can cause problems with your liver. But if your doctor doesn't think your liver should be an issue based on your personal medical history etc., then he/she may prescribe this so you don't have to deal with skin creams anymore. I believe you have to take even the oral medication twice in order to kill any eggs that hatch after the first treatment (there is no known drug that kills eggs). In the meanwhile, ask for an anti-histamine that will help calm your symptoms so you and your son do not continue to lose sleep over this issue. I wish you the best of luck in obtaining relief. Please let me know if you have any other questions and I will do my best to answer them.

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      need peace 5 years ago

      Thank you for taking the time to assist us. It is greatly appreciated. Finding a good doctor is a big issue. Almost every one says something different. One dr told me to apply the cream every 12 hours til we had no bumps left. However even with the cream on I developed new rashes. I did make sure to cover our faces including eyelashes and just inside our noses. Even still I felt movement in my eyelashes. We kept the cream on for 7 days, showering and reapplying. After applying the cream to our scalp I suffered a massive migraine. What I don't understand is although i continued with random non itchy bumps and my son continued to itch it took 3 weeks to develop a rash. I thought we would have an instant reaction since we had already been exposed. I think we are still infected based on the fact that my old bumps have yet to heal and because of my eyes. As far as cleaning goes, I have all fabric sealed or locked in closets but we moved in Feb and have yet to unpack. Do you think im safe to at least unpack nic nacs and non material objects. I have read so many different things on cleaning and am unsure if i do in fact need to wipe down everything including plastic toys. As fas as Ivermectin, I was given a script in feb but am skeptical about the safety, especially for my 8yo. If it isn't safe for him it makes no sense to take it myself especially if he could just reinfect me. Also is there a possibility this cream just isn't working. My son isn't in school and we arent around the people who infected us. We also don't have physical contact with anyone. Its just the two of us. Thank you again for your help.

    • Samoa6 profile image
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      Samoa6 5 years ago from San Diego

      need peace,

      My goodness, it sounds like you have gone way overboard with the permethrin. First make sure you've used the 5% permethrin cream for scabies, and not the 1% that is available for head lice. Then, if you are sure that 1) you and your son were adequately covered, including faces as you described, and 2) that at least one of these full treatments was one week after another one (doesn't matter how many times you did it in between because some of the eggs may not have been hatched yet so it wouldn't have killed the eggs), I would suspect that the mites are dead and you are both reacting to the permethrin. Even what you are feeling in your eyelashes could just be an immune response after having had the mites there and treating them with permethrin. I, too, felt this for a little while after my first treatment, but not for long. The itchy rashes, however, continued to emerge for about 3 months. My kids also developed itchy, bumpy rashes for a couple of months after treatment, it doesn't necessarily have to occur immediately. You are the first person that I have read to have had a migraine though. Definitely both of you should lay off of the permethrin.

      You might want to start calling around for a doctor who has experience with scabies. Just ask whoever answers the phone at the doctor's office how many cases of scabies the doctor has treated, and whether or not they've had patients report this type of reaction following treatment. Once you find someone, see if they can recommend an anti-histamine to ease the symptoms while you wait for a month or so to see if the rashes and itching begin to lessen (they might not disappear entirely within this time period though, it took about 3 months for us).

      Also discuss whether Ivermectin poses a real threat to either of you, as 8 years old is not so young that it may be safe to take it - this would just provide another weapon in case the mites are still alive, even though I am really wondering if anything could have survived that much permethrin. There is what seems to be a rather remote possibility that you have a strain of permethrin-resistant scabies, in which case the ivermectin would be a good idea, but I would not assume this until you stop using the permethrin for a month or two and assess whether rash outbreaks are becoming fewer and farther between. In other words, I would assume you are having a reaction to the permethrin before I would assume the permethrin is not working.

      As far as unpacking, this is really the least of your concerns. The mites cannot live off of a human host for longer than 48-72 hours. So if your things have been packed and stored for at least that much time, and you have washed the clothes and bedding and even stuffed animals you may have touched before treatment (or just stored them away for the 48-72 hour period), then my bet would be that anything in your belongings has long been dead. I did not bother with wiping down everything in our house, as the mites are not really attracted to random objects or places. They follow CO2 and heat to find human bodies, and spend most of their time under your skin anyway.

      Above all though, you really need to work overtime to find a good doctor. Even if the scabies are gone and you and you son are just reacting to the treatment, someone ought to be monitoring you both until these symptoms lighten up. Especially since you've overdone it with a chemical treatment, which is never good.

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      Samoa6 5 years ago from San Diego

      need peace - one more thing - you may want to also have an eye doctor take a look at your eyelashes to see if he/she can see anything unusual there. the actual mites may be hard to catch since they are mostly under the skin, but unusual burrow marks etc. may be seen, or there could be mite feces or eggs in a scraping of the area.

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      5 years ago

      zwe have found the Tea Tree Oil works to kill the scabies. My hubby did the cream and it did not work. I did research on the net and found that people have used Tea Tree Oil and it works. He sprayed his surroundings down in the oil, of course, it was diluted. Also look at the Naturasil web site where herbal products are used. We are seeing results in just three days!

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      Samoa6 5 years ago from San Diego

      P,

      That is great news. I have read on the net as well as in at least one scientific paper that tea tree oil works, but that it has not yet been approved for use in the treatment of scabies. I am not sure why this is. Were there any adverse side effects? Thank you for commenting.

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      Samoa6 5 years ago from San Diego

      P - just in case you've returned to this site, would you mind mentioning how you did your treatment, i.e., did you cover the entire body, for how long, and how many times? Also, after a few weeks have gone by and you have remained scabies-free, would you mind just dropping a note to let me know so I can post it on here to let others know this is a viable option, and whether or not there are any adverse side effects they should expect?

      Many thanks!

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      5 years ago

      I just spoke to my husband. He is the one with scabies. He told me to tell you-Samoa6-that Tea Tree Oil works great. He still has them but hey are drying up and going away. he used the permethrin cream last week and kept breaking out bad. I read about tea Tree Oil and we trie dit with him and it does work. It takes a little time but it works. He still has a few break out bumps maybe 8 in four days but he is treating his environment as well. But his imporovement with the Tea Tree oil is of great improvement. I ordered the naturasil family apckage and when he comes through I am going to give it to him to use as well. they said the effective rate of curing scabies with their homeopathic system was 98%. It is a sulfur soap, cream that contains tea tree oils and others. So he wanted me to tell you that is is lots lots better since using Tea Tree Oil. He noticed a change the first time he wiped down in it. He use a rag washcloth and pours the tea tree oil on it and covers his body after showering and in between if he goes to itching. It takes the itching out and the bumps are dying up and some have already gone away. He says he is very pleased with his results. Like I said we have not started the Natuasil treatment from the looks of it the system should work to get rid of the scabies.

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      5 years ago

      The only side effect is maybe dry skin. But nothing like the chemical cream it made him sick as a dog!

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      Samoa6 5 years ago from San Diego

      Many thanks, P!

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      Samoa6 5 years ago from San Diego

      I only wonder whether the permethrin actually worked and just caused the side effects everyone is talking about, which were then alleviated by the tea tree oil, or if the tea tree oil actually did the trick. I would love to read comments from anyone who has used tea tree oil alone, and had it work

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      5 years ago

      Samoa6--My hubby is a 100 percent better. he idd go ahead and use the second Permethrin treatment only because he was waorried about them not going away. BUT the Tea Tree Oil got I would say most of them gone. He is still using the Tea Tree Oil and going to use Naturasil 's kit as well. No more bumps coming out his skin is dry which might be good to get rid of the critters. His itching has subsided. This is his second week and he is almost recovered. So yes Tea Tree Oil does work wonders. He diluted it and sprayed his environment-bed pillows and covers. He also put Tea Tree Oil in his clothes when he washed them in hot water. He is so much better. His skin is almost normal! So try Tea Tree Oil.

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      Samoa6 5 years ago from San Diego

      Thank you, P. Your input is greatly appreciated.

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      Frustrated 5 years ago

      Hi samoa6 I have done 2 treatments with the permitherin 5% I found out that I had scabies in April and since then it has been a fight tryin to get rid of these critters I have washed everything in my house bought new bed sheets vacuumed all floors and rugs and still seem to have this. For a while in between treatments it seemed to go away only to come back again I went to the dr again 2 weeks ago and did one more treatment of the permitherin it helped to calm it down this time however I am still gettin new tracks on my skin and bumps there not horrible but still noticable to me and others who looked at my skin I haven't been in contact with the person who gave it to me since I found out. And nobody else in my family has got this. My itching is nowhere near as bad either.

      Are the bumps and track marks after effects of me taking the medicine or does it sound like I am still infected?

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      Samoa6 5 years ago from San Diego

      Hi Frustrated,

      Unfortunately, it seems that the only way to find out is to stop doing the permethrin for a while. My family had bumps etc. appearing after treatment, badly for about one month and then less so for approximately two more months. It actually seemed to be worse after treatment than it had been before, so I think it may be worth it to wait it out, and talk to your doctor about using something to calm the itchiness etc. in the meanwhile. The symptoms should begin to lessen over time. If you wait for a month or even two, and the symptoms do not seem to be lessening, then you may want to consider whether you have been reinfested, or whether the treatment even worked the first time. I do suspect, though, that if you covered yourself well with the permethrin the three times you have used it already, that you may just be having a reaction to it that will eventually go away. As I've been telling everyone else, it is critical that you find a dermatologist who has had a lot of experience with scabies and who is aware of this after-effect. If your doctor just automatically assumes that more bumps equals treatment did not work, then he/she does not have much experience and you should find someone else to at least monitor your recovery, and what may turn out to be a reaction to the medication.

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      5 years ago

      Frustrated----Read my post about using tea Tree Oil and Naturasil. My husband is in his second week and I saw him last night and his bumps are almost all gone. He has used two treatments of Permethrin 5% cream and it helped some but the most help came with using tea Tree Oil. he diluted Tea Tree oil in water and sprayed his surroundings down and that helps kill them on the inside. He actually threw away some old covers and old tennis shoes that came into contact with him. Considering how he was last week till this week. They are almost ALL gone. He has no more itching and no more bump break outs in over three days now. My hubby swears by the Tea Tree Oil. He put it on his skin straight from the bottle with cotton and an old rag. Yeah it is strong and will open you head up but it has made a dramatic difference in the way he was last week and the way he is now. NO MORE BREAK OUTS OR NEW BUMPS NO MORE ITCHING OR ANYTHING!!

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      Frustrated 5 years ago

      Thank you both samoa6 and p for your comments this has been the longest 2 months of my life it seems with having this I will go and buy some of the tea tree oil tomorrow and try that.. I will be excited and relived to see if this will help! My fingers are crossed.

      I will let y'all know how it goes!

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      Frustrated 5 years ago

      P--one more thing does your husband wash off the tea tree oil after so many hours?

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      5 years ago

      I was diagnosed with scabies at nearly the end of April. I used more than half a bottle of 5% Permethrin cream from the neck down and left it on for 14 hours. I am barely 5'3 and weigh 115lbs, so needless to say, I put on way too much Permethrin. The next day I had severe itching and tingling from too much Permethrin so I took Benadryl as I was advised to by my doctor and ended up having an allergic reaction to food which I found extremely odd and very scary as I had difficulty breathing. I thought that because of all of this, there was no way the mites could have possibly survived and did not do a second treatment of Permethrin. Now, almost 4 weeks later, I am starting to develop the same type of rash I got when I first was diagnosed. I have not had any contact with the person/baby that I got the rash from and I washed all my clothes, bedding, and bagged everything that I couldn't wash that I had touched while I had the mites for 2 weeks. I did not vacuum. The old rash has cleared up a lot but it is still present. But I can tell it is old because the bumps are completely dried up. The new bumps are where the old bumps were it seems but it is hard to tell whether it's just the old rash getting inflamed because I slept in at my Mom's and she did not have the A/C on, or if it's really new rash. I am going to a doctor today, but what is your take on what's going on just using the information I provided?

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      Samoa6 5 years ago from San Diego

      T - as you have probably read in the article as well as many of the comments, these bumps can emerge after treatment even if the mites have already been killed. They do not have to emerge immediately, either. They can continue to emerge, disappear, and re-emerge in other places for months, even though the treatment has been successful, as in my family's case. Of concern, however, is that you did not treat your face, and you did not follow up with a second treatment to kill any eggs that might have since hatched and reinfested you. Since it is impossible to determine whether a) you did not kill everything to begin with, b) you've been reinfested by eggs that hatched or c) you've killed the mites and are now reacting to the treatment, I would first assume your treatment worked and wait it out for at least a month to see if the outbreaks become fewer and further between. If the rashes and itching still seem to be persistent at that point, then you may want to consider the possibility you are still infested, and treat again with something other than permethrin, since it seems to have caused so many problems. Although effective, this is a bit of a scary drug, and not something I would want to mess with, particularly if it (or something else in combination with it) affected your breathing. There is an oral medication, Ivermectin/Stromectol, that is available that you could talk to your doctor about. Alternatively, one commenter here has used tea tree oil with success. Please keep us posted of your progress, so that others may read what you have (hopefully) found to be successful.

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      Jen 5 years ago

      even in post scabies can the bumps appear to be tracks? When i found out i had scabies i only had them on my hands. two weeks after my first treatment i started to have new bumps on my hands that looked like water blisters. they did not itch as badly as when i was told i had scabies. These bumps would go away within a couple of days. then i started getting them on my shoulders.. they would itch (not as bad) and then go away. until the last two weeks in which i began getting them on my stomach, chest, legs, arms... pretty much everywhere. and they itch like crazy! of course i was told to only do the cream once... on my entire family (no one in my house has it except me) before i read this i decided to do the cream again still being told to only apply from the neck down. uggg when the bumps started to appear i wasn't that worried b/c i had read about post scabies and just assumed that what was happening.. esp since i wasn't have the intense itching like i had before but then i started seeing track marks on my leg and my wrist. then i became concerned, which is why i chose to apply the second treatment. now my skin felt ok after the first day, now the itching is even worse... the bumps are going away but still itchy... could i really be re-infested or is it the cream? HELP

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      Samoa6 5 years ago from San Diego

      Hi Jen,

      I never really had much in the way of bumps or tracks before treatment - just itching and mainly a crawling sensation that was driving me crazy - but after treatment I had major bumps and what appeared like Poison Oak, which did actually look like lines or tracks of bumps. My whole family had this, much worse after than before treatment. But it subsided eventually, as mentioned in the article. The odds are that one treatment will most likely do the trick, however two treatments spaced one week apart are optimal to avoid re-infestation due to eggs hatching since the treatment does not kill eggs. Also, if you read the label on the permethrin, along with my and others' horror stories, you are supposed to treat your head, including under your hair, because scabies do infest this region too. So, my guess is you are most likely reacting to the treatment, but there is certainly a possibility that you a) missed something that may have been on your head or b) you've been re-infested due to eggs that were present but not killed by your first treatment. If you go for another month and your outbreaks do not begin to subside, at that point I would begin to consider the possibility that you might still be infested.

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      Jen 5 years ago

      thank you so much! i'll keep you posted. i think my biggest concern is that i'm nursing and i'm so worried that my 10 month old son gets it. so far he has had no signs of it. so i hope it can stay that way. My dr wasn't even sure in the beginning that it was scabies... she didn't do any scraping, only called in another dr for a second opinion. i had never heard of it nor do i know how i could have gotten it. it's crazy!!

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      Samoa6 5 years ago from San Diego

      Jen - My son was just about one year old too when this happened to us. Watch for dotted rashes on him, checking sole of feet too. I saw this early on on my son but did not recognize it as anything in particular. In retrospect, it was probably the first sign of scabies that we had.

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      Jen 5 years ago

      you know its interesting you said that b/c i have seen bumps on him, but they come and go, not in clusters like mine. i'll see like one on his leg. then one on his bottom. i'm trying not to be paranoid or read into any of it, but i just don't know anymore.

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      Samoa6 5 years ago from San Diego

      You're not paranoid. With your son, as with you, it is entirely possible he is cured and just reacting to the permethrin. Both of my kids had the same bumpy reaction, but then it all stopped eventually and everyone was fine. Just watch him, since he may be how you became infested in the first place - small children are often most vulnerable because they are held by so many people so often. He could have gotten it at a daycare or even just a birthday party, which we believe was the case for our son. Again, odds are you are all fine and just reacting to the treatment. But keep an eye on things, and also, one commenter mentioned using tea tree oil helped with the rashes after treating with permethrin. She seems to think the tea tree oil killed the mites, but it is impossible to tell if the previous permethrin treatment killed them and then the tea tree oil just calmed the reaction to the permethrin, or if the permethrin did not work but the tea tree oil actually did . . . anyway, you could always try putting that on your skin to see if it offers any relief. Other people report that it does as well, it just hasn't been approved for treatment of scabies yet - not sure why. Alternatively, you might be able to use an anti-histamine to ease the itching while waiting for symptoms to (hopefully) subside. Discuss these options with your doctor, particularly for anything you plan to use on your kids. Also, I believe in the supposedly rare cases in which scabies infest your face, it is supposed to happen most often with infants. So watch his face as well, since I think you mentioned you did not treat above the neck.

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      Frustrated 5 years ago

      I tried the tea tree oil for the first time last night I put about 20 drops in my bathwater then rubbed it all over my body from neck down and left it on over night I awoke about 4 in the mornin to bumps on my right hand itching pretty bad put some tea tree oil on my hand and it stopped the itching so I went back to sleep. My body has been itching pretty bad today I laid in the tanning bed around lunch and thought most of my itching could have been from that. I got home a couple hours ago and went for a run I'm now sitting down relaxing and I am itching worse than ever I have tracks and welts all over my arms and legs.. I'm going crazy right now. Should I try the tea tree oil again tonight or no? Is this just a reaction to me running?

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      Samoa6 5 years ago from San Diego

      Hi Frustrated,

      I am not sure what to tell you about tea tree oil since I have never used it, but if your symptoms are worse after using it then it may not be the best option for you. I also suspect that laying in a tanning bed will not help any skin condition, and that running/sweating will only exacerbate itchiness in general until you take a shower.

      When you used the permethrin, did you cover your entire body, including your head, twice, with treatments one week apart? If you did, I would stop using anything on your skin and talk to a doctor about using even an over-the-counter anti-histamine as much as the label instructions permit until your symptoms let up. We had tracks and welts all over too for some time after using permethrin, but they eventually disappeared after a few months, as I stated in the article.

      However if you did not a) cover your body adequately to begin with, two times, one week apart, or b) treat the others in your household, then there is no way to rule out the possibilities that you either a) did not get rid of the mites entirely or b) are getting reinfested by someone in your household who does not have overt symptoms.

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      Frustrated 5 years ago

      Hi samoa6

      I covered my entire body from neck to soles of my feet as the dr had directed me to do I also had my husband do the same thing even though he was and still does not show any symptoms of having scabies. I have had him do it the same times I did the treatment just to be sure. I'm just at my wits end with this I started itching in march found out that I had this in April. I'm in my young 20s just got done with college and going to the dr and buying the creams are so expensive not to mention our electric bill went up over 70 dollars last month due to doing laundry several times a day in hot water. I have had no itching on my face and am now out of the cream. Do you think i could still be infected because I didn't treat that area? This is just very embarrassing it's summer now and I would like to wear dresses and go swimming without having to worry if I'm gonna have a break out. Would you suggest just to leave it alone for a while to see what happens? What did your family do while still breaking out and trying to wait it thru to see if the treatment did work and this was just the aftermath of using the cream?

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      Samoa6 5 years ago from San Diego

      Frustrated - The odds are you probably did not have any mites on your face or head, although that does happen to some people, so I would recommend waiting it out. We used an over-the-counter anti-histamine to calm the itchiness and let us get some sleep. We also used a 1% hydrocortisone cream on our rashes, but not too often because it's a steroid. Check with your doctor to ask if these measures would be appropriate for you to do while waiting to see if the rashes go away. We wore long sleeve shirts etc. for a while, but really the worst of it was over about one month after our second permethrin treatment. I would avoid tanning beds, over-exposure to the sun or anything else heat-wise that would exacerbate your skin condition and just shower immediately after exercise. If your outbreaks do not lessen over the next several weeks, then you should consider the possibility you are still infested. But I would wait, because what you are describing sounds exactly to me like what we experienced, which turned out to be only a reaction to the permethrin, or at least that what we are left to assume at this point. It went away eventually, and we are fully cured.

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      Frustrated 5 years ago

      Thank you so much you don't even know what a help your post has been to me. Reading your story has truly been my peace of mind. So I'm hopeing/praying that this is just a reaction to the cream so I will wait it out to see. And though I know you have not used the tea tree oil would you suggest me using it just to see or just put regular lotion on because my skin is very dry?

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      Samoa6 5 years ago from San Diego

      The tea tree oil is supposed to have anti-septic properties, which may dry out your skin, making the itching etc. even worse, although I am really not sure if anyone has ever reported this or not (besides reading your previous comment, I have not read about this specific issue). So if you have regular lotion that you normally use, maybe just stick with that for now, rather than adding new things that could worsen existing problems, or create new ones. If you don't mind, please write again in two-four weeks to let everyone who reads this know if you are (hopefully) getting better. Good luck.

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      Frustrated 5 years ago

      Thank you!!!I will defiantly write again around then to let you know my progress!

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      Jen 5 years ago

      It is 4 days after my 2nd treatment. My sores are beginning to heal but i'm still itchy. new bumps appeared on my hand today, they are not itchy. I'm wondering if the active scabies rash would come and go? this is what happened after my first treatment. The bumps cleared then came back, they those new bumps would come and go. could that have been active scabies or post scabies... so confused.

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      Jen 5 years ago

      oh i forgot to mention that these new bumps (after the first treatment) would eventually go away but it would take longer than a couple of days

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      Samoa6 5 years ago from San Diego

      Hi Jen - it sounds like the same thing we had, which turned out to be just post scabies reaction to permethrin. Some of my rashes took almost two weeks to go away, and new ones would continue to emerge like I've said for about 3 months. More so during the first month though, and then they just came on less and less.

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      5 years ago

      Just an update- The doctor that I went to firmly believes that I was misdiagnosed with scabies because the rash will pop up at night/when I lay down, but during the day it is practically invisible-something he says is not common for scabies. He believes I am having an allergic reaction to my laundry detergent, body soap or lotion and prescribed me corticosteroid pills to stop the itching and rash(I guess). It's my second day of the pills and the itch and rash have gotten better. My mom still believes that I had scabies because she too had a couple of itchy bumps and also came in contact with the baby/family that had a rash. I am torn because the previous doctor was not a doctor at all, but a physician's assistant, and she did not do any tests on me. Only time will tell what was/is really going on since I will be on the pills for 4 more days and this doctor says I should only be worried if a couple weeks later the rash re-appears after I've taken steps to go completely hypoallergenic.

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      Samoa6 5 years ago from San Diego

      T - Well that would be great news if it was just an allergic reaction that you can get under control. From here it's just a waiting game. If a rash comes back, a doctor can take a skin scraping to see if they can get a mite, feces or eggs under the microscope but this is very difficult to do. Keep a watch on your mom, too, though, because this may tell you something if she continues to break out.

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      Vince 5 years ago

      Well, I ended up doing two treatments of the permethrin cream. I feel like it worked though I have to admit, I ended up getting some marks on body after the treatment that I didn't have before the treatment, I think it was just a result of me scratching. The itching is still bothersome, but is beginning to die down. I've just been using goldbond anti-itch lotion to combat the itch. All I got to say is scabies suck. I know (based on the comments from this forum) I'm probably going to suffer itching for sometime still. I just gave myself the second treatment of the permethrin cream a couple of days ago. Both times I treated myself I just ended up treating myself from the neck down like the doctor recommended.

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      Samoa6 5 years ago from San Diego

      Hi Vince,

      Thank you for your comment - hopefully the itching will go away entirely soon.

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      ella 5 years ago

      This is so helpful reading your posts...I brought my son to the doctor because he had those red little bumps in between his fingers..and on the side of his hands, the dr wasn't too sure if it wwas scabies but he diagnosed it as scabies because I have a 2 month old baby and he wants the family to be treated(excluding the baby).I did the treatment,my 16 yr old daughter and my 3 yr old son who had the rashes. My husband did not do it that night and he is doing it now which is 2 days after we treated ourselves, my question is do we have to do it again the same time as he is doing it or follow what the dr said to do it after a week. Thank you.

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      Samoa6 5 years ago from San Diego

      Hi Ella,

      I would follow your doctor's advice and do your second treatment one week after your first. Your husband should do the same on his own schedule, just two days behind you with each treatment. Ideally, you would all have treated yourselves at the same time in order to avoid re-infestation, i.e., if there were mites on him during those two days after you treated yourself but he had not yet treated himself, theoretically they could have gotten back onto you. However if your contact with each other was limited during that period, that seems like it would be an unlikely occurrence. It would also seem unlikely that anything would live even if it did get back onto you during those two days, since the permethrin from your first treatment would most likely still be working in your skin. If you do your second treatment at the same time as your husband's first treatment, then you will not have waited long enough for any eggs the mites may have laid to hatch, so the treatment will not kill them. The eggs will then be able to hatch sometime during the next week and the whole life cycle could start over again, resulting in you and your family having to go through another round of treatments. Also, be careful when using the permethrin, as it causes its own set of problems, discussed in the article and comments above. Good luck to you, sounds like you're almost out of the woods!

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      ella 5 years ago

      Thank you so much for sharing your ideas! I am just so thankful that we don't have the itchy rashes too,(whew,esp my baby). Do I have to keep ourselves home? The doctor said my son and whoever did the treatment is not contagoius anymore.

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      Samoa6 5 years ago from San Diego

      Hi Ella,

      No, I don't think you need to stay at home. However you might want to minimize skin-to-skin contact with others during the treatment period just as an added precaution. In other words, maybe refrain from picking up other babies/kids etc. just to be safe.

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      jen 4 years ago

      it's been two weeks post 2nd treatment.. i thought i'd leave an update. my rash is starting to clear. new rash looks like hives and it doesn't have the same intense itching as before. As long as i moisturize it's not mad at all. i am taking 1 to 2 showers a day depending on how much i sweat. i noticed that the more i sweat the more i itch and then a new spot of rash will appear. the bumps are very small (just like hives) and as long as i'm not scratching they are healing very quickly. I am using Cetaphil (skin restoring body wash) and a exfoliating scrubber to take all the dead skin off. then afterward my shower i'm using Eucerin (original healing - soothing repair creme). This stuff is amazing I put it on right before i go to bed and it really helps to keep the itching to a minimum!!

      so although i'm still getting new bumps i can tell a big difference between the active scabies and this post scabies. I hope it stays like this.

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      Samoa6 4 years ago from San Diego

      Hi jen,

      So glad to hear you are on the mend! That is exactly what we experienced, so it should all clear up soon.

      Cheers!

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      dauna 4 years ago

      I really appreciated ur input. We have all been treated for scabies in my house. My teen daughter had itchy n crawly feeling for several months this winter. Several drs said just anxiety..since she had no rash or other symptoms. So we used zyrtec n hydroxyzine for her. Then a month ago my husband started getting bumps in groin area ..stomach....chest...he went to dr 3 wks ago n was told a fungus...meds didn't help...so went to our derm dr...he couldn't get a scraping...not look like typical scabies...but said will treat for them. I had very small pinhead size red dots occurring on stomach, underwear area n legs..my daughters did not have any bumps except teen maybe had 3 n my 10 yr old itched a little in her pubic area. We did the 2 week course...n dr insisted not have 2 do scalp n face. My husband n i did tho...but I didn't do girls. I was meticulous with vacuuming n washing clothes...bedding...towels..stuffed animals..blankets...pillows. I have awful sensations that bugs r crawling all over me...I itch....so I m sooo afraid treatment not work. Did my teen have it for soo long n was misdiagnosed? We had no idea where we got it. We used the 5% permethrin cream. No one else in family feels like I do. Sometimes I get feeling of a bug just biting me hard...usually on my arms or legs. HELP!

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      Samoa6 4 years ago from San Diego

      Hi dauna,

      Do you mean that everyone else in your family feels that they are cured and you are the only one still having symptoms? Or that they are all still itchy etc. and you are the only one feeling crawling? Scabies do not affect everyone the same way, i.e. some will have barely a reaction while others may experience a crawling sensation and yet others may get huge welts/blisters that look like poison oak. The fact that everyone in your family is or was experiencing this sort of discomfort leads me to believe that it is or was indeed scabies, although I am not a doctor and am obviously not able to tell you anything for certain over the internet.

      I know that doctors say to use the permethrin cream from the neck down, but the fact is that some people do actually get scabies on their faces and scalps. And if you read the instructions on the medication label, they do in fact say to treat your head/face, but not to put it on your eyebrows or eyelashes, presumably so you don't get it in your eyes. However my husband and I felt crawling in our eyebrows and our eyelashes, so I ignored that instruction and used the cream everywhere including both of those places and was just extremely careful not to get it in my eyes. This is not so hard to do if you do the treatments right before bed and then just shower immediately when you wake up.

      I suppose it is possible, from the biting and crawling that you continue to feel even after treatment, that you were not covered adequately, or possibly that you are getting re-exposed by coming into contact with an infected person. Maybe your daughters had them on their faces and are therefore still infested and then re-infesting you, or maybe they are cured but you are coming into contact with someone else possibly at work? This is a possibility for nursing, childcare or other professionals who are in regular skin-to-skin contact with other people on a daily basis.

      After treatment, as you have probably gathered from the article, it is common to continue to experience itchy, bumpy rashes that come and go for some time. However in my experience, the biting and crawling sensations subsided quite a bit after the first treatment, and were entirely gone after the second treatment. The rashes, however, continued for about 3 months, although they got less and less severe during that time.

      If I was you, I would assume I still had scabies based on the crawling and biting, so I would re-do the entire treatment sequence, doing the treatments one week apart. And if you are assuming you still have them, that means the rest of your household needs to re-do the treatment as well, just like the first time. Everyone needs to do it at the same time.

      As far as cleaning goes, you can vacuum and wash and dry everything with heat, but if you want to be 100% certain there is nothing on your furniture or in your rugs etc., you can always leave the house for a 3 day weekend, since scabies cannot survive off of a human host for longer than 72 hours. This way, to ease your mind, you can be certain that anything in your house is dead by the time you return. Also, you might want to vacuum out your car seats and wipe down the steering wheel etc. as an added precaution.

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      dauna 4 years ago

      I appreciate ur thoughts. The only thing is that I didn't have this sensation before treatment. I got itchy n a few small bumps but not how I feel now. My husband n kids don't feel as I do. So...not sure...I did the car cleaning right after 2nd treatment. I read to put on everywhere on body...I wished I would've now especially on the girls. I have a daughter who has sensory issues so doing the treatment was very hard on her. Stupid bugs! I will see how I feel in a couple days....if not better then will check on treatment. I know dr will say....u did it twice ur good....so not sure who to check with. Also...does sulfur work as I have read for doing some more natural stuff or only the permethrin? Thanx.

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      Samoa6 4 years ago from San Diego

      Hi dauna,

      It is probably a good idea to wait then, since you may just be feeling the after-effects of permethrin. I didn't have huge bumps etc. until after treatment either. I just had tiny ones that were a bit itchy and then of course the crawling feeling, which I thought was worse than the itching. Permethrin is a potent drug that works to kill the mites, but brings along many issues of its own. I have read that some people use sulfur and say it works, while others say tea tree oil works, and one person who commented on these articles used tea tree oil after permethrin treatment with fantastic results. So that may be another option. I would not use permethrin anymore on your daughter with sensory issues. Maybe try the tea tree oil or sulfur and wait it out for a few weeks to see if things start to get better. Then you can re-evaluate and determine if you'll need to treat again, and talk to a doctor about some less harsh treatment options, at least for your daughter.

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      Mayla 4 years ago

      Hi Samoa6.

      Again I must thank you for ur great contribution in this. I guess knowing that your not alone Is a helpful and peaceful thing to think about. I've read almost all ut posts but forgive me if my questions are repetitive ! I just need some one with experience I guess to talk to. So I was in vacation and got some mosquito bites there. But so did my friends and my boyfriend who I travelled with. A week after my return a few of my bites still continued to itch but I didn't think much of it. My skin started peeling due to serious sunburn so I wool just apply lotion such as Shea butter and alo Vera to keep hydrated. Also because of the un attractive peeled skin look I applied self tanning creams to even out the tan look! So 4 days ago when I got a random itchy bump on the inner side of my foot I thought ... Yet another bite! So I applied the "afterbite" an it seemed to do the trick. But a few days a go I woke up to a few itchy rashes on my hand , then noticed a few more on my stomach. That day I didn't itch at all. The next day when I woke up I realized my stomach was really itchy and so were my mosquito bites. I got scared ... Thinking I may have had a reaction to the bug bites, or infected my skin with the overuse of skin creams. so I started reading the Internet and came across scabies! I wnt to my family doctor and she said she thinks its an allergic reaction. She prescribed me some ointment to calm the mosquito itch. When I went to buy them, I asked the pharmisicist said let me look... And instantly she said... Those look like mite bites. I agreed frantically as, although they were not located in the webs on my hands but in my fingers and on their sides. I also had them on my stomach , thighs which from my research seem the frequent locations. I saw a second doctor and didn't ven let him talk. I said I think it's scabies and he checked. He was a bit hesitant but he said let's treat u for it anyway. So long story short I treated myself and my mother last night with thePermethrin 5% cream without even being properly diagnosed. My Mother an I have been taking every precautionary measure. Cleaning, disinfecting .. And ect. I originally came across ur post wanting to learn whether peeled skin after treatment is bad. Well... I personally would figure because the mites are under the akin right? So dry peeled skin .... Can potentially carry them??? Because i was sunburnt I wa peelin before but now after the treatment... The peeling is more. Should I worry about reinfestation? Im just so tiered of acting like a diseased individual always aware of being contagious! Also... I was amongst the people who were directed to use the cream neck down... Now after reading ur post... I started worrying about that! My second treatment is in a week.. But what should do with the face and the head till then? I mean they don't itch...ad I'm hopeful that they weren't infested perhaps since i acted very early... But what do you think? I was also thinking of REALLY chekig it out whether this Is really scabies that I have.. And none of ny friends whom i travelled with including ny boyfriend ( all with mosquito bites as well) have no symptomes whatsoever $6 .

      Oh god... Any words of wisdom at this point is so appreciated! And again... Thank u so much for being proactive in this matter. I would also like to contribute like this in helping awareness. It's greet to know people who don't even know each other care about one another.

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      Samoa6 4 years ago from San Diego

      Hi Mayla,

      It is impossible for me to tell for certain whether you are experiencing an allergic reaction to something, or whether it is scabies or even bites from another kind of mite such as bird mites (bird mites don't live on you like scabies do, but they can come into your house through vents, a window or door if a vacant bird nest is in your attic or just outside, say, under an overhang on the roof, or on a tree branch touching your house, and they will congregate anywhere you spend a lot of time, like in your bed or at your computer - their bites can seem like bedbug bites). It is also very difficult for a doctor to tell what it is - even with a skin scraping it's really hard to find anything sometimes. Since you've decided to go ahead and assume it's scabies, then stick with the treatment course and do the second treatment in one week. Hopefully there was nothing on your head, so just do the same thing for the second treatment as you did for the first. But make sure you understand that the treatment itself, i.e., permethrin, also seems to cause itchy bumps that can be even worse than the initial problem, and that can last for some time after the mites have been killed. After the second treatment, I would wait for 3-4 weeks and see if the itchy rashes begin to subside. If it is just as bad or worse, then you will have to try to figure out if it was scabies to begin with, and if so, if you might have had something on your head (scalp or face) that survived the treatments, and then treat again accordingly, or whether it is something else entirely, like an allergic reaction. If ends up lasting that long, make sure you find a dermatologist with plenty of experience with scabies, and who knows about the post scabies syndrome that is so commonly reported following the use of permethrin. If the doctor is not familiar with this, or tells you to treat from the neck down, then this doctor is operating with outdated information, like so many others are when it comes to scabies. They will tell you what the "typical" case is and how to treat it, but not what some atypical cases may involve, and honestly, after our experience and so many others I've read on the internet, I'm beginning to wonder if the atypical case isn't actually typical! If you don't mind, please drop us another note a few weeks after your second treatment just to let everyone know how it is going, in case others who find themselves in your same situation may find it useful info. Also, feel free to write whenever if you have more questions, and I wll try my best to answer. Thank you so much for your comment, and I hope you experience relief soon.

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      Samoa6 4 years ago from San Diego

      Mayla - one more thing, I would avoid using many other things on your skin, because if you do in fact have scabies, then you'd want to know rather than cover the symptoms up with medications etc. that may make it better temporarily, but that will ultimately just prolong the problem.

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      Samoa6 4 years ago from San Diego

      Mayla - also, my son's skin peeled from the scabies, even before we treated him with permethrin. Not sure if this is normal, or just happens with some people.

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      Mayla 4 years ago

      Wow, thanks so much for the response! I think I'm going to go ahead and take ur advice. I'm going to take the secod treatment .. But good god i do fear the after effects of the itch. As odd as it sounds, I don't itch much right now. First time I noticed a bump on my hand I scratched it a bit but it went a way. That night it did itch a little but didn't wake me up or anything. And last night before bed I took the antiesteminaphone pill prescribed just cuz the doctor said it will itch so I took it and passed out! Today, and all of today... Nothing, I do feel discomfort but nothing intense. However I have read that the beginning stages the itch isn't bad and that if left underrated after weekend reaches a coresendo. You see Samoa6 , nothing seems to be certain in my case.. And that's what's throwing me off the head. I've decided to see a dermatologist Asap and pray for some responses, and also go with the second treatment and include my face and scalp that time around. I will definitely for sure keep an update in here incase it does help another poor individual.

      Just one kore thing, the dermatologist you spoke of, the one who had extensive experience... Just wondering what part of the world he's in? Lol perhaps I'm in the same vicinity and can attempt to see him/her insread of searching desperately for one.

      Again... Many many thanks for y

      Your insight !

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      Samoa6 4 years ago from San Diego

      Sounds like a good plan. Concerning finding a doctor, just call around your area and ask the nurse or whoever you can get on the phone how much experience that doc has with scabies. The nurse should be able to say something like, "yes, people report that response quite often after treating with permethrin." This would indicate that this particular doctor has seen multiple cases. Just be very very careful with the permethrin, particularly on your face. One commenter says it caused her eyelids to twitch for 4 months. This is the only person I have heard that from, though. Just use caution, and don't get it in your eyes or overdo it in any way. Good luck.

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      sam67phill 4 years ago

      I had scabies about 3 months ago, and treated it with Permethrin, washing my bed sheets, and then applying the cream overnight. But i have consistently been having itchy spots reappear mainly on my hands, groin, legs, and genitals. I must have done 5 treatments on myself now in the last 2 months. and also spot treatments in between. i realise now on my last treatment that i should use the permethrin cream, and wash it off after 12 hours before i sleep in my clean bed. i do sometimes have a slight itch on my nose. my last treatment was on Wednesday 30th May. and last night i had 2 spots appear on my genitals. and i spot treated them, and they were gone within 6 hours. i have done this numerous times, but spots keep on reappearing and so i continue the same routine. i am planning to do another treatment tomorrow 4th June. also i live with my parents and brother, who do not have scabies. so it has just been me doing the treatment. what would your advice be? is this post scabies or the reaction to the permethrin? or am i constantly being reinfected? I will greatly appreciate your advice as i am currently in the middle of my A-level exams, and i just do not need this distraction right now. Thank you very much.

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      Moses4 4 years ago

      Just updating... We did our first perm treatment, our daughter had a terrible reaction to the cream and the rash that ensued was so very much worse than the scabies rash that we doubted the diagnosis. She was put on prednisone and hydroxyzine, Zyrtec and Benadryl daily for 2 weeks. We finally were able to get in to see a dermatologist PA, and he too said scabies. Prescribed Eurax for daughter and told me to put perm on myself and hubby. He also did scrapings of my bumps to check for the bugs. He found nothing, but he hadn't scraped any burrows. I didn't see where he was scraping, or I might have said something. But you'd think someone in his profession would know where they live/ lay eggs. So we did our treatment on a Thursday night, with all the cleaning that goes with it, and I felt pretty great until Wednesday afternoon when I can only say that I knew the burrows that had calmed down on my collarbone sprang back to life and hatched. Wed. night I spot treated the spots on my collarbone, a new spot under my earlobe, and new spot under my chin with perm since it wasn't time to do

      our whole bodies until Thurs. night.

      We retreated our whole bodies Thurs and the spots I had spot treated got really irritated. When I finally finished my cleaning on Friday, it had almost been 22 hrs....what can I say? We have a large house and I'm 34 weeks preg. I'm a bit slow :(. Anyway, I'm so itchy I can hardly stand it under my chin and earlobe. I'm using hydrocortisone and cloberasol

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      Moses4 4 years ago

      Sorry- stupid smartphone!

      Those creams together for my itching, and not getting much relief. I also have new spots that look like bites on my shoulder, belly, chest, and ankle, but don't know if they're just contact dermatitis. Claritin in morning and Benadryl at night. I wish someone could just tell me "Yes, you've killed the bugs. You can stop cleaning and freaking out now." I have never cleaned or prayed so hard in my life.

      Any other advice for freaking out and exhausted mommy?

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      Samoa6 4 years ago from San Diego

      sam67phill,

      not sure if you covered your entire body, including face and scalp, but if you did, and you did it twice, one week apart, then what you are describing could very well be post scabies syndrome. importantly, if you are feeling something on your nose, etc., like my family did, then you may have to treat there even though the medication label says not to. talk to a doctor about this, in case you have not treated your head or face adequately. however post scabies syndrome is very similar to scabies, itself, so it's difficult to tell. i would not spot treat or do anymore with the permethrin if you have already adequately covered yourself, as this is a potent chemical and you may just be making your problem worse. unfortunately, you will just have to wait it out for a few weeks to see if the itchy bumps subside. you can talk to your doctor about taking an anti-histamine to alleviate the itchiness in the meanwhile.

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      Samoa6 4 years ago from San Diego

      Hi Moses4,

      The itchy bumps could very well be what has been discussed above as post scabies syndrome - these bumps/burrows etc. can continue to pop up for months, but in our case it did get less and less until it finally stopped happening. Unfortunately, now, you'll just have to wait a few weeks to see if the symptoms begin to subside. That's how it went with us, too. In the meanwhile, all that we were able to do was use anti-histamine so we could sleep. But it did eventually let up. If your reaction is similar to ours, and it sounds like it might be, then you are in the worst part of the permethrin reaction right now. So just try to remain calm. Cleaning any more probably won't help at this point - that's not the major mode of transmission anyway, skin-to-skin contact is, and you have most likely taken care of this with the permethrin.

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      sushiomelette 4 years ago

      Hi Samoa6,

      Read through all your posts and it has been a great help knowing that I'm not the only one who has gone through this suffering. It's almost like death by itching. The scabies (tiny red dots) were on my forearms, back of hands, shoulders, bra line, breasts, torso, back, thighs, neck, forehead, chin, ears, back of ears, but hadn't spread past my knees. I didn't get it in between my fingers or on my feet (thank God). The patches on my bra line were dark colored, grayish and weeping. That is the worst area.

      Just started my first application of permethrin last Thursday. I didn't know I had scabies until I saw my doctor. I had dismissed it as my eczema until he pointed out that it didn't look at all like my normal eczema. It's day 4 of after my first treatment. I've been washing sheets everyday and vacuuming. I can see a huge improvement in my skin already. I took a picture on the first day and compared to now it's a lot better, although my skin does weep in the bad areas (probably eczema). I thought it might be spreading down the back of my right knee, but I did a spot treatment yesterday so hopefully that will calm it down. I did put some on my forehead, chin, ears, and behind my ears because although the doctor said to put it on from the neck down, I noticed the same bumps on those areas as well and thought I might as well treat it.

      After the first day my skin was peeling terribly and really dry so I put vaseline on and it helped with my skin's elasticity. I have a few more days until I apply my second treatment of permethrin, looking forward to it really, but I'm glad you mentioned there being a post-scabies reaction. Something to prepare for and not freak out over thinking it might be a reinfestation. I'll keep you posted on how well it goes and hopefully soon I'll be scabies free!

