report

My Experience Living With Pancreatitis

Disclaimer

I am not a doctor. I am not a PhD. I didn't even attend college. If you use any of this material you do so at your own risk.

Read everything on this page. If you need to leave, bookmark the page or better yet email the link to yourself and place it in a folder named "Living With Pancreatitis" so that you can easily find it. The reason you'll want to do that is because I seriously doubt you will find this kind of in-depth, from-the-horses-mouth kind of information about living with pancreatitis anywhere else on the net unless it is one of my sites.

But Why Listen to Me About Pancreatitis?

Just because I am living with pancreatitis doesn't mean you should listen to me. I may have been living with pancreatitis for over 30 years, but that simply means I could be a lucky idiot; length of time in the saddle certainly doesn't mean I am a skilled rider does it? So, what is the real reason you might be interested in listening to me? You may want to listen to me because...

I Am Pain- and Symptom-Free

That is the most important reason. I was given the drive to uncover the formula, the secret to healing. If you are looking for information about how to beat pancreatitis and live pain-free I will give you what I learned for free.

The information you'll read on this page is not from someone who has simply read about the condition in order to gather the information necessary to write an article. This information is from someone who has been diagnosed with pancreatitis, lived with the condition for a long time, and has found ways to adapt, improvise, and overcome.

Pancreatitis Is Not an Illness to Take Lightly Because It Can Kill You

Sure the "overall" death rate from acute pancreatitis may average out at less than 10 percent, but if you are one of the unlucky 10 percent that would certainly suck wouldn't it? Complications such as necrosis, infection (necrotizing pancreatitis), hemorrhage, and organ failure can rocket that percentage of death up to 50 percent. The damage caused by acute pancreatitis often leads to chronic pancreatitis, causing long-term suffering that can make one wish they had died.

Are you living with pancreatitis? If you have been diagnosed with acute and/or chronic pancreatitis, want to prevent more acute pancreatitis attacks along with the resulting damage, lessen your pain and other symptoms without narcotics and possibly heal your pancreas, well, this may be the article you've searched high and low for.

This article contains information on:

  • My personal pancreatitis story (big deal right?)
  • How to stop an acute pancreatitis attack in less than 90 minutes
  • What foods are safe to eat and those that will make you sick
  • Why you should drink grapefruit juice, if possible
  • The five supplements that may change your life

And much more.

Why I Want to Share This Information:

After gathering tons of information via research, and successfully becoming pain- and symptom- free, I was asked to share what I have learned; so I created this page. I gathered this pancreatitis information in one place for people who are suffering from pancreatitis themselves, or who have a loved one who is.

As you read through this article, you will find information about symptoms, my experience with doctors and what I think of most of them, the possible complications of the condition, and the primary and secondary causes. You'll also discover what I have learned through experience about such things as diet, alternative home remedies and supplements, and my own mandatory regimen I follow in order to make living with pancreatitis a lot easier, and I think safer, with less possiblity of horrific complications.

So sit back, relax, grab a cup of joe to enjoy while you and I explore the in's and out's of living with pancreatitis.

My Pancreatitis Story

If my pancreatitis was caused due to a football injury, it is my fault I have the condition because I made what turned out to be a very serious mistake.

I was playing center linebacker for my high school team when the injury happened. The fullback had the ball. He came through the line, head lower than mine, (dummy me), and when we hit, his helmet smashed into my gut. About 200 pounds of charging meat smashing into my gut at full bore. I did make the tackle but he tagged me hard just below the rib cage, center mass. It felt great.

I sat out the rest of the game and my folks took me to the family doctor. He had me lay flat on my back, put his hand on my abdomen and asked me to do a sit up. I couldn't. He figured the contact had torn my abdominal muscles, and told my folks that I was to sit on the bench the rest of the season. I started having some problems soon after: heartburn and nausea.

I kept complaining of heartburn and nausea so I soon found myself chatting with the doc. He thought I maybe had an ulcer. That led to my first upper GI test. Barium is so yummy I enjoyed it immensely. The stuff tasted like a thick, white shit malt. My GI tract was clear. So the doc scheduled me for the old dye test for gallbladder disease. I guess teens can have gallstones; however, my gallbladder worked fine with no sign of gallstones. So, when tests didn't show any reason for my symptoms of course I was then a "head case" with hypocondria. He obviously didn't remember I had been hurt playing ball. Here's the funny part...

My Symptoms Simply Disappeared

After several months of feelings like crap, bouts of nausea for as long as two weeks at a stretch and heartburn that started in my gut and traveled all the way to the tip of my tongue, those symptoms simply vanished. I was fine. Hey, I was damn glad they were gone. I didn't miss them, the doc, or the medical tests one bit.

I graduated from high school and enlisted in the Marine Corps. Towards the end of my last tour of duty I started getting sick. This time I experienced heartburn, nausea, and pain. The pain would start center mass and bore into my back or vice versa. I went to sickbay. The Corpsman couldn't determine what was wrong and figured whatever it may be was beyond his pay paygrade, so he scheduled a visit to Oakland Naval Hospital. I felt good about the appointment because military doctors are usually good; they have to be to save lives in wartime trauma situations. I was looking forward to a resolution of my problem.

While at the hospital I was subjected to another upper GI, more blood work, saw a Naval doctor, and was sent back to duty with a prescription for Librax. The Librax took the nausea away, which was a great thing because I hate to puke, but it did nothing for the pain. After about 30 days of off and on sickness, the symptoms again disappeared. What a relief to feel normal again.

I'm Diagnosed a Nut?

Come to find out later (after my enlistment and an honorable discharge) that Naval doc thought it was all in my head (tests showed nothing), and he put that in my SRB! I found out when applying for life insurance. I was told that my SRB showed a possible mental disorder. If I had stayed in the Corps that little bit of info in my SRB could have seriously damaged my career as a Marine.

The Hurt Locker

Then, in the late '70s, the symptoms came back with a vengeance, and I visited the ER seven times. Seven ER visits and none of those people could figure out what the problem was. I was beginning to dislike doctors, and understood why their business is called a practice. I had one doctor, who was a digestive disease specialist, tell me after a whole five minutes that he thought I was too young for a serious problem and was sure I had a spastic colon.

In the late 1970s I did not have a computer or access to quick information online, so I spent a lot of time in the library reading about diseases and symptoms. I found that gallbladder disease can present with similar symptoms, and passing stones can be painful but there are some key differences between gallbladder disease and pancreatitis. For example...

  • Alcohol doesn't affect the gallbladder but will cause major pain with pancreatitis.
  • The pain is usually more severe with pancreatitis and comes on suddenly, but it can also have a gradual build up. A telltale symptom of pain starting in front and boring into the back or visa-versa is a typical pancreatitis presentation.

Symptoms I Have Experienced

I have experienced severe pain, nausea, vomiting, fever, chills, sweating, difficulty breathing, swollen abdomen, rapid heart beat, and other symptoms. One symptom I had when I was really bad was that I could not stand something, like an arm or hand, laying on my abdomen. It would make me nauseous and cause pain. At times motion (driving the car, running) would make me sick, and I had never experienced motion sickness of any kind before, even on board ship in heavy seas. Anyways...

I finally found a really good doctor who not only reordered tests I had done previously, but also ordered new tests, some of which he did himself like sticking a scope down my throat so he could view my bile ducts.

He then gave me two drugs while in his office that caused me to have an acute pancreatitis attack. He drew blood every 30 minutes for approximately three hours when my enzyme levels suddenly spiked. This confirmed his suspicions. He again asked me how many times this had happened and I told him again of the seven ER visits and that those were just the really horrible attacks. He calmly mentioned I was lucky I wasn't dead.

The "You're Gonna Die" Chat

We had our little discussion about "preparing for the worst." He told me I had been having acute pancreatitis attacks and that I'd probably continue to have chronic problems. He went on to say that within 10 years I'd be looking at a pancreatic transplant because my pancreas would cease to function; I wouldn't be able to eat and that the success of pancreatic transplants at that time wasn't the best. I think he was trying tell me that within 10 years I might be dead.

I had finally found a good doctor. He told me no more alcohol, prescribed some drugs, and told me exactly why he was prescribing them. One drug, Robinul was to help slow down the digestive process. Compazine was for nausea and Demerol for pain. The Demerol didn't help, it didn't even take the edge off but...

One night while I was in massive pain I was going through the medicine cabinet when I discovered my wife's Motrin. Big pills that the bottle said to take for pain. I was in extreme pain, so I popped one of those horse pills. In 30 minutes or so my pain started to subside and was gone in less than an hour. I was one happy guy. I told Dr. Langdon about the pills. He told me they were an anti-inflammatory and as long as they worked he sure didn't have a problem with prescribing them. In fact, he was a little upset that he hadn't prescribed an anti-inflammatory before since pancreatitis is an inflammation of the pancreas.

Cool! Things were looking up! I had pills that would slow down my gut, pills for nausea, and pills that actually took the pain away without the chance of becoming addicted to opiates like morphine. Now it was time to learn how to heal and beat the 10 year time period.

I Wanted to Live

I did hordes of research after my diagnosis. My research led me to completely eliminate red meat, pork, mayo, butter, cream, and everything else with high fat content from my diet. In other words I was on a diet of fish, poultry (chicken and turkey), fruit, vegetables, legumes, and whole grain products. I also started taking vitamins and minerals to enable me to get enough nutrients absorbed because one of the complications that arises from pancreatitis is called malabsorption. Basically that means you don't absorb nutrients from food like you should. I started taking a multiple vitamin-mineral formula.

Years later I found research on OPC's (pycnogenol and grape seed) and curcumin (turmeric). The virtues of the two sounded too good to be true, but I gave it a shot. I started taking vitamin C, grape seed, and turmeric. Then, after six months of no problems (no pain or other symptoms), to "test" the benefits of Vitamin C, grape seed extract, and curcumin I stopped taking my meds. Six months later I was still in a "no problem zone." The diet and supplements were definitely working. However...

I didn't know what portion of my program was important so I tried eating red meat. After a few days of steak, roast, and hamburger I was sick as a dog. So that meant the diet was damn important. Once I was symptom-free again I eliminated the vitamin C, grape seed, and curcumin. Soon I was sick again. Being a right smart feller I figured that meant that BOTH the strict, low fat diet and the vitamin C, grape seed and turmeric were a necessary course of action unless I wanted to be in pain and puking.

The bottom line? I'm still alive and can still eat.

Breakdown of causes of Pancreatitis
Breakdown of causes of Pancreatitis

Pancreatitis Causes

The two most common causes of pancreatitis are gallstones and alcohol consumption.

Gallstone pancreatitis occurs when a gallstone or stones pass from the gallbladder and get stuck in the pancreatic duct or the ampulla of Vater portion of the common bile duct.

