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What Your Doctor Doesn't Tell You About Hyperthyroid and Hypothyroid

Updated on August 8, 2017
Nell Rose profile image

When I was diagnosed with thyroid disease, I discovered that my local doctors knew nothing about it. This is what I learned.

Thyroid disease encompasses hyperthyroid and hypothyroid types.
Thyroid disease encompasses hyperthyroid and hypothyroid types.

What and where is your thyroid?

Thyroid disease is one of those illnesses that hardly anybody thinks about—until they find themselves suffering from it.

You never see it talked about on TV, and magazines never mention it. In fact, the only time I'd ever heard of it before was when someone was talking about not being able to lose weight.

So, because of this experience, I assumed that thyroid issues were insignificant and easy to control. I thought that once the medication kicked it, it could easily be forgotten.

I couldn't have been more wrong. I discovered that suffering from an overactive thyroid was hell. Not only that, but the side effects of the medication, along with the way the thyroid can swing so easily toward under-functioning, was even worse.

Take it from me, being diagnosed with a thyroid problem is not easy. In fact, it can take over a year to get your body balanced and back to normal again—and even then it is something you must keep your eye on every day.

So what are the symptoms of an over active and under active thyroid?

An overactive thyroid can start to show up in quite a few ways. In fact you may feel really healthy as it can speed up your motor functions and make you rush around feeling full of energy. The trouble starts when you notice that you have lost a lot of weight, your eyes seem to be more staring, and your hands start to shake.

This is caused by the thyroid gland in your neck producing too much of the thyroid hormone. It is a bit like the fight and flight stimulation caused by stress. And the really bad thing about it, is that it can cause your heart to work too fast, pumping the blood around your system.

When I was diagnosed with Graves Disease, another word for Hyperthyroid, I was told in no uncertain terms to go home, sit down, and don’t move until the tablets that my doctor was going to give me had kicked in. Why? Because if I had an accident, and needed surgery, it could kill me! Not such and easy going illness, is it now?

Symptoms of Low Thyroid

  1. Sluggishness
  2. Weight gain
  3. Stomach problems
  4. Slow or stopped menstruation
  5. Depression ( A lot of depression is mis diagnosed, when really it is a thyroid problem)
  6. Slow thought process
  7. Can't focus properly with your eyes
  8. Dangerous to drive as your mental process doesn't work properly
  9. Panic attacks
  10. Poor sleep and nightmares
  11. Skin problems such as lack of elasticity.
  12. Very low thyroid can cause pockets of water to form on your face and body.

Symptoms of Over Active Thyroid

  1. Weight Loss
  2. Fast Heartbeat
  3. Shaking of the hands and poor elasticity of the skin on your hands and arms
  4. Out of breath
  5. Stomach problems
  6. Over active brain, can't sleep.
  7. Panic attacks.
  8. Goitre (Swelling in the neck)
  9. Very heavy menstruation
  10. Aching bones and muscles
  11. Bad eyesight such as dizzyness and after glow. Imagine a camera that has taken a picture of someone holding a torch. The glow from the torch spreads across the photo. This is similar to what happens when you look at something.
  12. Night sweats and sleep paralysis, very bad I might add.

Thyroid disease and Menstruation
Thyroid disease and Menstruation

Graves Disease and Menstruation.

One of the most distressing side effects of thyroid disease has to be the slowing down or stopping of Menstruation.

Even after medication, some women take months or even years to experience a normal period. And sadly a few never see another period.

Doctors have been known to blame this on early menopause but that is debatable. If this has happened to you make sure you get a second opinion and keep talking to your GP to find out exactly what is happening.

Hyperthyroid on the other hand can make your periods much heavier. But strangely enough, online it does say that hyperthyroid stops periods!

Confusing stuff!

As hyper makes everything go faster in your body you would think that it would make your periods heavier. This happened to me, I was using two boxes a day of internal protection while my thyroid was high.

In fact both hypo and hyper thyroid can cause something called Precocious Puberty. This appears in children younger than ten years old. These young kids start their periods way before the right time.

I think the main point is that thyroid disease can and does overlap symptoms.

Also I have been told through comments on here that Hyperthyroid has stopped their periods.

And I think this is the trouble. There is not enough research done on thyroid disease to figure out exactly what is going on.

So confusing!

But your GP should automatically make you an appointment with a Thyroid specialist. This is really important.

Do not let the doctor fob you off with his opinion! You must see someone who specializes in this field.

If you are diagnosed with Graves diseases it literally means that you have both hypo and hyper thyroid disease.

I always like it to a seesaw. Up and down until you can balance it in the middle. This can be achieved with Medication and regular blood tests.

Thyroid eye disease
Thyroid eye disease

Thyroid Eye Disease

Thyroid eye disease is another side effect. Your eyes will look puffy or strange, and your eyesight will start to suffer. You will also get watery eyes and pain. Not everybody will get this, but it is very common. Any thyroid problem is an auto immune disease. This means that your body is attacking itself. That's why its better to have a low thyroid than a high one.

Diagnosis and Pain

When you have been diagnosed, there are a number of different options for you to take. Tablets, radioactive tablet, and surgery. All depending on how bad your symptoms are. Your doctor will find the best one for you.

What the doctors do not tell you.

Now we get to the part that is really important. And trust me when I say that I have tried and tested all these! Not deliberately you understand, but by way of pain, trial and error.

For a start, lets take a look at the tablets.

You may think that the doctor will always give you the right medication. You have to remember that they probably have never had a thyroid problem so they are just doing it by the book.

But everybody is different. I was given a set of tablets called Carbamazole. To start with they were fine and my hyperthyroidism started to go down nicely. What I didn’t realise was the effect that they would have on me. I started to feel pain in my arms. In fact it got so bad that I couldn’t move them without yelling in agony.

Then it spread to my legs and back. The only way I can describe it is, imagine laying down on the road and letting a car run you over! Then being left to walk home. Yes, it was that bad. Every time I moved my arms, legs and back, it was excruciating. The strange, and very disturbing thing was, I called the doctor, and they gave me pain killers, not knowing why I was suffering like this.

I was admitted to hospital twice, and the doctor thought I had arthritis! In other words, nobody knew what was wrong. So, I did the only thing that I could think of. I bought a book about my illness.

That was the best thing I could have done. It turned out that I was allergic to Carbamazole, and when I told the doctor, he sat there, looked through his medical book and decided to change my tablets! I actually told him the ones that I wanted, and after that the pain went away!

Learn About The Disease

The second that you are diagnosed with thyroid disease, make sure you get a good book about your illness.

Do not take it for granted that the doctor knows about thyroid illness. They may have training, but they do not know how it feels. Apart from that, a thyroid illness has many symptoms. Some very subtle, others more obvious.