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      Samoa6 4 years ago from San Diego

      Good luck sushiomelette, and thank you for your comment. I hope that the treatment you did on your face was enough to get anything that may have been there. We actually did a thorough coverage of scalp and face because we knew we had mites there, but what you did may have been enough in your case. It is difficult to try and not overdo it with the permethrin, particularly if you've had a peeling reaction, but at the same time, to not miss anything. If you think of it, please drop us a note a few weeks after your second treatment to let everyone know how it went. Thanks again.

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      omg please 4 years ago

      how do i begin 7 mon 6 different diagnos and800$ down frequent and obssesive cleaning also no touchie polocy. did i forget to mention telling doctor i have a gun and im not leaving without perm medicine. took it saturday today is mon (this is the first time reading yours so no i followed the doc not on face or scalp iread all above but just like mites? why when night comes if it killed the living realentless THINGS do seem to be under attack again if its just the meds does it also seem worse at night thanks

      HOPELESS * contimplating cliff diving

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      Samoa6 4 years ago from San Diego

      omg please,

      it takes a while for the medicine to work, but also, you need to make sure it is scabies and not bird or rodent mites coming into your house. this can sometimes be a huge problem, with biting mainly at nighttime just like with scabies. follow the link at the bottom of the article to read another article titled, "Mites That Bite Humans: Bird and Rodent Mites." then, if you cannot find evidence for bird or rodent mites in your house, just continue with the follow up treatment for scabies, which you should do next saturday. the itchy bumps take some time to heal - just read the previous comments. the only solution is to wait it out until this reaction subsides, which can take months. you can talk to maybe a different doctor if you are not happy with your current one about using an anti-histamine or something else to calm the itching in the meanwhile. ask how much experience the doctor has with scabies before wasting any more of your time and money though. find one with lots of experience and who knows about post scabies syndrome.

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      Moses4 4 years ago

      Thank you, Samoa6. I appreciate your encouraging words.

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      sam67phill 4 years ago

      thanks for the advice. i did read somewhere that a man kept on re catching it from his leather office chair. i have a leather office chair also that i sit in about 4 hours a day. so i think that i may be re catching it from this. i have cleaned it and am not sitting on it for a 4/5 days and i will see if i re catch it again. i did do another treatment yesterday and am hoping i am clear. if i do get more spots i am going to my doctor. thanks for the reply. you are very helpful to everyone so thank you, and hopefully i am free. thanks.

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      omgplease 4 years ago

      thanks feeling better after read your return looked for others at boyfriends and at home seems clear but will do 2nd treatment sat. do i vacuum and put thinds in bags again. im going to launder everything again anyway. this time im going to do scalp thanks so much!!! good luck everyone.

      oh got a soap from new dawn homemade soap #5 tea tree

      helped with my itch and redness. THANXS

      everyone.

      also got a soap bar from new dawn homemade soap on ebay #5 tea tree HELPED THE ITCH .ps not a cure

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      omgplease 4 years ago

      thanks for your knowledge. im going to apply on scalp sat.(also). 2nd round! slept good last night you have given me hope. good luck everyone.

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      Samoa6 4 years ago from San Diego

      Good luck omgplease - please keep us posted as to your progress. Hope you experience relief soon.

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      4 years ago

      Thank you for the post. I've been getting these symptoms as well; I've nuked my body with permethrin 5% 3 times now in the past 7 days (Yes, I know that is way above prescribed; I had to go two and a half months without being able to go into a physician for help). While some of the bigger spots have died down, including some incredibly scary lumps on the penial area, the rashes and seemingly endless breakouts haven't really subsided. After living with this crap for almost three months now, I'm ready for it to be done.

      I've been cycling out beds now for a week or so; three to be exact. I've seen across the internet people talking about post-treatment 'crawling', which I, too, have been experiencing. However, scabies cannot crawl (obviously) so many say that is a sign the medicine worked.

      I look forward to my final treatment here in a few days (as directed) to finally rid myself of these things. They're more annoying than harmful, but at this point I would have much rather preferred a more severe, one time hospital visit than to endure these things as long as I have.

      Thank you so much for this info. It seems I might not be stuck with these anymore. At least, I can fear a little less about spreading it around to everyone I know!

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      Samoa6 4 years ago from San Diego

      Hi J,

      If you have covered your body from head to soles of feet, then you are probably right, you are just experiencing a reaction to the medication. And using it more than it is prescribed is probably just making your "post scabies" symptoms worse. I would only do it one more time, one week after the first time you used it, and then stop. If your case is like ours, the bumps and rashes will get worse after that final treatment, but then better and better until it is gone. Good luck, and thank you for commenting. If you think of it, after you are cured, could you stop in again and leave us a note just so that others can read your experience with (hopefully) a good outcome? Cheers!

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      Desperate 4 years ago

      Hi. I was infected with scabies by my boyfriend back in march. I let it go not knowing what it was until about two weeks ago. I saw a dr and was prescribed perm cream and used it once, washed everything, then used it again a few days later and left my house to go to his house (he did the exact same thing I did, applied cream and washed everything) my last treatment was Monday afternoon. I was getting some itching that night but really no bumps. I had very little itching the next few nights until tonight. It's 330am and I'm wide awake crying because I want this gone. Tonight I've began itching my right side, mainly lower back to upper back of the thigh. The bumps aren't little, most of them are larger in size. I got a little itching in other places too but no bumps, I was thinking maybe it's just my mind and skin playing tricks on me except for these larger bumps. I was highly infected in the areas in itching and showing bumps however. I just don't know if I got rid of these things or not and I'm desperate too. I itch mainly at night when i start thinking about the mites or get the slightest itch. Again tonight is the first night getting these larger bumps. The bumps on my hands and fingers have dried up and stopped so I don't know what to take from this all. Honestly I'm experiencing depression and obsessive thoughts over this. It's all I can think about. Please, any advice is greatly appreciated.

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      Desperate 4 years ago

      I take back the no bumps on my hands... I just found two that have popped themselves on my one hand and are already healing. Does this mean I'm reinfected? Please, please help me... I am honestly at a loss anymore.

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      Desperate (again) 4 years ago

      Sorry for the overload of posts. I just wanna clarify the two bumps on my hands I never saw as the bumps but in the past they were almost like tiny blisters (very small) then they burst and have a liquid in them... Then the skin around them seem perky and dry. That's the stage I seem to immediately have gone to with these two.

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      Desperate 4 years ago

      Peely not perky. Damn autocorrect

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      Samoa6 4 years ago from San Diego

      Hi Deperate,

      Did you treat your whole body, including scalp and face down to soles of feet, getting under nails and hair etc.? If you did, the odds are you are probably just experiencing the post scabies syndrome everyone is talking about here and in the comments of my other article, "Atypical Scabies Symptoms." My only concern would be that you might not have adequately covered yourself, or that you did your second treatment too soon (it should be one week after the first), so that the eggs may not have hatched by the time of your second treatment and therefore could have hatched afterwards and still be bothering you. The perm. doesn't kill eggs. Nothing does, apparently. But really, the odds seem that you are just experiencing this post scabies syndrome that will lessen and go away with time. You can try anti-histamine in the meanwhile, if your doctor thinks that's acceptable, to lessen the itching, particularly to help you sleep at night.

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      Moses4 4 years ago

      Hi again, everyone! I wanted to give another update. We did our third treatment (second after the recommended week) two Thursdays ago, and -knock on wood- are free from this horrible plague. It's really weird how they mess with your immune system. Every time I get bitten by a mosquito, I get a secondary reaction of tiny itchy pin prick type of bumps elsewhere. It's the weirdest thing, but I put hydrocortisone on both the mosquito bites and the other rxn, and the little bumps go away in a few hours. As to answer whether any of us have scabies still, or are just dealing with post, Watch the new spots you get. Take pics of them. If they get worse, it's probably a reinfection. If they get smaller and disappear, it's probably post scabies syndrome. Like Samoa says, it's a waiting game. My daughter was prescribed Eurax for her infection because she was allergic to perm. Eurax is also used for its healing and anti-itch properties, so I used it on all of us for itch and new spots. Personally, I would NOT recommend spot treating with perm cream, because I got a couple of chemical burn spots under my chin- sensitive skin there. It's still red and a bit unsightly. Since I'm 8 mod preg, I can write it off to pregnancy eczema. Anyway, I mainly wanted to thank all of you, and tell our *crossed fingers* success to lift anyone else's hopes for their own situation. Good luck, everyone, and I really hope you all get free of it soon. Thank you, Samoa, for being such a positive influence and sharing your successes. My fam and I really appreciate you.

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      Survived scabies 4 years ago

      I just got over scabies and wanted to put a not so negative experience out there, when I was freaking out and desperately surfing the net for cures all I could find were horrible stories of people having them for months or even years. I did as my doctor advised after shower b4 bed i covered my whole body from neck down with perm cream, the next morning with the cream on I washed my sheets and dried them in the dryer. I vacuumed and sprayed fly spray that had the same ingredient over my lounge and carpet with the windows open, I was feeling happy thinking I was going to see the end of these horrible bugs. The next night and day the itch and bumps continued, it actually seemed to get worse and I was starting to find itchy bites in new places. I freaked out thinking maybe ill be one of those people who have scabies for years!!! Went back to the doctor (who didn't seem to care) he told me to repeat the same process in a weeks time. Reading the net I found alternative treatments so I thought why not, I have to wait 7 days to use the perm cream again. I started to put Aloe Vera gel all over my body b4 i went to bed,don't know Whether it helped the treatment of scabies but it eased the itch and made my bumps dissapear quickly. When I used the perm cream and followed the same process, I continued to get more bumps but within 7 days they slowly died down and eventually stopped appearing.

      It helps to be very obsessed with cleaning, I washed everything I wore and used got jackets dried cleaned and sprayed bug spray at the end of the day in my shoes.

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      Samoa6 4 years ago from San Diego

      Moses4 - Thanks for checking back with us - I am very happy to hear the problem is solved! Best wishes to you.

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      Samoa6 4 years ago from San Diego

      Survived scabies,

      Thanks so much for sharing your story here - it should provide hope for people still dealing with this awful problem.

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      Scared... 4 years ago

      Hi, I posted earlier for the first time, but cannot seem to see my post yet.

      I have since spoken to my sons doctor. I had a.lot of questions for him and he patiently answered them all. We had a bad experience with the derm, so we went back to the pediatrician who has known and treated our son for many years. The only question he wasn't completely sure of was regarding nodular scabies.

      I wanted to know if he has these in his groin area (the derm seemed to say that last week) and from what I read these usually come after a case of scabies has been cleared, so to speak, then how can you have active scabies and also have nodular scabies? The pediatrician didn't really know how to tell nodular from regular, so wasn't sure if that was what my son had in that one area.

      Also, I asked him about using permetherin cream in conjunction with the ivermectin that he already started taking this past Friday and he felt that it would be safe and fine to try since this has been with him for going on 10 months. He said to do that tonight, then continue with the ivermectin pills on Friday(1 week from the first dose) and then another coverage of the cream on next Monday the 18th.

      I know you have mentioned including the face and head with the cream. Do you cover the entire scalp, nose, forehead, ears and around eyes and mouth?

      Please give me step by step instructions that you used for applying the cream. He is a teenager and I will not be assisting him, but want him to get it right. Does he shower first, dry off and apply? Should he get under the toenails and fingernails and what is the best method for that? Also, his private area should all be covered, but what about areas with hair and what about the behind... Sorry to be graphic, but how far should he go in there?

      If there is anything else you think I should know, please share. This has been an exhausting and difficult time and we just want to do things right so he can get well.

      thank you so much

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      Scared... 4 years ago

      Sorry, this is the first comment that I meant to make before the one about speaking to the pediatrician regarding nodular scabies...

      Hello, 

      We have been dealing with a difficult series of events trying to help my son get rid of scabies. He was traveling in Asia last summer and slept on the floor of a train for 13 hours and also had an experience on a very dirty floor in a hostel, too. I suspect this was how our almost 10 month long nightmare began. 

      He came home and about 2-3 weeks later started complaining of a rash. We took him to see his pediatrician and they diagnosed him as having a form of jock itch or athletes foot and sent him off with some anti fungal spray . This did not give him any relief, so after a few weeks of trying some over the counter stuff, we went to the dermatologist . He thought it was scabies and prescribed permetherin cream in 2 doses seven days apart. 

      He did the treatment and we followed the instructions for clothes and bedding and towel washing, but did not go crazy. He did not see any relief, so the doctor said it must not have been scabies and we needed to try some prescription cream with steroid. Well, this went on for months, bouncing around from doctor to doctor 7 in all and they each had a different opinion, but no treatments worked.

       Now, all this time, the other 4 people living in the house and sharing the same bathroom, laundry, etc had no symptoms. We came to find that one of my sons friends who sleeps over quite often had a rash, but assumed it was just his allergies, since he gets rashes all the time. At one of my sons Dermatologist appointments, he mentioned that the whole family was rash free for the last 7 months but then he mentioned that his friend had a rash. The doctor decided that it was possible that the perm didn't work because of the friend and he prescribed ivermectin. 

      He did the treatment, one pill and another 7 days later. We figured all was over and went on with our lives, but I made sure to ask the friend first if he really did have a rash or if he was just having his typical allergy outbreak, as we wanted to be sure that this treatment would be successful. He assured me he was fine and rash free.

      Well a few weeks later, my daughter overheard this friend blaming my son for " giving him scabies" and she told me about it. I asked the friend  again and he then admitted that he had a rash and  it looked quite a bit like my sons had at one time. My son had not been improving, so we now had to suspect that this boy had possibly reinfected my son after the last treatment. 

      We went back to the pediatrician and the derm and they both agreed to take a biopsy and scraping(amazingly, no one had done this in the whole 7 months even though I requested it!) we had to wait a bit and when the results came back, there were no mites or eggs, etc, but an immune resonse consistent with allergy to scabies. I asked, does this mean he still has it and the doctor said yes and he need to do the perm treatment again.

       Because 8 months had passed and no one in the household ever had symptoms, he felt it was fine to just treat my son, but it would be important to get the friend to treat, also.

      We were going to have my son do the perm, but when I called the derm with some questions, he became agitated with me because he said I had taken up too much of his time at the office visit the other day and he would not spend any more time talking with me, he said," just do the treatment " and he hung up on me. I was shocked and upset, so I called the pediatrician and he was very sympathetic and kind. 

      He called our family pharmacist and together they discovered that this derm who had barked at me had treated my son with the wrong dosage of ivermectin the previous time. He gave him 1/5 of the recommended dosage by weight for my son! They couldn't believe it and they both guessed that this was one of the main reasons the treatment had failed.

      We just did the ivermectin pill treatment on Friday and will do the second one in 5 days. We have steam cleaned all carpets and furniture and wash all my sons clothes, bedding, towels and even shoes every day. We vacuumed out the cars and sprayed them and all our furniture with sawyers permethrin 5%. It is a spray used for camping gear and clothing.

       I know this all sounds a little extreme, but spending time on the Internet set off severe fear and anxiety in me that we would never get rid of this pest and my sons suffering would continue. I haven't slept and I am fretting over so many things.

       Will this treatment work and how will we know for certain? When can my son socialize with his friends again, especially the one with the rash who just did his own perm treatment? Are these things living in our furniture and all around? I swear I sound crazy and I am not, but this is really doing a number on my mental health. 

      My son and his friend with the rash are supposed to be traveling together for the whole summer and they are due to leave in less than three weeks. I have no idea how I can send him off when this will probably not be resolved.

       How can I know what to do when there is no test to determine that this scabies is gone? How can I expose other people that he may stay with to this? How can I be sure his friend is scabies free and they won't just start the whole thing over again? 

      I am so sorry for ranting, but there is no one who can help me and all the answers I get seem so contradictory or just plain unsure or even terrifying. I have read of people struggling with this for years, burning their belongings and even moving and throwing out everything they own. It is too much to think about and I just need some hope, some good advice and some compassion to try and restore my sanity. 

      Thank you for reading this and I am sorry again for the rant.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Scared,

      No worries about "ranting" - I know what it feels like to have this go on and on with no relief, and no knowledgeable doctors. There is no way for me to say for sure that it is scabies, but given the traveling experience, the persistence of the rash, and the fact that your son's friend has it too seems like it may be. Ivermectin should work, as should permethrin, but since you have recently used Ivermectin, just stick with the treatment course. However there are a couple of things you should pay attention to since you did in fact use permethrin in the past.

      First, your doctor should have told you to have everyone in the household treat themselves, even if they are not showing symptoms. This actually goes for using ivermectin as well as permethrin - it doesn't matter which treatment you are using. And of course, since your son's friend has a rash, you should have him visit his doctor, who should tell him that everyone in his household should treat themselves accordingly. Since this has become such a long-term problem, if I was you, I would insist that your son not be in close physical contact with his friend until this issue is resolved, particularly if the friend will not treat himself properly, or is not having his family treat themselves.

      Second, when using permethrin, the instructions on the label are to treat the entire body, from the head/scalp to the soles of the feet. There are special instructions to avoid the eye area, as well as not to put it in your nose or vagina, etc. It is for external use on the skin only. Conversely, doctors will often tell people not to treat the face, which in many cases may be fine, since scabies supposedly don't affect the face or head as often as the rest of the body. However I am living proof that they do indeed infest your face in some cases, even if it is rare. So you can imagine, if your son happened to have them on his face, but only treated from the neck down, that he would not have solved his problem. Likewise, if he only treated once, then some of the eggs may have survived the first treatment, hatching and causing the whole cycle to start again. Alternatively, even if treatment was done twice, thoroughly, your son could simply be continuing to re-infest himself by having physical contact with his friend, or possibly even his friend's clothes or furniture. This is why I would suggest they stay apart for a while, to at least rule this possibility out.

      Finally, you should read the article above thoroughly, including the many useful comments that follow, to have an understanding of the problems that may be caused by permethrin, even after the scabies are gone. This may indeed be what your son is experiencing, if he did actually see the treatment through properly already. Continuing to do further perm. treatments may actually cause the problem to get worse.

      Bottom line, I would stick with the Ivermectin since it is reportedly effective, and is not likely to aggravate the skin anymore, especially if he's already killed the mites and is just having some sort of long-lasting immune reaction to the permethrin. Secondly, do one more round of washing his clothes, sheets, etc. just after his second treatment, in case anything may have dropped off onto his clothes or in his bed. You do not have to be psycho about cleaning though, as the mites do not like to spend time off of the host, but it is a good precaution. If you are really needing peace of mind, you can always take the family away from your house for a few days after his second treatment, and by the time you return, anything that was alive on furniture etc. would be dead (they can only survive 72 hours (3 days) off a host). Finally, have him keep his distance from the friend until you can rule out that he is not getting re-infested. After the second ivermectin treatment, he will probably begin to experience some relief, although he may still be reacting to the previous treatment for some time i.e., random itchy bumps appearing for a few months, but they become fewer and less severe as time goes on, until they are gone.

      One other thing, it might not be wise for him to be traveling until this is resolved, as he could pass it on to someone else. I postponed a family trip we had planned until we were clear. But this is just my conservative opinion.

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      Scared... 4 years ago

      Thank you very much for your quick response.

      So you are saying that the ivermectin alone that he has already started should be sufficient? The pediatrician thinks that it is safe to do both ivermectin and add the permethrin starting tonight and again next week, just to be certain. He also stressed that since everyone in our household has been living together for the last 10 months and not one of us or any visitors have had any symptoms, aside from this one boy who did happen to sleep in the same bed as my son on several occasions, that he sees no need to treat us.

      I am now worried that you seem to disagree with the doctors decision not to treat us. If we had not gotten it already, wouldn't it seem likely that we wont get it? I don't know, I guess I am just fretting and rethinking every single thing here.

      I also have very little control over what my sons friend does. I am hoping that he is applying the treatment correctly and taking proper precautions. This may sound ridiculous, but I know that we will not have any definitive answer prior to their travel date and they will lose thousands of dollars. It only makes all of this that much more stressful and difficult. If only there was a way to be certain that the treatment worked...I am really having a hard time seeing my way through this.

      Any help would be appreciated.

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      jb 4 years ago

      after contact with a person with scabies i was treated this "permethrin cream" and 1 month later had more track marks then the first case, now i have went to the doctor and got another tube...hopefully this will heal. it sux having this crap

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      Samoa6 4 years ago from San Diego

      Scared - Some people do use Ivermectin alone, and it is reportedly sufficient, but I did not do that so I can't speak from my own experience. Ivermectin is actually used to (successfully) treat a variety of different parasites. By all means, you should do both, as the doctor suggested, if for nothing other than peace of mind. It seems incredibly unlikely that any mites could survive that combo. I am quite surprised, however, that the doctors did not recommend treating the rest of your household - that is standard protocol. However, I suppose that if none of you have gotten it by now, then the odds are in your favor. I am not a doctor, and am not going to attempt to override anything that your doctor said, and chances are anyway that you will all be fine. However without treating everyone, you cannot rule out the possibility of re-infestation should the symptoms continue long after treatment. Hopefully the symptoms will begin to lessen a bit following treatment, and this will not be an issue. The same goes for traveling, hopefully your son will begin to experience some relief over the next couple of weeks, so it won't be a problem. If the friend is not treating himself, then all you can do is arm your son with information so he can do his best not to share a bed or clothing with his friend.

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      Samoa6 4 years ago from San Diego

      Hi jb,

      It does eventually let up, just takes longer than you might expect. Good luck.

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      Keri 4 years ago

      Quick question Samoa, the affects of Perm cream seem to continue for a while after treatment. I noticed I was having some ticks in my hands and feet in bed last nite. So my question is do you know if the cream can cause burning and itching even in areas you did not treat? I've been watching my head like a hawk as I did not treat it or my face. I'm having the same reactions above as I am where the cream was applied. I see no signs of bites or burrows in my hair or face. Perhaps this cream causes some pretty substantial affects to the nervous system? I almost reapplied thinking I should have covered everything but without any proof of new bugs I'm thinking the side effects continue for quite a while and mimic a new infestation. Just food for thought, thanks!

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      scared... 4 years ago

      Thanks, so much for the response. I know you cannot give me any guarantees and I'm incredibly stressed. I know what you are saying about treating the household, but all the doctors we' ve dealt with, not one of them even talked about it until I asked them about it. It seems that no matter what choice I make, I continue to doubt myself and have fear of not being free of this. Thanks for the encouraging words. Would you mind describing the way you went about using the permethrin so I can make sure my son does a good job?

      Thank you very much.

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      Samoa6 4 years ago from San Diego

      Hi Keri,

      Yes, the effects after treatment do seem to last a while, which, combined with our family's difficulty in obtaining an accurate diagnosis to begin with, was my whole motivation for writing these articles. We definitely had itchy, bumpy rashes appearing in random places after treatment, even in places that were seemingly unaffected prior to treatment. We finally saw the last of them about 3 months down the line. Every now and then I still feel a bit of a crawling sensation, but it always subsides quickly, and I really just think the bugs and/or the permethrin does a number on your immune system. None of us had twitching though. There was one other commenter (I paraphrase her comments toward the beginning of this whole string) who said she had twitching eyelids for several months following treatment. I have also read the CDC and other professional websites discussing the scientific findings on permethrin, and they report some twitching in the animals they used to test the drug (animals are always used before anything is made available to humans, of course), but I have seen no reports of human twitching or major effects to the nervous system. The fact that you are experiencing this is a bit worrisome - you should definitely report it to the same doctor that prescribed the medication to you. And I would not use it again, i.e., don't spot treat or anything because you are nervous you still have scabies. The odds are that you have killed off the bugs, but are just reacting. How severe is the twitching, and is it on and off, pretty constant, mainly at night etc. etc.? Just curious, as I think it might be good for others to know about this potential side effect.

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      Samoa6 4 years ago from San Diego

      scared...

      I just rubbed the cream in thoroughly everywhere, including my scalp under my hair (I did not do my hair, just the roots at the scalp) and my face. We all did. My husband and I even put it just inside our ears and noses as well as in our eyebrows, on our eyelids, and at the base of our eyelashes, even though the instructions on the medication specifically said not to. We did this because we actually taped mites from these places (we both felt crawling there), the mites we eventually had identified, and were therefore afraid that if we didn't treat there, we would not eradicate them. I am a little hesitant, though, to tell others to do this, because one person said she had twitching eyelids for months after doing this. We also covered the genital area under hair, and all around the nail beds and under the nails. I hope this time it works, and that your son does not have any adverse reactions. It is really hard to tell whether the medication has worked or not, you just have to do it and then wait it out. Most likely any reaction will lessen with time.

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      Scared... 4 years ago

      Thank you very much for the details.

      I wanted to mention that my son told me tonight that he has some blister looking spots in between his fingers, that he has never had before. I told him I thought it was because the medicine was working, because he has been so worried, but I'm not sure if that is true. I will speak to the doctor in the morning, but I wondered if you had heard of this happening?

      It is 4 days after the first ivermectin dose and he will not use perm until tomorrow night.

      Thanks again.

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      Samoa6 4 years ago from San Diego

      Scared...

      Yes, we all got blistery-looking rashes that resembled poison oak after treating with permethrin. New ones continued to emerge for a few months. Just do the second round of both treatments and then no more. Just wait it out and observe, things should lighten up over the course of the first month after the second treatments. The rashes may continue, although hopefully to a lesser extent, even longer. For us it took 3 months before it was finally over.

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      Scared... 4 years ago

      Thank you again, just a detail question...I cannot seem to get a consensus on this. Do you shower before putting on the permetherin cream?

      I've heard/read everything from DO NOt shower, to make sure you are clean and dry before applying, to shower, but then let your skin cool down before applying.

      Any advice? Thanks

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      Keri 4 years ago

      I believe I was bitten on my right eye before I used the perm cream. It itched and swelled a bit, it also started twitching involuntarily. After the Perm I started twitching in one of my legs and my eye continued to twitch. I did not use perm on my face which raises the question whether the cream is causing it. I believe it could be allergic reaction to the bugs and feces. I had severe allergies before catching this wonder bug, the side of my nose and one side of bottom lip even swelled when the bug attack began. If the Perm cream had not worked I would've bet money it was allergic reaction to something, but the cream in fact did work so I knew my self diagnosis was right. Today I noticed severe flaking in my hair. I feel a slight itch but its internal, cannot scratch it. Not getting the nighttime itch attack like before so I'm inclined to think I've developed dandruff, although I've never had it in my life. I have 2 spots on my legs that itch a bit but both failed the ink test and no nighttime itch attack, so I'll keep you posted on how I'm doing later on. I don't want to treat again, that cream wreaks havoc on your skin and I only used it once!

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      Samoa6 4 years ago from San Diego

      Scared...

      We all showered and dried and then put the cream on, just before going to bed. I think the 'no showering' is meant for after putting the lotion on, since you don't want to wash it off before it has had time to work. Same goes for washing your hands after using the cream, i.e., don't wash it off of your hands. It's best to do it before bed, so you are less tempted to wash hands or rub eyes, etc.

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      rojimmy 4 years ago

      Killer article Samoa thanks for all the great advice and my condolences to your previous situation which led to the gathering of all this info. My son seems to have scabies. Started out on mid calf and elbow area he scratched it pretty good broke all the bumps and has scabs now that are healing. Then 4-5 days later a patch broke out on his face. Been to doctor he diagnosed as such, prescribed the permethrin 5% and we have done a treatment. Just like most things got worse seemingly redness and some irritation bumps where there were none.

      I really do not like the thought of using the permethrin again on my 10 year old son, it seems like nasty stuff.

      My big questions:

      Neither me nor my wife have shown any signs of being infected should we treat anyway?

      Are you at all familiar with the Natursil products? Have you or anyone on here had any experience with them?

      It DOES say on the label syptomatic relief...does that mean that it does not kill the buggers =-)

      Anything seem to work BEST for quick itch relief?

      thanks for your help

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      I Hate Scabies 4 years ago

      Hi Somoa6,

      Thanks for writing such an extensive article and taking the time to respond to our comments.

      I started treatment 2 weeks ago after the doctor diagnosed me. And even though I applied the permethrin to my whole body, the itchy dots and rash was concentrated on my biceps, underarms and parts of my shoulder. A couple days later I noticed that I started getting them on my inner thighs and behind my knees.

      A week in I did my second treatment and now that my upper arms and thighs have started to settle (first they were red spots, then they became red rashes, then they started to turn a duller brown and then I noticed dry patches of skin), I've started getting new spots. These new spots are just as big (and concentrated) as the early ones, and now they've started on the rest of my thighs, my calves and in the last couple days I've started noticing on my stomach as well.

      I'm thinking that this is just the normal process, but wanted to confirm with you. Is it weird that the spots and rashes were so concentrated on certain areas, but once they started clearing up, other parts started to get agitated? Or is this just part of the annoying process of Scabies?

      Also I have a theory that sweat helps to flush out these annoying particles... My initial agitation were concentrated on my sweatiest parts (my underarms, my inner thighs) and they have since seemed to be healing the fastest (relatively speaking of course. Two weeks in they still look gross). Any thoughts if I should start doing some vigorous cardio to sweat these scabies out? I stopped going to the gym because I was worried about irritating the itch, but maybe that's the way to flush them out. Any thoughts?

      Thanks for taking the time to read my comment.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Keri - Definitely talk to your doctor about all of these reactions you are having to the scabies and/or treatment. You may want to try Ivermectin, orally, rather than the perm. again because your skin/immune system is so sensitive.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Hi rojimmy,

      This all happened to our kids (and us) too. You should have all treated at the same time, even if you are not showing symptoms. But since you didn't, just make sure you are not in close skin-to-skin contact with your son or with his bedding, clothing, etc. until you know he is cured. Sometimes one treatment is actually enough, although if it comes back again, it will most likely be because there were eggs in his skin and they hatched so the whole cycle started again. Ask the doctor about using ivermectin, orally, for the second treatment. I am not familiar with Natursil, but the phrase "symptomatic relief" concerns me. I wouldn't waste my time or money. For the itching, we used an anti-histamine. It's worse at night for most people, so he can use one that knocks you out so he can get some sleep. But again, check with a doctor when making this decision.

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      Samoa6 4 years ago from San Diego

      I Hate Scabies,

      This all sounds "normal," i.e., that's exactly what happened to us, with bumps popping up in previously unaffected places. No idea about the sweat hypothesis, although it seems logical that if you are sweating, you are clearing out the skin, so give it a go, especially since it seems to be working for you. Sweating may aggravate the itching as well though.

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      rojimmy 4 years ago

      I have a few more questions:

      A treatment has been done on my 10 year old son. Me and my wife have not treated and do not seem to be infected still but I am paranoid that they will show up any day now. Hope not. anyway.... I realize that in theory all the bugs should be dead...but who knows right? Should I be changing his bed-sheet nightly? Limit where he sits in the living room? I have been putting sheets over the cushions in the living room...should I have him just sit on those? Can I allow him to go to the public pool? Or do I wait ?

      If me or Mom were to be infected would we not have seen some activity by now?

    • profile image

      rojimmy 4 years ago

      also I was curious...my son now has liquid filled bumps on his fingers we HAVE treated these. He wants to cover them in bandaids because he does not like to look at it. Should they be left open to dry or is it ok to have them covered up? Also should I be putting something on them daily? we HAVE been putting on some tea tree oil.

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      ScabiegirlI 4 years ago

      Hi i am wondering if someone can help me. I am reading and reading non stop for like two months. I did every time possible like 10x. I did permethirn several times head and scalp. I did ivermetin at least 5 times. My apt is cleaner than an hospital. I have no pets, no bf and see my friends not very often. So I didn't get this sexually. It was from a hotel that is my guess. Anyway crawling and pinpricks after treatment was worst than before treatment. And now after 2 months I started treatment is much better but I still feel crawling and little pinpricks. And then I start scratching the area( maybe I am going crazy) I am so tired some exhausted. I separated myself from the world. I am feeling depressed and lost 7 or 8 pounds already. Why do I still feel crawlings an pinpricks and why when I do perm or ivermectin these symptoms seems to go away for few days and then come back. I wash hot dry hot use borax and soap. I also steam and iron my clothing and shoes. Everything is sprayed with lice spray. I put alcohol and lysol in everything. I have no bumps anymore. And I can sleep at night but then when I wake up and during the day here it comes crawling and pinpricks. I started with two bites under arm, two burrow on by back and bites on my face and back on my hairline on my neck. I am scared for this To grow again in me. I have done it all it is impossible to be an fringe station I left my place for 10 days and now I am leaving my place for 7 days again. I still feel crawling same areas feet, upper leg, vagina sometimes. Under arm. Hair. Nose and around my mouth. I don't know what to thing. I read a lot some say crawling and pinprick can last months as a post scabies. Some say is active. But I have no burrow or my body is not showing symptoms. If I go like this to the derm he will think I am crazy. I am extremely sad idk

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      Samoa6 4 years ago from San Diego

      rojimmy,

      if you've already done the treatment twice, one week apart, then i would assume he is cured and just having the permethrin reaction everyone is describing. no need to clean sheets every night or limit where he sits. and it should be ok to go to the public pool, so long as he is comfortable with people seeing the rashes - he could just say he got poison oak until everything clears up if he is afraid of how people will respond. it's not exactly fun telling people you have/had scabies. then, just keep an eye on it and all should let up after a while, like i've described in the article and comments above. if you are still in the middle of treatments, then i would behave as though he still had scabies and was contagious, i.e., no skin-to-skin contact, and yes, i believe we cleaned the sheets everyday during that week, but that may have been overkill. i would also limit contact with other kids and their clothing/towels, but going to the pool should be fine if he is careful. if things do not appear to be getting better over the course of the next month, i would talk to your doctor about the possibility that the perm. didn't work, and then maybe try ivermectin (orally) or something different. we just used anti-histamine to calm the itch at night while waiting for the rashes to clear up, and on my kids we used a 1% hydrocortisone cream on rashes that were very bad, but we only had to do that once a day for two days. again, talk to a doctor about your options there - you don't want to do anything that will further aggravate his skin.

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      Samoa6 4 years ago from San Diego

      rojimmy,

      sorry, i missed a couple of your questions there. first, you can have scabies and not show symptoms for up to six weeks or so, so while it seems likely you would be showing something by now if you had it, it is possible you could have gotten it and just not know it yet. just be on the lookout for anything strange, i.e., itching, bumps or crawling sensation. hopefully you're fine though. also, in treating your son's skin, people say tea tree oil is very effective, but then i would probably not cover the bumps up after that because they will heal faster in open air. just an opinion though.

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      Samoa6 4 years ago from San Diego

      Scabiegirll,

      Have you checked your home for bird or rodent mites? It seems incredibly unlikely that you would still have scabies after all those treatments, as long as you were covering everywhere adequately and doing two treatments one week apart, as described in the article above. It is true that some people do still get the bumps and what appear to be tracks or burrows after treatment, even if the treatment was successful, but in your case, with the crawling and pinprick sensations a couple of months after treatment, I am not sure. If your home is infested with bird or rodent mites, it can seem similar to scabies, i.e, the crawling and pinprick biting sensations. But this should stop when you sleep in a different house, as long as you did not carry any with you on your clothing. So the first thing I would do is try to rule that out, i.e., look on your window sills, doorways, air vents, electric sockets and any other entryways into your house and see if you can see what looks like dust at first, but if you watch for a while, it will be crawling. if you find anything, bird/rodent mites could be your problem. Follow the link that comes just at the bottom of the article above that goes to "Mites that bite humans . . . " Also, pay attention to whether you feel anything when you sleep or work somewhere other than your normal places, like maybe a hotel room or a family member's house. If you are not feeling anything there, but only at your house or place of work, then one of those places may be infested. If bird/rodent mites do not seem to be it, then I would guess you either never fully got rid of the scabies, or you are being reinfested somehow. Pay attention to the people you are coming into contact with, and even places you frequent. And then, there is always the possibility that you are actually cured but your immune system is a bit overstimulated from the mites and then all of the treatments you did, in which case you would have to talk to a dermatologist about ways you can calm such an immune response.

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      rojimmy 4 years ago

      once again thanks Samoa for all advice. So we have done one treatment on my son last Mon. June 11. He got all red and bumpy but that is subsiding and of course we are hoping all are dead. Wondering if I should do the second treatment this coming Mon. as suggested? If no new outbreaks have occurred in this time period should I bother doing the perm again? It is just SO obtrusive and I'd rather not have to apply it to him again and deal with the aftershock of the damn drug. Everything on his body seems to be healing pretty good he still has poison oak type bumps on his fingers which he likes to keep covered in band-aids because he hates how they look.

      Me and mom are still unaffected although I am scrutinizing every little prick I feel on my body (and I DO feel them) I don't think they are psychosomatic either they ARE happening but so far have not developed into scabies. Nor is there any itching or other symptoms at night thankfully.

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      Moses4 4 years ago

      http://www.cdph.ca.gov/pubsforms/Guidelines/Docume...

      Something I found that I thought was interesting. It's about containing and preventing scabies in a long- term care facility.

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      Moses4 4 years ago

      Oh my holy cow, guys! We're not cured after all. Just knew my life was changing back to the better, and even felt safe enough to go to church on this past Sunday. Monday morning came and my daughter was itchy. Her rash spread quickly, I saw burrows and bumps, and her face looked slapped again, and she never actually had stopped scratching her head. Since she has to use eurax instead of perm- allergic- and it says boldly not to use above the neck, I hadn't. Later research tells me it's also used for head lice, so poo on that! Anyway, I spot treated her new places with her eurax because it is also for itchy skin problems like eczema, so it won't hurt her. Tuesday, she was an itchy mess again and I was itching in a couple of spots. Here we go again. Got my OB's office to call me in some more perm for dh and me, and picked up her next tube of cream and tally ho! Cleaned like mad. Her cream is used 2 nights in a row (bathe before first trtmt) then don't bathe for 48 hrs after the second dose. So it's time tonight to bathe her. AND this morning her whole body looks good except her left hand. It's covered in new bites and burrows. I'm thinking we probably washed her hands too many times without reapplying and this is my fault. I know that for scabies, you're not supposed to retreat so soon, but eczema patients and rosacea patients treat 3-4 times a day with this stuff. So I'm gonna bathe her and start another treatment immediately. And keep praying as I clean that God would bless the work of my hands and grant us freedom from this disease.

      I found out thru my many hours of research that the eggs in our skin could hatch any time in 10 days. Hers did at the 10 days mark. We've been assuming the 3-7 days, but it can be longer. I also read, I think in the long-term care report, that affected people's bedding and clothing, etc., should be cleaned like we have been for 7 days after the last scabies bump shows up. I thought that was interesting because most of us don't know the difference between a real bite and the post syndrome.

      Something else, they might live in your creams. We have eucerin cream in a jar/ tub, and a medicated cream from the dr also in a tub, where you dip fingers in and rub it on. One site said to put those creams away for 7 days just in case. I'm gonna try it. I'd rather deal with scars than be contaminated when my baby comes next month.

      Thanks for the support and a place to commiserate.

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      Scabiegirl 4 years ago

      Hey Samoa thank you for being so helpful. I left my place for a period of 15 days and now I am gone for 7 days. I did permethrin everywhere on my body many times. And I did ivermectin like 6 times or more in combination with permethrin. This is not bird mites or other kind as I am out of my house and still feel the odd crawling and pinprick. Although is much less than when I started, I am like worried about this. I have read do many forums. Some say I am still infested. Some other say one would still feel crawling ( nerves healing from chemicals) and pinpricks ( also nerves) for about 3 months.

      I did my last permetrhin treatment last Friday. I treat and over treat for two months but these symptoms never go away. And I am so scared of stop doing it. Bc I am traumatized that they will be back again and I don't know if emotionally I will be able to deal with this. I am single no bf no animal and not much contact with anyone so I really don't know why some people seem to heal faster and others suffer with post symptoms for such a long time. Once a guy helped me out he said bc he would feel pinpricks and crawling he kept on treating and treating with eveything that is in the market, even the craziest treatments until he found a derm that told him that these symptoms can last months so he waited until crawling and pinprick stopped and it did stop only until the third month without any treatment. He told me that it is very hard for the mind to wait such a long time but that I need to be strong and wait. It is hard. Beyond anything I have ever face in this life. I don't wish this to anyone. And I am very sorry for those who have to deal this with children and a whole family. I hop someday I can come here and say I am cured and that it was just post scabies. I will surely write about everything I did. Maybe it is helpful. God bless you all of you.

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      Samoa6 4 years ago from San Diego

      Hi Scabiegirl,

      Definitely give the medication a rest and wait it out. My family continued to experience symptoms for about 3 months too, but then it finally stopped. Try tea tree oil to soothe your skin in the meanwhile, some who have commented on here swear by it.

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      Samoa6 4 years ago from San Diego

      hi rojimmy,

      sometimes one treatment is enough, but the second is just a follow up in case there were any eggs left, since no medication kills the eggs. it would be very unfortunate to do the treatment only once and then have to go through the whole thing again because eggs hatched and started the cycle again. i guess that's a chance you'll have to decide to take or not with your son. if you are in fact feeling pin prick sensations, you should definitely pay attention to them because that is sometimes all a person will feel. there is nothing that "develops" into scabies. you either have them or you don't. it's just that some people react with itching, others feel crawling, others just pin prick sensations, etc. sometimes people don't know they have scabies until weeks after they've been infested. so make sure you don't have it and are not going to re-infest your son/family.

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      Brandey 4 years ago

      Thanks for the info. My boyfriend and I were dying from the itch. Unfortunately we have no health insurance and the health dept will not give another tube of cream for a second dose nor will they treat my children bc they have no symptoms. Scabies has already cost us about $1000 as I had to go to the ER after applying the cream bc of a severe allergic reaction. I begged to be handcuffed and put in a padded room. The doctor diagnosed me with itching and sent me on my way. Anyway fingers crossed that they are gone for good! Again thanks!

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      Samoa6 4 years ago from San Diego

      Hi Brandey,

      I am sorry to hear of your predicament. I hope you are cured, but if not, you may end up having to just pay whichever doctor you can get to prescribe the oral medication, Ivermectin/Stromectol. Hopefully that would circumvent the allergic reaction you've had to the permethrin. Also, in the meanwhile, you may want to try tea tree oil, since some swear by it. It's also expensive though.

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      Moses4 4 years ago

      We went to my daughter's dermatologist who looked us over, read my list of cleaning that I spend 12-14 hours on per day, and apologized and said that it looks like he diagnosed us wrong. He said it looks more like an inflammatory skin condition we share. Since my husband never got symptoms to speak of, and we did 6 treatments of permethrin, and my daughter treated with Eurax weekly, then daily for the past week. Eurax is not awful for the skin like perm. So we got new cream from him called Cloderm, and used it tonight. Hopefully, there will be some relief after we've used it for a few days. Thank you all for letting us come on here and get advice. Good luck to all of you. I'm going to try to relax these last couple weeks before our second daughter is born, and stay cool. Thanks again.

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      Samoa6 4 years ago from San Diego

      Good luck Moses4 - Thank you for sharing your story with us. Stop back in once you are (hopefully) experiencing relief just to let other folks know, in case this information is helpful to someone trying to figure out if they have scabies or not.

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      4 years ago

      Just wanted to update and let everyone know my hubby is SCABIES FREE! The TEA TREE OIL works wonders. Plus, we used Naturasil. He has been scabies free for over a month. No more new bumps or anything. He did use the Permethrin cream and it did not seem to work. As a matter of fact, he used it twice. Well, we decided to try a natural method Tea Tree Oil and then we bought Naturasil. Like I said, he is SCABIES FREE! You can purchase tea Tree Oil at Wal-Mart. He used it washing his clothes in it and he rubbed it where the scabies was and they dried up and went away. We never caught the scabies from him. He has had NO NEW BUMPS OR ITCHING AT ALL!

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      Samoa6 4 years ago from San Diego

      Great news, P. Thanks for sharing!

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      4 years ago

      Hi Samoa6,

      Just wanted to thank you for the incredibly informative post.

      I contracted scabies at the end of February and began displaying symptoms at the end of March. First symptoms for me was intense leg itching after a hot shower, which subsided thereafter. I thought my apartment complex had possibly just changed to a diff. type of water, but started taking colder showers to alleviate symptoms.

