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Atypical Scabies Symptoms: Unusual Signs of Mites That Doctors Don't Recognize

Updated on April 7, 2017
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My husband and I had a yearlong battle with scabies, one that doctors failed to recognize because it did not "fit the picture."

What Are Scabies and What Do They Look Like?

Scabies are parasitic mites that infest human skin. They are contracted through contact with an infested person, be it as intimate and prolonged as sexual intercourse or as brief as picking up a child at a daycare facility. The scabies mite is usually spread by direct, prolonged, skin-to-skin contact with a person who has scabies. In other words, you can get scabies from even the most casual contact with a stranger—provided they have scabies.

The mites are very small and cannot be easily seen with the naked eye. You probably won't see scabies crawling on your skin; you will only see the symptoms. Their burrow marks are often visible as curvy, grayish lines on the skin. Rashes or pimple-like bumps resembling bug bites may also be present.

Healthcare professionals look for evidence of scabies between the fingers and toes, across the shoulder blades, in the armpits, along the inner elbows and insides of the wrists, around the breasts, waist, genitals, buttocks, and knees, as well as on the soles of the feet. Widespread belief within the healthcare community holds that the scabies largely avoid the face and scalp. It is also a common belief that these mites are too small to elicit a crawling sensation on the skin, although the body's immune response to the mite, and to the feces and eggs it deposits in its burrow, leads to severe itching.

What Scabies Might Look Like

Source

Misdiagnosed Mites: Doctors Don't Always Recognize Scabies

The above may indeed describe the typical presentation of a scabies infestation, but sometimes scabies do appear on the face and scalp, and sometimes they do cause a tickling, crawling sensation.

My husband and I had a yearlong battle with the scabies mite, one that doctors failed to recognize because our scabies did not "fit the picture."

First, we did not itch at all. In fact, the first odd sensation that both my husband and I felt was a tickle in the nose that simply would not go away, scratch as we may. It persisted for days and then weeks, and finally, an entire year. We also periodically felt an ever-so-slight weight landing on our eyelashes, as though someone had blown a handful of dust in our faces. I had a few bumps on the outer parts of my arm that looked and felt like pinpricks, but my husband had none. We both felt a crawling sensation across our feet and on our legs at various times throughout any given day. The doctors said the symptoms did not resemble scabies and that we should not worry about it. When the symptoms persisted, they even suggested the problem might be in our minds.

So instead of being diagnosed and treated for scabies, we were told it was all in our heads. A suggestion of 'delusional parasitosis' by more than one doctor would seem rather inappropriate given that two individuals with no history of mental illness began experiencing dermatological symptoms within the same week.

What this experience has taught my husband and me is that doctors aren't always right.

When You Think You Have Scabies—But the Doctors Don't

There are seemingly hundreds, if not thousands, of folks out there in cyberspace searching for an explanation for crawling sensations and itchy bites that appear to arise from an invisible culprit. Perhaps we are not the only ones the doctors have misdiagnosed.

After year of suffering unnecessarily, only to discover that the doctors were wrong, my husband and I realized we needed to share our story and offer more accurate information on scabies symptoms.

If this happens to you, you'll have to work harder to help the doctors help you.

Tracking Down the Scabies Culprit

Because we knew it was not all in our heads, we had to find other ways to discover what the invisible culprit was. We began taping our skin whenever we felt a crawling sensation in the hopes of finding something under a microscope. We pressed scotch tape to the spot where we felt something, hoping to collect evidence on the tape. It took a long time to find any proof because these mites spend most of their time under the skin, but we eventually got lucky. We put the tape under the microscope and saw what looked like a mite. We took a picture of what we found and sent it to a mite expert for identification.

The tickling and crawling sensations we felt on our bodies, including our faces, were indeed caused by scabies. A simple Permethrin treatment got rid of the mites after an entire year of suffering, although the treatment drug causes its own immune reaction that sometimes feels as though the parasites are back. We've been told now by others who have had this reaction to the Permethrin that the immunological reaction eventually goes away, but can take months. In any case, it is not nearly as annoying or worrisome as the mysterious mite symptoms, so we are happy.

Scabies Mite
Scabies Mite
Common Dust Mite with slightly more elongated body shape, for comparison
Common Dust Mite with slightly more elongated body shape, for comparison

Diagnosing Scabies and Educating Your Doctor

Worldwide, approximately 300 million people have scabies at any one time. Given the persistence of this parasite and the lack of knowledge on this subject that seems to be pervasive throughout the healthcare community, one can imagine how we feel when we come across the pleas for help posted online by others with similar symptoms going undiagnosed. My suggestion to anyone experiencing unexplained itching, rashes, bumps, crawling or tickling on any part of the body, including the face, is to at least consider scabies. And if your doctor will not cooperate due to a lack of evidence implicating this culprit, find another doc who has more experience with these and other parasites.

Not everyone has the time, energy, resources, or patience to take tape samples, find a microscope, enlist the help of an expert, and visit multiple doctors. However, we're hoping that by sharing our story everyone, including those in the medical profession, might learn something from our experience.

Learn More About Scabies, Mites, and Parasites

You can read about effective treatments and possible side effects in another article I wrote: How Do You Know If Your Scabies Treatment Worked?.

Or, if you think you may be dealing with another type of mite infestation, please read the following article: Mites That Bite Humans: Bird and Rodent Mites.

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      Amile 2 weeks ago

      It feels like millóns of bugs pourung out my scalp. Can u please help me

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      Lynne 3 weeks ago

      I caught scabies from my parents after my father had been in a care facility for dementia. We brought him back to my moms house and had two of the carers from the facility to look after him. My mom started scratching but the doctor said it was just nerves and stress. My dad passed away 2 months after being back home and my mom had developed a rash. The doctor still said it was caused by stress. My mom asked the carer why she was also scratching and she said it was scabies and everyone at the care facility had it. My mom called me to let me know and said she was seeing a doctor to get onto meds. I went to see my doctor and I got the Benzoate cream which she said was really good and first line treatment in South Africa. I used it for 2 weeks and I found it wasn't really helping. I felt a crawling feeling in my nose and eyelashes and my head, also my back and tummy. I also found that my skin was burning it was hard to use above the neck and genital area, I would end up trying to wash it off. I found a supplier of the premitherin cream so ordered that and I have been using it 3 times a week for the last 3 weeks. I use sulphar soap daily to shower and wash my hair. My hair is like straw but I can feel those little things moving at night and still on my face. I am still getting little pin like bites on my body neck and chest. I am so worried about passing it on to my family. I stay on my own chair in the lounge sleep alone in the spare room and have very little skin contact at all with anyone. I hardly even touch my cat or dogs, they all look so sad because they are used to lots of attention. I am seeing a skin specialist in a few days time and hopefully after a skin scrape we can find out what is happening. I am lucky that living where we live I have a cleaner who comes in 3 days a week so everything get a very good clean. otherwise all my stuff is bagged as I use it and washed separately from the rest of the family.

      My mom who stays on her own is still struggling with this dreadful disease, I think it must have something to do with our immune systems.

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      Neglected Scabies Patient 4 weeks ago

      I walked up one morning with my right arm and hand swollen and being unable to move my fingers. The lower level of my left arm was itchy and showed signs of a very tick rush under my skin. I also felt crawling of something inside my eyes, my ears and my nose. I never had any rash before, neither suffered of allergies. I was concerned about the swelling and made with my doctor. my doctor was unavailable, but his replacement saw me, he hardly looked at my swollen arm and rash, but he ordered blood test for liver, kidneys and thyroid..he told me to make an appointment with my doctor for when he was scheduled to return to office, he ignored my symptoms,period. Managed to get an appointment with my physician, but only 2 weeks after my initial consultation.

      Because the rash, swollen arm and hand, biting, persistent itching of my head and feelings insect crawling continued, I visited a walk in clinic and was seen by a nice physician who referred me within same clinic to an allergist. The allergist was an older gentleman and at my request he performed the skin test for bed bugs, flees, etc. The test results were negative,reluctantly he tested me at my request for mites, since I explained to the good doctor, that I look at my skin as it is being bitten by some kind of invisible insect that no matter what I do, I cannot see the insect, it was microscopic, well, we awaited 15 minutes after the scratch test and said and done, the 3 scratches he made and in which he applied the serum for mites, immediately risen, the allergist said I had scabies He prescribed Perm 5% cream and the good doctor left for holidays, therefore, there was no way to return to doctor and besides, the allergist seems to be advance in age, semi retired, has not his own practice and only sees patients for a few hours once every week.

      I did the treatment as prescribed, my house is clean, clean clean. I have always been clean. I wash my hands often and as needed...no help. On my own, I repeated treatment once more, but had to use 2 tubes of cream, because one tube would not cover my entire head area that now was fully covered, the scabies had spread after the first treatment.

      As I continued feeling ill, I visited a local hospital at the ER, after awaiting for nearly 4 hours I was seen by the physician, I explained I had been tested positive for scabies, I was suffering and needed his medical help. I showed him the letter from the allergist explaining I had been diagnose with scabies and that medication was not working for me and to please prescribe oral medication, he pretty well kicked me out of the hospital and told me he did not see any skin rash or swollen areas, he prescribed antihistamines an cream..the hospital staff seemed very interested at not acknowledging the fact I had scabies,you see, hospitals need to follow a certain protocol within the institution in order to avoid infestations, that requires paper work and nobody wants to be the one stuck at filing forms, etc.

      I left the ER and went straight to drugstore, when the pharmacist saw me he right away said: what ever happened to you? you have a bad rash and you are swollen,you see, every body could see how bad my skin was.

      More than 2 weeks had passed since my initial discovery of scabies until I was able to be seen by my family physician, when he he saw me he refused to see the scabs on my head, he did not even look at the rash on arm and other parts of the body the scabies had moved to and he bluntly told me that I had no scabies because scabies do not go onto peoples heads. He offered me to be sent to a dermatologist, but I awaited, waited and waited and he never did! During the visit he was very uncaring and callous as he had never been, he pretty well told me to go to the allergist, since he is the one that made diagnosis, he was just a physician and he did not know anything to do with scabies. A licensed physician who studied medicine to treat and cure pretty well all illnesses..he did not want anything to do with a person with scabies..I explained to him I contracted with scabies from my real estate clients that were both blind and handicapped and that I had repeated close skin contact with them by way of wrapping my arm around their arm to assist and guide them were to walk with their cane, I explained to doctor I was ignorant to the fact they did carry scabies with them and that pretty well had met and visited their residence many times during the last six months. My clients were clearly negligent at not disclosing their scabies infestation

      In total I have been seen by 4 dermatologist, 1 allergist and 7 physicians in their offices and Toronto Hospitals, only 1 allergist and 1 Dermatologist acknowledge I have scabies, the rest are literally useless by not educating themselves, they say I do not fit the general criteria of a patient with scabies because my head is infested, these doctors are totally negligent to the point of causing great unnecessary suffering and distress to patients. They seem not to want anything to do with patients with scabies, period. Honest to goodness, they do not even bother in looking at your skin, they do not make eye contact, they do not want their offices and themselves to have the infestation. Nobody is prescribing the oral medication because they have to fill a form and complete a survey about the patient, I have been tempted to pay them to complete the form and recommend the medicine for me, doctors really don't care about patients, they just care about quickly billing, it is sad, but true. I have never seen so much uncaring and lack of compassion. The allergist who made the diagnose is a nice older gentleman, he did the test that all the other 11 doctors I consulted with are literally laughing about, these doctors do not continue to educate and inform themselves to current conditions, deceases infestations, medications and the potential resistance to some medications.

      It is funny because my doctor has been very helpful, caring and compassionate in the past, but not this time, you can pretty well see the difference and patient care for those with scabies. pretty well the patient with scabies is stigmatized, maybe because the infestation is through sexual contact. By being compassionate and caring for people I thought needed my help I was infected with scabies. I cared about my clients, but they obviously hated me, since they were aware of having scabies and knew how much suffering scabies bring into people's life by their own experiences,clients were evil by not letting me know in advance of their situation so that I could still be kind to them, but would have taken proper necessary precaution to protect myself and keep healthy. Now I know that misery loves company and no matter how much money you have, some people envy the good health of others, my good health was taken away.

      I have been unable to work or earn my living for two months, I am a Realtor, if I don't work, how can I survive? My clients are multi millionaires and handicapped with blindness and confined to a wheel chair. I was really kind to them, but they have caused so much harm to me with their negligent uncaring attitude. Their behavior is on the verge of being criminal, they pretty well are endangering others by spreading such a horrific health condition and the doctors do not help any better....I will loose my home. On my own I have ordered the oral medication on line, I am waiting, waiting and does not arrive, I have done additional 2 treatments by using 2 tubes of the 5% Perm cream for each application, one tube is not enough to cover my body from head to toes, my skin has been destroyed, I cannot sleep, the crawling inside my yes, nose, ears and my body does not cease, but is more disturbing at night, when is overcast or when I turn lights off. I have lost 20 pounds in 2 months, medication don't work and basically have no life but clean, clean, clean. have washed, wrapped my couch, have discarded my good furniture, I sit in one chair. Let's care more for others, let's not be negligent.

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      Kelsey 4 weeks ago

      This post completely saved my life. My situation is such a complicated one because I AM an addict in recovery; so of course when i start talking about bugs and itching and obsessing- everyone I thought was close to me turned away with the thought that I was lying. And the urgent care doctor didn't help either- and she literally was reading the symptoms on google. I tried to tell her through panic and tears (I am sleep deprived, frustrated and emotional to begin with) that she should double check. Of course she just dismissed the few lines that were visible as "scratches". There's nothing that drives me crazier than doctors undermining self-awareness and uh... THE INTERNET. As the nurse showed herself- you can diagnose yourself by finding your symptoms online. I am in tune with my body albeit exhausted, and I know what is a scratch, scar, stretch mark or random burrow that doctors fail to see. Just because she has a nursing degree, she single-handedly made me question my own SANITY. My friend was there who unfortunately didn't speak up much so I was left the center of the circus. I keep asking people if was indeed going crazy and I think I'm screwed either way. So I know what i feel and see, I know I'm sober (yet insane right now) and I just home the cream will help tonight. Thanks for your words and encouragement.

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      Gettingovermites 4 weeks ago

      Benzoyl benzoate works and the cdc even recommends it. It can be bought over the counter at med lab supply or Texas med supply both online

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      Diana Deiter 5 weeks ago

      WOW READ YOUR ENTIRE ARTICLE.AND IT SOUNDS JUST LIKE WHAT IVE BEEN DEALING WITH FOR 6 YEARS.SO MANY ER VISITS AND ABOUT 10 DERMATOLOGIST. THE LAST FEW DERMATOLOGIST IVE SEEN WERE EXTREMELY RUDE AND DEMEANING.AND REFUSED TO EVEN LOOK AT MY SKIN.I DO HAVE HISTORY OF DEPRESSION.SO ALL DR ARE SAYING IS ITS IN MY HEAD.IT IS NOT.MANY SCARS TO PROVE IT.NO ONE WILL SEE ME ANYMORE.IM TREATED LIKE A MENTAL PATIENT..IT IS SOME SORT OF MITE I KNOW THIS AFTER READING YOUR ARTICLE.IVE TRIED SCABIES TREATMENT AND DIDN'T HELP..I FEEL THE STINGY FEELING DEEP WITHIN AND CAN ACTUALLY FEEL IT AS IT COMES TO SURFACE.IT FEELS AS IF SOMEONE IS PUSHING A NEEDING THRU MY SKIN FROM INSIDE OUT..ALL OVER.AT NIGHT SEEMS TO BE WORSE.ITS LIKE THE STINGY NEEDLE LIKE PRICKS ONE AFTER ANOTHER NON STOP SOMETIMES.AND SOMETIMES I FEEL RAISED LEISONS AS IM RUBBING THE SPOTS THAT HURT.I GET UP GET MAGNIFY GLASS AND LOOK AND IT LOOKS NASTY AND SCARY..DARK BLACK.WHEN I TOUCH IT SLOWLY GOES BACK IN.I KNOW IT SOUNDS ON REAL.BUT IT IS.NO ONE WILL HELP. SO IM MAKING A APPOINTMENT WITH A INFECTIOUS DEASEASE SPECIALIST AND HOPEFULLY HE WILL LISTEN.

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      Robert 6 weeks ago

      I have linesall the way around my scalp going inti ears deporing a glass like crust for 4 yrs. Now i hardly ever itch

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      Robert 6 weeks ago

      For 4 yrs ive jad lines appearing all over my head face, arms ,and legs ; i squeeze matter out of this deep lines in mu fsce and body and a sharp clear. Hairs that look like glass never stops coming out i dont know what is wrong with me i hardly evet itch, but i do feel something biting me

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      Anonymous 7 weeks ago

      Your article pretty well describes my symptoms, my situation and feedback from the medical community.

      My problem began approximately 2 months ago with the exactly crawling feelings on my eye lashes, inside my eyes, nose, ear and a bit on my head. I also experienced the feeling as if a sudden feathery wind descended upon my face carrying microscopic crawling insects that I could feel crawling on my eye lids, lashes, nose, ears and inside of my eyes. It seemed as if a hand fist of pollen, etc. was thrown at my face, arms, legs and other parts of my body.

      At first I though maybe I had bed bugs and very carefully stripped my bed and could not see any spotting signs of blood or signs of bed bugs. I am very clean, I reside on the 25th floor of a new condo building. I look for any signs of flees and other bugs, I found nothing. I decided to remove my nice oriental rugs, unnecessary clothing, furniture, etc. and donated them to charity. I rewashed all my linens and clothing in maximum hot water, dried properly and stored all items in plastic sealed bags. washed all cupboards, closets, walls, windows, vertical blinds, dishes and got rid of all kitchen suplies..I was exhausted, pretty well it took me two full weeks to clean everything from floor to ceiling..I even remove original mattress cover including three mattress covers that I had covered my new mattress with..the itching and the same crawling sensation continued.

      Once I took care of the inside of my place, I went to my family doctor, he was on holidays and I was seen by another doctor, I explained my situation, showed him the rush on my arm, my head and wrist, but he did not even bother looking at it, he ordered blood test of kidney, liver, thyroid, etc....blood test results were normal, nothing out the ordinary..he suggested I see my doctor when back from his holidays, which was in 2 weeks time. My symptoms persisted, I could not sleep at all, therefore I went to the emergency Clinic at a local hospital with my arm all swollen and with rush. The doctor told me he could see nothing on my arm and that my problem was an allergic reaction, he hardly took the time to listen to my symptoms and to examine me, he prescribed Benadryl . When I went to purchase Benadryl at the drugstore, the pharmacist inmediately said to me: What happened to you? look at your arm, what is that rush? you are are swollen! I felt validated.

      I proceeded to take benadryl, it made me sleepy which was wonderful, but soon I realized that the itchiness and crawling feeling was keeping me awake although I was drowsy and sleepy I just could not sleep, my problem was worst.

      I decided to go to a well known dermatologist with days after going to the hospital because my problem persisted and I wanted to to cure the problem and not just sleep on it.

      The dermatologist spent maximum 1 minute with me, he did not care to see the scratches and marks on my head and he quicky said it was eczema. He prescribed heavy duty antihistamines and hydro cortisone cream to spread over the body and to put on top of cortisone vaseline. Imagine! all covered with the greasy concoctions and dozed off from the pills and still the pinching sensations with crawling sensation, was all dosed up, but could not sleep,

      Went back to my family doctor and he told me to stop taking the 6 -20MG tablets of antihistamine and reduce to 1 tablet before going to bed and to discontinue cortisone cream, because it was only meant to be used in small areas of body and not the whole body....I asked him to test me for scabies and also to prescribe me medication for scabies , because I had the feelings that is what I had...without investigating and without checking my head and getting close look at the rush, he said: No way! you do not have scabies! is allergy!

      Well, my problem continued, I visited dermatologist twice, my family doctor and his replacement twice, visited two hospitals, visited two walking clinics an nothing!

      On my second visit to dermatologist, I told him I had discontinued using the cortisone cream and recuced his plls to one a day instead of 6 a day at the advice of my family doctor and also because my symptoms persisted without any help and to please test me for scabies. He said I will give you some new medication, but when I saw the prescription he was prescribing TETRACYCLINE which is to treat bacterial infection. .When I asked why TETRACYCLINE, he said: Your symptoms do not fit the symptoms of scabies. You never find scabies on a person's head!! Simple as that! No test, no close look at my head, nothing! Well, I did not buy the medication, but I went to visit an Allergist who on the spot did a skin test for all kinds of insects including lice, bed bugs, fleas, mites and BINGO!

      All tests for all insects was negative with the exception of MITES, he said: Look! That is the poop of the mites in your body! YOU DO HAVE SCABIES!!!!!

      The moral of the story is that Doctors nowadays only seem to care about amazing fortunes, it is not like the olden days that one single doctor took care of all the deceases of the general population of small town. Nowadays, doctors can't be bother to investigate, care or try to learn out of the ordinary deceases and do not learn to listen to the patients, doctors are quick brush you off and are not very good learners. Pretty well, doctors practice on us with all the medications they prescribe to us without due investigations of patient's symptoms, that is why doctors have MEDICAL PRACTICES, they practice on us, their patients, and we pay highly for them practicing on us, sometimes causing a high degree of anxiety, unnecessary suffering and stress.

      I suggest you to visit an allergist or immunologist to properly test you and accurately discover the reasons of your symptoms.

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      Jo 7 weeks ago

      What a nightmare, insane itching for 3 years. Sulfur soap and sulfur ointment seemed to be the cure. I can't be sure, because I had also taken a dose of oral ivermectin as well.

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      bubbasix 8 weeks ago

      @AnAn Have the same veins here too...

      Signs and symptoms for me have dissipated substantially after 4 treatments of Iver and 4 treatments of Perm in about a month month and 1/2 time from.

      I have done it all. My combo is to treat with Iver (no food 1 hr before and after) on day1 of treatment and day 2 with Perm (head to toe) wearing socks with jammies/ sweat pants and shirt, leaving for 12hrs total no -/+.

      I wash with water in the shower and then while still in the shower I wash with sulfer soap (Grisi Bio Sulfur Soap @target) wet no water running covered head to toe in the soap for 3 - 5 minutes.

      I have Diabities 2 for which I just lost 30lbs and went on a no simple sugar diet, just dates bananas and no processed food - prior to the scabies symptoms occurring, also had a 6 mon period with extreme stress. I live alone and have no real social structure.

      While at the hospital for this on one occasion, late a night I realized my symptoms were non-existent/ noticed the noise and all the people in the ER, looked up loneliness and itching/ diabetes and itching (lots of info).

      Could this be in my head and my psyche in mfg symptoms, not sure. I find little black specs on my skin congruent with others on the web and I have the veins you mentioned. I had had a rash on my chest initially on the on set.

      I use Dr. Bonner's Hemp soap (@Target) as a regular soap and lufa with Bathery "3 boost" exfoliating clothe, clean my house full time for 30+ days, found black specs everywhere on everything (those are gone) in the beginning.

      I also wash all clothing, towels sheets everything after I use it with borax and laundry soap. I have done countless bleach baths, borax and Vinegar Apple Cider baths.

      I have went away for 3+ days on two occasions, the last one I sunned in 105º weather, I fried these suckers and caught an awesome tan. Nothing "survives" in your home without human contact after 72hrs, according to the experts.

      I still feel a little itchy, but the symptoms are way down, lots of lotion (Palmer's Cocco Butter) and it seems to help.

      In the beginning from 3pm to 4am it was night of the living dead with no rest till 4:01am.

      Now I am still struggling, but there is significant improvements. I am able to sleep again

      This is not an advertisement for product, just my own journey.

      -Bubba

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      AnAn 2 months ago

      forgot to mention that the stings and itch (and yes the red dots) sometimes occur on my torso and stomach. more rarely on my back, but the neck - esp. the back of neck - would have faint itch every few days.

      i am very pale and you can see all my veins, but recently esp. around the jaws, i can see faint purplish red lines like spider veins around my upper arms and lower cheeks.

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      AnAn 2 months ago

      hi Samoa6,

      it would be great if someone can help to advise my on this matter.

      i am a 27 y.o. fem, single, with aversion to sexual contact and work in relatively subdued environment. the only time i got into a crowded place was the subway these days.

      on going for about 5-6 weeks now i started getting this random crawling/faintly ticklish sensations at random (it does not get worse at night that i know of and not entirely sure if hot shower aggravates them). the amount of crawling sensation decreases somewhat compared to 6 weeks ago (which was at its most intense when i first notice it that i keep checking my skin every 3 minutes)

      my mother, who lives in a separate country, shows the same symptoms when she got out of the hospital from dengue but i did not come into contact with her until after i got these symptoms.

      i started to get a stinging sensation, most prominently on my arms and occasionally between my fingers and my legs. it does feel like pinprick and sometimes i saw ONE or at most TWO red dots that will slowly swell into a mosquito like bite and disappears in 15 minutes (completely, no marks left). the most i have it happens is about 5 times a day. it is itchy when it happens but they are not unbearable by any means.

      my itch spells are periodic and faint and completely random, on some days i go for hours without any particular sensation, and i do have that faint ticklish feeling on the soles of my feet when i wear footwear, about 3-4 times on the scalp, nose sometimes feel itch same with my temples (but they strangely stops during the night, which seems to be my biggest contra compared to most people), and i feel occasional tingle/tickle around my fingertips.

      there has been an increase of cherry angiomas (that or bite marks) and some faint brown spots, but they are not itchy and there are no sores or lesions on me. less than 5 thin papercut-like marks, only one i accidentally scratched and bleed.

      i live in a single person room in a condo (my landlord has a dog but it never gets into my room and my other housemate is a nurse but i never do laundry at home; either outside or handwash them myself)

      i heard black moulds and the likes will show similar symptoms and due to condensation, my AC leaks onto my non-lacquered wooden flooring and the bathroom ceiling was taken down some times ago and it exposes the rusty piping. i have a normal hygiene level; shower after i come back and wash hair at least every 3 days (now i wash everyday).

      maybe i need to change sheets more regularly but my father and brother who spend nights over doesn't seem to have any problems. i did not change any products i use in the last 6 months.

      i heard mould attracts some types of mites and if the spores are on us, it could attract the mites as well. i am considering dust mite because my bed and mattress are not my own and there are some parts of the room that i can't clean unless i strip every piece of furniture.

      i am going to go back home in a few months and going to see a dermatologist this week but i heard a lot of problems with doctors about this.

      i am very confused and have considered everything from athelete's foot, Cholinergic Urticaria, full body candida, liver, anxiety (which i have now because of this), stress, nerves, etc.

      the one i am afraid the most is scabies because i can't bear the thought of spreading it to someone else and also because i have a phobia of bugs. everyone keeps telling me to stop thinking about it but i can't.

      by the way i have what i think is a non-severe atopic dermatitis on top of my right foot and dry skin. i rarely use moisturizer before.

      i've ruled out bed bugs and other types of mites (i know there is a rat in office and my boss kids' have some pet lovebirds but they are mostly on the other floor), but hey i'll take that over scabies.

      so far, barring my mom, who shares allergies with me and her own mother, no one else seem to itch, even my colleague with whom i share daily physical contact.

      at the moment, i only took norit (anti poison), some light sleeping pills (i can sleep without but not always the best without), and apply olive/clove oil before i go to sleep. took some magnesium and iron, as well as vit C too.

      any advise would be great at this point.

      AnAn

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      shar57 2 months ago

      Hi Dee,

      Yes it sad that's drs seem to have their own agenda.

      BUT, one thing I have learned about these bugs, whether they be scabies or bird or rat mites or something different is our immune systems play a HUGE role in this crazy scabie thing.

      you could also have a skin fungus in addition to scabies or bird mites.

      Fungus feeds off of sugar.

      Fungus creates the same crawly stinging biting sensation as the mite.

      You might concider looking for a moisture problem in your house.

      Or maybe their was one at work. A leaky roof not big enough to be noticed, but still creating the perfect conditions for fungus or mold.

      Well fungus and mold attract some of the microscopic critters.

      If you been breathing in mold or fungus spores then u most likely have this systemically-

      Through out your hold body. Inside and outside. Then the critters come.

      There is the possibility that some of your belongings were infested at work. Or the Entos. daughter could be a carrier of bird mites but not being affected by them.

      There is SO much we don't know and sadly the doctors ARE NOT HELPING US!!!

      But please concider building ur immune system back up.

      Plus the treatment that is supposed to kill these, is So hard on our bodies.

      Bug killers are neurotoxins. Neurotoxins are designed to kill.even if they don't kill us right away they do take a toll.

      Watch ur carb intake. Fruit and fruit juices too.

      There really is no need for fruit juices unless u don't have any teeth lol. the whole fruit is always much better and not as high calorie as fruit juice.

      Try not to get upset. Even if u weren't dealing with weight

      Issues. I'd bet this dr wouldn't have helped u anyway or believed u for much longer anyway.

      Seems to be a common problem with this skin/ bug issue.

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      Dee 4 months ago

      In first experienced the beginnning of scabies on my last day of work at a museum where an entomologists daughter had infested my personal belongings with scabies mite as a spiteful going away gift. No I can not prove it but I became itchy on the inside of my forearms the moment I picked up my box of belongings to leave the office. That was 5 years ago and these bloody scabies keep coming back. It has ruined my life. I am allergic to dust mites so I get 6-8 weeks of intemse painful itching and insomnia and the reaction to Lyclear cream is unbelievable. I am right now awake at 1am unable to sleep with crawling skin. I would take my own life to stop this itching. If it went away permanently I could cope but I have moved house, thrown out my belongings, started afresh, only to end up back here again. I can not get a medical practitioner to take me seriously. For some reason they are more obsessed with my obesity than interested ij helping me with this skin affliction. I have put on 50kg stressing over this condition. Life has become horrific.

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      recently diagnosed 5 months ago

      One week ago we, the whole family was diagnosed with scabies. Apparently contracted originally through my husbands job. He ha had symptoms for a little while. Went to the doctor n was diagnosed^ with excema. Wrong diagnoses. My daughter and I started to have the same symptoms. So I took her and me the doctor. Excema again. But she did refer us to the dermatologist who did the final diagnoses. So one week after the first treatment, we are still experiencing some inching, but like all before, its to be expected. But I have had experience with other little critters, lice, experiences with my daughter from a daycare. But that led me to alot of research. I found the cure for that through Neem oil. It worked. So with that thought I went to work on a little more research and found out it can work on the scabies mites. I thought Try it. So this is what I did. After the initial doctor treatment, I made up a neem lotion with the neem and another essential oil, for smell. Yes the was residual inches from treatment. So the first thing was do what the the doctor said to do. Second I used the lotion. Everyone took a shower every night after and exfoliated really good. Applied the lotion from chin to toes like the precribed. The neem lotion has helped subside the inching in all of us. The neem from what I read n researched is a natural insecticde. It is a contraceptive for this and some other bugs. So after one week of so far of this, our skin looks good and healing any sores. We are taking our second treatment in two days and after we will start back on the neem lotion again. The lotion is a mix of aloe gel, Vitamin E lotion, neem, make it strong, and I put either tea tree for healing ore lavender to help the smell. Has to made up daily. After 4 days, my daughter, is doing well n the skin looks good. As well as us adults. Neem has alot of healing properties. Please note, I have done what most have done in sanitzing the home and laundry. Now it is a wait and see to see if this works. Just my daughter not iching and healing tells me something. If your want to look up neem oil, there are websites out there that have a lot of good information. Thought I would share.

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      Bob Jansen 7 months ago

      Just an update on my last blog. Its about a week later, and my poor immune system is clearly reacting to the mite garbage I have not removed with an extensive tender rash that tickles. I have probably also done some damage to my skin with the peroxide applications to debride the mite residue from the opened burrows: peroxide is terrible for wound healing because it kills cells indiscriminately. However, after three weeks, the largest evacuated wound site has finally lost the white bed lining altogether, although whether this is due to peroxide or my immune system, or both, is unknown. Hopefully now normal healing will start to happen.