A doctor will learn the basics, and know what to look out for, but everybody is different. Its one of those illnesses that has so many side effects and different aches and pains. Unless you suffer from it, you will not know. It's not something that can be learned.

I discovered that hyperthyroidism is a very different illness. I was literally in the dark, and the annoying thing about it was that the doctors had no idea. You have to keep an eye on it yourself. Simple as that.

Take Charge

If you are told that you may have to have the radiation tablet, make sure that you ask as many questions as you need to know. Its your body. Don’t just go in there, take the tablet and go home. You choose. If you would rather carry on with the tablets, or have surgery, let them know. Taking a radioactive Iodine tablet can make some people sick, and you must keep away from babies and small children for at least two weeks. Saying that, its not strong enough to cause you any problems. It has been used for years. But you must be careful hugging people and staying near them for a few days.

That’s where the book comes in handy. The Internet is good for information, but the trouble is that you have to keep clicking on different sites to find exactly what info you are looking for. If you buy a book, then its there for you, all you have to do is flick through the chapters. Take this illness into your own hands. Its not only good for your health, but mentally you will feel a whole lot better if you know exactly how you are going to feel.

Radioactive Iodine Tablet laist.com
Radioactive Iodine Tablet laist.com
Mental Confusion caused by Hypothyroidism careman.wordpress.com
Mental Confusion caused by Hypothyroidism careman.wordpress.com

Hypothyroid can be frightening

On the other end of the scale, hypothyroidism is when you haven’t got enough hormone in your body. According to doctors this is much easier to control and sort out than if its too high. that’s all very well, but once again, doctors do not know how you personally feel. A low thyroid can be a very scary thing.

Why? Because bluntly speaking, it can make you feel like an idiot. Harsh? Sorry, but it’s the truth. A low thyroid is frightening because unless you have someone who knows how to recognise the state you are in, then basically you can go downhill fast. I don’t mean to frighten you, but it’s the truth.

Mental Confusion

According to the book that I read on the subject, a few years ago a young girl kept going to the doctor because she said she was ill. He diagnosed depression and gave her tablets. The situation got worse, but the doctor still said it was depression, and never looked for anything else. The young girl ended up in a coma and nearly died because the doctor had misdiagnosed her! True story!

Why did that happen? Easy, the symptoms are very similar to depression. And the worse thing about it is, when your thyroid hormone is too low, you cannot think! Your brain feels woolly and numb. Even looking at something will take you ages to figure out, purely because your mind is working too slowly. Your eyes see, but your mind does not connect.

How the hell are you going to look after yourself if the doctors misdiagnosis you?! Trust me on this, it happened to me!

The reason why it happened in my case was that the stupid doctors knew it was too high, so they gave me tablets, and the radiation tablet, and sent me home. Not one of them said come back in a month.

So, without thinking, I carried on taking them. My face filled with water pockets, I couldn’t recognise myself as it was swollen, and my mind felt as thought it was full of wool. Eventually, luckily for me, I looked in a mirror and realised that something was wrong. Just that one little voice in my head saved me.

I went back to the doctors and he said, your thyroid is dangerously low! And quickly changed my tablets! The stupid doctors, the specialist and all of them put together never ever said anything about this! The fact is, they didn’t know! They presumed that I would figure it out! How the hell could I figure it out when I couldn’t think?

So please, please get a book, read all about the symptoms, what happens when you are too high, check to make sure you are not to low and so on.

Do it before your mind decides to pack up on you. Trust me, nobody else will help.

And before you say, well, my friends will tell me. Or my partner will see.

NO! Two points on this one.

First, friends are too polite to say, hey, you look ill, anorexic, shaky, etc.

And secondly, your partner simply will not notice! It's true. It's such a subtle thing; it's very hard to spot.

Did You Know?

There are many celebrities who suffer from thyroid problems, including:

  • Rod Stewart
  • Oprah Winfrey
  • Kelly Osbourne
  • Kim Cattrall
  • Linda Ronstadt
  • Missy Elliott
  • and many more

Make A List And Stick It On The Wall

To wrap up, take note of the list below. If you find yourself in this situation and have been diagnosed with thyroid disease, make sure you:

  1. See a doctor.
  2. Buy a book on subject.
  3. Change your tablets the second you feel ill or in pain.
  4. Keep nagging and phoning the specialist, he is the only one who can help. GPs are useless!
  5. Keep looking in the mirror. If your face gets skinny, fat or filled with watery sacks, get down the doctors fast.
  6. Check your hands for the shakes, its one of the best signs of over activity.
  7. Check your heartbeat sitting down, running, and then sitting again, to see if it beats too fast, or changes normally.
  8. If you suddenly find that you are staring into space a lot, or sitting around without thinking, take more thyroxin and get to the doctors, your thyroid is too low.
  9. If your eyes start to get wobbly vision, get checked out again, some of the symptoms can either be too high or too low, they do overlap. Symptoms can feel scarily similar, so you may not know if you are too high or too low. Do not diagnose yourself.
  10. And last but not least, whenever you go to the doctors with any of the above symptoms, make sure you have a blood test. Never, ever let the doctor give you medication for depression without first checking to see if it's your thyroid that is causing your symptoms.

A mistake like that can kill you!

Sources

© 2012 Nell Rose

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    • Nell Rose profile image
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      Nell Rose 7 weeks ago from England

      CC, this is what you told me two months ago.

      'One of your symptoms needs to be switched over. When you have hyperthyroid menstryation slows or stops. You have it as increasing. Every medical site and dictums will tell you that it stops or slows'

      As its not Hyper that causes it to slow down, but Graves which is hyper and hypo I never changed it!

      Yes low thyroid which is part of Graves will do that and I will add that to the article. to be honest I forgot! I have written over 400 articles, and two books. also work full time, so it was a mistake. one question? why so angry? I didn't do it deliberately? I will change it now.

    • profile image

      CC 7 weeks ago

      So, you won't change facts about something that is a Graves disease symptom? How so? How about making a note that your symptom of no periods is very rare.

      Graves DOES slow down or stop menstruation. I know this for a fact because it's stopped mine. My endo tells me so as does my GP and every other legitimate site out there. The Mayo Clinic says so as well. Perhaps it did the opposite for you, but it's common knowledge that it stops or slows your periods. I have had Graves since December and have not had one period since November. I also have a few friends who have Graves and their periods stopped.

      HYPO causes longer and more frequent periods. Very rarely is it hyper. So while it has happened for you, it's very rare that it happens for others as the majority of women with Graves have less frequent periods, lighter periods, or none at all. You are passing it off as a common symptom not uncommon, which is what it is. Perhaps a side note to it as it is mis-infromation to provide it as a regular symptom.

      http://thyroid-info.com/articles/menstruation.htm

      Also, Graves isn't another name for hyperthyroidism. Graves causes hyperthyroidism.