      By mid-April I was itching a lot more around the clock, a bit worse at night and even with the colder showers. Then a rather atypical symptom appeared-- dry skin on the shaft and head of my penis. At one point after a long day I noticed what was almost looked like a scab on my penis, which eventually healed a few days after I picked it off (altho i knew I should technically not pick, I was distressed and pretty horrified). I was itching pretty badly on my arms, inner thighs and groin, especially at night and noticed spots on the head of my penis. Panicked, I rushed to student health the next day thinking it was herpes. The doctor observed, told me it wasn't herpes and was probably just adult onset eczema (what?!) and that I should relax, change soap products and get a good moisturizer. I believed him.

      I did all of those things, which provided me with some relief in May, including a hydrocortison cream. Using all of these things, I was still itching all day but the creams made it pretty manageable, and i assumed that this was just what my new life with eczema was going to be like. Life went on.

      I returned home after graduation in late May and my mom (a pediatrician) prescribed me some steroid cream for what I thought was eczema. By mid-June the itching was so severe that I was no longer able to sleep without applying steroid cream over most of my body! I ran out of the small tube that my mom had provided me with quickly and asked for some more which may have set off alarms. She observed the way I was itching, asked to look at the area I was scratching right at that moment and immediately diagnosed scabies, confirmed by looking at the webbing between my fingers.

      I was in shock, especially given the diagnosis of the doctor I had received almost 2 months before (which I guess goes to show you that you cannot always trust their diagnoses). I did my first permethrin 5% treatment last Wednesday, the day after she diagnosed me by complete change. I had been scratching my scalp for the last few weeks pretty badly while running, so I included my face and scalp even though my permethrin specified from the neck down (thank you for justifying what I suspected as scabies on my scalp). Decontaminated environment, etc.

      It's now been a week and I did my second permethrin full body (face and scalp included) treatment last night. The amount of relief that I have is unbelievable in such a short time span. One weird thing is that since applying permethrin, I have been experiencing a periodic mild burning sensation on my scrotum. I'm also still itching a bit, but it is very mild already even without me using steroid cream... or even moisturizer! I'm so happy that this nightmare looks like it might finally be coming to an end after 4 months of escalating suffering.

      One worry of mine: no one else in my family did the permethrin treatments, even though my mom is a physician and I'm sure understands the risks. We are not a very affectionate family, but I did hug at least one of them in late May. I also hugged my mom briefly last night prior to applying my 2nd perm treatment. I'm leaving the house tomorrow and will only be here for a few days late next week before departing again for 3 weeks. Should I be worried for my family members?

      Thanks again for all of your insight. As of yet for me no substantial post-scabies syndrome symptoms *fingers crossed* besides this mild burning sensation, so I guess we'll see. Hopefully the scourge is finally over!

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      Samoa6 4 years ago from San Diego

      Hi M,

      So glad to hear that your mother recognized your symptoms and diagnosed you accurately. I'm sure the burning will let up, but it does seem to take some time for the body to recover from permethrin. If you don't mind, could you post here again once the burning has subsided so that others experiencing this post-scabies symptom will have a better idea of what to expect? We didn't have burning, but we did have itchy, bumpy rashes that lasted for several months.

      No, I don't think you have to worry for your family - it is certainly possible, but highly unlikely, that a mite would have fallen off of you and onto a couch or something, and then been picked up by someone else sitting there, or that one could have traveled from your body to someone else's during a brief hug. It seems more likely that you would have infested someone you were sleeping with or caring for, someone with whom you may have had more often or prolonged skin-to-skin contact. It is good, though, that your mother knows what is going on so that if something funny does show up, she will know what it is and how to get rid of it promptly.

      Thanks again for your note, and please check back in to let us know how long the burning sensation takes to subside. Best wishes.

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      4 years ago

      Hi Samoa6,

      Will checkin and let everyone know about the burning, it comes and goes and was most severe immediately upon application the first time and a bit less so the second time.

      And thank you for the note on my family. I've been isolating my towels, laundry loads, etc. so hope that will be enough. The first 2 days after my first permethrin treatment were pretty terrible (itching intensified, etc.) but since about day 4 and so far after the 2nd I'm feeling pretty good. Will continue to look out for post-scabies syndrome symptoms, though, as it affects everyone differently it seems.

      It's crazy how often this can get misdiagnosed, though. I'm just really lucky that my mother is a medical professional and literally was able to provide in-house diagnosis and immediately call in a prescription. I hear that waits to see dermatologists are pretty ridiculous, and as this just gets worse with time rather than better, I'd recommend that people try to see their primary care doctors or a pediatrician if possible (the latter I suspect, like my mom, have more experience with this as they deal with teenagers and day care cases more often). Those can be scheduled more readily and provide you with relief sooner.

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      ClaraAUS 4 years ago

      Hi thank you for you post it has been a helpful resource. Both my sister and I have been battling scabies infestation and post scabies syndrome. Both my sister and our families (we live in different homes) have treated ourselves with Lyclear Scabies treatment. We have followed the instructions and have done 2 treatments for all family members we also followed all instructions related to cleaning bed linen etc. for the whole family.

      We completed our second treatment 6 weeks ago all family members don’t have the ongoing symptoms that both my sister and I have. I had a bad week of intense itching and breakouts of horrible sore bumps all over my body after the 1st week of the second treatment, then all seems to subside and I didn’t have the feeling of itching all over and the feeling of something crawling all over my body. However this week it has slowly started to creep back the something crawling feeling and the itch especially on the arms, bottom and breasts. My husband and kids don’t have any itching at all. My sister is exactly the same as me, her husband and kids have no itching however my sister has horrible new bumps all over her body.

      Both my sister and I have tried to work out how did we get scabies, and that we have the same horrible symptoms. Both myself and my sister prior to the horrible unbearable itching commenced which was about 8 weeks ago we both had conducted a spring clean of our parents garage where we picked up very old pieces of clothing (40 years old) boxes that haven’t been open before. Following this spring clean we both had the horrible symptoms. Is it possible to catch scabies this way or is it by human contact. We are both so worried that we still have scabies and that we may be re-infested. Do you think it would be best to conduct another treatment for ourselves and our families even though they don’t have any symptoms?

      Is this scabies or could it be some other mite that my sister and I have collected during our spring cleaning process. As I said family member don’t have any symptoms.

      I appreciate any thought on this, thank you so very much.

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      Samoa6 4 years ago from San Diego

      Hi ClaraAUS,

      If you covered yourselves thoroughly, meaning even your head, under your hair, etc., then my bet would be that you are cured and probably experiencing the same post scabies reaction that everyone is describing. You cannot get scabies from cleaning out old clothes etc. because they cannot live without being on a host (a person) for longer than ~72 hours. You could have been bitten by other types of bird/rodent mites while you were in the garage, if teh garage was infested, but those sensations would have let up once you left the garage and showered. (well, the itching might have lasted a while, but you would not continue to see anything new). If I was you, I might go back to the doctor and ask for the oral medication ivermectin, and take it just as a backup measure. I don't think I would use permethrin again, as I suspect this may be causing some of the reaction you are experiencing, so over-using it may just make it worse. In the meanwhile, ask your doctor if you can take an anti-histamine to calm your reaction. Then, watch over the next few weeks to see if your symptoms are dying down. They most likely will, if it is scabies and you treated yourselves adequately. If they continue to be just as often/severe, then you may have been reinfested (assuming it was scabies to begin with). I can't imagine that you would have bird or rodent mites simultaneously at both of your houses - these mites don't live on you so if they were indeed the problem, it would be more likely that you would both feel crawling/biting in one location, perhaps in whichever home or work place the nest they were coming from was located, rather than at both homes all of the time. I wouldn't worry about your families so long as you treated them when you treated yourselves. Concerning where you might have gotten it from, it really could be anywhere, but likely possibilities are from maybe someone you work with or care for and therefore touch often, or even small children that you pick up and hold. Possibly a public gym or other place where you are touching equipment etc. that other people touch as well. Or, as in our case, one of your children may have picked it up from being held, and then brought it home showing no symptoms. Not everyone reacts the same, so you don't always know you have it. Also, you may want to try using tea tree oil, as at least one person on here has attested to its effectiveness after using permethrin. Not sure if it clears up a reaction the permethrin is causing, or kills the mites that may have survived the permethrin treatment, I tend to think the former, but in any case, it may provide some relief.

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      4 years ago

      Just as a quick update-- the burning has since subsided and is no longer much of an issue. As I'm approaching the one week mark after the last permethrin treatment, the symptoms you described have begun to crop up. A pretty bad rash much worse than any of the bumps that I had prior to treatment. They do not itch but feel pretty uncomfortable. It started off pretty small about 24 hrs after 2nd perm treatment on inner thigh and despite times where it looked like it was getting better has since spread. I woke up today and broke into tears. Im pretty sure this is not scabies as it does not have the feel of those terrible mites but I thought the nightmare was over! :(

      Would benadrily be a good idea? I was so confident that when I left home for this trip I've been on since Friday I left my steroid cream. I don't need it for itching but am desperate for relief from this rash, although I know that time may simply be the best answer. Any and all help would be greatly appreciated!

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      Samoa6 4 years ago from San Diego

      M - some people say tea tree oil soothes these after-effects, almost over night as described by one person who commented on this article a while back. You could also try benadryl or another anti-histamine, but as I always tell people when it comes to meds, check with a doctor to be safe. other than that, just wait it out. If you are like my family was, it'll calm down a bit over the next few weeks.

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      rojimmy 4 years ago

      Checking in with update.....concerns Not sure whats happening but seemingly my son is cured? We did one perm treatment 2 weeks ago and so far nothing new has been noticed. How long would it take for something new to show up if he still was infested? How could he possibly gotten away with being cured so quickly? No eggs laid or hatched? Is this possible? Me and my wife have still shown no signs of being infected with this.

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      Samoa6 4 years ago from San Diego

      Sounds like great news, rojimmy. Yes, sometimes one treatment is enough to cure. I would think that if there were any eggs that hatched/survived after your son's treatment, he would probably begin experiencing the itching etc. again within a week or so. So just keep an eye on it. And remember, if something else does crop up, i.e., a new rash, that is sometimes only a post scabies reaction, so it would not necessarily be reason for alarm. It's just if the symptoms are persistent, and constant, particularly after a month or so following treatment, that I would become worried again.

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      melisa 4 years ago

      Hi, im 39 weeks pregnant and wS diagnosed with scabies about a month ago.. no one else in my house has it! Ive been going crazy cleaning everything, and ive done about 5 treatments of the cream i was perscribed with and nothing has seemed to work! Im up all night itching and noticing new bumps! My baby is gonna be here soon and i dont know what to do anymore! Why am i the only one who has this? Isnt this supposed to be contagious??? Could i have been misdiagnosed with something else???

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      Samoa6 4 years ago from San Diego

      Hi Melissa,

      Yes scabies is contagious and sure, you may have been misdiagnosed, it's difficult to tell. It is not unusual, however, that no one else in your house has symptoms because scabies is most easily passed by skin-to-skin contact, so minimizing this coupled with cleaning that you are doing will help prevent it from being spread. You can always go to a second dermatologist to confirm your diagnosis, however if you do have scabies, and have read all of the information above, then you know that the treatment cream seems to have side effects, and that using it more than prescribed may just be making matters worse. In other words, scabies may have been causing the itching etc. originally, but now the cream may be doing it. You need to be sure you've covered yourself adequately, twice, one week apart, and then just wait it out until the symptoms let up. Some people say tea tree oil is helpful during this waiting period. We used an anti-histamine, at least at night, so we could get some sleep. If symptoms do not begin to lessen over the next few weeks, then you may still be infested, in which case you may want to talk to your doctor about the oral medication, since the cream causes so many problems. I am not sure if the oral meds are compatible i.e. safe when pregnant though. Your doctor will know this.

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      melisa 4 years ago

      Thank u for the advice! I thought i should that my fiance and my son who sometimes sleeps in the same bed as us doesnt have this problem either.. maybe i am making it worse.. my pc just looked at my skin and said it was scabies she never scraped it or anything.. i do have eczema, ive always had really bad skin.. maybe this is my body having an allergic reaction to the cream they gave me?

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      Samoa6 4 years ago from San Diego

      It may very well be - one other thing though - I am not sure where you might have picked up scabies, but you may want to keep close watch on your son - we got it from our son, who I was breastfeeding at the time. In retrospect, I realized he had a dotted rash on the sole of his foot that came and went within 48 hours, and the skin on his scrotum at one point became very scaley and peeled off. Strange, and certainly not the typical symptoms you read about, but that is what it was - scabies. So just make sure he doesn't have anything strange (mild as it may seem) on him, because if you did not treat everyone in your house, he may re-infest you all. Kids often pick it up at daycare or really anywhere someone is picking them up or holding them a lot.

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      ClaraAUS 4 years ago

      Hi Samoa6

      I just wanted to provide you with an update my sister and I visited a dermatologist he looked at both of us and said that we may have had scabies or some sort of bird mite infestation. He has prescribed ivermectin to take. Just wanted to know how safe is this drug and will it be effective or is the same as the Lyclear.

      Thanks so much

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      Samoa6 4 years ago from San Diego

      Hi ClaraAUS,

      Glad your doctor is considering all the options. Certainly, he/she would know more about ivermectin than I would, but from everything I have read, it is effective in killing scabies and is often coupled with a lotion or cream, which you've already used. The one concern with ivermectin is that it can have a negative effect on your liver, but I think this is only of concern if you already have liver issues, so I'm sure the doctor took your personal medical history into account before prescribing it. I think after using both treatments, you should give it a few weeks before doing anything else. Like I and so many others have experienced, the itching etc. gets worse after treatment before it gets better. The symptoms should begin to let up over the next few weeks, assuming you just took the ivermectin. In the meanwhile, just to rule it out, you may want to take a look around your window sills, doorways, air vents and electrical sockets to see if you see something that looks like dust . . . crawling. You may find bird/rodent mites, in which case none of your medications will solve the problem. You have to get rid of the bird or rodent nest(s). There is a link to a more extensive article on this above, just after the article on scabies.

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      sophster 4 years ago

      thanks for this information! I've had to treat myself along with my boyfriend and 2 month old for scabies using the permethrin cream a couple of times. I still feel itchy although my boyfriend doesn't and my 2 month old seems to have cleared up with the rashes on her skin. My only question is I still get this pimply looking bumps. I pop them and they burst with a water liquid, did this happen to you and your family after treatment? I'm so paranoid but utterly exhausted with having to deal with these scabies. It's extremely difficult with a 2 month old. She also gets these on her hands and feet as I do. Do you think we are still infected?

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      Samoa6 4 years ago from San Diego

      If you covered yourselves adequately, you are probably just experiencing the same thing we did, which lasted for ~3 months and finally let up. Seems to be a reaction to the permethrin, but I am not sure. In any case, I would not continue to use the cream - it probably already did its job - just wait it out for a few weeks and your symptoms should begin to stop appearing.

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      sabbir ahmed 4 years ago

      pls give some image of using permethrin cream

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      Samoa6 4 years ago from San Diego

      sabbir ahmed - i don't have one. just talk to your doctor and read the instructions on the label. you can ask your doctor to demonstrate if you need to so you know how much to put on.

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      4 years ago

      To those who are using Tea Tree Oil, my hubby put the oil on a cotton ball or cloth and rubbed it on his body concentrated. Within a couple of days, he saw tremendous results. We also purchased the Naturasil set that you spray the lviing quarters. But I can vouch for the TEa Tree oil because he is still scabies free and its been since May. He washed his clothes in Tea Tree Oil and he washed with the sulfur/lavendar soap from Naturasil. He applied the TTO about three times a day. it did dry his skin out but you can mix it with olive oil and rub it on. You ahve to be just as persistent as teh scabies are to get rid of them. It takes washing your clothes in HOT water. And he also like I said put the TTO in with his clothes while washing. We used the Benzarid spray that came in teh packet with teh naturasil and sprayed his bed and living quarters down. I'm telling you it works. He quit itching after about a week after the TTO treatments. I mean my hubby put that stuff on several to ooodles of times per day. He smelt really strong but it does work.He did have to throw away some old quilts and shoes to help prevent more exposure. You can place your clothes in a tightly enclosed plastic bag for a week to help kill them. They cannot live off the human body for more than 3 days. He no longer has bumps or even itching. His lasted a month. But I am telling you TTO and naturasil works.

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      Samoa6 4 years ago from San Diego

      Thanks so much for your input, P. I have been suggesting tea tree oil to others too after reading your comments. Hopefully it will provide relief for some.

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      sushiomelette 4 years ago

      Back again for an update...

      It has been 4 weeks since my initial treatment of permethrin cream and 3 weeks since the second application and my skin condition has been tumultuous to say the least. Since I have eczema, I was prescribed Elidel cream to suppress it and when I tried it I had an allergic reaction and had to go to the ER! It was awful! Not knowing that it was the cause, I tried it again and broke out in hives (no anaphylactic shock or anything like that, but REALLY itchy). After the ER, the doc perscribed some zantac and prednisone for 5 days. My skin felt great after that, but then I used the Elidel again and got another reaction. So this past weekend my skin has been feeling really itchy after getting off the steroids. My eczema flared up and I got eczema patches on my bra line, inner elbow, back, shoulders, and neck and ears. But I also noticed I had a huge scabies-like rash on my stomach and it spread pretty quickly. I was like, nooooooooooo! not again!

      This whole time, my roommate nor my boyfriend caught scabies so I think I'm cured but I don't know for sure because my skin feels like hell. I started a prednisone pack this week to calm the itchiness and rash, but I feel like it might come back. Needless to say I've been taking a bunch of antihistamines to stop feeling itchy.

      I got an appointment to see the dermatologist's nurse practitioner next week but I think I might see my family doc again this week to see if they can do a skin scraping to see if I still have scabies. This past Sunday I took a tea tree oil bath and applied tea tree oil to my skin but that burned! So I mixed equal parts tea tree oil with olive oil and it felt a bit better. I can feel the tea tree oil seep into my skin and relax my muscles but it dries the heck out of your skin so I had to put some vaseline on it. I'm on the 4th day of the prednisone pack and my skin has been peeling like mad! It hurts to stretch and when I scratch I get a healthy dose of dead skin under my nails. It's awful, terrible and it's driving me mad. I just want my old skin back. How did you get through the day with the post scabies syndrome? Were your outbreaks isolated on certain areas of your body? And they would go away on their own?

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      Samoa6 4 years ago from San Diego

      Hi sushiomelette,

      I think your eczema/allergic reactions are causing you quite a bit more distress than we experienced. We had what looked like poison oak in multiple places for a few weeks after our second permethrin treatment. After that, one or two smaller rashes would pop up here or there, just randomly, for a couple more months. I didn't have trouble getting through the day though, or even sleeping at night so much at that point. It seems by adding so many things to your skin, i.e., permetrhin, elidel, tea tree oil, olive oil, plus all of the other medications you have been using, you might just be aggravating things. It certainly seems possible you are cured and just reacting to these various treatments, but if you think you are still infested, you can always ask your doctor if ivermectin would be suitable for you to try. It's an oral medication so it hopefully wouldn't aggravate your skin anymore. You might want to wait though, for a couple more weeks, just to see if your skin clears up eventually. The first month after our second permethrin treatment was definitely the worst. But it all cleared up, eventually, without using anything but the two original permethrin treatments.

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      sushiomelette 4 years ago

      Thanks for responding so quickly Samoa6. It's reassuring to hear that these symptoms might last intensely for a month after treatment and sparsely after. I think I will wait for another week or two before I go and see the doc and see if I can get tested for scabies and get ivermectin.

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      rc 4 years ago

      Hello, forgive me if this has been discussed but how long did it take for your family to show symptoms? I have had my start of itching about 3 almost 4 weeks ago and no one else in the house is showing signs. I have my 5yo and 2yo with no symptoms, also checked with the person I figured I would have gotten this from (since the kids have been out of school for quite some time) and he has no itching or anything. Doctor at the urgent care diagnosed me and I just couldnt believe in a house of 5 plus my bf I am the only one affected. Please help!!!

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      Samoa6 4 years ago from San Diego

      Hi rc,

      It took us only a week to begin to have symptoms, if we did indeed contract it the way we suspect, which was through my son at a birthday party. But it can take up to six weeks to show symptoms, and some people don't show particularly bad symptoms so may not realize they have it. I think the best thing to do is to treat everyone, including kids and boyfriend, at the same time, to avoid passing it back and forth. Just make sure with your doctor. Also, be aware that the treatment (if you are using permethrin) seems to bring out rashes that look very similar (even worse) than the scabies, so don't get too upset if this happens. You just have to wait it out after the second treatment - it might help to read some others' experiences above to know exactly what to expect and how to deal with it. Good luck.

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      rc 4 years ago

      Well I just left with a different diagnosis different doctor I am relieved but also still worried, if I have further symptoms I will use the naturasil products, I could not think of putting on a toxic rash inducing cream on my little ones. Hopefully doc number 2 is right.

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      topazz 4 years ago

      Since the treatment of permethrin, I've been experiencing swelling of my lips, my eyes, and dryness in my throat to the point where phlegm seems as if it's trapped there! (I KNOW it's gross!) Is this a normal side effect of the treatment? I haven't seen or read where these symptoms usually occur. Has anyone experienced the same or similar symptoms? If so, please share!

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      Samoa6 4 years ago from San Diego

      topazz - it sounds like you are having an allergic reaction to a very powerful drug, permetrhin. you might want to talk to your doctor before doing the second treatment with it. that did not happen to us, but a few other people have reported eyelid twitching and excessive itchiness after treatment. be very careful, especially since you say it is affecting your throat. talk to a doctor.

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      Itchyone 4 years ago

      I was diagnosed with scabies about 10 days after waking up one morning with what I thought was a rash or spider bites on the inside of my thigh. Over the next 10 days I continued to break out with the itchy bumps and I had visible burrows.

      Once diagnosed, I treated with Perm cream and so did my fiancé even though he has no symptoms. While we had the cream on, we bagged clothes and linens we didnt need for a while and put them in a storage area in the basement. We also cleaned the house from top to bottom and washed all clothing and linens we were using in hot water and Borax and dryed on hot.

      It seemed to get a bit better for two days after but then more rashes so we re-treated with Perm at day 3. And the cleaning and laundering continued.

      I re- treated with Perm at Day 10 (7 days after second Perm application) although my fiancé did not treat at that time. We have continued to diligently clean and launder, never wearing clothes or using towels, etc... More than once.

      My original rash is completely gone but I started breaking out with bumps again last week. I did notice that they itched initially, turned into fluid filled blisters, broke open and seemed to start healing right away. They didn't seem the same as before but I am paranoid. I have also had a lot of crawling and biting sensations which I never had before treatment. None of my new bumps have persisted or worsened and I have no burrows.

      Before finding you, we decided to re-treat because we were going on a camping trip with extended family and wanted to make sure we weren't contagious. We left home with the Perm cream on and were careful not to have close contact with anyone. We had our own tent and sprayed it down with Rid spray each morning and changed into clean clothes daily.

      No new bumps or itching so far at two days out.

      I was freaked out until I found this post and realized that a lot of this sounds like post-scabies. Thank you so much for being a voice of reason. Some of the sites out there on scabies are pretty horrifying and reading your story really eased my mind. Our wedding is two months away and I am so terrified these things will come back but I feel more hopeful now...

      Also, I did buy the Tea Tree oil and mixed it with witch hazel about 9 parts witch hazel to 1 part tea tree oil) and have been spritzing it on if I get itchy. It is very soothing and stops itching quickly.

      One question, do you think we should do one final treatment a week out from the last one since my fiancé didn't treat at the 10 day mark with me? Would rather be safe than sorry but don't want to overdo it more than we already have either.

      Thanks again and good luck to everyone posting here.

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      Gene 4 years ago

      Prmethrin?! This and other drigs are harsh for your skin. Killing scabies and suppresing the immune system is not the way to treat scabies. Look for Scabiesin, they have products for face, body and scalp . all natural.

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      Samoa6 4 years ago from San Diego

      Hi Itchyone,

      I would not treat anymore. I would wait it out for a couple of weeks to see if symptoms begin to let up. At that point you can reassess the situation to determine if the itching/crawling remains persistent, or if it is probably just post scabies or a reaction to the medication. If you are nervous about it, you can always talk to your doctor about using Ivermectin, the oral medication that probably won't irritate your skin so badly.

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      Samoa6 4 years ago from San Diego

      Hi ovante,

      Thanks for your comment. Do you have personal experience using these products? It would be helpful for readers to know if someone has actually used such all natural products and had a positive outcome. How do you use them? How long did it take to get rid of the scabies? Were there any other side effects? Or are you just trying to sell something here?

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      4 years ago

      Hi Samoa6,

      Just checking in with another update post-scabies. It has now been 3 weeks since my 2nd perm treatment and I can finally say with confidence that I'm scabies free. The weeks after 2nd perm were very stressful as itching persisted as well as a pretty severe rash (this one not itchy, but incredibly uncomfortable) on my scrotum and part of my inner thighs that made walking painful. The itching subsided rapidly after week 2 and I basically feel normal in that regard.

      For my rash, neither benadrily nor hydocortisone cream did the trick. I considered tea tree oil, but asked my mom and got a prescription for betamethasone dipropionate instead. I would highly recommend it to anyone struggling with a pretty bad post-scabies rash. The rash on my groin, which had brought me to tears just the night before after a day of walking, was virtually gone after 2 treatments in 24 hrs. Since then the rash has come and gone (pretty similar to what it sounds like you've experienced), and I've spot-applied the cream accordingly before it gets too bad. Only worry now is watching frequency of dosage as it is not recommended to use this cream for more than 2 weeks in the groin and I'm right at that mark.

      I also just wanted to thank you so much again for this post. After struggling with this disease for 4 months, your post gave me the confidence to wait it out post-treatment, in spite of itching and rash that persisted for a while post-treatment. Several times I was on the verge of applying yet another perm treatment out of fear (paranoia?), since post-scabies is a long road and can so closely mirror actual scabies, but held off after rereading your post for the millionth time. I'm sure now, especially as I continue to contend with this rash, that would have only made for a worse allergic reaction and would have perpetuated a cycle of me retreating and feeling like I was "never being cured."

      Thanks again,

      M

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      Samoa6 4 years ago from San Diego

      Hi M,

      That is fantastic news - thanks for taking the time to write now that you are cured - your post will provide many people with the information/comfort needed to get through the post-treatment period. I'm sure the word "relief" now has a different meaning to you, as it does to our family. :)

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      Tinker03 4 years ago

      I have been dealing with this now for 2+ months and have taken great strength from many articles that speak to the "post-scabies" syndrome. I am trying very hard to not get caught up in the psychological mind games that stem from fear and belief of reinfestation but, frankly, find that to be the most significant challenge. I am tired of walking along the street and noticing "shiny, happy people" and thinking "how come they don't have to deal with this and I do?" Sigh. (And then I think about cancer and other serious disease victims and give my head a shake.)

      I have had three perm doses and, after the most recent (two weeks ago) felt largely on the up-swing ... no new lesions although the current ones were running through what appeared to be a typical course (blister like pustules, no longer itching but still weeping). The stages have been largely predictable and have followed a flow based on the first appearance, second etc. Following the learnings from various posts, I have held tight on the knowledge that post-scabies syndrome meant working my way through these symptoms even though I am no longer carrying a live mite (still find it hard to say "infected").

      However, I have made a couple of observations that I would appreciate some comments on:

      1) The areas that have been "attacked" are predominantly (if not exclusively) those that I associate with "winter itch." Dry skin is a challenge for me in the winter and I chalked up my initial symptoms as being related. While I originally rebelled against scabies diagnosis (and notably cannot connect it to any individual), the symptoms are too strongly correlated. However, it remains that each marked area of concern is in one of my "winter dry skin" patches.

      2) I am allergic to dust mites / dust mite excrement. I have spent years dealing with the issue through immunotherapy and am the strongest advocate for such a process, having come out of debilitative allergies to a regular, normal life. Does this make my allergic reaction to the scabies mites and their deposits likely "stronger" than most people?

      3) Significant levels of exercise appear to be a trigger for an increased reaction post-Perma. Has anyone else experienced??

      4) My Perma packaging said, much like others, don't use on scalp and face. I did use on face but ignored scalp. I have an itch across bottom of scalp at back of hairline but am prone to itchy scalp anyways so have ignored. For those who have experienced scabies at scalp level, are the marks the same? eg -- I do not have the same blistering as other areas so, once again, I am assuming I am dealing with a different type of skin itch.

      5) Last, but no means least, even my initial infestation (shudder) has not fully healed, still weeps when I exercise, is sensitive to touch etc -- first visible symptoms 2+ months ago. Is that typical?? (Was about to say normal but realized none of this is normal. sigh.)

      Thanks for any help and comments ...

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      Rebecca 4 years ago

      Hi! I wantes to know if u could hel me with the scabies infestacion? Its been almost a month since i found out i got the scabies with my 3 yr. Old son. I use the permethrin cream for three days or so ans stopped and heard about the tea tree oil! Therefore my sons doctor prescribed some liquid medicine inc. With some cream for him. And today i took him with his doc. Again because i had seen he would still get itchy but her doc. Said he was fine n ive been,washing everyrhing too! On the other hand, im worried about me though? I still feel itchy on n off but i dont feel those rashes like before. But i do get some bumps on n off is this letting me

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      Rebecca 4 years ago

      Know that tbe scabies are gone? Or i might need to fo a seclnd treatment of tea tree oil? Or its just the symptons of that feeling of crawling on me?

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      Samoa6 4 years ago from San Diego

      Tinker03,

      I would suspect that your "winter itch" and dust mite allergies might both contribute to a stronger reaction than normal. The fact that the winter itch and scabies irritations are in the same places on your skin may simply reflect your immune response . . . . to both issues. I am not certain about this, but it seems once your skin is responding to something, that response might show up in various places that don't necessarily reflect only the specific places where mites are. Exercise causes you to sweat, and this of course will aggravate any itchy skin condition. I would just be sure to shower immediately afterward to prevent making the itching worse. Not sure which permethrin package you had, but ours clearly stated to treat scalp (under hair) and face but not to put it in eyes or nose. You might be fine not doing so, but if you symptoms continue (very persistently, not sporadically) after a month or so after your 2nd permetrhin treatment, it may be because you did not cover yourself adequately. Be careful though, using permethrin, because it is very strong, and as the article and many many comments above suggest, seems to cause its own set of reactions. It's normal to have some symptoms for a while after treatment (see the article above). If you are worried that you are not cured after treating twice (one week apart, with adequate coverage both times), you might want to ask your doctor about using Ivermectin, the oral medication, so as not to further irritate your skin. Good luck.

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      Tinker03 4 years ago

      Thanks very much for your speedy reply! My initial diagnosis was based on small bumps in about 7 places and one fairly significant active patch. Slowly, but surely, following treatment each area has gone through a spike in the "active" bumps, then a crusting. While no one area has completely healed yet, they are still weepy, I haven't had new patches likely since the initial treatment. For the first time two nights ago, however, I was woken up by the deep itch in an area very close to one very small patch that hadn't gone "active" and that I was hoping would just fade away. The next day it had the telltale line of bumps with the small black dot. Can a new burrow like that happen even if the mites are gone or does this mean reinfestation?? That's my current struggle as this expanded and now active patch looks potentially to be the largest one by far. The clear worry is that if I wait for another couple of weeks (or even a couple of days) to see if this is regular vs a spike I will have an even bigger problem to deal with. If this one follows the pattern of the others, it will be months before it goes away (if it does at all, sigh).

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      Samoa6 4 years ago from San Diego

      Tinker03 - It is hard for me to determine whether or not it is likely that you are still infested. When you treated, did you cover your entire body (see article above) or did you just spot treat? Spot treating is not good enough. Also, if you did not follow up with a second treatment one week (7 days) later, then there may have been some eggs that survived the treatment, hatched, and started the infestation over again. So if you did not treat yourself adequately, you probably can't rule out the possibility that you are still infested. On the other hand, the rashes after a successful treatment look pretty similar to the actual infestation itself (bumps and burrows), so you may just be reacting to the medication. If you are worried you might not have treated thoroughly enough, you can always start the whole process again and do it more thoroughly. Alternatively, you can go back to the doctor and ask if he/she thinks the oral meds (ivermectin/stromectol) might be better because they don't irritate your skin so much.

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      Bri Amber 4 years ago

      Anyone please respond ... I did the treatment with my girlfriend we did everything right and I still itch but she really doesn't but I also have sensitive skin what do you think? && also I sleep with her can that be how were still.getting.it even.though we treated ourselves?

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      Samoa6 4 years ago from San Diego

      Hi Bri Amber,

      If you both treated yourselves twice, one week apart, and cleaned your sheets etc. then you are probably just experiencing the same post scabies reaction everyone is talking about. You'll need to wait it out for a couple of weeks and see if the itching begins to subside. And yes, one of you might have picked it up somewhere else and then given it to the other via sleeping together - seems logical.

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      Samoa6 4 years ago from San Diego

      Rebecca - it's difficult to tell if you've covered yourselves adequately with the medication or are just experiencing the post scabies symptoms everyone describes in the above comments. I will tell you what I tell everyone - I would just wait it out for a couple of weeks to see if the itching subsides. If not, you may need to retreat. I have never read a permethrin label or talked to a doctor who says to use permethrin 3 days in a row, so you may have overdone it, which might make the itchiness worse than the actual scabies. Be careful with the medication, it is very powerful and seems to cause problems of its own.

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      Tinker03 4 years ago

      Thnks for comments ... I (and my partner) did a "full" treatment (vs spot) x2 .. we laundered everything, slept in different rooms for 48 hrs etc .. hard to imagine how we couldn't have caught everything.

      I'm 2 days post middle-of-night wake-up (post 2 weeks clean following treatment) and, fingers crossed, think it may have been just a "spurt" vs a continual issue (which would mean reinfestation). What I thought was going to be the worst of the active locations, touch wood, looks to be far less than that.

      Hanging tight to all of the postings re: post scabies ... will not re-treat but will monitor and re-post as things progress...

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      Samoa6 4 years ago from San Diego

      Tinker03 - Good luck, sounds like the familiar post scabies scenario (hopefully). Definitely check back in here once you are more certain it is gone - it gives everyone else hope. Thanks for your comments.

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      Samoa6 4 years ago from San Diego

      The following is a post that was sent by one reader to my email address. It may contain some helpful information concerning reactions to permethrin and/or other scabies medications used on the skin.

      Hi there, Samoa6, I have recently treated myself 3 times over a period of 6 weeks, I personally picked a lot of eggs out with a needle within burrows around my wrists and palms and tops of my hands and on my fingers. They made a rather loud popping noise when I squashed them yet they were very small. It also seems that scabies lay only one egg per burrow? I can only conclude that from what I've observed on myself. I have a lot of allergy bumps as a result of the scabies where you can see burrows and also where they haven't burrowed either. It maybe just my genetics that may make me prone to increases in my allergies experienced but not once have I read anywhere or anything about the level of moisture or PH levels of your skin, prior and after treatments caused by allergies or even the involvement of bacteria activation on skin, especially broken skin. The only reason why my itching still occurs after two and a half months and worse than ever before is because my skin is so dr y that you could take paint off a car with it, and unfortunately in that case an anti histamine does not stop environmental stimuli from creating itches in that instance, eg. rubbing of clothes that your wearing, jeans etc. temperature changes, most exsessively and uncomfortably, stretching of the skin, like if you were to bend over, your back stings quite bad, and showering. My allergies include rather decent sized papules on my hands and all around and including from my waistline where pressure contact occurs and on my buttocks and around and on my groin and scrotum and penis. I admit i'm not that hairy but using a topical cream on hairy areas where papules occur like your whole thigh regions makes for a very uncomfortable experience when wearing clothes throughout the day. Dryness of the skin does help to alleviate the progression of individual papules and they will start scabbing over once you start practicing washing yourself with an ANTI bacterial soap. But It's the strains of bacteria; staffylococcus bacteria, found in areas with the highest quantities of sweat glands that activate on broken skin causing papules, and rather the more destructive streptolcoccol bacteria which typically occupy low sweat regions that are activated when breaking of the skin occurs in large amounts due to lack of moisture in your skin, which can if not relieved with topical cream, can infect and reach the blood stream and cause impetigo and further bacterial infection can create osteo infections as well. I think it's really important to let people know that dry skin can and maybe very well be a result from the topical treatment and not scabies although typically I think everyone's different and genetically you are predisposed to react a certain way and which can be quite bad for some people, myself included. I did not realize that there were side effects using malathion at 5% here in New Zealand so thank you very much for your assistance and knowledge and I'm glad I onl y used it 3 times as a full head to toe treatment. If i'd known about possible side effects I would've gone with an oral treatment instead. I met death pretty much head on from osteomyelitis at the age of 7 and was put on extremely heavy and adult doses of anti biotics so I'm not worried about my liver lol. Thanks for reading. please post this If you so wish. There must be a lot of people suffering and blind in the dark losing sleep, losing the urge to live, not even just living with it. I get extremely upset when there is little I can do for my 2 year old niece and all I want to do is protect her and heal her. Your dedication and passion to helping others and participating in this forum is an inspiration to us all. Please Keep up the good work.

      Speak from passion and inquisition and heart, not experience!

      Peace

      If you want to see first hand what scabies can do to the psyche, watch black swan starring natalie portman. great movie although has no cooincidental intention.

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      Tinker03 4 years ago

      Thanks for the reply and pasted email info. I am convinced even more that my dry skin / dust mite allergy has likely exacerbated my repsonse and lengthened the patch recovery. About 4 weeks ago I did a ten day run of antibiotics as we attempted to rule out possibilities - I was worried about a staph infection at my initial site (which is by far the worst). That particular site has no itch at all currently except when the edges are touched and then it lasts for no more than a minute or two and is an annoyance rather than the deep, intense itch.

      I have taken the advice of others and rubbed all of the patches while in the shower in an attempt to exfoliate and get rid of the "contents" (except original patch given my concerns re: infection). That seems to have helped. I've just realized I am not using an anti-bacterial soap in the shower so will make a temporary switch.

      The burrow (?) that made its night time appearance 6 days ago has turned into almost nothing although a small black dot still exists. I did have a couple of hive-like spots in a previously unafffected area on my thigh which worried me immensely and sent my state of mind crashing, but they have disappeared. Outside of a small exczema flare up on my fingers from all the worry (no surprise), I've had no new serious itching for several days although still get the occasional random sensation.

      I will continue to keep a close eye on it and keep posting. I appreciate your comment that others need to find hope and am grateful for finding this site for the same reason. I firmly believe I am on the mend but am trying to keep myself prepared for any further post scabies reactions.

      Last note ... my partner has managed to stave off infection. We have been unable to trace where I may have picked this up. The only thing we can think of, although we appreciate it is not common, is that I picked it up from a hotel (I travel a fair bit for work). Our relationship is a very strong one but I can't help but feel that others in potentially less secure relationships would have further burden of an STD stigma / question mark to add to their worries.

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      Samoa6 4 years ago from San Diego

      Tinker03 - I agree - it seems most likely you would get it from someone you are in close contact with, so people in loosely defined relationships do probably have to watch out. But you could also get scabies from something as random as shared equipment at a gym, so it's definitely not like other STDs in that regard. Good luck to you. I look forward to hearing of your recovery shortly :)

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      Itchyone 4 years ago

      Just an update- it has been 8 days since last Perm treatment and so far, so good. I had several new itchy bumps for about the first 5 days after treatment. Each turned into a fluid filled blister that eventually broke open and dried up. I also battled the itchy/crawly sensations during that time and it was mostly at night. Despite the fact that I was very nervous, this site gave me the courage to stop my over-treatment cycle and I have had nothing in the way of new rash or itching/crawling for at least 3 days. In response to other posts, I began using tea tree oil after the last Perm treatment. At first i used it full strength all over by applying it with a rag as suggested. It is very drying so after a couple days, I diluted it in witch hazel (9 parts witch hazel to 1 part tea tree oil) and spritzed my entire body with it after showers and several more times a day. I did continue to dab full strength tea tree oil on any new bumps/blisters. It stopped the itchy/crawly sensations as soon as I put it on. I am very optimistic that this seems to be coming to an end. I will keep you posted. Thanks again for bringing some sanity back into my world!

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      Samoa6 4 years ago from San Diego

      Hi Itchyone - Thanks for your comments - I am glad to hear things seem to be winding down. Just don't be too surprised or discouraged if a random rash still appears now and then. Please keep us posted on your progress.

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      BrI Amber 4 years ago

      We both only treated ourselves once is that bad ? We cleaned everything though

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      Samoa6 4 years ago from San Diego

      Brl Amber,

      You might be fine, but if there were any eggs they may have survived the treatment so if they hatch the whole process will start over again. To be safe, you should treat twice, one week apart. Maybe just watch and see how things go. If you seem to be cured after only one treatment, no need to do it again.

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      Bri.Amber 4 years ago

      Can scabies turn.into head lice ?

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      Samoa6 4 years ago from San Diego

      Bri.Amber,

      No, scabies are mites. Different species than lice. But I suppose there is a possibility you could have both. Lice are bigger - you can see them. Scabies are microscopic.

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      Amy 4 years ago

      Ok, I started treatment of the permethrin cream from head to toe last sunday so it has almost been a week and yesturday and today I can't stop itching and the rashes look worse and almost like big pimples and if i accidentally scratch an clear pus comes out. is this normal and do you think the scabies are gone? When I was diagnosed and a few days after I had never even itched. this is freaking me out. I thought it was supposed to get better, not worse. I have thoroughly cleaned everything and keep bagging and washing clothes. I plan to use what is left of the cream to do a second treatment as I see is recomommended a week after the initial treatment. Do you think I should go see a dermatologist or would a regular practitioner be ok? I went to an urgent care the first time and the guy was terrible, but got me the cream. I didn't have the skin diagnosis where you actually scrape the skin and use a microscope, but i'm pretty convinced it is scabies. I also did a few "spot" treatments using the cream afterwards. I hope I didn't mess up my skin and give myself an allergic reaction. Still have no clue where I got them. I haven't been around anyone really. Still think maybe i got them from trying on clothes at Goodwill. Gah! this freaks me out and I just want to know they are dead and that I will get better. please help!

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      Samoa6 4 years ago from San Diego

      Amy - if you are like we were, you're symptoms after treatment get worse before they get better. I would go ahead and finish up the second treatment if you can stand the reaction, and then wait it out for a couple of weeks while the rashes continue to come and go. That is what happened to us, and eventually, we were fine. I would not spot treat though, as it might just make the reaction worse. If your reaction is difficult to handle, then maybe talk to a dermatologist (make sure he/she has experience with scabies before wasting your time) and ask for the oral medication, Stromectol/Ivermectin. This should do the trick but probably won't cause the skin reaction. It's a bit more expensive though, and sometimes doctors don't want to prescribe it depending on your personal health history. It can cause kidney problems.

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      Tinker03 4 years ago

      Just checking in to update on my experience ... I have ridden out the urge and panic to re-treat and things are definitely on the mend. One small outbreak of new rash about ten days ago and a general random itch which is definitely subsiding. I can go two days with no real itch at all -- exception is when I come out of the shower. I deliberately rub the patches hard with a (clean) towel to exfoliate them. That does trigger a localized itch for a couple of minutes. I use Aveeno cream all over after that. Aveeno has specialized oatmeal-based ingredients for itchy skin - I find it works very well. For the first time in 8 weeks I was comfortable enough to show my legs in a dress yesterday -- my patches have healed that well! All of that said, don't assume that there aren't what I call spikes. Two nights ago I was itching all over, including fingers which have broken out in true exczema. I find when that happens I am overwhelmed with the need for it simply to stop. Even if I haven't been itchy for a few days, it suddenly feels like I've been itchy my entire life and can't remember what it is like to be without that feeling. It exhausts me and can really put me in a funk. My doc had given me a prescription antihistamine in the very early days so I took one. It knocks me out cold and gives me a good night's sleep. Next morning, no itch and have been good for a couple of days. Hang tight, folks. If you have done the two doses of prem a week apart, it may feel like absolutely nothing has happened and your bumps are still blistering and itchy etc but hang in there. For me, the exfoliation helped immensely but be careful to use anti bacterial soap and clean towels -- watch for infection. I'll check in again in a couple of weeks!

      Samoa6 -- thank you for this hub, it has literally been my sanity saver.

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      Samoa6 4 years ago from San Diego

      Thanks for the update Tinker03, I am glad you can finally see the light at the end of the tunnel!

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      Amy 4 years ago

      Ok, Thank you very much. After you do the treatment you aren't contageous right? That is my biggest worry right now. I want to go home and see family and friends, but don't want to infect anyone. No one deserves to have this brought to them. Thanks again for your help!

