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What Your Doctor Doesn't Tell You About Hyperthyroid and Hypothyroid

Updated on April 10, 2017
Nell Rose profile image

When I was diagnosed with thyroid disease, I discovered that my local doctors knew nothing about it. This is what I learned.

Thyroid disease encompasses hyperthyroid and hypothyroid types.
Thyroid disease encompasses hyperthyroid and hypothyroid types.

What and where is your thyroid?

Thyroid disease is one of those illnesses that hardly anybody thinks about—until they find themselves suffering from it.

You never see it talked about on TV, and magazines never mention it. In fact, the only time I'd ever heard of it before was when someone was talking about not being able to lose weight.

So, because of this experience, I assumed that thyroid issues were insignificant and easy to control. I thought that once the medication kicked it, it could easily be forgotten.

I couldn't have been more wrong. I discovered that suffering from an overactive thyroid was hell. Not only that, but the side effects of the medication, along with the way the thyroid can swing so easily toward under-functioning, was even worse.

Take it from me, being diagnosed with a thyroid problem is not easy. In fact, it can take over a year to get your body balanced and back to normal again—and even then it is something you must keep your eye on every day.

So what are the symptoms of an over active and under active thyroid?

An overactive thyroid can start to show up in quite a few ways. In fact you may feel really healthy as it can speed up your motor functions and make you rush around feeling full of energy. The trouble starts when you notice that you have lost a lot of weight, your eyes seem to be more staring, and your hands start to shake.

This is caused by the thyroid gland in your neck producing too much of the thyroid hormone. It is a bit like the fight and flight stimulation caused by stress. And the really bad thing about it, is that it can cause your heart to work too fast, pumping the blood around your system.

When I was diagnosed with Graves Disease, another word for Hyperthyroid, I was told in no uncertain terms to go home, sit down, and don’t move until the tablets that my doctor was going to give me had kicked in. Why? Because if I had an accident, and needed surgery, it could kill me! Not such and easy going illness, is it now?

Symptoms of Low Thyroid

  1. Sluggishness
  2. Weight gain
  3. Stomach problems
  4. Slow or stopped menstruation
  5. Depression ( A lot of depression is mis diagnosed, when really it is a thyroid problem)
  6. Slow thought process
  7. Can't focus properly with your eyes
  8. Dangerous to drive as your mental process doesn't work properly
  9. Panic attacks
  10. Poor sleep and nightmares
  11. Skin problems such as lack of elasticity.
  12. Very low thyroid can cause pockets of water to form on your face and body.

Symptoms of Over Active Thyroid

  1. Weight Loss
  2. Fast Heartbeat
  3. Shaking of the hands and poor elasticity of the skin on your hands and arms
  4. Out of breath
  5. Stomach problems
  6. Over active brain, can't sleep.
  7. Panic attacks.
  8. Goitre (Swelling in the neck)
  9. Very heavy menstruation
  10. Aching bones and muscles
  11. Bad eyesight such as dizzyness and after glow. Imagine a camera that has taken a picture of someone holding a torch. The glow from the torch spreads across the photo. This is similar to what happens when you look at something.
  12. Night sweats and sleep paralysis, very bad I might add.

Thyroid eye disease
Thyroid eye disease

Thyroid Eye Disease

Thyroid eye disease is another side effect. Your eyes will look puffy or strange, and your eyesight will start to suffer. You will also get watery eyes and pain. Not everybody will get this, but it is very common. Any thyroid problem is an auto immune disease. This means that your body is attacking itself. That's why its better to have a low thyroid than a high one.

Diagnosis and Pain

When you have been diagnosed, there are a number of different options for you to take. Tablets, radioactive tablet, and surgery. All depending on how bad your symptoms are. Your doctor will find the best one for you.

What the doctors do not tell you.

Now we get to the part that is really important. And trust me when I say that I have tried and tested all these! Not deliberately you understand, but by way of pain, trial and error.

For a start, lets take a look at the tablets.

You may think that the doctor will always give you the right medication. You have to remember that they probably have never had a thyroid problem so they are just doing it by the book.

But everybody is different. I was given a set of tablets called Carbamazole. To start with they were fine and my hyperthyroidism started to go down nicely. What I didn’t realise was the effect that they would have on me. I started to feel pain in my arms. In fact it got so bad that I couldn’t move them without yelling in agony.

Then it spread to my legs and back. The only way I can describe it is, imagine laying down on the road and letting a car run you over! Then being left to walk home. Yes, it was that bad. Every time I moved my arms, legs and back, it was excruciating. The strange, and very disturbing thing was, I called the doctor, and they gave me pain killers, not knowing why I was suffering like this.

I was admitted to hospital twice, and the doctor thought I had arthritis! In other words, nobody knew what was wrong. So, I did the only thing that I could think of. I bought a book about my illness.