      I appreciate your article and it's mostly informative, save for that glitch. I hope all who encounter Graves can get relief and get back to being themselves. We know it can take one down pretty hard.

    • Nell Rose profile image
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      Nell Rose 2 months ago from England

      Thanks for reading Linda, good luck to you both and I am glad you found this helpful.

    • profile image

      Linda Locke 2 months ago

      My youngest Daughter just diagnosed with Thyroid Cancer.

      So.....I started googling thyroid....

      I found out good info to help her, and info for me, as I have been diagnosed with hypothyroidism

    • Nell Rose profile image
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      Nell Rose 2 months ago from England

      Thanks James, I am so sorry you are going through this. I would get a book and find out the alternatives to the medication. then go and tell your Doc that you won't take that other one purely because its hurting your body. I changed mine from Carbamazole to propotheracile and it worked! good luck!

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      James 2 months ago

      I agree with what you said to CC, i have never had problems with hair growth, thats for sure and have also had very extreme shoulder socket pains for months on end. I have also always had problems with zoning out. Not to sound horrible but i have never trusted doctors. So i quit taking the synthroid i was issued and my shoulder pain went away but that was about two months ago and my recent blood work says my level is low Again, he has increased my dose and im scared to take it due to my shoulder socket pain returning. What to do? YOUR AWSOME!

    • Nell Rose profile image
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      Nell Rose 2 months ago from England

      Thanks Marcie, that is awful! Doctors get on my nerves with their misdiagnosis of Graves disease or hyper thyroid! I know how you feel. and how scary it must be. buy a book about it, it tells you more than a doctor will ever know. as I said in the article they only learn for a short time.trust yourself. and look in the mirror. your thyroid will show on your face. If you look normal then your thyroid is 'probably' normal, obviously get blood tests to make sure. If you look thin and your eyes poppy and sore then its too high, but and here's the danger, happened to me..., DON'T GO TOO LOW! its easy to take too much for too long meds. if your face looks puffy and water under the skin in pouches, yep me! then stop the tabs and get to the docs fast! the stupid docs HADN'T made me an appointment or told me about overdose too low! good luck!

    • profile image

      Marcie 2 months ago

      Thank you for sharing your story! I was just diagnosed hyper about three weeks ago and have been trying to read as much as possible. It's been confusing and scary. The beta blocker has curbed the heart symptoms and helped bring back my appetite, but make me tired and a little woozy at times. My doctor too has told me to stay cool and no exercise for sure. I know it will get better with time after the best treatment source is figured out. I have a scan scheduled for next week. By the way, I think this has been going on some time to a lesser degree - started with heart palpitations and a lump in the throat feeling four years ago! Had two doctors try to convince me over multiple visits that it was anxiety even though I insisted it wasn't. It's only recently that the tremors and palpitations developed and I went to a new doc who caught it! Anyway, I ramble, thank you again for sharing! It's helped me a lot.

    • Nell Rose profile image
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      Nell Rose 3 months ago from England

      Thanks Sarah, yes exactly! I am sorry to hear you suffered so much, its awful how doctors are useless where this is concerned! That's why I wrote about it, I think its terrible! thanks for reading.

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      Sarah 3 months ago

      I had an overactive thyroid for years and didn't no until I lost my baby and the hospital did tests, my heart rate was dangerously high and I had to stay in hospital. When I had gone to the doctors previous to this the doctors asked to see my arms and accused me of taking drugs because I looked that bad its a shame they chose to judge me rather than help me. Years later I've had a the whole thyroid removed and its still stressful as I have good days and bad days, and when I ask for a blood test it takes my doctors forever. But once you no the signs of when ur feeling high or low it yes easier to manage. Also !y eyes were really swollen and coming out of my sockets they have gone back to normal now but I have to wear glasses all the time as it did affect my vision. I think people need to be more aware of the disease! I never heard of it and had to do lot of research because the doctors wouldn't or couldn't explain what it was to me. Also this disease is hereditary

    • Nell Rose profile image
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      Nell Rose 4 months ago from England

      Hi Anne, I am so sorry to hear you are going through this. I do think that maybe you need to higher your dose? I am on 100 every day, but got a bit to high so now on 75. it does take a while to settle down, and get the dosage right. keep on at them until they listen! its the only thing you can do. get a book read all of it, and even if it means arguing with the Docs then do it, okay? good luck.

    • profile image

      Anne Gee 4 months ago

      Thanks Nell.. Had Hypothyroid. All what you was helpful. God bless you for the info. Am on Levothyroxine 50mg. Still having pains and cant stand cold environment and battling with weight gain too. Doc said its Reumatoid Arthritis before i went for thyroidectomy. Yet the crampy painful movement in my muscles (or veins) is unbearable. Had severe pains on the sole of my feet up to my hip right through my waist and back. Went for Physiotherapy (6 sessions) yet no relief on the sole. Went to see an Orthopaedic Surgeon. He gave me injection on the right sole of my foot saying everything will be alright. The pain is still there. (Called it Plantar Fasciis) Dont know if the thyroid is still at work.

    • Nell Rose profile image
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      Nell Rose 4 months ago from England

      Hi Marie, oh my goodness! Yes that nearly happened to me! I went up to 19 ! I am sure you know what I mean. bloods should be around 6-8 and I was 19! once step away from a thyroid storm too! and that's my point! thank goodness I had a brilliant doctor who chased me up, yelled go home! sit down and do not move etc! yes we look like its anxiety with shaking hands and body, losing weight etc, I just wish someone, anyone, friend, family or someone at work would have pointed it out, as we wouldn't notice it as its part of the illness! how long ago was this Marie? are you still on beta blockers etc?

    • profile image

      Marie 4 months ago

      I quite agree with Nell Rose. I ended up with only one week a month with no bleeding! Nightmare! And after having a TT I was OK for a while but became very hypothyroid, and instead of bleeding I had massive clots! Sorry if it is TMI but these are facts, actual experiences, not out of a medical book. Also, when I was overactive, I was sent by my GP to a psychiatric unit because he said I was suffering from anxiety neurosis. Missed the thyroid diagnosis completely, I ended up in hospital with Thyroid Storm, a life threatening condition requiring IV rehydration and Huge doses of antithyroid drugs plus beta blockers.

    • Nell Rose profile image
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      Nell Rose 4 months ago from England

      Sorry CC but you are wrong. When you are hyperthyroid everything speeds up. Heart, hair growth etc. And one of the worse side effects, I know for a fact is your periods are a nightmare! they go on and on! happened to me! maybe for some people they stop, but all the people I interviewed said the same as me. As for saying I might want to fix that, this isn't a copy, made up or read article. its about me and what happened. I won't change facts. Thanks for reading, nell

    • profile image

      CC 4 months ago

      One of your symptoms needs to be switched over. When you have hyperthyroid menstryation slows or stops. You have it as increasing. Every medical site and dictums will tell you that it stops or slows.