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      Samoa6 4 years ago from San Diego

      Amy - I would behave as though I was still contagious until 2-3 days following the second treatment (that's how long it reportedly takes for the medication to kill the mites). However, this does not mean you cannot visit anyone. Just take a few extra precautionary measures, i.e., I would avoid prolonged skin-to-skin contact with anyone, and maybe even wear long sleeves and pants when possible in order to lessen the probability that something might come off of your skin and fall onto furniture or something where someone else might later sit and pick it up. Also, don't share clothing or towels, and wash all bedding before you leave (don't have anyone sleep in your bed with you, just in case). We went to visit family the day after our first treatment (trip had already been planned, plane tickets bought, etc.) and then did our second treatment while we were there, and everyone was fine.

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      Amy 4 years ago

      Ok thank you so much again for your words of wisdom and the peace your reassurance has given me. I moved far away from family and my boyfriend and i really want to see everyone again. I'm still kinda nervous to hug anyone, but just because the rashes are there doesn't mean I'm contageous right? and if I have treated it twice, I should really be safe by then.

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      Tinker03 4 years ago

      Amy, I worried about exactly the same thing ... maintain your "distance," keep yourself covered and ensure all linens you use are properly laundered. To stay on the safe side, make sure whatever bed you sleep in isn't slept in by anyone else for a couple of days following. The randomness of how you can pick this up can't be avoided but you can do your best to mitigate the most obvious opportunities. Good luck!

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      Samoa6 4 years ago from San Diego

      Amy - I agree with Tinker03, and you are right, just because the rashes are there (after you have treated twice) does NOT mean you are still infested. Rashes will continue to emerge and disappear for a few weeks or even months, getting less and less as time goes on. It seems to be the skin's way of dealing with the medication cream, which does contain pesticide, so it's not really surprising.

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      Dee 4 years ago

      Hi, firstly many thanks for this information.

      I was treated for scabies 3 months ago where I was given benzyle benzoate and I applied it 3 times from neck down ( as per docs instructions) with a 5 day gap after each application.

      My rash bumps and itching has gone away. Once in a way I get a bump but itching is very minimal and it goes off in 1 day. However think my skin has become very sensitive after the treatment and I feel crawling sensation on my skin - in most cases I think it's just the movement of the hair but due to the sensitivity of the skin I can feel it. Further, I have the same feeling on my face and head (which was clear when I was infected with scabies). Could this just be a case of my skin reacting to a successful treatment as I don't itch anymore for the last 3 months the way I used to itch when I had scabies and there are no bumps or rashes? My dermatologist said that I am cured and this is post scabies and wanted me to apply eucerin 10% moisturizer as the skin is sensitive. Please advise. Many thanks.

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      Samoa6 4 years ago from San Diego

      Hi Dee,

      It is difficult to say whether you are cured or not, however I must say that I do not agree with doctors when they instruct people not to treat there heads, including scalp and faces. If you have mites there, which I indeed did, and you do not treat your skin there, then you are probably not going to solve your problem. And since it is difficult to tell exactly where all of the mites are burrowed when you are infested, then they could very well be on your head/face without you realizing it. When I had scabies, I mainly felt a crawling sensation more so than itching, and it was exactly as you are describing, like a hair you need to brush out of your face, constantly, in different places. Our permethrin label said to treat the head/scalp/face skin but not to get it in your eyes, nose or mouth, etc. The obvious. That being said, I am not a doctor, so you will have to determine for yourself whose advice to take. Also, if you do decide to redo your treatment, it is extremely important to realize that people sometimes have awful reactions to the treatment (it was permethrin in our case), and that these reactions might only be worse when treating your face, since the skin tends to be more sensitive than other parts of the body. In our case, the persistent itching and crawling feelings both stopped after treatment, we just had sporadic itchy rashes emerging that were actually worse than the infestation for a few weeks after treatment. These rashes let up though after a while. One option you might want to consider if you do not trust that you're cured would be to ask your doctor if it would be safe (given your own personal medical history) to try Stromectol/Ivermectin. This is an oral medication that should not cause (at least as far as I've seen) the type of itching/crawling skin reactions caused by the lotion treatments. You also don't have to worry about which parts of the body to cover.

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      Dee 4 years ago

      Hi,

      Many thanks for the feedback.

      Considering its been 3 months since treatment and there are no bumps and rash as before and there is no itchin (because when I had scabies I has severe itching on the common scabies places) wouldn't you think it is cured? I am thinking this because if I had these symptoms earlier and if I am reinfected, I would get the same symptoms right? To me there is absolutely no indication of any skin problem by looking at my skin. So when I go to any doc, they examine my skin and say its cured. Even to get a skin scraping there is no obvious spot. Please advise.

      For ivermectine, would you know the dosage? And how long it takes to cure a typical case?

      Thanks again.

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      Samoa6 4 years ago from San Diego

      Dee - I agree, it seems likely that if you were still infested you would have similar rashes etc. to what you had before, so you may only be reacting to the treatment. These reactions can definitely last longer than you might think. I do not know the dose of ivermectin one should take, but your doctor certainly should. It works fairly quickly, within the same time frame as the lotions. I suppose that you could always try it, if your doctor deems it safe, and then see if it clears up the crawling etc.

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      sushiomelette 4 years ago

      It's been 3 weeks since I last posted and I must say I feel much better. Although my skin isn't 100%, I would say it's about 80-85% better. I discovered in my itching insanity that what was causing those itching fits was the materials of my bra. The bras I wore were made of nylon. I switched to wearing cotton and it has made a world of difference. My skin still feels itchy and flaky sometimes if I don't moisturize, but so long as I keep doing that and take an antihistimine once in a while, my skin has been on the healing path. I've also gone tanning to help improve my eczema condition. I don't recommend going tanning to treat post-scabies symptoms, I'm just saying that it helped my skin from being broken and weeping due to eczema. There are a few patches that still need time to heal that look similar to the scabies rash, but I feel so much better than when I was in the thick of it. Just wanted to share with those who are suffering that there is relief at the end of scabies. It just takes time and patience.

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      Samoa6 4 years ago from San Diego

      Thanks for checking back with us sushiomelette. I am very happy to hear you are doing well!

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      Samoa6 4 years ago from San Diego

      farman - you will have to see a doctor to get the proper medication.

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      PZ89 4 years ago

      So I got diagnosed the week after the 4th of July. I thought it was something else only to find what I used to teach kids in history books in on me!?? I am one of 6 in this house and I was diagnosed as well as my 3 year old. We did 2 rounds of permethrin and she and I got rashes from that ... My question is if you can have a rash in a track form? I am also using tea tree oil, neem lotion and sulphur soap. The homeopathic store also gave me oil of oregano to place under my tongue as well as sulphur under my tongue. At times the itching is less and sometimes more. She now has a rash that doesn't seem to hve a rhyme or reason on her tush. I called my derm only to have the nurse tell me maybe it wasn't scabies??? yep. going for a second opinion today and waiting on my Natursil to arrive. I am overwhelmed in cleaning and laundry for oru family of 6. I have cried many a time since July 12. I am sick of wearing rubber gloves and not being the hugging mom I am used to being...

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      Samoa6 4 years ago from San Diego

      PZ89 - The rashes you are describing are exactly what happened to us, after treatment. Some looked like track marks, others just random. They were worse than the scabies infestation itself. But they let up after a month and were entirely gone after 3. You may just have to wait it out.

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      PZ89 4 years ago

      so am I still considered contagious? how long to keep up with this crazy cleaning?

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      Samoa6 4 years ago from San Diego

      PZ89 - So long as you've done two rounds of permethrin one week apart, and were sure to adequately cover everything, I do not think you should be contagious. Once you washed the cream off, you would have washed off anything that might have been on the surface of your skin. Anything burrowed should be paralyzed by the pesticide, and eventually die. So no, even though it looks like new burrows are emerging etc. etc. it is really just a reaction to the treatment as far as we could tell. This seems to be what is happening to a lot of people, but if you wait it out, it should become less annoying and eventually go away. If you continue treating, you may just be making it worse, even though I know it is hard to convince yourself that new rashes do not mean you are still infested. Concerning the cleaning, you should have cleaned all clothing and bedding after each of your treatments, and that should have been enough. You can always vacuum the rugs and your car as a precaution, although this is not the primary source of spreading. It's more likely to be skin to skin contact. So don't go too crazy with cleaning, just launder the obvious things and maybe any stuffed animals your child sleeps with along with the bedding. If you cleaned along with your treatments, no additional cleaning should be necessary.

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      PZ89 4 years ago

      Thank you. I will have to do a lot of praying to get out of this cycle... I found new bumps in between my toes after a day of continuous itching. Saw a new doc who was completely condecending telling me that scabies never crawl on the face and that I am without a doubt healed as she doesn't see anything on me.. she failed to look at my foot even though I told her of the new itching there. It seems like such a long road and just when I think I can see light at the end of the tunnel it shuts down..... Did your family ever use tea tree oil? I am just so afraid of reinfesting or even giving it to any one in my family- especially with school around the corner.

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      Samoa6 4 years ago from San Diego

      PZ89 - no, we never used tea tree oil. We did use permethrin on our faces though when we did our two treatments, to make sure we killed what we were feeling in our noses and eyelashes. Careful around the eyes though. If you did not treat your face, you may have missed something. Your doctor is wrong on that one. Did you treat your face?

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      PZ89 4 years ago

      We did permethrin and the first time we did it scalp to soles of feet. the second time we did it neck down- we got different info from doc to pharmacist. the second doc I went to yesterday asked me about my face then told me she gave me a trick question b/c they never go on the face- EVER. ha! I told her my face was crawling - she said it was b/c it was in my mind I had bugs. Nope, I told her- it was not in my head b/c at that date I had no idea that I had scabies. I thought it was something else... she then told me I had a facial tick. never.... she was so condescending. I found 4more bites on my abdomen this morning... not a good start to the day. After taking the permethrin my lower back was killing me- I felt so sick from it.

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      Samoa6 4 years ago from San Diego

      PZ89 - I am living proof they do go on your face, as I've written in my article. Not all doctors are aware of this fact, and many are not that familiar with scabies in general. Of concern is your reaction to the permethrin. I would call around for a different doctor. Find one who is familiar with post scabies syndrome, i.e., all of the problems caused by permethrin treatment. Your new bumps could simply be a part of this reaction even though you are cured - after effects include more bumpy rashes, itching and even crawling sensations for some. Alternatively, you may still have scabies since you did not treat your face adequately. I would talk to a new doctor about trying ivermectin, the oral medication, since perm. is causing problems.

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      ouch! 4 years ago

      I had itching for 3 weeks before I finally went to a doctor. I had started a project building a new cat tower for my cats and thought that I was having my usual allergy with the grass, and thought the bites were chigger bites. When I started to get the bites in "private areas" I thought the chiggers were crawling up my shorts and switched to sweats...I know...stupid...lol. Searching the internet for a possible cream for chigger bites I ran across scabies. This was on a Sunday evening and Monday morning I went to a walk in clinic

      I thought that if I did indeed have scabies it was a "dirty thing" and didnt want my own doctor to know. I am 47 and I believed scabies came from sexual contact only. I have been single for 6 years. My youngest son still lives at home and he has been single for 8 months so?

      So walk in clinic listens to what has been going on, looks at my right arm and right wrist and says I have scabies. I tell ya, with me once I was told that it WAS scabies I began to feel every bite, itch etc. It's a mental issue, or it was with me to know that I had bugs crawling in and on my skin and laying eggs

      I paid cash for the tube of permethrin.(I was still embarrased) Applied as directed by doctor (neck down) and thought that would be the end of it. The way the doctor made it sound was this tube of cream was going to kick butt. Wrong. I did make an appointment with my doctor for Tuesday. I let the receptionist know what was going on in case I needed to be isolated. Knowing that I had applied the 1st app the night before she said I was fine

      Talking with my doctor was a relief as I was told about the 4-6 weeks and my son and I believe we know where this started. My son had treated me to a nice dinner and stoping off at the casino afterwards we both remember the lady that we had both sat on either side "that had this red rash that seem to be driving her nuts" I had even made a comment and she had said she had thought it was poisen ivy. Never having that either who knew? So not to put the blame on her as she believed it was poisen ivy just as I had believed I was getting bit by chiggers

      Anyways back to the cream. I used first app Monday and my doctor prescribed an additional 2 tubes that I was to use 5 days apart. I payed cash for both tubes, knowing my insurance would not pay for both at one time and I promptly used the rest of the first tube and about 3/4 of the second tube on Tuesday and continued through the night to apply in areas with increased itching. Wednesday mid afternoon I applied the rest of the 2nd tube and started on the third tube and finished off the 3rd tube Wednesday evening. I was so grossed thinking about these bugs, the eggs and the itching and thinking that I had to apply more because the bugs were not dead that I ended up in the emergency room Thursday morning. What I thought were the bugs now covering about 70% of my body was a horrible reaction to the cream. Not an allergic reaction, a reaction from abusing the cream that I learned had pestiside. I am now on prednisone, an antibiotic and an ointment cream because I do not like bugs lol!

      Not a laughing matter I know but reading all the comments on the cream, this absolutly is hazardious and I believe 100% that people are having a reaction to the cream after the bugs are dead

      After getting reemed by my doctor and her calling the pharmacy for an additional tube to be picked up in 7 days and not one day before as you can see I am still searching and concerned that the bugs are not dead but they are, it's just the after effects of the cream

      When I look at the couch and see white or dark specks I think I am going to be reinfested. I change clothes 3 times a day, bag them, vacuam what seems to be all day and have given up on making my bed and have seattled for one sheet and towels that cover the pillows and go through the process of washing every day. When I eat are the bugs on my food? When I shower and wash my hair last are the bugs in my fingernails and I am transferring them to my hair? I imagined everywhere there was a rash or a blister that there was a new bug. Thousands of them! Even though I know they are gone for now I am left with this rash everywhere from the cream and like everyone says is much worse then the scabies. Dont do what I did! lol!

      My son as well is stubborn and will not go to the doctors. My doctor is aware of this. I look at him have yelled at him several times as I JUST KNOW that he will become infested in 4-6 weeks and I will have to go through the entire process once again. He was not infected as I was from the lady at the casino. He also has told me that with me being so anal with the cleaning that nothing will survive

      I just wanted to let everyone know about my stupidity with the cream and to let any new "scabie searchers" (hee hee) that they should start from the top as this site WAS sooooo helpful....for tonight anyways............lol

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      Samoa6 4 years ago from San Diego

      ouch! Thanks so much for your comment - I am positive that others will benefit from this information. Just wait it out, the sensations that make you question whether you are cured will go away eventually.

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      ouch! 4 years ago

      Just an update. Thursday I was put on the prednisone, antibiotic and ointment cream. I am completely itch, blister, burrows and scratch free. BUT I believe this is due to the prednisone which I will continue to take until Saturday. Started at 60mg burst. I am curious as to what will happen when prednisone is complete as I have read others have gotten the rash back once they were off the prednisone

      A response for others that have abused the permethrin 5% as I did, I also have what looks like several burn marks: One on neck and two on left leg. They are small about as big as a quarter. Only time will tell. My course ran for seven days after first permethrin application. If my son does have an outbreak my doctor has said she will put him on the prednisone as well as the antibiotic at first sign. Maybe route to go? I will wait and see what happens

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      Summer18 4 years ago

      After your first treatment did you still change your sheets every day? Did you wear socks in your house? I had read somewhere else you should only wear shoes that can be easily wiped off during the treatment period. Also, do you recommend wearing gloves to fold laundry until after the second treatment is done?

      Thank you so much for sharing your experiences. It really helped to calm my nerves after reading a lot of extreme cases that sounded so overwhelming.

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      Summer18 4 years ago

      Sorry, I forgot to also ask, did you vacuum your house every day between the first and second treatments? Did you do anything special after the second treatment?

      Thank you do much!

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      Samoa6 4 years ago from San Diego

      Summer18,

      I only changed sheets and washed everything immediately after each of the two treatments. Yes, we wore socks and long sleeves/pants in the house to minimize possible exposure to anything that may have been on furniture etc. This way you don't have to worry about anything in your shoes, just wash you socks. I did not wear gloves to fold laundry, but I suppose that wouldn't hurt. I vacuumed the house and cars only after each treatment. I did not do anything special after the second treatment, just the same as after the first treatment.

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      Samoa6 4 years ago from San Diego

      Mary (via email) - I treated everyone in my family, including the 1 and 3 year olds, with permethrin, putting it everywhere on their scalps, faces, just inside their ears and noses, and on their eyelids as close as I could get to the eyelashes (using a Q-tip) without getting it in their eyes. This goes against the instructions on the drug label, but it was the only way I could be certain to kill everything that was clearly on our faces. I did it at night, just after baths, before bed, so as to minimize the chance they would touch the cream on their skin and then rub their eyes. Fortunately, this worked for us, but I was definitely concerned when making this decision.

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      ouch! 4 years ago

      Summer 18: mine was a bit different I suppose because I applied the permethrin (3) days in a row which is a no- no but I was freaking about the bugs being under my skin and laying eggs. I CHANGED my sheets Tues/Wed/Thurs/Fri/Sat and then again on my 4th app which should have been my 2nd lol. But as I said before I did not re make my bed every day, I simply put a clean sheet on the bed and a clean towel over my pillows. I put the dirty sheets in a garbage bag with my clothes that I changed (3) times a day and left the bag in the garage

      I did not wear gloves when I folded laundry but I did wear long pants, usually sweats because they are tighter at the bottom and I thought the bugs couldnt escape lol. I wore socks every day and then took them off right when I went to bed

      I did vacuam my couch, living room, bathroom and bedroom every day. The other rooms I left alone figuring if they fell off they would be dead within 72 hours I think that's what other people were saying

      I never went in my sons room and he used the bathroom upstairs so we were using seperate bathrooms to try to insure that he might be safer since he wont go to doctors. He has not been treated as of yet. We will see

      After my 4th application which was (7) days I was fine. No bugs, rash, itching BUT my doctor had put me on prednisone and antibiotic that I will continue until Saturday and then I will wait and see if rash comes back as others have noted. The antibiotics were prescribed beacause I had itched so bad and had an infection. I also had bruising in several areas from rubbing so hard

      Everyone says wait, it will pass I was one of the lucky ones I suppose...so far. It's funny how easy it is to forget the itching once it's gone

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      Ouch! 4 years ago

      oh and Summer the only thing I did after the last treatment was to wash sheets, towels, clothes and this time I washed the pillows and I vacuamed and dusted every room except sons. I finally have my comforter!

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      itchy one 4 years ago

      One final update- it has been about 6 weeks since last Perm treatment and all is well! As I said in previous post, we treated with the perm cream as prescribed (actually over-treated as it turns out), we diligently washed sheets and clothing daily and vaccumed daily for a few weeks, and isolated clothing and linens we didn't need for about two months total. In addition to the Perm, I used 1 part tea tree oil to 2 parts witch hazel on my entire body twice daily for two months to prevent re-infestation. Not sure if I mentioned before that I also took oral MSM supplements daily. I battled itchy, crawling sensations for at least a month which was unnerving and I also had some of the post-scabies rashes. The tea tree oil and witch hazel helped and gave me peace of mind. I noticed that if I missed an MSM pill, the itching was worse the next day, not sure if that was in my head? Anyway, all of it subsided gradually and no problems for several weeks now. I continue to take the MSM as it continues to give me peace of mind and it also helped relieve my everyday aches. Our wedding is in two weeks and I cannot thank you enough for "being there" for me. I am grateful to have found good, reasonable information when I needed it. Best wishes to all of you!

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      Samoa6 4 years ago from San Diego

      itchy one - great news! best wishes for your wedding!

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      Summer18 4 years ago

      Did you worry about scabies being on your cell phone and your computer keyboard? I've read so much stuff online I'm so paranoid about everything! I can't wait until this is over. I feel like no matter how often I vacuum there are scabies all over the floor. I'm scared to touch anything for fear there are scabies everywhere. I have had plastic on our furniture since the morning after the first treatment and I'm afraid if any eggs hatched that now there are scabies on the plastic. I'm the only one who showed symptoms and I don't sit on the covered furniture but I'm so worried one of my kids or husband may still have had scabies and just didn't show symptoms before treatment. It's crazy what this can do to you emotionally! Wow!

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      Samoa6 4 years ago from San Diego

      Summer18 - Just wipe down everything as well as you can and if you are still really nervous, then take your family and leave the house for a few days after your second treatment. This way you can be sure everything will be dead by the time you return. Also, it might be comforting to know that each individual with scabies is estimated to only have about 12 or so mites on them at any given time, so it's not like there are thousands all over your house. They have no reason to go anywhere but onto people, really, because they can't live or breed anywhere else for very long.

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      Summer18 4 years ago

      Samoa6 you are an angel. Thank you so much for your desire to help others through this unnerving situation. You have been a God send.

      After you did your second treatment, changed the beds, washed everything and vacuumed, did you then immediately get back to normal? For instance, not always wearing socks in the house, sitting on upholstered furniture without a sheet, not having to wash everything everyday, etc.?

      Thank you again for all of your help.

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      Samoa6 4 years ago from San Diego

      Yes, we went back to normal after washing everything and vacuuming following the second treatment. But the rashes did not stop emerging randomly for some time. They became really bad for a while, although we held off on treating anymore. After about 3 months, they stopped altogether. So don't be alarmed if this happens. It doesn't necessarily mean you are still infested.

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      Sun exposure and sacbies 4 years ago

      Hi, about 4 months ago my boyfriend and I contracted scabies. From using a cream called 'Lyclear' which I presume is the Perm 5%, my boyfriend then was diagnosed by a doctor with dermatitis. He has had problems ridding himself of this dermatitis which now comes and goes depending on whether he is using a prescribed cream and steroid tablets. I myself haven't had any signs of dermatitis from using the perm cream, however since my last application which was about a month ago, I have continued to have spots...however not as many and sparingly. What is most of concern to me is that my head has been excessively itchy, as well as the back of my neck. I have been checked for lice and seem to be clean. Although I have bite-like bumps on my scalp. Also, recently after I have laid in the sun, after about 10-minutes my skin begins to itch with this irritating tingling around my chest, neck and inbetween my breasts as well as my abdomen. The skin becomes very hot from the itching and usually takes cool water and ice to relieve it. I'm wondering whether it could be possible that I still have scabies? Or whether this sun-related itch is due to something else?

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      Samoa6 4 years ago from San Diego

      Sun exposure and scabies,

      Did you treat your scalp and face when you treated for scabies? If not, you could very well still have them. If you did, you may just be reacting to the lotion. Being in the sun will irritate any skin condition. I actually even noticed that when I had scabies, the crawling and itching were more intense when sitting in a hot car that had been in the sun, or even while sitting at my computer because my feet and legs were near the computer which was giving off heat. The mites could just be more active in warmer places. In my opinion, you should first rule out the possibility of still having scabies by either doing the treatment again with more adequate coverage (if you didn't do this the first time), or maybe even try the oral meds (ivermectin/stromectol) if your doctor thinks this is ok. After that, if you still have a problem, then discuss your symptoms as an after-effect of the scabies treatment with a doctor who is familiar with the fact that permethrin causes problems for a lot of people. If your dermatologist is unaware of post scabies syndrome/symptoms or the reactions caused by perm. treatment, I would find a new doctor who has more experience with this particular problem. If you are just reacting to the treatment, it took us a few months before everything went back to normal, so you may just have to wait it out.

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      Ash 4 years ago

      Oh dear god thank you for this article.

      Here i am making my self itch day after day because of my extensive research about it...

      My husband and I treated ourselves (which, ps- NO idea where we contracted this, I stayed in a hotel 5 weeks ago and 1 week ago sypmtoms arose.. they say its got to be skin to skin... but seriously, theres no other explanation) for the second time this past sunday- He seems great! However his bumps were few and far between because we treated him as soon as i diagnosed myself with them (my doctor basically looked up on the internet and said, "well if this is them, Permethrin should work..." thanks doc... anyway- my back the last few days has been worse then before i used the cream at all! I have been so paranoid because after the first week, the bumps sort of scabbed and were less and less itchy, but then after the second treatment i have been driving myself crazy thinking that we reinfected ourselves via the house. Which, to continue this ramble.. i have been SO dillegent about washign bedding, towels, clothing after EVERY use- even after we were treated with the cream- so i have been sick thinking it didnt work. This does concern me about the face and head though because we did NOT treat those areas- though we have had no bumps and further than our bellies (and none on toes, ankles, hands or fingers) . Anyway, i kept searching to see if the medication or the dying etc mites could cause more breakouts after two treatments and constant laundering... thank you.

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      Samoa6 4 years ago from San Diego

      Ash - the odds are you are cured and just reacting to the treatment. However it is not impossible to have them on your scalp or face, so if things do not begin to clear up in a month or so following treatment (not entirely, but noticeably), then you may want to consider retreating, maybe with the oral meds so as to avoid further outbreaks caused by the permethrin. Best wishes.

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      Summer18 4 years ago

      Somoa6

      After your second treatment and the vacuuming and cleaning did you change the sheets on your beds every day for a while? If so, for how long?

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      Samoa6 4 years ago from San Diego

      Summer18 - I vacuumed my house (including furniture) and car on the evening that I did my second treatment. I emptied the vacuum contents into a plastic bag (while outside) and also wiped out the inside of the vacuum with a paper towel, also putting that into the plastic bag and then putting the bag in the trash can outside. I then put the lotion on (my whole family) and went to bed. When I woke up, I immediately threw all bedding and clothes into the wash before washing my children in the bathtub and taking a shower myself. That was all I did, one time, after each of the two treatments. It worked.

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      hem 4 years ago

      Hi Samoa6

      First up, thank you for doing this brilliant job of informing other sufferers of possible solutions. Yours is the best post I've come across thus far and trust me, I've been searching for more than a year now.

      Some questions though:

      - Initially suspecting this to be bed bugs, i used to sleep in different rooms in my house and make my family members sleep in my room.They did this for two weeks but none of them felt any itching/prickling/crawling sensation. All of them claims to have a wonderful nights sleep. How do you explain this? Are some people naturally resistive to scabies?

      - Have you noticed that if you've a few alcoholic drinks, you will not feel any bites or crawling and can have a wonderful sleep.

      - finally, how can i confirm its scabies i have?

      My symptoms are:

      Every time i go to sleep, within 15 minutes i can feel a prickling sensation that begins at my feet and slowly moves upwards till the waist.Its like a minor pin/pencil being poked at you but enough to ensure you cant sleep.There are no marks or cuts in my body.

      After this, i can feel something crawling on my face, nose and eyelids though i haven't seen anything while switching on the light.Its like an ant walking on your face or a feather being caressed across it.This is very irritating and i cant seem to sleep at all.

      I used to have a few marks on my thighs around a few months back but now they have all gone.There are a few red dots on my chest but i do not have any itchy feel afterwards. The thing that happens to my feet are like a small pin poke/prickle sensation that sometimes startles me especially if am just about to dose off.

      More importantly, 99% of the times all these happen only when i try to sleep.There are no issues at all when i am up and about doing everyday stuff. Was it like that with you as well?

      Thank you sincerely for your time and effort!

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      ssom 4 years ago

      Hi Samoa6,

      I've been dealing with these horrible mites for about a month now! I've already done two treatments of 5% permethrin cream and two doses of Stremectol. I've been in and out of work thinking that I am cured only to find more bumps. I feel even more crawling and itching than before both treatments; now in my ears and on my scalp! My doctor advised me not to put the cream above my neck, but now I'm thinking that I should on my next treatment. More bumps show up randomly everyday then seem to disappear the next. I'm afraid that my treatments didn't work. My doctor reasoned that I did my second treatment not soon enough, so in 10 days from now I will be taking the Permethrin cream and Stremectol again.I told my manager and other co-workers that they should be treated. Two co-workers even showed me bumps that resembled mine and complained of being itchy, then were quick to blame the weather and their sensitive skin. I'm afraid to go back to work! If I don't go back I could lose my job. I went to work misdiagnosed for bed bugs for a total of two weeks! Hugging and close contact were a definite. I work in a two story clothing store with 25 employees. It is very dense and everyone is always in close contact with one another. It's a scabies paradise. My manager keeps asking me, "Well what does your doctor have to say about this" but all my doctor says is, "Just don't touch each other". It is very frustrating. I'm 21 years old and have been living alone because my roommate is to afraid to come home (I don't blame her). I've wrapped my mattress in a vinyl cover then covered that with heavy duty plastic tarp. I also covered and sealed our couch, coffee table, a wood table. Everything is covered except my roommates bed which I am scared to touch. I feel like I could even be reinfesting myself with my shoes, but I put one pair in the freezer for 72 hours and one pair in a bag for over a week. I've spent every dime I have on laundry,cleaning supplies, latex gloves (the cashier at the pharmacy must think I'm crazy). I've never felt more alone and scared. Your site and advice have been the only light in this dark tunnel. If you have any advice as to where I go from here that would be greatly appreciated. I'm considering getting a hotel for a few days after my next treatment to let as many of these awful things die! I know everyone says it's not possible but my roommate had scabies a year ago (different place) we had stuff in bags sitting in our closet. When I recently moved out she gave me those bags to bring to my new apartment. I was very skeptical because I remembered the stress that was caused by them. Luckily she was cured after the first treatment and I also did a treatment to prevent it. Is it in any way possible that when those bags were placed in my room I became infected?!

      PS the inside of my ears are itching like crazy and my right ear even has a few whitish bumps! Should I put the Permethrin cream inside my ears?

      Sincerely,

      ssom

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      ssom 4 years ago

      Also, while doing my last treatment I didn't have time to wipe off the permethrin cream before work, leaving it on for almost 24 hours. When I was at work I felt very dizzy like I was going to faint. I mentioned it to a few co-workers then continued to work. It got worse, so I excused myself to the restroom where it grew worse so I walked out and then started shaking and dropped to the floor. My body was shaking and my heart was beating out of my chest. A co-worker called 911 and gave me water. When the paramedics came he said I was fine and that what had happened was just my body's way of telling me that I'm stressed. Yes, that is true I'm stressed, but after doing my fair share of research and going over what happened I feel like this could have been a reaction to the permethrin cream. Therefore I am terrified to use it again! I also noticed when I put weight on my hands, the surface became very red in that area and remained that way for quite sometime (several days after). No one has any answers. In fact my doctor doesn't have much to say about any of this and its very frustrating.

      ssom

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      ssom,

      it sounds to me like you may be cured and just reacting to the overdose of permethrin - you may have been poisoned by the permethrin. i would be very nervous to try it again after the fainting episode. if one thing has become clear through all of the comments i've received on these articles, it's that doctors don't know nearly as much as they should about permethrin, so it is going to be up to you to use caution.

      even though you did not use permethrin above your neck, i would think the stromectol as a back-up would have taken care of everything. i think the best thing to do, and this is just my opinion, i am not a doctor, might be to wait it out for a month to see of the effects of permethrin (which are very similar and even worse than the scabies themselves, even when it has already killed the scabies) begin to disappear. in the mean while, i would wear long sleeves and pants/dress at work and minimize skin to skin contact with anyone until this is resolved. also, don't try on clothes etc. and put them back on the rack, just in case.

      after about 4 weeks, if your rashes/crawling sensations do not begin to diminish, i would consider the possibility you still have scabies, and talk to a new dermatologist who knows about the negative side effects of permethrin and find a different treatment. if your doctor does not know about the side effects of permethrin, my guess is he/she does not have much experience with scabies, other than having read a text book.

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      ssom 4 years ago

      I'm afraid that I may not have washed my clothes hot enough therefore getting a re-infesation. Today I started to get more bites on my feet and ankles and in between my fingers. The bites on my fingers made me come to the conclusion that it wasn't just a reaction to the permethrin. Do you believe this is the case? If so, should I still put on the permethrin cream tomorrow? I don't want this to get any worse then it already has. On top of it, I will be alone when putting on the permethrin cream, if something happens to me I'm scared I won't be able to help myself. You may not have the answers to these questions nor be licensed to, but I find your opinions very valuable.

      Thank you,

      ssom

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      ssom - i would definitely NOT use the permethrin. the newly emerging rashes are very typical even if the treatment has worked. they do not necessarily have anything to do with the mites, they could just be your skin reacting to the permethrin. unfortunately, you will have to wait it out to see if things begin to clear up. in the meanwhile, talk to your doctor about using an anti-histamine to help control the symptoms so you can keep your sanity and get some sleep. i know it is hard to believe you are not reinfested, but this is what happens to many many people even when they are actually cured. (see comments). if you just continue essentially poison yourself, your skin is going to continue to react and your rashes will never subside.

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      Summer18 4 years ago

      Samoa06 during the three months after your treatments were over and you still had bumps emerging did you go to anyone's house? My last permethrin treatment was two and a half weeks ago. Two days later I got two new bumps so my doctor gave me Stromectol incase the scabies were resistant to the Permethrin. I've taken two doses of the Stromectol, one two weeks ago and the second one yesterday. During those two weeks in between I had new bumps emerging daily but they have been much smaller than the ones I had gotten before treatment, only one or two were a little itchy and they've become fewer per day. I went two days without new bumps. Then I took the second dose of Stromectol and got two new small non itchy bumps the next day. I have to believe I've been cured because things have slowed down and gotten better. I'm thinking my body is reacting to the medications and will continue to improve. But I'm so afraid to go to anyone's house. What are your thoughts on this?

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      Samoa6 4 years ago from San Diego

      Summer18 - yes, we went to peoples' houses etc., business as usual. we just wore long sleeves and pants as a precaution because at the time, we had no way of knowing if we were cured or not. turns out we were. sounds like you might be too. hope so. we also avoided skin to skin contact during that period too. none of this is necessary if you are indeed cured, of course, you are just reacting to the meds. however it gives you peace of mind taking precautionary measures.

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      TTDH 4 years ago

      So i woke up this mornin and read like 4months worth of comments.. long story short. i was itchy everyday and thought i felt crawling on my body and my body was num. then two days ago on Tuesday me and the people im infected wit decided to use the permethrin cream. and wen i put. it on i felt better then everrrr. no itching no nun and i had got super red hard bumps that instantly went down after using cream.. i kept it on from 11 pm to 6 pm the next day.. but wen i woke up that day (wensday) my arms was dry like the cream disappeared but ididnt freak out or nun just waited. then i took a good ass shower and got out and used a blow dryer to dry my body then put on brand new. super clean.clothing .. i felt great for like a hour or 2 but then the itch started coming back. it was lite itch. then later on that night round 10 i was gettin itchy again but only in one spot and that was my buttocks. and then wen i tryed to sleep my buttocks itched all night and wen i woke up but then wen i woke up i put on lotion and it controlled the itch a lil and then now im writing this. so i hope the cure worked. and can ya give more details on these scabies . cuz the way ya explain it was like i new the scabies personally lol but my buttocks are itching right now as i type this . that is the main /only part on my body that really itch

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      TTDH - it's normal for the itching and rashes to persist after treatment. just stick with it, and do a second treatment in one week. also, be sure to wash your bed sheets and clothing etc. as you treat yourself so you don't pick them up again.

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      Very 4 years ago

      I diagnosis with Scabies after going to several physicians over 1 month period of having symptoms. At first I went to my PMD with a oval shape raised rash on by elbow which was thought to be a ringworm and was given treatment for. Within a week this rash begun to spread and I contacted my PMD and told him the ringworms were spreading and he prescribed by oral antifungal medication and told and referred me to a Dematologist. While waiting for Dematologist appointment this rash and itching got worst so I went to an ER and was told I had bug bites and given a Steroidal cream, Hydrocortisone Cream and Hydroxzine for itching. Ithen contacted Terminix and had my home checked for Bedbugs, Fleas (have dogs which were also treated) twice along with extermination. By time I saw a Dermatologist who was a Physician Assistant the rash that was previously raised had changed and was now flat with a pencil like outlines that appeared to be expanding This Physician Assistant insinuated that it was in my head because she said she did not see anything except some redness and told not to go bug crazy (as I pointed out the markings). This Physician Assistant did not use a microscope or magnifying glass to look but told me that it was bout of Eczema and then prescribed another steroidal ointment (Fluocinonide). I then went to another ER because the itching increased and the 1st joints of my fingers had a bumpy raised rash as well as my hands had pencil like markings on palms. The ER physician examined me, looked at my fingers, hands, arms and legs saw the markings tdescribed and old me it was Scabies. I was then prescribed and instructed to use Permethrine Cream 5% from the chin down for my 1st treatment and to follow up with a Dermatologist. On the following day after using Permethrine my itching increased and I begun seeing tunneling on my neck, sholders, chest, arms, hands, legs, around my ankles, feet and groin areas. I contacted my physician and was instructed to do 2nd treatment 3 days after 1st treatment which I then used on my head and face. On the following day I saw tunneling accross my forhead, chin, and cheek as well as few new bumps on the calf of my legs. Now I am still itching but less intense and have a new welt like rash that appears to be tracking behind my knees, on my legs, around my breast, elbows, arms and groin areas. Im also still seeing pencil like markings. Have you ever heard of this type of tracking am I still infected.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Hi Very,

      I am not sure as your symptoms are quite different from what mine were, but yours seem more typical. It's difficult for someone like me to say whether you had scabies at all, and then whether you are still infested. If you and your latest doctor believe this is the best diagnosis, then of course treating for it as you did can't hurt. But you do need to keep in mind that many people experience the rashes and itching for months after treatment, although things should be letting up a little, i.e., fewer rashes, less itching, over time. Whatever you do, give it some time before returning to the permethrin treatment again if you feel like it didn't work because it is a very toxic drug. You may want to ask for the oral medication Stromectol as a backup. Since you did not treat your face/scalp the first time, you may not have killed everything. However it is possible that you did so with the second treatment, so I would wait it out for a few weeks and see if things begin to clear up, maybe take the oral meds like i said, before trying the permethrin treatment again. good luck. please check back in and let us know how it goes in case someone else is having this same experience.

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      Very 4 years ago

      This whole episode has made me very anxious. I Thank you for your quick response. My PMD is setting up an appointment with an Attending Dermatologist this week and I will request oral Stromectol. This tracking and itching is really making me even more anxious. I recently returned to work after being on extended leave at home and did not have any problem until I returned to work and started back visiting nursing homes as part of my duties.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Very,

      Nursing homes and group living situations are the perfect places for scabies to spread. This may be where you picked it up to begin with. Does anyone else there have any symptoms, or is anyone being treated for scabies? The fact that you still have symptoms after treatment does not necessarily mean you have not been cured - you may just be reacting to the treatment - but the fact that you are going to a nursing home etc. may actually put you at higher risk of becoming reinfected, if you are not sure where you got it from to begin with. I would pay very close attention to the people you are coming into contact with at work, both residents and other workers. I would avoid skin to skin contact as much as possible until you know what you have and where you picked it up.

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      sweetheart83 4 years ago

      Hi .. I live with a family of 5 and two of us that I know of has scabies. I have been treated. I keep getting red bumps on me and my daughter is getting them too.. It has been a week after treatment. Is the bumps post scabies? Do I need to bleach everything I touch and my kids touch everytime they touch it and clean floors everyday??I do our laundry and sheets everyday and put there furry stuff , basically anything with hair or fabric away... Do I have to worry bout non fabric stuff such as counters and etc everyday??? When I get a bump it stings a little ... But that doesnt happen as much .. Will putting bleach on your skin stop them from going after you since bleach kills them? Will the bleach on your skin kill the scabies when they bite as well as the eggs? I heard they go by taste on your skin .. Such as not liking garlic and so on. I also took a bath in cyenne pepper.. Or am I experiencing post scabies when I recieve bumps and just to leave it alone??

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      sweetheart83 - everyone in your household needs to treat at the same time, twice, one week apart. what did you treat with? permethrin? because if you used permethrin, you may very well continue to experience itchy, stingy bumps for a while even though the treatment has worked. i would not bathe in anything weird - you are just drying out your skin and causing further problems using bleach etc. treat everyone at the same time at night before bed, then in the morning clean everything you can in the washing machine and wash the medication off of your bodies. once. then do the whole thing again in one week. anything more would probably be overkill, and just exacerbating the problem. don't mess with permethrin more than you have to - it can cause a lot of unnecessary and unwanted problems/reactions.

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      Sick of scabies 4 years ago

      Treated with Permethrin for my third time night before last. I washed it off yesterday around 2:00PM. I woke up this morning with a very itchy, burning rash on my chest, neck, and right under breasts. Do I need to see the dermatologist or should I try and wait a week to see if it gets better? I was a dummy and read WAY too much garbage on the Internet, so I did bathe in bleach twice last week! Wish I would have found your page sooner. I have used Nivea cream (very thick) a few times which seems to help. Maybe my skin is just very aggravated from the bleach baths and Permethrin. I bagged all my things about 2 weeks ago and started slowly taking everything out yesterday. My whole family has been treated. 2 weeks ago, we all treated for the 2nd time, and I'm the only one that seems to still be having issues!! However, I am the only one that bathed in bleach?? I am also the only one that has washed clothes, towels, blankets, etc... Any help would be appreciated! I think we got it from my husband that travels a lot for work and stays in hotels. If not there, maybe my son's preschool. I'm just SICK of all this mess!

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Sick of scabies - so long as you treated yourselves thoroughly, twice, and washed all bedding and clothing etc. then my guess would be that you are having a reaction to the permethrin and bleach etc. You should talk to a dermatologist and explain what you think is happening, i.e., that you may just be reacting to chemicals, and ask for some sort of anti-histamine or something that will help manage the itching and rashes for a week or so just to get some relief, and then give yourself a couple of weeks (without anti-histamines) to see if it all starts to clear up. my guess is that it will, although you may continue to get "new" bumps or rashes etc. for a while longer than that (we did) but this does not necessarily mean you are still infested (or reinfested). If you don't experience a noticeable improvement after a month of no meds, then perhaps consider the possibility you are still infested (or reinfested). Good luck, and please let us know how it goes in case your story helps someone.

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      Summer18 4 years ago

      I want to give you an update on my situation incase it helps someone else. When I was treated for scabies, no one in my household, (or close friends or family) had any symptoms except for me. We assumed I picked up scabies from a massage I had gotten in the Dominican Republic at the resort where we stayed. However, even though sleeping in the same bed as me, my husband never showed any symptoms. I went to the doctor several times because I had really itchy bumps across my chest and shoulders. It did wake me at night but it never kept me awake. I tried very hard not to scratch because I know that scratching a rash can often make it worse. The first time I went to the doctor I was told I had contact dermatitis and was given a steroid cream. I didn't buy it because I was not using anything new and had not had contact with any type of poison ivy or anything. Even though I expressed that to the doctor, I agreed to see what the cream would do. The cream definitely helped to stop the itching and some of the bumps started to go away. But now I was getting new bumps in new places. This time very random. A bump on my arm, a bump on my leg and a bump on my stomach. Then the next day a bump on another arm, a bump on my calf and a bump on my back. This continued for a few days and I went to the doctor again. I had done research on the internet and was concerned I may have scabies by the way the condition was behaving. I told this to the doctor and they disagreed. I didn't have any burrows anywhere and no bumps between the fingers or toes or any of the typical places. And the bumps were not in clusters or trails. They said I had foliculitis. I was put on a 7 day antibiotic and it did nothing. The bumps continued to emerge daily, so I called and asked if it would hurt anything if they prescribed permetherin just incase. A different doctor at the practice said it sounded like scabies to him and that I should bathe in RID shampoo for head lice and it should take care of it. I, not even being a doctor knew that wouldn't work. The RID shampoo is only 1% permetherin, not the 5% needed to kill scabies. I went to another doctor and he agreed that the condition acted like scabies, although a bit atypical. My immediate family and I were treated with permetherin cream twice, one week apart. Each time I did all of the cleaning (vacumming everything - carpet and furniture, washed all linens and towels used and all the clothing we wore. I wore gloves through all of this.). The night we first treated I used gloves and washed enough new clothing for us to wear for a couple of days. Fortunately we have a spare bathroom that doesn't get used often so we had clean towels in that linen closet and the shower hadn't been used recently. After the first treatment I put plastic over all of our upholstered furniture after I vacuumed it. We left that on until after the second treatment. I did go a bit crazy with the cleaning. I vacuumed every day, changed our bedding every day, put plastic covers on the mattresses and pillows and wiped them down with a mixture of ammonia and water every day. It was most likely overkill but I was so freaked out about scabies it was what I felt I had to do. I too, read way too much stuff on the internet about scabies. After the first permetherin treatment the bumps definitely slowed down alot. I figured they would completely stop after the second treatment. However, after the second treatment, I was still getting some random bumps so I called this new doctor to ask if that was normal. He was concerned the scabies could have been somewhat resistant to the permetherin so he prescribed stromectol (ivermectin). I started the stromectol on a Friday and we left the house for a long weekend. We stayed away four days. I knew when we returned that anything that could have survived all of my cleaning would definitely be dead. That was such a relief for me. But, within hours of taking the stromectol my bumps got much worse. I started documenting everyday where the bumps emerged and how many there were. I also took pictures of them. This went on for a few weeks but gradually improved. My stromectol doses were two weeks after the first dose, and one week after the second and third doses. By the time I took my fourth dose, the bumps were less frequent but were still coming on. It has been two and a half weeks since my last dose and the bumps are definitely farther and fewer in between. I can definitely attest to the fact that the meds do crazy things to your skin. Although I've had various stages of bumps after treatments I can say they usually didn't itch and they have been much smaller than they had been before treatment. They also go away within a couple of days. That didn't happen before treatment. However, I have had itching in places across my body where there are no bumps. But overall things have improved a great deal. And still, no one in my house has shown any symptoms thank goodness. I would say hang in there, Wait it out as Samoa06 has said. This post really encouraged me when I started getting uptight at times and stressed out. I hope this will help someone too.