That was the best thing I could have done. It turned out that I was allergic to Carbamazole, and when I told the doctor, he sat there, looked through his medical book and decided to change my tablets! I actually told him the ones that I wanted, and after that the pain went away!

Learn About The Disease

The second that you are diagnosed with thyroid disease, make sure you get a good book about your illness.

Do not take it for granted that the doctor knows about thyroid illness. They may have training, but they do not know how it feels. Apart from that, a thyroid illness has many symptoms. Some very subtle, others more obvious.

A doctor will learn the basics, and know what to look out for, but everybody is different. Its one of those illnesses that has so many side effects and different aches and pains. Unless you suffer from it, you will not know. It's not something that can be learned.

I discovered that hyperthyroidism is a very different illness. I was literally in the dark, and the annoying thing about it was that the doctors had no idea. You have to keep an eye on it yourself. Simple as that.

Take Charge

If you are told that you may have to have the radiation tablet, make sure that you ask as many questions as you need to know. Its your body. Don’t just go in there, take the tablet and go home. You choose. If you would rather carry on with the tablets, or have surgery, let them know. Taking a radioactive Iodine tablet can make some people sick, and you must keep away from babies and small children for at least two weeks. Saying that, its not strong enough to cause you any problems. It has been used for years. But you must be careful hugging people and staying near them for a few days.

That’s where the book comes in handy. The Internet is good for information, but the trouble is that you have to keep clicking on different sites to find exactly what info you are looking for. If you buy a book, then its there for you, all you have to do is flick through the chapters. Take this illness into your own hands. Its not only good for your health, but mentally you will feel a whole lot better if you know exactly how you are going to feel.

Radioactive Iodine Tablet
Radioactive Iodine Tablet
Mental Confusion caused by Hypothyroidism
Mental Confusion caused by Hypothyroidism

Hypothyroid can be frightening

On the other end of the scale, hypothyroidism is when you haven’t got enough hormone in your body. According to doctors this is much easier to control and sort out than if its too high. that’s all very well, but once again, doctors do not know how you personally feel. A low thyroid can be a very scary thing.

Why? Because bluntly speaking, it can make you feel like an idiot. Harsh? Sorry, but it’s the truth. A low thyroid is frightening because unless you have someone who knows how to recognise the state you are in, then basically you can go downhill fast. I don’t mean to frighten you, but it’s the truth.

Mental Confusion

According to the book that I read on the subject, a few years ago a young girl kept going to the doctor because she said she was ill. He diagnosed depression and gave her tablets. The situation got worse, but the doctor still said it was depression, and never looked for anything else. The young girl ended up in a coma and nearly died because the doctor had misdiagnosed her! True story!

Why did that happen? Easy, the symptoms are very similar to depression. And the worse thing about it is, when your thyroid hormone is too low, you cannot think! Your brain feels woolly and numb. Even looking at something will take you ages to figure out, purely because your mind is working too slowly. Your eyes see, but your mind does not connect.

How the hell are you going to look after yourself if the doctors misdiagnosis you?! Trust me on this, it happened to me!

The reason why it happened in my case was that the stupid doctors knew it was too high, so they gave me tablets, and the radiation tablet, and sent me home. Not one of them said come back in a month.

So, without thinking, I carried on taking them. My face filled with water pockets, I couldn’t recognise myself as it was swollen, and my mind felt as thought it was full of wool. Eventually, luckily for me, I looked in a mirror and realised that something was wrong. Just that one little voice in my head saved me.

I went back to the doctors and he said, your thyroid is dangerously low! And quickly changed my tablets! The stupid doctors, the specialist and all of them put together never ever said anything about this! The fact is, they didn’t know! They presumed that I would figure it out! How the hell could I figure it out when I couldn’t think?

So please, please get a book, read all about the symptoms, what happens when you are too high, check to make sure you are not to low and so on.

Do it before your mind decides to pack up on you. Trust me, nobody else will help.

And before you say, well, my friends will tell me. Or my partner will see.

NO! Two points on this one.

First, friends are too polite to say, hey, you look ill, anorexic, shaky, etc.

And secondly, your partner simply will not notice! It's true. It's such a subtle thing; it's very hard to spot.

Did You Know?