Alcoholic pancreatitis has always been thought to occur in those who consume vast amounts of alcohol via consistent long-term drinking and/or binge drinking. New research suggests that alcoholic pancreatitis may be linked to a genetic variant in DNA.

Traumatic abdominal Injury is another cause of pancreatitis. Traumatic abdominal injury sustained from a car wreck, bad fall, gunshot wound or a 200 pound full back slamming into your gut at full speed, may cause pancreatitis.

Cancer of the pancreas often causes pancreatitis. In fact I have read where doctors say that pancreatitis pain is the cancer pain without the cancer yet how would they know if they have never had either? Maybe some do actually listen to patients?

Other causes include:

  • autoimmune disease (autoimmune pancreatitis)
  • genes (hereditary pancreatitis)
  • medications (the list is long)
  • exposure to certain chemicals
  • surgery and certain medical proceedures such as ERCP
  • infections like mumps
  • high blood fat levels
  • sphincter of oddi dysfunction
  • pancreatic abnormalities such as pancreas divisum

I imagine there are other factors for causation as well.

Pancreatitis Pain Is the Worst Pain Imaginable

" ... inflammation of the pancreas causes some of the most severe pain that people have ever imagined" - Dr. David C. Whitcomb

Those of you who have friends or family who just can't get their head wrapped around the agony you go through and say stupid things like: "It just can't be that bad!" or "I've had a baby, that is the worst pain. I don't see how yours can compare," or some other ignorant, uninformed remark in regards to your ability to function— have them watch the video below.

Pancreatitis Pain and the Latest Research in Relation to Genetics as a Cause for Pancreatitis

Pancreatitis pain is horrendous. I wanted to post this so that pancreatitis patient family members and/or friends can hear from a prominent pancreas doctor what the pain is like when someone has pancreatitis. This should be somewhat of a revelation for those of you who think your family member or friend is a weeny that merely complains a lot or for the less than intelligent doctors out there that think pancreatitis victims simply want drugs for a nice trip.

Researchers are discovering that alcoholic pancreatitis and other types of pancreatitis may be genetically predisposed. This type of information may be of value to those who are like me and like to know why they may have this disease called pancreatitis, when others do not. Of course...

Dr. Whitcomb, Chief of the Division of Gastroenterology, Hepatology and Nutrition, at the University of Pittsburgh Medical Center, touches on the genetic factors involved in those who develop pancreatitis.

Pancreatitis Can Be Difficult to Diagnose for Several Reasons

One of those reasons is simply that when it comes to pancreatitis, doctors can be dumber than bags of barber hair or seem to be because they don't listen. They are in too big a hurry to see their next patient, are thinking about their golf tee time, or simply don't care because it isn't them who is in agony.

Another reason is that they think they are omnipotent, know your body, its symptoms (what you are experiencing) a lot better than you do and if you beg to differ they simply chalk you up as a drug addict looking for a fix, a hypochondriac, or a lonely person in need of attention.

Another reason is that many doctors have difficulty diagnosing anything unless it slaps them in the face (CT scan showing horrendous damage due to necrotizing pancreatitis or cysts the size of watermelons). Horrendous damage and internal bleeding helps them arrive at a diagnosis of pancreatitis, but if you don't have those types of complications yet, it can be difficult to diagnose the problem.

If you have moderate to severe gastrointestinal symptoms and have yet to have a doctor give you a correct, common sense diagnosis, make sure you persevere in finding a gastroenterologist who received his/her degree from somewhere other than Cracker Jack University, is able to recall what they learned in medical school, and uses common sense along with the modern diagnostic tools. I know I am asking a lot because...

Finding a good doctor with great diagnostic skills is like locating a huge placer gold deposit, but I know there are at least one in 14 (7%) who have brains and diagnostic ability. In fact, here's one who wrote an article about Chronic Pancreatitis and Current Problems of Diagnostic Criteria

Just make sure you don't give up. The sooner you get diagnosed the better because there is evidence that the damage from both acute and chronic pancreatitis is reversible if it is diagnosed early enough and if you take appropriate measures to insure that the inflammation in your pancreas has completely abated and the tissue allowed to heal.

I wish you good luck.

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Grape Seed Extract

NOW Foods Grape Seed Anti 100mg, 200 Vcaps
NOW Foods Grape Seed Anti 100mg, 200 Vcaps

If you are sick you'll need to take fairly high doses to see results. 200 mg four times per day would be about right. If I could only afford one supplement, this is the exact supplement I would choose ( I use this exact formula) because it has both grape seed (highly anti-inflammatory) and vitamin C in a decent dose of 320 mgs per capsule. What this means is that you don't need to buy vitamin C separately with this product. You get more bang for your buck with this grape seed supplement.

 

Curcumin

Jarrow Formulas Curcumin 95, Provides Antioxidant Support, 500 mg, 120 Veggie Caps
Jarrow Formulas Curcumin 95, Provides Antioxidant Support, 500 mg, 120 Veggie Caps

Curcumin is a powerful anti-inflammatory. Jarrow makes quality products. This is the curcumin supplement I use. At 500 mgs (one cap) per day, it's a three month supply. If you are still quite ill you may need two to three caps per day. If you have gallstones or SOD you should not take curcumin. Higher doses of curcumin can cause stomach upset, nausea, even vomiting so work up slowly to make sure it doesn't provide side effects you don't want. Two or three caps per day should be fine but work up from one cap per day just to be sure.

 

Is There a Pancreatitis Cure?

I know that when you are in extreme pain due to acute or chronic pancreatitis that there is nothing you'd like to find more than a cure.

I'm not gonna lie to you.

There is no cure for pancreatitis. However, my research is leading me to believe there may be hope of possible pancreatic tissue regeneration. If regeneration does exist within the ability of pancreatic tissue, then it would be common sense that dictates what the immediate course of action should be when acute pancreatitis strikes in order to...

Not simply relieve pain with narcotic drugs but to actually stop the acute pancreatitis attack in its tracks in order to prevent catastrophic damage and possible death due to shock, necrosis, infection, or organ failure. The less damage sustained, the easier it will be for the pancreas to regenerate, if there is tissue regeneration capability.

I don't want to get all religious here but if you believe in God and His Creation, wouldn't one wonder if He created man in His image (Bible states we were created in His image) and His image being perfect, that there would be some form of regeneration potential in case of damage?

It is food for thought don't you agree?

So, as I find research regarding potential renegeration of pancreatic tissue I'll post that information within a section of this article pertaining to the regeneration of pancreatic tissue.

Don't get your hopes up.

However, if there is any possibiltiy of regeneration, I am sure it would only happen if the pancreas was not inflamed by alcohol or diet.

I know that even though the possibility of pancreatic tissue regeneration may be good news—it isn't the news you were hoping to hear. You were hoping to hear that there is indeed a pancreatitis cure, but...

As far as I know there is no cure for pancreatitis. Once acute pancreatitis has damaged the pancreas, it is quite likely you will have another event of acute pancreatitis and then the disease will evolve into the chronic form. Sometimes acute pancreatitis resolves, never to return, but that is not the case in the majority of those who have been lucky enough to have been inducted into our private pancreatitis hall of pain. And so...

Since there is no pancreatitis cure we must adapt, improvise, and overcome so that we control pancreatitis pain and damage thereby allowing pancreas healing to take place.

Surgery for Necrotizing Pancreatitis

I have been an extremely lucky pancreatitis victim. So far, to my knowledge, I have not had any major complications such as necrosis, cysts, or infection. However, the last thing I'd want is necrotizing pancreatitis. It has a fairly high death rate—as much as 50 percent when coupled with organ failure. This is why I take great care in adhering to my very low fat diet, abstaining from alcohol in every form, and consuming fairly large quantities of certain vitamins, minerals, antioxidants, curcumin, grapeseed, vitamin C, and enzymes.

Sugical Procedures for Pancreatitis (Acute and Chronic)

I am locating info on surgical procedures so that you folks can learn about what I categorize as "last resort" options. I do not recommend slicing and dicing. The sickest people, those who can not seem to heal, are the ones who have been what I call "gutted" by some surgeon.

However, there are instances (necrosis with infection aka necrotizing pancreatitis) that certainly warrant surgical intervention, and the patient may not live without it. Under those circumstances, one may have no choice, but for those who are not yet seriously damaged, I am more inclined to suggest a total lifestyle and diet change. This has worked for me, though iit isn't easy to give up foods you love; but, I'd rather do that and keep my organs intact. Many people do not share my views. So...

It is for those people I am gathering info about surgical procedures and posting them here because when one continues to eat foods that are inflammatory to the pancreas or continue to drink alcohol, sooner or later you'll be needing information on surgical procedures.

The Puestow, Frey, and Whipple Procedures

These surgical procedures are done either to correct complications or alleviate pain. Once done you cannot get an "undo," and most people who I have either chatted with online or read about are worse off after the procedures than they were before. Some see pain resolution for a time, then it all falls apart and they are back in the same boat though usually worse because their boat now has holes.

Islet Cell Autotransplant After Total Pancreatectomy (TP/AIT)

Twelve-year-old Brittany Alexander has suffered since she was four years old with pancreatitis. In May 2012 Brittany underwent a pancreatectomy and islet cell autotransplant. One month after her surgery, Brittany talks with Dr. Katherine Morgan and nurse coordinator Betsy Shuford at the Digestive Disease Center Division of Gastrointestinal Surgery at the Medical University of South Carolina in Charleston.

Important Note: Brittany and others I have found online have newly done procedures, all within the last couple of years. I have not been able to find any living patient experiences after five years. Make sure you read the next section about TP/AIT, including what little research there is online about outcomes both short and long term which seems to be very elusive and non-existent.

Your story about your experience may help others by sharing the experience with us all. So tell us everything, including as to whether or not the proceedure was successful, if you'd recommend it (non-emergency types of proceedures such as ERCP), and so forth.

Please continue reading below the following comments section for more information on types of food and supplements I've tried while living with pancreatitis.

Have You Had a Pancreatitis Surgical Procedure? Share Your Story! 61 comments

anonymous 5 years ago

I love you! Your shoot from the hip presentation is refreshing, and I don't put much trust in Dr's either, other than for diagnosing. I feel blessed to have found you!

I had my 1st bout (that I know of) with pancreatitis last month. I was in severe pain for over a month, before I went to ER. CT scan & ultra sound showed I had a gallstone lodged in a duct.

I refused to allow them to remove my gall bladder because Gallstones can form anywhere along the biliary tract where bile is present, it's not always a faulty gall bladder ... I have had it for 61 yrs, I've grown fond of it! Their "just in case" rational was not justification enough for me to be sliced & diced. It pissed off the dr & he stormed out of the room screaming about how stubborn I am.