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      Samoa6 4 years ago from San Diego

      Summer18 - Thank you for sharing your experience. I am glad to hear that you are almost out of the woods.

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      fran 4 years ago

      Hi, I started to itch in early summer but didn't notice any blisters or spots until late August. I was told I had scabies from a doctor two weeks ago and he put me on Ivermectin. After sterilizing my entire home I still was breaking out in bumps all over plus a rash all over my stomach. I took a second dose of the Ivermectin one week later and want to die because the itch is still so bad! I have scrubed my home from to to bottom several times, washed all my clothes, linens and vacumed the beds and sofa several times. I don't know what else to do and I am the only one in my home that has this, thank God!! Don't know if this has any connection but my cat is having a crazy reaction to something which also started the same time as mine during the summer, poor thing is ripping out his fur. Please someone give me some advice, I go back to the doctor this week. I have put three calls in to him with no response .... :(

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      Samoa6 4 years ago from San Diego

      fran - dogs and cats can have scabies too, but they are a different species from the ones that infest and reproduce on humans. dog/cat species can, however, get onto humans and even burrow, causing the same sort of reaction as actual human scabies. they just cannot reproduce on you - they need your dog/cat in order to survive. it is difficult for me to say anything for certain, but it may be that your cat has cat scabies and they are getting on you whenever you pet or sit near your cat. if you take your cat to the vet and specifically ask the veterinarian to check for scabies, and then treat the cat if this is indeed the problem, then you will most likely solve your own problem. definitely keep at it until you figure out what is plaguing your cat. also, you may want to ask your doctor to try the permethrin to kill anything that may have burrowed on you in the mean time, even though it will most likely die off on its own if it is indeed cat scabies. permethrin worked for our family, but you'll need to be prepared for possible reactions to it, as described above. good luck, and please let us know how it goes.

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      4 years ago

      This information has been extremely helpful. I was diagnosed with scabies two weeks ago. On the 5th I used the cream and again on the 10th. I did everything I was supposed to as far cleaning the bedding and all my clothes. I had a little cream left in my tube and being as paranoid as I was used whatever was left again on the 11th. I am still itchy and although the itch can be intense at times it doesn't last long. Today I stopped using antihistamines because I am afraid that the only reason I am less itchy is because of that rather than actually being healed. My only gripe is that if the cause of itchy skin at night is because they are active during the night than why would I still be most itchy at night if I'm healed? I am so terrified that I still have them and what's even more despairing is that I have begun to date and I'm so afraid of doing anything with anyone causing them to be infected. This has been such a stressful time to the point that everytime I see a friend itch in front of me I'm afraid some how I infested them or they infested me. I'm going crazy, but this information has helped and if I am not seeing an extreme improvment by Monday I am going to call the doctor and see about getting more cream as I will be going home for the holiday and can treat myself there without touching my own bedding and so on.

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      Samoa6 4 years ago from San Diego

      C - it definitely takes a while for the itching to clear up - we still had outbreaks now and then for a couple of months before it all went away. a lot of it may simply be a reaction to the medication. hang in there, and as long as you've covered yourself thoroughly (do you feel anything on your face/nose/eyelashes?) then most likely you will be fine shortly.

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      4 years ago

      Thanks Samoa6...this is what I figured but as we can all know we start second guessing everything we did thinking we didn't cover everywhere or missed a step. My doctor said I didn't need to do my face or scalp, but I did anyway as my scalp was itchy. Other than that my face isn't itchy except I have a scruffy face so every now and then I do itch there. Thanks for the prompt response. I am going to give an update next week just because I think this forum is great and it helps people feel less alone and paranoid they haven't kicked it. Like I mentioned I still get itchy day or night but they flareups don't last long. An hour ago my arm got itchy and now it feels fine.

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      Samoa6 4 years ago from San Diego

      C - the waiting really was the hardest part, because as you said, you can never be sure you got everything. but just force yourself to wait it out, and don't overdo it with the permethrin - in our experience this caused more flare-ups and itching. good luck - i'm sure you'll be fine shortly.

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      Scared and losing 4 years ago

      Hi Samoa, thank you so much for your post. I have been nonstop crying for 7 days. I to like many others have been online reading about people who have had this for years, really freaks you out! I got scabies back in may, I thought it was excemea. I went to the doc in August, (I have had bad excemea in the past) doc looks at it thinks oh ya excemea. Then in September it got worse started looking up rashes and scabies came up. It was the same symptons. So went to the doc she agreed scabies. I did what the doc said. I still felt horrible a month later. Plus I was having surgery and I didn't want to deal with this! The nurse said I was fine. I had surgery and was focused on that. So a month later (Nov) I saw new bumps and felt crawling. I had a tube of prem and I decided to do it. I did it from my feet up. I did see black little spots after I was done. I put it on my face eyes, but now I feel like I have them in my hair. I was thinking of doing another treatment this will be 9 days after the 3rd one. I have long hair and scared that the scabies might be in my hair. What do you think? I don't have any new bumps since 9 days ago, i do feel crawling. I went to the nurse this past Wednesday and she looked though my hair and skin and said I looked fine. I'm scared though it might have gone to my hair. I also soo little black dots everywhere. Did you ever feel crawling on your hair?

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      Samoa6 4 years ago from San Diego

      Scared and losing,

      First off, you cannot see scabies with the naked eye. The little dots you are describing could be some other kind of mite though. Are they moving on your skin? Your house could be infested with bird or rodent mites in which case they would not be living on you, just attacking you since their normal host has vacated a nest somewhere. Have you checked your window sills, doorways, vents, electrical outlets to see if you can find a place where something might be entering your house? If that's the case, you need to get rid of the nests and birds/rodents. Those mites can live a very long time without their normal hosts, and in the meanwhile they will bite humans (even though they cannot continue to reproduce doing so) - you would just have to wait forever for them to die off, which could be miserable, or fumigate possibly multiple times in the hopes of killing everything.

      Second, if you are in fact dealing with scabies, you'll need to treat your scalp. I did not bother with covering my hair with the permethrin, just my scalp. They could definitely be in your scalp, and maybe even temporarily on your hair, but there is no reason for them to stay in your hair for long because they prefer to be under your skin. If you did not treat your scalp along with the rest of your body, I would talk to a doctor who is knowledgeable on scabies and consider re-doing the treatment, twice, one week apart. You can also ask for the oral medication stromectol, to back up the permethring. If you have treated adequately, I would definitely search around for bird/rodent mites that are entering your house or workplace somewhere.

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      Scared and losing 4 years ago

      Hi Samoa, thanks for getting back to me. I don't see the black dots moving. It's just after I take a shower I see these little back specs they are pretty tiny. I have a derm appt this Wednesday. I just have this weird crawling feeling. Sometimes on my head and on my arms and legs. After the 3rd prem treatment I don't have that crazy itch that I had before and no new burrows and the old ones are healing. I actually didn't do a 4th prem treatment. It's crazy my husband slept with me for months and never got anything. I have a daughter and she to didn't (thank God). I did use the Tea Tree oil after the 3rd prem treatment, and going to the sauna and I didn't feel itchy like I did with the last 2. Just hoping I can get back to normal soon. Having to deal with this during the holidays is depressing.

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      Samoa6 4 years ago from San Diego

      Scared and losing,

      The black dots are definitely strange. Someone else mentioned having that a while back, but they never wrote back with whatever it turned out to be. You might want to tape them next time you see them so you have something to give to the dermatologist in case the dots are not on your skin when you are at the doctor. This way he/she will be able to identify what they are under the microscope. Concerning scabies, if this is indeed what your doctor turns out to think it is, then you might have to re-do the treatment and include your scalp this time. You should really only need two permethrin treatments, one week apart, if you are covering yourself adequately. You do not have to drench your hair, but definitely cover your scalp and your face being careful not to get it in your eyes.

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      Scared and losing 4 years ago

      I was wondering since Thursday will be two weeks since my last treatment if I only needed to do 1 more. I don't have any new rashes, or bumps. Just weird crawling feeling, not all day just here and there and everyonce in a while a prick pinch feeling. I have taped a few of the black specs and will be bringing it to my derm appt today. I was really hoping I was at post scabie stage. I'm getting so discouraged that I am going to be one of those people who have scabies for years. It also doesn't help that its the hoildays and I have to say no to any invite I get because I'm so scared to infect people. I will let you know what happens in my derm appt and after my 4th prem application on Thursday night.

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      Samoa6 4 years ago from San Diego

      Scared and losing - good luck with the doc, and take it easy on the permethrin use. You are only supposed to do 2 treatments with one week in between. Any more and you are probably just exacerbating your skin's reaction to it.

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      Scared and losing 4 years ago

      Hi Samoa, my appt felt like a waste of time :-( the derm checked me out and said looks like my skin is very iterated. Which it is the perm makes your skin look horrible. I gave her the black specs, she looked under a microscope and said it looked like dead skin, and did not look like a bug. I'm pale as hell so having black specs is soo weird. Of course when I talk about having a crawling feeling, I get dismissed. She said that because my skin is so traumatized and that I have dandruff that's why I could be feeling crawling feeling. I will admit not till my 3rd prem treatment did I start to feel crawling feeling. For me the it most mostly itching and bumps at night. She precribed a whole bunch of stuff, for my hair and skin. I wish there was a sure way to know if I was still infested. I want to move on and do my normal activities, but scared that I might get people infested. It's been 14 days today since the 3rd prem treatment and putting tea tree oil on just about every night before going to sleep. Not sure what else to do...she even says like my last doc not even sure if scabies is what you had. Two docs and 1 nurse and they all say what ever I had is gone. Tonight will be my last night doing sea salt vingar bath and tea tree, I'm going to see how my skin feels after that. Keep you posted.

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      Samoa6 4 years ago from San Diego

      Scared and losing - good luck, we'll be happy to hear once it's finally over.

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      questions? 4 years ago

      We have 2 bags in the restroom, one for colored and whites, and another for towels, which is closed with a clothes pin. each night I take them outside and date. I do not have a dryer so I wash them after day 7 of the bag being closed. Then I wash in hot water. 120deg. or more and hang on the line. Will this be sufficient, I do not want to become reinfested?

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      Summer18 4 years ago

      Scared and losing, I had crawling feelings after treatment too. Even itching in places where I had no bumps. It eventually went away. But it took some time. You may just have to wait it out. I did notice that whenever I was preoccupied with things and didn't have time to think about scabies I didn't feel the crawling. Try to get your mind off of it. I know that's hard to do but it can help. I completely understand the fear of giving it to others. It's been a little over two months since my last treatment and I'm only now starting to feel comfortable enough to hug anyone. But I did return to my normal routine about two weeks after the treatment, I just didn't touch people. I also went to a dermatologist and saw three different doctors who all said I did not have scabies. Maybe not, but it certainly cleared up after the scabies treatment. Hang in there. The trauma of it all makes it difficult but it does get better.

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      Samoa6 4 years ago from San Diego

      questions?,

      I am not sure how hot it has to be to kill any mites that did not wash out of the materials. If you are worried, you could always take your wash loads to a laundry mat and use the dryers there, although my bet is that it is probably not necessary.

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      Scared and losing 4 years ago

      I read some where scabies die at 120 degrees. That's why I thought it was a good idea for the sauna...

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      Scared and losing 4 years ago

      Summer how long till the crawlies went away? A week a month? I'm going on 4 weeks since my last prem treatment. I am still not in my bed on a air mattress. I keep myself secluded in a guest bedroom in order not to get me hubby and daughter infected...I wish there was a sure way to know if I am still carrying this mite or if I am cured. Last week I saw three little bumps on my breast that looked like bite marks I put tea tree oil an it went away....7 months of this has been hell. Doctors think I'm crazy. Be grateful to God you are cured.

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      Samoa6 4 years ago from San Diego

      Maria via email -

      Starting from scratch (lol), make sure to do the perm. treatment twice with one week in between. The first treatment will not kill any eggs that might be on you, so you have to do the second treatment to kill them after they hatch but before they lay their own eggs. Cover yourself adequately both times, including your scalp. I didn't worry about my hair (the mites have no reason to hang out on your hair, they like your skin) but be sure to massage the perm. into your scalp thoroughly. I actually went against the instructions on the med. label and put it all over my face including at the bases of my eyelashes and just inside my nose because this is where I felt crawling. I was just very careful not to get it in my eyes. It's up to you how far you want to take it . . . and only do the outside of genitals, not inside. I did it over night, so when I woke up, I first put all of my bedding and clothes etc. in the wash, then showered the perm. off. I also vacuumed my carpets and furniture before I showered. I did not do anything more until the next treatment, at which point I did that entire process again. btw, i also vacuumed out my car, and i would advise vacuuming any chairs etc. you sit in regularly at work. do this once with each treatment maybe just as you are leaving the space before going home to treat. After the second treatment the mites should be killed, but you will continue to have rashes and some itching, possibly even crawling sensations (some people report) for a while. I am not sure, but I think this may be due to the perm. treatment itself, causing its own rashes etc. Do not be tempted to retreat over and over or to spot treat because I think this just made our problem worse. You have to wait out this reaction to the perm., sometimes it takes a couple months with rashes occurring on and off. Check out both articales, "how do you know if your scabies treatment worked," and "atypical scabies symptoms." Feel free to write with anymore questions and I will try to answer. Just be thorough with your treatment, and only do it twice. Perm. is toxic.

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      Scared and losing 4 years ago

      Thanks again! Fingures crossed this will be it!!

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      Scared and losing 4 years ago

      Another question how long did it take for you to know or feel you were cured?

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      Samoa6 4 years ago from San Diego

      Scared and losing,

      The crawling pretty much stopped after the first treatment, but the rashes continued to emerge for about 3 months. At first they were really bad, worse than anything before treatment. We were really worried at that point that the treatment did not work. The rashes looked like poison oak and were popping up in random places, extremely itchy. They were worst within the two weeks following the second perm. treatment. Then they became fewer and farther between, until they disappeared entirely after about 3 months. I guess it was after the really bad rashes appeared and disappeared that we began to feel a bit different, as though it was a reaction to the perm. and no longer the scabies. I didn't have anymore crawling so that was a great sign. It is difficult however to tell the difference between the rashes you might see with scabies and those popping up after treatment, possibly due to the treatment itself. You really just have to wait it out, but my guess would be that the itching will let up a bit following second treatment.

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      Andrew 4 years ago

      I itched for about 3 months with bad rash and lumps on hands, feet and the worse place was armpits and arms. Also got a really bad burn itch sensation on both legs. Finally went to doctor. Used the cream as instructed but did not put on face or scalp. Like everyone else i thought treatment did not work so completed treatment a second time. Rash/bumps totally went and the itch carmed right down. 4 weeks on i still itch on legs and arms and i am now worried the problem as come back. I also get a tingle crawling sensation on my back. Am i right scabbies live on your skin for ages before the itch rash starts. So surely if symptoms reaccur after original treatment then it must be the cream that causes a reaction.

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      Samoa6 4 years ago from San Diego

      Andrew,

      It is difficult to tell if you still have scabies because they were on your head and you did not treat your head, or if it is a reaction to the perm. you are experiencing. It is also possible that the treatment worked but that you've been re-infested. If you wait for another couple of weeks and still feel the problem is not getting better, then I would consider the possibility you still have them and talk to a doctor about re-treating. You need to do two thorough treatments (including the head), one week apart, in order to kill all eggs.

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      4 years ago

      I had the itching and bumps for three months before going to a dermatologist. I did the first treatment with the Permethrin 5% cream and all bumps were gone the next day. Now everything is dryed out and kind little scabs. My doctor perscribed me to do the treatment again, which I will do today. I don't personally feel any crawling I think that may just be in your head as to the are so tiny you shouldnt be able to feel. You will itch for 4-6 weeks after treatment so you just have to deal with it. Im positive my second treatment tonight will have me itch free within a couple weeks. Don't be scared to go to a dermatologist, its a common problem and you shouldn't be imbarassed. Good luck to everyone.

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      4 years ago

      Also don't panic if you get new bumps, its not the scabies that cause the bumps its the allergic reaction to them. If they persist after a month or so, I would personally go see the doctor again and he can do a scraping. I can't help with the rash I haven't experienced any rashes, just bumps and after treatment dry hard skin over where the bumps were that goes away after a couple days. I also didn't treat my face or scalp cause doctor said not to since I had no symptoms in these areas. Last I'll say the more active you stay and keep your mind of off it, the better off you will be. I don't itch at all if I'm busy.

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      Newly hopeful 4 years ago

      Samoa6, thanks so much for this information. I'd like to sound you out on what I've been experiencing. I live in the UK.

      My symptoms started as just the insect bite type marks, often three in a line, initially under my breasts and on my upper back, then eventually my ankles then eventually my face (with one of the lumps appearing on my lips, another on an earlobe). After this, I started experiencing a crawling sensation on the inside of my nose then eventually my eyebrows. This went on for 2-3 months. I initially investigated bedbugs and bird mites but after ruling that out, went to the doctor regarding scabies, which I read was often mistaken for bed bugs. The doctor thought it sounded like scabies but not like scabies. Only just before I started treatment did I see little red lines on my wrist. But nothing resembled the photos of scabies symptoms I saw online. At this point the crawling sensation in my nose was awful and occurring everyday. All symptoms only appeared in the evening or at night and tended to fade away again quickly so unfortunately I've not been able to show a doctor the red lines. My husband was not experiencing any symptoms. (I'm sure he started scratching the inside of nose and around his face and scalp a lot at the same time as I got the crawling sensations there, but I understand that sometimes you just see things you are looking for. He says he's fine.)

      My husband and I underwent the 5% permethrin cream treatment, repeated 7 days apart (and all the recommended cleaning). The packet instructions said only to apply to the face and scalp if under 2 or over 65. But I knew I was affected there and so ignored this and applied it all over, including the inside of my nose and eyebrows - though I missed out the area around my eyes as per the instructions because I hadn't felt symptoms there. I persuaded my husband to also apply it to his face and scalp, despite not reporting any problems, but didn't feel I could ask him to also apply it inside his nose.

      Even after the second treatment, I was still experiencing crawling inside my nose every evening/night, so I purchased another two lots of treatments, which I applied myself and didn't ask my husband to do.

      I had a variety of symptoms that only appeared after starting the treatment. This included a general rash, random large itchy red lumps and little bumps in various places, pinprick sensations and crawling feelings on my legs - including during the day, a time I'd previously never had symptoms, which I now understand can be normal post scabies symptoms. Bizarrely, I was occasionally getting red spidery lines over my hands still - to a far greater extent than pre-treatment. I would have tended to associate this with live scabies still moving around.

      One week after my fourth treatment, the itching went through a really bad spell - always at night again, as per my initial pre-treatment symptoms - including in my fingers and elbows where I'd never previously had symptoms. The spidery red lines in my hands were appearing every evening (but always disappearing again before the morning). I also started getting a crawling sensation round my eyelashes, which I had never experienced before (I wish I'd read your post before treatment as I would have just included my eyelids too, though I did take the cream really close to my eyelids and under my eyes on the third and fourth treatments). After that started, my eyelids puffed up and are still puffed up. After a few nights of this, I then experienced four insect type bite marks , in a sort of line, near my collarbone (which are of a different quality to the little red bumps I've had - they are just the same as other insect bites like from mosquitoes). I hadn't previously had those symptoms there. This was 5 weeks after my initial treatment. I would also tend to associate these sorts of marks with live scabies burrowing around. Also, the fact that these symptoms have been in the evening only, when other post-scabies rashes had appeared during the day, makes me wonder.

      Do you think these particular ongoing symptoms could just be post-scabies symptoms rather than a sign of ongoing infestation?

      Strangely, doing a salt scrub (including on my face and eyelids), stopped those symptoms (I read a couple of posts from people saying a salt bath had cured their scabies). Relieved by this improvement, I have continued doing a salt bath and salt scrub every three days. I don't know whether this can help with the actual scabies, or only with the symptoms. (I'm now at week 6 after my first treatment). I did the same a few days prior to my very first insecticide treatment and it actually stopped the symptoms then too. I'm scared to stop the salt scrubs in case the symptoms come back, but have no idea if I'm just somehow masking an ongoing infestation (due to not treating my eyelids).

      I went to a different doctor who was no use and spoke to me as if I was an idiot, emphasising do NOT apply it to your eyelids and do NOT apply it to inside your nose (I wish I hadn't told him I'd done that). This sort of treatment from doctors is as upsetting as the infestation! He prescribed me a different sort of cream in case the scabies had been resistant to permethrin - which when I tried to get from a pharmacist, found out hasn't been available in the UK for a year due to a supply problem. Thanks doc! It seems that the oral treatment is not available in the UK either. I might start trying tea tree oil, just in case it helps with either potential ongoing infestation or simply post-scabies symptoms and persuade my husband to do the same.

      Sorry for the long post, it just helps to share with people who have experienced similar things! I have felt really on my own with it, particularly because my husband has not had (or been aware) of any symptoms.

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      Samoa6 4 years ago from San Diego

      Newly hopeful,

      You may very well be cured and just reacting to the permethrin, particularly because you've used it 4 times at this point. It certainly seems to be pretty toxic stuff, so I would be very cautious in using it anymore, at least until you figure out what's going on. The excessive rashes and even continued crawling feelings seem to be quite common, even after the medication has been used (successfully). In my case, my rashes were worse, just like yours, after treatment. However my crawling did in fact subside with treatment. But other people (if you read through all these comments) still report feeling crawling even after treatment, and do end up being cured, so the crawling and appearance of new lines/rashes doesn't necessarily mean that the mites are still alive, these sensations may just be part of the body's reaction to the permethrin.

      My only concern would be that if you were feeling the mites on your face/eye area and did not treat it adequately, you may have missed something that would then still be able to reproduce etc. However, at this point, I would not put more permethrin on, especially on your face, given the swelling. Unfortunately, I think you might just need to lay off the medications and watch what happens with the symptoms. They should begin to let up a little bit over the next couple of weeks, although not entirely, if your treatments worked. You may want to talk to a doctor about taking an antihistamine at night just so you can sleep, but other than that, i would not do anything - you don't want to end up masking any continuing symptoms if you are indeed still infested.

      In the meanwhile, are you sure you cannot get ivermectin/stromectol in the UK? What about finding another doctor (do an exclusive search for one who specializes in parasites, maybe someone who has worked in the developing world - I've had much better experiences with such doctors as opposed to those who simply memorize textbooks) who could call abroad and have an order shipped to you? At least this would provide a backup to the permethrin, and most likely would not cause the rashes/ swelling etc.

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      Newly Hopeful 4 years ago

      Thanks for replying so fast. It's tricky because you can't really shop around for a doctor with the NHS - you get whoever is at your local surgery and they refer you to any specialists you might need (with a bit of a wait to see them usually). I could shop around if I just choose to go private instead and pay for it, which might end up being a better option for me, and faster than waiting for a dermatology appointment by referral. On UK scabies discussions, people are talking about ordering Ivermectin from India online and seem the think they have found a good source, but I'm not at all keen on trying that as I'd be worried about what I was getting. I think I need to do more research on what is available in the UK, especially if I go private - some drugs just don't end up licensed for NHS use.

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      Samoa6 4 years ago from San Diego

      Newly hopeful,

      I agree with you on not getting drugs from India. There's no way of knowing what you're actually getting until it's too late. It might be worth it to seek out private consultation even though it's expensive. At least you could take care of the problem. Good luck - keep us posted.

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      Newly Hopeful 4 years ago

      I'm doing a bit of searching around to see if there are any academic sources discussing atypical cases or scabies on the face, etc. I think we're all only going to start having an easier time with our doctors once there is more data out there about it. If anyone comes across anything - even just a blog or article written by a parasitologist or dermatologist with anecdotal evidence - it would be great if you could share it. I haven't been searching for long, but came across this which was interesting - www.wmic.wales.nhs.uk/pdfs/bulletins/Scabies_questions_and_answers_Mar2012.pdf. It's Welsh NHS guidelines on Scabies. I was expecting it to say all the usual stuff, and mostly it does (there is nothing particularly about atypical cases) but it does say, in relation to how the topical treatment should be applied "Check that the whole body is covered. Although it is not in line with the advice given on the SPCs for permethrin and malathion, current expert advice for all people is to treat the head (i.e. scalp, neck, face and ears) as well as the rest of the body. Avoid the areas around the eyes and mouth in children under 2 years, but pay particular attention to the areas between the fingers and toes, the underside of the nails, wrists, armpits, external genitalia, breast, buttocks, and (in

      children under 2) the palms of the hands and soles of the feet." Excellent! I have an NHS document that I can take to the next doctor I see stating that treatment should be applied all over! I feel like taking it to the last doctor I saw to highlight how out of date his advice was. I'm now trying to access the original source that is given for the part about also including the face, to see if I can determine what knowledge or research that is based on - because surely it must be based on an increased recognition that scabies IS on people's faces and scalps, otherwise why treat there? It is also interesting that it says to avoid the areas around the eyes in infants - it tends to imply that adults DON'T avoid applying there, but it is a little ambiguous. I'm hoping if I can get hold of the source there will more enlightening info there.

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      Samoa6 4 years ago from San Diego

      Newly hopeful,

      I think what you are doing is great - you should definitely inform your old doctor too. I think the recommendation about keeping it away from eyes is just to make sure you don't get it IN your eyes because it burns. Particularly when treating kids I guess this could be a problem. But it is about time someone wrote something about treating the head, neck and face. I hope you find relief soon.

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      San Francisco Guy 4 years ago

      Hello! Thank you for your encouraging words. I just want to know if I'm really cured from scabies. I've been exposed to this nasty bugs since October and I've itched this whole month of November until this month. However, my itch isn't as bad before I started treating myself. I keep on getting bumps which I think is pretty normal but I've seen some tiny tracks on my legs and on my right arm. Some of the threads that I've read say that tracks are active burrows and possibly reinfection. I've been washing my beddings everyday for almost two months. I've been changing my clothes everyday and never use the same towel twice. I've also been ironing my clothes after getting my clothes from drier and also been ironing my beddings before I go to sleep. I've been itching at night but not as worse as the first time. My doctor told that I may not be contagious anymore but I'm still paranoid. I've treated myself with permethrin 8 times and been doing a spot treatment every time I see a rash. It's funny because the rash immediately turns brown after I put permethrin. Do track marks could possibly be burrows? I'm so paranoid about it! I would understand if I could only see rash and bumps due to the reaction of permethrin. My skin is very dry and it seems to be healing by now but I see new spots lately. Could I be reinfected?

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      Samoa6 4 years ago from San Diego

      San Francisco Guy,

      Odds are you are cured and simply reacting to the (over)treatment. Eight times is way too much to use a toxic substance like permethrin. The lines you continue to see could just be your skin's reaction to the chemical - poison oak causes lines too, but they are not burrows! So relax for a while, and lay off the permethrin (so long as you treated adequately, twice, with one week in between, including your head/face area). Spot treating is likely only making things worse.

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      San Francisco Guy 4 years ago

      Thank you so much! The track marks are making me paranoid! I've asked myself, what did I miss? I've been cleaning daily and try go minimal as much as possible. I've seen another track mark after I spot treated but only in one part. It made me wonder if I'm getting reinfected from my beddings, linens, or clothes which I always wash in the washer and drier. I've been exhausted by doing these everyday. I'm glad you're the first one who said track marks are one symptom of allergic reaction. I've been readings posts and they say that the disappearance of track marks or burrows indicates that you've already been cured from scabies. My tracks are small, tiny and they're separated. I had a track mark before I started the treatment but it disappeared. However, it started to appear again which made me think that I'm getting reinfected. Can you tell the difference between track marks due permethrin reaction and active burrows? The tracks look like the burrows that I had before I started the treatment. Thank you for the patience and I'm sorry if I'm being hysterical. The tracks are really making me anxious.

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      Samoa6 4 years ago from San Diego

      San Francisco Guy,

      I wasn't able to tell the difference between anything before vs. after permethrin, except that for us everything was far worse AFTER permethrin. Not sure if it highlights what was once there and is now dead, or if it's just an allergic reaction. All I can say is that we waited it out and stopped spot treating and after a few weeks everything cleared up for the most part, with a random rash still occurring now and then after that for up to 3 months. That was a bit disconcerting and made us wonder if we had been reinfested, but we waited it out and it did eventually all end.

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      San Francisco Guy 4 years ago

      Thank you. I can't believe this condition would affect us mentally. I got this awful disease from the job that I used to work. I was a live-in caregiver taking care of old people in a carehome. I didn't know much about scabies until me and most of my patients started itching. Fortunately, one of the staff told the nurse that one of the patients had an itching and show her what the medication is all about. She said it was a medication for scabies.

      I really freaked out when I found out about it. So, I got a prescription from the doctor and all of us started treating ourselves except some of the live-in staff who are stubborn and refuse to do the treatment. I've tried my best to eliminate these mites and even told the owner about the situation. We decided to do a general cleaning and thank God, all of our patients got better. They stopped itching but I still continued to itch until now. Last month, most of my patients passed away due to old age. The good thing is, they all got better. My employer decided to cut the staff but I told him that I should have a doctors appointment before I go back to family. He agreed so I decided to go to the doctor before I left my workplace. During my appointment, I showed my skin to the doctor and she said that I may not be contagious due to the nature of my skin (brown, dry and full of scars) She's really nice but it seems that she is not very well experienced when it comes to scabies. I remember mentioning her about Ivermectin but she has no idea what it is (LOL). She said permethrin is the only medication for scabies and nothing else. After my appointment, it gave me hope that I could be cured and I felt comfortable going out and socialize. However, I still kept on treating myself by just using sulfur soap during showers. It also didn't stop me from washing my clothes and beddings. My obsessive routine continued before I started moving back with my family. I even explained to them that the doctor has cleared me out and there is nothing to worry.

      Last week, I've been seeing rashes again. I spot treating myself and the rashes turned brown. I became dependent to permethrin cream, thinking that it is some kind of magic cream that would make any bumps disappear. A few days ago, I've seen track marks that are similar to my track marks when I first had it. They are like 1/4 inch long that looks like the burrows that you see on scabies pictures. I'm really scared and anxious that they could be coming back again and reinfesting my skin once again. That is when I decided to start writing you about my case. Sorry if I'm somehow bothering you it has been affecting me mentally. I've been praying and hoping that one day, all of this unnatural itch will go away and live the normal itch that I usually have. I really wanted to be itch free and start looking for another job again. I don't know where the marks are coming from. Hopefully, it could be the permethrin reaction that you've mentioned.

      Once again, thank you for your time. I hope you can help a lot of people someday and I wish you all the best for you and your family. God Bless you.

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      Samoa6 4 years ago from San Diego

      San Francisco Guy - you're welcome - and best wishes for relief soon. Definitely consider leaving the permethrin behind at this point though. Also, if there are people at work who are infested but refusing to treat, I would consider leaving and finding another job. Good luck if this is what you indeed end up doing. Check back in a couple of weeks to let us know how you are doing (after stopping the permethrin spot treating) just in case your story helps someone.

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      flah1itch 4 years ago

      The information on scabies is so outdated its unreal in this day and age that you really have to nearly kill yourself to kill these mites . i used cattle pour ons, advantix for dogs , turpentine , bleach and numerous tubes of lyclear cream to try and kill these bastards . Befor this i always bought paraben free shampoos , but after trying tea tree neem all natural etc for months had to opt for chemical route . my body has had such a chemical assault I knew nothing of scabies untill last march , i remembered my daughters granny getting scabies after goin to look after a cousin 6 YEARS previous , i dont know how long she suffered with them as we only get to visit her 3 times a year and i would'nt be that close to her as she lives in england . Anyway we went to visit her in March , we didnt stay in her house, but she asked me when we visited if i would make use of some Bras that she had found which she had bought and never worn , she was cleaning out an old bedroom , she put them in a bag for me and when i came back to ireland i had a look through it , decided to only keep one of them which i tried on and then put in the laundry basket to wash , within 3 weeks i was scratching but i didnt pass too much remarks as i suffer from itchy skin sometimes, due to having the coil fitted but it gradually got so bad i couldnt sleep and i had a rash on my breasts so i went to the doctor who said it was scabies and sent me home with Lyclear crem and told me to maybe change my bedclothes ... my daughter had no symptoms but i done her as well ....

      that was nearly 11 months ago now , i managed to get rid of it twice , took a week off work and went through the house literally took every piece of furniture out sprayed it down with bleach , threw away all duvets cushions and pillows and mats , done bleach baths and lyclear , sulphur etc booked into a hotel for 3 days and applied the lyclear again ( my daughter had got infected also at this stage ) but as i was out of spray for car , ended up getting a bite on foot from car as i had sandals on ..so infected again weary and broke , went through the same performance again cleaned house top to bottom , threw away the newly bought duvets and bedclothes again , bleach baths , lyclear , sulphur tea tree etc etc and so on for another 2 months and managed to get rid again , 2nd time got infected from ironing bedclothes scratched my nose and even tho i had been checking myself every night didnt notice the track on my nose, from there they went onto my scalp which is the VERY WORST place to have it as they seem to bury in further in head , have tryed everything to kill them on scalp wrapped in benzyl benzoate with surgical spirit tea tree vinegar , sulphur shampoo cattle pour on etc but it just keeps them at bayand kill the surface ones , once you wait 2 weeks again youl feel the crawl and theyl start to move down and bite your neck and face, they seem to bury in to far , had about 30 bites on head .. By Xmas i was broke and near the verge mentally i had lost 2 stone weight and was getting bad anxiety attacks from lack of sleep and stress so i decided to dump everything and move house which is what we did , dumped all my clothes hosed down any good furniture and put it in my uncles old shed , i wa lucky that my friends got together and helped me out with deposit to rent new house and collected all there old clothes and gave them to me . I sent away for stromectol pills also to make sure they were gone, got sa parasite cleanse in health shop , cut down on sugar and started on tumeric and garlic supplements , also 4 raw cloves of garlic a day , cider vinegar and 30 drops of Triphala in water 3 times a day . lots of prayers . Hitting it from the inside really helped . I can only describe this condition as been the worst thing i have ever had in my life and it will take us a while to get back to normal living again.. I still get lots of rashes and tingles and i do a body scan every night checking for tracks to make sure as were just a month free of them .

      i remember looking at some forums in the early stages and thinking people were exagerrating , how hard can these be to get rid of , and was sure if i cleaned and washed everything wed be back to normal in a month . also most products that you need to kill them are impossible to get .. there is a shortage in ireland of Lyclear cream so usually had to travel to dozens of Pharmacys to find some , borax powder you cant get here only small little boxes in chemists if your lucky , sulphur, again had to travel half the country to get it , neem oil hard to get , plastic mattress covers cant get, had to buy plastic and use that .. So the moral of the story is yea 6 YEARS ON ..... the eggs can still live which makes you think that the myth of putting clothes in bags for 3 weeks that you cant wash and using again very risky . i wish everyone the best

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      Samoa6 4 years ago from San Diego

      flah1itch - what a horrible experience. have you tried permethrin cream, twice with one week in between, being sure to cover your scalp and face? also, after this much time, you might also consider trying ivermectin.

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      lani16 4 years ago

      Thank you for this article and forum, it is extremly helpful.

      I have suffered from scabies for several years before finding out I had it. My primary symptom was chronic hives and if I treated it with antihistimines I had no other symptom. I had gone to a few dermatologists and several allergists and they could not find out what was causing the hives. I took an antihistimine daily and I was fine. I never gave this to anyone, I think primarily because I did not scatch the bugs off my body. They mostly lived on my back so for this reason I did not notice the infestation. Then one day I felt a little bump on my shoulder and I scratched it and something hard, tiny and round popped out when I applied a slight pressure with my nail. Following that on the same day, I felt around the area and found another bump on my shoulder. Again, just under the skin, and I applied slight pressure with my nail and a hard, tiny, round thing popped out and is was whitish, the size of the tip a pen. This I took to the lab and looked at under a microscope ( I worked in a lab). Suprisingly, it was not whitish under 100x magnification, but brownish. It had a a round, turtoise like body and graduated segmented probe protruding from the head. Also, the the place where I pulled it off of scabed over with a tiny scab. After searching the internet, I realized I had scabies and I made an appointment to see my dermotologist. The dermatologist did a skin biospsy in 2 areas and she told me that the few bumps on my skin did not look like scabies. She also told me that if I had it I would be very itchy. I told her I am and that I have hives but the daily antihistime controlled the itch completely. I did not recieve treament, as she wanted to wait for the lab results. Following my visit, I throughly examined my skin. I found that if I gently massaged my skin I could feel the bugs under it because they have a very hard shell and if I applied gental pressure with my nail they would easily pop out of my skin. I removed about 30 from my back, sides, and under my breasts. But, they were primarily on my back. I found 2 different sizes and all of they had the similar morphology, round, hard, extremely tiny and whitish. In addition, the only way I could distinguish between living and dead was that the living ones caused a scab on my skin when removed and the dead did. So everyday I checked my skin to remove whatever I could find and I would find one or two every so often. I finally got the lab tests back, and they found nothing. My doctor did not want to treat me for scabies. I was devastasted as I knew without doubt I had this and I saw it myself under a microscope. Finally, after 2 weeks, all the scatching at my skin made the burrows very visible and showed the typical zig zag pattern. Also, some started to get inflammed and infected. Finally, based on this visual exam of my skin, my doctor gave me permenthrin cream which I used 2 times, 7 days apart for 14 hours each to my whole body and I cleaned my bedding and clothes. I really feel it worked because it has been 5 weeks since I completed treatment and I have not found any mites under the skin. I check my skin daily. My hives and itchiness have gotten much better, but I am still itchy after 5 weeks, I take less antihistime, usually every other day. I still get red bumps and especially at 4 weeks from the treatment end I had a lot of bumps and pimples on my back. The cure is worse than the disease, at least that was my experience. It is a very slow process, but everyday the itch is less and less. If it was not for this article I would have definitely felt the treatment did not work. I wanted to post my story because everything out there says post scabies last for 2-4 weeks and I still have symptoms 5 weeks following. I am more concerned to rid myself of the itch and get off antihistimines for good. I am not bothered by the red bumps or pimples. I will definely post on how long it took me to get over this.

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      Samoa6 4 years ago from San Diego

      lani16 - thank you for sharing your story. best wishes that you experience more relief soon.

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      San Francisco Guy 4 years ago

      Hi Samoa, how have you been? It's been a while since I last posted a message. I've been doing great but I see random rashes from time to time. It appears but suddenly, it goes away. It's a little bit itchy but not as bad as before. Did this ever happen to you during post scabies treatment? You said the post scabies lasted for 3 months.

      It's been 2 months now since my last treatment. I see random bumps occasionally. Some of the bumps are pretty painful. It's like acne with pus. Anyway, hope you're doing ok. Let me know what you think about my case. God Bless!

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      Samoa6 4 years ago from San Diego

      Hi San Francisco Guy - Sorry for the delayed response - What you are describing sounds very similar to what happened to us after treatment with permethrin. These rashes eventually went away though, as you mentioned, after about 3 months. Even sometimes after that I would feel a minor crawling sensation or something but it was always fleeting and I am pretty sure it was just because the treatment did a number on our immune systems. Glad to hear that for the most part you are doing well though. I'm sure the rashes will entirely disappear soon.

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      San Francisco Guy 4 years ago

      Yeah! Thank God I've been doing pretty good. It was a terrible experience and I'm glad my skin is doing pretty well. I've also noticed that my skin became really sensitive. For instance, if my skin would be exposed in a dust, it would look like a mosquito bite that eventually disappears. Thank you so much for sharing your experience and giving us hope. I hope all is well with you and your family.

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      cftool 4 years ago

      This has helped my stress alot . I've been dealing with this for about 5 weeks now and done a treatment a week thinking these things aren't going away. It really plays a mind game on you. My boyfriend got it from the hostipal we think. I showed no signs until after the treatments then red bumps and pinching burning feeling that make you want to itch. I think I ODed on the cream. Your paged helped me out with putting my mind at eas. I'm takening allergy med to help with the itching in the mean time .

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      Samoa6 4 years ago from San Diego

      cftool - hope it all lets up very soon. definitely lay off the permethrin, it just makes things worse after the initial two treatments, one week apart.

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      lani16 4 years ago

      Hello -

      I just want to follow up and seek advice. I'm about 10 weeks past the 2nd permethrin treatment and I am still itchy. The itchiness is far less than before treatment. My skin has cleared up tremendously, and I am still getting a tiny pink pimple here and there. I have been treating the rash with antihistimine and it helps. But, in the area of my infection (chest, back and shoulders) I have red, itchy skin with a few tiny mosquito bite like bumps and some raised portions of the skin. Based upon how good my skin looks I would think I am cured, but because the itchiness persists I am having doubts. I know you said about 3 months for the rash to go away, but in my case I am expecting longer because of how I currently feel. Any advice would be appreciated. I don't want to retreat unless I see evidence of a mite and I have not seen that. I did 2 permethrin treatments 7 days apart and I really do not want to repeat it unless absolutely necessary. Did anyone else have a rash longer than 3 months?

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      Helo26 4 years ago

      Hi Samoa6, I am so glad I found your site but wished I had found it earlier. My story started in the new year when I got a break out on my chest of little pimples that were itchy. I didn't have the tell tale bumps on my hands or feet. Just one spot on my lower leg but I didn't know what this was. I thought it was an insect bite. I went to the Dr's and yes it was scabies. I got Permethrin but was hesitant to use it so tried the natural route. I used tea-tree oil and tea-tree baths. These really seemed to dry out the bumps and it seemed to be working. However, my mind just went crazy as I saw more bumps emerge in other places and I panicked and used the Permethrin. I only did it once and before I washed it off I had a major rash on my neck and chest. I think this was because I didn't wash other stuff off my skin first and just put the cream on. Stupid lesson to learn I guess. Anyway, my husband treated himself a few days after me and he repeated it in 10 days.

      After the rash had died down I started to get other bumps so I freaked out again and re-treated with Permethrin 3 weeks later. Then I followed this up with a second treatment 7 days later. So 3 treatments in total. In between I used a bit of Tea Tree oil and Manuka & Tea-Tree cream and soap. All was good until a week after the second treatment and a rash appeared on my neck and chest. Then it continued around the back of my neck and behind one of my legs. It was little bumps that mimicked scabies but was definitely a rash. Then I got bumps on the inside of my arms and on my legs and I was so, so itchy. I wasn't even this itchy when I had active scabies. I really panicked when I got the rash behind my knee as this woke me in the night and I freaked out. I am taking anti-histamines to help me sleep as I got hot at night and I get itchy. I have a fan on me all night.

      I had some relief as the rash on my chest lasted 2 weeks and then went down. Yay I thought, but now other rashes are appearing and they are so itchy. Post-scabies is just so much worse than the actual scabies itself. I have a major rash on my stomach and the tops of my legs. The actual scabies wasn't a rash for me just bumps over my body so I am definitely sure this is post and a major reaction to the Permethrin. It is so toxic and I so wish I hadn't used this stuff. It has ruined almost 3 months for me.