There are many celebrities who suffer from thyroid problems, including:

  • Rod Stewart
  • Oprah Winfrey
  • Kelly Osbourne
  • Kim Cattrall
  • Linda Ronstadt
  • Missy Elliott
  • and many more

Make A List And Stick It On The Wall

To wrap up, take note of the list below. If you find yourself in this situation and have been diagnosed with thyroid disease, make sure you:

  1. See a doctor.
  2. Buy a book on subject.
  3. Change your tablets the second you feel ill or in pain.
  4. Keep nagging and phoning the specialist, he is the only one who can help. GPs are useless!
  5. Keep looking in the mirror. If your face gets skinny, fat or filled with watery sacks, get down the doctors fast.
  6. Check your hands for the shakes, its one of the best signs of over activity.
  7. Check your heartbeat sitting down, running, and then sitting again, to see if it beats too fast, or changes normally.
  8. If you suddenly find that you are staring into space a lot, or sitting around without thinking, take more thyroxin and get to the doctors, your thyroid is too low.
  9. If your eyes start to get wobbly vision, get checked out again, some of the symptoms can either be too high or too low, they do overlap. Symptoms can feel scarily similar, so you may not know if you are too high or too low. Do not diagnose yourself.
  10. And last but not least, whenever you go to the doctors with any of the above symptoms, make sure you have a blood test. Never, ever let the doctor give you medication for depression without first checking to see if it's your thyroid that is causing your symptoms.

A mistake like that can kill you!


© 2012 Nell Rose


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    • Nell Rose profile image

      Nell Rose 15 hours ago from England

      Thanks for reading Linda, good luck to you both and I am glad you found this helpful.

    • profile image

      Linda Locke 18 hours ago

      My youngest Daughter just diagnosed with Thyroid Cancer.

      So.....I started googling thyroid....

      I found out good info to help her, and info for me, as I have been diagnosed with hypothyroidism

    • Nell Rose profile image

      Nell Rose 6 days ago from England

      Thanks James, I am so sorry you are going through this. I would get a book and find out the alternatives to the medication. then go and tell your Doc that you won't take that other one purely because its hurting your body. I changed mine from Carbamazole to propotheracile and it worked! good luck!

    • profile image

      James 7 days ago

      I agree with what you said to CC, i have never had problems with hair growth, thats for sure and have also had very extreme shoulder socket pains for months on end. I have also always had problems with zoning out. Not to sound horrible but i have never trusted doctors. So i quit taking the synthroid i was issued and my shoulder pain went away but that was about two months ago and my recent blood work says my level is low Again, he has increased my dose and im scared to take it due to my shoulder socket pain returning. What to do? YOUR AWSOME!

    • Nell Rose profile image

      Nell Rose 3 weeks ago from England

      Thanks Marcie, that is awful! Doctors get on my nerves with their misdiagnosis of Graves disease or hyper thyroid! I know how you feel. and how scary it must be. buy a book about it, it tells you more than a doctor will ever know. as I said in the article they only learn for a short yourself. and look in the mirror. your thyroid will show on your face. If you look normal then your thyroid is 'probably' normal, obviously get blood tests to make sure. If you look thin and your eyes poppy and sore then its too high, but and here's the danger, happened to me..., DON'T GO TOO LOW! its easy to take too much for too long meds. if your face looks puffy and water under the skin in pouches, yep me! then stop the tabs and get to the docs fast! the stupid docs HADN'T made me an appointment or told me about overdose too low! good luck!

    • profile image

      Marcie 3 weeks ago

      Thank you for sharing your story! I was just diagnosed hyper about three weeks ago and have been trying to read as much as possible. It's been confusing and scary. The beta blocker has curbed the heart symptoms and helped bring back my appetite, but make me tired and a little woozy at times. My doctor too has told me to stay cool and no exercise for sure. I know it will get better with time after the best treatment source is figured out. I have a scan scheduled for next week. By the way, I think this has been going on some time to a lesser degree - started with heart palpitations and a lump in the throat feeling four years ago! Had two doctors try to convince me over multiple visits that it was anxiety even though I insisted it wasn't. It's only recently that the tremors and palpitations developed and I went to a new doc who caught it! Anyway, I ramble, thank you again for sharing! It's helped me a lot.

    • Nell Rose profile image

      Nell Rose 7 weeks ago from England

      Thanks Sarah, yes exactly! I am sorry to hear you suffered so much, its awful how doctors are useless where this is concerned! That's why I wrote about it, I think its terrible! thanks for reading.

    • profile image

      Sarah 7 weeks ago

      I had an overactive thyroid for years and didn't no until I lost my baby and the hospital did tests, my heart rate was dangerously high and I had to stay in hospital. When I had gone to the doctors previous to this the doctors asked to see my arms and accused me of taking drugs because I looked that bad its a shame they chose to judge me rather than help me. Years later I've had a the whole thyroid removed and its still stressful as I have good days and bad days, and when I ask for a blood test it takes my doctors forever. But once you no the signs of when ur feeling high or low it yes easier to manage. Also !y eyes were really swollen and coming out of my sockets they have gone back to normal now but I have to wear glasses all the time as it did affect my vision. I think people need to be more aware of the disease! I never heard of it and had to do lot of research because the doctors wouldn't or couldn't explain what it was to me. Also this disease is hereditary

    • Nell Rose profile image

      Nell Rose 2 months ago from England

      Hi Anne, I am so sorry to hear you are going through this. I do think that maybe you need to higher your dose? I am on 100 every day, but got a bit to high so now on 75. it does take a while to settle down, and get the dosage right. keep on at them until they listen! its the only thing you can do. get a book read all of it, and even if it means arguing with the Docs then do it, okay? good luck.