      I am treating the rash with dry skin lotion and soap and water cleaning. I am distressed to learn from other bloggers reports that the rash may last for weeks. I am watching for new sites closely, and there are one or two tiny ones every day. Still, I am hesitant to continually use RID (or permethrin) with so many open wounds, and I think the rash may be partially a result of so many insecticide uses. Boy, damned if you do, and damned if you don't.

      BTW I would strongly recommend against any readers doing the debriding I described unless they have had some experience in this kind of work. A normal bathroom is far from sterile, and staph infections can kill, especially if you are elderly. If you are contemplating removing the mite detritus, please first watch some YouTube videos on changing wound dressings so you can get a feel for maintaining a sterile environment.

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      Robert Jansen 7 months ago

      My half century with the scabies mite

      When I was about 25 years old I met a nice girl at a coffee shop in San Francisco, and somehow we ended up in her room on the floor in her sleeping bag. It was the summer of love, 1967, and that sort of thing happened then, especially if you were 25 years old. A few days later, I noticed some tiny red dots on my skin, and itching ensued. Eventually I realized I had contracted scabies. Now this was before the internet made it easy to look things like this up, but luckily I worked at the UCSF medical library at the time, and so I looked up skin parasites and got some Kwell shampoo at the Haight-Ashbury Free Clinic. It turns out scabies was epidemic in the Summer of Love.

      Now it is official medical dogma that the scabies mite cannot live on its own for more than a few days, and I had killed all the ones on me and my clothes, so that should have been the end of it. But the mite has maintained a periodic presence in my life since then, showing up whenever my personal hygiene slacks a bit. I lived in California for most of that time and always had a swimming pool and Jacuzzi at my disposal. The hot chlorinated water seemed to keep the critters at bay, but whenever I was away from the water for a few days the little red spots would reappear. I discovered that over the counter RID (0.33% Pyrethrum) worked just as well as prescription Elimite (5% Permethrin), and for all those years, I would use RID in the shower when the little red pinpricks appeared. They would turn brown afterward, and that was that. I had no clear idea what was going on under the red dots. Since they came back periodically for many years, it seemed like they must have survived on my body. I suppose I could have contracted them from an outside source each time, probably once a year on average, but that seems improbable. My pool experience controlled them, I am guessing, but how could they survive all that RID and Chlorine?

      Well, I am 73 now, and for the past few years I have not have a pool or even a regular bathtub, only a shower. For the past year I have had some vascular problems, an apparent blood clot in my leg, and I neglected to shower regularly, sometimes going a couple of weeks between showers. I live alone and I was preoccupied. This lack of personal hygiene was very unusual for me, but old age is full of unusual things, I am finding. At any rate, the scabies mites reappeared in strength. I got some RID and started showering every day using it. I washed the sheets, etc. This always worked in the past, but this time one or two of the red dots on my belly didn’t turn brown right away. They stayed bright red, which I took to mean the critter was still alive under there. I took a tweezers and nipped at the little red drop, and was amazed to find that there was a mite in a pouch in it. I had a cuticle nipper and nipped the little bugger off. Once it was off, I daubed some hydrogen Peroxide on the wound and it foamed up nicely, debriding the wound of foreign bodies as it is supposed to do. There were little black things and white puffy surround, so I tweezed the black stuff out and nipped the white annulus which didn’t hurt at all, which I surmised was because it was not me. It turns out there was a much larger burrow underneath the red dot, almost the size of a dime, coated with a white substance and filled with little dark stuff, things. I continued tweezing and nipping and using peroxide until all the black things, eggs and feces I think, were out, and I also tried to nip the numb burrow lining as well. As I got down to the bed I started hitting nerves and it hurt like hell. I began to realize that the mite had developed a barrier that prevented me from feeling its movements, that the burrow was lined this way, except for a couple of capillaries that fed into it through the white lining. Clever parasite had a well insulated home with running blood. If there was a “home” like this under every little red dot, I was supporting a whole neighborhood of mites. I investigated other dots that had remained red after being shampooed. I nipped off the pouch, which was in the red dot, and applied peroxide, which turned the rest of the burrow white on the edges. Some burrows were small, and some were as large as the first one I had opened. I continued to shower and use RID liberally, and after a week or so of this onslaught, I think I got most of them. But RID doesn’t kill the eggs, so I am continuing the shampoo treatment for a couple of weeks. I may switch to something stronger, i.e. 5% permethrin, if there is any resistance.

      According to the literature, when the eggs hatch, the “nymphs” come to the surface and look for a mate. The pregnant female then makes her own burrow. So the smallest red dots were new burrows, and the larger red dots were old burrows. I did not want to open all of them up, it makes a large open wound each time, although it does remove the eggs and fecal material which helps my poor immune system cope. I take out the garbage, in effect, but at the expense of some tissue removal and bacterial exposure. I found that nipping off the pouch early leaves almost no crater, the new mom hasn’t had time to make it yet. Scabbing on the burrows I have opened up seems to be prevented by the burrow lining, which my body apparently has trouble breaking down. This makes sense, since it would have been already removed if my body could have done so. I help it along by periodically hitting it with peroxide, which seems to help break it down chemically. I realize that all the burrows I have not exposed will have their linings remain intact even though the adult mites are dead. I wonder if the eggs and fecal material will not be removed because of this lining.

      I was a professional medical research scientist but I cannot find anything on the internet on how to deal with this problem of the apparently impervious burrow lining of the scabies mite. Physically removing it using surgery as I have done on a few sites seems impractical since opening each and every burrow would leave dozens of scars. The only treatment seems to be to exterminate the mites with insecticide and leave the burrows intact, full of protected eggs residue and feces. Yuck. The literature talks about post-scabies immune system reactions, and I am not surprised, given all the crap the mite leaves behind. I wonder if the protected burrows can harbor viable eggs, since my life experience is that my recurring scabies have somehow taken up permanent residence in my body and will opportunistically re-infect when circumstance allow.

      I have not solved this problem, but I thought I would add my experience to the others on this site.

      Bob Jansen, Ph.D.

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      Tom 10 months ago

      Great writing. Thanks

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      Tia 20 months ago

      Hello! I am new here! I have experienced the sensation of crawling and itchiness on my body last year and I thought it was scabies, I was treated with anti histamine and it simply went away after 3 months. This year, once again, just last few days I start to experience the same symptoms! Along with a rash around my breast just exactly like last year! But I live with my parents and elder sisters! They don't have any symptoms of crawling sensation except my eldest sister that claims to have a persistent itchy feet. I'm wondering if my eldest sister have scabies and infected me but can I ask you, is it possible to have scabies JUST on the feet with no rash? I have been feeling crawling sensations around my nose and scalps and ear lobes but after taking a hot shower, the symptoms subsided. I even feel something going in my eye making me itchy and blurry. This all started after I felt itchy on my hands near my wrist. I am wondering if it is but I had the SAME symptoms last year and it miraculously went away! Is it POSSIBLE for scabies to end their life cycle on their own? How many percentage of possibility that what I am experiencing is scabies? Thank you! Hope to get a reply!:)

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      U.K. Sufferer 20 months ago

      Samoa you are a truly amazing person! To still be helping others after going through it yourself! I got I from a boy I slept with a few months ago & it was hell I literally went insane! Went on an absolute mad one with it, bagged everything up, wore gloves, never wore anything twice, froze my purse etc every night & alternated 3 nightly intervals in different rooms (the house I was staying in was very large, so 4 spare rooms to use)

      I didn't experience any itching on my scalp or face until after the first permethrin treatment, after this I kept itching on the scalp (I think those was due to P) I have done X amount of treatments and even stayed in hotels since and I still get bumps and the occasional itch, I had all the necessary blood tests & STI tests all came back negative.

      I believe that I am cured but the psychological effect it has on you is immense! I've done the whole leave the house thing & brought clothes that I used and dispensed off after use & left my home for 4 days (mites would have died in the home as they can't survive for more than 72 hours) I'm now back & have followed my regime strictly. I'm doing my last P treatment this Sunday coming, then doing the isolation of clothes and cleaning for 4 days after then that's it for me I'm guna give myself a break & hope for the best! All I can say is write yourself out a plan, stick to it do the treatments at the right time in the right way, keep your health in tip top shape - take your vitamins etc & really believe that you're getting rid of them else they hold on to you forever!!

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      Samoa6 2 years ago from San Diego

      Hi Sue,

      It's very difficult to tell, even for a doctor. If I were you, I would re-do the treatment the correct way because as it stands, I trust the permethrin killed all the live mites that were on you but it would not have killed any eggs that may have been burrowed during your treatment days. This is the reason for waiting one week, i.e. give enough time for all eggs to hatch after the first treatment but do not allow them enough time to mature and lay their own eggs, starting the cycle all over again.

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      Sue 2 years ago

      Hello there,

      I was told that I had scabies. My treatment was the permethrin cream, but my health provider had me treat 2x's but back to back...I thought was a bit strange. I still itch very much...mostly in my groin area, but some on my hands and wrist yet. Do you think the treatment worked, even if she had me do it one day and then the next? Very upset!!

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      Debbie Carey 2 years ago from Riverton, KS, USA

      Wow....amazed to find so many others who have experienced this. We are currently scabies free for 2 months and my husband still has itching and irritated skin. We used the Permethrin 5% twice (7 days apart) and have taken baths with 1 cup of added bleach every day since. My skin has NEVER been so soft and clear as it is now. Hubby had an EXTREME case and is well on the mend, but I'm thinking another month of irritation for him. Just taking a while to repair the damage these little buggers caused. I wrote a hub of steps we used, but appreciated reading your information....just want to reitinerate that it CAN be gone....be encouraged...there IS life after scabies!

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      kimberly 2 years ago

      i have had scabies awhile now, due to the doctor mistaking it for a allergic reaction I passed it on to my daughter, boyfriend, and 1 month old baby.. It's been a nightmare... We all did first treatment using 5% permethrin and I the next day my rash was worse then day before, my son 1 month old now has a rash on his rash, and I called the dermatologists this morning and they said not to put medicine on his face..... But what if it's live mites and we all get infected again, he said just wait and see how it is in a week, but to me it's like it's spreading more and more on his face, no burrow though.. Any suggestions?? Have to wait a week before doing it again, but I'm terrified this will not go away... Since treatment the itching has went down, but I felt something crawling on my arm a few moments ago, and I was scared, that this is not going to be over....

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      Samoa6 2 years ago from San Diego

      Raven Smith - make sure everyone you come into contact with regularly is treating along with you, including the little girl with crusted lesions on her feet, otherwise you will most likely get reinfested. As for the prolonged feeling of crawling, you will need to just treat once, thoroughly, and then again one week later and wait it out. If you keep doing it everyday, you will put your immune system into overdrive and continue to feel like you have scabies even after you've been cured.

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      Raven Smith 2 years ago

      I'm so glad I found this page. I've been reading the comments and hoping someone can advise me too. I work with a student who had scabies and I got it too. I've treated myself 5 days in a row with Permethrin. I feel them crawling even now. It doesn't seem to kill all of them. I have children and I work with children so I don't know what to do. If I have eggs, that the cream doesn't kill then the live ones I feel now can get to my kids so I keep using the cream every day. The student I worked with had a bad care of them and after hers moms diagnosis of food reaction, I finally had the nurse look at her because I became more skeptical. She even had a yellow crusted like shell on them. Mostly her toes -- I'm not sure what to do anymore. If I keep using the cream I'm afraid of side effects because my skin is red but i must have like 4 or 5 today and this is day 5 of daily cream. Help!! Please !!!

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      Lisa 2 years ago

      Thank you so much for your insight. I'm going to wait it out for a while and see...I think it might be just that my skin is hyper sensitive after everything- I hope. I'll report back in case it helps anyone else. It has helped so much knowing that you found actual proof of the cause of your symptoms. I was at a loss until I read your blog. Thanks so much and take care.

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      Samoa6 2 years ago from San Diego

      Lisa - so strange, but i would definitely have your father check out the possibility of scabies! That may very well be what he's had. Lots of people have it for a long time before a doctor figures it out. Usually, people don't show symptoms for a while after they've been exposed, sometimes up to 6 weeks. This is what makes me think your father might have been the one you got it from. As for your continuing symptoms, i would wait it out for a month after your second treatment to see if the rashes become fewer and further apart (in time). It is not unusual that your daughter would still have rashes appearing and disappearing for months after treatment, even if she is cured. So I would wait out the month and see if t here is improvement. If not, I would do it all again. Twice.

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      Lisa 2 years ago

      By the way, the spray the pest control used wasn't a pesticide, we were concerned about spraying pesticides around due to our daughter, but it was an alcohol based spray and the exterminator thought that should work if it was bird mites. Also, I did think back to the past 6 weeks prior, and recalled that my father visited and slept on our bed. He has had a horrible itchy rash on his hands and forearms for years and the dermatologists give him steroid creams for eczema. But he has had this rash for over 10 years, I can't imagine how it could be that, and my mother doesn't have it.

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      Lisa 2 years ago

      We have no idea. It did start 5 days after we moved into our new apartment, but we went to California for 10 days and the sensations stayed with us, and actually my daughter really started to show more bumps and itching when we were away. I don't work and we don't have a car, since we live in NYC. We actually have been home a lot and cleaning all the time. In the beginning we did have someone come and spray in case it was environmental, but it didn't seem to make a difference. My husband does seem better after the treatments (we all three including my daughter were treated at the same time, and my daughter looks good, except she recently got some bumps on her face which she hasn't had for a while (we had stopped the sulfur on her for a couple of days and they appeared-coincidence?) but they faded, except I see a new one today. I do still nurse so I get concerned of passing it to her if I have it, but both she and I use sulfur soap and sulfur butter every night. The dermatologists do think that the treatment should have worked, if it is scabies that I had, but it's very hard for me to tell, and I do still feel the sensations of a bug here and there along with the pinpricks/bites/bumps. However, when I look back at the beginning of all this and how I felt, it isn't nearly as intense. I am trying to tell myself that I am cured, but it's difficult when I still feel a sensation of a bug moving or the pinprick bites/bumps I still get (although they are smaller). I'm trying to believe it is an allergic response, but it is so hard to tell.

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      Samoa6 2 years ago from San Diego

      Lisa - any idea where you might have picked it up to begin with? Like you, my nose/eyelash sensations ceased with treatments, but mine never came back. This makes me think you could be getting reinfested. What type of place do you work in? Daycare, nursing home, camp of some sort, etc. etc. or even hospital? Also, did you treat everyone in your household? Some people can have it but not show symptoms right away, or their symptoms may be mild so they wouldn't recognize it. Did you clean all clothes and sheets, vacuum out your car seat etc.? Just trying to think of potential places you may have become reinfested. Not ruling out the possibility you are just experiencing a reaction to the permethrin, but my symptoms went away after treatment. The rashes and itching however did last longer after treatment. Just not the crawling/eyelash/nose thing.

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      Lisa 2 years ago

      Thank you so much for writing about your experience. It has helped me so much. I have had a similar experience as you have, with the tickle in the nose, (feeling them crawl on my nose), a weight on my eyelash and eyebrow. I also get the pinprick and bite sensations, along with bumps on my chest that won't go away. Dermatologists didn't see anything to take a scraping (even though I do have bumps), so I wasn't sure if I had scabies, but I feel confident I did/do? However, I did the permethrin treatments one week apart, and am still feeling all of my symptoms, except a little better on my scalp (which was very itchy). My concern is that the weird nose/eyelash sensation seemed to go away for the most part, but 2 weeks post last treatment I started feeling them again. Could this be psychosomatic? Also, the crawling sensation wakes me up at night but benadryl seems to help. I am trying to believe that I am cured, but it is difficult to tell. Thanks for any insight.

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      Samoa6 2 years ago from San Diego

      Jacob - you may just be experiencing the after effects of permethrin. But you should also consider where you picked it up to begin with, i.e., if you keep going back to a nursing home, daycare, camp of some sort, etc. etc. you may simply continue to become reinfested.

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      Jacob 2 years ago

      Thank you for the response. I've gotten no real relief thus far, and the sensations seem to have spread to the rest of my body, but more so itching than just the "wisp". Trying to explain crawling, wispy sensations to a doctor is hopeless, they just don't get it.

      I did treat the scalp, the face, everything I could think of. I suppose I should just wait and see at this point, everyone is different, I'll give it a couple more weeks and see what happens... It's just so disheartening how ignorant doctors are of this condition, it's an embarrassment to the profession.

      Thank you for the advice and this blog, it has helped more people than you know.

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      Samoa6 2 years ago from San Diego

      Jacob - the wispy sensation on the face ended pretty much with the treatment, but the rashes continued for months, although they became fewer and further apart. did you treat your face and scalp? if you did not treat everywhere, you might still be infested. if you did, twice with one week apart, then you might just be experiencing an immune reaction that looks/feels strikingly similar to the scabies infestation itself. if you continue to spot treat, you will only exacerbate this problem.

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      Jacob 2 years ago

      Been dealing with this for several months now, and my symptoms are pretty much the same as what you described in this blog. A tickle in the nose, feels like a fly or something is landing on my face, and if I touch the area the sensation immediately ceases then will pick back up somewhere else.

      I've been through numerous permethrin treatments, so much so that I don't feel I should go through any more... doctor refuses to prescribe ivermectin. The last time I used the permethrin it gave me a huge rash.

      My question to you is, after your last permethrin treatment, how long did it take before the sensations stopped?

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      Samoa6 2 years ago from San Diego

      SDCA - you really should only need two treatments that are one week apart. i covered my eyelids/lashes as best i could right before i went to bed at night so it could work as i was sleeping and i didn't have to worry about getting into my eyes. then i washed it off immediately after i woke up. if a little gets into your eyes, it's not the end of the world, it just burns a little and you wash it out. just remember that the permethrin has side effects that are similar to the actual infestation, so you might feel like you still have scabies for a while. the rashes caused by permethrin are sometimes worse than anything you might have experienced from the scabies themselves. if you can, you might want to get an accompanying dose of ivermectin from your new doctor. you would do this twice, along with the permethrin. good luck!

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      SDCA 2 years ago

      My symptoms are identical to the ones you had...persistent tickling and movement in nose, light whisping movement feelings on body, some itchiness, and sensation of dust landing on eyelashes and a single hair on face. I saw a total of 13 doctors in 2 states. These dermatologists, internists, allergists, ENT specialists and infectious disease specialists ranged from telling me I had seasonal allegies, an inflammation below my skin, eczema, and so forth, to telling me that I needed to see a psychiatrist and that sometimes anti psychotic drugs can help with these dilutional parasites. It seemed the more they knew about my continued problem and persistence, the more they dismissed me! I started feeling like I had to make mention of my Ivy League education to gain credibility, but nothing seemed to change their minds. The fact was nothing the were prescribing worked and the symptoms persisted through the 7 month ordeal.

      I finally found an internist who was willing to just try a course of 5% P treatments. He has prescribed 4 weeks and has suggested that, as you did, I use it on my scalp, face, and inside my nose where the crawling feeling persists. I completed my first treatment overnight. I wanted to get it on my lashes as we'll but was having trouble doing so and keeping it out of my eyes.

      First, I would like to thank you for posting your story! I was in a desperate search to try to understand what I have been going through and after reading this I finally felt sane, validated, and like I could find peace. It gave me the courage to go to one more doctor and try to get help. Second, I would like to ask if 4 weeks of treatment is just too much and exactly how you were able to include your eyelashes successfully?

      Thanks, again!

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      Segga 2 years ago

      Hi Helena Larsson :) Just wondering: After the first dosage of the Ivermectin, did you notice a difference with your face-thing? The crawling/spider-web-thing? I have it constantly and is very bothersome. Took two rounds of permethrin 5% all over my body (head+face too) for about 12 days ago and notice nooo difference at all. Have a doctors appointment in 6 days and I am thinking about asking for Ivermectin. Try to talk him into it. Unfortunately I can not help u with suggestions for your son.. :( Im so sorry you all have to go through this, but hope that Ivermectin does it for you!! Greetings from Norway!

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      Helena Larsson 2 years ago from Molkom

      Hi.

      I have now had a big viraity of sympthoms all over my body for 2,5 months.

      It started with a itchy neck and a bump with raised channels leading from it on my foot.

      After that my hand started to shed skin and my ear started to itch and turned into leather like skin on the itchy spot.

      I infected my so that only have a few bites a day, and my mum and her husband.

      My mother have the same eye problem like you and also the dusty feeling or with maybe other word...feeling of being covered with spiderweb.

      Her husband have had more bites and bumps. But we all have had crawly fellings and bites all over.

      We use a "bensylbensoat" based medicine in Sweden and we have to order Permethrin from abroad or go thrue a big process and wait with the health care to get it.

      So we did a scabies treatment even though nobody new what it was.

      A lot of the visual effects dissapered mostely but then they came back all over my throat with itchy rash and spread between my breasts with itchy and red bumps.

      I tried to get an appointment at the skindepartment again to show them my clear symphtoms but they told me to go back to the helthcare center.

      They thought we should do another treatment so I put the "bensylbensoat" on my son for the fifth time ( I´ve had it 4 times) and tried clowe oil 40% (kills the scabies) Teatree oil 10% (keeps the scabies at distand so they do not wanna come back) and olivoil 50% on me.

      Burnes like hell but shore helps and gives reilef.

      I really thought it was gone this time and for three days I did not have any feeling of getting bitten and creatures running over my body, the visual reashes dissapered as well.

      Then it came back on my chest, in my ear. It started in my nose, and in my groin. On one of my lower legs it started with red itchy bumps, and then my right sided tummy got covered with an atleast 10 cm/diameter rash full with red, bumpy bites.

      My neck had bumps but now they started to grow and it felt like collonies of the parasites.

      On one of my thies it also started to appear a trail of itchy bigger bumps.

      That day the medicine IVERMECTIN/STROMECTOL (also called horse medicine) arraived that I ordered from...see below.

      http://ourmeds.org/products/antibiotics/stromectol...

      very fast a reliable webpage.

      You take your dose with one week apart.

      Unfortunetly I cant give any to my son since he ways less than 15 kg so I have to figure out some more loving treatment for him. It feels that I will traumatize him for life if I apply anymore burning creame on him.

      Now most bumps on me has dissapered and the itchyness is becoming smaller but I can feel that they are still there but I still believe this will do it. If not I will get more and continue the treatment.

      I will take the second dose in a few days and I pray for us to get well.

      (I have also tried Neem oil and oregano oil but not made much difference.)

      I am thinking of collodial silver for my son (it kills parasites)

      but if anyone has any other idea for some oral medicine ore unhurtfull cream for my 2 year old son I will be so gratefull.

      Ps All material in in quarantaine except for the beddings, the clothes and shoes that we whear.

      Everything gets washed for at least 60 degrees, frozen for 48 ours or stored for atleast 4 day.

      I spray alcohol on all hard surfaces and mop the flore every day.

      Cant see that I can or have the strength to do more.

      I will go now I affirmate that as well.

      Thank you all for sharing a a huge thanks for this hopefull website.

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      Segga 2 years ago

      Thank you so much for your answer Samoa6 :) I dont know if this works or not, but its definetely worth a shot. I did cover it all over my body incl. head and face, ears, in ears and just inside my nose. Yes, if was very careful too, when applying it to my eyelashes, but did it just like you hehe. It is strange how this can be so unbelivable different from person to person. Amazes me. Now, I dont know how this goes, but I will give feedback in here for SURE, especially if this works. My somptoms were like yours, tiny pinpricks here and there on body, crawling sensation on head, then it spread to face, tickling in nose, and like ItchyKate said: feeling like its dropping into my eyes and then web have the whiskers of wind/feather and the dusty feeling. Also tingeling and whiskers of hair down my arms, on legs or back sometimes. I have seen 4 different doctors, and they all actually belived me, and thought it was a parasite, but they had never heard of the sort. So they all trusted deeply in the dermatologist I had an appointment too, and all I got from the doctors was a bootle of steroids for the itch and some antihistamines. I had high hopes going to the dermatologist, but she sat down and told me that I imagined it and explained I needed just to "talk" about it. I did not quit the fight, and luckily (?) my sister got it 4 days after me, since we were sharing beds, so I knew I hadnt lost my mind. So she is also struggling with this. And her dermatologist knew nothing either. I see its all the same story all around, You can be right about the immune system, who knows. I have always wondered why on earth my sister has always had milder symptoms than me,.. but I DID go through a tough period right before this, eating poorly, sleeping poorly and stressing. So now I am trying to eat plenty, started excersizing a little, walking outside a lot, taking lots of vitamins, garlic and other supplements. I dont know if this is scabies, but I have to try your way, because I tried all those oil-things, things to smother hairmites, showered in alcohol (yes), put salt on, take baths with bleach, and so on. I even shaved my hair. So now Im trying this!!! Than you anyway Simona, wether it goes this or that way :) Greetings from Norway :)

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      Samoa6 2 years ago from San Diego

      Segga - the crawling feeling pretty much went away with the first treatment for me, but many others say it lasts longer bc that feeling can be caused by your immune system presumably reacting to the permethrin, just as by the mites themselves. if you've treated thoroughly, including face and scalp, you are probably fine. i got as close as i could to my eyes, even eyelashes, with the permethrin. this is difficult bc you don't want it in your eyes. it burns.

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      Segga 2 years ago

      Hi Samoa or ItchyKate! I thank you so much for this page. I have the exact same experience right now. I have taken the permethrin twice in the way you two guyes did. I am just REALLY wondering about this: How long did it take for you to get rid of the dusty feeling on the face and on the eyelids and the crawling feeling on the face? Could you be spesific, like in number of days? It is my third day after treatment and I dont feel any different. I have read everything in here, and understand it can vary from person to person. But I did not catch exatctely how long time it took before the face-things at least began te relieve... It is really bothering me. Thank you so much for sharing your stories! :-*

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      Jackie 2 years ago

      LM I have read people saying that they were infested with springtails..you might want to look into that further. Also was your springtail the size of a period? Or larger...starting to thing maybe I don't scabies but something else

      So scared

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      dyanne1020 2 years ago

      LM...mine sounds a lot like yours...mostly scalp and face. But I also catch myself looking to see what is on my leg or arm, thinking it feels like a spider is on me....nothing is there! I've had this over 4 years and I've about given up. Saw 3 Drs (one a dermatologist who took a scraping and found nothing) I've seen the black specks on the tape test....sometimes I see the blue or red threadlike things (Morgellans?), but try to tell myself it's only from the clothing. I actually spray my head with a muscle pain spray containing menthol, because that is the ONLY relief I get. Oddly enough these 'sores' I get on my scalp are almost always on both sides at exactly the same time, then when they go away...it happens on both sides again.

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      LM 2 years ago

      God bless all of you who are dealing with this, I pray everyday, all the time for relief, and I will pray for all of you who are dealing with this nightmare, too! So...I believe me and my Mom picked up some kind of bug when we were traveling and staying in Alabama. We stayed in many pet-friendly hotels, also (w/ our dog), which could have been the determining factor. I will try to make this as short as possible. We are both experiencing crawling sensations all over our body (especially face and scalp, and my legs), which gets worse at night. Showers with menthol and tea tree oil seem to only help temporarily. It feels like everytime I walk on the carpet, I feel stuff "jumping" on me, and biting me sometimes, what feels like a pin prick. We have "exterminated" our 1 bdrm. apt twice, and fogged it once. We have vaccummed a LOT, even used borax and Diatomaceous Earth, even putting it (the D.E.) into our laundry drying cycle. This seems to really help so I can sleep at night. I change/wash sheets EVERY day, same with my clothes. I wash my hair everyday, too, and keep it pulled back ALL the time. It seems to be getting a little better, but not by much...been dealing with this for 3 weeks, now, and am at my wit's end! I have been to a doctor and dermatolgist who barely even looked at my skin! The first one just immediately prescribed Permethrin cream to me, just in case I did have scabies, but I have been too scared to try it yet, based on all the reviews I've heard of it. I'm also very scared to put it on my eyes, as I have very sensitive eyes, but I do feel them in my eyebrows, eyelashes and nose! The odd thing is, neither me or my mom show any outward physical symtoms AT ALL (we believe we picked it up at least 3 weeks ago now)! Could this really be scabies or something else? We've ruled out bird/rodent mites as you can see them, plus as much as we've treated our apt., nothing could survive that! I also believe we have/had them in our car too...we rubbed Borax in all the carpeting, (thankfully we have leather seats!), let it sit for 15-20 min., then vaccummed the crap out of it. I don't even know if it worked! Anyhow, could someone please give me some advice? I'm going crazy here! We've taken samples from our skin/bedding TWICE to the County Entomologist, and he was very nice and spent a lot of time talking with us, but swore up and down he couldn't find Anything other than 1 single solitary "Springtail," which cannot wreak havoc on a human body this way, according to him. Whenever I do the "tape test," the only thing I ever find is some teeny-tiny black specks, but never any "worm-like" white things which I read other people find. I really hope someone can shed some light on this matter, and we can move on with our lives. I am a Christian woman, and I have been fervently praying and seeking God's help in this matter. I wish all of you heal from this soon and forever! God bless every one of you! Thank you.

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      Job 2 years ago

      I have JUST been diagnosed with scabies after almost 4 months of symptoms. I remember that the first could of bumps showed up when I was wedding my front yard with a friend of mine. I originally thought it was poison oak or ivy because of the way it looked. After covering the red itchy bumps with a bandaid and ointment for over a week, it still itched, and didn't seem to go away at all. I thought then that I was suddenly allergic to my bath soap, laundry soap, lotion or something of the like. After changing all of these things, the problem was still there. I went to a doctor and they gave me antibiotics. I went to summer camp where we stayed in a dorm and it seemed like it was getting better, still itchy though. When I got back home the mites just got worse and worse. Now it is all over my body, except for my neck face, scalp and vulva (thank goodness). This has been most definitely the most frustrating skin issue I have ever had. I wake up in the middle of the night itching uncontrollably. My boyfriend tells me I constantly itch while I sleep. I have gone to the doctor three times since I have had this skin issue and each time they don't seem to know what it is. My boyfriend got scabies as well and got to go to a specialist who told him exactly what it is and with no surprise, I have it, too. I was finally able to get a doctor to believe that it wasn't just poison ivy or an allergic reaction to my laundry soap, but instead it was scabies. I just got the medicine today, but have not been able to do any treatments. If you think you have scabies, please please do not wait until it gets this bad. It's one of the most frustrating and irritation skin conditions ever and it will not be treatable without medications. I cannot wait until this whole nightmare is over. Good luck to everyone else who is dealing with this issue.

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      dancesilly2 2 years ago

      They are wrong, you can get scabies on your face. I got a bite on my upper lip and the burrow traveled across the top of my lip and continued up to the base of my nose and traveled to the side of my nose. The burrow was very scaly and itchy, and then the side of my face started to go numb. My face was crazy itchy and I had to use the cream on my face. It is just now starting to subside, but my nose gets itchy periodically. The cream made my face feel weird too, twitchy like it was affecting my nervous system. But it worked. I had it on my scalp too and used Kwell permithyrin cream hair rinse on it and it worked as well.

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      Samoa6 2 years ago from San Diego

      Traumatized - I haven't heard of this sort of reaction specifically, but I will venture to say that permethrin seems to have a serious impact on the immune system, which may be what you are experiencing. When you used it, did you treat your entire body including face and scalp? Is this where you feel the crawling? If you did not treat adequately, you may still have the mites. If you did treat adequately, you may just be suffering from side effects of permethrin, which for us came and went for several months, although they were not as severe in our family. I think most importantly you need to address the issue of whether your treatment was adequate, i.e. covered everything. Then you can move on to dealing with how to quell your immune system. How much hair loss? That is scarey to me - if permethrin is doing that, you definitely do not want to use it again. If you need to retreat, you might want to try ivermectin orally.