      I keep reading your posts going over what you have said and I am sure I had the get worse before better reaction to the Permethrin. I am still waiting it out and hoping these rashes will subside. I do have hope as the chest rash went but it seems to be possibly popping up again. I had a rash around my neck and my face is so itchy. This went a few days ago but now has re-appeared. I am guessing these rashes go and come back...did that happen to you?

      Some of the rashes have subsided but others have appeared. I got the first rash a week after the second Permethrin treatment and I am now at 3 weeks post Permethrin and 2 weeks into the rashes. I am going to wait it out for another 2-3 weeks in the hope they will die down. It is so hard waiting this out and being more itchy than when I actually had scabies. My rashes are hot to touch as well which is really bugging me but I'm trying to stay positive.

      Thanks for a wonderful site it has been a great help to me and I will try to stay positive and beat this demon.

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      Samoa6 4 years ago from San Diego

      lani16 and Helo26 -

      Everything you're describing sounds similar to what we went through - unfortunately all you can do at this point is wait it out. Don't be tempted to overuse permethrin. Best wishes, and keep us posted as to how things turn out. the duration of "post scabies" symptoms varies with the individual so it may well last longer for you than for others. It's difficult to say.

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      Magda 4 years ago

      Thanks for your wonderful information, I also had scabies, took it from two dogs I rescued. It itched like hell and spread very quickly but after Ivermectin treatment it simply went away. I also washed clothes, waccuumed, etc. But then I continued to have some small spots and itch, although not so much as before - a kind of delayed allergic reaction. Since I am allergic, that was no news for me, and I didn t want to continue using strong medication. I had some counselling from a chemist and used a diluted mix of tea tree oil, neem oil and clove oil, all diluted in sesame oil, which is very soothing and good for the rash. Neem oil has been proved as killing mites and it can also be dissolved in soap for washing floors, clothes and dogs. We are all much better - of course the dogs also had to be treated. And good food also helps. Nutrition is important. I still have some itch now and then but getting better all the time. Ivermectin was very good without any side effects.

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      Samoa6 4 years ago from San Diego

      Magda - Thanks for your comments and the endorsements for tea tree and neem oil. I had read they were effective but was not sure if it was true. Do you think they would have worked alone if you had not used Ivermectin? Just curious. Thanks again for commenting, glad you are feeling better.

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      Helo26 4 years ago

      Hi Samoa6, thanks for the reply. I am now 6 1/2 weeks post treatment and 5 1/2 weeks when the first rash appeared. I can now thankfully say I am clear. It has been such an emotional roller-coaster and one I thought would take a while to get off. I still get a rash coming up on my chest and neck every now and then but it goes away for at least a week or more and then I will get itchy again. I can't believe how the rashes go but come back it is amazing how the meds play with your skin/immune system.

      I still have marks/scars from where all the rashes appeared but they are slowly fading. The turning point was when the red hot rashes and stinging pushed me over the edge and I finally went back to the doctor to get something to help. She prescribed hydro-cortisone and that is what has helped so much. I still use a bit when a rash pops up and it clears it up fast. I get random spots but they go after a few days or a week. The rash on my stomach lasted weeks and that is why I had to get something to help as I was going mad. It has turned me into an emotional wreck but I am now a different person again and happier.

      I want to thank you so much for doing this page as I would have gone crazy if I hadn't have read it. I kept reading you text over and over trying to tell myself it had gone and all the bumps were a reaction to the meds and it was absolutely right. Very powerful stuff that I really wished I hadn't used 3 times. In fact I think the whole thing had probably gone after treating with one treatment and the tea tree oil but it was the bumps appearing after treatment that plays with your mind and that is why people over treat and the actual after effects are so much worse than scabies. I have suffered awful rashes, itching, stinging and redness that I never had with the scabies.

      All I can say is thank goodness it has gone and I am only getting occasional rashes. Thanks again Samoa6 you have been the most amazing help at a really trying time.

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      Arguef 4 years ago

      Hey! This is kind of off topic but I need some advice from an established blog. Is it very difficult to set up your own blog? I'm not very techincal but I can figure things out pretty fast. I'm thinking about making my own but I'm not sure where to start. Do you have any points or suggestions? With thanks learn more

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      Samoa6 4 years ago from San Diego

      Arguef,

      This is really my first set of articles, and Hubpages made it quite easy. They do not support "blogging" per se, but if you enjoy writing articles, I would recommend giving it a go on here.

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      TimBrightonUK 4 years ago

      Hey Samoa, like many your articles have helped stabilise me through the unbelievably tumultuous psychological see-saw of Scabies/Post.

      I'm writing this 1 day after my second Permethrin treatment.

      I was going to hold off from writing here until I was all cured. When that happens I'll recount my experience in full as the worst thing about this situation has been the feeling that you're in it alone with no medical help able to verify within accuracy whether you even had scabies in the first place.

      My symptoms matched yours (they had got on to my face and scalp - I believe this is due to a fungal infection that I figure would have immuno-suppressed me).

      As of now, I'm feeling a little crawly but it doesn't seem to be locked to a circadian rhythm like the Scabies did so I'm chalking it up to Permethrin. In general I feel on the mend, but naturally as you're aware these states can be frustratingly transient.

      To note, I agree that Permethrin is a serious chemical. I too have noted a twitching eyelid, muscle spasms elsewhere and it even caused my nose to bleed. So yeah, that stuff's pretty gnarly. Luckily I did enough research before beginning treatment to know to apply it to my face/scalp aswell as whole body for 2 treatments.

      Cleaning wise, I've only been as fastidious as you were.

      When humans are under huge stress, the predilection for magical thinking takes hold, and this massively distorts are understanding of a highly fallible parasitic mite. Let's contextualise this, we've got around 600 million years of evolution on their ilk. Applying Permethrin to the skins surface is like a total nuclear strike.

      We have the technology, even if often it's blocked by medical egos.

      The reason I was spurred to write here today was that I too have been having the 'black dots' people speak off. This is a very emotive side-affect, as much of the experience of Scabies feels passive to some degree. It is horrifying to see black dots emerge out of your skin from the site of notable sensation.

      To make it worse, nobody seems to know what they are!

      I realise now this may simply be because they're nothing. I found this post over on Topix, and though the link the research came from has since dried up, it sounds congruent with other explanations that these dots are in fact just debris:

      "Manx88:

      It's keratin degradation, which happens in the die off stage, and is due to chemicals, bacteria, or fungi. If you get a lighted magnifying glass (you can pick up for about $10 at any electronic store), you will find that they look like fibers. People in the Morgellons community talk about this phenomenon a lot. They are tiny and look like mites, but they are not mites. It's a product produced by your own body. When they emerge after a permethrin treatment or ivermectin, it's basically waste material. You may also see tiny white granules which some people erroneously believe are eggs. Those are also keratin waste products.

      btw, an interesting article came out about morgellons, which more and more research supports is NOT delusional. Recent studies show keratin degradation happens for a lot of reasons, including parasites at the deep dermis level, chemicals, bacteria, or fungus."

      Just thought I should bring that here, as the rest of the internet is a very wild, speculative, bleach bathing hypochondriatic mess. I don't doubt some people have something more complex than scabies, I don't doubt people out there are suffering from something medical science has recognised - but in most cases I'm beginning to realise people are cured (and those using the black dots as their barometer for healing will always stumble before the fact substances like Permethrin itself will exacerbate this reaction).

      I've read hundreds of posts from a lot of very scared people, and I empathise and hope each and every one finds a way to get some semblance of their life back.

      To those reading this, be extremely mindful when searching websites such as Topix, as others have said it raises more questions than answers - and you will find some people in their fear and despair want nothing more than to scare others into feeling the way they do.

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      Allie 4 years ago

      I have really found a lot of this post and the comments helpful. I am currently halfway through treating my own case of what the doctor diagnosed as scabies. Having felt its effects and researched, I'm not pretty certain it is in fact scabies. (or hopefully was). I took my first perm cream on Friday-Saturday night, it's now Tuesday night, planning next treatment on Friday. I have done all of the washing, etc. I do have two cats, and am concerned they might be involved? But medical professionals say cats cannot carry, and these two have taken flea pills. Since doing the treatment, the rashes on my arms have gotten more tender and swollen, sometimes really stinging. Also, I believe I have gotten an infection in my belly button (didn't have before the cream, just had a lot of bites there). I assume I should still do the cream as directed on Friday, but I'm concerned by all the tenderness and swelling.

      When I took the cream, I had the rash on my inner arms, thighs, stomach, back and then had really bad rash on the underarm and groin area. Since taking the cream, a couple more bumps here and there have come up around my buttocks, and some rash seems to have broken out on my lower legs, feet and hands - nowhere near as bad as the rash on the rest of my body, but still itchy. I also have bumps on my palms and up and down my fingers, though they seem pus-filled, so they might be just post scabies? I'm concerned about the rash on my upper arm and lower legs and feet - is it common for new bumps to show up after treatment? I'm sure there's somewhat of a delay with reaction, since it's an allergic response, but some of these new bumps I was noticing yesterday and even today. Like I said, they don't itch nearly as much as the tender, swollen rash on my inner arms. Also, the rash under my arms and around the groin area seems to be settling down, flattened out with a bit of skin flaking - looks like it's healing to me. Though it of course freaks me out that crusted scabies also has skin peeling, I don't think it's possible I've contracted that kind of scabies since I first noticed the symptoms only two weeks ago and started treatment within a week of symptoms. At the beginning, I had a light rash then spent some time in a hot tub and the rash just bloomed. That was why I wasn't sure it was scabies - but the way it itches and the way it was spreading without abandon no matter what I did made it clear it wasn't just hives or something (I've never gotten hives before).

      Anyway, long rant aside - I'd love to know if you think my symptoms are a reaction to the perm cream or are a continuation of infestation? I'll be treating again on Friday, so hopefully that'll kill anything that might be leftover?

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      Samoa6 4 years ago from San Diego

      Allie - hard to say , but the permethrin is powerful stuff. wait it out and don't complicate the treatment by adding other things that could exacerbate the rash. if it is the perm. causing a reaction, it'll let up within a month or so after treatment.

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      scabiesss 4 years ago

      hello, pleaaase i can't find any opinon on that, i think i'm scabies free but does it still itch under warm water?? i used one month ago ivermectin and mix of essentials oils, baking soda baths etc...i remember how much it was itchy under hot water, but since it still itches, way less but i can feel it when i put my hand under the tap, i dont have any new burrows or bumps just some pinprick (2 sec) now and then, my skin itches sometimes but i sleep at night without having to scratch myself.Could I be re-infected?? thanks!!

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      Samoa6 4 years ago from San Diego

      scabiesss,

      it's difficult to tell if you still have scabies or have possibly been reinfected. however i can say that it is normal to experience continued itching, pinpricks etc. for a long while following treatment. our symptoms lasted several months on and off, which made us also unsure as to whether we were cured. if you are worried, you might want to supplement your ivermectin treatment with permethrin. but still expect to feel symptoms for a while afterward.

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      scabiesss 4 years ago

      thanks for your fast answer! i'm only worried when some parts of my body itch under hot water, the rest of the time i act like i'm cured :) I had some side effects with Ivermectin( pain in the chest for several days), so I wouldn't recommend people to take it, even if the majority are fine. So if i'm reinfected i will use an external treatment, but will try first with only more natural stuff, like sulfur, I wonder why in France (i'm french)they dont sell it over the counter, very hard to get it, mostly online, is it because people might be allergic or because it's too good too cheap...anyway for me it's hard to believe as doctors say here, that it's impossible to get cured with natural products...how on earth people managed it centuries ago?? when i read than some people use once, twice..four times a treatment in a month, you have to stop!!(twice per month should be the max) you dont know the future health issues you might get, thanks to website like this you learn that it does itch even after the treatment for a while if not for months.It's very stressful not knowing if there r still there, I dont think Ivermectin works 100 % cos i had new burrows after 2 weeks, but i kept using essentials oils, garlic, white vinegar, sulfur soap , epsom salt /baking soda baths for 2 more weeks, I used allergies tablet for a week(so i could recover some sleep) but then stopped as I i couldn't tell if I was less itchy at night due to scabies or tablets..the rash is a nightmare true, but to be honest the way of living was more stressful, to avoid the stress of contaminating others family members,I spent most of the time between my bedroom , the washing machine and the bathroom surrounded with plastic covers everywhere, because if you r too stressed out, I believe it's even harder to get rid of them as you won't know the difference between post scabies syndrome or live scabies.Now I have to clean up all the bags i left aside for few weeks ,fingers crossed to avoid being reinfected! Good luck to everybody, scabies will teach you patience!

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      Joseph Dunn 3 years ago

      Take hold. My friend who is a Neurologist at UCLA Medical Center says my after Scabie syndrome is normal. The itching is actually your body is healing. Continue using Benedryl 50 mgs and drink plenty of water. Make sure you are used the Permetheryn and Ivermectin correctly. My Doctor friend says there is a light at the end of the long tunnel.

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      Affected 3 years ago

      Hello all. This site is so informative, thank goodness I came across it. Sure gives me a sense of relief of what to expect and how it should be treated carefully. Thank you for creating this. Theres some info that I didn't know about, like the after stages of being treated. The ongoing itching.

      I have two boys that in the first stages of being treated. Clean, washed everything in their rooms. One question I do have is, What about their shoes? What do I use to keep them clean so they don't get reinfected again?

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      Sandra 3 years ago

      After 4 permethrin treatments, 3 stromectol, permethrin spraying the house and being told by doctors that I am cured, including scraping, I have new bites today after deep cleaning & dusting. Am I now contagious again?

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      Samoa6 3 years ago from San Diego

      Affected - I would just wash their shoes and dry them in the dryer if you can when you wash all the bedding etc. as described above, and then make sure they wear socks with them. if you can't dry them in a dryer, put them out in the sun. or, you can always have the kids not wear them for a week or so bc nothing can survive that long without being under skin.

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      Samoa6 3 years ago from San Diego

      Sandra - you should only have to use permethrin twice, one week apart covering your whole body both times. you're probably reacting to the excess use of this drug. see all the relevant comments above. perm. causes a lot of problems for your skin and the rashes often look and feel same as scabies.

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      Freaked out! 3 years ago

      Hi! I know this infestation scares most people into near hypochondriac states (LOL), but my husband and I treated with permethrin for the first time yesterday. Per doctor instructions, we showered, dried off, then applied the cream from the neck down. Before the shower, we stored clothing that could not be washed on hot, and washed/dried the sheets on hot. We slept on the fresh sheets and the cream was left on 13 hours! We showered it off this morning. Tonight, I have all sorts of new bites/bumps that itch like crazy in areas that I didn't originally and what looks like a new "track" mark. Does this mean the treatment worked and I was already re-infested, or didn't work to begin with? Or is it still in the process of working? Also, I put a sheet on the couch where I spend nearly every morning doing crosswords, but it's microfiber so that's about all I could do. Could that be a problem for us?

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      Samoa6 3 years ago from San Diego

      Hi Freaked out!

      The permethrin seems to create more problems of its own, so it's probably working but you'll have to wait it out until the next treatment is over. When we used it, some of the new rashes were in lines or tracks, which left us also wondering if the treatment had worked, but it did in the end. You will still need to be careful i.e. act as though you still have scabies until the second treatment is over bc you will still have eggs that are not killed by the first treatment. once they hatch, you treat again (in one week) to kill the new ones before they can breed and at that point everything will be dead. You will most likely still have rashes etc. but they will eventually disappear. Good luck.

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      Samoa6 3 years ago from San Diego

      maribul - you should definitely make sure you all treat yourselves together, you, your kids, your mother, etc. two times, with one week in between. wash the bedding etc. etc. just before washing off the cream in the morning. not sure what to say about your significant other - i would guess that if two months go by and he has no symptoms, he's probably in the clear. however the problem is if you continue to come into contact with him while you guys are treating i.e. over the next week or so, or if you are in contact with him after you are all free of it and he just hasn't shown it yet, say in two or three weeks from now. so, the only thing you can control is what you and your family do, and i would highly recommend treating the face just be careful not to get it in the eyes particularly of young children. that's all you can really do. then, minimize your contact with your boyfriend until approximately 6-8 weeks have gone by and he hasn't shown anything. also, remember the treatment causes rashes to break out and they look JUST LIKE the scabies infestation. don't freak out and overuse the permethrin. just stick to your two treatments, but treat EVERYONE or you may just keep passing it around.

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      chasity 3 years ago

      I've treated myself with Permethrin twice, and I've since felt okay.. except for tiny, itchy, now a dry and chapped looking rash around my lips? Is this a freaky side effect, or do I seriously have scabies on my lips now?! It literally looks like I have drawn scabies on my lips with a pencil liner on my lips, if that makes it any easier to see in your mind, and they're extremely dry, tight, and itchy. Carmex lip balm soothes it for a while, but I have been suffering for weeks.. it's embarassing because it looks like I have herpes or something! Any advise?!! ):

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      chassy 3 years ago

      (I posted the previous comment) -- Also, a clear fluid comes from these bumps, rash, scabs.. whatever they are! They're so itchy, sore, and overall a huge aggravation. I'm just going insane, please help.

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      Samoa6 3 years ago from San Diego

      chassy - i have not yet heard of this specifically, but my guess is you might be reacting to the permethrin. did you treat your face with it as well as the rest of your body? if so, you may just have to wait it out for a month or two to see if it subsides. we continued to react to the perm for about 3 months before it all finally went away. maybe talk to a dermatologist in the meanwhile to find out if there is something better than carmex for it. best wishes.

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      chassy 3 years ago

      thank you so much for the response!! - I did treat my face, and I'm thinking I got a little too close to my lips, or I may have accidently touched my lips?! I also noticed the hair around my upper lip (which I've never noticed before) has gotten darker?! I'm obviously not cut out for that permethrin crap.. praying we never have to go through this again!!

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      Samoa6 3 years ago from San Diego

      chassy - me too! for a lot of people it seems the reaction to the permethrin is worse than scabies itself! but it should subside if you wait it out. if you don't mind, could you check back in here in a month or so to let us know? i'm sure a lot of others would like to know how it turns out. thanks.

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      chassy 3 years ago

      Lord, I pray it goes away soon! & yes, I'll definitely check back in and update you ASAP! As of right now, my lips are still very itchy, and the "scabs" kind of flake off when I lightly rub them with a damp paper towel.. I'm currently using Chapstick to keep them from chapping as bad, but I can still feel the "fluid" that's kind of coming out of them? Again, it's mainly around the outer edge of my lips, as if I drew them on with a lip pencil.. so strange! ANYWHO! -- I've had crazy, ridiculous, unheard of reactions to things before.. example: Singulair made the soles of my feet bleed, yes, bleed. Bizarre right? Only 24 years on this Earth & I swear I've seen it all.. God bless my unborn children haha! This was the ONLY PLACE I could find anything regarding any crazy side effects of Permethrin.. I have googled, searched, done everything BUT beat myself up over this.. I've cried, but not beat myself up yet haha! If there's any crazy side effect, trust me, I'll get it - I just can't believe this one though. Thanks again for your responses & I'll update you very soon!

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      ballplayer7 3 years ago

      Hi Samoa6, thank you very much for posting your experience. It is comforting to know you were able to beat this thing. I was treated for Scabies one month ago. Applied the permethrin twice, seven days apart. I did not put it on my face, however, and after reading your experience that worries me. I have itchy bumps that come and go accompanied by occasional tingling. Itch is much less severe than before applying the permethrin. Are you able to share with me the good dermatologist you found? I too live in San Diego and would like to pay him/ her a visit. Thank you.

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      Samoa6 3 years ago from San Diego

      Hi ballplayer7,

      When I lived there I went through Kaiser and I cannot think of the dermatologist's name anymore as it has been a while. I can tell you it was a woman and she worked down in the Vandever offices. Best wishes to you - if things are feeling better than before you may just want to wait it out a couple more weeks. We had bumps that came and went along with the wispy/tingling sensations after treatment for a few months, but it eventually let up.

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      Etcantu 3 years ago

      Thank you so much for these comments. I have been dealing with this for two months. I believe I contracted it from my dog but I do not know where he got it. I have probably over treated myself since I kept thinking I was reinfected. The crawling sensation I understand now can come from the treatment too. I am terribly allergic to permethrin or I just poisoned myself from too many treatments. This partially came from my doctor and vet misdiagnosis us as we'll as misdiagnosis myself. I thought it was bird mites since I rescued a bird about the same time I started itching but you can see bird mites. Anyway, last and final treatment was Sunday. Since I have broken out in rashes 2x a day. I cannot make plans and barely work being in a antihistamine funk. Finally I have a right mind..no more treatment and just hope we are in post-scabies mode. My dog will still get his weekly lime sulfur dibs until I see no itching. He has been recovering nicely. It's been depressing all Round since I am not my usual Social self and I have not hugged my dog in a month. I miss him. I wish I would have read this sooner. The rashes are a bit unbearable.. They are hugh welts that isch like crazy so much so I cry a lot. Steroid cream and bills do help...tea tree oil and Benadryl only help. I guess I can stop changing my sheets and towels daily..save me from washing every wo days. Thanks again.

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      Etcantu 3 years ago

      Update: I slept well since Friday but still taking Benadryl each night which helps I did wake up from itching or crawling until last night. I did not sleep well even with two Benadryls. Felt crawling and today my lip swelled and tonight a bumped formed above my eyebrow. It swelled quite a bit. I worry because my dog is into 3 weeks of his treatment with lime sulfur dip..prior he was being treated with revolution. He does not sleep on the bed as of one month ago and most times I use gloves when touching him. I have no idea if he is still contagious but I have done everything I could to keep us separate. This has been really painful as he is very affectionate. Anyway, I worry he can still be infectious. This bump on my head and lip swelling happened before treatment. Any words of advice?

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      Samoa6 3 years ago from San Diego

      Etcantu - the scabies that infest dogs are different species from those affecting humans; although those on dogs can still try to burrow etc. on you, they cannot reproduce on you. So, if it is indeed scabies, you need to a) get your dog treated properly for scabies first and make sure he is cured before you can expect the mites to stop bothering you, and b) if you are still having a problem then treat yourself for human scabies. Also, be aware of the side effects of permethrin treatment. This will cause bumps, rashes, crawling sensations, etc. etc. etc. sometimes for months after treatment. Other than that, I am not sure what else to tell you. Definitely treat your dog and wash his bed, toys, etc. to try and get rid of his infestation first. Otherwise, assuming he is the one with the infestation, the mites will continue to thrive on him and inadvertently end up bothering you. If the problem is not resolved once this is done, then you might have the human scabies.

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      needsomehope 3 years ago

      This site might be a godsent to me as well, and i have spent 2 months searching internet for info almost everyday for hours...this is THE BEST info ive found and I am a dr of alternative health, so have knowledge of alot of these drugs, oils, natural tx and abt alot of fungi / parasites as well as how the human body works, (have treated myself and daughter for 20 years with no drugs/no other drs) however scabies definitely threw me for a loop, lol...i say lol, but really i am abt to either have nervous breakdown or get on antidepressants (which i NEVER thought Id hear myself say)...however, after reading this, i finally have a little hope, i'm wondering if most of my suffering was not even necessary...ive overused all of the above, all the alternative cures ever listed online( except bleach baths or turpentine) .actually a couple ea day for 8 weeks, except 2 1/2 days after any scabies prescriptions, so didnt interfere (i gave in after my first 3 days of natural treatments after reading horror stories on internet, which may be helpful to some, but are definitely also detrimental to many, and did my first permethrin treatm as well, then 3 more perm tx and ivermectin 4 times, .bc thought i was still having mild symptoms.....all this in only 9 weeks..the psychological effects of this thing are terrible...turned a lifetime health nut into a paranoid junkie, lol...even broke down and took vicadin to get atleast couple nights of sleep through the terrible permethrin pinpricks ( prob never had more than 30 ibuprophen in my life, never a painkiller, thats how desperate i was)..i say it was from permethrin bc before it, i had no symptoms, just a few red dots beneath my breasts that didnt itch.....this whole time, my scabies symptoms have always been so mild, and i had burrows with no bites, bumps or rashes nearby, almost no itching, only an occasional rashor bumps here and there, that went away...its all my permethrin side effects that have been so awful..... if my daughter hadnt had them, by my symptoms, id have never figured it out...so thank you for running this hubpage, bc even if i do still have them, i can tell many people do not anymore and continue to suffer, and need this site.. if id read this then, and i cant believe im saying this, i wouldve done the 2 perm treatments 7 days apart immediately, maybe w alternative stuff in between and for few days after (incl seasalt and epsom salt soaks for debris), then waited it out.... and not wasted my time with trying natural cures in the beginning, now that i know how serious this is, how resilient these suckers can be, and how devasting it can be to your life. and i would not have continued to put toxic drugs into my body, messing up my immune/nervous system, or 2 months of alternative treatments that destroyed my poor skin and made my symptoms worse... i have not been able to work for 9 weeks now afraid to give it to a patient, even if wearing gloves, i love my patients, and barely ever leaving house for fear passing it to someone, and am abt to lose my boyfriend of many many years bc i wont see him til im sure its gone, (its been 10 weeks since ive seen him) and ofcourse he thinks im really blowing him off/wont take it seriously (although i did talk him into the 2 perm treatm and 10 days of altern stuff same time we did, just in case...so no sympt for him ever, except for itching crawling tingling for few days 7 weeks ago after the permethrin)...i have a question to put out there for anyone to comment, then if i find i am scabies free, i will come back and tell few more details of my story, which not only incl postscabies symptoms everyones listing, but also many of the stranger, less common postscabies symptoms people have listed here, and even some more, prob bc my body is not used to absorbing or ingesting anything not totally natural ? (eat organic,drink my gallon spring water day, chemical free mattress, air purifier, all natural cleaners, etc) and i had a very atypical case (although im positive scabies, bc got from my daughter, who lives w me, who has been free now for 7 weeks after 2 perm treatments 10 days apart (7 days mightve been better, but her dr didnt even say treat again) and some alternative treatments every day in between and for abt 2 weeks after)..needless to say ive been doing all the manic daily cleaning and laundering and treatments to carpet and furniture...guessing must be doin pretty good job, since she hasnt become reinfested...she had totally classic symptoms incl burrows..that lucky little cutie had no post scabies even! although we did do a super hot epsom and sea salt soak every night for her for those 20 days (except couple days after ea perm tx, to make sure it didnt interfere) which supposedly pulls out all the dead material and feces and reduces postscabies from leftovers and maybe even from drugs as well (detoxing)?....although all my research has taught me everyone has different experiences with symptoms, treatments and post scabies (everyones bodies are different) but with many similarities... and md's definitely do not have acurate info, sadly...i am not immunocompromised and also had on face, in nose, in ears and maybe had on scalp, although only really had any significant symptoms after perm treatments, i believe i caught it really early since we were able to figure out a timeline bc figured out who she got it from...i didnt even have symptoms yet when i started treating..her dr didnt tell me to treat myself, but i read online i should...long story short...after reading this' i think they may have been gone a long time ago...finally my question...does anyone know if dermatologist can tell difference between old and new mite materials on a skin scraping? test is already not very accurate, but everyone whos had them is still going to have feces and dead mites/mite parts in their skin for awhile, thats part of why theres post scabies?? sorry so long, tried only incl important stuff, not really for myself, since im not asking if i still have it or not...but to try help others, bc if its gone... ill post more details and my postscabies story actually may make alot of people feel better since it involves some stranger symptoms people mention and also symptoms not listed elsewhere..I have searched internet like crazy to answer my question too, on medical sites, forums, cdc sites, foreign sites etc... cant find an answer...and honestly, i dont trust an md or derm's answer anymore. thanks

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      Samoa6 3 years ago from San Diego

      needsomehope - it was my impression that dermatologists don't generally find much with the scrapings, and if they do, it's only bc they happened to get lucky. and even at that, i am pretty certain they don't put enough effort into their analysis to determine if the mite material is old or new. so, not sure how to answer your question. i hope your symptoms go away soon though. best wishes.

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      needsomehope 3 years ago

      those are my same thoughts :( thx for quick response...if anyone else has experience w skin scraping or dermoscopy, id appreciate comments...it looks like if you get a dermatologist with a ton of experience with dermoscopy, pictures or video, and a ton of experience w scabies...and willing take a good amt time w you, they can possibly get an 85% accurate dermoscopy test showing mite material, but A)what are the chances of finding such a doc and B) unless they find one thats moving, doesnt seem like theres anyway tell old or new stuff....plus its prob a fortune, since most ins prob doesnt cover such an "advanced" (ya right)newer test like dermoscopy....no wonder everyone is just continuing to suffer with no actual way to know if or when bugs are gone...how sad, how many diseases are there out there that there is no test or literally no way of knowing when its cured..except waiting andthen taking a leap of faith....ill be back to post when i know...im prob gonna start with the adhesive tape test mentioned in several research projects online, think you may have done too, and just put tape on my entire body,lol, and check under my miscroscope

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      Samoa6 3 years ago from San Diego

      needsomehope - i really think if you treated yourself thoroughly twice with one week in between then i would just wait it out for a few weeks. symptoms should begin to subside. concerning docs, call around and ask if they are familiar with post scabies syndrome/symptoms. if they don't know what you are talking about, they probably don't have much experience so i would move on to a different doc.

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      ash08 3 years ago

      Hi Samoa6, Thank you for your articles! They finally let me have some peace! My 2 year old daughter broke out in a rash on her hands and feet that looked like blisters. At first her pediatrician told me it was contact dermatitis, then a week later I took her back and saw a different doctor who informed me it was scabies. She prescribed the 5% cream. I treated my daughter on a Monday and my husband and I treated ourselves Tuesday ( I had to go see my family dr. to get the cream for me and husband). We did two treatments a week apart. The first time we only treated from the neck down b/c that's what the doctor told us to do. But the second time we treated scalp down (as best we could). It was difficult trying to get the cream on the scalp through all the hair. It has been two weeks since our second treatment. My husband is fine, but my daughter and I keep getting bumps. Mine are mainly on my hands. one here, one there. They show up and itch then start slowly going down. But when I sweat , I itch like crazy!! My daughters seem to be coming and going, but she keeps breaking out in the same places. What is your take on this? I am just so paranoid! I have wanted to retreat but my husband thinks we should wait. I just hate seeing my baby go through this :(

      Also, during the first week of treatment I washed all bed linens everyday, vacuumed every other day, and sprayed lice spray and Lysol on everything. I am just scared that I didn't do enough.........

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      ash08 3 years ago

      Also, I found a mark on my hand yesterday that looks like a paper cut. Has anyone heard of this? My hands were itching and I was scratching them pretty badly, then a little later I noticed the line. It is a straight slice, about an inch long and it was painful. Today it looks like it is trying to heal, like scab over.

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      Samoa6 3 years ago from San Diego

      ash08 - my bet is that you are now reacting to the permethrin. give it a couple of weeks and if you still have a problem consider retreating.

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      ash08 3 years ago

      Thanks so much for your quick response. I cant thank you enough for your articles and your advice. When I first learned we had this, I scoured the internet for anything I could find. And unfortunately I found nothing but negative posts. I was is such a bad place mentally. Scared and paranoid. But then I found this article and finally started to calm down. I think I have read and re-read your article and the posts of other users just about everyday for the 3 weeks. And it has helped me tremendously! Thank you so much!!

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      Samoa6 3 years ago from San Diego

      ash08 - check back in to let us know if all is well in a few weeks or if you had to retreat. others are doing the same thing you are, i.e. reading everything they can find, and everyone's experience helps.

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      ash08 3 years ago

      Thanks Samoa6, I will.

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      Mink 3 years ago

      Samoa6 - I took 2 doses of ivermectin (week a part) and then a dose of the cream (week after that). I still have some bumps and minor itching on my arms with a few new bumps appearing. A few questions for ya. What are the affects of the ivermectin on the liver? I do drink on the weekends quite a bit and didn't know if it would have long term affects. Also, small rashes have appeared on my arms since treatment and I was curious as to if this is just a reaction to the cream. Any input is much appreciated and thanks for the responses. This blog is very informative.

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      aprilschpsych 3 years ago

      Hi there,

      I had active scabies about 1 month ago and treated with Prem twice (about 8 days apart). I did not do my scalp but did face and everything else (I did not have enough for my head!). My doc did not recommend my husband to get treated and he has had no symptoms at all. I washed clothes multiple times, treated my bed (lysol and steam cleaning), lysoled my car and couches. I am getting random bumps here and there and I have seen a few tracks lines, but am not sure how new/old they are. Is this post scabies or active? I do not have the excessive itching like I had originally. But my anxiety is at an all time high. I am having difficulty coping. Suggestions/advice appreciated. I am spoting treating the few new places, but worried I am masking symptoms. Please help! My doc is not a huge support.

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      Samoa6 3 years ago from San Diego

      Mink - I am not a doctor so I would recommend you talk to one about the specific effects of ivermectin on the liver. However, from what I have read, it can be harsh on the liver so doctors would probably not recommend it to anyone who has liver issues. Drinking alcohol alone, in the absence of a liver issue, may not therefore be a problem, although again, I would ask a doctor. If you do have issues with your liver due to excessive drinking, I would definitely lay off the ivermectin. The permethrin does cause rashes of its own, as I've stated in the article and many others have stated in their comments, so I would not worry too much about those unless they persist. It would not seem unusual for them to emerge periodically over the next couple of months if they are in fact caused by the permethrin, but they should not be constant. If they are constant, and show no sign of letting up over the next couple of weeks, you may still be infested.

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      Samoa6 3 years ago from San Diego

      aprilschpsych - impossible to tell if you are still infested or just reacting to the permethrin. if the latter, spot treating only makes it worse. this is why a doctor SHOULD be telling you to treat EVERYONE in the house simultaneously, bc some people have it and might not know it yet, thus running the risk of re-infesting others in the household. also, although it is not common protocol to treat face and scalp, these areas do get infested in some (many) individuals so i would therefore recommend treating those areas throughly, even though doctors don't. again, this makes it difficult to tell if you are re-infested or not! so, my best advice would be to wait it out over the next couple of weeks, see if symptoms, i.e., rashes let up a bit, and see if your husband is still clear. if so, you may be fine. if not, you may need to retreat, and do it more thoroughly next time, i.e. head/scalp and husband.

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      aprilschpsych 3 years ago

      Hi Samoa6,

      Thank you for the quick response. I wish my doc had rec'd everyone to get treated in my house...I even asked but she declined and I had no way to get extra cream for them w/o prescription. I HATE the waiting of all of this. I know I need to stop spot treating to see if anything new pops up. Right now I am 1 month out from the initial outbreak and treatment. My husband still has no symptoms after 4 weeks, but I have seen posts that it could take longer for symptoms to appear or he could have a lesser reaction. So far I have seem 2-3 track lines (I think one is old), but I did not notice any track lines when I initially got itchy-just had ridiculous itching. I would reapply cream again if I had enough, but I have very little left. My husband is not convinced I had it the first time and I never got an official scabies dx from my doc (which is why I think she did not treat my household). I am beyond anxious to the point where I am checking, re-checking, cleaning, talking to my husband (who gets very annoyed) about it and a co-worker who got it at the same time and was treated (which is how I know I DID have it!). I have no rashes now, nothing is itchy like before. I have random itches that comes and go, but I have always had these even before scabies due to dry skin. I am worried about being around people and living my life. I appreciate any additional insight and support, because it seems very hard to find from the people in my life right now.

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      Samoa6 3 years ago from San Diego

      aprilschpsych - i know how you feel! i actually felt lucky that both my husband and i had it at the same time - i swear it was the only way some people, docs, would believe me! again, wait it out and stop spot treating. give it a couple weeks and see if things lessen. if not, you will get crazy itchy again and then you will know you need to retreat. in the mean time, just don't touch anyone or hold children (if you don't have to). you can also wear long sleeves and socks to help prevent anything from getting on furniture as a precaution, until you are certain the symptoms are letting up. it's not fun, but hopefully you're almost out of the woods! good luck!

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      aprilschpsych 3 years ago

      Thanks...unfortunately I work with children at a school although I do not touch them at all....it is hard not to touch anyone when you have a hubby! I will wait it out. How long does it take between seeing a burrow and having itchiness? Obviously if I had burrows the first time, I did not notice them until I got itchy, so I had no way of knowing that timeline! Thank you for all of your support. You are the first one to give me any sense of comfort. Also, did you see new burrows in your post-treatment/post-scabies time?

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      Samoa6 3 years ago from San Diego

      aprilschpsych - no idea on time between seeing a burrow and feeling itchiness - i didn't ever really see burrows on myself, just some small red pinpricks. yes, though more and worse rashes appeared after using permethrin. that's why i wrote this article to begin with. it was all very confusing and i was very worried i had not gotten rid of it. but after waiting it out, it all went away. spot treating made those random rashes worse. we wondered if the perm. treatment made the burrows/rashes visible since we didn't really see much of them to begin with. still don't know. only thing for certain is that spot treating with perm. made things worse. after we stopped using it altogether things finally started to clear up.

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      Mink 3 years ago

      Samoa6 - Thx for your quick responses to my last post. This is a huge help. Few more questions. I am starting to see a few more burrows appearing on the inside of my fingers after treatment. They are clear and not really itchy. Should I just relax for a week or so and see if they go away? Also. would going to the gym help or hurt post treatment? I also sit in the steam room after workout and didn't know if that would make the issue worse. I just want to get better. Thx so much.

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      ash08 3 years ago

      Hi Samoa6, just a quick question. It has been almost 1 month since our 2nd treatment with the cream. Is it normal that I am still getting new bumps pretty much everyday? My daughter is also getting new ones. Some of them go away quickly, but others hang around for a week or more. They seem to be worse in the morning and then after a couple of hours the swelling goes down. I also have quite a few painful bumps on my palms and fingers. When I look closely I can see a tiny little dot in the center of them. Did you have these? Thanks so much!!

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      KS 3 years ago

      I'm so thankful that I ran across your hub this evening. I had just about given up on getting rid of this horrid parasite- I truly felt like there was no hope. After reading your posts though, I actually feel hopeful again. Words can't express how thankful I feel.

      My twelve year old and I were diagnosed with scabies a week and a half ago. My son has bumps on his legs, arms, hips, bottom. I have bumps on both arms. My husband has no symptoms. All three of us used permethrin 5% from jaw line to bottom of feet (per dr) the evening we were diagnosed. I've been washing all bedding, towels, and clothing daily. I cleaned my car, steam cleaned the furniture, scrubbed the house from top to bottom, and asked the vet to treat my dog as well. We did our second treatment a week later and I'm still doing the cleaning/washing.

      The problem is that my son seems to have more bumps now compared to when we started and he is itching like crazy. My bumps appear to be better but my nose feels like it is constantly being tickled and my face and scalp itch like crazy.

      As I said, we did not treat our face, scalp, etc. Based on our symptoms, do you think we should do a third and fourth perm 5% treatment or maybe switch to the oral med? While I'm not worried about myself, I am worried about the harmful effects from the cream and the pills. What do you think?

      On a side note, we have a birds nest in a decorative shutter on the side of our house. It has had birds in it since we have been here (approx 4 years). I plan to have it removed after reading your other hub. I've checked vents, doorways, etc but haven't seen signs of mites. How would I know if we were infected with bird mites instead of scabies?

      I look forward to hearing from you. Thanks for taking the time to make us feel better!!!

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      ash08 3 years ago

      Hi Samoa6, one more question. Is it normal to itch really bad when sweating? I have been having this, every time I get hot or even slightly sweaty, I itch. On my arms, neck and also on my thighs. If I scratch, bumps pop up, and sometimes what looks like hives. I am so scared that I still have them :( What do you think? Thanks so much!!

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      Samoa6 3 years ago from San Diego

      Mink - sorry for the delayed response. I would definitely wait it out, maybe a couple of weeks. Things won't go away entirely by then, but they should be lessening. Working out at the gym will just irritate the itchiness but if you can stand that, I would go ahead with the normal routine. Definitely wipe down any equipment you are using, both before and after though.

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      Samoa6 3 years ago from San Diego

      ash08 - my gut feeling is that these symptoms should be letting up a bit by now. not entirely, but at least a little. did your doctor rule out other things? have you checked for bedbugs and bird mites? also, yes it is normal for sweat to exacerbate itching.

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      Samoa6 3 years ago from San Diego

      KS - based on my personal experience, yes, I would redo the entire treatment from head to toe. This is not what the doctors recommend though, and some people have reported harsh reactions, i.e. twitching, when using the perm. on face since the skin there is so sensitive. It is up to you whose advice you should ultimately take. The tickling in your nose is exactly what I had to begin with. If you treated and this is not gone or going away, then you probably still have s cabies even though most doctors don't believe they go on your face. re: bird mites, these don't live on you like scabies do, and you can see them if you look carefully. they would be crawling all around your bird's nest. i guess you could easily rule that out and then get back to treating the scabies more thoroughly. just be careful though, it's a harsh chemical treatment and could cause a good deal of discomfort on the face. also, it seems quite normal after treatment to have even more bumps than before due to your reaction to the perm. this should be temporary, however.

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      ash08 3 years ago

      Hi Samoa6, Thanks so much for responding. I actually took my daughter to the doctors office last Friday and they told me everything looked fine. I pointed out every single little bump and honestly, the Doctor treated me like I was crazy and paranoid. Over the last couple of days, things seemed to be getting better, she had hardly any bumps on her. I still have my same ones on my hands. But today, she has got bumps on her face and also new ones around her knees and a small cluster on the back of her leg. I am not sure what to do. I did check around my bed for bed bugs when this first started, but I didn't find anything. Also, I have been feeling weird sensations on my face every now and then. At this point, I pretty much have everyone around me telling me that its all in my head and that I am looking for things to freak out over. Including my husband. These people have never had this, and don't know what this feels like. I just don't know what to do . I want to re-treat, but I know the medicine is so toxic. I am a stay at home mother, and my daughter and I have been quarantined away from everyone. With me and her here at home all day, every day. I feel like my world revolves around this mess. I am constantly looking her over, all day long to see if I find something. And I do this to myself as well. Do you think I am just reading too much into this?

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      Samoa6 3 years ago from San Diego

      ash08 - i know it is a terrible feeling - that's why i wrote these articles! my guess is that you have scabies on your faces/scalps and since you didn't treat there, you did not get rid of them. if i were you, i'd redo the treatment, twice (with one week in between), and treat your entire body. i used the permethrin just inside my nose (not too far!) and also all the way down rubbing it into my eyelashes since these were the two places i felt something. do your daughter and anyone else living with you as well, at the same time. do treatment at night to minimize chances of getting it in your eyes. i know the doctors tell you differently, but they don't seem to be up to speed with this problem. also, if you can get a doctor to prescribe ivermectin/stromectol oral pill, i'd couple it with that. you'll get rid of it, don't worry. just do a thorough job and know what to expect for side effects. if either you or your daughter have any health issues, then i would definitely go with the doctor's advice since i am not qualified to tell you what any potential confounds or side effects of this treatment that may be more severe than the ones i've experienced. i.e., err on the side of caution.

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      Etcantu 3 years ago

      Ash08. I agree with Samoa6 you have to do your hair and face, nose and inside your ears. Also around crotch and butt crack. Have someone help you with your back too. This is important. Update on my condition...it has been four week and in that time I did feel the crawling sensation for the first two weeks and nose tingles but that is gone now. Now I still get hive in the am and evening and some times at night. Not sure how long this will last but at least I know when it is going to happen and always keep benadryl on me. I think I just fried my immune system because it seems that sugar and caffene make it worse at night. I have never had rashes like this. I still get lip swelling or face swelling..this last week my chin swelled so much it hurt. The swellings happen only during the am. Wierd but I have read that this is part of hives. Anyway, aside from this my life is back to normal. What a nightmare....

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      ash08 3 years ago

      Thank you Samoa6 and Etcantu. When I treated the first time, I only did neck down, but the second time 1 week later, we did scalp down. I am hoping this was sufficient. I am trying to wait it out. I have noticed my skin is really super dry, and I am having weird reactions to things. For instance, my in-laws have a pool with a salt water filtration system, and I have went swimming twice since I treated with the cream and I broke out in hives both times. Also, I used Aveeno lotion and it made the itching terrible. And yesterday I washed my car and I guess the soap irritated my hands, b/c half way through my hands were red and insanely itchy!!! Nothing would help except calamine lotion. My skin feels tight and almost prickly and I am thinking maybe its b/c its so dry. I am trying to stay positive, but I feel like this has gotten into my head. I notice every single little itch and sensation on my skin. And of course I freak out. I am going to try to give it a little more time. I am pretty sure I applied thoroughly, my husband helped me reach my back and I did the same for him. Just trying to stay positive.