      You might want to fix that.

    • Nell Rose profile image
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      Nell Rose 6 months ago from England

      Hi Lindy, I am so sorry you are feeling so ill. If you are too high you will need some other tablets that will take your thyroid hormone back down, like carmazole, or propylthiouracil . the second one is by far the best. Maybe your doctor is trying to take you slowly off the levothyroxine? it really does all depend on how high you are. Go back to see him and ask how high, and when do you start taking the tablets for getting it lower? you need to keep an eye on it. as I said above, doctors are useless where thyroid is concerned. if you print of my article take it to the docs and say, this is the meds I need! you MUST keep an eye on it yourself, try to measure up your meds. if you feel dizzy cut down on the levothyroxine, make sure you keep getting blood tests, okay? good luck! and let me know how you get on!

    • profile image

      Lindy 6 months ago

      Hi my name is Lindy and im from south Africa. I had under active thyroid for 8years. A month a go I felt very bad and my symptoms felt different and worse. So I went back to the dokter and took some blood tests. My dokter told me that I have hyperthyroidism know. So he told me to stay on the levothyroxine. I was taking 300 mg and he told me to take 200mg know. It does not seem right. I feel so bad and it is effecting my work. Please help

    • Nell Rose profile image
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      Nell Rose 6 months ago from England

      Hi Rukeya, sorry to hear that, maybe she is suffering from depression too? it can make you feel really ill with a high thyroid. Just talk to her and tell her that it will be okay as long as she gets her meds right she will soon feel much better.

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      Rukeya 6 months ago

      My mom has a overactive thyroid, we only found out about two months ago. My mom do not talk at all, she will only say yes or no sometimes. Can this be related to the overactive thyroid? please help..

    • Nell Rose profile image
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      Nell Rose 7 months ago from England

      Thanks Gillian, glad it was helpful.

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      Gillian Foley 7 months ago

      Your information is very help full as I have over active thyroid myself and I'm on neomercazole

    • profile image

      cindi 7 months ago

      My mother in law has a hyperthyroid and is on medication. The tsh level is 6.1 now. She is experiencing paranoid symptoms which are very scary. Can this be a result of this tsh reading?

    • Nell Rose profile image
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      Nell Rose 8 months ago from England

      Thanks Snakesmum, yes it does take time doesn't it? and you always have to check that it doesn't go too high or low, thanks for reading.

    • Snakesmum profile image

      Jean DAndrea 8 months ago from Victoria, Australia

      About two years ago, I was diagnosed with hypothyroid - my Dr knew something wasn't right so sent me for blood tests. Took about a year to get the dosage of meds right, but I'm stable now. Tests twice a year to confirm everything is still ok though. Learned a few things from your article, thanks!

    • Nell Rose profile image
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      Nell Rose 8 months ago from England

      Hi, Not sure what you mean? I think I get your point, so on that thought I would say that the thyroid is either too high or too low. best go and get a blood test to check your thyroid, okay?

    • Nell Rose profile image
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      Nell Rose 8 months ago from England

      Hi Lily, first of all don't panic! I know how stressful it is obviously because I have had high and low. first of all there are thousands of Americans and Europeans who walk around each day without knowing they have a bad thyroid! fact. so that puts it in perspective. being high is dangerous, simple as that, so if they say take the iodine then please take it. you won't feel a thing trust me. as for your lovely baby surely you have family who can help? if not, then maybe friends? its not ideal but she will need her mum so a few weeks of being uncomfortable away from her will be best in the long run. I did it, I just kept to the other side of the room from my family, or slept in a different bedroom from my partner. as for your grandmother I am sure they would have tested you by now? if not make sure you get all the blood tests etc. it does make me mad to think that such a dangerous thing as bad thyroid is totally ignored by docs.

      so make sure you double check everything yourself. and if you get tablets that make your body ache and hurt go to the docs and say you need another type. I did it. carbamazole messed me up by making my arms and legs hurt so badly! I bought a book and read it through, then did it myself. its your body, double check all the time. best tablets are propothouracil.

      one thing to double check is that when you have had your meds, keep an eye out for going too low! thats what happened to me! your thoughts get muffled, you put on weight and my face blew up like a puffer fish! docs are very lazy with this. blood tests all the time okay? and it will get better I promise you!

    • profile image

      Lilyp 8 months ago

      I've just been told I am hypethyroid after 7(!) Years of complaining of the symptoms. I cannot for the life of me understand why it's taken so long to diagnose. Apparently my doctor had to do a different test than usual. I am now terrified as my grandmother had thyroid cancer and my mother had all the symptoms of hyperthyroid but was never diagnosed and died in her late 40's. I have a baby and don't know how I can possibly have the radioactive iodine as there's no-one to take care of her for the two weeks I can't be near her. I am finding the whole situation frightening and overwhelming.

    • Nell Rose profile image
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      Nell Rose 8 months ago from England

      Hi Malissa, it sounds like your thyroid has got dangerously low! the trouble with graves is that the symptoms seem to overlap, the eyes and seeing go funny when its too high, but the tiredness and feeling strange is classic low thyroid, you really need to keep up with your blood tests. being high or low can change so quickly! good luck, and get that blood test done.

    • profile image

      Malissa Anderson 8 months ago

      Hi everyone, firstly I would like to thank you all for your stories, I was diagnosed at the age of 35 and was told hyperthyroid and graves 3 years on was told I had to have a full tbyroidectomy due to thyroid cancer. No I am sicker than ever my doctors have never seemed to get it right. I feel funny in the head and in the front between my eyes, my vission has been weird and eyes seem to water a lot and light hurts, by memory is very bad and some times get pain in my chest. I do not feel normal at, all and find myself tired but it seems like a weird tired( hard to explain ) no one seems to understand especially my doctors, but I am getting very bad. There are other symptoms as well but mainly the weird feeling in my head. Any help would be greatly appreciated thanks

      Malissa

    • Nell Rose profile image
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      Nell Rose 8 months ago from England

      Hi Trina, anything and everything! but because you are feeling probably still ill its best to eat healthy but top up in between with high calorie drinks that you can buy in the chemist, good luck! hope you feel better soon!

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      Trina wallace 8 months ago

      What foods can you eat to gain weight after starting the medication for hyperthyroidism?

    • Nell Rose profile image
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      Nell Rose 9 months ago from England

      Thank you Honest Person, I hope you feel well soon. It took me quite a while too, just rest and recuperate, and thanks again.