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      Traumatized 2 years ago

      My little boy was diagnosed with scabies on april 9th of 2014. All four of us in the house did treatments with perm 5% initially and then 7 days later. I have had diarrhea since then and more hair loss than usual. I didn't even know I had scabies and now symptoms are way worse after treating 3 times with perm..(I freaked out and did a third treatment on June 1rst) I am having severe anxiety and find it hard to function on a daily basis because I still will see bumps here and there and get itchy rash patches but then they go away after an hour or so. Been to the derm several times and he looks at me like I am crazy. He insists that he doesn't see the bumps on my skin that I do. He said to ice any rash I get and it does work. Also, I do not itch more at night but I get itchy after I eat every single time even when I eat something that is wheat and gluten free (all protein & healthy). I want to treat with perm again but it made all of my moles and beauty marks really itchy last time. Any insight of any of these effects? Diarrhea, hair loss, loss of appetite, itching after eating, itchy rashes that come and go (pinprick and crawling sensations still).

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      doglover1818 2 years ago

      if anyone can give me some advice or any thought they have that would be great.

      i currently have scabies i got them in may when i came home from college and my parents had them. it started off with a few bumps then when i went back to college for summer school i started itching like crazy. when i came back home in july i put the cream my parents doctor perscribed and it made me less itchey, however i am still itchey

      also now i think i have a scabie bump on my vagina its just one and one big one in my thigh so im worried it could be herpes? i dont know because i heard scabies dont appear on the vagina and i do have one bump on my vagina skin thats itchy. however when i put cream on it it stop itching. i have had sex with the same person for the past 3 years and have not had sex since feb/march. please helping i am freaking out!

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      Samoa6 3 years ago from San Diego

      Ours looked more like poison ivy, but I don't think that really matters. Everyone's system is different, so this may just be the way that yours is dealing with the permethrin. I would recommend resisting the urge to use more permethrin, and just waiting it out (assuming you treated thoroughly).

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      hyper 3 years ago

      Samoa,

      It had been a week after my last treatment. I still itch a bit here and there but its much better now than before the treatment. I didnt developed any rash, only pinprick tiny red dots on my arms and wrist. Now its still there and I start to get worry. What kind of rash did you have?

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      Samoa6 3 years ago from San Diego

      Hyper - we still got some rashes for about 3 months after treatment. How long has it been since your second treatment? The fact that the crawling is gone is a good sign.

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      Hyper 3 years ago

      Hi Samoa6,

      I had the same symptoms as you and had used the permethrin. After the post scabies treatment, i still have red pinprick dots on my skin that is not itchy but no more crawling sensation. How did you get rid of the red dots?

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      Samoa6 3 years ago from San Diego

      Jennifer - you can pick it up easily, actually. if someone had it and sat on their couch and a mite happened to rub off onto the couch and then you sat down, well there you have it. unlikely, but can happen as easily as that. make sure you do a thorough treatment, not just where you see the rashes. and treat a second time one week later. good luck.

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      Jennifer 3 years ago

      I am a home based therpist for dcs so I am in lots of strangers homes....my understanding was that scabies is not easy to catch......but some how I got it and gave it to my husband- I am lucky in that I went to my dr. And she had no issue prescribing the permethrin lotion....however until I read your post I still wondered if it was scabies - for these reasons 1. I caught it really easily....2. It is only on my rib cage....not it any of the "typical" places....and I swear on the lives of my children I felt crawling sensations!!!!! Then I would lift up my shirt and there was nothing there! I thought I was losing my mind!! And my itching is very minimal so I am lucky - but I do have big patches of bites that look like a rash not really like individual little dots....I am assuming there are eggs in there....anyway thank ago the post I dont feel so crazy anymore :)

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      dyanne2 3 years ago

      Heath, interesting you mentioned the feet. Now that I think of it, mine started on the inside ankle area...I thought something bit me while doing yardwork. I NEVER itched that badly in my life. When that quit, the sides of my face started itching. Then it went to my scalp....I have about 20 spots that won't go away, even after 3 years. I get pinprick sensations on my arms, and what looks like a bite. I also have crawling sensations all over...so much that I almost ignored a spider on my leg the other night.

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      Samoa6 3 years ago from San Diego

      Not sure how long it takes to spread, but the itchy feet may well have been scabies.

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      HeathNJ 3 years ago

      I have another question that I can't find the answer to on the internet. How long does it take for scabies to spread from an adults feet to head? My daughter's feet and lower legs are far worse than what i found behind her ear yesterday with her back almost as bad as her feet. I am thinking back and realizing she may have had this longer than we thought, and we had good reason to think we knew exactly where she got it 6-7 weeks ago. But she had a time when she had extreme itchiness on her foot and ankles that she scratched very badly a month or two before we thought she got it. If that's the case she would have been exposed to scabies more like 3-4 months ago rather than 6-7 weeks.

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      Samoa6 3 years ago from San Diego

      Hi HeathNj,

      It doesn't have to be a long ordeal if you treat it properly. I'm afraid your doctor might not have given the best advice though - most agree that the entire household should treat at the same time, and that everyone should do it twice, one week apart, for the reasons mentioned in the article and previous comments. I would think you could call the doctor and get more permethrin for everyone. If the doctor doesn't comply, you should think about finding one who knows more about scabies. In any case, the long ordeals only seem to emerge when someone cannot get a proper diagnosis, which you have already done. So you are through the hard part. Now you just have to get the medication and treat everyone to be on the safe side because some people can be carrying it and not show symptoms for up to 6 weeks. That would be a shame to just spread it around the house again!

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      HeathNj 3 years ago

      This blog has been a great help. My daughter was diagnosed with scabies today. I have been worried for a week about the welts that I started seeing, and at first thought she was just scratching extremely dry skin. apparently she has scratched herself so hard at night that she made herself bleed. Being 18 she didn't show it too me soon enough and I had no idea how bad it was. Our doctor gave her the permethin but did not tell us to repeat the treatment as many people are saying. She also said the family members don't have to do the treatment unless they have symptoms. Also wondering how long it will take for the welts to clear up, it looks absolutely horrible now that I've seen what she looks like all. There are so many of them i don't know how we will know if new ones appear. Very worried about some of the stories I've read hear that this is just the beginning of a very long ordeal.

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      Hopeless and Depressed 3 years ago

      Thank you for taking the time to reply. I will continue to look for a doctor who will help me and hopefully this nightmare will end. It's becoming very difficult to walk because the soles of my feet are sore and swollen. I never thought in a million years I would get this again, let alone crusted scabies. I will keep you posted. I hope you have a wonderful Easter.

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      Samoa6 3 years ago from San Diego

      Hopeless and Depressed,

      I would seek out either a new dermatologist, or a parasitologist who has experience with scabies. If you are testing out new doctors, make sure they know about the after-effects of using permethrin, which are very similar to the symptoms of scabies themselves. Maybe it would help if you could go camping somewhere, alone, and do an entire body permethrin treatment coupled with ivermectin. Then just wash everything the next morning. Then do it all again one week later. I would think this would get rid of it, but you'd need to first find a complicit doctor.

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      Hopeless and Depressed 3 years ago

      Sorry for another post, but I just want to clarify that the first few days I did have the typical symptoms. The bumps were very itchy, especially at night and had the crawling and pin pricks. But after using A LOT of the steroid cream, it made it worse. My doctor didn't tell me to only put a very thin layer on and to wash it off the next day. So for a week I was heavily coating myself with it, including my face and scalp, and I didn't wash it off unless I was just taking a normal shower. So after a few days the itching stopped and I started to develop lightly crusted skin on scalp, hands and feet. But of course everyone is just telling me it's dry skin and it's impossible for scabies to affect the face and scalp. I'm so depressed. I'm 21 and was starting to go somewhere in life. Had a new job I enjoyed, was going to start saving for my own place, and then this happened and I had to quit so now I have VERY limited money and resources and am dealing with this alone because no one believes me. No one will do a skin scraping because they say it's just dry skin.

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      Hopeless and Depressed 3 years ago

      Another thing, they are also in my vagina and butt. Gross I know, but yeah. I also felt them in my mouth. If I do get more permethrin no matter how many times I use it, it won't help because I have them in places you can't use the cream. And I doubt I'll manage to get the ivermetcin pill, but if I do, they say they don't kill all the life cycles of the mites, and since I'm now getting crusted scabies there are SO many on/ in me that I fear there is no hope for me. I must say that I really admire the fact that after two years you're still here to help people even after yours is gone. It's a shame that doctors aren't as open minded about atypical scabies as you are. Maybe if they got it they would understand. But all they do is tell you that the unusual symptoms you're having can't be scabies. They especially think you're crazy if you suggest they're inside you internally. But I've been feeling very sick lately even before the permethrin and I'm scared they're doing damage on the inside. I smoke cigarettes so I'm afraid they went in my throat from me touching the cigarette and then smoking it. I know internal scabies is even less common than scabies on the face and scalp but I've done SO much research lately and found links that say they can go internally inside you and do extensive damage. But of course, if I said that to my doctor he would probably put me in a psych ward.

      Again, thank you for taking the time to give insightful and sincere support.

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      Hopeless and Depressed 3 years ago

      Samoa, reading these posts have been very informative and while I know you can't help me over the internet, I've decided to post my story to vent. Sorry if it's long but I'm just happy to find someone who won't think I'm crazy. What can I do if no one will believe that I have the beginning stages of crusted scabies? I've been to my Doctor twice but he is no help. I've had it for about two weeks now, no idea where I got it from, but since I had it 5 years ago from my ex boyfriend I was able to quickly distinguish what it was. At that point there were only a few itchy bumps on my arm but I thought I was doing the right thing by trying to get rid of them before they got really bad. I went to the doctor but since there was only a few bumps all he did was prescribe steroid cream even though he agreed that it looked like scabies. BIG mistake. All it did was stop the itching but obviously didn't get rid of the scabies. And because of that, I'm beginning to get crusted scabies. I didn't know that steroids can actually make it worse and if you DON'T scratch you can actually develop crusted scabies. I also have conditions that weaken my immune system. I actually wish I was itchy even though it's hell, because at least then I would know it's normal scabies and not crusted scabies. So anyway, he gave steroid cream and told me to come back in a week, so last week I went back to my doctor with my family because they were a little bit itchy too and we all got the permethrin cream but I knew it wasn't going to help, because like many of you, I have them on my face, eyes, scalp, nose, etc. So I asked for the ivermectin pill and told him they were on my face and scalp and all he said was they don't go there and wouldn't give me the pill. I told him I've done research and that they can go there, and that I have a crusted scalp but he wouldn't listen. So, I used the cream but he only gave a very small amount, not even enough to treat 7 days later. I put a little bit on my face and spot treated my scalp because I have open sores on my scalp and was afraid to put it all over my scalp. Needless to say, I know they're not gone but no one believes me. I had to quit my new job because I was afraid my co-workers would get it, so I made up a lame excuse, but if they do get it, I have a feeling they'll know it's me since I was new. I'm also scared of a community wide epidemic. I live in a small town, so. I haven't seen my boyfriend in weeks now, I don't know if he gave it to me or not, but he says he's not itchy so he won't get treatment so needless to say, I haven't seen him in quite some time. He takes strong steroid medications for arthritis so it's possible he does have it, but doesn't know because it doesn't itch. Anyway, I just don't know what to do. I know this won't go away, especially since I can't get the proper help and even my family thinks I'm crazy now because they think one dose of the permethrin worked. I know otherwise. I live at home with my mom and her boyfriend and they're constantly around people, so now everyone they know probably has it as well. My mom is a caregiver and sleeps at work on the couch, so obviously she's spreading it. And even if we were able to get rid of it, she'll just get reinfected. I'm so depressed. If I lived alone I wouldn't care as much, because it would be easier to get rid of, but unless I want to be homeless, which might happen because everyone is sick of hearing me complain about it, I don't know what to do. I can't afford to move out. I literally have no support. I know this won't go away because every single person we've been in contact with needs to get treated, and their contacts need to get treated, etc, etc. And since I'm developing crusted scabies on my scalp, feet and hands, I'm even more depressed. I knew something felt different this time. It didn't itch as much because the steroid cream, and no one ever told me that NOT scratching can actually cause thousands up to millions of mites. Since the crusting on my skin is only starting, no one will believe me until I get the classic crusted scabies that looks horrible, but at that point, it will be too late to treat. I've read stories where people have to be isolated in the hospital for weeks to months until/IF it goes away. And like I said, since my family isn't very itchy they think it's in my head and won't properly treat so it will never go away? As I mentioned, I can't afford to move out on my own. If I could, I would. But I guess I'll just have to suffer until it gets so bad that people won't have a choice but to believe me. But at that point, it will be so bad that treatment is unlikely to work. I know you said that if my doctor won't listen to me to just try different doctors and specialists but I don't have the resources for that. Getting an appointment with a specialist can take years here. I just wish my doctor listened to me in the first place and didn't prescribe steroid cream which made it worse. And like I said, when I went back a week later he wouldn't listen to me that it was on my face and scalp. So many horror stories about people never finding proper treatment because as you said American and Canadian doctors really don't know sh*t all about atypical scabies. The soles of my feet are starting to get crusted, swollen and they hurt. I still have the bumps on my body, but no itch. From time to time I feel the crawling and pin prick sensation. It disgusts me knowing I have thousands up to millions of mites on me, and my family is still in contact with other people so this will be never ending. If it was up to me, I would make us all be isolated until/ if we can get rid of it. When I got it 5 years ago it was actually fairly easy to get rid of because at that time, no one in my house had contact with other people and we all treated at the same time. But this time is different. Everyone's sick of me talking about it, but no one will help me. Again, I know you can't really do anything either, but it helps to vent. Thank you for your insight and support.

      -Hopeless and Depressed

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      Emmmy 3 years ago

      I didn't have a lot of bites to begin with. Just a few here and there. Maybe 1/2 dozen or less. And they didn't itch that badly. Not like what I had read other people had suffered. These bumps are indeed worse than the bites. I've done everything medically and humanly possible to get rid of them. If they didn't go away it's not because I screwed up. It's because these bugs are zombie bugs. So I will wait it out and see what happens. Taking Benadryl for the itching. It's weird. It's very itchy. And then the itch goes away. Then I'll get another bump somewhere else and it itches and then goes away. And they are mostly on my face and neck and chest. I have not gotten any on my finger webbing or the soles of my feet or palms of my hands. A few on my legs. Some on my arms. That's why I think this outbreak of itchy bumps is a reaction to the medicine. These are behaving more like hives which I have had before. I just don't think it's the behavior of scabies. Maybe I'm wrong and I wouldn't really know because I have yet to have a serious outbreak. Mine was very mild by any standards. So maybe they do bite, itch terribly and then the itch disappears only to show up a few minutes later somewhere else. ?? I choose to believe they are a reaction.

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      Samoa6 3 years ago from San Diego

      Hi Emmmy,

      That is exactly what happened to us. The breakouts after permethrin were much worse than anything we ever had prior to treatment. I would recommend trying not to succumb to "spot-treating," as it only seemed to make things worse for us. Just wait it out, and then after a few weeks or so reassess to see if things begin clearing up a bit. But we did continue to have breakouts as far as 3 months out, so don't freak out too badly if it continues to happen for a while. Hopefully it'll subside quickly.

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      Emmmy 3 years ago

      I just have a question. I did the 2nd permethrin treatment on Monday, washed all my bedding and vacuumed again, etc. I'm starting to get bumps all over my face, my neck, my back, etc. In your experience, do you think this is a reaction to the permethrin rather than the bugs still being alive?

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      Emmmy 3 years ago

      Well I am not sure the permethrin worked. I'm a little panicky about it. I called my MD (not the derm) and told him I had been exposed with scabies and had symptoms of an infestation. I neglected to tell him I had used permethrin. I was hoping he'd give me ivermectin. I even asked for it. Instead he gave me Lindane. I was kind of shocked. He gave me two 3-oz bottles. The dose is usually 1% and if it doesn't work you're not supposed to take it again. It can be very bad. So I haven't done it yet. I guess I'll do it tomorrow after work. I won't used it on my head or face. I will use permethrin again on face and scalp. Hopefully that will be the end of it. Keeping up with my prayers.

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      Samoa6 3 years ago from San Diego

      i just washed everything once the morning after treatment, which is also when i vacuumed the furniture and car and then emptied the vacuum outside, and then showered everything off. I did this whole routine after the second treatment as well. The permethrin does not kill eggs - unfortunately, nothing does. So just do the treatment twice with one week in between and see how it goes, but expect symptoms to get worse before they get better bc the perm. has this side effect mentioned in the associated article on how to know if your scabies treatment worked. I would say if, after a month or so following treatment, if your symptoms have not begun to let up, then you may need to follow the whole treatment protocol again, possibly coupled with ivermectin. But give the permethrin a chance to work, even if it takes longer than you'd like.

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      Emmmy 3 years ago

      So you don't think I need to wash my bedding and clothes and jammies everyday? Cause I can't seem to stop. I think I'm obsessed. I don't have a vacuum with bags. So I went to empty the hepa-filter container. I took it outside to do so and it was windy. I'm so afraid one of them blew back onto me. I washed my hands and arms immediately even though I was wearing gloves. I have washed all of my bedding again. My poor electric blanket is in a plastic trashbag until further notice, because I'm afraid that 3 weeks is not enough. It terrifies me to get this again. And I miss my electric blanket on HIGH. I'm freezing at night and am running out of blankets. Nearly all are in bags. I wash in hot water and dry on high but found out tonight that the dryer is not getting particularly hot. And all this time I thought I was safe. So basically what I'm wondering is I know the doc said to retreat in one week, but what if one of those little buggers escaped the treatment and goes on a drunken binge, shacking up with every single boy scabeii it can find? Does the permethrin kill eggs? And if it doesn't, what happens if I treat myself in a week and the eggs emerge a couple days later? I'm sorry. I feel like an idiot. I know nothing even though I've read everything. Everything is conflicting. I've done my best. If this doesn't work I don't know what else to do. (I have ordered some sulfur soap and I bought some Neem cream which I used today after my shower. I just want every advantage I can get. Sorry, I'm rambling now. These things have made me babble. I'm glad for people to talk to about it because I haven't told ANYONE that I have them. I just stay away from everyone. This is not a sister/brotherhood I ever thought I'd be joining.

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      Samoa6 3 years ago from San Diego

      Emmmy,

      Just wash all your bedding and pajamas tomorrow morning before you shower to wash the permethrin off. That should be enough. I also vacuumed out my car and any other furniture you've been sitting on before I showered, just in case. Good luck!

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      Emmmy 3 years ago

      I showered and washed my hair. Then I put the stuff on my scalp when my hair was wet. I will shampoo it out in the morning before work. It's funny how bumps pop up since I've put the stuff on. Itchy. My poor daughter is suffering. She's thinking it's a waste of time to get treated since her father won't get treated. He's so stubborn. Grrrr. I will take whatever comes with the psoriasis. Anything is better than playing host to parasites.

      I did my nostrils but did not put it on my eyelashes. I didn't feel any there. I hope I won't be sorry. I was just a bit scared to put it there. Do I still have to wash everything everyday? I bought a new zippered mattress protector. I will wash the sheets everyday if I have to. I'm hoping not to have to. What about the clothes I wear? Do I have to wash and dry them everyday still? It's so exhausting to do that on a daily basis. But I will do whatever I have to to eradicate these things. Thanks for your help. So appreciated.

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      Samoa6 3 years ago from San Diego

      yes i did face and scalp with dry hair, along with rest of body at night, then wash in a.m. but definitely heed your doc's warning - the perm will flare up already existing skin problems. yikes, be ready for that, and it could be long lasting.

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      Emmy 3 years ago

      I live alone, which also makes it difficult to cover places like my back with the cream. So you leave the permethrine on your scalp all night? Do you apply it when your hair is wet? My dr didn't seem to realize how contagious or disgusting these things are. I was not terribly impressed. Anyway, praying this does the trick.

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      Samoa6 3 years ago from San Diego

      Hi Emmmy,

      You might be able to try the oral Ivermectin, which might not have such a bad effect on your psoriasis. Permethrin is very rough on your system, and it has long lasting effects that are similar to the scabies problem itself. Not sure how going the oral route would afftect psoriasis, you might want to ask your derm. But yes, it is important to remember that everyone in your household treats at the same time, even if you are the only one with symptoms. You may have been infested several weeks before you realized it, and likewise, anyone else in your house may have been (or may currently be) as well, only passing it back to you if they don't treat at the same time.

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      Emmmy 3 years ago

      I saw a dermatologist today and she said she would electronically send a prescription for me (hasn't done it yet). She didn't want to give it to me at all because I have psoriasis and she said it would effect my psoriasis. I told her I was willing to take the chance, that this was not going away on its own. I can't believe that she was more concerned with the psoriasis! I had to keep refocusing her on the parasites. How did you treat your nanks again for this place to come for hope and help. I may actually get through this and at some point I won't be obsessed.

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      Emmmy 3 years ago

      She came to visit me in Massachusetts from Georgia. She came with her father and her son and her 2 nephews. They found the pup around 6 weeks ago I think. The pup had a horrible rash and scratching. They took the puppy to the vet who said she had sarcoptic mange. He treated her with ivermectin I believe with 4 doses a week apart. He told my daughter to see her doctor. She went to see him because she had some bites. He looked under the microscope and said she had scabies. He treated her with permethrin. He gave her one tube with one refill for 5 people in the house. And her boyfriend. She treated everyone except my ex who was convinced that he didn't have them because he never touched the puppy and because he had no bites. The little ones (3, 5 and 5) were treated and as far as we know did not get any. They did play with the puppy extensively. They got 2 treatments each. Because of what I had read about dog scabies being self-limiting, I told her to come visit. I don't know what I was thinking! I just hadn't seen my daughter in a year (or my grandsons). They came to visit from Georgia to Massachusetts last Saturday. My daughter said she was still getting bites. She slept on the couch. I tried to limit my contact with her and never sat on the couch. When they left on Thursday I washed all of their laundry in hot water. I bagged up blankets afterwards and they are still in sealed bags. I vacuumed my couch and chair and my whole house. I scrubbed the floor with chlorox. I scrubbed the tub, toilet, sink. I sprayed all the upholstery down with RID which is 5% permethrin. I changed my sheets and blankets and washed the dirty ones in hot water and dried for 90 minutes. I vacuumed my mattress and sprayed it with RID. Nevertheless, by Saturday I was starting to feel crawling and pin prick bites. I started using Neem oil and tea tree oil. I washed my hair in tea tree shampoo. Still I feel them. I get new bites at the rate of maybe 5 a day. (yesterday and today). I've bathed in tea tree oil tonight. I itch all over---which may be the power of suggestion. I live alone and I have nobody to help me put permethrin cream on my back. I am going to call a dermatologist tomorrow in hopes I will find one who doesn't think that it's impossible to get them. And hopefully they will skip the permethrin and jump right to the ivermectin. I can't reach my back. I want it knocked out before I'm totally infested. Which I may already be. I have looked with a magnifying glass and have not seen anything but I sure feel them. I'm hoping that any doctor I see will know that it just makes sense to treat me even if they don't see anything, simply because I've been exposed -- in more than a casual way, holding my grandchildren, hugging my husband, hugging my daughter, riding in the car seat she sat in for several hours. Thank you for your post. I have read so much conflicting information about canine scabies. I still don't really understand how they could infect me if they only live for a few days without a canine host, since they have been away from a canine host for over a week. I am afraid I'm becoming totally obsessed and scared to death. I can't deal with this. I have too many health issues as it is. Thanks for starting this blog. It is helpful.

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      Samoa6 3 years ago from San Diego

      Hi Emmmy,

      I'm not sure from your note the exact time line of things, but if your dog was treated, and your daughter along with the other kids in the house were also treated, the adults should have been treated as well, all at the same time. Also, it is quite possible that your daughter was carrying something before she or you realized it, and that you got it from her and therefore you both possibly could have had it before realizing it. Concerning the dog/human species, the scientists who study mites claim that dog species cannot reproduce on humans, but this does not mean they cannot burrow into your skin and survive for some time while trying. If you are feeling the sensation of crawling and getting pinprick bites, I would definitely see a doctor asap before you inadvertently spread it to someone else, or back to your daughter. Concerning her new bites, this may be a reaction to the permethrin cream (see related article on "how do you know if . . ." Or, alternatively, she may not have done a thorough enough treatment, i.e., some doctors say not to treat your face, but in our case, we would not have gotten rid of it if we had not done that.

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      Emmmy 3 years ago

      I disagree about the mites from dogs not being able to reproduce on humans. My daughter brought home an abandoned puppy. Turns out the pup had sarcoptic mange. My daughter got it. She was diagnosed in the ER. The doc prescribed permethrin cream which she used and also treated the 3 kids in the house. The dog was treated and cured. All the bedding and clothes, etc were washed. The whole environmental thing. She came to visit for a few days with the kids, whom I held and kissed often. She did both cream treatments a week apart. It has been like 3 weeks and she is getting new bites, although she has been away from the dog and house for a week. The kids have no symptoms. But after they left, I washed all the bedding in the house, sprayed with RID, vacuumed--also did the whole environmental thing. I'm starting to get pinprick bites, the feeling of something crawling on me (face and scalp included). I haven't been to a dr yet cause it just started this weekend. I have used Neem oil and tea tree oil but still feel it. If they can't live for more than 72 hours without a canine host, how come they can? My daughter is getting several new bites a day. Any ideas?

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      beverly 3 years ago

      Itt would be very helpful to know what exactly the first couple commenting meant by taping and that by that method they had gotten one of the mites to have examoned. If they can publish that others can use the same method to obtain help beverly.baty@yahoo.com

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      Samoa6 3 years ago from San Diego

      Dante - I did not experience either of these symptoms. But other commenters have noted little black things. This seems very odd to me as I am not aware of any such parasite, but you'll need to talk to someone who is well versed in parasitology, not your average dermatologist. good luck, and report back with anything you learn as others might benefit.

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      Dante Trossino 3 years ago

      Hi, first of all you are a life saver for me, still i would be really really grateful if you could answer the few questions to me.

      1 immediately after applying the treatment (permethrin), is it common to see little black spots that go out of the skin for the next hours (sorry i have no microscope to see what are the black things that leave my skin)?

      2 was it common for you to find little white matter similar to the one that comes off when you pop a pimple on your skin after treatment ?

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      Samoa6 3 years ago from San Diego

      Michelle,

      Here is what I found on the CDC website:

      Ivermectin is an oral antiparasitic agent approved for the treatment of worm infestations. Evidence suggests that oral ivermectin may be a safe and effective treatment for scabies; however, ivermectin is not FDA-approved for this use. Oral ivermectin has been reported effective in the treatment of crusted scabies; its use should be considered for patients who have failed treatment with or who cannot tolerate FDA-approved topical medications for the treatment of scabies. The dosage of ivermectin is 200 mcg/kg orally. It should be taken on an empty stomach with water. A total of two or more doses at least 7 days apart may be necessary to eliminate a scabies infestation. The safety of ivermectin in children weighing less than 15 kg and in pregnant women has not been established.

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      Michelle 3 years ago

      Any body know the correct dosage of ivermectin/stromectol to take? And how long it is taken?

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      Samoa6 3 years ago from San Diego

      Tracey - Thanks for your email. The bumps/rashes/crawling can last for several months (periodically) after treatment. It begins to let up over time. They are not bites, they are a reaction to the mites and later to the treatment. Just make sure your parents have treated themselves thoroughly (i recommend treating face and scalp too although doctors do not agree with this - if they do faces, make sure they are aware of how potent the permethrin is and of potential side effects) followed by taking the appropriate laundering precautions.

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      Samoa6 3 years ago from San Diego

      Ivan M - I think your plan sounds like a good one. It is impossible to tell if the itching on your scalp is caused by the mites themselves or by an allergic reaction you might be having to the permethrin. I can tell you from personal experience though that the mites do indeed go on your face/head, despite the fact most doctors don't seem to believe this. I taped one under my eyebrow and we had it identified by a university expert under a microscope. So be your own advocate here, but also be warned, the skin on your face is very sensitive and some people have had itching and twitching when using permethrin there.

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      Ivan M 3 years ago

      Hello, I have had the mites for about 7 weeks now and have just done the cream 2 times neck down as directed on the package, I had already done the treatment once a few weeks earlier but wasn't very thorough, but this time I was. I am still itchy after treatment, and worst of all I am itchy on my scalp. Is the itchyness on my scalp just a side affect from using the cream (even though I didn't put the cream on my scalp)(?), or is it more likely I have scabies on my scalp? Anyway I think I will leave it for about 5 weeks and if symptoms persist I will do the cream all over (including scalp). And then let you know if it has worked!

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      Hauck15 3 years ago

      Thank you so much for getting back to me! What a stressful experience!

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      Samoa6 3 years ago from San Diego

      Hi Hauck15 - the post permethrin rashes were sometimes in lines or tracks on us as well. Just wait it out and don't be tempted to overuse the permethrin, it will only make the rashes and itching worse. And you only need to wash everything once, right before you wash the perm. off in the morning. Then repeat everything again with the second treatment, including the washing clothes. other than that, if you treated your entire body (we even did our heads/faces since that is where we felt it to begin with), you will probably be fine. if you are still nervous, just leave everything that could possibly have scabies on it, or anything you are particularly worried about, packed away for a week or so since the mites can't survive that long without being on someone.

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      Zerpher 4 years ago

      All- Because, there is no money in it -- R&D for an effective scabicide isn't happening. There is permethrin resistance, ivermectin resistance, malathion (which is not marketed in the U.S.) and no some very aggressive species that are not "knocked down" with benzyl benzoate (also not marketed in the U.S.). BB does still have the best kill rate. You can find just about anything online, however.

      When it comes to 'natural' therapies - remember 'everything' comes and is modified in some manner from the earth. So it is ALL natural. I'll bet you want 'effective'. Something that will work.

      At this point in time the protocol that I find work best are warm bathing/showering to soften the skin and remove a bit of the stratum corneum (tougher outer layer of skin) for lotions and their active ingredients to penetrate.

      1. Benzyl benzoate BB (make sure you are completely dry and keep away from mucous membrane areas). Should you get some in your eye -- blink rapidly and dab with tissue and it will pass. BB when potent causes a stinging sensation - almost like burning but is not burning the skin.

      It kills those mites with which it comes into contact within an hour.

      2. Follow with a "whole" body (scalp, face, ears) permethrin (I'll sometimes compound with 10% flowers or sublimed sulfur) and leave on for at least 12 hours. Even in resistant permethrin mite cases - sometimes a little stronger and longer will compensate some.

      3. Shower that night and may apply 2 to 3% clove oil with citrus and/or neem, tea tree oil. Neither Neem or Tea Tree Oil kill the mite but is soothing to the skin. Clove oil and citrus will help repel ectoparasites.

      4. Now try to be patient but keep environment sanitized - everything you can think of must be laundered - the usual - so as not to re-expose.

      5. You may spot treat "hot zones" that do not seem to be 'drying up' with BB.

      6. Augment regimen with oral ivermectin - 350mcg/kg one does every 4 days for 4 doses.

      DO NOT expect conventional doctors to be aware or understand scabies and the treatment resistance that exist. The more enlightened ones will at least of heard about permethrin and ivermectin resistance and will have most likely never encountered benzyl benzoate (from Balsam of Peru) and is safe if you can hack it.

      7. Repeat topicals above 1 and 2 weeks later

      Now, about the application of 'whole' body -- not just neck down. A very good dermatologist from Australia posts a good commentary on this. The recommendation for application of permethrin evolved out of history of treatments rather than any justifiable evidence that scabies does not wander or even take up residence on the scalp or face. I can guarantee that they often do.

      Keep in mind that there are many variants of this mite - and enzonotic variants that will behave a little or greatly differently than classic human type scabies. Even so - human type evolves (changes) and may present atypical patterns - the host immune response plays a big role too.