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      ash08 3 years ago

      Etcantu- Thank you for your advice. I hope you have them finally beat! And hopefully the swelling will let up for you soon. I am also trying to go back to normal with my life. We have been quarantined for this whole time. My toddler and I are about to drive each other crazy. We went for a visit today and she had her first interaction with her cousins in about two months!

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      thankful 3 years ago

      Your site has been so helpful! After spending weeks scouring the internet for info (I only visited 'medical' sites as I didn't want to get freaked out), this has been the most informative and calming site I've read.

      It's all the post-scabies symptoms that are hard to pinpoint - you wonder how long should you get red bumps, is it normal etc.

      I feel like part of this time I have been somewhat insane, totally paranoid and preoccupied - and even now, 5 weeks post 3rd permethrin treatment, every time I get a bump I freak out. Now my husband tells me to get on this hub and re-read it - it helps calm me down.

      We did three treatments, and on the third one we did most or our scalps, and our faces up to a circle around our eyes, nose and mouth. Now I wish I'd done all that too, but at the time I hadn't read your site, and all the info we had was to do ears down - we never had any symptoms on our faces. I too cleaned like a maniac, did my car, sprayed everything, incl doorknobs with 70% isopropyl alcohol. I have yet to put my clothes in drawers, I keep it all isolated so I will know what I have been wearing if need be - it's crazy.

      I am thankful my husband and I had it together, (even though I wouldn't wish it on my worst enemy), it would be so hard to go through alone. It's not something you reach out to other people about, no one knows except 3 family members - which makes it so hard. People may have noticed I seemed a bit 'off', but I felt I couldn't say anything, and now that we may be through it (my husband is thoroughly convinced anything else is post-scabies, I still freak out at new bumps) I can't tell anyone why I'm feeling so much better. I was doing really well until yesterday evening when I've suddenly had a few spots around my nape and ear. They're not as itchy, and probably are post issues, but it sure triggers me when it happens. I have applied some hydrocortisone cream for relief.

      We have no idea how we got this scourge - which makes me paranoid now when I'm out in public, esp in restrooms. I actually have a spray bottle of isopropyl alcohol in my purse which I use on toilets, and my hands if need be! What a nightmare, my husband was much calmer and looked at it like it wasn't our fault, it was dealable with, nothing to be ashamed of, and it could be so much worse. I know that's right, but for me it still mentally affected me a lot - his attitude was calming for me - I have nearly driven him crazy though!

      I'm going to give my doctor's this site to hand out to other patients, as I got so much hope and relief, as well as good, sensible information from it. It was nice reading other people's info, it made me feel like I wasn't the only one to have an extreme reaction, and that maybe that too was normal.

      It's strange how you can go for days or a week with no real symptoms, then one day you have a bump or rash, and the crawling sensation. I was doing so well this last several days until last night. It sure is easy to get triggered mentally right back to paranoia.

      We used hydrocortisone cream, as well as antihistamines to help with symptoms and sleep. Some nights I couldn't sleep, you would have thought I'd been injected with adrenaline!

      Hopefully this will all be over soon, can't be soon enough for me. I wish everyone else dealing with this, the best of luck and may this be in all our pasts forever. Again thanks to samoa for this amazing hub - I'm so grateful for it.

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      Samoa6 3 years ago from San Diego

      thankful - of course it's not your "fault!" that is ridiculous. but it is really difficult to determine where you might have picked it up. my bet is, if you have a child that goes to a daycare or school, it was probably him/her. this is because children are touched and held the most often. so if that is the case for you, pay attention to where your child stays and who might be holding him/her just in case it happens again. other than that though, it could have been anywhere. as far as the bumps randomly occurring after a week or so of relief, that happened to us too and eventually stopped happening altogether, although it took a couple months. sounds like you might be through the worst of it! best wishes.

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      Mink 3 years ago

      Well its been over a month since my 3rd treatment as stated in my posts above. Itching and bumps have been nonexistent but for the past 2 days, I have notices 2 small bumps on the inside of my pinky (where scabies was before) and resembles what the scabies looked like. These do not itch. I also feel a slight tingle on my left eye (kinda like hair moving). No one have shown systems in my family and I have not been in close contact w/ anyone for a significant period of time. Would like to get your thoughts on this pls. Do you think its a reinfection? If so, how quickly would it infect me? Obviously the first time took several weeks. Or is this still just part of the Post Scabies Syndrome. I have not done any spot treatment as I know it is not recommended. Thx for your input.

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      Samoa6 3 years ago from San Diego

      Mink - the crawling sensation largely subsided for me immediately after treatment - it had been particularly bad around the eyelashes. But the itching/rashes etc. lasted on and off for a few months. However other people have reported continuing to feel crawling after treatment, and have eventually been cured. so it is difficult to say for you. the only thing i can recommend is to wait it out if you treated yourself thoroughly. if it is getting less, you are probably ok. if it begins to get worse, then you might have to do the whole treatment regimen over again.

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      aprilschpsych 3 years ago

      Hi Samoa-I've posted before and after I did, I re-treated, had my whole family treated, cleaned like crazy, ect. I am not getting new bumps (except for pre-exisiting exema bumps that I have had on and off for years on my upper arms and thighs) and no new tracks. I can sleep at night, am not super itchy, but I am tingly, I don't think it feels like crawling...more like tingles that annoy me most during the day, they are better at night when I wear less clothing that rubs my skin and after I wash my face. I have it mostly in my face but get it other random places. It has been 3.5 weeks since last premetherian treatment and like I said no major symptoms have surfaced like they did the very first time I had scabies (Sept 11 ish). I am so tired of thinking about this and it consuming me. I don't know if I am crazy, in post-scabies, have live ones... ect. No one around me seems to have gotten anything. I just don't know.

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      Mink 3 years ago

      Thx for the reply. What are your thoughts on the 2 small bumps on the inside of my pinky (where scabies was before) and resemble what the scabies looked like. They do not itch and not getting worse for the past 3 days? I have not seen any more bumps. Also, if reinfected shouldn't symptoms occur almost immediately? hopefully just over reacting.

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      Samoa6 3 years ago from San Diego

      aprilschpsych - it seems possible the permethrin has just left your skin super sensitive but there is no way to know for sure - only time will tell, the tingling should become less and less over the next couple of months until it is gone. hopefully. glad you seem to be doing better. thanks for letting us know of your progress!

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      Samoa6 3 years ago from San Diego

      Mink - there is no way to know for sure besides just waiting it out. Things will become unbearable again shortly if you are reinfested. Otherwise, the bumps should subside after a week or two (at least that's what happened in my case) but don't be alarmed if they pop up somewhere else on and off for a couple of months after permethrin. Thank you for checking in with your progress. I am sure it is very comforting to other readers.

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      thankful 3 years ago

      Hi all, just wondering if others are also experiencing periods of time where things are pretty calm, then a small burst of bumps and/or itching? I seem to get bumps around my hairline sometimes, cortisone helps. I have had a run of small bumps for a week or so, prior to which I had had nothing for several days. My husband doesn't seem to be getting anymore bumps, which makes me feel somewhat reassured. If I had scabies again, then he would too I think. He gets little itches etc. We are 1.5 months post permethrin treatment #3.

      I think if I was reinfested I would be having a lot more of a reaction than what I'm having, yet it totally freaks me out every new bump! I still get a little crawling sensation at times, but not like I had when I for sure had scabies. Thinking it's probably post-scabies, what are others finding? Only all of you will understand what this is like to go through, thank you all for your sharing. It does help to read about people going through the same thing, and I hope we all heal and are done - sooner than later! Lol It seems we may all have some different symptoms and reactions, which does make it a a bit confusing. Any input appreciated.

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      Mink 3 years ago

      Hopefully final Update: Scabies is a bitch and patience is a must w/ it. I had my final treatment over a month ago and largely was symptom free. 4 Days ago i saw 2 new bumps, my forearms and hands slightly itched and skin seemed just abnormally sensitive. Which made me think it was a re infestation. Today it is pretty much gone. Over all my skin seems to be more sensitive since using the Permethrin Cream and I think this will be a lingering affect for several months. The Permethrin Cream is power stuff and really impacted the sensitivity of my skin. My advice would be to be patient. Don't spot check your body all the time as this will drive you crazy for every little bump you find. Trust me, if you are reinvested, YOU will know. In my opinion, post-scabies is almost worse because it is a wait an see and you will still have some symptoms for weeks or even months. If you followed the proper protocol chances are you are scabby free. The problem is waiting for the mite turds and bacteria to exit the body and your immune system to return to normal. Be patient people and live life! Good luck all and thank you so much Samoa6 for this blog. IT WAS A MENTAL LIFE SAVER....Cheers!!

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      itchy 3 years ago

      I got scabies in Sept of 2012 from a hotel I stayed in. It took about 5 weeks before the itching and bumps started and it I spent about 6 weeks trying to figure out what it was. Finally I googled red bumps that itch worse at night and almost cried. Doctor confirmed the next day with skin scrape. Mite was seen and started permithin. I had two rounds about 10 days apart and treated my living area. About two weeks later I was better. That was in mid Jan. 2013. In March I started itching whenever I got hot and noticed the nodules everyone talks about. I have used everything you can think of...coconut oil, tea tree oil, anti monkey butt powder :) and topical cream from Dr. It goes away and then comes back when I get the least bit hot. I can't exercise or go outside and work in the yard. It has been a year now and I still have an awful red rash and some nodules between my legs and in the vaginal area. I went back to dr. and she said I have obviously developed sensitive skin from what the critters left behind. She called it Eczema and said I would just have to treat and live with it. I am using a steriod cream, but nothing is really helping. I also get it under my arms and other skin folds and on my hands from time to time. Is this really the seven year itch or is there anything else I can do for my skin? She has taken scrapes twice in the last 4 weeks and sent them off for biopsy. They are not bites but it itches worse than the orginal scabies sometimes. Sorry to ramble, but it seems that everyone else only has post symptoms for a few months after. I am 10 months after treatment.

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      aprilschpsych 3 years ago

      I think that my tingles are just that. I think for me, I forgot that I probably had minor itches and tingles before this and now I am just hyper-sensitive to everything I feel from my skin! I still have not developed any obvious signs since my last post 5 days ago except for part of my arm turning pinkish for a few days. However it was not itchy or anything and with lotion it is improving. My face tingles are somewhat better and always in the exact same spots and have not spread at all. Hopefully I am in post!

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      ash08 3 years ago

      Itchy- I am going through the same thing. My family treated for scabies about 2 months ago, and my husband and daughter seem fine, but like you, every time I get the slightest bit hot or my body temp rises, I break out. My skin starts itching and stars turning pink/red and then bumps and what looks like small hives appear. At first it was only on my arms, now it is pretty much everywhere. On my underarms, chest etc. I went to the grocery store last week and just the act of loading my groceries into my trunk had me broke out from my neck down to my ankles. It always goes away, but it is so embarrassing. I have been to a derm and they did skin scraping on my hands and didn't find anything. Based on the fact that my husband and daughter seem to be okay, I am finally starting to think that the scabies are gone and this is just my skin still reacting. I do notice that my daughter scratches a little when she gets hot as well. But no bumps or hives. And it only bothers her when she is running around playing getting hot. I hope this resolves it self soon. I am miserable! My derm told me that I had Urticaria. I hope yours gets better! Thank you so much for sharing your experience. I hate some one else having to go through this, but I am glad to know that I am not alone and not going crazy. I hope you are well soon.

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      Samoa6 3 years ago from San Diego

      itchy and ash08 - i do not have any experience with the post-treatment symptoms you are describing, although everyone's immune system is different so you may just be more sensitive to the permethrin. you could always request ivermectin/stromectol oral route if you are worried you are still infested. however if it is just an over-reaction by your immune system, i'm not sure how to go about dealing with it. hopefully it will lessen over time but maybe just take longer than for others. maybe an anti-histamine at least for times you know you are going to be sweating/working out?

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      thankful 3 years ago

      It is true that everyone's system is different, some much more sensitive than others - sadly this includes me. I appreciated Mink's comment about not checking for spots all the time, it's easy to get too focused on this. I am very prone to going into panic when my skin start tingling/crawling, and or I get a new bump. I think it's true that you will KNOW if you are reinfested, though my husband has to keep reassuring me of that.

      One thing I've noticed is that I seem to have a relapse into symptoms when I'm hormonal. The crawling is particularly noticeable as well as a few more bumps. This is the second time I have been aware of this, now that I'm putting the puzzle together. Once I'm done with my period I seem to settle down again. Well hormones are powerful impacters on life so it seems to make sense to me. Not sure if anyone else has noticed this.

      I still can't wear a lot of my clothes, such as wool, next to my skin or it really irritates me. Both my husband and I notice that our sock bands get itchy if they're tight - with no other symptom, just itchiness.

      The anxiety that can go along with this has been really hard, I've renamed PSTD as Post Traumatic Scabies Disorder, lol. Running through the mantra in my head of - It's just post-scabies/ this is normal for months/ it's not like it was when I had scabies/ I did have itches before scabies etc, does help calm me down - some of the time!

      Time is probably the answer for those of us with more noticeable post-scabies symptoms. Be patient with yourselves, reach out for support from those you can, or this site, try and stay busy to distract yourself, give it time. As my husband tells me, well if we did have it again we'd just retreat, there are a lot worse things out there that we could be dealing with - but he doesn't think we do have it anymore and that the issues now are all post. Here's hoping he's right.

      Thanks again to Samoa6 for this helpful forum for getting info and support. Cheers all :)

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      sickofscabies 3 years ago

      I had scabies for almost 1 1/2 years before it was properly diagnosed. I did the permethrin twice, a week apart, and all the cleaning and laundry that goes along with it. I was a paranoid idiot and was really in a dark place when I found this hub. Samoa6, you are a Godsend. I would log onto this every day and read everyone's story and symptoms, etc. to keep from going crazy. I was diagnosed February 2013 and it has been 9 months and I am still getting the occasional rash, but I know that it is probably from the permethrin. It definately leaves your skin more sensitive. It wasn't until October that I went a full 3 weeks without some kind of little rash in an area where the scabies used to be. After the 3 months that you said you had recurring symptoms, I prayed mine would go away also, but they didn't. I kept a log from day one of permethrin to track where I was getting the rashes and for how long. I trusted you and waited it out, and it finally subsided little by little. I know how psychologically damaging this is. You never get over it and you'll probably be paranoid for years. I'm finally writing to you and to everyone on here to let you know that it CAN last for months and maybe forever depending on how sensitive your skin is. I never really had sensitive skin, but that permethrin is intense stuff. It literally does a number on your body. Plus I had scabies for a really long time although it was weird because I had them under my bellybutton, on my lower back at the hip, elbows and occassionally on the top of my hands and that's it. So maybe that's why they were hard to diagnose, I don't know, but that may have contributed to the sensitivity. And also the paranoia because when I found out what I had, I felt disgusting that I had them for that long and didn't know what it was. I never infected anyone else, probably because where I had it was always covered by clothing, again I don't know.

      But I hope everyone out there recovered or still recovering finds a little peace of mind knowing that they will be gone with this treatment and the after effects last a long time. Thanks again Samoa6.

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      Samoa6 3 years ago from San Diego

      sickofscabies - thank you for sharing your story - i am so sorry you had to deal with this for so long. i am glad that you are finally experiencing some relief. best wishes.

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      peter braam 3 years ago

      Hi Samoa6

      writing you from Singapore. your page is better than most medical pages where you can still find a lot of nonsense. Looking for your advice on my scabies infestation. Picked it up in Mumbai India from a beggar. Have used permetrhin 5% which seemed to work for me and my now infected family the 1st time around. however got reinfected after one week. Have used now 2 triple doses of ivermectin, crotamiton, malathion and sulfur ointment. However when rubbing my leg with oil still had small mites coming out. Infectious diseases specialist confirmed already scabies. Hi follow up treatment when first treatment didn't work was 7 days of Permethrin cream and 3 days Ivermectin. However and that is my question i still feel the crawling sensation at night although less than before plus the pinpricks (which are also softer) and new red bumps. So my first question is this: is the manifestation of recurrent pinpricks across the body, crawling sensation and new red bumps really caused by the Permethrin cream as it feels exactly when I had scabies in the beginning. More active when warm and in bed.

      My scabies is not that itchy and there is no pruritus but seems it is very difficult to get rid off. Second question what do you think about the new meds for lice SKLice, Natroba and Ulesfia?

      Mumbai Scabies sufferer

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      Samoa6 3 years ago from San Diego

      Peter - I cannot comment on your second question as I have never dealt with lice or the associated treatments. I do know that you need to be quite thorough, though, in getting rid of them. Same goes for scabies. I am curious as to what you are actually seeing coming out of your leg because you absolutely cannot see scabies with the naked eye. In fact, they are extremely difficult to find even with a proper skin scraping under a microscope. Did you actually see something coming out of your leg after treating with oil? Also, if it is scabies, it would be helpful to know EXACTLY what you did for your first treatment. You should have treated yourself and your entire family by using permethrin all over, including face and scalp, then wait one week (seven days) and do it again, for everyone. I am not sure why you were using the permethrin for 7 days straight? Oh my, if this is the case, you may very well be reacting to the permethrin. It is a very potent pesticide. And yes, many people report still having ALL of those symptoms after using the permethrin, especially if they've used too much. Just be aware, if you decide to use it again (in case you didn't do your face or somewhere else, that the skin on your face is very sensitive and can have a twitching reaction (this reported by other readers of this site). So if you have any medical issues already, you might want to check with a doctor before doing this. Other than that, coupling it with ivermectin is the best I think you can do. So I guess you need to figure out if you treated properly to begin with and if not, do it all again, the entire protocol. If you are becoming reinfected, stay away from whoever is giving it to you and not getting treated. And finally, consider the probability that something else is going on if you are actually seeing things coming out of your leg. That is not scabies.

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      peter braam 3 years ago

      Hi Samoa

      You are correct. I sent the black dots that came out of my leg to the lab already and they confirmed that there was no mites visible. However they did confirm that the first time i brought sth (i felt sth on my neck and brought it with me to my first appointment with the specialist was indeed a scabies mite). So i was fooled into thinking every black dot from my body is scabies.

      Reason Im using permethrin for 7 days straight is because it is the 2nd treatment as the first one didn't work and the infectious disease specialist told me to do it like that. 7 days cream 24 hrs plus 3 days ivermectin. I must say that in the daytime i don't feel anything but late at night still after 6 days treatment i feel little pinpricks (very few and far between) in the same locations. No more red pimples or burrow marks. I had 3 burrow marks (chest, leg and face) confirmed by the doctor earlier. If the pinpricks and crawly feeling is not indicative of remaining scabies they should be gone by now. But i don't feel sensitive to the permethrin at all and I'm thinking of continuing till the pinpricks stop or come back more. If they come back with bumps and all I will stop with the permethrin and ivermectin and then i found Lindance and Benzyl Benzoate as other treatments. Hope they work.

      But the big question is still if you do feel the small crawling sensation and pinpricks at night in a few locations does that indicate there are still a few mites on your body? subdued by the permethrin but still alive and feeding at night? during the day i don't feel anything so my conviction is that there are still mites on my body. My baby girl got similar bumps and a rash and we have treated her with permethrin as well. Now waiting for the results. House, linen and clothes all washed, cleaned and refreshed every day.

      Look forward to your comments and if you have experience with benzyl benzoate and lindane. Plus what about these small pinpricks.

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      Samoa6 3 years ago from San Diego

      Peter - I don't have experience using benzoate or lindane but many many websites/people report they are effective in treating scabies. To answer your question to the best of my knowledge, just because you feel crawling and pinpricks does not mean they are still alive or that the permethrin didn't work. The immune response to the permethrin prolongs this feeling - even a crawling sensation can be an immune response. If you are absolutely certain that everyone in your household was treated properly and thoroughly (i.e., did you do your scalp and face?) then I would bet you are experiencing a reaction to the extreme overdose of permethrin. Nowhere does it say that using it 7 days in a row is necessary. And just because it doesn't feel like it worked doesn't mean that it didn't work . . . that's why I wrote these articles. I would wait a few weeks at least and see if these crawling sensations begin to decrease (as they should if you are healed and just reacting to the permethrin). And stop using the permethrin - every single time I used it to "spot" treat out of paranoia, my symptoms got worse. It wasn't until I stopped entirely that it began to go away (although a random rash would still appear now and then for a few months, making me question whether I was infested again, but I wasn't). Good luck. Feel free to write with more questions if you have them.

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      peter braam 3 years ago

      Hi Samoa6,

      appreciate your quick and clear feedback. at the moment my wife won't speak to me which taking into account this disaster is reasonable.

      i strongly believe the pinprick and crawling sensation (always similar places) is due to scabies because it is only felt at night under the covers.

      if it was skin irritation i would also have to feel it at other moments in the day. but i will stop with permethrin after today (8 days straight) and see what happens. Then if still itchy with pinpricks i will start benzyl benzoate treatment.

      are there any other treatments besides these chemicals? i was thinking of taking a sauna and/or rubbing them out with vaseline. but dont want to take the risk. also salt water seems to be relaxing but it is just the treatment of the symptoms which I'm not really interested in as i just want to be cured.

      so last questions (i hope)

      1. my child got a rash the third day of treatment. can this come from the permethrin cream as we treat her on doctors advice for 5 days.

      2. is sauna a way to chase out at least a few mites?

      3. is submersion in vaseline enough to suffocate the mites e.g. on your feet?

      thanks so much and again i do believe of the 1000 websites dedicated to scabies your site is the best.

      Thanks

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      Samoa6 3 years ago from San Diego

      peter -

      1. yes, absolutely, this is the point of the article, and the pinpricks as well, even if mostly at night, can be due to or exacerbated by the permethrin

      2. no

      3. no

      try ivermectin/stromectol oral route again if you can get it, but my bet is you just need to lay off the permethrin and watch what happens over the next couple of weeks. make sure you are not coming into contact with whoever you think you got it from.

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      pregnantwscabies 3 years ago

      Hi Samoa

      I've read these posts the past couple of weeks and they have been very helpful.

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      pregnant with scabies 3 years ago

      I got scabies in august and got symptoms in October. I got it from my neice, she was covered in them, and I was the main one taking care of her. We didn't know what it was until my mom finally took her to the doctor. Her mom is very oblivious to this, and hasn't done anything to treat herself and her family. We took in my niece and started doing treatment. We did neck down, except my neice did scalp down. I only had bumps on my hand and bumps on my stomach. After treatment I got way worse, everybody else got better. It's now been 2 weeks and everything is better. My bumps and scars went away. But I'm still itchy sometimes. But it's a itch dat only lasts a few seconds. I have a few bumps on my back but not sure if it's scabies. As they come and go. I will keep updated if anything. I hope it's gone and it's jus the permetherin. I'm 22 weeks pregnant and really don't want to do treatment again only if necessary. Prayers to everyone going through this.

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      peter braam 3 years ago

      Hi Samoa6

      permethrin for 7 days didn't work for me even with 3 days ivermectin so we tried benzyl benzoate 3 days and that seemed to work much better. 2 nights without cream and no itching but the third day still light pinpricks and itching again. family will finish 3 days of BB also tonight and hopefully we got rid of it. I don't think the BB cream just puts them to sleep and then it comes back again as my skin cleared up a lot already.

      but today still 2 more new red bumps and the slight crawling pinprick sensations. It is difficult to say when it is really gone and because my skin is better now i believe the BB cream worked. just confused by the increased crawling and pinpricks…so my question is if there are no more new bumps, burrows or bite marks even though you feel crawling and pinpricks is the scabies then gone? And if you don't have burrows anymore shouldn't they then start to die and get exhausted?

      confused..

      thanks for your clear answers so far

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      Samoa6 3 years ago from San Diego

      Peter - many people are reporting they still feel the crawling and pinpricks and even continue to get new bumps/rashes after successful treatment, at least when using permethrin. if you covered yourselves adequately, i.e., whole head/scalp/face with the permethrin even before you tried the other meds, my bet is you are cured and just experiencing a reaction to the permethrin, which can last months unfortunately. i'd stay off everything medication-wise for a few weeks and see if these sensations become fewer and farther between.

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      peter braam 3 years ago

      going to a dermatologist today for a second opinion (i was treated by an infectious disease specialist until now) because last night more pinprick itching, and a few new bite marks as well. feeling was more intense than the first day without cream which makes me think that the treatment didn't work. my skin is not itchy, i just feel pinpricks and see red bite marks.

      and if it is an allergy how come it disappeared for one or two days to then come back again with more pinpricks, bite marks etc. activity is also in the late afternoon/evening/night.

      lets see what the dermatologist says. they already analyzed one animal i got from my body in the beginning and confirmed it was a mite.

      starting to get really worried because at home we do everything as we should, fresh clothes, linens etc everyday

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      peter braam 3 years ago

      more fresh bites, dermatologist didn't know what to do, probably going to try Lindane. not sure how to use that though..wife more bites as well.

      if pinpricks and crawling can be post treatment how about fresh bite marks? that can not be post scabies right? as you can always see a little red drop of blood. dermatologist also confirmed they were fresh bites…

      confused even more and will fly to Vietnam to buy Spregal which is Pyrethrin with PBO's

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      Samoa6 3 years ago from San Diego

      peter - scabies do not bite. they burrow and then your skin has a reaction. skin also tends to react, often in the same way, to the treatment. if you are removing black mites that are visible to the naked eye from your skin, it is probably not scabies. you cannot see them. was your initial permethrin treatment thorough? did you cover your face and scalp? if not, you may still be infested. if so, i would lay off the meds. good luck with this. i hope you figure it out soon.

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      peter braam 3 years ago

      Hi Samoa6

      sorry to take up so much space..but hopefully my experience is useful to others as well. as the doctor confirmed the mite sample i picked from my skin, and observed the 3 burrows i had (reddish brown elevated almost crusted blood) it does look like scabies, but as you mentioned atypical because nothing in between my fingers, wrists or feet. i feel the pinpricks under my feet, legs, and back, neck and head. My permtehrin treatment was full body including face and scalp every day. same for the BB cream. you are probably right when you say scabies don't bite but the marks i got yesterday night in quick succession look very similar to mosquito bites although the bites were under my shirt so not possible was a mosquito. so then can be debris coming out instead which means that still the treatment could have worked…anyway I'm going to keep my baby girl and wife of the meds while i continue to do another 3 day BB cream treatment. I believe that my strain from Mumbai is so resistant due to the cheap and generic drugs in Mumbai.

      So as i understand now even if i feel pinpricks at night, light crawling sensation, even bite marks (or big red bumps) it can still be that the treatment was successful but is just debris coming out there were the scabies was in my skin before. that is probably why it is so confusing for me.

      thanks

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      Samoa6 3 years ago from San Diego

      peter- thank you for sharing your experience. please check back once you've made some progress so others with similar symptoms can know what to do. i suppose there are two possibilities that are confounding your results. one, the permethrin was not good. i, too, have bought meds from both india and china that were not effective. two, you may have had good permethrin but because you used so much of it, you might be having a major reaction to it and now your skin is probably trying to rid itself of the poison. this takes a while and does indeed feel just like the scabies did (this from my personal experience). i wish you luck and look forward to hearing of your successful eradication in the near future.

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      peter braam 3 years ago

      Hi Samoa6

      went to see the other dermatologist and he said i was imagining things as my body only had red welts which were definitely post scabies.

      the pinpricks and crawling sensation was probably from the excessive permethrin treatment (in total i was in 3 weeks maybe 15 x 24 hrs in permethrin cream and the other days in BB cream).

      i did have scabies in the beginning with the mite sample and burrow tracks (one in my face) but as there were no more burrows for a few weeks already there was a big chance the scabies were gone and all of it was an allergic reaction to the permethrin. so he advised me not to use any more creams except body creams. interestingly he said that the little bloodspots on my skin probably came from irritated hairs growing out.

      so will post back in a week to let you know final result. Just need to get through the next few days of biting, wriggling and bite marks knowing that it is POST SCABIES.

      thanks so much for your great blog. keep up the good work and hope that my last post can help people that hesitate when they feel pinpricks again.

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      Samoa6 3 years ago from San Diego

      peter - so glad to hear this last dermatologist seems to know what he is talking about! good luck to you, thanks for sharing your experience!

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      ash08 3 years ago

      Hi Samoa6, just wanted to give you a quick update. My family and I are 4 months post treatment. I went back and saw my dermatologist last week because of these awful rashes and bumps that I get when sweating or agitated and she did more skin scrapings. They came back negative again! I actually broke out while I was there, so she got to see exactly what I was talking about. She says I have Urticaria and very highly sensitized skin. She also said I have something called Demographia. She believes that the Permethrin caused this. She was very clear in letting me know how potent and powerful this medicine is. And it should be used with caution and only when necessary. I cant imagine what condition my skin would be in if I had used it more than twice. I now know that the pinpricks and crawling were from the permehtrin, as I never had those feelings until I treated the second time. She wants me to take Claritin daily and she prescribed steroid cream that I put on areas of breakout twice daily. I am feeling so much better about this whole situation. The random red bumps have finally stopped completely. My daughter is completely clear and so is my husband. Every once is a while my daughter will get a small rash on her bottom, but it always goes away in a few days. Also, the pinpricks and crawling sensations have completely stopped. The doctor said I probably already had slightly sensitive skin and the permethrin just made it 100 times worse. She is hopeful that it will eventually get better with time, but she says this may be something I have to deal with for the rest of my life. She warned me to always be careful about lotions and such that I put on my skin. To always test first in a small area for a couple of days and to stay away from scented lotions. She recommended Eucerin. She also talked to me about post scabies and she explained that it can take a long time for the body to expel the debris. And she pointed out that everyone is different and some will take longer than others. And she also talked to me about the mental anguish scabies causes.

      I am happy to report that we are scabies free, but I think it will take some time to get over this mentally. Every time I catch one of us scratching I am probably going to flip out and search everyone for bumps. I wish everyone luck in this battle and want to thank you again for this wonderful article. It truly was a Godsend and kept me from losing my mind completely.

      Also, I wanted to mention that since using the steroid cream twice a day and taking Claritin for week, I am feeling a lot better. I still break out but it doesn't itch like it used to. And it goes ways pretty quickly. I am so thankful! Best wishes to everyone and Happy Holidays!!!!

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      ash08 3 years ago

      Samoa6, I wanted to say one more thing, just in case anyone is wondering. The doctor told me that scabies bumps will Not come and go. That bothered me through the whole ordeal. So just in case anyone else is wondering :)

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      Samoa6 3 years ago from San Diego

      ash08 - i am so glad you are doing better now. thank you for sharing your experience and your doctor's advice.

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      ash08 3 years ago

      Hi Samoa6, I just wanted to correct myself about the time. I posted that it has been 4 months, but mis-typed. It has been 3 months post treatment. And also, I wanted to explain about the bumps coming and going that I mentioned earlier. My daughter and myself had random bumps that would pop up and then go away on their own in sometimes as little as a day or two and sometimes they would stay for almost a week. But they would eventually go away. And also, I had them popping up when I sweat (and still do) and they would always go away, just to then come back the next time I did ANY sort of activity. And I ran this by the doctor and she told me that when you have live scabies, the bumps don't usually come and go like that. So it was a relief to me to hear that. Just in case anyone else out there is having the same issue and wondering about it. Thanks again for your helpful article and for answering back! You don't know how much you have helped me!

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      Hedrim 3 years ago

      Dear Samoa6, I want to thank you for keeping this discussion going for so long, and being so dedicated a respondent, because I only found it now after months of reading Internet drivel that no authority ever responded to.

      I have been dealing with post-scabies "syndrome" for the past two months and it has been refreshing to read all this information. Unlike you, though, I did not start feeling tickling in my nose or eyelashes until AFTER my first treatment of permathrin. Unlike you, I never put that stuff on my face or near my eyelids because a) I was instructed not to and b) I have rosacea and blepheritis (an inflammation of the eyelid that also causes corneal ulcers if it flares up and out of control). I've heard that blepheritis, and perhaps even rosacea, might be caused by a mite called "demodex," and my experience with scabies and permathrin may have made my nervous system ultra sensitive to any skin irritation. Is that a possibility?? I've also had the sensation of things crawling on me, but also tingling when I scratch... as though my skin has suffered some kind of nerve damage.

      At any rate, the scabies mite did a number on my left leg and buttock creases, leaving large, thickened, dark-red lumps that are hard to the touch and still there. Two of them have ingrained scabs. Some of these have gradually flattened and faded, but others remain itchy and raised. My primary care physician never even sent me to a dermatologist, just wrote me a script for prednisone which made me sick--and the itching came back four-fold when I was done with it. I begged to see a dermatologist who also just gave me some kind of hydrocortisone, unable to identify it.

      I finally found a site that made me think this was scabies, went back, and demanded to be scraped. There they were, they showed them to me under the microscope, but by that time the burrows had built callouses on my legs and butt. So I wondered if the permathrin even penetrated them? The first time I covered myself from neck to sole with permathrin I got very dizzy. The second time, a week later, I felt hot and itchy. Afterwards, I got a terrible rash across my stomach that looked like urticaria, and on my back and sides, and the itch from that was worse than the burrows. My dermatologist finally put me on sulfur.

      This is what I wanted to ask: what is your opinion about sulfur treatment? My husband and I are covering ourselves neck to sole with an extremely expensive combined lotion (made by an apothecary): 6 percent sulfur, 1 percent triamathylone (for control of itching) in a jelly base, and after two weeks I started getting some relief. Slowly, the vast rash across my stomach and sides began to fade and stop itching. But it has left my skin dry, especially after I shower. Also, I keep breaking out, just as everyone has described above, with little red bumps here and there--and in my panic I rub permathrin into them frantically. They go away in a few days, but right after the touch-up with the permathrin, I get the tickling all over, face, nostrils, eyelids, and all my bumps start itching again. It also gives me a slight wheeze. I cannot obviously go back to permathrin. And there is no WAY I am putting it on my face or near my eyes. So I'm wondering if you've investigated sulfur as a potential alternative, and can give me some hope there. I'm at the point where I want my larger bumps to be curretaged, scooped out, or I want to go on Ivermectin. We are going crazy with this, ruining our clothes and linen washing them constantly, my eyes are stinging with the lysol I'm putting on everything, I'm buying new undershirts and underwear constantly just to have alternative clothes to wear, I'm spending a fortune on dry-cleaning and my husband is having panic-attacks and had to go on medication. I don't know WHERE I got this-- all I know is that scabies has become an epidemic in two of our hospitals. I believe I picked them up either at a gym or in a hotel where I stayed in August. This thing is a monster. It might not kill you and it carries no diseases but it can ruin your life.

      Sulfur?

      Gratefully and god bless you,

      H.

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      Samoa6 3 years ago from San Diego

      Hedrim,

      I would definitely stay away from the permethrin, as you've concluded. I've seen/read no evidence for sulfur working to kill the mites. It might help your skin feel better in the short run, but other than that, I wouldn't rely on it. You absolutely must see a dermatologist with experience in scabies or a parasitologist. Your best bet might very well be ivermectin. Your case sounds like the Norwegian variety I've read about on the internet. Other than that, I am not sure what to tell you as I do not have any experience with any of the additional issues you've mentioned. You need to talk to an experienced doctor. It will go away, but you need to get the right treatment and have someone responsible for overseeing it. Good luck. Please keep us posted with your progress.

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      peter braam 3 years ago

      hi Samoa6,

      1 week after stopping the treatments with benzyl benzoate and permethrin. still feel itchy and crawling sensations plus occasional pinprick although m ugh less. also red dots keep appearing but now down to 1 a day and getting smaller.

      itchiness and crawling mainly at night but it seems to be getting less.

      still worried i might have it but should not be the case.

      will keep you posted.

      thanks

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      Hedrim 3 years ago

      Yes, Samoa, thanks so much, we've both been seeing a reliable and sympathetic dermatologist (finally!!) for the past five weeks (she did the initial scraping, saw the monsters, and put us on the sulfur after two weeks of the repulsive permathrin. My spouse was cured, but I'm a tough customer). What I need to know is whether the perm plus sulfur plus mild exfoliation with sulfur soap has killed these bastards after five weeks of treatment. Some of my papules are really tough and still itching. Does any ointment penetrate these mounds?? I go to see her Wednesday.

      You write above that you've "seen/read no evidence for sulfur working to kill the mites" -- yes you have, Samoa! In your very first post--lol: "Finally, a note on alternative treatments. In addition to permethrin, several other lotions including benzyl benzoate, sulfur in petrolatum, crotamiton and lindane are effective in killing scabies."

      Sulfur has been used for killing mites since antiquity. Perhaps slower, though.

      " Sulfur in petrolatum" is what our derm put us on after the two treatments of perm: 3 weeks of coating ourselves twice a day. It was very expensive, because she sent us to an apothecary who mixed it for us in a "combinatorial" application-- a new way of treating patients who don't respond to FDA approved drugs.

      I would tell those who catch the scabies early to go with the permathrin, because the pound of sulfur in petrolium jelly cost us 189 dollars!!! I did see a diminishment of the rash. But I'm not sure it was better than perm for saturating the hardest papules. For those I might need an oral drug.

      There's a google-able medical study on-line that gauged the effectiveness of sulfur for patients with scabies called "Treatment of scabies using 8% and 10% topical sulfur ointment in different regimens of application" However, they used a stronger solution for a shorter period of time with generally favorable results. We've been put on a 6 percent solution for a longer time (2x day 3 wks). Washing with sulfur soap every day (faddish) does NO GOOD--it just rinses off; it has to be applied mixed with petroleum jelly and left on. I'll let you know what our dermatologist tells me on Wednesday.

      I WILL be asking for another scraping, I WILL be asking for Ivermectin. I WILL be asking about the withdrawal symptoms from the anti-pruritic in the sulfur mixture. I WILL be asking about the demodex. I need to go to a conference after the new year and I can't be taking this with me!

      About demodex... I'll post that later. It's a mite that lives off the sebaceous glands in your eyelids and nose. I've had rosacea and blepheritis for 30 years. I WILL be going to the opthalmologist about this. :) Again, I'll keep you posted.

      Gratefully,

      H.

      Just for the record, in case anyone else is reading your excellent site, crusted (Norwegian) scabies is a very serious condition with millions of mites that afflicts the truly immuno-compromised (like chemo-patients and the elderly who've let it go) and is characterized by cracked, grayish crusts with minimal itching (mites have done damage to nerves?) that start to cover large expanses of the skin. I'll ask about that, though. Thanks again...

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      peter braam 3 years ago

      hi Samoa6

      just wanted to check with you if it is normal post scabies what i feel. Mind you i have had active scabies for a month or so and have treated many times with permethrin and benzyl benzoate.

      now after stopping all treatments i still feel crawling sensations and everyday find one new red bump. dontsee the mites though and the crawling is always in the evening, when it is warmer. if my skin looks ok except for a few red bumps and i feel small pinpricks now instead of the hard ones and light crawling is that all post scabies??

      really hard to tell the difference between post scabies and mites infestation. still no new burrows though so is that a true sign of not being infected anymore?

      i want to treat one time again just to make sure but worried it will not abate the symptoms. if so then is easy to conclude it is post scabies.

      thanks

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      Samoa6 3 years ago from San Diego

      Hedrim,

      Thanks so much for your input and correction! It has been quite a while since I did the research for and wrote this article, and since then, most of my communications have concerned permethrin. I guess I lost track of the rest since I never had to use it and most people try the perm. or ivermectin first. In any case, I certainly hope the sulfur works for you. Not many people have commented on it's effectiveness. The callouses etc. that you mentioned sound quite a bit worse than anything we experienced, which is why the crusted scabies came to mind. However it may just be that your immune system is reacting differently/more severely, either to the mites themselves or to the treatment. Curious what you find about demodex as well. I actually went to an opthalmologist to check this as a first pass before I realized it was scabies. From what I understand, it is not uncommon to have demodex mites, although as with crusted scabies, populations are thought to only get out of control with immuno-compromised individuals. And now they are being investigated as a potential source of rosacea . . . how odd if a bout with scabies ends up pinpointing the cause of your rosacea/blepheritis after so many years! I guess you will find out shortly - I hope it all ends well and soon for you. Please do keep us posted with whatever you come up with. It can only help. Thanks again!

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      Hedrim 3 years ago

      Thanks, Samoa... it would indeed be horrible to think you could harbor scabies in your face. From my own experience, I know that the scabies present differently on different parts of my body. On my legs, thighs, and in the buttock folds they make big, round, inflamed mounds--this is so embarrassing--that feel as though there are small rubber balls under them and they itch terribly. That itching has subsided over the course of the sulfur treatment but not for some mounds. On my arms, though, they are small, slightly raised pink bumps that look like mosquito bites. They collect on my back in the same way. They also put your immune system into overdrive, hence the famous scabies rash which looks like urticaria and itches even more severely. The rash has subsided considerably, but it has left my skin dry and unsupple and discolored.

      My first bump presented as a mosquito bite on my upper arm on the outside, but it came with a weird tickling on the tender side of my inner arm. That was strange: it reminded me of the reaction I used to get from allergy shots.

      Scabies, a monster in itself, is nevertheless not a vector: it doesn't carry bacteria. Demodex folliculorum is a mite that settles in your facial follicles and tear ducts. It carries bacteria that breed in it and when it dies, the bacteria are released and cause inflammation. So doctors who thought that rosacea and blepheritis were purely bacterial are beginning to think they are vectored by demodex mites which more commonly frequent the face than the body. I wonder if permathrin, which kills the scabies, causes the demodex to go into hyperdrive as well. They are smaller than scabies but they do crawl rapidly. Hence the tickling in the eyes and nose. Is it possible to harbor both scabies and demodex but never have a problem with them? For years, maybe? Our bodies are a mass of living organisms that take a ride on us. And for years, always in late summer and early fall, I would get inexplicable bites (red mounds) on parts of my body at night that no flea or mosquito could get to, but they would subside. No rash. I'm beginning to wonder if I've had this problem for a long time and-- stressed, with lowered immunities--I just became over-run. I still think I got the scabies from that hotel room in California. It may be that the little pimples that keep appearing after the perm treatment are not scabies mounds, but demodex mites in your follicles dying and releasing bacteria.

      That's just a supposition. Nobody is really sure. If you google "demodex" and "rosacea" or "demodex" and "blepheritis" you find these studies which have yet to be approved or disproved. See "Rosacea might be caused by mite faeces in your pores."

      Is it possible that when you "taped" your eyes and showed them to the doctor, demodex mites were mistaken for scabies mites? It's unlikely, if your doctor is good, because they are differently shaped, but I've never heard, Samoa, of a patient taping their eyes or their skin and bringing the findings in to the dermatologist. The dermatologist should be scraping the skin him/herself with a blade and putting it in a solution under the microscope. Is this an alternative method? Did the doctor give you special equipment to do that? Special tape? treated tape? Googling... okay I found this. Special attention to the scabies section: http://www.itchnot.com/images/Derm_DiagnosticTests...

      It seems that in order to find the mites you have to get beneath the first layer of skin. Talk to you tomorrow after I bring your article to my derm. ;)

      H.

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      Hedrim 3 years ago

      This is for PETER, who seems to need reassurance that he's not getting new scabies mounds. Peter, if you were reinfested, you'd know it! Didn't you get the traditional outrageous itch that comes with the initial scabies infestation? It's unbelievably persistent and fierce. Not just pin pricks, you can hardly wait to get out of company and into the bathroom and scratch. The scratching both relieves and exacerbates the itch. The term "scabies" comes from the Latin verb scabere, "to scratch" and the creature is called "the itch mite." I'm certain the mites have evolved to create this so you spread them to other parts of your body with your fingernails. The pin pricks and the little bumps are probably an immune system response to the permathrin, which you seem to have way-overused. Or, to the presence of the dead bodies and faeces still in your skin. Please please don't douse yourself again unless there is obvious evidence of a new outbreak. The whole point of Samoa's HUB site is to give people reassurance that the post-scabies itch takes a while to go away. But I got my worst rash after the second application of permathrin and thought I was going to die. Has your doctor put you on an anti-histamine or a topical anti-itch cream? (Actually, you don't want to get too acclimated to those, either.) I hope you are doing well, and wish me luck tomorrow. I might ask for a deeper scrape of two bumps to see if this regimen has worked at all. And I dread having to go off the sulfur suddenly. H.