I did my usual turn to natural healing. Researching remedies led me to do the castor oil pack 3 days a week. (http://www.earthclinic.com/Remedies/castor_oil.htm... I began sleeping on a healing magnet pad and holding a magnetic pad on my tummy when setting watching TV, drinking a lot of magnetized water & twice a day I drink 2 oz ea of Noni, Goji & aloe vera juice.. So far no pain and I have so much energy, even my diabetic nerve damage tingling & pain is gone!

I am going to do your 6 month vegan suggestion. I'm not sure I can do without my midnight snack of Greek yogurt & a chunk of cheese......... sigh ...........

I also read that coconut is wonderful for digestion as well as healing, and that coconut butter is a tasty, healthy butter replacement, has anyone on here tried it? That's on my todo list along with grape seed, Curcumin and a juicer for the vegan thingie when I find the best value @ the cheapest price.

BTW Swansonvitamins.com is the best source I have found for suppliments, cheapest too, I found them while searching for pancreatitis remedies, they have a huge selection of natural stuff! (No, I don't work for them) I'm just passing on info from one frugal peep to another.

Thanks from the bottom of my emaciated pancreas for you and your knowledge, for caring enough to create this site to share your info & bring us sick-o's together to share info.


anonymous 4 years ago

I first got pancreatitis 6 years ago. The doctors thought that I had gallstones since my mother and grandfather had their gallbladder taken out. After the surgery, I ended up in the hospital 4 times. The CT scans, MRI etc did not show anything super specific. They ended up doing an ERCP to find out that I had pancreas divisum, which is a congenital abnormality that happened in the room. I have two ducts instead of one and one of them gets clogged. I hav had 3 ercp with stent placement and removal. My most recent ERCP in Febraury 2012 actually caused pancreatitis.

I found out I had chronic December 2011. It was very difficult for me to handle that because I can go to the ER in pain but my enzymes and everything will show to be normal. I always have to carry my papers around. I have been hospitalized over twenty times with pancreatitis, which is why I now have chronic.

I tried to get celiac plexis blocks but they did not work. Everyday I have to take high dise of narcotics nd enzymes. Im sick of being on pills because it can only get worse as my body becomes addicted. I am looking for alternatices. I am only 25, I can't drink, Do not eat fatty red meat or high fatty foods. You will feel it later and its not worth it. If anyone has any suggestions please let me know.


TheHealthGuy LM profile image

TheHealthGuy LM 4 years ago from U.S.A. Author

@anonymous: Hi Lorraine. I am saddened to hear you have had so many troubles with pancreatitis. It isn't a fun disease to live with and I hope you find healing. Thanks for sharing. I wish you a day free from pancreatitis pain :-)


anonymous 4 years ago

I have been diagnosed with hereditary pancreatitis and over the years I have had 13 ERCP & 2 MRCP and my Dr has informed me that the bile duct is exceptionally small and would not recommend any kind of surgery . I am 46 year old women and a full time job that I leave home early due to my pancreas issues. What can I do to live a bit more normal on a day to day basis ? It's just sucks the life out of me because I'm unable to enjoy any meal at all and try avoid eating due to getting sick after.

If you can give me any advice please mail me at

Kimberleysnetwk@aol.com

Thank you for your time for reading my post.

Kimberley


TheHealthGuy LM profile image

TheHealthGuy LM 4 years ago from U.S.A. Author

@anonymous: Kimberly the only thing I can suggest is to follow what I did when I was really sick and still do today. Diet is extremely important. If you keep eating things that piss off the pancreas you are going to continue to suffer. Vit C, grape seed extract and curcumin are extremely important to resolve inflammation, pancreatic enzymes help digestion and grapefruit juice seems to stop AP from occurring. So does the grape seed extract. The two are vital necessities along with enzymes for those of us who have this crap. I'd suggest you invest time to read and study my blog. You can find links to it on this page. I share everything I know at my blog for free. Stay away from support groups. They are full of sick people leading sick people and what does that do for ya? Keeps ya sick cuz they don't know how to get well or they would BE well. So that is about all I can recommend. Diet and supplements are extremely important. IF you do not quit drinking or consuming alcohol (not saying you do) and adhere to a strick pancreas friendly, anti-inflammatory, pancreatitis diet you will always be sick and what YOU THINK is safe or what your doctor or nutritionist has told you is safe is most likely WRONG. So ...

Invest the time necessary at my blog and I wish you good luck and better health. Oh ...

ANYTIME you have a question, feel free to ask! I will help IF I can. Just remember I ain't a doctor nor can I prescribe treatment. If you do what I do you do it at your own risk. :-)


anonymous 4 years ago

My 16 year old sons "speciailsts" were idiots. Our primary care doctor ordered blood tests for my son that showed elavated Lipaze and Amylaze. Like a good parent, we do the my gastroenterology doctors, where the doctors tells us the lab "must have made a mistake". So, going back to the lab, the blood work had gone back to normal. So, off to a hematologist/oncologist, to be told my son might have a rare genetic disorder, the one where you can't go out in the sunlight. Surprise to me, since he is always outside. So, back and forth, the primary care doctor and I are going crazy, trying to get someone to listen, finally, we find a GREAT doctor, who orders more tests, the "useless" for pancreatitis CT scan. All looks fine, but he is open minded. My son gets sick again, the primary doctors faxes orders to the lab, and, 24 hours later, elevated Amylaze and Lipaze. I actually felt good. Then, for once, I hated being right, My son is almost 19, has had 4 ERCP's, 1 to put in a stent in bile duct, one to add a bigger stent and a third to remove the stent, Good for 6 months, home sick from college, now he has elevated billirubin. Now we have Pancreatitis and starting liver damage, 4th ERCP 2 days ago, cutting the bile ducts in the pancreas and the liver in place of stents. Ordered to go on a low fat diet, told him alcohol will KILL him, and, thanks to you, a place to start. I know the value of Grape seed extract, and, it helps MANY illnesses, I just don't want my son to die. There is not enough information out there, for people suffering this disease. And, know onw knows enough about it. I feel lost and alone. But, I am doing what I can for him. Thank you for the information, I read what you said about the doctors, and, you are right. I have had the same primary physcian since I was 15. My son has had hims since the day he was born. I have a doctor with a vested interest in my family, and, very "Dr.House" like, but, "Dr. House would need Santa's personality.


TheHealthGuy LM profile image

TheHealthGuy LM 4 years ago from U.S.A. Author

@anonymous: Deborah HOLD ON TO YOUR PRIMARY CARE DOC! He sounds like a damn good one and GOOD doctors are so rare it is ridiculous. Spend some time on my blog and learn how to do a pancreatitis food diary for your son. It is extremely important to learn what triggers an acute pancreatitis attack or even a flare (some pain and nausea) and avoid those foods at all cost. It is especially important if his liver has now sustained some damage. The good news is that the liver can regenerate in some cases. But a modified vegan diet and the supplements could make a HUGE difference. I don't want you to lose your son either. I hope he heals. Good luck.


marhaba 3 years ago

Hugh Fitzpatrick: I am a post Frey's procedure patient (almost 3 years) looking to exchange health info/issues with same. Do please respond to my request. Thank you .Hugh.


anonymous 3 years ago

Well here I go again on Friday January 11th for another endoscopic ultrasound for the 2nd time in 8 weeks !!! Last time they found a tumour inside the head of the pancreas and the biopsy came back not cancer TG !!! But since then. I have still had a lot of pain and not quit a bit on my left side ! Not sure if it could be the tail of the pancreas now but it is way too painful and pain I've not felt before ... I have Hereditary Pancreatitis and I now pain .

Has anyone ever had the left side pain and what has the Dr told you what it was ?

I'm hoping after Friday I can get some answers and I would love to go out and enjoy a nice meal, it's been awhile : (

Looking for advice from anyone who is going through the same thing ; )

Kneeled


anonymous 3 years ago

I didn't have pancreatitis or even symptoms until the doctors found out that I ha a cholodochal cyst in my bile duct. Didn't realize the ERCPs they were doing were making me sick until the last one put me in and out of the hospital for a month. Now I have a damaged pancreas whereas I had a healthy one before. And they still want to keep doing ERCPs on me to check my bile duct. I fought them and got them to settle for now on abdominal MRI and less invasive CT of pancreas. Always question your doctor. It's your body.


TheHealthGuy LM profile image

TheHealthGuy LM 3 years ago from U.S.A. Author

@anonymous: Sometimes it is definitely better to question your doctor's treatment. Many times the treatment is worse or ends up being worse than the original condition and ERCP is NOT safe. 11% of those who have ERCP end up with complications, some worse than before ERCP. Pancreatitis and the resulting damage to the pancreas is one of those complications. They have forgotten that portion of their oath that says: "first do no harm."


marhaba 3 years ago

The initial cause of my pancreatitis is very similar Beenthere. I have always been troubled with gastric reflux and the medications then were not doing the trick, so my GP would send me to outpatients where over a period of time they tried various procedures such as endoscopy and and sending me home with a nasoe tube up my nose and down my gullet to test the acidty in my gut. I finally had three ERCPs and it was one of those that I recall hurt me and I'm not sure if the doctor was qualified to do the procedure but it was after that, I began to be hospitalised with severe pancreatitis. I've had Frey's procudure three years ago, which has left me with a 28" scar, swollen belly, diabetic and overweight. Beenthere is correct, always question doctors. Some of them are real clowns!


anonymous 3 years ago

I have had issues with my pancreas since March 2010.. I started having severe pain suddenly, and my ast/ alt were elevated. I am an RN, have never drank, had a healthy lifestyle besides in 2006 getting bit by a lone star tick and contracting a nasty disease called ehrlichiosis and almost dying (we'll get to that later). anyway, after pain that was severe and constant I had an ercp with stent placement and sphincter of oddi cut. That was the worst pain I HAVE EVER HAD IN MY LIFE!!!! I am no pain wuss, I have 3 children, and I literally cried after having this surgery.. I am 36 years old. For 2 days the pain was pretty bad then it got better and I thought ok maybe Im "fixed" I actually felt better... Then a couple of days later I could tell when then stent came out because I started hurting again. So 2 weeks later an outpatient ercp this time, with stent placement.. not such horrible pain. But no great relief of pain either.. I couldn't tell a difference. Then the Dr. tells me, I really don't think there is anything else that we can do but more ercp and more stent.. NO THANK YOU. Please RUN from anyone thant is trying to keep playing with your pancreas, it damages it each time it is touched and mkes scar tissue on it. Out of this quack dr actually came my pain mgt dr which has been a blessing. I have been to the Cleveland Clinic.. their advice "Take your entire pancreas out and transplant the islet cells" NO !!!! I have been around enough to know that your pancreas is in pan yes, but your brain is the thing that is misfiring and that is has to be tricked to think you aren't in pain. There are plenty of cases out there of people with NO PANCREAS and they still have PAIN.. please research this before ever considering it. They tell me my pancreas was damaged from of all things a tick borne illness called ehrlichiosis ( I never even saw the tick on me) I just got sick with stomach virus like symptoms and then the next thing I knew was in the ICU on a ventilator with a central line, and 18 Dr's trying to ask me what I had ate, where I had been, etc.. Anyway This little thing and me being so sick caused organ damage. Good luck and God Bless to you all


anonymous 3 years ago

My mom had an ERCP with stint placement, Oddi cut recently...had pancreatitis 3 hours after surgery. Low grade fever never ceased and pain hospitalized again with another pancreatitis attack that dumped into her bowel and caused a huge inflammation between the two. Another 4 day hospital stay. We are onto the fat free diet and just getting her stable (the hospital doesn't give you enough info on the diet!!) But my question is she going to be dealing with this for a lifetime? Once you have pancreatitis will you always have it? I realize it can be "controlled" but will she ever be able to eat/live how she did before? Will start supplements and studying your blog. Thanks so much for putting the time into it.