      So back to the whole body application of permethrin or Lindane lotion or compounded sulfur and clove oil. Years ago - benzyl benzoate was used predominately (was very effective) throughout Europe and the military. However, it can sting and often would get in a person's eye. When permethrin hit the shelves as a more tolerant (but much slower working) alternative -- the recommendation evolved to not apply above the neck as was the recommendation of BB -- not because the mite didn't go there - but because of the side effects and mishaps - and that it seemed that treating the bulk of the body surface area seemed to permit the system to work its own magic. In other words, the concept of debridement (as much removal as possible) of infectious portions of a wound or even tumor mass can permit the immune system to take over more effectively.

      Having said all the above -- I truly wish that there was a way to seriously reduce, if not rid, our planet of this tormenting ectoparasite. The fact that there are many asymptomatic or mild infestations (so many carriers) make it very hard and now we are dealing with treatment resistant creature.

      Please observe clean technique (mindful of where the hands go and objects that get touched including linens, clothes and so on -- use alcohol or windex to cleanse objects - phone, keyboard, steering wheel and so on). Employ antihistamines and even calamine with Benadryl to help with itching.

      But, need to kill the mite. Not much works on the eggs - thought that permethrin and Lindane might a bit -- but have to stay on top of the eggs hatching and retreat whole body at least twice a week apart.

      My heart goes out to each of you with this malady - and please please get the notion that something billed as 'natural' is better. Natural just means that it has been unrefined or not adjusted to be targeted and more effective. For example - ASA (aspirin). The "natural" way to get the effective ingredient (salicylic acid) into your system to reduce inflammation was through 'willow bark' usually as a tea like infusion. In this infusion you would not only get the salicylic acid that was the wanted ingredient but many other ingredients that were not wanted and would be toxic to the liver and other tissues.

      We have evolved hugely past the time of harvested herbs and country remedies (which was all that we could do years ago) - and learned that the replicating just the wanted ingredient and making it safer and more effective by adding a small molecule to it (acetyl) would revolutionize anti-inflammatories. ASA is still the single best medicine we have.

      So - please do not believe for one minuet that research & science does not produce superior options. However, people's understanding and applications may leave a bit to be desired. This is in all realms - conventional medicine to the nature path. Knowledge and true understanding is key. So, while the medical community you ought to be able to turn to sometimes disappoints -- keep trying and research what you can. Parasitology training among U.S. doctors is very limited, combined with the fast global changes that are changing the parasite threats that were once thought to not be in the U.S.

      But, doctors' hands are often tied by the over regulatory nature of practice today and they are reluctant to deviate from the approved cookbook remedies they have been taught to use. The FDA process can take over 10 years for a product that we already know works, but by then it may have resistant strains. Our system is frustrating -- but there are many out there who will try to help.

      It will, however, be up to you to be creative in finding some of the good things mentioned above. Doctors are very reluctant to venture outside of 'approved' modalities with med-mal as it is.

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      ItchyKate 4 years ago

      Hi all, in case anyone is still following this thread, I thought I would quickly share with you a kind of interesting experience I just had. The scabies I had is totally gone. All that remains now is a patch of dry skin and what i assume were burrows...little red scars... and these still itch. But mainly because it's dry skin and as the skin renews itself, this too is slowly fading away. It's been over a month since I had scabies.

      But this is possibly interesting for those still battling this: I put some permethrin-based flea and tick ointment on my dog today. I had surgical gloves on but I squeezed the tube too hard and spilt a little on my forearms (it's a very small amount, it's from a pipette of fluid). I applied the rest of the ointment to the poor old dog and then went to wash off my forearms. And strangely enough, I had the same creepy-crawly sensations on those small sections of skin on my arms where I spilled the permethrin, that I used to get before. Before when I thought I still had scabies! Really interesting - it really does seem that the permethrin has this effect. It's mostly gone away now and I am assuming its because I washed it all off, relatively fast (within 30 minutes, possibly less). But basically this just confirms to me that the best thing to do - as everybody else on this forum is saying - is to stop treating once you've thoroughly used the cream twice. Then just sit back and wait and prepare to have bizarre itching and creeping! Good luck, once again.

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      h8scabies 4 years ago

      Nice to see someone else figure it out. I work in Afghanistan and have to treat all the time, and be very careful before coming home as to not infect my family (which happened the first time). My face and especially nose (I also get the eyelash feelings) are affected big time. Any Dr. I went to told me they don't go on the face, so don't treat it. Such bs, that's after explaining the sensations and showing them the bumps. I've seen tons of people out here with typical, or "atypical" symptoms on their face. I definitely treat the face everytime. Scabies zits are different than normal ones. They are very red and bleed a lot, do not really release any puss. This is in my case at least, and others I've seen around me to include family. To treat, I use sulfur soap on a regular basis, lotion afterward to keep them under control. I treat about a week before leaving with permethrin, then the day before I leave I take Ivermectin. Shower before taking it, because once you take it you should not shower for roughly 24hrs (36 I've heard also) to let the medicine excrete through the skin and work it's magic. I always bag the clothes I will be wearing a couple days in advance. Once the pill is in your system, no need to be overly careful while cleaning. It will keep new mites from digging in as well.

      On another note, the first time I had it really bad and treated, my family and I both kept getting bumps. We thought we would never get rid of it. Our Derm assured us it was post scabies, and that sometimes the skin can just be irritated and produce these sores and itching still for up to a year after. It's called post scabetic dermatitis. So if you've done everything, but you are still itchy and getting bumps, just relax. They aren't super bugs, it just takes time for the body to recover.

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      ItchyKate 4 years ago

      Wow dyanne1020, that sounds dreadful. I hope you don't mind my asking but have you stopped treatment at all? That is, treatment with things like Permethrin / Benzyl etc... I only had this about 6 weeks and thought I was losing my mind too. Every week it seemed to get worse so I would treat again...although I only did that four times.

      Stopping and waiting to see, as advised by Samoa6 and others, was really the best thing I did. All of the medical science appears to indicate that, if you've treated successfully and thoroughly (maybe you've even left your home for 3 to 4 days to ensure all mites off you have died), then you should be OK. Otherwise maybe you're right, maybe it's not scabies?

      To answer your question, I haven't tried searching for the actual mites as this seems nigh on impossible without the correct equipment. From what I can gather you need a powerful microscope and a lot of luck. Even medical experts don't often catch the mites to look at them.

      Some other posters on the Topix forum have written about different symptoms and debris they get from doing those kinds of tests - I am not sure how trustworthy these posts are but you could check it out.

      I ascertained it was scabies because I was getting all of the same symptoms as described by sufferers all over the web, as well as those described here by Samoa6. I never saw anything, not even burrows, until afterwards...though I did get a hot, red, itchy rash mainly on one cheek and had some red spots on my eye lids and brow area.

      I'm sorry I am unable to help much more than that. I really hope you get rid of this soon.

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      dyanne1020 4 years ago

      Thanks ItchyKate....I have had this over a year and have been doing tons of research. I've tried about everything and nothing helps except menthol & peppermint. And all they do is temporarily relieve some symptoms.

      Although none of the Dr's have said it yet...I am starting to think I'm losing my mind. If it weren't for the actual physical lumps and sores on my scalp...I'd probably have myself committed to make this stop.

      I've read on one of the forums that some people were running scotch tape over their skin where they itched, and put the tape on white paper, and examined it with a magnifying glass and flashlight. I tried it and there are pepper like flecks and blue and red fiber looking things (clothing?) Now I'm starting to think it's Morgellons, except I don't have the "shards" and the actual sores are only on my scalp...even though the itch and wispy feeling is all over.

      Maybe the 'flecks' are normal skin exfoliation...I don't know....have any of you tried this yet?

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      ItchyKate 4 years ago

      Hi there, I received a message from someone in the UK asking how I was holding up as they were going through similar things and I just wanted to reply.

      Yes, am all good. It's been over 2 weeks since I treated last (almost 3 actually I think) and all major symptoms have now gone. I get the occasional whisper of creepy crawly but that could be one of two things: more post-scabies action or me being paranoid about it.

      I still have a tingling patch on my back and the skin on my calf - the only place I can actually physically see any signs of burrows - is still a bit scarred and red-looking. The burrow marks definitely have not gone but they now look a lot like the pictures posted by the clever girl in the Topix forum (see a few comments above if you want to see these)...that is, they look worse than when I did have scabies, quite red, but they only itch occasionally. This skin on my leg can be really itchy occasionally, especially when irritated by clothing, but it's more like a really dry skin feeling than an "infested" feeling and I find moisturising or putting some tea tree oil helps a lot.

      The bits of me that were particularly itchy are now only occasionally itchy. For a while I found that wearing natural wool and other scratchier fabrics (like new denim, for eg) made me itch more and I mainly wore cotton sweatshirts and track pants. Extremely glamorous! But that has now gone too and am back to a more respectable wardrobe. Suspect the Permethrin is at fault there...

      I've also - two weeks later - brought all my stuff in from the balcony and washed it! No re-infection as far as I can tell...and I think I can. Whenever I do itch, it's quite a different feeling.

      I have definitely had a couple of moments of doubt / paranoia / fear when something seemed to be crawling across my eyelashes again or on my feet but on the whole, I think I just decided to think I was cured and am sticking with that theory. And actually, comparing with any of the feelings I had before, I am completely cured, am just dealing with minor post-scabies symptoms now.

      The person who wrote me mentioned that this was psychological torture, and I'd have to agree. But - assuming you've treated correctly and treated twice - then I really think you just need to hang in there. In terms of re-infecting yourself via your environment, it actually sounds like if you haven't had the mites for very long (and they're therefore not all over the place) then this would be quite hard to do anyway (check that guy Progress' posts (see link above), for more on this...he has some good science there). And if you've thoroughly covered yourself twice, plus head and hair, then you should be done... I really hope so anyway.

      These little beasts totally suck!

      All I can suggest now is getting some over the counter antihistamines (ask for the ones for skin related allergies rather than hayfever or more internal allergies). I basically decided that I would take these as much as I needed to and wait it out, because after 4 applications of cream, I felt like that was the only option left to me. And I would do this, while trying to keep my environment mite-free and not touch anybody too much!

      And I'd suggest doing some solid, full body moisturising... here I'd suggest getting an organic cream of some kind and mixing organic tea tree oil in. I had one super itchy patch on my chest that freaked me out (post treatment) and I dowsed it in pure tea tree oil. I don't know if there was anything left to kill but that helped a lot...after that my general itching also calmed a bit?

      Oh, and try to avoid scented or chemical (as in containing mineral oil) moisturisers as they only soothe your skin temporarily. The tea tree oil made me feel a lot better and less itchy. My sulphur soap arrived too late :-) but people seem to think this is helpful too, in speeding skin recovery and curing mites. I'd also suggest soaking in the bath, then using a body scrub or loofah...apparently getting rid of old skin helps get rid of the mites in those outer layers of the dermis, that are still there making you itch.

      Well, I really hope this helps, to the UK sufferer. Try and hang in there... it does really sound like you're getting better!

    • profile image

      ItchyKate 4 years ago

      Oh and just to you know, there is hope! I am pretty sure I have got rid of the little beasts. It's such a strange thing though - I went to a party last night, drank 3 vodka and tonics and during the night I got the crawling and some itching again. I also seem to get it when I am sitting at the computer. Other than that, only very mild irritation or itching and then only occasionally. So hang in there, Samoa6 is right - you just need to tough it out. For all I knew (before having read this site), I was possibly cured after the horrible Benzyl Benzoate treatments while away and didn't know. I'm thinking the itching after a week was when the permethrin started wearing off and the post-scabies kicked in. But symptoms are certainly diminishing now.

      I really hope I have not spoken too soon but am pretty sure all is well (knock on wood). Thanks for your help, Samoa6.

    • profile image

      ItchyKate 4 years ago

      Hi Dyanne1020, if you have any problems, that guy Progress on the Topix site seemed to have done a fair bit of research on using the horse paste. He seemed to think the basic ingredients were similar and that it was possible to use the horse paste without too much danger (if you're healthy in the first place). You might want to read up on his findings, if you have no luck.

      Also I was unable to order any online because it's not licensed for the country I am in.

      There was a store called Bonvita online and another one called antibiotics for sale. You'll need to do an online search as its not possible to post the web addresses here I think.

      I tried to order it from the first address and the customer sales people sent a mail saying they couldn't process the order for the reasons above, also that my card wouldn't be charged. As far as I can gather, it has not been. So I am thinking they seem fairly reliable.

      Before you do any of that (ie taking matters into your own hands) I'd certainly recommend doing your research online.

      But maybe the best thing would be to find a doctor who will prescribe the right thing first of all...surely there are some out there? Maybe take in some supporting documents.

      And it's so strange, yesterday I was verging on desperate as I was incredibly itchy again... and was working out how on earth I could get hold of ivermectin as I'd done 2 thorough treatments of benzyl benzoate and two of permethrin and moved locations inbetween and wanted to avoid doing any more. But today I feel so much better again... Almost normal. Again. I hope this feeling continues.

      It seems to be worthwhile waiting. But on the whole it really is the most bizarre thing. I can only assume I am post scabies. At least I really, really hope so! Stay tuned...

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      dyanne1020 4 years ago

      Hi Samoa, thanks. Yep, I was disappointed when the pharmacist told me it was only 1%. Hopefully the Ivermectin will do something? I'm seriously considering going to the farm supply store, and buying the kind made for horses.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      hi dyanne1020,

      the 1% permethrin is for lice i believe, you need 5% for scabies or it will do you no good. go to a different doctor who reads.

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      dyanne1020 4 years ago

      Ok, after almost a year, I finally got the Dr to prescribe ivermectin....she's only give me the 1% otc permethrin...wish me luck!

    • profile image

      ItchyKate 4 years ago

      Hi there, thanks. Yes, I've tried this but unfortunately it's not licensed for Germany. I can order it online but they won't send it here. I am going to see if I can get it sent to family elsewhere and then here. A long process!

      I was reading some very interesting posts from a poster called Progress on the Topix site again. He had some very interesting insights about Post Scabies although his treatment regime was pretty harsh / probably not recommended.

      It's here, if anybody is interested.

      http://www.topix.com/forum/health/scabies/TNS1N1H4...

      Thanks for your support Samoa6. I am going to try and tough it out for a few more days at least. Will probably post again when I get desperate! Thank you though! ItchyKate

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      Samoa6 4 years ago from San Diego

      ItchyKate - you may want to try to get ivermectin/stromectol as a backup too. need prescription though.

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      ItchyKate 4 years ago

      Thanks Samoa6, OK, I will try and do that. Nope, that's what mystifies me. I work for an NGO and am pretty sure I picked it up at a refugee camp in Lebanon. I'm now back home (in Europe) and I treated myself the first night I got back...and left everything packed in my bags on the balcony. I've only just finished laundering it all. I have also laundered and cleaned everything (and actually everything else in the house) I used in that first week I was back, plus got my dog treated just in case. She was away for the first treatment but here during the second...

      And don't have a partner or even a flatmate so am not sure how I could possibly be reinfected. I am pretty certain I was totally fastidious with the cream and with the cleaning (plastic bags on everything etc) and used it from head to toe and even around my eyes and eyelids because I was getting the crawling sensations there.

      I have never been diagnosed by a doctor even though I went to see a dermatologist here. He was the one that told me it doesn't go on your face, which was not so in my case. And I have so many of the same symptoms, from the hair falling on face crawly feeling to a very similar looking post-scabies rash on my leg (as it was pictured in the other forum), that I have no doubt that scabies is what I have contracted. I haven't seen any mites (so not bird mites etc) and this feeling has followed me home from Lebanon, so I can only think that's what I have.

      This seven days thing is quite interesting though - as in, the fact that the itching etc starts again in seven days. I may look into that. Maybe I am missing something somewhere.

      Thanks for your advice. Logically, it seems I must have got rid of them. Physically though, right now, I am just not sure.

      I am going to try and hang tough. Will let you know how things go.

      Thanks for your advice.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      ItchyKate,

      I would wait it out a month and see if things start to clear up. if it remains just as bad, consider reinfestation. are you a nurse or working in a group home or nursing home or school, somewhere you might be coming into contact with scabies over and over again? if so, you may need to figure out who there is infested and have everyone in contact with that person treat at the same time, as well as doing all the associated cleaning.

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      ItchyKate 4 years ago

      Hi everyone, so I think I may need your help or advice again.

      It's now seven days after I applied the second treatment of Permethrin. And again, as with the first round of Permethrin, on and around the 7th day, I have started to get really itchy again... I don't have any more lumps, bumps or rashes but I am feeling a small amount of crawling and pin pricks as well as that itchy feeling generally. I'm not sure it is as bad as before but that may well be because I am using very low dose antihistamines.

      The patch on my leg where I have seen a post-scabies rash like the ones posted in the pictures above, is also a little itchy but it feels more like a dry-skin / healing itch. Other parts of me though, feel as though something is roaming about... eurgh.

      The same thing happened last time and I thought it might be the eggs that didn't get killed by the first treatment, coming to life. Could that be happening again?

      Has anyone else experienced this?

      Do I need to Permethrin myself again (I have ordered more)? I am loathe to, but maybe I should... Or should I wait it out a little longer? I can handle the itching, especially with the antihistamines and think maybe I should wait it out a bit longer?

      If this is a re-infestation, I have no idea how it happened as I cleaned everything religiously and there are still things sitting out on the balcony a week later. And I did feel fine for about 5 days, really felt like I had killed the beasts...

      I'm grateful for any advice. And I think I'm going to try and order some Stromectol online too.

      Thanks, in advance, for any suggestions.

    • profile image

      ItchyKate 4 years ago

      I'm sorry. Just go straight to the forum page: http://www.topix.com/forum/health/scabies/TQ7EBBL8...

      I just tried and that should work. Hope you can see the pics, they were pretty instructive.

      And so far so good here. Will report back when I have further, hopefully continuing, positive news but just wanted to say that the coconut balm and tea tree oil is really soothing and helpful. Left it on all day and felt mostly totally itch-free and normal. It's hella hard to get out of your hair though - because its so greasy! I just hid at home all day. But hopefully all the coconut did some conditioning while it was in there.

      Hope you can see the links though. If not maybe google this title and it should also come up that way:

      "Scabies, Post-Scabies Progress Pictures & post Permethrin too"

    • profile image

      Dianne 4 years ago

      We're sorry, we cannot find the page you requested.

      Please check the URL for correct spelling and capitalization.

      None of links are working for me?

    • profile image

      ItchyKate 4 years ago

      Hi again, just quickly, this is for anyone looking at this forum and worried. Found this excellent post on another forum...I wouldn't recommend this forum as there seems to be a lot of misinformation on there that's more likely to make everyone panic. However this first post is very good. Some clever girl took pictures of scabies and post scabies symptoms. This was a great relief to me as I was getting exactly the same thing. The links follow below and the original post was here: http://www.topix.com/forum/health/scabies/TQ7EBBL8...

      Although as I say I wouldn't recommend reading this forum too much - it'll make you itch even more. Stick with Samoa6!

      As for me, started getting a bunch of creepy crawlies and itching again on Sunday night, around 7 days after treatment. As well as aforementioned rashes and bumps. Panicked a little, especially about the return of the itching, as it had been dying down and I thought it may well have been a relapse. Maybe? Probably? Or just the larvae growing up and getting busy? I'm not sure...anyway I still hadn't done my second Permethrin so did that Tuesday night (cream arrived in the post). Did face as well. To get it into my hair I just diluted it ever so slightly with olive oil. Left it on about 19 hours as I noticed the instructions say that if you have crab lice you leave it on that long...so am thinking it cannot be too horrendously bad for you (well, no worse than it is already) Do have a headache today though. Am hoping I've kicked it...

      Feeling fine right now but maybe waiting for the post-scabies to kick in. And today, just to cover all bases, I mixed some organic coconut oil with about 3/4 bottle of tea tree oil and slathered myself in it, in the same way I used the Permethrin. This cannot possibly do any harm and the coconut oil is super soothing on the dried out skin.

      Oh, and I also went to the vet and got my dog treated, just in case. For anyone in a similar situation, the vet just used the local equivalent of Frontline or Advantage...the usual stuff you give to your dog...comes in an ampule that you squeeze onto the skin on the back of their necks. Additionally bought permethrin-laced bug sprays from the pet shop and carried on washing everything in sight!

      OK, that's my update. Fingers crossed this is going to work out. And I hope you don't mind me posting all this here. I have told a couple of friends but don't really want to go into that much detail with them. I also spent a lot of reading these forums and found some peoples's (such as the ones here) super helpful... Thanks again, keeping my (hopefully scabies-free) fingers crossed!

      The original post from the other forum with pics:

      I was comparing my photos during my time with scabies and after and figured I would share that with people since everyone who's post-treatment and wondering if it worked always wants to know if they've been reinfected with scabies or if what they have is post-scabies. I'll do a side-by-side at the very end. For now, these are the full-sized pictures.

      Here are 3 pics of my active scabies:

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      Here are photographs of the same area after treating with Permethrin:

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      Here is the same area a week ago:

      http://img.photobucket.com/albums/v235/cru5h/...

      Here is the same area today:

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      These are 2 photos of post-scabies(notice how different they can be from each other):

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      Here's what that more swollen post-scabies looks like right now (they leave dark marks sometimes):

      http://img.photobucket.com/albums/v235/cru5h/...

      Here are the side-by-sides (they're very large)

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

      http://img.photobucket.com/albums/v235/cru5h/...

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      Samoa6 4 years ago from San Diego

      ItchyKate - happy easter to you too! the spots you are seeing we also had, and we honestly believe they were more of a reaction to the permethrin than from the scabies. they let up after time. best of luck to you. let us know how it goes.

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      ItchyKate 4 years ago

      Hi there, thank you so much for your wise words. It'strue about the waiting...!

      I'll just report back in case it helps anyone else wait it out. Five days since I used the Permethrin and feeling so much better...knock on wood, hoping it continues this way. Still getting the occasional creepy crawlie sensation on face, neck and scalp and have had intense pin pricks (verging on painful!) on legs but on the whole, symptoms are very much better. Strangely I have had a couple of strange bumps come up...one on face, another on the neck. I rubbed some tea tree oil into those spots and they disappeared overnight. Odd. Am hoping they are not some kind of relapse but I guess time will tell. I am still being careful with clothing, towels and so forth but have not changed bedding. I will do that after the second treatment as from what I have read about the life cycle of mites (3-4 days from larvae to teenager (so to speak) and then another 3 to 4 days before they can mate and the female lays more eggs) that wouldn't do much, if we assume the Permethrin worked on the first round of adult mites (after which I washed everything carefully in case any mites dropped off onto sheets or clothing).

      I must add that the tea tree oil is pretty good at relieving symptoms. I have no idea if its killing anything but am just using it on spots so it wouldn't be a complete treatment anyway. I have a sort of tingling spot on the back of my neck and it really helps with that too.

      Another interesting thing: drinking alcohol seems to make the symptoms worse so am thinking you're right about adding chemicals on top of chemicals.

      For the time being though, I am cautiously optimistic. Thanks so much for your advice and reassurance. Have a great Easter.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Hi ItchyKate,

      We had the same eye thing y0u are describing, and like you, we ignored the doc and covered our faces, including the bases of the eyelashes. The crawling went away much quicker than the pinpricks which lasted for weeks, and we even felt occasional pinpricks months out after treatment! Human scabies can certainly try to burrow into your dog's skin and irritate him temporarily, but they cannot reproduce/survive there like they can on humans. Each scabies species is host specific. Several people have mentioned tea tree oil is useful and even kills mites (I've seen this published in a scientific article as well, but can't think of where it was), however I am not sure of the protocol, i.e. just wipe your skin with it, or cover yourself with it quite liberally, even twice one week apart?? not sure. Ivermectin/stromectol is effective if you can get a doctor to prescribe it. It is not good though if you have liver or other health issues, your doctor would have to determine this. Good luck getting rid of them. "The waiting is the hardest part!"

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      ItchyKate 4 years ago

      Hi there, firstly thank you for this forum and all your answers. It’s been really helpful to me as there seems to be a lot of misinformation out there about scabies and various treatments.

      I hope I'm not going to bore you with my story but maybe it will also help some folks...

      I didn’t really have too much of a rash or anything but was getting quite itchy all over. I had had scabies when I was 20 (am now in my 40s) (and got rid of it fairly easily) so when I saw the red dot on my hand I was a bit worried but not overly alarmed. Then I noticed another red dot on the other hand. I also noticed a red mark just above my eyelid, below my eyebrow! And it was at that stage at I started to become quite itchy. I left it for a day but the all over itching got worse and I got another red mark lower down on my eyelid. Feeling crawling sensations, feeling itchy all over, on my scalp, face and body. Not too many outward signs though, no real rash, just those few red dots.

      Did my research and decided that I had somehow contracted scabies again – whether from sleeping in a scabies sufferer’s bed or from hanging out in a refugee camp with lots of kids. Because I was in Lebanon at the time I could only get hold of Benzyl Benzoate over the counter. I applied this as per instructions but that stuff really stings. Apparently this is why it’s no longer much used. It’s OK on the body but I wouldn’t recommend it if you are dowsing your whole head too. Ouch. Yes, I tried to put it on my face but it really burned. Having said, if you don’t have any options, it’s a burning sensation that goes away. And apart from the fact that you’re putting nasty chemicals on sensitive skin and it dries your skin out, it doesn’t actually have any permanent effects. I did my face in strips and dealt with the pain in bits!

      It’s virtually impossible to keep this on the delicate skin around your eyes though. The first time I applied it, I did a fairly thorough job but I only used a 10% Benzyl Benzoate solution on my face. I used the 25% on my body. Left it a week but felt the itching was coming back and got two more red dots on my cheek, on the same side as the eyelid dots. And I also knew you were supposed to do the treatment twice so I did that. This time I suffered through the burning on my face and put the 25% solution all over. Left it on for 24 painful hours! Once again, the day during and the hours after the treatment felt fine. Not much itching, very little crawling, no more dots. But once again, within days, things started to itch more seriously and by the time I left, I was sitting on the plane, feeling crawling and itchy and now I was also starting to get the pin prick feelings I’ve read about. Grrrr…

      Got back home to Germany and went to a local dermatologist. He said that the redness on my face looked like an allergy and did I ever get rosacea. More grrr….

      I told him I am not really allergic to anything as far as I know and no, I never get rosacea so this seems a bit sudden. He told me he had never seen scabies on the face before. I argued with him. Ha. He did give me a prescription for 5% Permethrin (you need a scrip here) though. However as so many others here have found, he told me not to apply the cream above my neck. And he only gave me one 60ml tube. I was very tired when I applied the cream, the first night I was back (due to the travelling). But I did a pretty thorough job. My only concern was getting it into my scalp properly because I have longhair. I would be interested to know if anyone has diluted the cream in order to spread it into one’s scalp better?

      I feel like I got a lot in there though. And because I’ve had crawling sensations around my eyelids, eyelashes, nostrils and ears I also applied it liberally all over my head.

      As always, I cleaned everything I had worn. I was lucky actually because I haven’t been here for 2 weeks so I knew none of my belongings at home could be infested. I didn’t even unpack my bag. I just put it on the balcony in the snow, and it’s still there along with a steadily growing pile of clothes and sheets. I wonder what the neighbours think!

      Ha… thankfully I also knew my flatmate couldn’t be infested…

      I’ve just been putting more clothes out there as the week progresses and am leaving them all for a week until the mites die for lack of a hostess. I washed everything else, wiped down all surfaces, including the computer and phone and gave the house a good spray with permethrin-laced insect repellent. I also vacuumed and threw the vacuum cleaner bag away.

      OK, so that was Tuesday morning. Today is Friday. I’ve ordered some more permethrin online from the UK where it’s over-the-counter for the second treatment. I’m also considering trying to get hold of some ivermectin online as it seems effective, from what I’ve heard.

      First night during Permethrin treatment: the itching all but went away as did most of the crawling sensations. And this lasted for a few hours. But then they slowly started coming back. And last night, Thursday night was even worse. I’ve mostly managed to sleep through the itching and crawling (bleurggh) but last night was so bad I woke up. So it’s been 72 hours since I treated. I haven’t had any more dots (thank goodness) but the crawling, pin pricking and itching is pretty intense. Especially the pin pricking. Which I thought was a bit strange. These feelings are almost worse than anything I felt before treating!

      I’m also getting a really odd feeling around my eyes. As though the mites were very near there…or …I know this might sound stupid…but kind of dropping into my eyes? It makes me blink and I keep feeling like I have dust in my eyes. Very odd feeling. That’s happening with both eyes. Even though I put the permethrin around my eyes and eyelids as much as possible. Has anyone else had anything like this?

      I guess what I’d like is some small reassurance that these annoying little creatures are gone?

      I’m waiting it out as you suggest, Samoa6, and also thinking I will get some antihistamines to help at night but I’d also hate to think I was infecting people (especially people’s kids) or dropping mites on furniture as I went along!

      I’m also slightly worried about infecting my poor old dog as I can’t seem to find any reliable information on whether human scabies mites like dogs. I know canine ones don’t like humans but is it also true the other way around? Does anyone know?

      I also wanted to add that tea tree oil does seem to help with the itching. Having read this forum last night I mixed some tea tree oil drops with some organic calendula cream (its quite oily and good for mixing stuff with) I had and applied it to bits of me that got itchy as I watched TV (not all over though, might try that tonight) and it helped. I don’t know if it’s killing anything (or if there’s anything to kill) but it’s certainly been soothing. I also really noticed that the bits of me that were not itching last night were the ones that had that cream on them. So it’s certainly helpful, if not curative.

      I’d love to hear from anyone who has answers to any of the above questions. Thanks very much in advance. And I’ll also get back to you and let you know if this cursed itching continues past today. I also found a really great letter by an Australian doctor about scabies on the face. I’ll try and find it and post it here too.

      Thanks again for your excellent forum and all your answers.

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Thank you Scabies Patient - I'm sure the readers will appreciate the reference.

    • profile image

      Scabies Patient 4 years ago

      Samoa6: Thank you for your reply. This article may be interesting. The article itself doesn't exactly prove that Scabies burrow to the internal organs, but it's a start to getting closer to the Truth. Under special circumstances, Scabies burrow to internal organs. Tell the world! Enjoy.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC131718...

    • Samoa6 profile image
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      Samoa6 4 years ago from San Diego

      Scabies Patient - thank you for your comment, however some of your claims are quite difficult to believe. Perhaps you could provide a more thorough reference for someone having proved that scabies infest internal organs? This is not true, to the best of my knowledge.

    • profile image

      Scabies Patient 4 years ago

      We had better start administering, to the general public, an effective and safe intravenous treatment for scabies very soon. Scabies burrow into all internal organs. The Journal of Clinical Microbiology has posted an article about finding Scabies mites in human urine and feces samples. And, mites don't care where they migrate. They will infest every single organ in the body, including the brain, spine, eyes, ears, heart, lungs, vocal cords, reproductive organs, kidneys, intestines, joints, and even inside the bones! I tend to believe there are hundreds of age-old diseases that are actually caused by parasitic mites like, and including Scabies. And, think of all the money that is spent on this illness which apparently is so difficult to diagnose, treat, and cure. "Delusional Parasitosis"? Really? Is that the diagnosis given when the medical community tries to sort of admit that there is no known effective cure for this real, aggressive, highly-contagious, and medicine-resistant illness? Very sick business, bro. This bad practice won't be tolerated much longer. When enough Scabies-affected people realize there are only two choices, survive or die, they will rise up with all of the strength they have remaining. They will organize and march through the streets, protesting loudly outside of hospitals and other medical facilities, demanding the truth about this infection. They will be applauded and joined by law and fire officials, as well as by doctors and nurses who also want a cure. There will be a radical but swift overthrow of the entire global medical system. We either unite, rise up, and get cured, or we die from Scabies-related diseases. Hail Scabies! (5 Mar 2013)

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      Vee 4 years ago

      She did treat the same day and everything just not the same exact time that's why I didn't know she didn't do it the same way as us... Trying to stay positive thanks Samoa

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      Samoa6 4 years ago from San Diego

      Vee - it's supposed to be best if everyone does a thorough treatment at the same time since some people could be carrying the mite and not know it yet. That being said, since you and your husband have already treated yourselves once and your sister doesn't have any symptoms and isn't home that much, you might as well just go with your second treatment and keep your fingers crossed. I guess if she has anything you'll know it soon enough!