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      Hedrim 3 years ago

      Wait... sorry, Samoa. I think that site I gave you about scraping and taping is for pets. :( Blush. But it might be useful for humans. Interestingly, the superficial scrape for scabies has low accuracy. Depressing, but useful information to give my derm.

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      Samoa6 3 years ago from San Diego

      Hedrim,

      The mite I got on tape was pure chance. My husband is a scientist so I made him take (millions lol) of pieces of tape into work and look under a high powered microscope until finally he found something. Total chance that the mite happened to be on the surface of my skin, they are usually burrowed but do surface in order to mate. Disgusting, I know. In any case, it was quite clear under the scope. It was definitely on my face, and it was definitely NOT demodex. They are totally different. The fact that you've had bumps etc. appearing for years does indeed make me wonder if people can carry things and not really notice for a long long time. I sincerely hope that whatever it is, scabies, demodex or both, that you can finally be rid of it. Oh, and one more thought, I would bet that if permethrin is killing the scabies, it would also kill off demodex as well. Don't you think? It seems unlikely that it would kill one species and hyper-activate another, although who knows. Just a thought.

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      Hedrim 3 years ago

      Went on Wednesday to see the dermatologist who did a deeper scrape on my most resistant welts on my backside, she couldn't see anything. Went home, and found five more itchy bumps on my neck. In little lines coming down from the nape near the hair. :( :(

      You won't like this, and this is probably not the way to do it, and DON'T RECOMMEND IT! but in fury I took the flat end of a nail, washed it, got it hot under the water, dried it, and pressed it to each bump and then permed them ferociously. It's left flat red marks. Burn the f**kers. MAYBE. It made my ears tickle and gave me a sore throat and a wheeze, but that died down, and today I took the Ivermectin: six pills on an empty stomach. Lots of water. My skin is very dried out from the sulfur and the rashes, and the dry heat in winter houses, and I'm disappointed that it didn't work completely--especially after two doses (all over) of permathrin three weeks ago. Seems the mites moved from my lower body to my upper--maybe by touch: they left my front alone and broke out on my left shoulder. But we were both covering each other COMPLETELY with the sulfur twice a day for the last three weeks. I had no idea these things were so hard to kill. Neither permathrin nor sulfur kill the EGGS...so what's the point? If the eggs hatch don't they produce new males and females? The sulfur was to prevent the males from coming to the surface.

      Now Ivermectin is supposed to kill everything. It crosses the blood-brain barrier and goes everywhere. I'm waiting for the side-effects to kick in. Dry eyes at this point, and hellatious headache. It's not only good for scabies, but it gets rid of other parasites. Not only demodex, but round worms. Ew.

      Very few creepy crawly feelings. I have read that those are due mainly to a kind of peripheral neuropathy. I can't imagine that mites so small could be felt walking on you. I get them when I scratch one place, and they are felt in another, as though nerves in high gear are relaying them. I think that all combined (mite feces, permathrin, etc.) create a sensitivity or allodynia that a lot of people feel who are NOT infested, but have damaged nervous systems. I hope that's the case.

      Wow: just scratched my head and voila... creepy shivery feelings in my leg. I'll keep you posted. I did tell my dermatologist about this site and the possibility of "post-scabies-syndrome" and he confirmed that they already have a term for it: "post-scabetic symptoms."

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      pregnant& scabies 3 years ago

      Hey Samoa. I posted a couple weeks ago. Went to a specialist and was told I still have scabies. I found burrows on my chest. I think I got reinfected because I didn't put cream on my scalp and also because I washed clothes with warm water. Did you use hot water? I live in an apartment so it seems to run out even after we turned off the cold. Well we started treatment again. This time applied cream everywhere. And I've been pouring boiling water in washing machine to make it hotter. Did you wash bedsheets and clothes daily? Also Vaccume daily? I'm worried about that. What was your cleaning regime? Please help I need this gone. Also I bearly even itch. Just slight itching. Also very few tiny bumps.Is that normal symptoms of scabies?

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      Samoa6 3 years ago from San Diego

      pregnant & scabies,

      I think it's good that you treated your entire body this time, hopefully your scalp, under your hair, as well as your face. You might expect some reaction to this as your facial skin is sensitive and the permethrin is very strong. You do not have to use hot water so much as just dry everything in the dryer on high heat. If you don't have a dryer I would consider possibly putting everything into a bad and bringing it to a laundry mat to use the dryer there. Put the bag in as well just to be sure. The morning after I treated everyone, I put all pajamas and bedding into the washing machine and vacuumed the car and house and cleaned out the vacuum cleaner into a trash bag outside before bathing everyone to get the cream off. I didn't do much more than that. Just wait it out after treatment. Make sure you do your second treatment a week later, cover your entire family.

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      Hedrim 3 years ago

      Hello "Pregnant" and Samoa. I am now confused about what people mean by "burrows." I am still covered all over my back and part of my stomach with itchy pimples and rashes (it seems to migrate: it leaves one part of my body and moves on to the next unaffected place). On one area on my thigh--where there was a large pimple that had gone away--ANOTHER nodule broke out which I zapped with permathrin. Mind you, this is after ivermectin taken a week ago, which followed three weeks being on sulfur cream, which followed two dousings of permathrin a week apart. Post-scabetic dermatitis AFAIK or at least in my case seems exacerbated not only by the scabies itself but by the permathrin. I cannot take this perm anymore: it produces more rashing and makes me wheezy.

      So: are the little itchy red spots "burrows" or dermatitis? I've been to the doctor twice since the initial "discovery" and each scraping of the itchy spots turns up nothing. I thought "burrows" were the little grayish squiggly lines that show the progress of the mite through your skin, like a gopher leaving bumpy trails in the grass. IS THAT WHAT YOU MEAN BY BURROW? I don't have those. I saw one of my foot before I started treatment.

      My primary symptom has been the huge nodules (like big, enflamed mast cells) on my rear end and back of my thighs--and a hellatious pimply rash. Most of those nodules are flattening down, but if a seam rubs against one it gets inflamed and itchy again. I will see the doctor tomorrow. Skin is dry as a desert and I rub myself all over with Aveeno and a prescription moisturizer. That's the only way I can move without feeling as though my skin is going to crack. I don't think I could stand another external scabicide, especially on my head and hair. I'll let you know what the doctor says.

      So: what is the typical "burrow" that you got on your chest? (we wash in hot water and dry hot. I do not have any bumps on my head or face, and nothing that looks like a burrow.)

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      Samoa6 3 years ago from San Diego

      Hedrim - I did not have burrows. Only small red dots that were nearly impossible for anyone but me to make out. For me it was mostly the crawling sensation.

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      Hedrim 3 years ago

      In all my reading, including this site, scabies "typically" has two presentations: the burrows (squiggly silvery lines) emerging from itchy inflamed nodules and an accompanying "scabetic rash" that looks like urticaria--not necessarily in the same place as the burrows. The rash makes the skin red as a sunburn and can contain tiny itchy dots. These aren't scabie burrows, necessarily, maybe, IDK, but a reaction created by the scabies. How clever nature made them. They want you to scratch the burrows and then scratch the rash, spreading their icky population. What makes all of this so difficult is that the permathrin can vastly exacerbate those scabetic rashes. Suddenly, after treatment, whole new areas break out with the sunburn and raised, red, pin-point, itchy dots in sensitive, allergic people. Then you are put in another panic: the permathrin didn't work! So you grease yourself again, a third time, with the toxic ointment and it gets even worse. How to tell a rash caused by the scabies from a rash caused by the permathrin? And then there are the corticosteroids that can ease the itch, but when you go off them suddenly the itch comes back. OMG you have scabies again, you think! And then you start spot treating the new bumps, and you break out again, and soon your back and stomach are just covered with little welts and red dots that are uneven to the touch. Even behind your ears. And showering makes it worse. There's nothing worse for dry, inflamed skin than a lot of hot water and scrubbing with soap all the time (which no matter how creamy has lye in it. I feel better, actually, if I put on moisturizer twice a day and DON'T shower every day--just spot clean.)

      This syndrome seems to be the problem you're addressing, Samoa, in this entire, helpful site. How do we tell the scabies rash from the post-scabies, post-treatment rash? When are we in the clear? I suggest there is a new problem that dermatologists are not equipped to answer and I call it "post-scabies paranoia": PSP. Neither are psychiatrists, since they don't treat you physically. PSP is not the same as delusional parasitosis. It is a damaging psychological condition that can cause people to return, dangerously, to too much self-medication. I am hoping that the pimples and rash all over my back is due to skin that has been traumatized both by the scabies and the medicine and not a new scabies outbreak after the perm, sulfur and Ivermectin. I've used a machine gun to kill a rat, and now there are holes all over my house. I'll tell you what the doctor says after he's SCRAAAAAPED me once again. ;) Thanks for your continual responses. Paranoiacally yours, H.

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      pregnant&scabies 3 years ago

      hey samoa

      yes i treated everything also my boyfriend. i tried to get it as best i could into my scalp, it was hard though. i noticed i had a couple bumps on my hairline and on my chin, so i tried to cover everything. my face was kind of dry the next day, kind of burned too, but as long as it gets rid of them, im fine. I do have a dryer, and dried everything on high heat. people have told me i got reinfected because i didnt use hot water, they say hot water is what kills them, but who knows. Did you use regular warm or cold water? So you didnt wipe surfaces down? We washed everything after the first treatment, i been kind of paranoid and washed bedding daily. but i will not do that anymore. i will just do the same the second time we are treated. hopefully that will be enough. Ive had a couple bumps pop up 3 days after treatment is that normal?

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      pregnant&scabies 3 years ago

      Hey Hedrim

      My burrows are very hard to see. You literally have to put your skin in the light and look for thin, curvy, clearish lines. Some have a dot at the end. You can't really see them from far away, and I use a magnifying glass sometimes to look at them closer.

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      Samoa6 3 years ago from San Diego

      pregnant - the bumps are "normal" - i can't remember what temp water i used but the heat from the dryer will dehydrate and kill the mites very quickly. not sure who mentioned water temp but i don't think it's important if you use the dryer.

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      pregnant& scabies 3 years ago

      Samoa

      Ok thanks a lot for your help. One more question though. Did you do anything to your mattress like Vaccume it or spray it down? My mattress is straight on the floor with no railings, so that gets me kind of worried. Do you think it's a problem that it's straight on the carpet?

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      Samoa6 3 years ago from San Diego

      pregnant - i did actually vacuum the mattress after removing sheets etc. for the wash. however i think you'd be ok if there was something on the mattress if you just cover it up with a clean mattress pad and then sheet. i.e., i highly doubt the mites can burrow through sheets. and maybe vacuum the floor around the bed as well, but nothing is going to live off of a host for longer than 3 days anyway.

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      pregnant&scabies 3 years ago

      I have a plastic mattress cover on it. Hopefully that will do. Ok I will check up in a couple of weeks. Happy new years!

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      Hedrim 3 years ago

      Pregnant: I only ever saw one of those burrows, and that was on my foot--after the first treatment of permathrin. It was pretty dead and it flaked away. None anywhere else. I went to the dermatologist on Wednesday and he said I had "Post-scabetic nodules" created by lymph cells. Imagine a threat, and your army over reacts and throws up mountains everywhere. There's an on-line abstract for a medical article called "Post-scabetic nodules: a lymphohistiocytic reaction rich in indeterminate cells." Apparently, the scabies triggered a massive immune-reaction in me. He could find no other sign of scabies, no burrows, just rubbery bumps that itched and a back full of inflamed follicles, and he put cortisone shots in the ripe ones--when they collapse they leave dark, purplish flat marks that will fade in time. Predinisone, which my idiot of a doctor put me on initially, can produce this reaction as well in people sensitive to it.

      The sulfur did a number on me too: my skin has never been so dry and it doesn't help when the temperature outside falls to 10 degrees F. Anything can cause every part of me to start itching all over again--I just had my hair colored again. Massive itch attack. It's like what Samoa said above: just wearing a new pair of earrings caused her to break out on her neck. Most of you are not having the problems I'm having with the huge nodules, so I'll bring this to a close, but I WILL say that the creepy-crawly sensations and pin-pricks I'm feeling post-permathrin are not scabies crawling on me but the effect of the histamine reaction to the scabies. If I'm exposed to anything chemically irritating right now my nose and eyes start to itch. That includes spot-checking with permathrin. Don't do that. It got them the first and second time around. And I took the oral ivermectin as well, which kills them and their eggs through the blood stream. It was probably over-kill, all of that, and I messed myself up.

      Samoa, please remind people as you have above to ask their dermatologist before they put the permathrin on their scalp, face, and especially eyelids. Or use it period without a doctor's prescription. My derm told me that he's been dealing with scabies for 30 years and he's rarely ever seen burrows on the face--it's the exception. A male might crawl there looking for the gals, but the females tend to dig in to the trunk and limbs. They like warm, hidden places, like the inside of your elbow, between your fingers, the fold under your buttocks. I would rather take the oral ivermectin than put it anywhere near my eyes.

      As Samoa said, if your symptoms don't go away after the massive machine gun attack of permathrin or ivermectin (stromectol), wait it out--or if it persists and you can't stand it, go to your doctor and mention "post-scabetic dermatitis" and ask her or him what to do about it. Ask for a lotion, and/or an anti-histamine. Drink a lot of water.

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      pregnant&scabies 3 years ago

      Hey Samoa

      Did you go through and wash all of your familys clothing? Or did you just wash the clothing during treatments and recently worn? Did you bf everything in your closets or did you just leave it alone? I'm wondering if I have to wash everything in the closet

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      Samoa6 3 years ago from San Diego

      pregnant - no, you don't have to wash everything. i only washed recently worn clothes. the mites cannot survive without being on a host for longer than 3 days, so maybe just to be safe, wash everything you've worn over the past week or so. i would include bath towels, socks, gloves and hats, and also vacuum out your car and wipe down the steering wheel. a lot of times the mites are in between fingers.

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      pregnant&scabies 3 years ago

      Ok thank you. Did you wear gloves while handling laundry?

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      Samoa6 3 years ago from San Diego

      pregnant - no but i had the permethrin on still in the morning while i did all that, and then showered it off. presumably that would have killed anything i picked up while doing laundry.

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      pregnant 3 years ago

      Ok one more question what were your symptoms when you had scabies? Because I rarely ever itched. Just sometimes and it wasn't ever unbearable. How did your bumps look?I don't have that many but my neice was covered in them

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      egionesco 3 years ago

      Samoa6- just want to thank you for this very reasonable page, it has been a great help to me psychologically.

      I am treating for scabies with permethrin even though my doctor doesn't think it is scabies but nothing really makes a ton of sense and the itch is ongoing. I have done the two permethrin treatments, continue to be itchy, and looking at things on the internet it's easy to get hysterical, in large part because by nature the people who are discussing this on the internet are going to be the unfortunate few who do not respond to the standard treatments. Additionally, many of them may be healed but still suffering as you and your family were for months, and then you're just banking on the accuracy of the medical literature since there's no real way to tell if you have it or you are in post scabies.

      I'm still itching like crazy, but crunching some numbers, given that I may not have scabies anyways and that permethrin usually works, I think there's less than a 5% chance I am infected at this time. However, it really is blogs like this one that have kept me in check and gotten me through this post-permethrin experience without resorting to other treatments, and for this I thank you.

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      Samoa6 3 years ago from San Diego

      egionesco - i'm glad the hub helps, if only a little. i am curious if you have any other signs besides just itching, i.e., bumps or crawling sensations? i ask because there are a lot of things that can cause itching so it may not be scabies at all. that being said, it's good to at least rule it out. if it is scabies and you are just not showing the typical symptoms, then you can still expect to experience the itching for some time after treatment, although it should be getting less and less severe. i hope you figure out whatever it is and that it is taken care of soon. best wishes.

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      Samoa6 3 years ago from San Diego

      pregnant - i mainly had a sensation that someone was blowing a handful of dust into my eyes, as i could feel an odd sort of "weight" on my eyelids. this and crawling along with some itching although the itching was not the worst part.

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      egionesco 3 years ago

      Samoa, the hub helps a lot because you are so rational about this, it's amazing that your doctor wanted to hit you with delusions.

      My doctor has ruled out a lot of things, but as with lots of rashes and itching, it's extremely difficult to figure out what it is. It's not classic anything, and it's way worse at night, so at my request my wife and I treated for scabies with permethrin. Currently two weeks after my second treatment and things are just as bad as they were before using permethrin, though right after treatment I had a patch of ugly blisters pop up on my lower abdomen that hadn't been there before. That's about it for visible symptoms, everything else is just itching. A very good chance it is not and never was scabies.

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      Samoa6 3 years ago from San Diego

      egionesco,

      right, for us it was the crawling that really pushed us to investigate scabies as opposed to other possibilities, although some people have allergies or hormonal issues that manifest as crawling sensations as well. one thing about your case - is it just you, or both you and your wife, experiencing symptoms? the latter might make scabies or some other communicable disease a more likely candidate.

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      pregnant 3 years ago

      Samoa

      Thanks. Did you have bumps? Rash? Were there a lot of them?

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      Samoa6 3 years ago from San Diego

      pregnant - tiny pinprick spots barely noticeable to anyone and even hard for me to see. rashes only emerged following permethrin treatment, which is why i think permethrin causes its own set of problems. no, there were not a lot of pinprick spots, maybe 4-5 on arms and across shoulder blades. for me it was more crawling sensation and feeling of something falling on my eyelashes.

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      pregnant 3 years ago

      Did those bumps itch? Did you experience itching or crawlies more at night? Also how long did you have scabies before you did the treatment?

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      pregnant 3 years ago

      Samoa

      Did those bumps itch? Was it more itchy or crawly at night? Also how long did you have scabies before you did treatment?

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      Hedrim 3 years ago

      Egionesco -- did the ugly blisters go away? were they painful? were they on one side of your abdomen? Did your doctor rule out shingles? Have you ever had chicken pox?

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      Samoa6 3 years ago from San Diego

      pregnant - yes they itched. yes, more at night, but also sometimes when sitting in the car that had been parked in the sun or at the computer i.e. with heat. we had it a long time but doctors kept telling us it wasn't scabies.

      hedrim - thanks for your thoughtful comment. hope it helps egionesco.

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      Hedrim 3 years ago

      For Pregnant: I had big lumps like mosquito bites on the back of my thigh that wouldn't go away. Yes, they itched. I was also breaking out with a rash on my stomach and sides. Small patches that itched even worse. I had a few smaller bumps on the inside of my elbow. And bumps on my feet. YES they itched much worse at night. I thought I would go crazy scratching my feet. After three weeks I went to a doctor who gave me prednisone. The itching went away, but not the lumps. Off the prednisone the itching got way worse. FINALLY I went to the dermatologist who scraped the bumps on my thigh and backside. Scabies was confirmed: recognizable under the microscope. After the bouts of treatment that I told everyone about, the itching and the lumps are still there. No evidence of scabies after more scrapings. How can there be? We laundered everything on hot water and high heat, vacuumed the house, the car, my computer room, even my keyboard, bagged all my recently worn clothes for two months, changed our pajamas every night and washed them repeatedly, put lysol on my computer chair, desk, keyboard. Wore a sulfur treatment day and night for three weeks. There is something called Post-Scabetic-Dermatitis that can linger for months and this is what Samoa's post is all about. The problem with scabies is just that: it messes with your nervous and immune system. They are hard to find by a mere scraping, but what is tell-tale are the little silvery-curved burrows. If you are NOT seeing those anymore after the second treatment, they have been killed. Did they scrape the burrows? Are you still getting burrows? If so, go back to the dermatologist and have them scraped. Be insistent. If you permathrined again, they are probably all dead and you are reacting--as usual--to both the permathrin and the allergen caused by the scabies. Since you are pregnant, I'd go easy on that pesticide. Sulfur helps and is a lot less dangerous. Ask the dermatologist about a compound made with sulfur ONLY if you are diagnosed again with scabies. The boiling water on recently worn clothes is a brilliant idea, but it's the heat of the dryer that clinches it. Make sure your partner is treated again. Change your bed linen every two days. Wash your pajamas frequently. This will help you psychologically.

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      pregnant 3 years ago

      Hedrim I haven't seen anymore burrows except the ones on my chest which look like they are disappearing already. The only new bumps I've had are behind my ears, that get me paranoid. I don't itch anymore just sometimes and only slightly like a normal itch. I asked me obgyn about the sulfur and he said he never heard about it, that one permetherin treatment should do it. I wash my sheets every three days for my sanity. I wonder if me not itching means they are dead. But I've heard of people having scabies and they don't itch

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      egionesco 3 years ago

      Hi Hedrim-- it's not shingles. It actually is far worse on the right side of my body, but it's also on the left.

      All of the sores and blisters have been withering. A few of them, in bunches, appeared the day after the second permethrin treatment. In a lot of places my skin is looking better, but definitely not on my trunk where it's still red and itchy.

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      Samoa6 3 years ago from San Diego

      egionesco,

      i hope you find relief soon - here is a webpage that gives a list of potential causes of itching if it turns out not to be scabies. http://www.mayoclinic.org/diseases-conditions/itch...

      i always check the mayo clinic site for any issues we have before talking to a doctor just so i have some idea of what to expect and which questions to ask. maybe it will suggest some potential causes you have not yet considered.

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      pregnant 3 years ago

      Samoa

      Do you think it's possible to have scabies but not itch?

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      Samoa6 3 years ago from San Diego

      pregnant,

      i honestly believe that if you treated yourself thoroughly with permethrin twice, with one week in between, that you are probably rid of the mites. i am not sure if everyone experiences itching with scabies, i think they probably do but just to different extents, i.e., it takes a while sometimes for someone to notice something is wrong when they first contract it - sometimes up to 6 weeks according to the literature. so during that time they might not feel too itchy, or at least they might not notice it. in your case, you already knew something was wrong so now you are probably just healing up and reacting to the permethrin. i would just wait it out a little longer.

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      samoa 3 years ago

      Yes I hope so. I just have two bumps behind my ears. And two on my back besides that I'm clear. Did you wash pillows too?or just the pillowcases?

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      Samoa6 3 years ago from San Diego

      just the pillow cases. you can always cover the pillows in those vinyl covers so you can wipe them down if you are nervous about it. anything on the pillow underneath the cover would certainly die off. but i don't think you have a problem anymore. it's just a waiting game.

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      samoa 3 years ago

      Samoa ok thanks. I think I asked already but not sure. You didn't wash or do anything to the shoes right?

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      Samoa6 3 years ago from San Diego

      i can't remember - i think i did actually wash shoes that i could bc the mites are often between toes. if you cannot wash them, then i would just put them in the garage or somewhere for a week so anything in them will die.

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      samoa 3 years ago

      Ok. Well I sprayed my shoes with spray that has permetherin in it and rotate them

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      thankful 3 years ago

      Hi, I still check on this page every so often.

      I just wanted to add that, as a 5 month post-permthrin treatment survivor, I do still get red bumps at times. Mostly they appear on my back, but occasionally on my abdomen, they itch but they don't last long. I apply a little 1% cortisone cream and that seems to take care of them. I still notice that my monthly hormonal fluctuations seems to be a time they become worse, and that anywhere I have pressure - from my bra straps especially - is a place that I itch more and get bumps. My scalp has also been itchy in a generalized way in a certain area and I have to be careful what products I use now, which didn't used to be a problem. My skin is still quite sensitive to scratchier fabrics, seams, or tight spots.

      My partner has none of these issues anymore. Mine are short-lived, though still not welcome!! Looking forward to a time when this is all totally gone, but thought this input might be helpful to someone.

      Good luck to any of you that are in the midst of this, it does get better, but it sure is hard to go through!

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      Hedrim 3 years ago

      Thank you, Thankful! I will be seeing my dermatologist tomorrow. I am still having horrendous problems with wide-spread urticaria and old, dead nodules coming back to life again, especially where they come in contact with the seams of my clothing. And the urticaria itches like crazy. My spouse, too, has no issues, so it can't be a re-infestation. But I can't stop scratching and that makes it worse. I'm best if I stay in loose pajamas all day long with oatmeal baths...but of course work days don't allow this so I can't get better. I'm pretty bummed about this. Five months are you are still suffering? I want to know from the derm what is happening. My suspicion is that they don't know; that this whole-scale attack on your skin awakens all manner of pathological histamine production that is long-lasting. :( Hives that occur, abate, re-occur, abate and a sensitivity to allergens that is off the chart. I am now sensitized to permathrin and also to halobetosol and other corticosteroids. They make me wheeze, my nose itch, and give me the sensation that I'm being pricked by pins all over my body. If I get an itch anywhere and scratch it, all my skin starts to itch. I want an explanation. My fear is that like so many immune disorders (IBS, interstitial cystitis, fibromyalgia, lupus, etc. three of which I have) there is no known cause or cure.

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      Hedrim 3 years ago

      They took a biopsy of three different rashes on my skin. One of them is caused by inflammation of the sweat glands and another is contact dermatitis. They don't know why post-scabetic syndrome puts some people in this state. As I said, I'm a huge allergen magnet. I'm waiting to hear back about the biopsies.

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      thankful 3 years ago

      Hedrim I think your theory makes sense - some of us get triggered into other issues, probably due to the treatments like permethrin. The question is can we be un-triggered? One can only hope! It sounds like you have other auto-immune problems which makes me wonder - I had an auto-immune disease in my late teen (a very long time ago now), - if there is a connection between those of us who suffer quite serious post-scabetic syndrome and our more difficult recovery from scabies/scabies treatments, and an auto-immune history. Something maybe your dermatologist could address?

      I sure hope you find relief soon, your situation sounds so terrible. Maybe just the passage of time will help. I am gradually getting better and better, at five months post-treatment, but as I said earlier I still have reactions. It's such a mystery, which makes it so hard - an easy answer and a quick cure is what's needed!! As if we haven't suffered enough with the scabies themselves.

      All the best to you, and may you recover quickly!

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      jrf 3 years ago

      My 3 yr old son has scabies and I cannot seem to find a doctor that will prescribe medication to treat myself and my husband since we do not have any symptoms (yet). I have heard how important it is for everyone to be treated at the same time. Has anyone else had this problem?

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      Samoa6 3 years ago from San Diego

      HI jrf - we had that problem coming from the kids' pediatrician. We ended up going to both our primary physician as well as multiple dermatologists and finally one of them recognized the significance of treating the entire family. Many doctors don't seem to have to deal with scabies very often, hence the lack of knowledge on this issue. Good luck - keep calling around and explain the issue up front on the phone before wasting your time/money on a visit.

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      Duderton 3 years ago

      This is to Chassy in San Diego, 24, from 6 months ago. You probably have a secondary infection on your face like Staph or Impetigo. Super common after scabies. Look into treatments for those two and you should clear up.

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      Hedrim 3 years ago

      Apparently after scabies, all sorts of dermatological problems can crop up. I'm still dealing with widespread urticaria (hives) all over my torso and back, sometimes on my arms. I don't have staph or impetigo, I don't think. Some boils on my legs. Various diagnoses have been suggested: dermagraphia (wherever you scratch hives burst forth), contact dermatitis, lymphomatoid papullosis (the most frightening but it was inconclusive: they took grafts from the nodules I had on my backside and found atypical mast cells in them--a massive immune system reaction). The question no one seems able to answer is why post scabies syndrome should mimic the skin disorders caused by lymphoma. I seem to have suffered a massive insult to the nerve endings in my skin because of this: I get the creepy crawlies in the old nodules which start itching again and sudden sharp pin pricks in various places on my body that make me gasp. Even in the tips of my fingers and the palms of my hands, but mostly on my stomach where the hives are. Sometimes they are like lightning bolts; I can feel the electricity scattering through my skin. My immune reaction to the bugs has apparently awakened an allergy to just about everything else: elastic waist bands, rough cloth, jeans fabric, and every single topical ointment that is supposed to give me relief. I'm sniffing often, have a stuffy nose all the time. I'm not saying this will happen to everyone who gets scabies, but I'm just not healing as fast as Samoa. :( Apparently, though, this is a reaction not limited to scabies. It can happen apparently to people who've had other parasites or been stung multiply by wasps or bees, or spider bite victims. The next step (I love my dermatologist!) is an allergy patch test. My health insurance (Aetna is a pig) won't cover my UVB light treatment. Apparently UV rays can help clear up skin problems. Bathe in the sun--judiciously. Tanning salons use UVA: not terribly therapeutic.

      Pray that I get over this at least by the end of this year and don't have to deal with the "seven year itch." All best....

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      Candace J Marley 3 years ago

      On the head lice issue I saw in the comments...they are prevalent and even if you get rid of them on a child going back to school they can get them all over again and it becomes a prolonged fight.

      Use the standard treatments for it...then get a spray bottle, fill with water and a little bit of tea tree oil. Shake well each time you are using it. Spray it in the hair. It wasn't until I did that for my daughter that she stopped bringing them back home from school. I did it every morning before she left for school until I found out if they had gotten the outbreak at school under control. The boys wore hair gel and that seemed to give them protection against it.

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      Hedrim 3 years ago

      This is a forum on post-scabies syndrome, Candace. People might mistake your advice for treatment of THAT... I would like it to stay on target. Yeah, some of the symptoms we're feeling might be other parasites and we have to distinguish between reactions to that and PSS, but most of us want to know what to do about PSS.

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      jack 3 years ago

      Hey I'm glad I stumbled upon this post bless you for all your help I really can't show how much gratitude I have towards you. Quick question I used perm once the itch subsided about 1 day after and was clear for about 4 days then itching began again so after 7 days I used second tube and itching went away for almost 5 days. Then the itching is coming back but not as bad . today when I took a shower I saw a red inflamed spec near my wrist about 20 min later it was gone invincible so my question is are these just post ? I remember the pain and agony of when before I put perm on and the mites were on a rampage but these itch don't feel like the mites to that degree. Thanks and bless you.

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      jack 3 years ago

      I would also like to add that on Saturday I put the cream and on wensday I experience my eye twitching but only for like 25min I'm not sure if it was related to perm but it has subsided the itch begaan again the following Saturday but not as bad as when I didn't apply the cream. Thanks any input would be great

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      Samoa6 3 years ago from San Diego

      jack - my bet is that it is just a reaction to the permethrin you are experiencing. at least one other commenter has said something about the permethrin making her eyes twitch, but her case seemed much worse than what you are describing, as it lasted a long time. i would wait it out about a month and see if things continue to get better - that is what happened with us. you will most likely still have some outbreaks, but they will be fewer and and less severe.

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      jack 3 years ago

      Samoa thanks for your input! The itching has calmed down today again I'll post in 3 days and update you . thanks!!

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      jack 3 years ago

      Hey there again, some good news the itching has subsided since last time here but yesterday I put on some long socks and my legs and shins were itchy then when I took my socks of my leg hair seem to be causing me uncomfort as if I feel each hair move .. Is this just because my skin is dry ?

      As for the perm I actually do think it works don't give up people I had two treatments done

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      Samoa6 3 years ago from San Diego

      hi jack - i think anything goes once you've used permetrhin. it probably makes your immune system work in overdrive so maybe the socks are just exacerbating that.

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      jack 3 years ago

      Thanks for the feed back . I am confused as if this crawling pinpricks is post . does perm in your experience seem to work at after you think its gone the feeling come back. I seriously doubt I got re infested but the crawling / pinprick is making me think other wise :{ help .. Should I ignore I don't want to get perm again I was doing so good.

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      Samoa6 3 years ago from San Diego

      jack - a lot of people report still feeling these sensations even after permethrin treatment that ends up being successful. In my case, I stopped feeling pinpricks and crawling but continued to get rashes for quite some time. I would hold off on any more treatment for a month or so (if you've finished your 2 treatments with one week in between already) and just see if things let up a bit.

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      Hedrim 3 years ago

      Courage, Jack. One of the outstanding features of a scabies infestation is that it messes with your immune system, making you hyper sensitive to skin sensation, by creating "mast cells" all over the body (cells produced by histamine reaction, essentially an allergy). That accounts for the itchy bumps. The permathrin, remember, is a pesticide and while it kills the mites it's also highly irritating to your already assaulted skin and its nerve endings. Hence the pinpricks and creepy crawly feelings. When I first got scabies, I didn't have much of a rash, and I didn't have any all-over pinpricks, and I didn't have much besides a couple of itchy bumps on the back of my leg. When they didn't go away, and migrated up my thigh, I was finally scraped, the mites detected, and then I was put on permathrin. THAT's when the rashes started in earnest. I have been off all skin medication since December and the rashes have subsided substantially, the bumps flattened. They will flare up if I scratch them, so when you get to that point, try to rub them. They are sensitive to seams, too, so you have to let your body heal naturally, you have to have forbearance and faith. Avoid tight clothing (summer is coming!). All best, Drim...

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      TylerTyler01 3 years ago

      Dear Samoa, I would appreciate your advice. I was diagnosed with scabies nearly 2 years ago due to myself, husband and 3 children all itching and subsequently we were treated with permethrin. At the time we did three treatments each a week apart and it took a few weeks of continued itching but the symptoms subsided and ultimately disappeared. Unfortunately at the beginning of February this year we started with similar symptoms again, i returned to a different doctor this time who like the first time around didn't think our symptoms were typical but prescribed permethrin anyway. In the last 12 weeks we have completed 5 applications of permethrin and i have done all the necessary cleaning each time. We are now just over 5 weeks since the last treatment and although some of the symptoms have subsided we all still have the itching crawling feelings and new spots appearing and myself and my husband really don't believe the treatment has worked. I am now beginning to wonder whether we could have some kind of bird mite in our home. I have looked for evidence but haven't found anything, here are my reasons for thinking this may be the case:

      1. This time around the itching has been more severe on all of us particularly on our faces, mouths and in and around our nose and scalp.

      2. None of us have the typical rash. We all have similar small spots appearing all over, my toddler didn't have any signs of a rash on hands or feet and she was particularly affected around her nose and face.

      3. My mother who visits us often showed similar symptoms particularly around her mouth and nose, she has completed 2 treatments and her symptoms have gone. No other close contacts have been affected.

      4. Our main symptom is a crawling feeling, not really an itch as such, its not subtle, sometimes it feels like the mites are wearing boots. and my spots vary in size from small red spots to ones that look similar to a mosquito bite. The spots are not particularly itchy after noticing them.

      5. Overall 3 months on and we all still have symptoms. We completed permethrin firstly 2 weeks apart then after a two week break the crawling was increasing so we completed 3 more.

      6. I have been using tea tree oil in our bath and neem soap, we all feel better after washing and the itching does subside after a bath or shower, so sleeping is ok but by the morning the crawling has returned, would this be the case with scabies?

      7 . Also any close contacts who may have picked this up from us last time surely would have passed it back before the 2 year mark, could this just be a random case again?

      8 i dont know if this could be just paranoia but i do notice people after being in our company a while, itching their face and nose, possibly this is just messing with my mind now after having these symptoms for months but I have definitely noticed this happening.

      9 Lastly and I promise Il end my post now, a year prior to us having scabies the first time round, during the summer months we had a week where flies would come into our dining room from our fireplace, at the time I did believe this was from a dead bird or rodent behind the fireplace or from a nest in the chimney, this went away after about a week so we soon forgot about it and never got it checked out. If birds were able to nestle in our chimney surely i would see them at some point.? Sorry for such a long post but I am loathe to use permethrin on the children again and would greatly appreciate your opinion. Best regards.

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      Samoa6 3 years ago from San Diego

      TylerTyler04

      Wow. I'm sorry this is all happening again, and for so long this time. If you did have birds in your fireplace, they very well may have come back (seasonally) and if they have mites, this could be your problem. You should check around all window sills and doors and definitely around the fireplace where it opens into the house. Also check electrical sockets and anywhere else there is an opening inside. You will be able to see bird mites if you look closely enough. Especially after they have eaten a blood meal, they get a little bigger and brownish-red to black looking. Otherwise, they are sort of clearish and difficult to see on your skin. Look on your bedsheets etc. because you might be able to detect something there. If you cannot see anything anywhere, it may be scabies again. If this is the case, it seems to me you are overusing the permethrin, which can cause the same symptoms as scabies, i.e., crawling itching etc. When you treated, did you treat your faces and scalp? In my opinion, which goes against what most doctors will tell you, you need to treat these areas. But be careful if you have any skin or other conditions as the permethrin is quite harsh and i am not a doctor so I cannot tell you about any potential problems this might cause. It didn't cause any for us, and we treated faces and scalps etc. bc that's where we felt the mites. And finally, does anyone in your house work somewhere like a nursing home, hospital etc. where they might be getting reinfested? Or does anyone have a boyfriend or girlfriend who might be reinfesting you all? Just some thoughts.

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      TylerTyler01 3 years ago

      Thanks for such a quick response. Yes we did the treatment on the scalp and face too each time, this was recommended by our doctor as new instruction even though it may not be on the instructions with the medication. However there never seems to be enough left in the tube to know if you have totally covered the scalp properly. No, no one works in a hospital or nursing home and no boyfriends or girlfriends coming into the house, the children are all under 7. I will have a thorough look for bird mites and if no luck will have to return to the doctor, but as the last treatments don't seem to be working and none of us have the typical itchy scabies rash then I don't know what he could offer us. Thank you for your input, I will return to the forum and let you know if we have any improvements.

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      Samoa6 3 years ago from San Diego

      TylerTyler01 - good luck. you may also want to request ivermectin and couple it with one more go around of permethrin. there should only be 1 week to 10 days in between the 2 treatments (in case you do it all again). but there is always the chance the permethrin is causing all of this.

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      Danny 3 years ago

      Hi Samoa6,

      thank you so much for keeping up with this forum. I wonder if you experienced something like what i'm experiencing right now...

      I have been treated with 2 doses of ivermectin (1 week apart) and permithrin simultaneously 2 months ago. After treatment, I stopped itching in about 1 week at night. The bumps and eczema sort of became bigger, turned purple, and then brown. I still have a few nodules that go down but come back right up again in my armpit and on my genitals. 3 weeks later, I started itching at night again - for 2 days. It then calmed down and i had a few bumps (perhaps 3 or 4) that popped up. No more itching/ bumps for the next month. However, just yesterday, I started getting more itchy again and discovered little bumps all over my body like at the start, except they are lighter in colour and they sometimes disappear, but sometimes get back up again. I had a itchy night yesterday but the itchiness stopped after taking anti-histamines.

      I haven't had any sexual contact (except once 3 weeks ago with someone i've never had sex with, and he doesnt have any bumps) and I live alone.

      Did you get post-scabies bump in cycles? I feel as though they come in 3~4 week cycles.

      thanks!

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      Samoa6 3 years ago from San Diego

      Hi Danny,

      Yes, same experience here, on and off in "cycles" for about 3 months or so, and then maybe a few times after that but very far in between. If you are reinfested, you will know soon enough. But as long as the itching etc. lets up pretty quickly, I would just wait it out before trying more medication.

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      Lovemy4kids 3 years ago

      Scabies went around my kids school in the fall and my one child picked it up, treated x2 with premethrin neck down, washed bedding everyday for 2-3 weeks, 3 weeks ago my same child that had symptoms in October got a bad rash in arms and hands was treated for poison ivy (we have never seen poison I've at my house, they thought that was what it looked like) gave him topical steroids and prednisone but the rash got on his hands and I just knew it was scabies :/ they have us prem again to do 1 week apart ( I did it on never tone neck line but not entire face or scalp) and also gave him ivermectin, my question is, do I have to clean everyday between treatments and change bedding daily? I vacuumed and scrubbed floors and changed bedding. Help I am so stressed! No one else have ever had symptoms and I have 6 in my family! I have so mug wash and not enough time Ina day to do it so I have been doing it as I can but I keep it in a trash bag till I get to it.

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      Lovemy4kids 3 years ago

      Did you clean your kids toys? Besides stuffed animals.

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      Samoa6 3 years ago from San Diego

      Lovemy4kids,

      I would just wash everything very well one time, just before washing the permethrin off. Then do it again for a second time after the second treatment. I only washed stuffed animals they had touched.

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      Lovemy4kids 3 years ago

      Did you clean the hard surfaces? Entertainment center and end tables? What about kids toys beside stuffed animals? Ex. Barbie castle, Legos....

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      Samoa6 3 years ago from San Diego

      i didn't worry too much about that stuff. the mites have no reason to wander around aimlessly. they are pretty much on or under skin. so it'd be a long shot if they moved from a hand onto any of those toys, but if you are afraid, then just put the toys in the garage or somewhere for a week and then anything on them couldn't survive. supposedly they can only survive off of a host for up to 72 hours.

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      Tkuknu 3 years ago from hawaii

      Hi Samoa6,

      Thank you so much for sharing your story! My son got diagnosed with scabies approximately a month ago. My son, Husband and I were super itchy as well, especially at night. We had bites on our body but my son had it the worst, wrists, genitals, buttocks and upper thigh. At first I thought it was bed bugs. Got that checked out and cleared. I then took him to his dermatologist because I had just taken him 2 weeks prior and he diagnosed him as having eczema. When took him back, he said scabies after I suggested it's what I thought. He did a scraping but couldn't find a mite but treated all of as such. My son got the ivermectin and permethrin and we were just told to do the permethrin. Itching got worse before it got better and we did 2nd treatment 3 weeks ago. My son got itchy just on his thighs again but now is better and I just have a couple of pimple looking bumps under my arms and by my genital area. The thing that is driving my husband and I crazy are the crawling sensations. I went back to the doctor this past week for my son and he said it's all in my mind, he said he doesn't think my son had scabies just a rash and is now treating the rash, I feel we did have scabies because my itching and bites have gone awAy and my son is better for the most part, it's just this crawling and pin prick sensations. Do you think this is from the cream or do you think it could be something else? We've thrown out our couch and bed and have laminate floors. I've been cleaning and vacuuming daily just not sure if it. Oils be something else. Have you heard of collembola? Any advice would be great.

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      Samoa6 3 years ago from San Diego

      Tkuknu,

      First off, my guess is that you all actually did have scabies otherwise why would you all feel itching and crawling? I'm not sure why your doctor would think otherwise. In any case, once we used permethrin, the crawling was over but the itchiness continued on and off for some time, i.e., months. Did you treat yourselves all at the same time, and thoroughly? Did you treat your faces and scalps? If not, you may have missed something. Also, have you considered where you might have picked it up to begin with? Maybe a daycare or other type facility? Somewhere your son is held a lot? You may be getting reinfested, although that is not the first thing I would assume. I would first assume you might not have treated thoroughly. Never heard of collembola.

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      Tkuknu 3 years ago from hawaii

      We did all treat the same time. I have 2 adult children in the home as well and my sons girlfriend and we all got treated. We did neck down as instructed but the second time around I decided to do my head and face. My son and his girlfriend are totally fine. She was itching prior to treatment as well. My daughter is fine but still has some bumps here and there. I was thinking of treating us again but was thinking this might be side effects from the cream and wanted to try wait it out.

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      Tkuknu 3 years ago from hawaii

      It's just frustrating that the doctor thinks I'm nuts and he's changed his diagnosis of my son 3 times. My son is 14 and plays football and wrestles so I'm thinking he got it from wrestling as there is a lot of skin to skin contact there. He hasn't wrestled since the end of January. Maybe we should get a second opinion. I'm just at a loss of what to do!!

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      Samoa6 3 years ago from San Diego

      Tkuknu,

      Of course the doctors think you're nuts! That's what inspired me to write this article! Go with your gut. If you're still feeling anything, I would redo the entire treatment process, from head to toe including your face etc., two times (one week apart). Sorry, but an entire family does not just simultaneously go insane, complaining of the same symptoms! That doctor is asinine.

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      Tkuknu 3 years ago from hawaii

      Thank you! I totally agree!! I will wait it out a week or so and see if symptoms subside, which they have quite a bit! If not, I will call around and try and find an experienced physician. I appreciate your feedback so quickly!! Everyone is usually so negative on these sites or are trying to make a buck. Thank you thank you!

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      Samoa6 3 years ago from San Diego

      Tkuku,

      I would do the same. Some people on here have said they continued to feel the crawling for a while after treatment. For us, that part stopped almost immediately but the rashes etc. continued even though we were cured. Good luck!

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      Lovemy4kids 3 years ago

      So I treated my family and I last night with prem but I got to thinking, I know cats don't get the same type of scabie but can they have it on them and pass it back to us from petting and sleeping in our beds? Should they be treated with anything?

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