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      Honest person 9 months ago

      I had radiation for severe hyperthyroidism. I did have a thyroid storm following treatment and lost 24 lbs in 22 days. You only have to be in isolation 3 days . It's not the end of the world. I will say it's been 11 months and I'm still not stable. I have headaches frequently, go days without sleep and then go days where I can't stay awake. It's a life long battle yes. But living is another way to look at. Do the treatment that's best for you . Not getting treated will make your life worse. This article is an opinion. Graves is not the same for everyone. You would never know I had it by looking at me. My eyes are normal and I'm the right weight for my height. You can't assume you will be 100% ever but you can't assume you will feel horrible all the time. Stay positive or you will never recover. Don't believe that you will have all the symptoms and problems that someone else has. Don't pity yourself over Graves disease we are living not dying.

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      Nell Rose 11 months ago from England

      Thank you Jeanne I am so glad you found it helpful. Its only when we live through something like this that we know what's going on and how much the doctors know. I have to admit I was shocked at the lack of knowledge. Good luck in the future, hope you are better soon.

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      Jeanne Garner 11 months ago

      Thanks so much!! I have learned a lot!

      Thank GOD for people like you!!

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      Nell Rose 13 months ago from England

      Hi Desaray,don't worry too much, the name graves disease does sound scary doesn't it? but its literally just named after the guy who first got it. it just means that your thyroid can be a bit like a seesaw, goes up goes down etc. you just have to monitor it and make sure you take the right tablets. your body will take a while to settle but it will start to feel healthier after a few weeks. takes a while, but do not worry, and try to get enough rest if thats possible, you will feel tired, and then hyper, just try to balance yourself and drink lots of water, not caffeine and keep of mixing vitamins with your tablets okay? just make sure that you see your gp frequently to monitor your levels of thyroxine, good luck. :)

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      Desaray 13 months ago

      I just found out a month or so ago that I have hyperthyroid and possibly graves disease. I'm 29 and a mother of 2 little girls.

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      Nell Rose 16 months ago from England

      Hi Micah, sorry to hear you think you have thyroid problems. Yes if your thyroid is too high it will make you more active, but, and this is a big but, if it gets too high your body will start to shake and you could end up in hospital with serious side effects! this is serious stuff. if its too low you will start to feel 'fuzzy' slow and maybe put on weight. just get a blood test, it can be easy controlled with just a tablet a day! easy! the reason why I had to take the iodine was that I was so high that it was dangerous, get it checked out early and you will be fine, don't worry.

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      Micah 16 months ago

      Im a bit unsure if whether i would take the radio active iodine , because of the symptoms of hypothyroid , i would rather be active one than the slower one. And my body just feel normal about it. I am so afraid that after the r.a.i there are some changes in me. Im 20 and still studying what would happen if im a hypothyroid now ? Slow thinker ? I cant. I just cant. I've been crying thru nights thinking of this. Can you give me advise ? Im glad i found this site. Hope you will respond.

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      Nell Rose 20 months ago from England

      Thanks Larissa, yes it does doesn't it? luckily my thyroid seems under control now, and I hope yours is too, and thanks for reading, nell

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      Larissa Wilcox 20 months ago

      I have hyperthyroidism and possibly Graves' disease and I have the mental messed up stuff. So just keep in mind that just because you have hyper not hypo does not mean that isn't what's causing you to feel spaced out because it definitely will!

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      Nell Rose 21 months ago from England

      Hi Cheryl, first of all, don't worry. Hyperthyroidism is pretty scary, but now they have found out that you are so high they will give you meds to sort it out. Its pretty easy, after a couple of days you will notice you're not shaking so much, and after about a week it will settle down. it does take time to get the meds just right, and it can be a bit of a seesaw time with them, too high, too low and so on, but you will soon get used to it and know your own body.

      Two things to watch out for. One, make sure you watch how low thyroid it goes, if it goes too low it can be dangerous, see above, and second, if you need to swallow a radioactive tablet don't worry, it doesn't hurt, but you will have to let someone have your children for a couple of weeks just to be careful, I know its scary, but don't worry, it will be fine, glad they found out through blood work, the worse is over. of course you may get thyroid eyes for a while, not nice, you will look a bit strange, but wearing dark glasses will help. okay? if you need more info, just come back, okay, good luck, nell

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      Cheryl 21 months ago

      Thank you for this. I was diagnosed with hyperthyroidism 4 days ago. I went to see a Dr because my heart was pounding out of my chest and I was shaking terribly. My husband who is an RN came with me. The Dr prescribed Xanax and wasn't going to do blood work. My husband pushed the blood work and I'm so glad he did. I'm only 29 and a mother of 2 small children. I'm very scared of what the future holds for me.

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      Nell Rose 2 years ago from England

      Thanks Linda, yes the docs never ever tell you anything about it! that's where books come in, its disgusting, thanks, nell

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      Linda Bilyeu 2 years ago from Orlando, FL

      Kudos to you, Nell for making others aware of this disorder. I hope your info helps many others.

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      Nell Rose 2 years ago from England

      Hi Colleen, that must have been awful being young and not understanding what was going on with your body because of this illness, thanks so much for coming back and I am glad it was helpful to you, nell

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      Colleen Diemer 2 years ago from Florida

      Nell, It was a great pleasure. I wish everyone understood our struggle. You did an excellent job explaining it.Most of all the fact that no one talks about it and Dr.are incompetent in this field. Even the specialists.Maybe we can work to change that. You sure have already started and I commend you for it. I still have not told my story because of the shame attached to it. So much family trouble and going undiagnosed as well as misdiagnosed is an awful thing for a perfect young child with a bright beautiful mind.I know you understand.Reading your story I feel I have a friend for sure. Thank you for not giving up your fight and writing your article to help others. Colleen

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      Nell Rose 2 years ago from England

      Thanks Colleen, glad to help, and thanks for reading, nell

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      Colleen Diemer 2 years ago from Florida

      Loved this article. With my own personal experience I had to read it. Great job.

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      Nell Rose 2 years ago from England

      Hiya mary, that's so true, they don't know hardly anything at all about thyroid problems its pretty scary if you ask me, thanks

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      Mary Craig 2 years ago from New York

      Excellent information Nell! You've certainly warned people about what to look for and what to ask at the doctors. We sometimes attribute super powers to doctors and that just isn't so!

      Voted up, useful, awesome, and interesting.

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      Nell Rose 2 years ago from England

      Hi pmc, great to see you! thanks so much for reading, and I am glad it helped you, thanks, nell

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      pmccray 2 years ago from Utah

      Hey Nell: thank you for authoring this informative article. I wondered if I suffer from this malady, and after reading I don't. Excellent read. FB and Twittered.

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      Nell Rose 2 years ago from England

      Thanks Kristen, yes much better these days, but it did take a while to balance up the meds, they can be really awful if you get them wrong in the first place, and the doctors were useless to be honest!

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      Kristen Howe 2 years ago from Northeast Ohio

      Nell, thanks for sharing your experience on this health subject with us. A lot of traffic and comments over here. This is so useful to know the symptoms and side effects for it and what to do about it. Hope you're feeling better. Voted up!