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      Vee 4 years ago

      Hi Samoa, I'm so stressed I'm hoping this treatment works but I have a question... So my husband and I put the cream on from head to toe but my sister that lives with us only did it face down not doing her scalp and only left it on or about 71/2 hours :( she's never had any symptoms and she's hardly ever home... Do you think we will be ok if we all just do the treatment from head to toe on the 7th day? Or should she repeat it? Sorry so paranoid now

    • profile image

      Chunx 4 years ago

      Vee, I hope things go well!

      Samoa, everyone kept telling me "it's your hormones, you just had a baby" yada yada...but when you feel crawlies, it doesn't feel like hormones, it feels like invisible bugs!

      So I came across a postpardum thread where women were discussing this and the relationship to low estrogen after delivery and during breast feeding.

      When I began searching "bug crawling in skin menopause" I found many women describing the same sensations I was feeling- or even worse & some reported it going away after a couple YEARS! Yikes.

      The other reason I suspect hormones is that I have no sexual desire, which is VERY odd for me...I'm usually like Samantha from Sex in the City, so you can imagine what a huge shock this is for me! After the birth of my other children I was ready to go @ my 6 week, but my baby is now 4 mo& I'm just not interested- at all.

      Anyway, when we did the Permethrin everyone applied it correctly, even my hubby, bc he saw how crazy it was driving me.

      I don't feel the whispies much but I do feel crawling sensations.

      I started feeling improvement before even applying the Permethrin, but I wanted to do it to cover all bases.

      I'm also taking B12 & Magnesium in addition to the prenatal to help repair nerve damage (I hope).

      I don't know if I had it, but my skin is definitely not the same since all of this started in the beginning of December.

      I just want my life back and not 'knowing' what is going on is unsettling.

      Samoa, I really appreciate what you are doing in responding to everyone with concern and compassion!

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      Samoa6 4 years ago from San Diego

      Vee - good luck!

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      Vee 4 years ago

      Hi Chunx, I have had all my hormones, liver and thyroid tested even vitamin defienciency... And all normal... I had a small rash on my wrist and forehead that makes me think I do have it... And the first treatment my husband didn't even try to do it right cause he thought I was crazy lol so we will be doing treatment tonight so pray it goes away this time

      Samosa thanks for all your help I will come back and let you know how it goes in a few weeks

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      Samoa6 4 years ago from San Diego

      Hi Chunx,

      That's interesting information - I have not come across that before. So have your itching and crawling sensations stopped at this point?

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      Chunx 4 years ago

      Vee, have you looked into neurological causes of the sensations your feeling?

      I'm 4 mo postpardum, and have found that severe drops in estrogen can mimic premenopausal symptoms including bug crawling sensations & the whispies.

      If you look under menopausal threads, you may find others with similar symptoms.

      My experiences are the same as prePermethrin treatment, which breaks my heart bc I had my whole family treated (including baby +3 other children) even though nobody (not even my husband!) showed or felt symptoms.

      Like Samoa, I haven't had any visual signs, Just the sensations.

      I'm hoping it was scabies & I didn't put my family in danger for nothing- but I'm not 100% sure anymore :(

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      Samoa6 4 years ago from San Diego

      vee - i only washed the sheets and clothes the morning i woke up after having permethrin on all night. i included not only my pajamas, but also any clothes i had worn for a few days before, in case anything was on them. anything you don't wash, just be sure to wait about 3 days before wearing them so anything that might be on them would be dead by then.

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      vee 4 years ago

      thanks just making sure im trying to plan it out with my husband since he didn't do it right the first time around ... you did you wash your sheets daily? and when do you say you can wear the same piece of clothing twice again? sorry my husband hates washing his jeans after every use ao I just want to be careful thia time thanks

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      Samoa6 4 years ago from San Diego

      vee,

      yes, exactly like the first time. covered entire body with perm. before bed, and in morning, through bedding and clothing in laundry, wiped down/vacuumed house and car (emptied vacuum in trash bag and took outside), showered to get the lotion off.

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      vee 4 years ago

      hi samoa I ha one more quick question. when you did the second treatment did you repeat everything like first? (like not use things for a fewdays again) st

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      Samoa6 4 years ago from San Diego

      Hi dyanne1020,

      I believe it is supposed to work on its own, but a lot of people seem to report trying both together.

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      dyanne1020 4 years ago

      Samoa? Does prescribing stromectol/ivermectin, the oral treatment work on it's own? Or do you need the cream too?

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      Samoa6 4 years ago from San Diego

      Vee - yes, everyone in the household needs to treat from head to toe regardless of whether they have symptoms. Regarding shoes, makeup, etc., the mites cannot live off of human skin for longer than approximately 3 days, so not using these items for a week should be enough time to ensure anything living in them is dead. Just be careful with the permethrin because it seems to cause skin sensitivity and rashes of its own. This does not mean it's not working, it just lasts a longer time that you might think and can be worrisome. If you or anyone in your household has a reaction to it, then talk to a doctor about possibly using an anti-histamine or something to calm the effect.

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      Vee 4 years ago

      Samoa- So I am gonna do the treatment again but I have a few questions... how do you recommend treating or cleaning shoes or even makeup (cosmetics)? another site said to put them in a plastic bag for 7-14 days... and also did your husband and kids also treat from head to toe like you did??

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      Samoa6 4 years ago from San Diego

      Vee - You may want to try the treatment again since you did not treat your head/face two times. This means that any eggs that were burrowed during your first treatment could have survived, starting the entire cycle again. If you choose to do this, you will need to cover yourself again two times, one week apart, just like the first time you did it but I would not exclude your face, especially since you are saying you feel something there. Just be careful because the permethrin is very toxic and can cause your skin to break out even worse than the scabies do. Read through the comments from others so you know what to expect. But eventually the reaction to the medication goes away. In particular, I would warn against spot treating in between or after your two treatments because this will only make your skin reaction worse. Also, you may want to ask for the oral treatment if you can find a doctor to agree, as this may allow you to avoid any strange/annoying skin reactions.

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      vee 4 years ago

      had issues with allergies but you never know I hope its just that and like I said niether my husband or my sister that live with me have any symptoms and its been 8 months

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      vee 4 years ago

      hi samoa thanks for responding, the first time I did treatment I only did neckdown but the second one I did do full body since I do feel it on my face a lot and because you recommended it also.. ive never really

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      Samoa6 4 years ago from San Diego

      Hi Vee,

      I am sorry to hear you are still dealing with this. There is no way for me to determine whether or not you have scabies, but I can suggest some things for you to consider. First, when you treated yourself, did you cover your entire body, including scalp and face? If you didn't, you may never have gotten rid of it to begin with, if it is indeed scabies. The label on the medication says not to go certain places around your eyes etc., but I had to do this because the mites were on my eyelashes - I just had to be very careful not to get the cream in my eyes because it burns. Second, do you work in a group home or hospital where you might be getting reinfected? If so, you might want to ask around at work, both employees and patients/clients, if anyone else is experiencing these symptoms. Third, would any of the doctors you've talked to consider prescribing stromectol/ivermectin, the oral treatment? This is often used to treat other parasites, and is supposed to be very effective with scabies as well. Finally, do you generally have issues with allergies? Because allergies can sometimes have a similar effect on your immune system. If so, you might want to talk to an allergist and try and come up with a list of detergents etc. you are using, or maybe even foods, that could be contributing to these sensations. Beyond that, I'm afraid I am at a loss. If your doctors are also at a loss, it wouldn't hurt to call around to find a doctor who has specific expertise with scabies. A lot of the doctors/dermatologists that my family had to deal with had really no idea about the various ways in which scabies manifests (outside of a typical textbook case), which was very frustrating. Make sure the doctor you use is aware of post scabies symptoms that might be due to the use of permethrin. Good luck, please check back in to update us with your progress.

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      Vee 4 years ago

      Hi Samoa I wrote you about 8 months ago and guess what, I still have the sensations I don't know if I did not do treatment right or could be something else. I did my treatment twice 7 days apart, you told me to wait it out and see if things improved. The sensations had felt like they decreased a little but never have gone away completely and just a few weeks ago it felt like the first day all over again but yet it calmed down a bit again. I have gone to see more doctors have gotten blood test and nothing and no one seems to want to refer me to a derm.... what I think is weird though is that my husband doesn't feel anything so he agrees with the doctors... I don't know if I should repeat the treatment again?

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      Samoa6 4 years ago from San Diego

      Anadirunika,

      I cannot publish your comment because I cannot determine whether the content is appropriate. If you'd like, you can resubmit your comment in English. Thank you.

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      Chunx 4 years ago

      Ok. I'm going to lay off the Internet for a while & see if things improve. I'll check in next month, hopefully with good news :)

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      Samoa6 4 years ago from San Diego

      Chunx - the crawling feeling stopped for me pretty much after treatment, but the pinpricks continued and rashes emerged. others commenting on here say they continued to feel crawling for a while.

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      Chunx 4 years ago

      True, but your pin pricks & whispies stopped after treatment, right? Mine are exactly the same. Not too bad, but still present and in the same frequency/locations as before.

      Do you think it takes time for those feelings to go away, too? I was hoping it would stop immediately like yours did.

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      Samoa6 4 years ago from San Diego

      Chunx, we didn't really have rashes either. just the same as you, until after permethrin, then we had a few rashes emerge probably due to the permethrin.

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      Chunx 4 years ago

      Hi Samoa,

      The thing is I don't have any rashes. No visual side effects. With the exception of mu husband's 2 non-itchy bumps,Nobody (not even my infant) has had any side effects.

      What I had leading up to treatment (and after) is the whispies & pin pricks. Not often, but they are there. Driving me mad.

      I have to go to my room to cry every day. I just wish there was an end in sight.

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      dyanne1020 4 years ago

      Thats a good idea. Although at this point it's going to be tough not to come across as some kind of nut lol.

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      Samoa6 4 years ago from San Diego

      dyanne1020 - the fact that this has been going on for so long combined with the crawling etc. you've felt on your face and the lack of effect the other treatments have had indicate to me it may very well be scabies. this sounds identical to what i went through. and you know something is wrong if this has been going on for a year. in my opinion, what you need to do is whatever you can to find a doctor that will prescribe permethrin, just ask if he/she would mind letting you give it a try. make sure you are clear with the doctor that you've tried multiple other things that have not worked, and that this has been going on for an entire year. i can't imagine why someone would deny you such a simple and inexpensive treatment if approached appropriately, i.e. don't come across angrily or hysterically, just rationally, acknowledging that if it doesn't help then at least it was cheap and you've ruled scabies out as a possibility.

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      Samoa6 4 years ago from San Diego

      Chunx - hang in there - it doesn't go away immediately, if it is scabies. you'll need to wait until after the 2nd treatment and then even longer, sometimes rashes will appear randomly for months. and it still seems like you have scabies. just don't overdo it with the permethrin bc in our experience it seemed to make things worse.

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      Chunx 4 years ago

      Samoa, I just want you to know it is 2 days after we applied the permethrin & I feel exactly the same as before. I'm so sad and desperate. I don't know what to do.

      Still, nobody else has symptoms. I don't know what this is.

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      dyanne1020 4 years ago

      Samoa - That makes sense. I do have the crawling/tickling/wisping hair sensations, especially on my face. I've had 2 itchy spots on my face that went away after taking Doxycycline, but it did nothing to the itchy bumps on my scalp. This has been going on for almost a year. I have been spraying Stopain Cold (for body aches) on my scalp...it helps a little (menthol). My primary doctor even thought it may have been 2 different things, even though it was confined to my head.

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      Samoa6 4 years ago from San Diego

      dyanne1020 - it's hard to say, but they are definitely capable of infesting the scalp, and it is also very likely they could be in places on your body that you are not necessarily aware of, which is why the permethrin instructions say to cover the entire body, not just where you feel something. i guess in your case i would pay attention to how long i have been feeling something odd, and whether or not there are crawling/tickling/wisping hair sensations that accompany the itching. if it is scabies, these sensations become so persistent that it is obvious something is not right.

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      dyanne1020 4 years ago

      Thanks Samoa. I'm just wondering what are the odds of scabies only being on my scalp. I had a few other itchy spots, but they went away.

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      Samoa6 4 years ago from San Diego

      pamy123 - i can't remember how long the egg cycle is, but you just want to make sure you wait long enough after the first application to let all of the eggs hatch so you can kill them with the second application. you can find this information online, i am sure. it might be fine to actually wait an extra day, because doctors typically say to wait one week to 10 days. so maybe just do your second treatment on sunday?? also, in the meanwhile, i would be very careful not to expose your new hubby to them. ugh - really bad timing, i know. best wishes.

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      pamy123 4 years ago

      Ok thank you so much for the reply. Also yesterday was my first time applying the medicated lotion and the doctor said to wait till next Saturday to apply it again but next Saturday is actually my weddin night and I don't want to have to put the lotion the first night of me and my husband being together lol. Do you think it would be ok to apply it on Friday instead? Or do I just stick to Saturday?

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      Samoa6 4 years ago from San Diego

      dyanne1020

      i'm not sure what to tell you since i cannot be certain whether you do or do not have scabies. i do know two things though . . . 1) many doctors seem to be "sure" it is not scabies when it is (mine is case in point) and 2) if you do have scabies and only use topical steroids etc., you will never get rid of them.

      so, i might suggest going to another doctor who has a lot of experience with scabies and/or other parasites, and find this new doctor by calling and first asking if he/she is familiar with what people are referring to as "post scabies syndrome," i.e., the rashes etc. often caused by the use of permethrin. if the doctor you are using has never heard of this, then i can assure you that he or she does not have much experience with this particular issue, and will therefore probably not be of much help to you.

      in our case, it was absolutely necessary to be persistent, and to try multiple doctors. i think we went through at least 4 or 5 before we found someone that would at least give the permethrin a try. and it worked.

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      Samoa6 4 years ago from San Diego

      Chunx - i would definitely bet these bumps were caused by the permethrin. it seems to be very toxic stuff. i would not be surprised if bumps continue to emerge for a few weeks - don't be alarmed - doesn't mean he now has scabies, he's probably just reacting to the perm.

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      Samoa6 4 years ago from San Diego

      pamy123 - it should be safe to wear your clothes after washing them and drying them in a heated dryer. the heat should kill any mites that don't wash away. i wouldn't worry so much about clothes you have not worn in a while - the mites can only live 2-3 days off of a host. ring is probably fine, but i would probably take it off to make sure permethrin covers your entire finger and also maybe wash the ring just to be safe. remember, the permethrin causes rashes too, often worse than the scabies themselves. but they do go away after a while.

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      pamy123 4 years ago

      Also is it safe to wear my engagement ring?

    • profile image

      pamy123 4 years ago

      Hi, also when will it be safe to use my clothes after I wash them? How long should I wait till I use them again and why?

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      dyanne1020 4 years ago

      Hi again....so, I played their game and used the Clobex as diected for 2 weeks. I started out with 4 or 5 itchy spots, now I have 15 to 20. I called the dr back and was told to go to another doc for a second opinion. I'm not going, but don't know what else to do..he said it's NOT scabies.

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      pamy123 4 years ago

      Hi, so it didnt get better I ended up with more bumps, this time on my left arm. I went to the doctors and they did treat me for scabies. They prescribed me the permethrin. They also advised to wash all my clothes.Do you think I have to also wash the clothes that I have not used in a while?

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      Chunx 4 years ago

      today, after our second treatment (and 2ns round of major sanitation overhaul- including the purchase/use of an industrial steamer) my husband found 2 red bumps under his arm. About an inch apart. They don't itch. He's never shown symptoms of anything previously.

      Do you think this could be from the permethrin? We just washed it off 8 hours ago after having it on for 16 hrs (my husband & I for 16 hrs. Kids for 12).

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      Samoa6 4 years ago from San Diego

      Chunx - no problem, keep us posted on your progress. best wishes!

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      Chunx 4 years ago

      Wow. But they must've burrowed somewhere, right? Your case is so atypical, and so is mine!

      I don't even have any persistent itching- and I keep looking for burrows to no avail.

      I'm just wondering where these mites might be hanging out..,my skin, like yours, has no scabies signs or even itching.

      I'm putting a lot of hope in that 2nd permethrin app!

      I hope it's scabies so this issue can be resolved. Can't believe I Just said that :(

      Thanks for always replying, even though it's been quite a while since your original post!

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      Samoa6 4 years ago from San Diego

      Chunx - no, we couldn't make anything out other than a few pinprick marks here and there that were almost invisible but very itchy. Even these did not show up until long after the initial feeling of wispy hairs across the face/crawling.

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      Chunx 4 years ago

      Did you ever find any tunnels on yourself or your husband?

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      Samoa6 4 years ago from San Diego

      Chunx - if it is scabies, you are almost at the end. just be patient and thorough with your treatment.

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      Samoa6 4 years ago from San Diego

      pamy123 - it was subtle. sometimes just felt like a hair whisping across the skin.

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      Chunx 4 years ago

      Ok. We'll wait until 7 days. I been having little spots that pop up- not raised. They don't itch, start off light red & then turn into little brown mole-like marks. I wonder if it's related to scabies- or if I even have scabies. I hope this gets resolved soon. All these unknowns make the situation harder.

      I hate putting this stuff on my children, especially my infant.

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      pamy123 4 years ago

      Hello, so was the crawling sensation a very distinguishable feeling. Was it a very strong feeling or was it light.

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      Samoa6 4 years ago from San Diego

      pamy123,

      the itching was just more intense and persistent rather than periodic. also, our main sensation was crawling, and i began to feel it everywhere, especially at night. it was disgusting.

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      Samoa6 4 years ago from San Diego

      Chunx,

      The crawling pretty much stopped but the pinprick sensations persisted for a while, as did the rashes. I would wait to do the 2nd application for 7-10 following the first because you need to make sure all of the eggs have hatched. If they haven't, the medication won't kill them and you'll have to start the whole process over again. Waiting only 5 days may do the trick, but I can't recall off hand how long the egg cycle is.

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      pamy123 4 years ago

      When your scabies got worse what were the later symptoms of it being worse? I am just hoping its not scabies because I am getting married next weekend and would not want to pass it on to my fiance or anybody else if that little critter is the case :( My itchiness is random and after showers it seems to be relieved.

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      Chunx 4 years ago

      Did the crawling & pun pricks immediately stop after your 1st dose of Permethrin? We are doing our 2nd application this Wed- 5days after the 1st- do you think that's too early for the 2nd application?

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      Samoa6 4 years ago from San Diego

      pamy123 - it was more on and off, not obvious at all that it was scabies, but definitely obvious that something was not right. it only became worse as time went on. i guess the combo of both my husband and i experiencing the onset of symptoms within the same week and not being able to get rid of them even after moving and getting rid of furniture (we thought we had bird or rodent mites possibly in the place we had been renting) left us with really no other conclusion, even though the doctors did not think we were correct. don't allow yourself to be bullied by doctors who are unwilling to at least consider scabies as a possibility, if it should come that.

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      pamy123 4 years ago

      Ok thank you for responding I will wait. Question, did you feel itchy throughout the whole day when you had scabies? How persistent was the itchiness.

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      Samoa6 4 years ago from San Diego

      pamy123,

      it's really hard to say, as what you are describing could be dry skin or an allergic reaction of some sort. basically, i'd say that if it persists for a couple more weeks, seems to be spreading and is accompanied by maybe a crawling or whispy hair sensation on your face or elsewhere, you might consider scabies as a possibility. if it is scabies, it will only get worse. it will not clear up on its own.

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      pamy123 4 years ago

      hi Samoa6, So early last week my forearm started itching while at work, I scratched and just assumed it was dry skin itchiness because of the cold weather. When I got home my shoulders were itching too, days passed and the itchiness was becoming a routine, mostly on my shoulders and arms with no rash or bumps. I barely started seeing like maybe 2 or three tiny little bumps, very tiny some look like tiny little round scabs. I'm very confused and I'm hoping its not scabies. The bumps appeared yesterday when i scratched my arm, this morning they look as if they are going away. Should I wait it out? What should I look out for?

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      Samoa6 4 years ago from San Diego

      Chunx - i know it is tough with the little ones, and don't expect the pinpricks to go away right away. it takes some time, and even after your second treatment don't be surprised or discouraged if a random rash appears now and then. best of luck - keep us posted.

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      Chunx 4 years ago

      We all treated last night & have been cleaning/laundering like crazy.

      Still feeling some pin pricks & crawling, hoping it's working though.

      We are going to do another treatment in 6 days.

      My poor baby, it was very hard to get him covered. He slept tightly swaddled, nursing on one side. I'm covering the other breast tonight.

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      Samoa6 4 years ago from San Diego

      yes, and i did it right before they went to bed to avoid putting fingers in eyes and mouths. they had minor reactions, i.e. rashes, appearing for a week or two afterwards.

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      Chunx 4 years ago

      Did you meticulously apply the cream on your children's face/scalp as well?

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      Chunx 4 years ago

      Thankd for the info. Surprisingly enough, I called the bluff of the dermatologist who said he could prescribe if it made me feel better- and he said he would NOT prescribe for my family because I don't have scabies!

      Road block #1 :(

      I'm not in a rush right now because of my infant & the fact that nobody else has symptoms- but I'm keeping a super cautious eye (driving myself crazy).

      The pediatrician may be able to help.

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      Samoa6 4 years ago from San Diego

      Chunx - I just put a lot in my hand, parted my hair in different places, and massaged it into my scalp the best I could, not worrying to cover my hair, just the skin underneath. I was pretty thorough, mainly out of paranoia that I would miss something.

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      Chunx 4 years ago

      Me, again :)

      CAn you please explain how you applied the cream to your scalp under your long hair? I have long hair as well & am trying to find the most efficient & effective way to apply it. Thanks!

    • profile image

      Chunx 4 years ago

      Can you please tell me how to apply Permethrin on my scalp since I have long hair?

      Should I put my hair up& then apply?

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      Samoa6 4 years ago from San Diego

      Chunx,

      Agreed on airline prices! And as for this other issue, unfortunately scabies do not go away on their own, even if it feels like symptoms are letting up. It will inevitably be temporary. Just pay close attention and try not to expose your little guy to your bare skin (I know that is difficult when breastfeeding)! Good luck solving this, it's really difficult to tell what's going on with these microscopic parasites. Best wishes.

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      Chunx 4 years ago

      I agree, 3 mo is very young for the medication- even though the directions say 2mo+.

      He's the main reason why I haven't medicated our family yet.

      I wonder why my symptoms seem to be getting better. I'm hoping they will disappear all together, but I know that's Just wishful thinking.

      I'll let you know if we decide to medicate. I'm just afraid of the post scabies symptoms that you & so many others have experienced. I don't want my kids to be itchy & uncomfortable- especially the baby.

      I am leaning toward trying it.

      We go back & forth to Samoa, but live in the states. My family is from Upolu, but are spread between Apia & American Samoa.

      I really miss the islands- just wish the airlines wouldn't monopolize the market & charge an arm and a leg to see my family.

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      Samoa6 4 years ago from San Diego

      Chunx,

      No, my son did not have obvious symptoms the entire time, just the two I mentioned (which disappeared rapidly), but he was also very irritable really from the time he was born! I also felt the wispy sensations on my face etc. That was the part that drove me crazy the most. If you have the feeling something isn't quite right, you are probably right to at least try the medication. It is pretty powerful stuff though, and my son was a little over one year old when we did it with him, so I'm not sure I would try it on a 3 month old. Maybe if you and the rest of your family treat yourselves and then see if you notice a difference, you can then just watch him for signs to know if you should go so far as to treat him (and probably yourselves again) too. I covered my kids with permethrin just after they took baths in the evening and just before they fell asleep. With a smaller child, it might help to put mittens on to keep the hands out of his mouth. In the meanwhile, I would make sure you don't hold him against your bare skin because that would be a sure way to spread the mites if you do indeed have them. btw, we lived in Apia and yes, we liked it there very much. Would love to return when our kids get old enough to appreciate the trip. Do you live there?

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      Chunx 4 years ago

      Also, did your son exhibit symptoms the whole year leading up to your diagnosis? Did his symptoms worsen with time? Did he seem irritable?

      My son was irritable from the day he was born, so it's hard to tell! He's fine when he nurses, and is generally happy- but doesn't sleep much. It could be his temperament. I'm just worried it might be the crawling sensation bothering him :( as I mentioned before, no visual signs.

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      Chunx 4 years ago

      I'm Samoan, that's why I asked :)

      We have 4 children, including a 3 mo old nursing infant.

      Nobody is showing symptoms, not even my infant or husband.

      During the 1st week of December my elbows were itching, and I began to have a rash on my forearms.

      I went to my Dr who said it looks like allergies or scabies. I then saw a dermatologist (during the height of my rash) who said it's not scabies. I saw 3 more dermatologists who also said it's not scabies.

      Oh how I want to believe them! However, I sometimes feel things whisping across my skin, including my face. It isn't constant, and doesn't get worse at night- but it's there.

      Sometimes I'll see a bite in places of my skin that are totally covered.

      I seem to be feeling a lot better than last month- no rash anymore (after using coconut oil/tea tree oil to moisturize my skin instead of the steroids), but the crawling feeling and random bug bites makes me feel like I may actually have it.

      My nursing infant still has no signs.

      The last dermatologist said he could prescribe permethrin for my family if it makes me feel better, which, at this point it might.

      I'm really hesitant bc of my baby.

      How old was your son when you treated?

      How did you keep his hands out of his mouth? My son practically chokes himself on his chunky hands!

      I keep checking his feet, hands, scrotum- for any signs. Still, nothing.

      Where in Samoa did you live? Did you like it there?

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      Samoa6 4 years ago from San Diego

      Chunx,

      I'm not Samoan but I lived there for a while some years ago. My baby had tiny red dots on the soles of his feet, one day on one foot and the next day on the other. The skin on his scrotum also became very hard and dry and then peeled off. I had no idea at the time why this was, and neither did the doctor but it must have been a reaction to the mites.

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      Chunx 4 years ago

      Are you Samoan (curious bc of your screen name!)?

      What symptoms did you exhibit in your 4month old?

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      Scared and losing 4 years ago

      Leslie, I actually have woken up and seen a line that looked more like a paper cuts. I have also just be sitting talking to someone and a cut will appear on my hand. I have not been cured (at least I don't think so) I have done perm 5 times. I had to do it another 2 times because I never put the perm my scalp. My 4th treatment the crawls went away and 5th they came back. I'm praying its just the prem. I did read somewhere that scabies since they do feed on blood that when you have sugar they are more active. It's weird that you all say that in front of a PC, the scabies are more active I feel like they are more so at work then at home. Did you any of you get the "pimple" that I guess are scabies are try to pop it? Just wondering I have and I think it was just a pimple but I was wondering what happens when you try to pop a scabie pimple....

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      Samoa6 4 years ago from San Diego

      Leslie,

      Yes, symptoms were worse at night and in front of the computer, just like yours. If you treated adequately, i.e. did not miss your head/face etc., then you might just be reacting to the permethrin. You'll have to wait it out for a few weeks and see if the symptoms begin to let up - they will if the treatment worked. But it is not unusual to continue to experience symptoms after treatment - that does not mean the treatment didn't work.

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      Leslie 4 years ago

      Samoa, one more question- my husband and I did the permethrin twice, 1 week apart and planned to do one more time today for the 3rd and final topical treatment. We are also doing the ivermectin - well I am internally. I dont know to what extent your symptoms were....I have feeling of crawling and pin pricks- worse as the day goes on- almost unbearable at nite- worse in front of the computer/t.v. or a movie screen (like in a movie theatre) ...I guess I am confused as to whether I'm cured or not- because I still have the syptoms. I also have a fuzzy feeling on my body which I feel mostly after I shower, or put on moisturzer or have taken my clothes off- all of the symptoms are still present- even though I have moved, left all clothes and furniture and throw out ALL towels/sheets/clothes daily- buying and using cheap sheets/towels and clothes daily- we also got rental cars . So I know whether bird mites or scabies we cant be re infecting ourselves. I get a 'bite' at least once a day- with a visible tiny red mark- but also thought this could be my skin reacting to something. So question for you and others......for any of you 'cured' ....did ur symptoms persist for a length of time? if so, how long? were those symptoms worse later in the day and especially at nite? My confusion is....i still have pin prick and crawling feelings just like when i had the actual bird mites and/or scabies....so why do i still have these symptoms now!? Thanku so much all and Happy Holidays! Leslie :)

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      dyanne1020 4 years ago

      Thanks Samoa6 I'll update when I find out anything new.

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      Samoa6 4 years ago from San Diego

      dyanne1020 - good luck. if the doctor won't even consider trying such a simple and inexpensive treatment, and instead is willing to load you up with steroids, i would definitely find another doctor.

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      dyanne1020 4 years ago

      Ok, I went to the dermatologist on Tuesday..he did a scraping and examined it. He said it was not a fungus, not a bacteria not viral and not contagious. And "certainly not scabies." He gave me a steroid shot, Kenalog (I was told it may take a few days to start working) and Clobex spray (for the scalp) and Topicort cream (for the body). I also am on Triamcinalone ointment...I believe that all 4 of these are steroids , which I'm not thrilled about.

      I would have to say that my scalp is even more itchy now, and there are even more itchy "spots" than when I went there.

      They are supposed to call me back on Jan 4 to see if there is any improvement...I pray there is, but if not...I'm going to ask for the scabies treatments that you suggested.

      P.S. I haven't noticed the 'scratches' but I have had itchy bumps in a line on my arms. They almost look like a blind pimple with a hole in the middle.....like a bite.

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      Samoa6 4 years ago from San Diego

      Leslie,

      We had bumps, sometimes in a line, along with a crawling feeling, as I described in the article. Although I am happy that the commenter Lisa above seems to have found some relief, I am a bit skeptical of a) whether or not she actually has/had scabies and b) whether or not she is actually cured because scabies are not "attracted" to you on some days and then not on others. You either have them or you don't. She may be finding ways to alleviate the symptoms, but if she is actually getting rid of them (assuming she had them in the first place), they are not going to "become attracted to her again." Interestingly, however, your observation that hormones might have some influence on mites was something that occurred to me, both in having dealt with bird mites and scabies. It is often a woman that notices bites etc. first in the case of bird mites, and this was indeed what happened with me. I was pregnant, in fact, and other women in the work building were not getting bitten as soon or as often. I have not seen anything published on this topic though. I would be interested to see if you find anything. Also, with regard to the lines you are seeing even after treatment, remember your body reacts to the treatments so you might already be cured. I would give it some time before using more treatment.

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      Leslie 4 years ago

      Hello everyone, i'm back...Samoa...did you or anyone in your family wake up with lines that looked like scratches or anyone else out there? And, did any of the women find that hormones ( imbalance, hrt, etc) made symptoms worse? Lisa- thanku for sharing- most people who get cured dont come back and tell people. What type of mite(s) did you have? We had a positive id for bird mites, but my husband also had burrows on his fingers that looked like scabies burrows. We threw out all our clothes, furniture and now have temporarily moved from our big beautiful home into a tiny apartment. I thought I was better yesterday...but last nite proved wrong...more bites...pin pricks worse last nite and even as i write this....so is the crawling...any advice? i have taken a lot of ivermectin and permethrin head to toe twice, 2 weeks apart....Lisa your blog post struck me, because honestly I have been feeling suicidal about this also.....any help would be appreciated, thanku.