TheHealthGuy LM profile image

TheHealthGuy LM 3 years ago from U.S.A. Author

@anonymous: Ang sorry to hear about your mom. Unfortunately I am not able to tell you whether or not she will ever be able to eat normally. I highly doubt it from what you have said but one never knows. I think, knowing what I know now, the chance of your mom being normal again is quite remote.


KatieChristenson22 3 years ago

Hi my name is Katie and I am 22 years old. I have been sick every single day of my life since I was 2 and Oct. of 2012 they just diagnosed me with CP. No pain meds help or nausea meds either. They say there is nothing they can do for me but maybe remove my pancreas, but if they do that I will be stuck as a diabetic type 1 and he said I am too young to make a big decision like that, and even then the surgery might not even help. I am also so sick that it is hard for me to keep a part time job and am going to apply for disability because of this. I just don't know what to do, and I don't know what its like to feel normal because I have been sick every single day of my life. I read on your article overcomingpancreatitis.com that I should become a vegan for a while. I don't know the first step how to do so, first off Im a very picky eater and its hard for me to stay on a diet like that, same for fasting. I am sick right now as we speak and I drank some grapefruit juice as you suggested and it's not helping :( is there a specific brand I need to buy for that juice? I bought Old Orchard brand. This is all new to me and I want to know everything I can about this illness.


KatieChristenson22 3 years ago

@anonymous: Hi my name is Katie and I am 22 years old, I have chronic pancreatitis and I know what your son is going through. I have been sick for 20 years and they just now found out what I have. I'm glad they told me when they did because I was drinking a lot and I didn't know it could kill me, they also said drinking can make you more prone to getting pancreatic cancer just an FYI. I am still new to this stuff so if you have any information that you think I should know please share. My mother is very worried too and cries because she is scared that I might die. So anything helps.


TheHealthGuy LM profile image

TheHealthGuy LM 3 years ago from U.S.A. Author

@KatieChristenson22: Hi Katie sorry you are sick. I know pancreatitis sucks but if you are unwilling to change your eating habits I guess you'll have to remain sick. Don't mean to be so blunt but I just tell it like it is. You can learn about vegan cooking/diet by going to the library and checking out some books. Basically vegans are plant based eaters (no meat, no fish, no dairy) BUT and this is a BIG BUT they do eat high fat content foods such as avocado, nuts and oils. Those food items should NOT be in your diet.

Grapefruit juice (I use ocean spray white, unsweetened) isn't a "drink a glass and be well" miracle. It may take some time. The same holds true with diet and supplements.

NOTHING works immediately.

How long will it take? I have no clue - I didn't count the days, weeks or months. Read the articles on this lens and on my blogs I don't wish to re-write everything here in the comments.

By the way watch who you listen to. Many will tell you what you want to hear instead of what you NEED to hear. Others simply do not have a clue. If they make money off you, or are sick themselves be skeptical. If they call their business a "practice" be cautious. Most practice on you and whether you get well or die they still get paid.


KatieChristenson22 3 years ago

@TheHealthGuy LM: I am willing to change but its going to be hard for me lol, I was also wondering if I can have low fat cheese after the 6 months of being a vegan, or can I never have dairy ever again? I'm just curious.


TheHealthGuy LM profile image

TheHealthGuy LM 3 years ago from U.S.A. Author

@KatieChristenson22: Katie - once you have been vegan for like 6 months to a year OR however long it takes to heal to the point you have ZERO symptoms and your abdomen is no longer tender you could always try some low fat/not fat cheese and see if it works for you. Just remember it may take a few days for any problems to show up. Most folks THINK symptoms show up immediately (within a couple hours) of eating bad foods but that is simply NOT true. That is why there is so much erroneous information in regards to "it's ok to eat steak but those frickin grapes made me sicker than hell." It most likely wasn't the grapes at all especially since they contain specific photochemicals proven to reduce inflammation but ...

The fat in that steak is deadly.

That is why it is so important to do a food diary and do it properly. Anyway ...

You can always try some cheese to see how it works however chances are it may not work to well yet after healing you may tolerate it fine. How much fat one can tolerate after pancreas damage varies from individual to individual because the damage may be totally different, different area, more extensive and so on.


anonymous 3 years ago

Hello,

I am 46 years old and have just had my first instance with what is diagnosed as acute pancreatitis which the doctors have concluded was caused by my blood pressure medicine. I have been taking lisinipril HCT which is a diuretic and guess what #5 on the list of causes. They also stated the possibility of it being advanced by a virus as i just returned from a trip and began feeling bad there. Needless to say, this simply blew up in no time. I just got out of the hospital after 4 days, with a 3 day occurrence prior to that. This AP sucks. I would have never guessed any of this as i simply didn't feel extremely bad leading up to the er visit. My question is, as a casual drinker, weekends only, and a lover of food, it appears that from your site that regardless of what caused the acute pancreatitis, all previous parts of my lifestyle must change? Can previous lifestyle choices be kept but with moderation? Have you much research on AP or CP that was caused by medicines?


TheHealthGuy LM profile image

TheHealthGuy LM 3 years ago from U.S.A. Author

@anonymous: Hi Steve, sorry to hear you too have become a victim. First let me say that EVERYTHING depends upon how much damage you received. All AP causes damage. Some of it is what could be classified as minor and doesn't show on CT scans. A FEW do heal up after one AP attack and never have another problem. They eat, drink and live life normally. Maybe you'll be one of those few. I hope you are but wouldn't hold my breath.

You can always try eating and drinking normally "in moderation" and see how it works out for you. If it doesn work out well you can always change directions as long as you are still alive.

In regards to causes pancreatits is pancreatitis. It is either mild, moderate or severe (you don't want severe) in regards to AP and CP is somewhat similar. Many people can't get their heads wrapped around certain truths because they THINK everyone is different. They aren't. A pancreas is a pancreas, pancreatitis is pancreatitis. The ONLY difference is in the amount of damage sustained and where.

Good luck to you. I hope you heal.


amanda-richards-127 3 years ago

Just wanted to say thanks for this page. I'm convinced I have CP and will ask my doctor about it in two weeks when I go. It fits every symptom to a "T". Funny thing is I used to take grape seed extract for my acne and now that I think about it...I was more or less just fine while taking it several years ago. Anyway, 1 trip to the ER where they told me I was having a panic attack, blood work done several times that showed nothing, two abdominal ultrasounds that showed nothing, one upper GI that showed nothing except a hiatal hernia and years on end of misery and no doctor could tell me what the problem was. The final straw was at a wine tasting-I HATE wine and only took sips here and there amounting to maybe 4oz total and I felt like I needed to go to the ER within 15 minutes. I may even possibly have a cyst because my belly gets extremely bloated no matter what I eat. Looks like I'm about 6 months prego. It's amazing how you turn to chicken soup instinctively when you are feeling bad too. I went on the "paleo" diet trying to see if it was food allergies. Paleo is high in fat and I was just miserable. Now I know why. It is so awesome when the lightbulb moment happens!


TheHealthGuy LM profile image

TheHealthGuy LM 3 years ago from U.S.A. Author

@amanda-richards-127: Hi Amanda, thanks for stopping by. If you do have pancreatitis fat is the enemy. You should do your best to get a firm diagnosis one way or the other. The usage of grape seed extract and the fact you were fine while using it along with the wine tasting thing is definitely suspicious because there are several conditions such as acute cholecystitis (gallbladder disease with or without stones) that can almost fool someone into thinking pancreatitis and I bet that would also be helped with grape seed since it is inflammation yet, the symptoms are not identical but REAL close and it too can be life threatening especially if the gallbladder ruptures. Anyway ... to my knowledge no form of gallbladder disease in caused or exacerbated by alcohol, whereas, pancreatitis is. Good luck to you!


RobininDenver 3 years ago

I love coming to this page because it has really helped me and I reread it quite often as I go though my experience. You give me lots of hope and a realization of how bad It could be. I am a 46 year old female that weighs 125 lbs since I lost 45 lbs 7 yrs ago and have kept it off by exercising and eating a diet of veggies, fruits, whole grains, lean proteins, low fats and so on...... But in April 2013 I went to the ER with stiff neck pain, disorientation, poor concentration, short term memory loss, headaches, numbness in my chin, arm and right hand, dizziness, back pain, stomach pain, bloated, nausea etc...... I am not a drinker and I don't smoke and have been blessed to be pretty healthy. I have seen an ENT Dr and a Neurologist I have been tested for vertigo, seizures and given "cocktails" in the hospital for migraines . And was given valium, naproxen, antivert and a steroid taper. I have had EKG's, MRI's, CT scans and ultrasounds of head neck and stomach. In June on my 3rd visit to a different ER(University of Colorado) the doctor pressed on my stomach and I just about jumped out of the bed so she tested my lipase and it was 2000. I stayed there for 2 nights was told I had incidental pancreatitis with possible cysts possibly caused by the steroid taper. Was given prevacid and told to eat a normal diet. In July I was referred to a new GI doctor who increased my prevacid and added zenpep an told to eat a 10 %lowfat diet and no alcohol. Pain has been improving since I have been on a very lowfat vegan diet with curcumin, grapeseed, vitamin C and grapefruit juice over the last 9 weeks. I had a EUS on Sep 2 and they found a multicystic lesion composed of at least 4 cysts but were unable to get a biopsy cause a blood vessel was in the way. I am now being referred back to University of Colorado for an ERCP and possible stint placement in November. My previously flat stomach looks like I'm 4 months pregnant now due to pain bloating everyday. I only wished I found this page sooner. Thank you sooooooo much for all that you have done to bless us all with your information and time.. After everything I have stated do you think there is anything I should do differently?


TheHealthGuy LM profile image

TheHealthGuy LM 3 years ago from U.S.A. Author

@RobininDenver: IF it were me I'm not sure if I'd do an ERCP. 11% complication factor with one being post ERCP acute pancreatitis. Same with stenting. Stenting causes scarring, scarring causes more problems. Before I had either of those two procedures I'd want to know EXACTLY why they were necessary, what the benefits were, if the doc would have them done on himself/herself and what the realistic outcome may be if they were not performed. That's IF it were me. Can't say what you should do.