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      Nell Rose 2 years ago from England

      Thank you so much Rashmi, I am so glad it helped you. Hyperthyroid and Hypothyroid can be such a strange illness, and its only when you suffer with it yourself can you know what symptoms you have, so glad to have helped you, Nell

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      Rashmi 2 years ago

      Hi Nell ! Hw r u ?? Just by chance I came a cross ur post. This is d first.time when m reading any of ur post. I REALLY REALLY don't hv words 2 appreciate it. M also a hypothyroidism patient for almost 15 yrs(when I Ws 24 yrs) . My skin got noticeably rough. My mdermatolo gist advised me 2 get TSH done. Once it ws positive, he referred me 2 an.endocrinologist. I ws given thyrox. By d grace of god everything is going well since then. I keep getting blood tested. When.I read ur article it really led me 2 b more aware. Otherwise I ws relying on Dr. Blindly. Thanx a lot Nell. Ur only 1 post hs made me ur.gr8 fan. Best regards - Rashmi (India).

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      Nell Rose 3 years ago from England

      Hi Tiffany, it sounds like the meds you were given is making your thyroid too high, in other words you are becoming hyperthyroid. this will keep you awake. Your anxiety levels will get really bad, and have you started to get shaky? if so its best to go back to get your blood checked again, they may be able to adjust your meds. to see if you are getting to high, walk around the room quite quickly, then sit down and check your pulse. it should start to slow down. if it doesn't then yes its got too high. getting a high thyroid can be pretty dangerous too, just like low, and another symptom is losing weight and stomach problems, many little niggles will be happening to you, thats not normal either. go get your blood checked again as soon as possible, okay? good luck and let me know how you get on? thanks

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      Tiffany 3 years ago

      Hi! Thanks for the article and tips. I recently went for a physical and my GP looked at my blood work and told me I was hypo and immediatley gave me a prescription for levothyroxine. I was on it for 7 weeks and then BOOM. Not sleeping and anxiety big time. I stopped taking the levothyroxine. I tried lots of sleep aids ect...I would lay down at 11 and not fall asleep to 3am. I began feeling very anxious about nighttime and panicky. Right now I am not on anything but still not sleeping. I am never had a sleeping issue until now. What do you suggest? I feel like the levothyroxine put my thyroid in a worse condition. I was not showing any symptoms of hypothyroidism when my doctor said I should take it. I will never do that again. It has been 1 month with so little sleep. Any feedback you have would be great! Thanks.

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      Nell Rose 3 years ago from England

      Hi Ribbons, sadly thats one of the most annoying things about thyroidism. if its too low our memories go to pieces, and too high, we get so darn agitated that we forget things too. By the sound of it, you are too low, thats when it really gets bad for me, I would get another blood test just to check, it does get better I promise, good luck, and thanks

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      Ribbons 3 years ago

      Hi. I have had issues with depression for a long time and when my doctor retired and I signed up with a new one, I decided to take some action. He did a lot of blood tests because I was a new patient. He saw that my thyroid levels were "a bit off." Unfortunately it took me a year and a half for me to get another blood test done to double check my levels. Mostly because I left for school and I am pretty insecure. The second test prompted me to do internet research for hypothyroidism. I found out an aunt in my family is taking hormone treatment for hypothyroidism. I was afraid he would say no and direct me to other depression treatments. (I started Welbutrin around this time for my depression. )

      Well after presenting him with my research he gave me a big speech about how people on the internet, not me, he would point out, but other people with depression who learn about hypothyroidism and assume that it's the magic answer, and that they would go to many doctors to make sure they got that diagnosis. He did prescribe me levothyroxine and told me that the blood levels were his proving factor on why he gave me the medication. I wasn't told specifically, "You are diagnosed with hypothyroidism", just that my levels were slightly off.

      I felt a big difference after taking the meds and my blood tests show that things are level now. I still have some issues with depression, and a more noticeable issue with anxiety. Although right before I left for school I noticed a difference in cognitive function. I have difficulty remembering things, my boyfriend gets upset because I'll ask him the same question again and again within only a few hours. I'll forget important information he tells me even if it were only twenty minutes ago. I cannot seem to focus and have big concentration problems where I never had them before. I'm even finding it hard to speak in common social situations because I will lose my words. I'll be trying to explain something simple like, the events of my day, and fail on common words. I tried telling my doctor about my memory issues because I can tell there is a difference and it's very concerning to me as an artist. He just blew it off as, "Oh I forget things too."

      It feels like he is not fond of cognitive issues. On one side of the coin, I feel more in control of my depression and I am capable of actually getting out of bed in the morning and I have lost that ugly, laggy, tiresome feeling thanks to the levothyroxine. I am taking it along with my antidepressant. The memory and concentration issues still persist.

    • Nell Rose profile image
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      Nell Rose 3 years ago from England

      Thanks Shyron, glad you liked it, I was appalled at how the lack of information the doc gave me made me so ill! It was purely ignorance on his part! evidently they only train for an hour about thyroid disease! what the heck? thanks again, nell

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      Shyron E Shenko 3 years ago from Texas

      Nell, thank you for writing this, you have no idea how many people this will help. It would have helped me about 5 years ago, but that was not my problem.

      Voted up, UAI and shared.

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      Nell Rose 3 years ago from England

      Hi Vikash, I am so sorry to hear your mother is ill. It sounds like a really bad infection of some sort. But I am not a doctor, so I would rather not give you advice just in case its the wrong advice. I would suggest that the doctor give her 'full range' blood tests, which means they check for everything. I remember my mother had a really bad water infection, fever and was talking rubbish too, it was caused by the water infection. But don't quote me on that. I would rather not talk on skype as I don't think I can give any more medical advice, its best left to the doctors. Good luck and thanks, nell

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      Vikash128 3 years ago

      Hello Nell Rose ,

      I am Grand Requesting you i must need your help . actually My Mother is in unconscious State. We have checked So many Test but doctor did not identify any disease . what actually happend with her . she was suffering Fever. She went to hospital and doctor given some normal tablets . but after two days suddenly felt her eyes was visibility low and feeling Headaches . now at this time she have lost of memory and talking like a idiot and have no control of mind process. she can not identify anybody and not see anything . we have checked Test Hypothyriod found first time 35 and Second Time 70. Please Help us . I want to talk personally On skype Would you give my your skype id Thanks For giving your valuable time . I am from India. I got informationg about you from your Wall Posting . i am waiting your response .

    • Nell Rose profile image
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      Nell Rose 3 years ago from England

      Hi pmc! Long time no see! great to see you! And thanks for reading, nell

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      pmccray 3 years ago from Utah

      Very informative, beautifully done and thank you for sharing this valuable information.