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      Lisa 4 years ago

      I cured myself from the inside out. I have suffered from mites on my skin for 6 months, I tried everything and spent a fortune to get rid of them. I successfully got rid of them by moving and using many different skin remedies and then I got reinfected with them when I went to my storage bin to pick up a few things. It has been a nightmare and for some reason, they only seemed attracted to me. I figured that I would try to get rid of them from the inside out. I did cure myself finally and I just wanted to share what has worked for me. I figured out that it was the yeast and fungus on my skin that attracted them to me. I have always been a clean person but my diet has always been lots of fruit and sugar and carbs. I went on a yeast free, gluten free, sugar free, fruit free diet. I wanted to test my theory for a week and it worked. I used a soap on my skin that balances skin PH ( I think it's called "Candida free" soap). I am cured 100%. I eliminated fruits, sugars, yeast, & gluten completed from my diet and the mites are 100% gone. I am also taking garlic supplements and MSM supplements and some probiotics. (I also prayed to God a lot) All of this has worked for me 100%. They are no longer attracted to me. I notice that if I start to eat even a mango, they become attracted to me again. I am still in the early phases of them being gone but I would imagine that eventually I can go back to eating some of the stuff that I use to eat in moderation. Good luck to everyone, I hope this info that I am sharing helps others and saves people money. I was close to suicide from dealing with these things on me and not being able to get rid of them. Thank God I can live my life again without this pre-occupation.

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      Samoa6 4 years ago from San Diego

      dyanne 1020,

      I didn't have scabs, mainly just the crawling feeling and then tiny little pinprick bites on my arms that you really couldn't even see. just be sure that when you are with the doctor that you don't come across as irrational or pushy. simply state that you would like to rule out the possibility it might be scabies by using such a simple and inexpensive treatment. you might mention that you have a friend who had similar symptoms a while back, for whom the treatment worked. i would not start talking about reading things on the internet - the doctor is likely to dismiss you promptly! oh, and as for you having a different reaction on your head than on your arms, that doesn't seem so unusual - different areas of skin have different sensitivities.

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      dyanne1020 4 years ago

      Samoa6,

      Yes, I am in the US. It helps to know that you aren't alone in this. I'm pretty much dreading this visit with the dermatologist....I have a feeling he's going to tell me the usual. They also seem to resent if you ask for a script...like you are diagnosing yourself. It's just that I have tried so many things already, we can eliminate a lot. Did you also have the scabs that wouldn't go away? It seems odd that it's only on my head. The bites on the arms go away. I've read so much that I can't remember what I've read where.

      Thanks so much for all of your help and info.

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      Samoa6 4 years ago from San Diego

      dyanne 1020,

      i think it depends on what country you are in. in the united states, yes. the most common med used for scabies is permethrin, which is a cream you rub into your skin. you could also ask for/try stromectol, which is taken orally.

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      dyanne1020 4 years ago

      So, I have to have a prescription for this medicine?

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      Samoa6 4 years ago from San Diego

      dyanne 1020,

      your symptoms, i.e. the crawling and tickling hair etc., all sound exactly like the symptoms we had when we had scabies. you can always just try the treatment and see if it gives you any relief. just remember that the itching and rashes don't subside immediately. in fact, they may get worse before getting better, but that doesn't mean the medication is not working.

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      dyanne1020 4 years ago

      Well I suppose I will officially be declared insane on Tue when I have my first appointment with a dermatologist.

      I have had an itch for about a year now. It started out on the left side of my face, near the top of my ear, right in front of the hairline. Then it spread to exactly the same spot on the right side of my face. I spent hundreds of hours trying to read on my own and find out what this was. Finally after 4 months, I went to see my Dr. At first she thought it was ringworm, but it didn't respond to any of the standard treatments. (I used everything from vinegar to straight Clorox before I went to see her.)

      One very humid day this summer, my temples started itching like crazy and I could feel little "pimple-like" bumps on both sides. It almost felt like I was allergic to my own sweat. Next I got a pea sized bump above my ear on both sides, which spread to the back of my head behind my ears (all of this is now on the scalp) I have about 5 scabs (that never heal) in exactly the same spot on both sides of my head.

      My Dr gave me Doxycycline and it cleared up the sides of my face somewhat, but did nothing to the ones on my scalp. I had to stop taking it because it gave me esophoghitis so bad, that I couldn't swallow. I can feel it starting to come back on my face since I stopped talking it. The Dr feels that it may be 2 different things going on.

      They have been on my scalp for about 4 months now, and they itch all day and night. Also, it's worse when I'm on the pc, as I saw someone else posted here.....weird!! Next the crawling sensation started on my scalp......then the itchy nose started and then the itchy eyes. I also feel random "bites" all over periodically....but when I look down, nothing is there. I've also awakened with itchy "bites" on my arms...at different times, and they seem to form a straight line. Now the "tickling hair" sensation has started....I'm constantly swatting off hairs that aren't there.

      I was up at 3 am with tape and a flashlight looking for bedbugs, or bugs of any kind. I've microwaved my pillows thinking it may be dust mites. The only thing that offers any relief is pure salt, iodine or menthol on the sores. And this is only temporary.

      Do you think this could possibly be scabies?

      If you aren't crazy when this all starts...you will be....wish me luck!

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      Samoa6 4 years ago from San Diego

      Maria via email -

      Starting from scratch (lol), make sure to do the perm. treatment twice with one week in between. The first treatment will not kill any eggs that might be on you, so you have to do the second treatment to kill them after they hatch but before they lay their own eggs. Cover yourself adequately both times, including your scalp. I didn't worry about my hair (the mites have no reason to hang out on your hair, they like your skin) but be sure to massage the perm. into your scalp thoroughly. I actually went against the instructions on the med. label and put it all over my face including at the bases of my eyelashes and just inside my nose because this is where I felt crawling. I was just very careful not to get it in my eyes. It's up to you how far you want to take it . . . and only do the outside of genitals, not inside. I did it overnight, so when I woke up, I first put all of my bedding and clothes etc. in the wash, then showered the perm. off. I also vacuumed my carpets and furniture before I showered. I did not do anything more until the next treatment, at which point I did that entire process again. btw, i also vacuumed out my car, and i would advise vacuuming any chairs etc. you sit in regularly at work. do this once with each treatment maybe just as you are leaving the space before going home to treat. After the second treatment the mites should be killed, but you will continue to have rashes and some itching, possibly even crawling sensations (some people report) for a while. I am not sure, but I think this may be due to the perm. treatment itself, causing its own rashes etc. Do not be tempted to retreat over and over or to spot treat because I think this just made our problem worse. You have to wait out this reaction to the perm., sometimes it takes a couple months with rashes occurring on and off. Check out both articales, "how do you know if your scabies treatment worked," and "atypical scabies symptoms." Feel free to write with anymore questions and I will try to answer. Just be thorough with your treatment, and only do it twice. Perm. is toxic.

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      Samoa6 4 years ago from San Diego

      adrienne (via email),

      how did we get the picture - we got lucky to have taped a mite that happened to be crawling on my face. my husband identified it with a high powered microscope he uses at work - i wouldn't think most people would have access to one unless you work in a lab. he said it took several hours before finding something that looked remotely similar to a mite - the picture you see in the article - but when we sent that picture to an acarologist he identified it as scabies.

      how did we treat - we used permethrin two times, one week apart. it worked well but seemed to cause its own set of rashes etc. making us question whether it actually worked for a while. the rashes eventually subsided and we were cured. the label says not to get it in your eyes or nose, and the doctor said not to put it above the neck. since above the neck was precisely where we found the mite specimen (at least on me), i did not feel comfortable following those instructions. i covered my entire body including the bases of my eyelashes and just inside my nose and ears. i did this on my kids to, making sure to do it just after a bath and just before bed so they were less likely to rub the cream with their hands and then put it in their eyes. this worked well for us, but one commenter a while back said this caused a great deal of muscle twitching in her face for a long time after treatment (months) so i am not sure i feel comfortable telling you or anyone else to do that. all i can say is that we did it and it worked. but don't overdo the treatment, just two times with one week in between, and try not to "spot treat" out of fear of having missed something bc i am pretty sure this just makes matters worse. i.e., the permethrin seems to cause its own rashes etc.

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      Samoa6 4 years ago from San Diego

      Ut - you have to do the treatment twice, with one week in between. this is to kill off any eggs that might have hatched (but not yet had time to lay more eggs) just after your first treatment because the treatment does not kill eggs. After the first treatment we still felt itchy, although i believed the crawling let up a bit, but not entirely. After the second treatment, i did not feel crawling any more, but we all had random rashes that kept popping up in random places for about 3 months. they were really bad, to the point i thought the treatment had not worked, for about 2 weeks following the second treatment. then they became less and less. others are reporting they continue to feel the crawling for a while but then it subsides. best wishes - let me know if you have any more questions and i will do my best to answer.

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      Ut 4 years ago

      I did the treatment and after 3 days started feeling like crawling over me again. I have now shaved every hair off my body and treated myself again. Did your treatment work the first time?

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      Samoa6 4 years ago from San Diego

      Hi Ut,

      The doctors treated us in a similar fashion, which is why I recommend trying the treatment anyway. Just remember it has it's own set of side effects, i.e. the itching and rashes do not go away immediately. Also, be sure to cover yourself thoroughly.

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      Ut 4 years ago

      I went to the derm today and just as I read he dismissed the scabies be couse I said I could feel them on me. He told me I was crazy like a guy who cuts his finger off and still thinks It is there. I got the cream anyway becouse I insisted for it. He said I would be back be couse I don't have scabies it is all in my head and he will give anti sike drugs that will help me.

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      Samoa6 4 years ago from San Diego

      Katrina,

      I think your plan sounds like a good one, but do be very careful with the permethrin. It is toxic and causes it's own set of problems. Just be sure to cover yourself thoroughly for the two treatments, and resist the temptation to continue to "spot treat" out of fear you might have missed something. This will only make matters worse. After the second treatment, remember you'll have to wait it out. We still felt some degree of itching etc., and some new rashes continued to pop up even though we had already killed the mites. We believe these new rashes, some of which were worse than the scabies themselves, were a reaction to the permethrin. It will all clear up eventually, just be sure not to overdose on the permethrin.

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      Katrina 4 years ago

      I agree - we were desperate and as a result jumping to the conclusion that these beasties might be permethrin resistent. Sadly, the second Infectious Disease Specialist was no better than the first (okay, worse even). Dismissed the possibility that they can be above your neck (I went with your article in hand!), dismissed the possibility that permethrin had to be applied everywhere (scalp, face, etc.), and because it hadn't worked for us, he wouldn't prescribe it again. (Gave me a prescription for hydrocortisone for the itching and sent me on my way.) Having felt the little buggers on my eyelids and in my nose after our third permethrin treatment, I'm confident I'm not just dealing with a permethrin rash (yet!). The clove oil/grapeseed oil mixture has taken its toll on my skin (face mostly; very, very drying) - not helped by the fact that prior to this mixture, I had used hydrogen peroxide, bleach, and sulfur (all diluted and separately - but resulting in "How to give yourself a chemical peel in the privacy of your own home!" Desperation knows no limits!) Headache or no headache, my husband and I will both be doing Ivermectin as well as the 2 full permethrin treatments 7 days apart. Thank you again for you insights, your willingness to share, and your continued support! (And to my Mom for finding your article in the first place. She now believes that every dermatologist and infectious disease specialist in the country should have a copy -- and I agree!)

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      Samoa6 4 years ago from San Diego

      Hi Sharla,

      Unfortunately, the intense itching that comes even after treatment seems to be quite common. You might be able to talk to your doctor for an anti-histamine that helps with the itching so you don't have to continue the oatmeal etc. treatment. Just don't be surprised if these itchy spots continue to arise randomly for a couple of months. That is what happened to us, but it all eventually went away. It is really too bad your husband wouldn't treat himself at the same time, since he could have scabies and just not know it for several weeks, reinfecting you in the mean time. Well, at least you'll know where you got it if you do indeed get re-infested. Good luck, and keep us posted with your progress.

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      Sharla Voy 4 years ago

      So, on the evening of Thanksgiving I'm standing naked in my living room applying the second tube of Permethrin. Meanwhile, my hubby is up stairs, in bed suffering from a turkey 'n stuff'n coma. By the way, he has virtually no symptoms of a Scabies infection. There isn't a mark on his whole body and I look like, well, like I have leprosy. Despite the protocol "Treat the whole family" He prefers to wait and see and this makes me really nervous. Why is it that some men have such a need to test.......?

      I'm not sure if the Rx works that quickly, but each time I applied the cream I had immediate relief from all of the agonizing itching. But the thing I was never prepared for was the day after my 2nd application. When I came home from work the next day my legs started itching. Except now it was worse. Not only the the most insane itching I have EVER experienced in my ENTIRE life, but burning too. I was out of my mind with scratching, digging, rubbing and clawing my legs. I grabbed a pair of nylon stockings, put a cup of oatmeal in each foot and tied them.

      Next, I filled the tub with tepid water and climbed in with the oatmeal socks. This helped, the water becomes milky and super slippery, soaking for about 15 min. When I got out I had to fight the urge to rinse off the slimy coating of oatmeal. DO NOT RINSE OFF! Let it air dry on my skin and went to bed. When I woke up the next day my skin felt much better.

      I'm hoping all of these NASTY mites are done having a picnic under my skin. In an attempt to be polite, I will just say that this whole experience has been quite unpleasant, to say the least.

      I will let you know how things go, so happy to have found your page.

      Sharla

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      Sharla Voy 4 years ago

      Samoa6

      Thank You, for being a beacon of light, showing the way to hope.

      I suck at typing so I'm going to give you a condensed version of events as they unfolded in chronological order.

      Itchy skin started beginning the 2nd week of September 2012. I gave it no thought as cooler weather started to encroach Michigan and this is the normal precursor to dry skin. So obviously, I start moisturizing and had only slight relief. Blah,blah blah... for weeks I clawed at my skin (especially at night) until finally I saw my PCP (Primary Care Provider) and right away he thought it was Scabies. His 1st ?, Have you been out of the country? "Well I came home from Aruba on Sunday, August 5th .... and ahh umm started itching beginning ........" So, I received my 1st Rx of Permethrin5% Thursday Nov 15th in addition to a Prednisolone 6 Day Dose Pak (4mg). Ahhh, instant relief, until 5 days later, it seemed like the itching was WORSE, as if that were possible. But, I hung in there, because I knew that in 2 days I could apply the next tube "Rx refill".

      Story to be continued...

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      Samoa6 4 years ago from San Diego

      Leslie - he can't remember if he used 20 or 40X, multiplied by 10X eyepiece objective for that picture. we treated the whole family at the same time, covering everyone just before bed and washing it off in the morning. so i guess it was on from approximately 8 pm to 8 am. he said he spent a lot of time looking at the tape before finding anything. it's not necessarily a given that you will get anything on the tape since the mites spend most of their time under your skin.

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      Leslie 4 years ago

      Hi Again Samoa- 2 questions: a) what power was your husband's microscope? Ours is 40x. And b) did you treat whole family w/ permethrin same time? how long did u leave it on for? Oops- that was 3 questions! Thanku!

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      Samoa6 4 years ago from San Diego

      Katrina - thanks so much for sharing your story, and your link. I actually saw that article a while back. However before I would jump to any conclusions about the mites being permethrin resistant, I would make sure I covered myself adequately with the permethrin, and even backed it up with ivermectin. My bet is that this combo, if not the permethrin alone, will do the trick. Remember the permethrin causes it's own set of problems, rashes etc. that look exactly like the scabies rashes in some cases. Even worse. You just have to wait them out. But if you are getting headaches from permethrin, I would be very hesitant to try it again. That is never a good sign. It is very unfortunate that whichever specialist you initially went to knows so little about this organism. The good news is that you seem to have identified the problem, which is the hardest part in many cases since so few docs are familiar with the various manifestations of scabies. Now it's only a matter of time before one of your treatments works. If the clove oil works, please post again to let everyone know. If not, I suppose you could always resort to the permethrin again under the close supervision of a doctor. Best wishes, let us know how it goes.

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      Katrina 4 years ago

      As promised, the link to the journal article: http://www.plosone.org/article/info%3Adoi%2F10.137...

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      Katrina 4 years ago

      Bless you for being for continuing to be the calm voice of reason (and proof!) for those of us still living the nightmare even though yours has ended! You have given me reason to hope again! I, too, could feel them on my eyelashes, in my nose, and on my scalp. I've had a 2-month unwelcome crash course in everything I never wanted to know about mites, learned that my house really can be immaculate every single day - in spite of 5 large dogs (and a roofer for a husband), and was rudely awakened to the fact that running your electric dryer from the time you wake up until you fall into bed will more than double your electric bill in no time. My husband and I both did 3 permethrin treatments and my BFF (with whom I share EVERYTHING) has done two. None of us did the treatments 7 days apart and none of us did all of our face or scalp. The doctors' instructions were "once and done" and the instructions on the permethrin cream said to do from the neck down. (I struggled with the concept that there was some magic line at your neck the scabies would not cross - do not pass Go, do not collect $200?! Thought perhaps it might even be the "altitude".) I was convinced we were dealing with permethrin-resistent scabies and went in search of "the cure." Found that there was a virulent outbreak of permethrin-resistent scabies in Australia (when I find the link to the journal article again, I will return and post it here) sufficient to warrant a study into alternative treatments. Clove oil was the winner, killing the little buggers in 15 minutes or less. CAUTION - clove oil must be significantly diluted. Pure clove oil applied to your skin will burn it!! Human guinea pig that I've become, I'm on day 3 of my clove oil mixture treatment. (I mixed 1 oz. of clove oil with 15 oz. of grape seed oil; I've read that other "carrier oils" - like coconut, jojoba, mineral, and olive oil to name a few - can be used. Always do a "patch test" first.) Tonight, having read your article, I also applied it for the first time to my scalp (pretty much had everything else already covered). My husband and I have been slathering ourselves twice a day and we're actually feeling "clean" for a change (and not like walking contaminants); we're optimistic. Out of desperation, I made an appointment with an Infectious Disease Specialist earlier in the week and will go early next week - if for no other reason than to obtain the permethrin and ivermectin prescriptions. (I've already had one Infectious Disease Specialist tell me that if they're on my face and scalp I have something other than scabies.) The permethrin treatments did give me a headache (not a migraine but a darn good headache). After reading this as well as your other article (How do you know...), I'm very concerned about trying the permethrin again. I plan to complete a full two weeks of slathering with the clove and grape seed oil twice a day and will let you know how I make out. Given the reactions to permethrin, it would be nice to have (at least one!) natural alternative. Thank you!! Thank you!! and stay tuned...

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      Samoa6 4 years ago from San Diego

      mikecx - can't hurt to give it a try - good luck, and if it doesn't work, you can always try the permethrin. just go to another dermatologist if you need to. not sure where you are but in the u.s. even the public health clinics have easy access to it and it's not that expensive.

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      mikecx 4 years ago

      Thanks for your reply, I guess we will trust the doctor's judgement and cross our fingers. However I will insist in two doses separated of 10 days as some studies claim only 70% effectiveness on single dose applications of ivermectrin and 95% for two doses. Wish us luck :-)

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      Samoa6 4 years ago from San Diego

      mikecx,

      I think permethrin has been around longer, is cheaper, and does not carry with it any potential for harming the liver. If you and your wife are healthy (liverwise) then it should work for you according to everything I've read. It is also unlikely to have the associated side effects that the permethrin seems to cause (more rashes and itching etc. sometimes more severe (temporarily) than the scabies issue itself). my husband actually coupled the ivermectin with permethrin to make sure everything was killed. ivermectin is used on other parasites effectively as well so he felt it would be a sure bet in case he missed something with the permethrin.

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      mikecx 4 years ago

      Hey,

      I am back with some developments. After my wife went through a battery of blood/other analysis to find the reason of her itching and recent urticaria and found nothing, her dermatologist admits it is strange we are both having similar symptoms for so long now. So finally he proposed her to treat us both for scabies. He is proposing ivermectrin instead of the permethrin lotion. I saw on the web that ivermectrin in two does is as practically as effective as permethrin so I was wondering why the preferred treatment is permethrin ? any insights?

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      Samoa6 4 years ago from San Diego

      Leslie,

      Yes, the crawling/pricking was definitely worse at night, and most people even with scabies manifesting in the more typical fashion report this as well. And yes, that was the same picture we sent off to an acarologist for identification. It is really tough to get a good picture of scabies, first because they spend most of their time under your skin - they only come to the surface to breed before burrowing again - so you wouldn't be able to get them with tape so easily (we were lucky), and second because when you tape them or scratch or whatever you are likely to smash them or break the legs off etc.

      Concerning permethrin, make sure you read the associated article so you know what to expect afterwards (you most likely will not feel cured right away, and many people keep using the permethrin out of fear they have missed something, but simply end up making the skin's reaction worse/more uncomfortable).

      Concerning bird mites, again, they are definitely visible to the naked eye, so if you have looked carefully but cannot see anything, it probably isn't bird mites. Permethrin may kill bird mites but if you still have a vacant nest around with literally hundreds of thousands of mites in it, they will simply continue to pour into your house through whichever entry they are using and bite you. They would not be living in your skin though, they just bite and then retreat, so treating yourself with permethrin will not solve the problem if it is still bird mites.

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      leslie 4 years ago

      Good to know- when I mention that aspect of this to anyone I definitely get that 'she's crazy' look in their eyes! I took Ivermectin oral today and will do the Permethrin cream tonite. I tried Permethrin a long time ago- but didn't do head to toe and at the time; we had bird mites- Permethrin doesn't work for bird mites apparently. Was your crawling/pricking unbearable? It is for me at nite- I have to take meds to sleep and to reduce the pain. Also, is the pic on ur site the pic u sent to the mite specialist? we found something that looks more like a bird mite- but we don't have bites- and my crawling feels like it is both under and on top of the skin.....

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      Samoa6 4 years ago from San Diego

      Leslie,

      Sorry - i meant to answer that last time around. YES! Definitely, for both myself and my husband we felt more crawling when in front of the computer, and also when driving in the car after it had been sitting in the sun, i.e., when it was warm. (Computer also gives off heat). Not sure why this is, but I am guessing that the mites are simply more active under warmer conditions - this has actually been reported for other mite species, although I have not seen anyone say it with regard to scabies.

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      Leslie 4 years ago

      Thank u- did you or anyone that has written u experience more crawling, and more intensity of crawling when in front of the television or a computer??

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      Samoa6 4 years ago from San Diego

      Hi Leslie,

      So strange, we too had worked in a building with bird mites about one year before we had scabies. We left that job, were completely free of problems for a whole year, and then got scabies but assumed it was bird mites at first because of our previous experience. I can tell you this. Bird and rodent mites do not burrow in your skin, and are indeed visible to the naked eye. Look around where your infestation was and see if you have gotten rid of them. Sometimes there are multiple nests that are infested and acting as sources of mites for months and months. You may not have eradicated them entirely. These mites can live up to one year according to many sources I have come across. Check all entry points into your house, around doors, window sills, electrical outlets (sometimes nest can be within the walls, particularly if it is rat rather than bird mites). If you do not see anything, but you feel crawling etc. then my guess would be that it is scabies. Many doctors do not believe scabies infest your face, but I am living proof that they do, as I explained in the article. The medication (permethrin) cautions against using it around your eyes and nose, but it does in fact say to treat your head/scalp. We nevertheless treated our whole faces, making sure to cover anything just inside our noses as well as at the base of our eyelids. If you do this, be very careful not to get it in your eyes. I feared that if we did not cover these areas, we would not solve the problem. So, if you cover everything as I have described adequately, and do it two times with one week in between (not three nights in a row bc some of the eggs may still not be hatched so it won't kill them), then my bet would be that you will get rid of them. But remember that permethrin has it's own effects that are very similar to those caused by scabies, so a lot of people think they are not cured when they actually are, but are just reacting to the medication. Follow the link above to the related article, "How To Know If Your Scabies Treatment Worked . . ." so that you will know what to expect following the permethrin treatment. You may actually already be experiencing just that because it can go on for months, as we learned. But it eventually lets up.

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      Leslie 4 years ago

      Hi Samoa- hope you can help. Long story short- we came back from mexico in june- our kids were itchy ( they had been home w/ my mom that week). we had bites- then bird mites- had home heat treated and kept getting the crawling/pin prick feeling- but for the past month- no bites. ( home heat treated in august). We originally thought we had scabies and did permethrin 3 nites in a row- and nothing happened. that was b4 we knew we had bird mites. now i know the bird mites are gone- but i have the crawling/pin prick feeling. I have no marks/burrows and no itching. I had my skin scraped and my husband also has a microscope- we found something- which looked like a bird mite -but mites all are very similar in structure so it could also be scabies as scabies are also mites. I also took ivermectin for weeks internally w/ permethrin diluted only on parts of my body. Also- did you feel more activity when you sat in front of a computer or television? I do. As I am now. Up my nose, above my lip, on my head and on my feet especially. HELP! Thanku! :)

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      mikecx 4 years ago

      Ok, thx again for your reply. I will post here once I have any developments as it might be useful for other people. Regards,

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      Samoa6 4 years ago from San Diego

      mikecx,

      of course we came into contact with a lot of other people, friends and family, but no one ended up getting it from us. we only treated ourselves (entire household, including young baby). until you figure out for certain what you have, i would minimize skin-to-skin contact, particularly with sexual partners or holding young children, as these are two of the most likely ways to spread it. you might also consider wearing long sleeves, pants and socks just in case anything that happens to be on top of your skin to breed before burrowing doesn't fall off onto furniture, a less likely means of transmission but nevertheless of concern.

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      mikecx 4 years ago

      Hi, thx so much for your answer, just one last thing: what about contagion of other people, even outside your family, knowing you have lived a long time with the problem without knowing you had it. You must have had contact, even if just handshaking, touching shared objects, etc, with other people. Did other people around you had to do the treatment? did you transmite it to anyone else that you know of? thanks,

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      Samoa6 4 years ago from San Diego

      mikecx,

      we first thought it was bed bugs or bird mites etc. etc. and had the house checked for infestation and sprayed many times to no avail. we finally began to think it had to be scabies because we were still feeling it after moving twice (luckily, we were only short term renting an apartment at that point) and getting rid of thousands of dollars of furniture, thinking it might have been infested with something. also, the fact that my husband and i BOTH began experiencing the crawling sensations within a week of one another suggested it was not simply allergies or a random reaction to something that one person, but unlikely two, might have. we, too, had A LOT of trouble talking to doctors etc. because they kept telling us it did not look or sound like scabies. so i finally began taping my skin whenever i felt the crawling, particularly at night. my husband is a scientist and works with high powered microscopes on a regular basis, so he started taking samples into the lab until he found something. i guess we got lucky that we caught one above the skin. he took a picture of it under the scope and then we emailed it to an acarologist (studies mites) at a university, and he identified our sample as a scabies mite. you may want to ask a dermatologist to just prescribe the relatively cheap permethrin cream so you can at least give it a try. but just remember that people often react to the cream for several weeks/months after treatment (although the reaction, in our case, was not as persistent or annoying as the scabies themselves). You may want to follow the link above that leads to the associated article, "How Do You Know If Your Scabies Treatment Worked: Post Scabies Syndrome" just so you know what to expect if you do indeed try out the medication. good luck, and feel free to write with any more questions. i will do my best to answer.

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      mikecx 4 years ago

      Hi Samoa6,

      I am back after posting here two months ago. In the meanwhile I have consulted a bunch of dermatologists who have diagnosed me and my wife with urticaria (which we have indeed) but failed to detect any signals of scabies. We are now taking anti histamic but the crawling/slightly itching sensation still remains even if slighlty milder and from times to times we still get a "bite" like red dot. Last week we got a set of "bites" in the hand/fingers and they itch a bit. I sent a picture to the doctor and he still thinks it does not look like scabies. What puts them off is the fact that I also have these crawling/itching feelings in the face and scalp and they claim it does not happen with scabies. I am running out of options here and started thinking again if it could be bedbugs... or maybe I am delusional. Well, I did have a question for you: seen that you had atypical symptoms how come you thought of scabies and actively searched for the mites by taping? I mean no symptoms, no findings, why did you insist on the scabies possibility? I am asking because doctors start to think I am crazy in insisting it might be scabies if the symptoms just don't fit the average. Then the other question is if you used tape or you did real skin scrappings to analyse on the scope? being that the mites are under the skin, the tape is not the best mean to get them if it is indeed scabies.

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      Samoa6 4 years ago from San Diego

      yankees win - if you are covering yourself adequately with the permethrin, chances are the mites are dead and your skin is just reacting, although this is impossible for me to tell. make sure you are completely covered (overnight is best/easiest) twice, one week apart, and that you wash all of your washable belongings just after waking up, before taking the cream off. you may want to talk to a doc about using an oral med as a backup for peace of mind. in the meanwhile, my guess is that you are overdoing it with the permethrin, and this is why your burrows continue to emerge. i know this is hard to believe, but just try it. after your final treatment (be thorough), just stop and see what happens for a few weeks. my bet is your symptoms will let up and eventually disappear.

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      yankees win 4 years ago

      Hello! First of all..thank you for your time! I've read...re-read and then have to take a break b/c I feel like I'm creating symptoms...but that's just wishful thinking! In a nutshell, I've been using the P cream for about 7 weeks b/c every week when I mark that I will need only 1 more week, at day 6 I have a "new" discovery to need to re-apply for the next week. For instance...day 6 last week I discovered a burrow which I assume if burrows are continuing, that means the female mite was not killed off?? I have not found a lot on this?? My burrows are very subtle, more like a tiny scratch, almost undetected, so different than I expected. So, I was looking forward to putting round 2 cream on tonight to complete last weeks burrow when I found a new burrow today, which I can remember "happening" a few days ago, I recall the extreme itching (and was hoping it was the cream re-action) and now a few days later, I actually see the "track" marks show up. I'm SOOO overwhelmed. I have bumps, in a few spots, but i mostly have these pin prick sensations/marks that really epitomize my symptoms. I know these are not unheard of, but I'm feeling like I'm losing it. I guess the bottom line; fresh burrows I'm assuming mean- P cream has not worked? Have been dealing with this for 2 mos. which in "scabie" life feels like 200 months!! Grrr!

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      Samoa6 4 years ago from San Diego

      paranoid - thanks for your comment. i'm glad you figured out what it was, now it's just a waiting game for the itching etc. to go away. best wishes that this happens quickly.

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      paranoid 4 years ago

      I itched for 2 months w no type of rash and then when my 3 year old started itching too I got bites and he did also. I went to our family doctor and was referred to an allergist. I demanded a dermatologist too, so they gave me that referral. I am still waiting weeks later for a call from either referral, but a few days ago had my sons 3 year check up. The second the pediatrician saw the rashes on us both he prescribed the cream. We live with my parents so we all applied it even though they were not itching to be safe. My son got it on the face and hair no one else did though because I was not itching there. Washed every piece of clothing and bedding and towels in scorching water. I even set off raid fumigator bombs for cockroaches and lice in my house and car. It was horrible itching for three months and seeing my baby miserable kills me. I am feeling paranoid about getting reinfected, we are both still itching but I realize it could just be the meds. I just read this entire post and want to say thank you for some peace of mind. Its not the end of the world and I'm not alone. That in itself is an amazing feeling.

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      Samoa6 4 years ago from San Diego

      Sara,

      I agree, that is very interesting. I don't think a lot of doctors here in the US have much experience with scabies, other than what they've read in a textbook, which makes it difficult for them to identify cases that don't fit the description to a T. Doctors in developing countries definitely have the opportunity to learn about a lot of diseases/disorders that are not so prevalent and therefore not so easy to diagnose in the US. Thanks for your insightful comment.

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      Sara 4 years ago

      Years ago when my sister was a few months (now 17rs old) she had itching all over and being so small could not explain how she felt. Next thing you know, my parents and me and my aunt and cousin all had scabies. They went to three different doctors here in the US where we live and neither could identify what it was. It wasn't until they went to Tijuana, Mexico that a doctor was able to diagnose the scabies, interesting.

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      Samoa6 4 years ago from San Diego

      hem,

      - many people report itching to be worse at night. i don't know if perhaps something about a change in body temperature is causing the mites to become more active, or if people just notice them more once they are laying down or less active, with less noise and daily distractions. your guess is as good as mine on this one.