    • profile image

      Anne Gee 2 months ago

      Thanks Nell.. Had Hypothyroid. All what you was helpful. God bless you for the info. Am on Levothyroxine 50mg. Still having pains and cant stand cold environment and battling with weight gain too. Doc said its Reumatoid Arthritis before i went for thyroidectomy. Yet the crampy painful movement in my muscles (or veins) is unbearable. Had severe pains on the sole of my feet up to my hip right through my waist and back. Went for Physiotherapy (6 sessions) yet no relief on the sole. Went to see an Orthopaedic Surgeon. He gave me injection on the right sole of my foot saying everything will be alright. The pain is still there. (Called it Plantar Fasciis) Dont know if the thyroid is still at work.

    • Nell Rose profile image

      Nell Rose 2 months ago from England

      Hi Marie, oh my goodness! Yes that nearly happened to me! I went up to 19 ! I am sure you know what I mean. bloods should be around 6-8 and I was 19! once step away from a thyroid storm too! and that's my point! thank goodness I had a brilliant doctor who chased me up, yelled go home! sit down and do not move etc! yes we look like its anxiety with shaking hands and body, losing weight etc, I just wish someone, anyone, friend, family or someone at work would have pointed it out, as we wouldn't notice it as its part of the illness! how long ago was this Marie? are you still on beta blockers etc?

    • profile image

      Marie 2 months ago

      I quite agree with Nell Rose. I ended up with only one week a month with no bleeding! Nightmare! And after having a TT I was OK for a while but became very hypothyroid, and instead of bleeding I had massive clots! Sorry if it is TMI but these are facts, actual experiences, not out of a medical book. Also, when I was overactive, I was sent by my GP to a psychiatric unit because he said I was suffering from anxiety neurosis. Missed the thyroid diagnosis completely, I ended up in hospital with Thyroid Storm, a life threatening condition requiring IV rehydration and Huge doses of antithyroid drugs plus beta blockers.

    • Nell Rose profile image

      Nell Rose 2 months ago from England

      Sorry CC but you are wrong. When you are hyperthyroid everything speeds up. Heart, hair growth etc. And one of the worse side effects, I know for a fact is your periods are a nightmare! they go on and on! happened to me! maybe for some people they stop, but all the people I interviewed said the same as me. As for saying I might want to fix that, this isn't a copy, made up or read article. its about me and what happened. I won't change facts. Thanks for reading, nell

    • profile image

      CC 2 months ago

      One of your symptoms needs to be switched over. When you have hyperthyroid menstryation slows or stops. You have it as increasing. Every medical site and dictums will tell you that it stops or slows.

      You might want to fix that.

    • Nell Rose profile image

      Nell Rose 4 months ago from England

      Hi Lindy, I am so sorry you are feeling so ill. If you are too high you will need some other tablets that will take your thyroid hormone back down, like carmazole, or propylthiouracil . the second one is by far the best. Maybe your doctor is trying to take you slowly off the levothyroxine? it really does all depend on how high you are. Go back to see him and ask how high, and when do you start taking the tablets for getting it lower? you need to keep an eye on it. as I said above, doctors are useless where thyroid is concerned. if you print of my article take it to the docs and say, this is the meds I need! you MUST keep an eye on it yourself, try to measure up your meds. if you feel dizzy cut down on the levothyroxine, make sure you keep getting blood tests, okay? good luck! and let me know how you get on!

    • profile image

      Lindy 4 months ago

      Hi my name is Lindy and im from south Africa. I had under active thyroid for 8years. A month a go I felt very bad and my symptoms felt different and worse. So I went back to the dokter and took some blood tests. My dokter told me that I have hyperthyroidism know. So he told me to stay on the levothyroxine. I was taking 300 mg and he told me to take 200mg know. It does not seem right. I feel so bad and it is effecting my work. Please help

    • Nell Rose profile image

      Nell Rose 4 months ago from England

      Hi Rukeya, sorry to hear that, maybe she is suffering from depression too? it can make you feel really ill with a high thyroid. Just talk to her and tell her that it will be okay as long as she gets her meds right she will soon feel much better.

    • profile image

      Rukeya 4 months ago

      My mom has a overactive thyroid, we only found out about two months ago. My mom do not talk at all, she will only say yes or no sometimes. Can this be related to the overactive thyroid? please help..

    • Nell Rose profile image

      Nell Rose 5 months ago from England

      Thanks Gillian, glad it was helpful.

    • profile image

      Gillian Foley 5 months ago

      Your information is very help full as I have over active thyroid myself and I'm on neomercazole

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