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      Nell Rose 3 years ago from England

      Thanks for reading Deb, sorry to hear you have Graves too, it can be so confusing at the beginning, but I can say it takes quite a few months to get a balance and make you feel human again. And yes, our brains just don't want to work properly when its too high or low, I remember just staring at the tv for hours and not realising it, people would talk to me and two seconds later I would forget what they said, I forgot to meet friends, and relatives thought I was having a breakdown. our brains and eyes don't seem to connect properly either, we see, but can't quite connect with what it is, the trouble is, because we can't function, we forget to take tablets, or try to balance it, write it down when you are capable, keep the book by your bed or desk so that you remember to take your meds, and write down things like 'I need to balance my meds, take more, take less etc' good luck, it will work out soon, but it does take time, nell

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      Deb Rice 3 years ago

      I am a R.N. Endocrinology was not a specialty area for me. I was diagnosed with Graves Dz officially in March. It has affected EVERY area of my body. I have times when my cognitive function is decreased. The medication has drained my energy. Thank you for this blog.

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      Nell Rose 3 years ago from England

      Hi Lora, i am so sorry to hear you have gone through such a bad time, thanks so much for reading, nell

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      Lora Hollingsworth 3 years ago

      I have been hyperthyroidism for seven years now . I went in for a simple biopsy and the sonogram machine wasn't working so the Dr. Screaming at the nurse's about it and turned to me and said she can do a total thyroid removal. Insured me all I will have to do is take 1 pill a day and never have to worry ABOUT ANYTHING ELSE IT EASY AND IT'S GOING TO BE OVER NO MORE BIOPSY. I being a idiot sad that is all I at this point all numbed up nose and throat with a medication she gave me said ok sounds good . Two weeks later I called and told the doctor my tingling was getting worse . They told me to stop all THYROID Medicine be being a idiot I did . The next thing was extremely painful abdominal. I thought I was having a gallbladder attacks . My husband just had surgery for that . I NEW it would not be a rush it took him almost two months to get it . After that it because blurry my husband got me to the car in just minutes I NEW if I closed my eyes it would have died . When he made it to the ER the trauma team seen me the took me out of the car my body still in the same position as I was sitting. My jaw was locked up and they jut grabbed me and she started running and yelling words I have NEVER heard before. It looked like I had rigamortis set in due to a full body spasm. I was in the MOST painful thin ever . I felt like some one was dragging me down a road by the HAIR of my head . By the time I had gotten in I just wanted to go to sleep the nurse's keep saying NO STAY WITH US NOW I am to tired and in to much pain at this point . I tried to close my eyes and she At a high tonnes Stay with me I mot loosening you STAY With me my heart rate dropped to 36 over 42 And I was in shock by that time and was slipping into a COMMA . I have never been the same since . I have been hyperthyroidism for 6Years now Hypothyroidism the last 6month. I was so SICK on Levothyroxin it made me feel so tired so SICK I call it a green sickness it's just no way to describe how SICK and Tired I was ,grumpy swelling gaining weight like crazy . I keep reading because one problem has caused other problems ,Hart kidney, liver on and on .. I found Armor and it's been a miracle to me .when I started it.I kept waiting to fill crazy.so I waited a couple more hours and thought I would go crazy by the next day it was so weird I felt better.my husband asked me how am i doing.I told him I'm not sure I think better the next day he asked me again.I told him I really can't tell what's going on it's making me feel better I think.it happened so fast you don't have to wait long.and just a couple of months I lost 20 pounds 4 months to be exact.I have to have not been with that sickness like I was the green sickness.I feel better than ever I thought I could never see this again now I have a lot of medical problems because I love it the rocks and cause a lot of damage.I know it was the letter thrusting it was like toys and it felt like eating poison every day the only reason my doctor gave it to me is because I was dying it was over what was the other option so she gave it a try and it became a miracle I prayed for a woman doctor and I got her I pray for a new way I got it armor.I can only say one thing about love at the Rox and poison it makes me feel like I'm eating poison it is killing me it did it messed up my kidneys liver every and anything above now I have to live with all of the what that cause but I am doing better with armor.if the doctor was to ever tell me she would not write it I would put it back on the counter and tell her to take her . to go ahead and take the 11th right them back because I will not will not ever take it again. I would die before I ever took it again. if they're having problems with love at the Rox and I would recommend trying natural armor you may find a miracle in it.what works for one does not work for the other.only armor works for me.anything with gluten no I can't take it has a tendency of making me swell God bless you all I hope you all the best I know this life I live this life it is a nightmare. plays is one thing doesn't work always try something else GOD bless you.

    • Nell Rose profile image
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      Nell Rose 3 years ago from England

      Maybe you have a goiter sunshine? its when your throat starts to swell because of the high thyroid. I hope they give you meds pretty quickly, May seems a long way off to me to get this sorted, I would go back down and ask for them now, and see what they say. sorry to hear you have been so ill. remember, if you feel ill with the meds, get them to change them as sometimes you can be allergic to them. Good luck, and thanks for reading, nell

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      sunshine 3 years ago

      Very intresting iv been very ill lately over the last few years on and off iv had loads of blood tests all came back fine some doctors thought it might be ibs. I had the carmea test went back for further testing had more blood test then at last a result iv got an over active thyroid. Im waiting an appointment in may but just lately after eating i start coughing its been getting quite bad and worries me a little

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      Nell Rose 3 years ago from England

      Thanks for reading, meltawayyourfat.

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      Inga 3 years ago from New York

      A very useful info. Thanks.

    • Nell Rose profile image
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      Nell Rose 3 years ago from England

      Hi worried, the best thing to do is ring or see her Doctor, it may be the medication, I was allergic to my meds, it made me really ill. she must have seen a specialist in the first place, if your doc can't help, get in touch with the specialist, and most importantly get them to change her meds, good luck

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      worried! 3 years ago

      my mom was diagnosed with thyroid and shes taking medication but now she cant swallow anything .does anyone know of any way to relieve her discomfort?

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      Nell Rose 3 years ago from England

      Thanks tipi, yep me too! I had to diagnose myself purely because the docs had no idea what they were doing! glad to know you have got it under control now, and thanks!

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      Tammy 3 years ago from USA

      Twice now I have been diagnosed with a low thyroid. I tried taking the pill the first go around, but I gained 30 pounds in one month. I went back and the doctor wanted me to continue to take the pill. I skipped it and started taking alternative forms of medication and changed my diet. It is still a bit out of whack but I feel a lot better than what I did. Great hub!

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      Nell Rose 3 years ago from England

      Thanks teaches, yes Iodine is one of the great things to take, thats why I can't eat anything with kelp or seaweed in because of the high intake of iodine, amazing that the doctors didn't know, well done for discovering it!

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      Dianna Mendez 3 years ago

      Nell, when my doctor told me I had low thyroid last year I went to work researching for natural remedies. I took iodine for it and recovered within a few weeks. The doctor was amazed and wrote it all done for reference. Great post and warning for those who may be looking at this illness.