Your GI doc who said to eat a 10% low fat diet is one of the first I have heard of who is even CLOSE! That's great. You have one that reads! Ok, but it depends on where that low 10% is coming from. It should be mostly plant based. No more than 5 grams of fat per meal and that fat should NOT come from beef, pork, lamb or duck. Beef, pork and lamb should be avoided like the plague and that goes for ANYTHING made with them (soups, gravies, broth). They don't work with a damaged pancreas.

From just some of the stuff you have said I'd ask for some tests before I did any more procedures. Tests for autoimmune diseases. Celiac Disease, Sjogren's Syndrome. Many of the symptoms you have been checked for are associated with Celiac Disease and other autoimmune disorders. Autoimmune disorders are associated with pancreatitis (some, not all). I'd also have the doc check my IgG4 levels because IF autoimmune pancreatitis is the culprit, IgG4 levels will be increased but that is NOT definitive because IgG4 can also be increased when other conditions are present.

The problem with having pancreatitis and looking for some autoimmune disorders, Celiac Disease for example, is that many pancreatitis patients have the four golden symptoms of Celiac Disease (nausea, vomiting, diarrhea, bloating). Stomach cramps may also accompany Celiac Disease but are nothing compared to the pain of pancreatitis.

These symptoms (quoted from you) "stiff neck pain, disorientation, poor concentration, short term memory loss, headaches, numbness in my chin, arm and right hand, dizziness, back pain, stomach pain, bloated, nausea etc" can and do occurr with Celiac Disease. How do I know this? Because my mother and I are both diagnosed Celiacs.

Good luck to you :-)


RobininDenver 2 years ago

I have already been tested for all that you recommended. And all was ruled out. So turns out I have neck arthritis, anemia and a precancerous ipmn cyst in the head of pancreas. Did the ercp and stint placement and biopsy and was in hospital overnight(of course) with pancreatitis. That took awhile at home to recoup from. Lots of pain, tenderness in middle of stomach under rib cage down past belly button. Couldn't eat hardly for about 3 weeks. Symptoms of of mental issues have subsided since stint placement. They believe the cyst is causing pancreatitis. Had another ct scan and the cyst has not changed in size(1.8 cm). The blander i keep my diet the better. I find raw fruits and veggies cause me pain. Still get back pain, nausea,stomach pain, bloating, tire easily. I have added iron for anemia and magnesium for headaches but the turmeric was causing me a lot of pain after the ercp so I don't take that. I saw that on here to stop that so thank you for that. So I want to share with you that I am getting whippled on Feb 13th. I have two excellent doctors performing this sugery. One has done over a 1000 whipples. I know I will never be the same but I can't take the chance of leaving this cyst in my body. Thank you again for your wisdom!


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TheHealthGuy LM 2 years ago from U.S.A. Author

@RobininDenver: Robin, I somehow missed this comment. Probably because I haven't been to this site for over a month, almost 2 now I guess. I apologize. By now you have of course had your whipple surgery. I hope that went well, they were able to remove all the precancerous tissue and you are recovering nicely.


keeter1967 2 years ago

My ERCP gave me acute pancreatitis but the ERCP did show I had Sphinter of Oddi Dysfunction and my duct was widened. The doctor said he had never seen lab work as high as mine where the patient lived. After four days in the hospital I was released. I haven't had to be hospitalized since then but do have episodes several times a month in which I have to go to clear liquids for a few days to allow my pancreas to rest. I'll never do an ERCP again.


dclem714 2 years ago

Every nigh after dinner i would have a fuzzy kind of pain in my upper stomach. I thought it was just something I was eating. Then one night the pain went from fuzzy to aggressive and I couldn't even sit up straight. I begged my mom to take me to the ER. When we got there they asked me what I ate that night. I told them, they but me on fluids but the pain was still very strong and there. They then gave me a dose of a very strong painkiller. I can not think of the name. Then after that the doctor told me they wanted to admit me and see their Gastroenterology doctor. The only problem was he only worked with adults and I was just 2 weeks shy of being 18. They then transported me to Children's Hospital where I stayed for 3 whole days without food. The doctors did test after test and found nothing. on my third day I was no longer in pain and was aloud to eat chicken broth. ( Gross) Later that day I was released. Less than 12 hours later I had another episode and went back to children's where they ran my blood and within those 12 hours my levels went up higher than when I was admitted. Doctors didn't know what to do. They then transported me to Miami Valley hospital where I stayed for 4 whole days without food. It was a horrible experience. I Had 5 to 6 doctors at a time coming in to look at me, ask me questions, and putting stethoscopes on me. They tested me for every disease they could think of. The only thing they found was that my liver wasn't doing its job and they didn't know why. So on my 4th day I was released and allowed to go to school. I missed a good week and a half of school of my senior year. After all of this though no one could tell me why I was having so much pain. Then my mom had enough and looked up liver specialist. Which led her to the Cleveland Clinic . A four hour drive but it turned out to be worth it. Just one 2 hour session and the doctor knew what had to be done. She ordered a biopsy of my pancreas, and that seemed to be the answer. She discovered that my immune system was attacking my pancreas for some reason unknown and then I was officially diagnosed with Autoimmune Pancreatits. I was ordered no alcohol and low fat foods. I was a senior in high school 3 months from graduating and going to college... All i wanted to do was celebrate with my friends. Plus what is college without the partying? I stayed up at night crying and asking why me? Why did I have this when I never drank anyway? why not the kids that do it on a daily basis? But I learned that i rather be alive than drunk, so i have accepted my fate and I have not had any problems for 3 months now. I just still want answers on why I got this and if it will ever go away? That's all I want, to know that I won't have this forever? So that's my story. Thank you.


dclem714 2 years ago

I also had a scholarship to run at the college I am attending. But due to my problem I was put on predisone which made me gain a great amount of weight. I was not healthy or fit, and have since then been exercising to get back to it. So far the steroid worked with my inflammation, and I haven't had any trouble much.


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TheHealthGuy LM 2 years ago from U.S.A. Author

@dclem714: I'm not a doc but what I know about AIP (autoimmune pancreatitis) is #1 there is no cure; #2 steroids seem to work for a time but the AIP usually comes back. Sorry, I know that isn't what you wanted to hear but what someone needs to do is find the CAUSE for your AIP. If that can be addressed it may help prevent more damage. Good luck.


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TheHealthGuy LM 2 years ago from U.S.A. Author

@dclem714: Hopefully you do well for a long time. I addressed the AIP via your other comment.


Dlim83 2 years ago

Hi i was diagnosed with pancreatitis when i was 13. Had a few relapses but it somehow went away until recently, 17 yrs later i had another attack and a few relapses till present. so 5 months and 3 relapses later, i went for an MRI and was diagnosed with pancreatic duct stones due to the several attacks in the past 5 mths. The doctor recommended ercp with possible stent placement if neccesary, but considering the amount of bad feedbacks on the procedure, do u think i should do it? Is there any other option that you know which might remove the stones or at least make it not grow bigger? I'd been following your diet program (vegan & oil free) for a month now and had been consuming grapeseed extract, curcumin, and vit c on a daily basis. Doctor had also prescribed creon to eat with my meals. I notice that a 40min treadmill actually help to remove the pain permanently for the day during relapses (at least till the next day), i don't know if anybody else is experiencing the same experience. Please give me some advice on whether i should do the ercp and if there's other options? Appreciate your help and support. Am so glad i found this blog!


TheHealthGuy LM profile image

TheHealthGuy LM 2 years ago from U.S.A. Author

Hi Dlim83 - I didn't see this comment with questions til today. I can not give you medical advice but ERCP has a pretty high complication rate. In "Complications of ERCP: a prospective study" published in 2004 "the 30-day complication rate was 15.9%; the procedure-related mortality rate was 1.0%. Post-ERCP pancreatitis occurred in 3.8% of patients (3 deaths)." You can read more here: http://www.ncbi.nlm.nih.gov/pubmed/15557948

There seems to be a conflict of opinion regarding ERCP complications. A previous article published in 1995 stipulates a 4% major complication rate with most of the major complications "associated with therapeutic procedures and low case volume." You can read more here: http://www.giejournal.org/article/S0016-5107(98)70...

In regards to a possible alternative solution for removing stones, IF it were me, I'd check with an M.D. or O.D. who had been trained by ACAM (http://www.acam.org/) and was well versed in the use of edta chelation. EDTA chelation has been used for years to resolve heavy metal toxicity. It's an approved FDA protocol for that purpose however; some doctors use it to chelate calcium from the cardiovascular system. I've always thought if edta removes unwanted calcium from arteries it might also revove calcium stones from the pancreas. BUT I have never checked it out thoroughly which means I have never asked an ACAM doctor (chelation doctor) his/her thoughts. I wouldn't get to excited about the possibility because it is ONLY a thought I had and many folks think I'm crazier than a outhouse rat. Now ...

About the diet, grape seed extract, curcumin and vitamin C. Are you still on the diet and supplements? Have you had any improvement in symptoms etc during your first month or so?


eric 23 months ago

colloidal silver and barley grass juice powder took my infection away. The infection shut my digestive system down. I eat crappy food and when the pain comes colloidal silver shuts it down. I don't know if this is good or not. I do know that the hippocrates health institute diet heals the pancreas as well as gabriel cousens diet. Green live food cuisine. I drink 10 tablespoons of barley grass juice powder a day. Wheat and barley grass has the enzyme pd41 which acts as a non steroidal anti-inflammatory. Chlorophyll is also a natural anti-inflammatory and stimulates tissue regeneration.


TheHealthGuy LM profile image

TheHealthGuy LM 23 months ago from U.S.A. Author

Eric, great comment. Colloidal silver is an excellent choice for combating infection naturally. In fact it was used a lot before antibiotics became the norm. It is still used in burn centers to prevent infection. Whatever works for you is a good thing. Thanks for visiting and I wish you good health.