      - no one in our family had any marks on our bodies either, which is what caused our dermatologist(s) to rule out scabies as well, and which is one of the major reasons i wrote this series of articles. not everyone has the "typical" symptoms. in fact, if you read even half of the comments at the end of these articles, there are quite a few folks in our (and perhaps your) same boat.

      - other family members may not have picked it up, although sharing bedding and any sort of physical contact, even just holding younger kids for instance, would presumably increase their chances of getting the mites. it is always possible they (or at least some of them) might have scabies and not be aware of it due to the lack of typical symptoms. in any case, if you decide to treat yourself, make sure you treat everyone in your household, twice.

      - you would not be able to see the mites by scratching - they are microscopic. what you are probably getting when you scratch is just small flakes of skin. we had to use a high powered microscope (my husband uses one regularly at work) to find and subsequently identify the mites as scabies. we sent a picture taken under the microscope to an acarologist at a university to confirm.

      - good luck, and please check back in with us once the problem is resolved to let others know of your experience, in case it helps.

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      hem 4 years ago

      Thanks for replying.

      I did read the other article as well. Some questions though:

      - I do not feel any itching in the day but right now (night) i can feel the prickling sensation on my feet and crawling on my face and nose.Damn.Why do they become hyper at only night?

      - I do not have any major marks on my body which is why my dermatologist, who has 25 years of experience, ruled out scabies.

      - My family, who i share bedding and everything else with does not seem to have any issue even though its been one year.

      - Some say its just in my head.

      - What colour are these things because once in a while while scratching i get a tiny pin sized off white dot in my hand.I can't make anything out of it. Could that be the mite?

      I've many more question but i don't wanna take up too much of your time.

      You are doing a brilliant job and i sincerely thank you!

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      Samoa6 4 years ago from San Diego

      Hi hem - your symptoms sound identical to what ours were, and doctors also told us we did not have scabies. But we did. So you might want to go ahead and try the treatment just to see if it works. Just make sure you are thorough and that you clean all bedding etc. treating (two times). Also, you should probably read the related article so you know what to expect after the treatment - a lot of people react to the cream and then begin to think it has not worked when it actually has. https://healdove.com/disease-illness/How-Do-You-Kn...

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      hem 4 years ago

      Hi Samoa6 and everyone else,

      I've been suffering this tragedy for the last year.

      Every time i go to sleep, within 15 minutes i can feel a prickling sensation that begins at my feet and slowly moves upwards till the waist.Its like a minor pin/pencil being poked at you but enough to ensure you can't sleep.There are no marks or cuts in my body.

      After this, i can feel something crawling on my face though i haven't seen anything while switching on the light.Its like an ant walking on your face or a feather being caressed across it.This is very irritating and i can't seem to sleep at all.

      After believing it to be bed bugs for months, i finally went to a dermatologist but she is absolutely certain that it is not scabies because i do not have any marks/rashes on my body. Could she be wrong?

      Currently she has given me a tablet 'Allegra180' but it doesn't seem to work.

      Should i just go ahead and get the cream treatment by myself?

      Please advise? Are my symptoms similar to the ones you encountered?

      Thank You!

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      Samoa6 4 years ago from San Diego

      Hazel M - sorry for the delayed reply, i only just saw your post this morning. it's impossible for me to tell if you have scabies or not, but what i can say is that the sensations you are feeling after treatment seem to be quite typical of the treatment, and do not necessarily mean the treatment did not work. you unfortunately just have to wait it out until you stop feeling anything. and yes, you can get scabies from a simple hand shake - it can be spread that easily. it's just more likely to spread with prolonged contact.

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      Samoa6 4 years ago from San Diego

      distressed - i have very long, thick hair so i just made sure to get underneath it and massage the cream into my scalp as much as i could. i probably used more than i needed to because i was paranoid about missing anything. i even did my entire face, including eyelids and bases of eyelashes (before going to bed) as well as just inside ears and nose, even though the instructions on the label say not to do all of this. i was just very careful, and it worked. just make sure you do the second treatment in a week so you are certain to kill any eggs that may have survived today's treatment. also wash all of your bedding and vacuum your rugs and furniture and even car seats to be on the safe side. also, remember that just because the treatment is over does not mean you will not continue to get itch rashes or feel pinching pin prick sensations for a while. this does not mean the cream didn't work, it just takes a month or sometimes a few for everything to clear up entirely. if you overdo it with the permethrin bc you think it didn't work, then you'll most likely be making the rashes etc. worse even though you've already killed the mites.

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      distressed 4 years ago

      Samoa - at some point I will share my long journey of frustration in an attempt to get a proper diagnosis - right now I am wondering how well the permethrin cream worked on your scalp? I have long hair and am just not sure I got enough on my scalp. My boyfriend and I started treatment with the cream today. Any thoughts/help is appreciated!

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      Samoa6 4 years ago from San Diego

      CAM2 - good luck during the waiting period. The stingining/pinching often persists and makes it hard to believe the mites are gone, I know. But so long as you covered yourself adequately, two times with one week in between, you are most likely fine. You may have immune issues though that have been exacerbated by the treatment process, so it is good the doctors are checking into this.

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      cam2 4 years ago

      Hi Samoa6,

      Thank you for responding. I have been having a really difficult time with this whole situation and my physical health and mental health have suffered. Reading your HUB has really given me hope and helped. None of my doctors told me the symptoms that would persist after the treatments except for the itching taking 4 to 6 weeks to go away.

      The itching, while still present, is getting better. The bumps have cleared from most of my trunk and are mostly affecting my hands and feet. I still get the stinging/pinching sensation which results in some redness with a flat whitish center. On my feet I have a couple of blister like bumps but not as large and they don't itch. Only the pinching bumps itch.

      I just keep telling myself that I don't have scabies anymore, that my immune system is reacting to all the crap I have put on or in my body. Also, I am seeing the Rheumotologist on Monday because the doctors were concerned with abnormal blood work.....again all the pesticides put on and in my body most likely. I will let you know how it goes.

      Anyway, I can't tell you enough how much your HUB has helped. Again, thank you for responding and helping all of us by providing so much information that my doctors didn't.

      Wish me luck!

      CAM2

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      Samoa6 4 years ago from San Diego

      Hi cam2,

      There is no way for me to tell for certain, but if you covered yourself adequately with the cream and also used ivermectin, then my bet is that you are cured and having a reaction to the cream. This is the same thing that happened to us, and we continued to have bumpy itchy rashes emerging for a few months after the treatment. They were pretty bad for the first few weeks after treatment and then became fewer and farther between and eventually went away entirely. Unfortunately, the only thing you can do is wait it out, and you should begin to notice the bumps and pinching sensations lessen with time. Just don't be alarmed if a random rash appears a month or so after you thought it was over, because this does happen but does not mean you are reinfested. I really believe your skin/immune system just has a somewhat unpredictable and very long-lasting response to the very toxic permethrin treatment, but this is only my opinion/guess.

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      cam2 4 years ago

      Hi Samoa6,

      My family and I have been dealing with this for over two months now. I have used the permetrin cream four times now and have been given Ivemectrin twice and Vermox one. My most recent treatment was with the permethrin cream and 100 mg vermox. The itching isn't as bad but I still am getting small bumps on the hands and feet and it feels like a pinch or sting sometimes before the bumps appears. Is this normal for post scabies treatment? My doctors tell me I don't have them anymore. I think I can deal with the bumps etc as long as I know the bugs are gone. I'm just so unsure due to the bumps and rare pinching. Thanks!!!!!!!

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      Hazel M 4 years ago

      Wow, interesting hub! I was treated for scabies 5 days ago, along with my family after having an itchy rash on my wrist. The doctor wasn't certain it was scabies, but said treat it anyway just in case. (I thought I had some burrows, but I'm not sure she knew exactly what to look for..)

      Well I don't think the Permethrim has worked as I'm feeling lot of bug-crawling on my skin and pin pricks. First on one body part then a totally different one. Of course it's hard to know whether this is scabies or the effects of the Permethrim. I don't think I had this crawling sensation before doing the medication, but can't remember for sure.

      Sometimes when I rub my skin in the crawling place I get like a tiny, white grain of sand. Did you get this at all? I made a collection before of all the grains I found this evening and got quite a pile! Not sure if that's relevant to anything, I can't find anything about it on the net, and I know they cannot be scabies eggs as they are buried in the skin(?)

      I sometimes still get little spots and series of spots when I itch. I believe the series of spots might be burrows, but I'm not too good at identifying them. I'm guessing that even though you can still be itchy after Permethrin, if I'm getting bites and burrows then the treatment probably didn't work.

      I can't think where I would have got this scabies from. I don't know anyone who has scabies (or has told me they have it at least). I work in a school where I hold hands with children sometimes, but not for any length of time. Usually just to take them from one place to another. Is it possible to catch from a short hand-hold? I'm guessing yes, otherwise the whole thing's a mystery to me!

      Oh, and I don't have lesions in typical places either, (at least not yet). None between my fingers. But I am itchy on my face, eyebrows and hairline - all atypical places!

      Sorry for this mega-post, just happy to find a place I can write all of this stuff!

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      Samoa6 4 years ago from San Diego

      MikeCx,

      Yes, we went through a lot of money with exterminators etc. We did, after a couple of months, go to the doctor to check for scabies, but several doctors ended up telling us we were imagining things. Even so, we began to suspect scabies because like you, we could never find beg bugs or any other kind of bird/rodent mite, which are definitely visible if you know what to look for, and we did since the building we worked in a few years back had a bird mite infestation. After getting rid of thousands of dollars of furniture and finally moving, but not getting rid of the problem, there was no possibility other than we had something living on us. Scabies are the only mites that do that, except for demodex mites, which people sometimes have in their eyelashes, but these generally go unnoticed unless you are immuno-compromised and their population explodes. So I began taping my skin whenever I felt something, knowing my husband could take a look under the microscope. That's the only way we proved anything, and it would have been extremely difficult to do without regular access to a high powered microscope, and the training/experience with how to use it. Most times no body actually sees scabies, they just diagnose based on symptoms. The treatment is rather simple, although you need to be aware of the rashes etc. that it can cause.

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      MikeCx 4 years ago

      Oh, sorry just one last thing Samoa 6: how did you suspect scabies in the first place seen that the symptoms were atypical? how long from the start of the sensations until you thought of scabies? did you went through the whole bed bug/bird mite elimination process? thanks a lot

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      MikeCx 4 years ago

      Ok, thanks for the answers. Just to clarify on my case: I thought we had bedbugs based on the symptoms and a few small red spots on the bed sheets. The crawling sensation I thought it was a kind of allergic reaction to the bites and not a real crawling. This sensation is also typical of other conditions, as for example exposure to pesticides, and as I used them to fight the supopsed bed bugs, it was natural to think of that. The problem is that these has been going on for too long without me finding any signs of the bed bugs. The PCOs could not find anything either. And these crawling sensations are freaking me out!

      Thanks again for your help, I will look into this possibility. Just one question: is taping the only way to catch one ? That means I have to get a microscope...

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      Be Aware 4 years ago

      Please be aware of this just in case you are one of unfortunate people w herpes type one and any other kind of immune suppressor. If you have this you will not show the normal scabies symptoms. You will show few bites, no itching or little itching. You will show some Chinese burrows like scratch marks coming from nowhere. But before all this you may show some psoriasis here and there for few years etc. the beauty mole? Yup that could be it too. However it seems like numbers are kind of controlled. One day you are stressed and overload. You eat badly etc. voila! The Iga ( the allergic response) which in normal people would show like in two months for you it would show just now when the mite number went out of control due to even worse immune system.

      And now you start crawling and having pinprick and that is the sign. Doctors at this point will not help u bc they cannot diagnosed you visually. They would say you are crazy or desilusional...so it is your job to do a castor oil on your skin or Vaseline and see if you have sand like coming out. That would be your confirmation. Save it and take it to a derm or send it to a someone else for identification. And then with that you go to derm. And get proper medication. The longer you had it undiagnosed the longer it will take to cure it. And it depends on your immune system too. Good luck and wish you Heath.

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      Samoa6 4 years ago from San Diego

      Hi Mikeca,

      No, neither my husband nor I saw anything that looked like burrows. He really just had a crawling sensation. I had mainly that plus itching that went along with bites that were very difficult to see mostly along my arms and across my shoulder blades. The crawling was on feet, legs and face.

      You're right, the blood marks on the bed sheets are a bit strange, unless it is from you scratching your skin open, maybe while you are asleep. I would suggest bird/rodent mites, but you said you have ruled that out. Not sure where to go from there, although it seems a lot like scabies from my experience.

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      Mikeca 4 years ago

      Thanks for your answer Samoa6. Yes, I know I can see bed bugs, actually I got to know everything about them as we were really convinced it was that. We hired two PCOs which treated the house but the symptoms continued. Anyway, scabies is clearly a possibility. Although the bites being along the veins, the blood marks on the bed sheets are clearly not typical of scabies. One more thing: sorry to insist in my question: did you even see burrows from the mites close to your bites? and did you have more bites in a particular location? thanks so much for your help. One gets very lonely when dealing with this as doctors and PCOs don't seem to be of great help...

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      Samoa6 4 years ago from San Diego

      Mikecx - your symptoms are identical to what mine and my husband's were. I would bet money that it is scabies. You can definitely see bed bugs, and you would certainly notice one on your face causing the "hair" sensation.

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      Samoa6 4 years ago from San Diego

      Mikecx,

      Spare yourself the agony and just try the permethrin treatment if your doctor gives you the go ahead. We used it on our faces and scalps, but be careful because it causes itching, extra rashes that look even worse than scabies rashes and crop up periodically for a few months even after treatment, and one person even reported twitching eyelids for months. I must say, though, that all of this is better than having the parasite.

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      Mikecx 4 years ago

      Ops, just saw my second post is showing but not my first one... In the first post I explained how me and by wife have been having bites for 6 months which we attributed to bed bugs although we have never found one or any signs of them in our appartement. Furthermore, the symptoms are somewhat different from bed bugs as we both seem to have this sensation of something touching our face and a crawling like sensation in the scalp and sometimes in the nose. Nose and eye itching are aso frequent. The reactions in terms of bites are different: mine are pinprick size mostly on the forearms along the veins, inner elbow and wrist, many times very close to body hair, so close it could be mistaken with folicolis but most times a pinprick mark is visible a mm or two away from the hair. My wife is bitten mostly in the shoulders, neck, legs and trunk. As I said, bed bugs are a possibility as during these 6 months I found a few (very few) suspect blood spots in my bed sheets but as we never saw bugs or the typical signs of them, I want to look inot all possibilities. Could you please tell me if you could ever see the typical scabies burrow marks close to the bites? and were your bites in the usual scabies places? (interdigital, etc)

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      Mikecx 4 years ago

      Just to add that my "bites" are in most cases not itchy at all. Some of them itch a bit at the beginning but most will never do. The most annoying is the face sensation that I always have something touching my face like a hair or dust. In the scalp it is more like a crawling sensation like one of my hairs movingwith no apparent reason. I have excluded other possible culprits like bird mites, etc as I am not exposed and in the meanwhile I changed appartement as I thought it was bed bugs (even without ever seeing one, all this story was driving me crazy) and me and my wife still have the symptoms. I think I am not delusional as we consider our selfs pretty healthy minded :-) so I am looking into all possible explanations and yours is just o0ne more possibility... the difficulty is to prove it...

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      Mikecx 4 years ago

      Hello Samoa6,

      I found your web page when looking for an explanation for the symptoms me and my wife have. The main symptoms are the bites, in my case pinprick type mostly, and mostly on the forearms, wrists and hands, along the veins. My wife on the shoulders and neck and on the legs which are more mosquito like, sometimes with a strong reaction causing a rash. We suspec bed bugs as the symptoms do not correspond with scabies. However during these 6 months with symptoms we never found a bug and I have a symptom which is very unusual with bed bugs which is this sensation that you described of something slightly touching my face and a crawling sensation mostly in my scalp but sometimes in the legs as well. I also have unusual itching on the nose and sometimes on the eyes, which I cannot explain. So I think I will at least consider this possibility now. But I have a question for you: did you also have bites and where? and when you were looking for signs of mites, did you ever see the famous borrows they leave close to the bites? thanks for your help,

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      Mickey, 4 years ago

      Thanks for all the info, I will definitely keep you posted.

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      Samoa6 4 years ago from San Diego

      Mickey - I had my husband take the tape samples into work where he has a microscope. If you do not have access, there's not really a lot you can do. Even for him, it was really difficult to find the mites - it took hours. Then he took a picture under the scope and emailed it to a mite expert who studies them at a university for identification. That's how we finally got doctors to quit telling us we were imagining things!

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      Mickey 4 years ago

      So I was reading the conversation with Mom88 and I also have noticed 5 or 6 red dots on my skin that are not itchy. So many similarities between these mites, it truly is hard to diagnose. Samoa, you mentioned the scotch tape test. How does that work? Firstly, you apply tape to the area where you are feeling a tickling sensation but if you do not have access to a microscope, how do you know if there is one on the tape? Thank you much

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      Samoa6 4 years ago from San Diego

      Mom88,

      Your symptoms sound identical to mine when I had scabies. Nose and all, even though it is apparently not common to get them on your face. Two permethrin treatments, one week apart, did the trick. Same for the kids. Just check with a doctor first about the medication (it is prescription), and also be aware of post scabies syndrome issues.

      Read the article at the following link:

      https://healdove.com/disease-illness/How-Do-You-Kn...

      One more thing, I used the lotion on my face including anywhere I felt crawling/tickling even though the medication label says not to put it inside your nose etc. You will have to talk to a doctor about how to handle what you feel on your face because if you don't treat your face adequately, you might not solve your problem.

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      Samoa6 4 years ago from San Diego

      Mickey - thanks for sharing your experience. If you don't mind, please drop back in again to let everyone know once you've figured out for certain what was going on. The bird/rodent mites can definitely hitch a ride on you, and if you don't know they're there, you will sit on your furniture, sleep on your bed, etc. etc. allowing them to get into your furniture. Fortunately, they can't reproduce without an animal (nonhuman) host. Unfortunately, they can live for several months before dying off, all the while still biting you. Your best bet is to launder everything and vacuum until the problem is gone.

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      Mom88 4 years ago

      Samoa6,

      Thanks for the reply. I have very tiny pinprick red bites on my legs, arm, and stomach, they are barely noticeable and they don't itch. Last night, I felt something on my cheeks, and crawling inside my nose...scared the living daylights out of me. I wonder if anyone with scabies has had the same symptoms? At any rate, the battle with whatever is on me is still going on...still not sure if it's bird mite or scabies. But if it is bird mite , wouldn't I have tons of itchy bite rashes? I probably should try permethrin...these things are driving me nuts. My kids are 5 and older...would they being using the same medicine...do you know? Thanks for sharing your experience.

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      Mickey 4 years ago

      Thank you for your response, Samoa. My gut has always been that its not scabies, it can happen from a hotel, but I guess its rare. Ive wondered if its cheyletiella from the kittens. I took one of my own cats in to check, nothing was found, but it is very difficult to diagnose, unlike mange. The gentleman who looked at my sample at the extension ofc said it was oval in shape, black/brown, and had either 6 legs and 2 antennae or 8 legs, so the bird/rodent mite fits that description. Perhaps they were on the kittens and hitched a ride on us, looking for a preferred host We did vacuum out the vehicle well after discovering those two on my daughter, but I will wash everything thoroughly again and possibly treat my pets with Revolution. Thank you for taking the time to help strangers, I have read so many horror stories. So sad and frustrating such a tiny thing can wreak havoc on so many peoples lives.

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      Samoa6 4 years ago from San Diego

      Mickey - I cannot be absolutely certain, but what you are describing actually does not at all seem like scabies. You cannot see scabies unless they are under a microscope. Also, while cats and dogs have their own species of scabies that can live off of them, these species (I believe) are also microscopic and definitely can not live off of humans. Animal scabies might try to burrow on you though, but they will not be able to live long or reproduce successfully. They might still cause itching for a while though.

      You can, however, see a variety of other bird, rodent and animal mites. Since these can bite and try to burrow on you but cannot reproduce, I would think you should vacuum out your car and wash all other clothing/blankets etc. you had with you on your trip. Also, wash all of your bedding and towels that you've used since you returned. Then, if you still continue to get more bites, I would consider scabies. But I really don't think that's what you have. If you do end up treating for scabies, you will need to be extremely careful with your kids with asthma. The permethrin cream causes reactions that are worse in some people than others - you'll have to ask your doctor if it is safe for you kids, or ask to try the oral medication ivermectin.

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      micky 4 years ago

      Hi Samoa, thank you for all the info, you are a wonderful resource. Almost 5 weeks ago we slept in a hotel and went to a friends farm where my kids played with and held some barn kittens. Started feeling itching on the drive home, discovered a mite on myself (actually saw it crawling), that afternoon and another one the next day. Captured the second one, then took it to my local extension ofc and a vet. They identified it as a mite, but could not specify. Since then we have all had random, mosquito type bites that itch for a bit then go away. Your description of your own symptoms are so similar to mine. My nose is so itchy some days. I also notice 2 of my kids sneezing and itching their noses. I have lots of crawling sensations, seemingly more so after eating sugar. We saw 2 more mites on my daughters finger, but we could not capture them as we were driving. I wouldn't have guessed this could be scabies if I had not read about your experience. We are going to derm next week, hope hes a good one. My concern is, I have 2 kids with asthma and understand that perm can aggravate and cause asthma-like symptoms. When you treated your children, did they have any issues?

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      Samoa6 4 years ago from San Diego

      Hi Mom88,

      Thanks for letting everyone know - I had my doubts about the natural remedies, although I would like it if some of them actually did work. When I had scabies, I itched a little bit, with some tiny pinprick marks mainly across my shoulder blades and on my arms, but no one could really see them until I pointed them out, and even at that, the dermatologist said they were nothing to worry about (originally). I felt like I constantly had a tickle in my nose, and also I felt weight on my eyelashes, as though someone had just blown a handful of dust in my face. Sometimes it seemed as though there was a hair on my face that I needed to brush away. But it was more consistent than what I would consider normal, i.e., I knew there was something strange going on, just wasn't sure if it was an allergy or something else at first. My husband, son and I all had scabies, not sure if my daughter did but we treated her as well.

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      Mom88 4 years ago

      Samoa6,

      The naturasil scabies family package didn't work for me. Though, the tea tree cream, soap did help along with vacuuming and washing towels and clothes everyday. I don't have much of a crawling sensation at night, but I do feel that something still could be on me. Now, you mentioned that you did not itch when you had scabies, or it you itch somewhat? Did you tiny scattered pinprick bite markes or rashes on your nose, or any other part of your body? Did everyone in you family have scabies?

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      Samoa6 4 years ago from San Diego

      Important to know - thank you for your comment. You are right, it is important to clean everything while treating yourself (although maybe not to the degree you suggest), but even more important to get the treatment right.

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      Important to know 4 years ago

      Some people really do not show any symptom at all. Maybe some freckle here and the like. I was and am one of them i am still fighting scabies or post scabies hard to tell. This is a nightmare. Anyway please do research on line bc doctors know nothing.

      If you have had this more than 5 months it will be difficult. But it also has to do with the immune system, age etc. after thousand of dollars I will give some tips to make people life easier.

      - floors: vacuum them daily and clean floors with a mix of borax, Clorox and miticide ( yes miticide a good one)

      - buy a presser. That is great for your sheets and towels. And also has a good steam iron. Washing and drying is not enough. Iron everything you will use including underwear.

      - buy benzyl benzoate. That is great for laundry.

      - buy spray for spiders. Scabies are from the spiders families. Spray cars etc. sanitize shoes and bags and belts. Freeze them.

      - and last I know it can be bad I know that but if you have done tins of ivermetin and permethin more than 10 treatments lets say and it is not working. Do ur own research. Look for answers.

      You may have very resistant scabies and you need some other alternatives. Good luck god bless.

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      Samoa6 5 years ago from San Diego

      Scabies incognito - You are right, it is difficult to tell, but if you just keep treating you may actually be making things worse. Also, although it is certainly possible to get reinfested, it seems the odds are against it. You should do two thorough treatments, one week apart, and then stop. Along with that, do the necessary cleaning as described in the article with each treatment, but don't go crazy with it. The bumps and crawling etc. that you feel after that are not necessarily "bites." They may just be your skin's reaction to the treatment lotion, which looks identical sometimes to the scabies infestation. Frustrating, I know. You can always ask your doctor to supplement your treatment with ivermectin, the oral medication, so as not to elicit more of a reaction to the skin lotion.

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      Scabies incognito 5 years ago

      But how one know. I have heard people stopping treatment and getting re infected again after two months even after 6. They never stop to feel the crawling and pinprick and then they had it again. This is frustrating. I am so scared I just keep on treating. Crawlies and pinpricks were unbearable when I first start off with this now it is better. I stopped treatment for a week and they got worst in 7 days. So that confirmed me I still had them. Some people's immune system just don't help. And some have scabies deeper in the skin. Idk. I will continue to treat until everything is gone. I cannot believe I have such a complicated case.

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      Samoa6 5 years ago from San Diego

      Hi Scabies incognito,

      Take a look at the article at the following web address:

      https://healdove.com/disease-illness/How-Do-You-Kn...

      It should answer a lot of your questions. You may indeed be cured after using permethrin but just not realize it due to the complicated reaction it causes in some people. All of the rest of the things you are doing are probably just going to drive you crazy, and to no avail. Feel free to write again with any questions you might have after reading that article though.

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      Scabies incognito 5 years ago

      Hi my name Victoria and first of all I am sorry for everyone inflicted by this. My horror started back I december and I we misdiagnosed until April. Knowing that scabies show symptoms after two months or so, or even more, I think I have been dealing with this for about 6 months now. I am reading so much that it became a 24/7 thing. When I started treating I did permethirn for 8 hours then 12. Then I forgot the head. Then did the head next morning tons of bites on my forehead. Then did ivermectin normal dose then double. And nothing would take away the crawling and pinprick and specks like sand like. I also realized I start having black dots on my skin here and there. I naturally have them but so many new ones? Strange.

      I read so people go years not knowing they have them. Especially people with herpes 1 etc. or some immune system problem. 4 months in this and I am not cured. Still feel them. Some people get healed quickly I must confess out of the 4 months I have been dealing with this I just about now have learned how to deal w environment and clothing. Things started to calm down once I start using a mix of clorox borax and termicide on floors and about everywhere. Then using benzyl benzoate on laundry like dmite or others. And even after that is important to iron everything.

      Mattress and sofas need vynil covers for a while so u can spray them after use. Plastic is your friend. Same for car.

      I didn't know I was so infested. Doctors made it look so simple. It is not simple. It is complicated and has taken most of my summer. I mean it could be complicated for those w scabies for a long time without knowing. 2 permethin treatment won't do the trick and either it you are going to do ivermectin please start w higher dose at least twice, otherwise it won't work either. Liver will get used to it and won't let the ivermetin to get to skin ( do not shower after doing ivermectin for two days otherwise u wash it off skin) it is better and more effective to do it both combine. I hope this helps someone. I wish I knew all this. I am still fighting it. Had many generations on me plus re infect myself for sure during first two months.

      Castor oil suffocate them do that test. That will show what is hidden. Wait 20 minutes and wait for things to come off.

      Also a bath of borax and peroxide for 30 minutes will reveal hidden burrows. And then you can go and show to your derm before he calls you desilusional.

      Samoa I need to know where did u send the samples to be diagnose. I really need to know have no clue. I hope my info help someone. Be persistent and you will succeed. And also prayer always help.

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      Samoa6 5 years ago from San Diego

      Hi Mom88,

      That sounds like a good plan. Please drop us a note once you have pursued this line of treatment to let everyone know if the Naturasil products work or not. Several people have asked about these products, but so far, I have not heard for certain of anyone using them successfully. They would certainly be a nicer alternative to the harsh chemicals in permethrin. If for some reason Naturasil doesn't work, permethrin definitely does, you just have to put up with sporadic rashes for a while afterwards. But in the grand scheme of things, I was happy to deal with that after having such an awful time with scabies themselves!

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      Mom88 5 years ago

      Thanks Samoa6,

      I am not sure sure if I want to try permithrin yet because of the after-effect of the medicine. It seems as though you can't really tell if you are 100% cured or not from scabies using permithrin because the medicine still cause you to itch somewhat and you still feel some sort of crawling sensation after treatment for at least 1-2months. Thank you for writing this article, and promptly writing back to me. I have two younger children and don't feel comfortable treating them with permithrin since it's toxic, plus there is no guarantee it will work. I am going to try naturasil's scabies family pack, and the tea tree oil, creme, and soap for 5 days and see if it works along with cleaning the house and sheets daily. I'll keep you posted. Thanks.

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      Samoa6 5 years ago from San Diego

      Mom88 - That is the same response I got from my dermatologist the first time around. He was wrong. Many months (and doctors) later, we found out it was indeed scabies. I've heard of Naturasil but have no experience with it, and would beware of spending money on something I have not heard for certain from an actual person that it works. Go to another dermatologist who will at least entertain the notion you might have scabies. Giving the prescribed treatment a try can't hurt, so long as you are prepared for the after-effects of the medication. Take a look at the other article titled, "How do you know if your scabies treatment worked . . . " so you know what to expect. There is a link to it above, just after the article.

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      Mom88 5 years ago

      I was on vacation for a week, and felt a crawling pinprick sensation at the hotel. I thought it was fleas, or bed bugs at first, but now I know for sure it's not fleas or bed bugs. I still feel a little pinprick and crawling sensation after 3 weeks, sometimes at night and during the day but I

      can' t see anything. I have tiny pin prick red dots on my arm, and legs but they do not itch at all. Went to see a dermatologist and he said I do not have scabies, and would not do skin scrape test as I had requested. None of my family members seem to be affected, only me. I read somewhere that if you have not been affected with scabies before , the scabie symptoms won't appear until 6 weeks later. Any thoughts? Don't know if I have scabies or bird mites. Though, I have not been around any birds. Do you know the differences between these two mites? I was looking for some over the counter treatments, and I found a site that sales all natural scabies cure at naturasil and the review seems to be very favorable. Have you heard of naturasil?

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      Samoa6 5 years ago

      Hi dauna,

      We sent the pictures we took under a microscope to an acarologist at the University of Michigan named Barry O'Connor, but we did not visit him physically as we do not live in Michigan and he is not an M.D. We had already found the mites on our own under a high powered microscope my husband has at work. I doubt you can just send a random piece of tape to UMich and expect him to look for something - this could (and did) take hours. I am not comfortable giving out names of my personal doctor over the internet, I am sorry, but I can say that you can always call around in your area asking each dermatologist (nurse, or secretary even) how much experience that particular doctor has with scabies, and whether or not they've dealt with "post scabies" effects. If he/she is unaware of this (what seems to be a very common occurrence) then I would continue searching for someone with more experience. It may be useful to find someone who is working or has worked at a group home for the elderly or in some sort of refugee camp abroad because scabies is sometimes rampant in these sorts of places due to the high number of people living in close proximity. Just a thought though. Another option may be to simply request the treatment even in the absence of a diagnosis, and give it a try. Some doctors might be more amenable to trying this than others, so you can always switch doctors I suppose. Just beware that permethrin is a pretty potent drug and causes undesirable effects of its own. Good luck.

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      dauna 5 years ago

      We r having a hard time getting a diagnosis since scraping of skin wasn't possible from the itching affecting the skin. Who specifically was ur mite expert? Our derm dr is not very helpful. Thanx.

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      Samoa6 5 years ago from San Diego

      Keri,

      If you have scabies on your face and/or scalp but did not treat there, you may well still be infected. However I do not feel comfortable telling you to do something against your doctor's advice, so you may want to discuss this reasoning with him/her and see what kind of a response you get. Also, ask to try the oral meds, since your skin is sensitive and you have a burning sensation. This way, there is no need to put anything on your face, or on your skin in general.