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      Nell Rose 3 years ago from England

      Thanks for reading Reece, thats terrible, I am so fed up with doctors not knowing the symptoms of hyper thyroid! I totally understand the hyper feelings, the panic attacks and the sense of emergency, doctors should learn more about the thyroid, its ridiculous to think this is a great big gap in their learning, glad to know you are getting better now.

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      Reece 3 years ago

      Hi everyone. At this stage i don’t suffer from thyroid function problems but I had thyroid cancer over 4 and half years ago. I had half of the thyroid removed with no kemo treatment needed. I was put on a low dose of 0.05mg of eltroxin to help support the thyroid function. It seemed fine for about 3 years but we moved cities and much of my information was left with the previous specialist but point being they decided to increase my dose to 0.1mg eltroxin. After taking it for 4 months I did not notice anything at first but I was rather irritable all the time and highly strung with a sense of emergency all the time. Well come to about 3 months back I suddenly started having panic attacks and went to gp who said.....yes you guessed it. Stress...he was even willing to put me on anti depressant tablets. I then decided no, this can’t be right and went to a specialized gp who immediately sent off for blood samples. I did tell him I suspect that it could be my thyroid. But just thinking it was my thyroid was the issue for me as I had no idea what was going on! I thought for sure they are gonna lock me in the mad house soon. So it turn out my levels where to high and I did not even have and TSH in my blood. This was also exposed when he got the results from the emergency room a month prior due to a Hugh panic attack. So what I have been taking for the last 2 weeks now is xanor 0.5mg twice a day just until my thyroid levels balance out again....

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      Nell Rose 4 years ago from England

      Hi Shyron, thank goodness for that! glad that you are okay, and thanks so much as always, nell

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      Shyron E Shenko 4 years ago from Texas

      Wow, I have been checked for this and I am told my thyroid is normal. But I went to the ENT for a lump on my thyroid, and had a biopsy which was benign.

      This is a very informative hub. Voted up, useful, interesting and will share.

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      Nell Rose 4 years ago from England

      Sorry to hear you had all those problems chefsref, I also had a goiter, its something we never ever think about until we get them and then to find out we have thyroid problems is a shock. I had the modern radiation tablet, and now take thyroxine too, I am not sure if it ran in my family as nobody else was diagnosed with it, thanks so much for reading, nell

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      Lee Raynor 4 years ago from Citra Florida

      I had a goiter while still relatively young. I'm a big guy and I thought I just had a big neck but my dentist noticed right away and sent me off to an Endocrinologist. Half my thyroid was huge and half was normal size. The huge half was removed surgically and I have been on hormone replacement therapy ever since (about 33 years)

      Back in the 1950s, as a child I had thymus radiation treatment. Don't know why I had the treatment, but it was an accepted and common treatment at the time.

      The long term result was that I was put in a very high risk group for thyroid cancer. The hormones I take are there to suppress my remaining thyroid so I don't develop either a goiter or thyroid cancer. Aside from the goiter I never showed any symptoms of thyroid disease.

      Apparently thyroid problems run in the family, my sister and mother have both had issues that have been resolved

    • Nell Rose profile image
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      Nell Rose 4 years ago from England

      Hi Crafty, thank goodness they found out about it, sorry about your face swelling, with me it was my neck, I got the goiter, it was horrible. hope it works out okay for you, and thanks for reading, nell

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      CraftytotheCore 4 years ago

      Thank you for posting this. It's very important for people to recognize the symptoms of a thyroid problem. I had surgery two years ago. During a hospitalization from an asthma attack the doctors discovered that I had a thyroid problem through a CT-scan. The first symptom after being diagnosed was my face swelled. I have to see a specialist every 6 months, but the surgery was worth it.

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      Nell Rose 4 years ago from England

      HI Toy, I am so glad you found it helpful, and I hope your aunt gets hers sorted out with the medication, thanks for reading, nell

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      Nell Rose 4 years ago from England

      Hi rajan, that is so true, everybody is different, I am glad you found it useful, thanks so much, nell

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      Toy Tasting 4 years ago from Mumbai

      Very useful hub, Nell. My aunt has got low thyroid and she faces many of the symptoms you have mentioned here. I will share this with her. Thank you so much for sharing this useful information.

      Voted up, useful + sharing.

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      Rajan Singh Jolly 4 years ago from From Mumbai, presently in Jalandhar,INDIA.

      A very useful and informative hub and the information here will answer a lot of questions those with these problems will have. No amount of study can replace the personal experience one has with a health condition and everyone's body reacts differently even to the same disease.

      Voted up, useful, interesting and shared.

    • Nell Rose profile image
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      Nell Rose 4 years ago from England

      Hi Candy, thats terrible the way the doctors treated you! what the hell? the first and foremost thing for anybody with strange symptoms should always be a blood test, what they call a full spectrum blood test. This will show everything thats going on. You poor thing. Thanks for adding this, this will help anybody else who is going through the same 'stupid doctor' thing. Hope you are feeling better, and well done for taking it into your own hands, thats the best way to deal with a thyroid, at the end of the day docs know nothing!

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      Candy 4 years ago

      Hi, I was hyper and was misdiagnosed as schitzophrinac (spelling wrong). I was treated with psycho medication for 9 months which nearly killed me. I couldn't breath well and I slept for nearly one year...

      Then I took charge as I knew I was going to die... I told the psycho doctor to test my thyroid and I was right, it was very high hyper....They doctors took me off sycho medication and was only treated for thyroid there after... I felt 90% better taking thyroid medication for 9 months. My graves disappeared and I am in remission now for 6 months... I will always keep up my blood tests incase it comes back... I don't think of the past now just the future.. I sometimes get blurred vision, shortness of breath and high pulse which I'm keeping my eye on.... I hope your well and stay strong...

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      Nell Rose 4 years ago from England

      Hi grace, yes the more active you are the better, unless you are too high thyroid, then taking it easy is the way to go, it does take a while to get sorted, but fingers crossed its okay now, and for you too, thanks so much for reading, nell

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      Nell Rose 4 years ago from England

      Hi Joseph, she should have had meds for it by now, and if that doesn't work she should have a radioactive tablet, or surgery, and she shouldn't be allowed to drive! lol! no seriously! thanks for reading, nell

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      Nell Rose 4 years ago from England

      Hi Someone, yes you are so right! we forget about the rubbish meds that go down the pan! do you mean alzheimers? lol! seriously thyroid meds can make it go up or down, so have to be taken so carefully, thanks for reading, nell

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      Nell Rose 4 years ago from England

      Hi Someone, yes you are so right! we forget about the rubbish meds that go down the pan! do you mean alzheimers? lol! seriously thyroid meds can make it go up or down, so have to be taken so carefully, thanks for reading, nell