Derek 22 months ago

For the past two years my Fiancée has been going through the symptoms and no answers. We have been to Emory Hospital in Atlanta Ga, The Mayo Clinic in Florida, and just last week she was in Boston Ma at Massachusetts General Hospital. She is in pain every single day with just reoccurring attacks that have led her to stay at home. She can't work, drive, keep food down, or live a normal life due to what is going on. She has done so many tests and no answers. After multiple ERCP's they still found nothing as they say. Each time she was hospitalized for up to a week due to having pancreatitis from the test. Each of these times the pain she was in after the test was the same pain she experiences every single day but just worse. They still never could come up with a diagnosis. The mayo clinic did some test and then told her there was nothing they could find wrong to go through their pain management program to help deal with the pain. A local surgeon then does a few tests with her. He then comes to the conclusion that it was her pancreas. One reason he came to this conclusion because she told him that morphine triggers the pain. This then led to the surgeon sending her to Boston Ma for them to take this further. She then goes there for the "CHIEF SURGEON" to do ONE MRI and tell her that it was not her pancreas to move forward with her life. She tried to ask how to do so, and all the "doctors" there could say it get over it. We are back to square one and do not know where to go from here. There is more test that have been done im not sure of the name or when they were done. But you think after this long there could be a diagnosis somewhere along the lines but yet no doctor has taken the time to figure out what is wrong. Each one that she sees can't figure it out and just sends her on her way like nothing is wrong. They could give a crap less, and we really don't know what to do from here. We feel that pancreatitis is what she has but she just wants a diagnosis to be sure. I have asked her to read your pages and blogs. I was just curious to if you had any advice on what to do or who to see.. Thank you for your time and i hope for response. I know this isn't a hole lot of information but i tried hitting key points.


TheHealthGuy LM profile image

TheHealthGuy LM 22 months ago from U.S.A. Author

Hi Derek, sorry to hear about your fiancée. ERCP is DANGEROUS. I've talked with many folks who have experienced mild acute pancreatitis after ERCP and a few folks who have had severe acute attacks after ERCP. I won't get started on doctors. IF a test doesn't slap them in the face and scream "hey stupid it's ______" most could diagnose a zit on their own ass.

It sounds to me, from what you said, and this is just a guess, that she has CP ... Unless there is another reason such as SOD (sphincter of oddi dysfunction), gallbladder disease (sludge or small stones), the gene variant that causes pancreatitis in folks even though they only drink occassionly, high blood fat levels, or some prescription drug that is known to cause pancreatitis that they have missed or worse IGNORED as the cause for the recurring mild acute pancreatitis attacks.

As for doctors, I suggest you keep trying to find one with a brain, who didn't get their M.D. from Cracker Jack U.


jim 7108 22 months ago

I have CP my last AP was Christmas eve 2014. I have constant pain since, I have already lost 20 lbs. . I want to start nothing but water 3 - 5 days, then enema. If I still have pain how do I start juicing. Do i start with 2 vegetables and the add 1 every couple of days?


Derek 21 months ago

Thank you for your response! Still no luck with any doctors and just returned home from yet another ER visit! Over the past two years it seems everything has been ruled out, even CP. We really feel it is CP with attacks of acute but no doctor wants to agree. They simply do there test, comes back normal, so they send her on her way. Stuck between a rock and a hard place and we don't know where to go from here. Is there by chance any way you could suggest a lead, or just simply make a suggestion on who to see or what to do?


TheHealthGuy LM profile image

TheHealthGuy LM 21 months ago from U.S.A. Author

Hi Jim - The best way to start and do it right would be to start with one vegetable, like carrots. Drink carrot juice for a couple days, no pancreas or pancreatitis symptoms? Add tomato (actually a fruit), no symptoms? Add celery, etc, etc. Just keep adding vegetables or fruits until you have enough to make a high powered, nutritious juice that actually encompasses the whole major and micro nutrient scale. Once you begin feeling better you can try some protein, egg whites fried without oil or butter etc. about 4 grams of protein per egg white, 4 egg whites 16 grams of protein, NO fat, No cholesterol. Then move to legumes (beans, lentils, peas) for more protein.


trinarosa 21 months ago

HI, JUST RECENTLY TOLD BY DR I MAY HAVE PANCREATITIS AND AN IMAGING STILL NEEDS TO BE DONE, IF THIS IS WHAT IT IS IVE HAD IT FOR YRS WITH TERRIBLE BOUTS OF PAIN. HAVE HAD EVERYTHING FROM MOUTH THROUGH GI CHECKED AND NOTHING. HAVE TYPE 1 DIABETES FOR 47 YRS AND JUST GOT OVER ILLNESS AND NOW HAVING ATTACK WITH 9 MO. PREGNANCY LOOKING BELLY. I JUST STARTED USING COLLOIDAL SILVER IN SMALL DOSAGES AND FOUND IT REDUSES PAIN AND DISCOMFORT BUT STILL COMES BACK THE NEXT EVENING. I HAVEN'T BEN EATING JUST DRINKING LEMON WATER AND NEED SOME ANSWERS BEFORE ITS REAL LIFE THREATENING. ANY ADVICE OF RELIEF YOU COULD GIVE?


TheHealthGuy LM profile image

TheHealthGuy LM 21 months ago from U.S.A. Author

Hi Derek. The only thing I can think of is to keep a journal. The idea behind keeping a journal is to find a pattern. What she eats, how long after eating do symptoms occur? What symptoms. How bad are the symptoms? etc. Who she saw, when she saw them (names of doctors ER and private). All this stuff can be used to discover a pattern that may help with diagnosis or prosecution.

IF you are close to a Mayo Clinic or the Cleveland Clinic you may want to try them. There are various clinics throuhout the U.S. that may prove helpful. "Google" keywords such as "Pancreas docotor", "Pancreatic doctor", "Pancreatitis doctor", "Pancreatitis specialist", "Pancreas specialist" and you may find a good doc. try your area first, then move out in area size or distance from your home. If you find someone check them out on healthgrades.com


TheHealthGuy LM profile image

TheHealthGuy LM 21 months ago from U.S.A. Author

I'd go buy some ibuprofen. 800 mgs should help.


Gina 21 months ago

Hi! Had my first acute episode and diagnosis two nights ago. I have had GI symptoms for years, had a cholecystectomy I probably didn't need, and have had recent bouts of severe indigestion recently, so I did what everyone does Google "right upper abdominal pain." So when a really sensible ER physician asked if I had ever been diagnosed with pancreatitis, I answered that there is always a first time. I notice that a lot of blogs say to avoid caffeine. You don't mention it. What say you?


TheHealthGuy LM profile image

TheHealthGuy LM 21 months ago from U.S.A. Author

Hi Gina, sorry to hear you have joined the pancreatitis Hall of Pain. I drink coffee and tea with no problems. Most people blame things that really have no reason to be blamed. It is usually something else such as that burger, fries, shake, that deep fat fried thingamajig or some other high fat food (beef, pork, lamb, duck, gravy, etc) that is the real culprit. Alcohol via any form (drink or food) and Fat are the two enemies. Now I wouldn't take caffeine pills but I have never had a problem with coffee and I can't stand decaff. Good luck I hope you feel better!


Bobby Humphries 18 months ago

Thank u so much for your forthrite approach to pancreaous issues! I have a ? I have been diagnosed w/ a cyst in the pancreatic head,16mm by14mm. I had a EUS-FNA biopsy on the fluid.CEA: 66.8, Amylase 178.My gastro Dr. Is advising me to" watch it" for 6 mos. The Drs. have assured me that I don't have pancreatites, and that there are no symptoms, my severe episode of extreme pain was a coincidence and wasn't related to the cyst. do you have an opinion?


TheHealthGuy LM profile image

TheHealthGuy LM 18 months ago from U.S.A. Author

Bobby there are several kinds of cysts. What kind did your gastro say it was? You can find a ton of info on the net about pancreatic cysts. Here is just one source: http://www.medicinenet.com/pancreatic_cysts/page3....


David 18 months ago

I've been suffering from acute abdominal pain for about 3 weeks now. 3 trips to the ER, a 5 day hospitalization, ct, upper gi, endoscopy, and finally an abdominal mri 5 days ago. I was supposed to get results on Thursday from the mri, but they had to reschedule my appt until monday. Freaking out, still in pain, no idea weekday they will tell me on Monday.


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TheHealthGuy LM 17 months ago from U.S.A. Author

Hi David, I know it's tough to be sick and not know what's wrong. The good news is that at least your doctors are trying to find out what is wrong. Hang in there.


mike 17 months ago

good.


eulspg 8 months ago

Hi! My husband just came out of one these attacks, and I have some questions and comments. He had his first attack few months back. The symptoms he experienced: crazy pain, non-stop puking, extreme sweating with chills. It was so bad, that I took him to ER, although he didn't want it, because we have no insurance (needles to say, our bill is 11000.00). They made us wait for more than 5 hour before he could be seeing, although you could plainly see he was in so much pain and puking too. Finally, they did some testing, and were supposed to do some more, but as soon as they found out he had no insurance, we were sent home with some prescriptions (they used some morphine IV for pain, and some anti nausea med) and gastritis diagnosis. The very next day my husband was all fine. He stopped drinking alcohol for a while, but gave in into temptation, and started again (also, I don't know if it's relevant, he was smoking "grass"). Well, week ago he went into another episode, and maybe we could have stopped it, but we didn't know what he had. It always starts with nausea, and then puking, then pain and all the rest. It's awful, he is in so much pain, but can't stop the pain because he can't stop throwing up. So, I took him to ER again (still no insurance), we went through the same thing as last time, and they sent us away. Again, they said all the tests are fine, an he has gastritis. But this time, we were back next day, and this time I made sure he was admitted, money be damned. I have to mention that both days nurses were mentioning pancreatitis, but then retracted to gastritis. He stays in the hospital for a while, they still didn't tell me exactly what's wrong with him, even though I said "please, tell me exactly what's wrong with my husband, so we can prevent this from happening again", but no one mentioned pancreatitis. They kept saying all the tests come back good, nothing wrong. And yet, my husband is crazy in pain. They nearly killed him too, when my sister came to visit (she is in med school), she realized something was wrong with him, because he couldn't even open his eyes. Turns out, his BP was 70/40, and heart beat below 45, but nobody was checking on him, he only had one IV bag, even though he was puking for two days now. This whole thing caused me so much pain and tears, to see your loved one in so much pain, and those who supposed to help doing nothing. They did discharge him with gastritis/pancreatitis diagnosis, but not until I have read this article, that I realized in how much danger my husband was and still is. I didn't know he can't have no fat, if I had known, maybe second time could be avoided. We are taking it slow and careful, he is so hungry all the time, but scared to eat. Do you have meal ideas? (I haven't read the whole think yet). I love how simple your explanation is, I will make sure my husband will read it too. Thanks to you, I came to scary realization - it's serious, and it's for life ( though, I believe God can heal him, and this is a test, or , rather, wake-up call). So, my main question is how to prevent attack that is coming, and also what to do with pain, if he is puking, and can't even hold water down. Thank you!