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      Keri 5 years ago

      Samoa, the burning didn't start til a few days after treatment. Still, I felt 100 times better as the itch and biting were gone. I assumed it was side effect to dousing myself with pesticide. Then 3 days later my head starts to flake like crazy, itching around and in my ears. I'm seeing the areas that were infected before are becoming red and itchy again. I think my hair was already infested but Dr told me not to treat there. I keep checking but no bites, its just red. I'm still surprised my husband shows zero symptoms and he sleeps right next to me. I sent the whole family to get cream from urgent care and they told them I was crazy and over reacting. I don't think it's a coincidence my itching is mainly in the folds of my hands and sides of both feet. I am not a person prone to either head or skin ailments and I believe my daily usage of steroid inhalers have made me more susceptible to catching this as it can weaken the immune system. If it is in fact the bug again would I have broken out all over by now? I'm not having the night attacks I had before but can't figure out what's going on with my hair. I also heard they can infest your mattress and come back up at night to reinfect. Do you know if this is true? Oh I'm sorry, one more thing..do I need to use the whole tube of cream or just enough to cover all areas? They did not give my family any refills on their cream. Thanks for letting me rant, my Dr really p#$$#d me off today..

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      Samoa6 5 years ago from San Diego

      Keri - how long has it been since your second treatment? The burning makes me think it more likely to be a reaction to the treatment than a re-infestation, but I cannot be sure.

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      Samoa6 5 years ago from San Diego

      Scabiegirl - not sure if you are the same person who commented on the other related site - I would first check your home for bird/rodent mites, and you can follow the link at the bottom of the above article to the one titled, "Mites that bite humans . . ." If you can rule that out, then did you cover yourself adequately with the permethrin? Some people get scabies on their faces etc. so you might need to talk to a doctor about using it in places that are not typically recommended in order to adequately cover yourself. then, did you do the treatment twice, with a week in between? If you've done all this, then you may just be reacting to the overdose of permethrin you described. I would not use it anymore and see if things begin to get better. Overusing it might just be making things worse. See a doctor about using an anti-histamine or something else to calm an immune reaction.

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      Keri 5 years ago

      Please tell me your opinion on these symptoms. My skin burned all over today, worse than when I first applied perm cream. I'm noticing itching in some places and think I have new bites on my hand. Painful pin prick feeling in middle back and under one breast. Does anyone know if this could be continued after effects of the treatment itself or if it sounds like a new infestation? I guess I expected to break out all over much more quickly if the bugs are back, but I have more invisible symptoms than obvious ones, thx..

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      Scabiegirl 5 years ago

      Hi all I am trying to figure out what is going on with me. November past year I woke up with tons of bites on my back, derm and I thought it was coming from my dog who used to sleep with me. Dog was allergic to any medicine to cure him. So I did one permethirn and gave away my dog. After he was gone everything was fine. So by january I was fine. But April once again started with bumps under my arms. It went away. Then started itching thought it was dry skin. Then two burrows on my back and only then my body reacted. My scalp was the worst.and the crawling and pinprick was unbearable. I freaked out when symptoms weren't going away so I over treat. I did like 10 permethirn and ivernectin several times. Crawling and pinprick is better but still is not gone. It has been like that for around two months. I don't have bites or burrows but i did have like pimples on my face lots of it. I never had acne. So I thought maybe it was scabies still. Treated even more. Now burrows on face and neck are gone for about a week but still crawling and little pinprick and that make me itchy but then is gone. I can sleep at night but still during the day this pinpricks and crawling make me feel infested. Why is this? Why after two months of treatment and extensive cleaning. I mean I did everything to Desinfect clothing and shoes and everything is wash hit dry hot. Steamed and ironed. Floors vacuum every day for a month and floors with Lysol everyday. Don't seat on sofa. Bed has a plastic cover and sprayed everyday w Lysol.

      I have done it all I am trying to figure this out. Can it last more than 2 months. Last treatment I did was past Friday. Ivermectin.

      Thank you.

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      Scared and upset 5 years ago

      Hello,

      We have been dealing with a difficult series of events trying to help my son get rid of scabies.

      He was traveling in Asia last summer and slept on the floor of a train for 13 hours and also had an experience on a very dirty floor in a hostel, too. I suspect this was how our almost 10 month long nightmare began. He came home and about 2-3 weeks later started complaining of a rash. We set him to see his pediatrician and they diagnosed him as having a form of jock itch or athletes foot and sent him off with some anti fungal spray . This did not give him any relief, so after a few weeks of trying some over the counter stuff, we went to the dermatologist . He thought it was scabies and prescribed permetherin cream in 2 doses seven days apart. He did the treatment and we followed the instructions for clothes and bedding and towel washing, but did not go crazy. He did not see any relief, so the doctor said it must not have been scabies and we needed to try some prescription cream with steroid.

      Well, this went on for months, bouncing around from doctor to doctor 7 in all and they each had a different opinion, but no treatments worked. Now, all this time, the other 4 people living in the house and sharing the same bathroom, laundry, etc had no symptoms. We came to find that one of my sons friends who sleeps over quite often had a rash, but assumed it was just his allergies, since he gets rashes all the time.

      At one of my sons Dermatologist appointments, he mentioned that the whole family was rash free for the last 7 months but then he mentioned that his friend had a rash. The doctor decided that it was possible that the perm didn't work because of the friend and he prescribed ivermectin. He did the treatment, one pill and another 7 days later. We figured all was over and went on with our lives, but I made sure to ask the friend first if he really did have a rash or if he was just having his typical allergy outbreak before we did the treatment and explained to him that the treatment would fail if he also had scabies and didn't get treated. He assured me he was fine and rash free, I even called his mother to let her know what was up and she said he was fine.

      Well a few weeks later, my daughter overheard the friend blaming my son for " giving him scabies" and she told me about it. I confronted the friend and he then admitted that he had a rash and it looked quite a bit like my sons had at one time. My son had not been improving, so we now had to suspect that this boy was possibly reinfecting my son after his last treatment.

      We went back to the pediatrician and the derm and they both agreed the derm would take a biopsy and scraping(amazingly, no one had done this in the whole 7 months even though I requested it!) we had to wait a bit and when the results came back, there were no mites or eggs, etc, but an immune resonse consistent with allergy to scabies. I asked, does this mean he still has it and the doctor said yes and he needs to do the perm treatment again.

      Because 8 months had passed and no one in the household ever had symptoms, he felt it was fine to just treat my son, but it would be important to get the friend to treat, also. That was a difficult conversation to have and the other mom was not available to help her son, so he went to a doctor on his own, got the perm and supposedly did all the appropriate cleaning.

      We were going to do the perm, but when I called the derm with some questions, he became agitated with me because he said I had taken up too much of his time at the office visit the other day and he would not spend any more time talking with me, he said," just do the treatment " and he hung up on me. I was shocked and upset, so I called the pediatrician and he was very sympathetic and kind.

      He called our family pharmacist and together they discovered that this derm who had barked at me had treated my son with the wrong dosage of ivermectin the previous time. He gave him 1/5 of the recommended dosage by weight for my son! They couldn't believe it and they both guessed that this was one of the main reasons the treatment had failed. We just did the treatment on Friday and will do the second one in 5 days.

      We have steam cleaned all carpets and furniture and washed all my sons clothes, bedding, towels and even shoes every day. We vacuumed out the cars and sprayed them and all our furniture with sawyers permethrin 5%. It is a spray used for camping gear and clothing.

      I know this all sounds a little extreme, but spending time on the Internet set off severe fear and anxiety in me that we would never get rid of this and my sons suffering would continue. I haven't slept and I am fretting over so many things:

      Will this treatment work and how will we know for certain?

      When can my son socialize with his friends again, especially the one with the rash who just did his own perm treatment?

      Are these things living in our furniture and all around?

      I swear I sound crazy and I am not, but this is really doing a number on my mental health.

      My son and his friend with the rash are supposed to be traveling together for the whole summer and they are due to leave in less than three weeks. I have no idea how I can send him off when this will probably not be resolved.

      How can I know what to do when there is no test to determine that this scabies is gone? How can I expose other people that he may stay with to this? How can I be sure his friend is scabies free and won't just start the whole thing over again?

      I am so sorry for ranting, but there is no one who can help me and all the answers I get seem so contradictory or just plain unsure or even terrifying. I have read of people struggling with this for years, burning their belongings and even moving and throwing out everything they own. It is too much to think about and I just need some hope, some good advice and some compassion to try to restore my sanity. Thank you for reading this and I am sorry again for the rant.

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      Samoa6 5 years ago from San Diego

      It's a shame that your husband would interpret things that way. Skin-to-skin contact is indeed the typical mode of transmission, but you could have picked up or held the hand of a child who had it, it's really that easy. Alternatively, there are data indicating you can get it from a bed or furniture without contact, if you are unfortunate enough to be sitting there not long after a person with scabies leaves, and a pregnant female mite has happened to drop off of that person there. Although this is not a high probability, it can happen. Please keep us posted as to whether you do a second treatment, and whether or not you decide to treat your face. Just be very cautious with the medication, particularly if you are experiencing burning. Read the comments above, as well as the related article titled, "How Do You Know If Your Scabies Treatment Worked: Post Scabies Syndrome." There is a link to it above the comments. Then you will have some idea of what kinds of reactions to expect, and for how long, after treatment.

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      keri 5 years ago

      Hi Samoa thx for responding. The track marks I've found are definite signs this was not dog mites. I went 24hrs after treatment before any side effects, now I have a lot of burning sensation, particularly where the breakouts occurred. It is very easy for paranoia to take over, just thinking about it can give you the crawlies all over. The Doc stated I would know in 3 days if it didn't work. Well I'm on day 3 and so far no bites. They say this is a close contact bug, but I've had zero close contact with anyone, even my husband. It bothers me it was so easy to catch from a stranger. I've worked in hospitals and clinics all my adult life and this is a first. I felt like I had to explain myself to my husband who raised an eyebrow after reading about how you catch it online. Obviously this should not be regarded as something sexually transmitted if its easy enough to catch at work.

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      Samoa6 5 years ago from San Diego

      Hi Keri,

      It is actually possible for dogs to have scabies (as well as other kinds of mites), but the species of scabies that affects dogs does not infest humans. This does not mean that they won't crawl on you and possibly even burrow, therefore causing discomfort, but they cannot survive and reproduce on humans. However as long as the ones on your dogs are reproducing, and you are petting them or sitting on furniture that they touch etc., then they will continue to bother you. So the first thing you need to do is get the dogs checked out by a vet, and get rid of whatever is on them. Then, if the problem persists, my bet would be that you had and still have scabies, particularly if you were feeling crawling on your face but did not treat your face. Doctors, even otherwise great doctors, do not have the story correct on these little buggers. They do indeed go on your face and scalp, even if it is relatively uncommon, i.e., perhaps compared to the total number of people who get scabies, only a very few get them on their faces, but there are a HECK of a lot of people who get scabies if you read the medical literature, which means a large number of people probably get them on the face! And your doctor in particular was absolutely wrong not to have you treat everyone in your family, unless he/she had some reason for suggesting this, such as a health issue that I am unaware of. Treating everyone in the house, as opposed to treating the face and scalp, should be standard treatment coming from any doctor. So if you rule out dog scabies, and go for another permethrin treatment, you need to have your whole family treat themselves, twice, with each treatment one week apart, and also to be aware of the consequences of using permethrin, as you now probably are, if you read the article and comments above. One commenter said the permethrin on the face caused eyelid twitching for months. This does not seem typical, as it did not happen to anyone in our family, and we had them on our faces and treated there accordingly. But in any case, it seems to cause itchy rashes of its own, sometimes worse than the scabies, even after the scabies are gone. And they can come and go for months. So, just try to rule out first things first, and go from there. And if you don't mind, check back in to let us know how things are going, because everyone here can benefit from your story. Thanks for commenting, and good luck.

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      Keri 5 years ago

      I was never clinically diagnosed with scabies but broke out all over within 24hrs of itching symptoms. Within 1 day of permithrin treatment my itch is gone,no new bites. BUT he did said it was not recommended I treat my hubby or kid as they show no symptoms. That contradicts everything I've read about them, and he told me NOT to use in hair or face. The itch is gone and we cleaned all clothes, bed, carpet etc. But I just realized my dogs both have ear mites and I still feel crawling sensation on face and hair. Should I do a second treatment just in case? Oh and this was NOT caught by close contact, but by a patient I did an EKG on without wearing gloves..

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      Samoa6 5 years ago from San Diego

      Hi Maura,

      Did you treat your scalp, face and external area around the genitals with permethrin two times, one week apart? It seems you could a)have missed something, or b) be experiencing what is referred to above as post scabies syndrome. If you are confident that you've completed the treatment correctly, then you may talk to a doctor about using an anti-histamine to calm the itching. The cream used to treat scabies may have triggered this reaction, so you might actually need to talk to a dermatologist.

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      Maura 5 years ago

      I have been treated by my doctor for scabies over 2 weeks ago now but still have itching in my hair and vagina and its driving me crazy,What will I do now apart from going back to my doctor. Can I get stuff in the chemist.

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      Samoa6 5 years ago from San Diego

      Hi Steve,

      It is impossible to tell, but you should keep an eye on it to see if it continues to spread, and also, in the meanwhile, find a knowledgeable doctor.

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      Steve 5 years ago

      I only have a few bumps and only on my feet is it scabies?

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      Samoa6 5 years ago from San Diego

      Yeah, the skin scrapings don't necessarily turn up anything though - it is really hard to actually find something. Just hang in there and wait it out for a while to see if it goes away.

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      Vee 5 years ago

      Thanks for me I feel like its been coming and going, unless it's something else since I didn't get a specific diagnosis :( doctors did not want to do a skin scraping or skin biopsy to ease my mind :(

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      Samoa6 5 years ago from San Diego

      Hi Vee,

      The crawling pretty much stopped with the treatment for me, but your immune system may still be in "high gear," so you may still continue to feel this sensation for a while. The pin prick sensation lessened a lot after treatment too, but I still felt something every now and then that made me wonder if the treatment had worked, but it all eventually turned out to be nothing. The itchy bumps may continue to pop up for months though.

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      Vee 5 years ago

      Samoa6 so I did my second treatment last night to my entire body I hope this helps! But my question is how long after the second treatment did the crawling and biting sensation went away? Since the first treatment it is better not as frequent but not as bad, but I just want this to go away.

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      Samoa6 5 years ago from San Diego

      Jnet - Concerning your cat, you can do the treatment at night before bed and just close the door so the cat can't come in while you are sleeping. Then wash the cream off first thing in the morning.

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      Samoa6 5 years ago from San Diego

      Hi Jnet,

      It sounds like scabies but there is no way for me to be sure. You need to talk to a dermatologist who is aware these mites can go on your face and scalp, so he/she can recommend and guide you through treatment based on your personal medical history. If it is scabies, you will need to treat your entire body at one time, as the instructions on the label say to do. Then, you will need to do the exact same thing in one week. Also, everyone in your house should be doing the treatment along with you because sometimes people get infested and don't know it for up to six weeks, so someone could have picked it up from you and not know it yet. Concerning the eyes, I too was told that scabies do not go there, until I actually taped one and sent it to a mite expert at a nearby university, who identified it for me. My doctor was shocked it came from my eye area, and then recommended I treat accordingly, i.e. head to toe, including face. Just be careful not to get it in your eyes. When you put it on your scalp, you don't have to do your hair, just the skin areas. And if you are feeling crawling, I would definitely treat wherever you feel it. I had to treat just inside my nose, even though the medication label says not to. So definitely check with a doctor, and maybe discuss what you have read so that he/she will understand that it seems likely you have the mites on your face and scalp.

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      Jnet 5 years ago

      Hi, I started with a small rash - pimple like on the side of my face where I had contact with a man from work who has very bad hygiene. I experienced tickling on face & itchiness, the rash got bigger!!! & spread to the other side. I tried all creams/ switching faces creams & washes, it would not go. I experienced pin pricks one night laid in bed, then sum1 from work told me it could be scabies I immediately rushed out & bought lyclear but I only treated my face. Just before som1 at work told me abt scabies my hands & mostly feet had started to itch something crazy too. So anyway I put cream on my face twice & on my feet once. I know you probably think its not enough but I just went for the areas where I could see the rash as I have a cat that I love very much & the cream is toxic to them & can kill them. Since then tho I felt like all the mites had rushed to my eyelashes where there was no cream & I feel grit in my eye & my eye is twitching. The rash on face is clearing slowly. But I itch in scalp. Emergancy doc said I can't have scabies in my eye. I'm going to the day time doctor in 2 days as it is the jubilee bank hol so I'm stuffed for a while. I still want to talk with doctor. I've had a nightmare with my face & I'm glad it's slighty better but my eye is worrying & I still feel crawling. I don't want to poison or kill my cat. I believe when the man at work hugged me he passed them on & I had no idea. My mum said its all in my head that I feel crawling & itchy. I washed and bagged my pillows changed my quilt showered like crazy with super hot water!! & tea tree shampoo but my body feels itchy. I really feel like I deffo had them in my face as nothing has worked up until I bought lyclear but I treated my face twice already but I didn't wait a week cos I really wanted my face back to normal. Do u think I should treat my whole body or see the doctor first I'm just worried the doctor will fob me off. I am experiencing everything u did. I'm thinking of getting a microscope & some tea tree oil next week. If doc says I do not have them I won't believe him. My face was real real bad. I'm worried the cat will lick me when I have the cream on. She doesn't go out she's a house cat. P.s how do I treat my scalp - I would be able to put the cream everywhere within my hair?

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      Samoa6 5 years ago from San Diego

      Hi sheltha,

      As with everyone I communicate with on this forum, I will tell you that it is impossible for me to determine anything over the internet. Also, I am not a doctor so you could have some strange parasite that I am not familiar with, however the brownish-black things you are seeing in your bath water that seem to be filled with blood sound like they could indeed be bird or rodent mites. You may want to check the doors, windows, vents and even electrical sockets in your house to see if you notice any mites crawling in through these entryways. You may have an abandoned bird or rodent nest in your attic or just outside one of your doors or windows, in the eves of your house or even one that may have fallen down behind your wall somewhere that is infested with mites that are now making there way into your house to find a new host. These species of mites cannot live off of you, but they don't know that so they will search you out - they are attracted to CO2 and warmth from your body. There can be thousands of them in a nest that was previously occupied by an animal, and they can live for quite some time (maybe even up to 1 year) without their animal host, so they can keep pouring into your house and ending up on you. The easiest thing for you to do would be to get some of the specimens you see in the bathtub, and put them into a ziplock baggie or some other container that you can seal, and take them to your doctor. They can look at them under the microscope and tell you for certain what they are, and how to get rid of them. If they are bird or rodent mites, you'll need to find the nest and get rid of it, and that should solve your problem.

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      sheltha 5 years ago

      I have this crawling in my vagania area and it don't itch or there is nothing bitting me, but it just something crawling all the time. My husband sleep in the same bed and he don't have any symtons of anything. we are not having sex so whatever this is it didn't come from sex. I did recently went to this salvage store an tried on several article of pants, other than that I have no idea where this came from or what this is. also I have tried thye permetrin and bathing several time a day using from vinagar to the green alcohol and the crawling still continues. Now I am trying the Arm an Hammer thin. Please help me or tell me something for the crawling because after I take a bath I see a lot of little brownish or black things in the bottom of my bathwater. I smash one of them and the appear to have a fluid in them as if it chould be blood.

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      Samoa6 5 years ago from San Diego

      Hi Fred,

      No, they're not all in one area. They pop up in random places and then just as they begin to go away, they appear somewhere else. With us, they were not so much "sores," they felt like pin pricks but you could barely see them - only if you looked really closely could you see what looked like a tiny bite, or sometimes a couple in the same general area. They do not have to be that itchy, either. We actually felt more of a crawling sensation, but also some itching. Others feel mostly itching, and sometimes have bigger welts. If you've only begun to notice these "bites" just recently, I would pay attention to whether they keep reappearing, or seem to become more noticeable. Scabies won't go away without treatment, so you will know you have them if the bumps and itchiness continue.

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      Fred 5 years ago

      I was just curious... are your scabies "sores" in a place all together? I have what appears to be a bite here and there, but not together. I have some bumps that get sometimes are light, and sometimes are dark and at first itched, but don't now. My brother's children and family had scabies and I held the little fella one evening for a bit after the whole family had been treated, but I'm still quite paranoid about having them!

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      Vee 5 years ago

      Thank you so much! I have just become so much more paranoid at this point.. If I am correct and this is what I have the only person I was in contact with it was a patient at work that I had to room and take his blood pressure and it started a few days after and I thought I was just paranoid for a few days until it didn't stop and that's when I found your post. So thank you so much for all your help!

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      Samoa6 5 years ago from San Diego

      Hi Vee,

      There is really no reason to worry at this point, since you've already identified the problem and are currently treating it. I would just avoid skin-to-skin contact with everyone until you've completed your second treatment. In the meanwhile, your mom, sister and sister's friend should just be aware that they have been exposed to scabies, in case they start to have symptoms. Sometimes the symptoms do not emerge until as long as 6 weeks after exposure, so they should be paying attention to see if they notice anything funny. And then if anyone is unfortunate enough to have picked it up (I highly doubt they would have, even just sitting in bed with you), then they will only have to do the same treatment process that you are currently doing. It won't be nearly as bad for them though, since they will know what it is right away.

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      Vee 5 years ago

      I just worry about my sister and her friend they stayed at my house for a couple days and my sister sat in bed with me the whole day :/ and she comes over once a week or so but no one else is experiencing anything at all but me. My mom and sisters came around a lot the first week of my symptoms because the doctor kept saying its my anxiety so they were trying to be there for me. I did the first treatment on Sunday like I told you before and I have felt way less crawling and biting so I do think it might have been to these horrible critters.

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      Samoa6 5 years ago from San Diego

      Well, we think that my son got it from one of the many people who were holding him at a birthday party that occurred just prior to us experiencing symptoms, and then I most likely got it from him, since I was holding him a lot at the time (he was only 4 months old). Then my husband most likely got it from me. So it did spread, but only within our immediate family. None of our friends or relatives who stayed at our house during that time period got it. It seems the odds might be that you would not get it unless you are in regular and close, i.e. skin to skin, contact with someone. So if you have been, and particularly if you continue to be, I would have that person treat him/herself as well.

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      Vee 5 years ago

      Did anyone that you came in contact with during this whole year you dealt with this ever get infested?? I worry about getting re-infested if someone is not showing symptoms now. :/

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      Samoa6 5 years ago from San Diego

      Hi Vee,

      No problem. It sounds like you are doing everything correctly. We actually vacuumed and washed and dried everything, as you are, and then left our house for a long weekend - the mites cannot survive off of a human host for longer than 48-72 hours. If you cannot leave (just for the peace of mind), then just do as you are doing and maybe vacuum couches etc. and cover them with a clean sheet for the 48-72 hour period just in case something is on there. It would be incredibly unfortunate if anything was crawling around the house to begin with, and highly unlikely it could crawl out from under a sheet and onto you at that. They don't spend that much time above your skin or off of your body, so what you are already doing should be enough. There was a study done in which they determined that only 4 out of 60ish people who slept in the same bed with an infested person actually picked up scabies from the sheets, so this is not nearly as much of a threat as actually touching another infested person who has not been treated.

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      Vee 5 years ago

      Hi Samoa6

      Sorry to bug again but one more question? How did you clean your environment because I keep reading all these things about people getting reinfected? I have been using sheets towels and clothing just once and washing them in hot water and drying them in heat also and I just vaccumm and spray couches and mattress with bug spray anything different I should be doing?? Sorry I just want these things gone thanks.

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      Samoa6 5 years ago from San Diego

      Right - second treatment in 7 days to kill anything that may have hatched since the first treatment. (Permethrin does not kill eggs, so you have to wait for them to hatch before doing the second treatment). Even with no medical conditions, the permethrin can do a number on your skin (and maybe your immune system), so beware. One commenter has been experiencing twitching eyelids following permethrin treatment, for 4 months. I think this is an unusual response, but you never know, so just be careful not to overdo it, and don't get it in your eyes.

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      Vee 5 years ago

      Samoa6

      Thank you so much for your quick response. I think I will be fine since I have no medical conditions so I shall be doing my second treatment in 7 days thanks again and I will come back with my progress.

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      Vee 5 years ago

      Samoa6

      Thank you so much for your quick response! I don't have any medical conditions so I think I'll be ok to do so. I would do the second treatment in seven days right? I hope it gets rid of them it's only been a few weeks and I am going crazy! So sorry you felt with it for so long.

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      Samoa6 5 years ago from San Diego

      Vee - I did not coat my hair with the cream, just my scalp and the skin on my face, including the bases of my eyelashes and just inside the nose, even though, again, the instructions on the label say not to put it in either of those places. This is why I say you should talk to a doctor in case you have a medical condition or history that would suggest permethrin could be dangerous for you.

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      Samoa6 5 years ago from San Diego

      Hi Vee,

      Scabies do in fact go on your face, my family is living proof. We had them in our eyelashes as well as just inside our nostrils. It may be rare, but if you feel something crawling on your face, then my bet would be that it is indeed scabies, even though most doctors will tell you it isn't. I am not a doctor, but after my (lengthy) experience, I would suggest you find one who has plenty of experience with scabies as well as post scabies syndrome, as such a doctor will be aware of the fact that they do sometimes infest the face, and will most likely tell you that you should treat accordingly, just like the dermatologist that we finally found (after an entire year) did. The label on the permethrin cream (make sure you are using 5% and not 1%, which is used for lice, not scabies) says to treat everything from your head (including under your hair) down to the soles of your feet. It also says not to put it on your eyebrows or eyelashes, but we had to put it there, given we felt crawling there and actually taped specimens from there. So you might want to talk to a doctor about going against the instructions on that one, since permethrin seems to have a whole suite of side effects that can continue to bother you long after your treatment, even though the mites have been killed. You can read about these effects if you follow the link at the bottom of the above article that goes to another article titled, "How Do You Know If Your Scabies Treatment Worked: Post Scabies Syndrome." Please feel free to write with anymore questions and I will try my best to answer. Also, if you think of it, drop us a note after you are cured so everyone who reads this site can benefit from it. Thanks for your comment and good luck with your treatment - I hope you experience relief soon.

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      Vee 5 years ago

      Hi samoa6 I was wondering if you applied the permethrin cream on your face and hair also? I have been having the same feeling of something crawling and biting me for three weeks and keep being told its not scabies but I do think it is as I was exposed at the same time as my symptoms started. I did get the cream but still feel the crawling especially on my face but I didn't apply it to my face.

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      Samoa6 5 years ago from San Diego

      L'Anja - one more thing, every now and then I do actually still feel something like a wisp of hair on my face or wherever that resembles a crawling sensation, and I get a little nervous for a minute that the mites are back, but it always subsides relatively quickly, and is nowhere near as persistent as the crawling was prior to treatment. I think this might all be part of some sort of odd immune reaction, but I'm not sure. You can read about post scabies syndrome and effects of permethrin treatment in my other article entitled "How Do You Know If Your Scabies Treatment Worked: Post Scabies Syndrome," to which there is a link on this page, at the bottom of the article.

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      Samoa6 5 years ago from San Diego

      Hi L'Anja,

      Yes, I still felt crawling after the initial treatment for a couple of days. But the crawling definitely subsided after the second treatment (you are supposed to cover yourself with permethrin twice, one week apart). However that was when the bumps etc. that looked like poison oak and itched like crazy began to emerge, much worse than anything I experienced before treatment! But that, too, eventually subsided. It took several months before it went away pretty much entirely. Good luck to you and thank you for commenting.

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      L'Anja 5 years ago

      Thank you so much for post, Sooooo helpful Did you still feel crawling sensations after treatment?

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      Samoa6 5 years ago from San Diego

      I definitely felt crawling there when I had scabies, although mine was not apparently the typical case. When I did the permethrin treatment, I did it there as well, not inside but just the surrounding skin area - the instructions on the label say not to use it inside the vagina. I had the same sort of reaction you are describing, but not in the vaginal area. I would suggest to first call around a find a dermatologist who has a lot of experience with scabies, i.e., if they are not aware of what people are calling "post scabies syndrome," then don't waste anymore time with that doctor. After you find one with experience, he/she may be able to prescribe or suggest something that is meant to be used in that region. Hydrocortisone is useful for the skin in other areas, but I am not sure if you are supposed to use it there. A doctor might also recommend a general anti-histamine to lessen your immune response and therefore the overall itching. I suppose you should also get someone to rule out the possibility that something other than scabies/permethrin causing your discomfort, like a sexually transmitted disease. By the way, my itchy bump reaction became less and less over the first month, and was pretty much gone entirely after three months. But even up to six months out, I would occasionally feel like the mites were back due to a small random itchy rash here or there, but nothing that lasted longer than a couple of days, on and off.

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      itchy 5 years ago

      hi I have treated myself for scabies over 2 weeks ago. Did the treatment twice and i still am waking up with extreme itch in my vagina area. Does anyone have any ideas what i can use to heal the skin. I am certain scabies have gone but the post rash is terrible for me. small welt like lumps in all areas of body. They last for an hour or so then go only for more to appear elsewhere a couple hours later. I can cope with this but the constant itch on my vulva is really hard to bear. Look forward to anyones replies. I saw 3 doctors during my outbreak and all 3 said you can't get scabies on your vagina. I was so shocked as there are hundreds of woman writing about it online.

      Thanks

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      Samoa6 5 years ago from San Diego

      Hi Scabies Man,

      I do not have any experience with the symptoms you are describing, but would guess that since you are able to lift worms off of your skin, you ought to be able to take them to a doctor or parasite expert to have them identified, which should guide your treatment decisions.

      Importantly, I disagree with your statement that you should not bother with talking to a doctor. If you are in fact obtaining any of these drugs without first consulting a doctor, I would advise that you stop immediately and find good dermatologist or parasitologist that has experience with your symptoms. The reason I say this is that there are sometimes side effects of these drugs, and combining them as you say you are may only make these effects more likely or more severe. In particular, you should read my other article that discusses what appear to be some long-lasting side effects of permethrin use. If you refuse to see a doctor, I would hope that you at least follow the instructions on the drug label very carefully. Thank you for taking the time to post. I hope you find relief from this problem soon.

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      Scabies Man 5 years ago

      I have this problem, I can feel the parasite running around REALLY fast. If I try to trap it, it moves around faster and starts biting. I'm hoping the doctors are right and it's scabies and not something less common like a skin-infesting Threadworm. It was the 4th doctor who diagnosed scabies - the other 3 had no idea it could present like this and sent me away with nothing.

      I've been treating my whole body with Malathion liquid (0.5%). Within a few hours, I was lifting these worm like things off my skin (some were still alive). They were coming from areas I had no idea were infected, some from cracks in my body, but most were coming from other areas like my back, chest, middle of my leg etc.. It didn't hurt, but as you can imagine it looked very distressing. They were small enough to come out of the pores, and didn't seem to leave any visible marks (except for their tracks in some areas).

      Malathion is hard to find for some reason though, and there's 1 parasite left in me that I can feel still running around like crazy despite repeated treatment of that area, so I've now switched to treating with Permethrin (which seems to be what most information sources online recommend for scabies).

      Additionally I am taking Mebendazole (100mg), just in case it isn't what we think it is (Mebendazole is for worm type parasitic infections).

      The MOST IMPORTANT THING TO NOTE about all this though is that all these medications are available over the counter without prescription. If you are experiencing these symptoms (the original poster described very well), don't even bother with your doctor, just get the treatment (or get the treatment and then see your doctor). It doesn't pay to wait with this, and the treatment won't do you any harm if it turns out not to be. That is also likely what your doctor will do if he does suspect it (give you the treatment and see if you respond, cheaper and quicker than performing a test).

      I'll post back soon, with any updates - hopefully just to say it's cleared up and it took x number of days/weeks!

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      Marissa 5 years ago from United States

      Wow! What a thing to experience. And I've never heard of 'delusional parasitosis', but I guess it's the same effect when you hear about a bug and you get all itchy (like I am now, lol).

      Thanks for sharing, and welcome to HubPages!

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