TheHealthGuy LM profile image

TheHealthGuy LM 8 months ago from U.S.A. Author

Hi - I'm sorry I didn't see this until now. You can find EVERYTHING I do in regards to diet and more at: http://beatingpancreatitis.com


Leigh 7 months ago

I have never been diagnosed with pancreatitis but after 13 years of being in chronic abdominal pain I have found my answer. 13 years ago I went through extensive G.I. testing. I lost 25 pounds, had my gallbladder taken out and pretty much went through every test and was told nothings wrong with you. I took a leave of absence and decided to find answers on my own just like you did. After doing a lot of research I went on the makers diet which pretty much takes away everything processed, fats and you eat things from the ground or things not processed. My internist followed me and helped me get through which she put me on a very small dose of amitriptyline. Amitriptyline helped with that stabbing pain I had at all times. I got much better but I would still have chronic pain and 2 to 3 times a year I had an episode I called them, of horrendous pain in my abdomen. it felt like someone was stabbing me with a knife right below my diaphragm and turning it around. It was so horrible! I went on a gluten free diet and had testing done to see if I was allergic to other foods. It showed I had a gluten problem and allergic to yeast. So, I have kept my diet with taking probiotics, no gluten, little dairy, no processed foods and pretty much a back to the earth diet but little meat.

This all happened when I turned 48, and continued for the last 13 years. A couple of months ago, I went with my husband when he needed a steroid injection in his knee and voiced the thought why can't they do that to my pain? I went to my internist and she referred me to a pain doctor. He it took a lot of searching to find someone that worked with abdominal pain as most pain specialist fork with bones and joints. I found a wonderful doctor that was an anesthesiologist who suggested we try Radiofrequency ablation, as he believed I had nerve damage since none of the testing has ever showed pancreatitis or any other problems. It's been one week since I've had the radiofrequency completed and I am thrilled to say I am in no pain at all. If this can just help one other person I would be so happy. It's only been a week but I will take one day at a time and be happy that I am pain-free !


Tahir Ghani 3 months ago

Thank you very much for providing such valuable information. My son is facing this problem. You efforts to write above will help me to recover my son.

God May Bless you with healthy life.

Tahir Ghani

Pakistan


Renee 3 months ago

My fiancé was just told possible pancreatitis, he has been having attacks for 2 years on and off.. He is a meat eater and I am afraid now how to get him to change.. Does he have to go completely vegan or can he do meats that don't affect him like chicken and turkey and can he do seafood.. This is very good information for something so scary.. Thank you..


TheHealthGuy LM profile image

TheHealthGuy LM 2 months ago from U.S.A. Author

You are most welcome. I hope your son recovers.


TheHealthGuy LM profile image

TheHealthGuy LM 2 months ago from U.S.A. Author

Hi Renee - You're welcome. Skinless chicken and turkey (boiled, roasted, so the fat drips off and away), seafood, fish should be fine. It is best to go completely plant based for awhile to speed healing.


stephen johnston 4 weeks ago

you are totally right about people being gutted and not being able to heal I have seen it first hand when my mother was operated on for undiagnosed acute pancreatitis after a pseudocyst burst due to an endoscopy a pancreatic debridement in a malnourished elderly person is a waste of time I would like to know if your opinion on pancreatic surgery is based on reading medical literature or anecdotal evidence


Pete on the Gold Coast 4 weeks ago

I took a couple of paracetamol/codeine pills for a skin excision, and soon was in an ambulance to the emergency ward. Blood test showed pancreatitis. I backed out of CT scan at last minute and went home, thinking "I've puked everything out, so now I'll just rest and my pancreas will heal itself" (a few things had gone wrong in hospital, each with its own side effect, snowballing complications). Haven't eaten much in a couple of days, (felt full most of the time), but now hungry. Nibbled some Moringa leaves off the tree, and then made a coarse smoothie with moringa, banana and lime juice and water. Waiting to see what happens next...

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    Remember This About Pancreatitis

    Pancreatitis Can Kill You!

    "I have heard that in war haste can be folly but have never seen delay that was wise." Sun Tzu

    "Ultimate excellence lies not in winning every battle but in defeating the enemy without ever fighting" Sun Tzu

    What do the above quotes mean?

    To win the battle with pancreatitis you must take swift, decisive action, prevent acute pancreatitis attacks and potential, unrepairable pancreatic damage.

    Your actions will determine the difference between life and death.

    Curcumin

    Curcumin is very important when you have pancreatitis. Curcumin, along with grape seed extract, seems to put the fire of inflammation out like water on a camp fire. Both grape seed and curcumin are highly anti-inflammatory and they are extremely potent antioxidants. They have also shown remarkable ability to inhibit cancer cell growth (a possible complication of long-term chronic pancreatitis).

    Antioxidants for Chronic Pancreatitis

    Daily antioxidant supplementation appears to relieve pain and reduces oxidative stress in patients with chronic pancreatitis. Individuals with chronic pancreatitis may be deficient in antioxidants. Oxidative stress is an important mechanism of injury and inflammation of the pancreas in chronic pancreatitis.

    Dr. Pramod K. Garg and colleagues from the All India Institute of Medical Sciences in New Delhi gave chronic pancreatitis patients daily doses of 600 ug organic selenium, 54o mg ascorbic acid, 9000 IU beta-carotene, 270 IU alpha-tocopherol and 2 g methionine. All patients were treated in the standard manner with analgesics on demand and pancreatic enzyme replacement therapy. After six months, the reduction in the number of painful days per month was higher in the antioxidant group than the placebo group. One third of patients became pain-free on treatment. Gastroenterology 2009.

    It only took the medical community 14 years more than me to figure this stuff out (certain high potency antioxidants relieve pancreatitis pain), and frankly I'll bet grape seed, curcumin, and vitamin C work better and they are non-toxic. Selenium, even though proven to fight heart disease and cancer, in high doses becomes toxic, causing a vast aray of problems. Large doses of methionine will immediately raise blood plasma levels of homocysteine, which irritates artery walls, causing damage and the resulting arterial plaque known as atherosclerosis but...

    That's the medical community for you. If there is a way to do something well, non-toxically, they will choose the toxic way every time!

    I'll stay with vitamin C, grape seed extract, and curcumin all of which are non-toxic.

    WARNING: If you have Sphincter of Oddi dysfunction (SOD) or gallstones you may want to avoid curcumin and turmeric because it increases bile flow.

    NOW Foods Super Enzymes, 180 Capsules
    NOW Foods Super Enzymes, 180 Capsules

    These are the exact digestive enzymes I personally use. They contain pancreatin 4X which helps take some of the workload off of my pancreas.

     

    Pancreatic Enzymes: Take a Load Off Your Pancreas

    You pancreas produces the digestive enzymes needed to break down the food you eat. When you have pancreatitis you'll find it helpful to lighten the workload of your pancreas by consuming quality digestive enzymes before each meal. Some say to do it after the meal; however, I have found that it works better to have the enzymes in my gut before I eat. If you cheat (I know you will ha ha), and eat a meal or a food item that you shouldn't eat that is higher in fat content, you may want to take an additional dose after the meal along with more grape seed and curcumin. This may help you avoid problems, but don't count on it. The best advice is don't cheat, and take enzymes with each low fat content meal.

    Pancreatitis complications
    Pancreatitis complications

    Complications of Pancreatitis

    It is extremely important, if you have pancreatitis, to understand what you are really dealing with and how important it is for you to keep your pancreas as non-inflamed as possible in order to avoid serious complications that could result in your death.

    The more you do to help yourself the better off you are going to be. If you have mild, acute, or mild chronic pancreatitis it can get worse if you allow the problem to become uncontrolled by not doing what you should do. The last thing you want is full-blown acute pancreatitis with complications.

    So what kind of complications am I talking about?

    There are some serious ones, ones that cause death such as:

    • Pancreatic cancer
    • Necrotizing pancreatitis (infection)
    • Organ failure (Kidney, Heart, Lungs, Liver)
    • Shock

    Other complications include:

    • Pseudocysts
    • Breathing problems
    • Diabetes
    • Malnutrition
    • Acidosis

    Your Eating Habits and Food Choices Are...

    Either going to kill you or heal you. Which would you prefer? No matter how healthy something such as olive oil is said to be, one measly teaspoon contains four grams of fat, a tablespoon contains 14 grams of fat. Fat is the enemy—no oil. Your fat consumption should not exceed five grams per meal; 15 - 25 grams total per day, including snacks. No beef, pork, lamb, or duck (way to much fat) or anything made from them (soups, broth, gravies, sauces). Low, low, low fat and no alcohol.

    What Are Healthy Food Choices for Pancreatitis?

    In another section below, I have mentioned the foods you should avoid at all costs, but I haven't really hit on the foods that are healthy choices or foods that you should eat (when you are hungry), that will help you maintain some semblance of health without putting your pancreas in an inflamed state or your life at risk any more than it already is.

    Once you "get it," and completely understand that your life is in your own hands and that fat in any form is your enemy, it narrows down your food choices considerably. Saturated fat, animal fat, is the worst fat. Fatty, oily anything is not a good thing. And you know alcohol, in any form, is completely out right? So let's look at what you may somewhat safely eat.

    It all depends on where you are at...

    And I'm not talking about your global location.

    First of all, if you are just coming out of an attack my best advice is to live on water for 48 hours and then try some fruit juice and vegetable juice (V8). If you have a juicer great. Make your own vegetable juice. After your pancreas has "rested" for at least three days and you have encountered no symptoms for 72, preferrably 96 hours then, if you are hungry, try a small meal of brown rice and vegetables. I mean a small meal, maybe half a cup.

    If that goes well have another half a cup in an hour or two. Eat small meals five to six times per day but if you begin to feel any symptoms stop eating. And...

    Immediately take aspirin or ibuprofen, grape seed extract (capsules), and curcumin (capsules) to stop the inflammation. Then rest your pancreas as explained above. I suggest you take grape seed extract (one mg per pound of body weight) daily along with 500mgs of curcumin and at least 1000mgs of vitamin C. The grape seed, curcumin, and vitamin C should become a daily routine. They fight inflammation and help heal your pancreas. You can buy them all from any well stocked health food store. You'll also need digestive enzymes with pancreatin 4X. So get them while you are at the health store and take them 15 - 20 minutes before every meal. They help take the load of producing digestive enymes off your pancreas.

    If you are not hungry, do not eat.

    If you are not hungry that is a signal! Pay attention! If you eat when you are not hungry you most likely will pay. Learn to live differently now that you have pancreatitis. Eat to live instead of living to eat.

    Ok, foods that are usually safe and healthy are strict vegan:

    • Whole grains, such as oatmeal, wheat bread, rye bread, wheat germ, barley, brown rice, and bulgar.
    • Legumes, such as beans (vegetarian), peas, and lentils.
    • Tubers, such as potatoes, sweet potatoes, yams, carrots, beets, turnips, parsnips, and rudabegas
    • Leafy greens, such as spinach, lettuce, and chard.
    • Cruciferous veggies, such as Brussels sprouts, cabbage, and broccoli.
    • Fruit, such as tomatoes (yes, tomatoes are fruit just don't put them in a fruit salad), apples, oranges, pomegranate, pineapple, mangos, and papaya.

    If you cook your food do it in such a manner that you do not need oil or fat of any kind. None, zip, nada. No oil. Got it?

    Note: Avocados are fruit, but they contain extremely high amounts of oily fats and should be avoided unless you feel extremely lucky or have been symptom-free for over six months. If you eat avocado, eat a very small amount.

    Once you have been on grape seed extract, curcumin, and vitamin C for six months and have had zero symptoms while eating a strict vegan diet you can begin to try other foods—in small quantities.

    These other foods are:

    • Fat free or 1% milk
    • Fish (trout, tuna, salmon, mackerel, sardines or white fish like bass, perch, crappie)
    • Skinless chicken and turkey (broiled, boiled, or BBQ'd)
    • Eggs (soft boiled, hard boiled, poached)
    • Avocado, flax seed, nuts (very small amounts)

    Remember: Cook everything without oil or grease of any kind.

    If you experience any unpleasant symptoms you know the drill right? Rest your pancreas and start again after 96 hours with the strict vegan regimen.

    I have also started another article dealing with my own personal pancreatitis diet and what you need to do in order to create your own pancreatitis diet because there are certain steps you must take in order to learn what foods should or should not be included in your pancreatitis diet.

    Juicing for Pancreatitis

    One of the best ways to obtain quality nutrients with little to no fat that will be easily digested (allowing your pancreas to work less) is by drinking fresh juice made from organic fruits and vegetables. If you have enough damage due to acute and/or chronic pancreatitis that has resulted in malabsorption, juicing will make it easier for your small intestines to absorb nutrients. Those are two great reasons to buy your own juicer and start juicing. In order to avoid pesticides which are undoubtedly harmful to an already sick pancreas, it is best to choose organic produce.

    chronic pancreatitis
    chronic pancreatitis

    Chronic Pancreatitis Life Expectancy

    I know from what I read on online support groups that life expectancy for those with chronic pancreatitis is on their minds.

    That same question may be on your mind as well, and this is a difficult question to which I have no definitive answer and neither does anyone else.

    I was told I may have only 10 years left when I was diagnosed. Some articles say seven to ten years once diagnosed with chronic pancreatitis, others say it takes an average of 10 to 15 years off one's life expectancy. Take the following for example:

    This is such a novel thought where docs are concerned. I wonder who told them? "Determining the cause of acute pancreatitis and treating it quickly may help prevent chronic pancreatitis. Not drinking a lot of alcohol reduces the risk of developing this condition." MedLine Plus

    "Chronic pancreatitis is associated with a reduction in life expectancy. Only half of the patients with a diagnosis of chronic pancreatitis will survive for longer than seven years following diagnosis." NetDoctor

    "This is a serious disease that may lead to disability and death. You can reduce the risk by avoiding alcohol." PubMed Health

    This article, written in 1994, states that survival rate at 10 years was 70 percent: Prognosis of chronic pancreatitis. Hey that is good news! Seventy percent were still alive at the ten year mark; maybe things have improved, and survival is much better and for longer periods of time today.

    This article, written in 1993, Natural Course of Chronic Pancreatitis states that pancreatic surgery ends up being worthless as far as pain management is concerned, and that survival time is about the same. This should tell you to search for another option. I absolutely believe I have survived for 20 more years than I was told, because of my diet, supplements, refusing to opt for any sort of surgery even related to my pancreas, and avoiding the use of medicines and/or protocols that promote acute pancreatitis.

    The above information tells me that even though you may wish you were dead (because of pain and nausea), you can live for a fairly long time with this disease. In fact, I am living proof you can live with, and overcome, pancreatitis as long as you are willing to do certain things. To me, it boils down to is this...

    Most people who die from chronic pancreatitis most likely die from an acute pancreatitis attack that turns into SAP, severe acute pancreatitis. You'll note that under the section "Morbidity and Mortality," most deaths occur due to organ failure and infected necrosis.

    The reason I say this is because if you look closely, none of the articles state that patients die directly from chronic pancreatitis. It it usually the result of complications, and what is the most likely complication?

    Acute pancreatitis.

    This would lead me to believe that if you can prevent acute pancreatitis you may be able to extend your life. If you can extend your life and eliminate your pain and suffering would that not be a good thing?

    What are you willing to do to survive and maybe enjoy life again?

    Are you willing to quit drinking (if that is the cause of your pancreatitis)?

    Are you willing to avoid foods that trigger acute pancreatitis?

    How important is it to you to survive and do it without pain, or at least less pain and suffering?

    Only you can answer those questions.

    Pancreatitis diet
    Pancreatitis diet

    Go Vegan to Heal

    A Vegan diet (not vegetarian—there is a big difference), is typically considered a very low fat diet. However, what one must consider is that even though strict vegans do not eat meat or dairy products, they still use oil in cooking and that is something you will not do, isn't that right?

    Yes it is, so ...

    Going vegan with the added restriction of no oil to heal pancreatitis damage is a very good idea. You need to do this for at least six months to one year. Eliminating all saturated fats, oils, and alcohol is simply a smart, healthy choice unless you enjoy pain.

    Keep in mind that not all vegan recipes will work for you because some do contain too much fat for a damaged pancreas, but they do give you ideas to use in order to cook some tasty "should be safe" meals. Some substitution or elimination of certain ingredients such as sauces, salad dressings, avocado and other high fat, oily foods may be necessary. Either substitute or cut out those foods which contain fat, look like fat, smell like fat, and most likely are fat from any vegan recipe. And...

    Take large doses of grape seed extract, vitamin C, and curcumin.

    Do this for at least six months or until your pain, nausea, and abdominal tenderness is gone. Then, you can try to alter your diet to include some dairy, fish, and poultry.

    Absolutely no alcohol. Watch out for cough syrup, vanilla extract, and cold remedies.

    Supplements for Pancreatitis

    These five supplements help me:

    I won't insult your intelligence with a bunch of phony online testimonials. And as far as I am concerned the FDA and FTC can go take a hike if they don't like what I say because I use certain supplements to relieve the symptoms of pancreatitis. When I use them I feel a whole lot better, am usually attack free and have far less pancreatitis symptoms. I can't say they will help you. Everyone is different but I know what they do for me. In fact, I know they are the only reason I don't have more problems with pancreatitis than I do.

    I take 200mg per day of grape seed and 500mg of curcumin (the extract from turmeric) as a maintenance dose and when I started I took 400 - 800mg of grape seed along with 500 - 1000mg of curcumin per day (I started at the lower doses and worked up and then stayed at the top doses until I had no symptoms or tenderness at all). The vitamin C you also need to work up with. Start at 500mgs per day and work up to 5000mgs per day. Be advised...

    Grape seed extract can cause some side effects. Some people experience nausea and headache with the higher doses due to detoxification. If you experience them, decrease the amount you take but try to take one mg per pound of body weight each day and work up to the higher doses. Vitamin C can also cause some intestinal problems at high doses in some folks. It gives some people the runs. Just work through it, it won't kill you. I have taken up to 10,000 mgs per day for 30 days and never died. Your body will become used to both of those super antioxidants and things will go back to normal. And, you may never experience what I just said, I never did, but, some folks do.

    Once you are well (no symptoms or abdominal tenderness), you can decrease the dose of grape seed down to a maintenance dose of at least one milligram per pound of body weight. Curcumin can come down to 500mgs per day, vitamin C at 1000 - 2000mgs per day. If this regimen works for you like it does me, you'll notice you feel better in a few days and in time may heal. Do not come off the high doses too soon. Make sure you are completely healed. You'll know because your abdomen will feel normal when you push in with your hand or have someone do it while you lie down. It should not be a painful experience.

    Since the pancreas produces the enzymes needed to breakdown a meal, I take digestive enzymes about 15 minutes before meals as well which seems to help possibly because it takes some of the load of producing enzymes off my pancreas. Just like the maintenance doses of the grape seed, curcumin, and vitamin C you will always need to take enzymes.

    If you are wondering, the reason I take 2000mgs of vitamin C is because vitamin C is a proven cancer fighter (so are grape seed and curcumin), along with being a very strong free radical fighter, and it works hand in hand with the grape seed to help protect my pancreas.

    Even with extra enzymes to help digest food someone with pancreatitis may also suffer from malabsorption, which means that your small intestines don't absorb the necessary vitamins and minerals your body needs to stay healthy. This of course means it is important to supplement with a quality multi-vitamin and mineral formulation.

    And ...

    This is important, not all vitamin formulations are good.

    When buying multiple vitamin-minerals formulations, look for quality (real natural vitamins, not synthetic), not price. Stay away from the cheap crap you see advertised on TV. I won't mention any names but cheap one-a-days are useless. If you don't believe me call the sewage treatment facility in your town and ask what vitamins are found in the sewage and then use something else.

    Mayo Clinic Pancreatitis Treatment

    This fairly new surgical technique could be a real blessing for some people with necrotic pancreatitis. There really are some brilliant minds out there in doctor land, finding them seems to be the difficulty.

    Things to Remember When Fighting Pancreatitis

    Do you have pancreatitis? You are now in a war, a battle for your life because for some reason, your pancreas has, in some way, been injured. It doesn't matter if it shows on a CT scan. If your pancreas was perfectly healthy you wouldn't have the condition—period. In any event you are in trouble, you are now engaged in battle. And...

    "Every battle is won before it is fought" - Sun Tzu

    This means that if you want to win the battle you need to out-fox your pancreas. You need to know what will piss it off (cause it to become inflamed) or worse, to destroy itself, thereby killing you. And you need to take the appropriate actions to ensure that the first does not happen so the second does not happen.

    Things to Know and Take Seriously:

    • You must eat to live instead of living to eat. When you have pancreatitis, eliminating alcohol, red meat, pork, lamb, duck, butter, mayo, margarine, and anything else with a high fat or oil content from your diet is absolutely imperative. Read labels on anything you purchase to eat. Make sure that hidden fats such as palm oil, coconut oil, butter, oil-based products (margarine, CoolWhip, etc...) do not enter your mouth.
    • Be careful of cough syrup, cold remedies, and mouthwash because many contain alcohol and, yes, the alcohol in mouthwash can be absorbed via the skin, especially under the tongue.
    • Vanilla extract doesn't work either because of the alcohol it contains, and even a small teaspoon used in baking can cause problems.
    • Bananas must be eaten before they begin to spot because the spotting signals that the sugar is turning into alcohol (trust me I learned this stuff the hard way).
    • If you haven't been told by your doc or figured it out yet from what I have said previously, alcohol is a real big no-no with pancreatitis. Yes, that means no wine with dinner, no beer at ball games, and if you drink after I have warned you, well you might want to consider getting your head examined.

    The important thing you must understand is that you need to make a choice between drinking alcohol, eating wonderful tasty food full of fat, and possibly dying a horrible painful death or eliminating alcohol and certain foods and possibly living to old age. The choice is yours and I already made mine years ago.

    Always Think Anti-inflammation:

    Pancreatitis is an inflammation of the pancreas. So when I feel unwell, like an attack is coming on, I immediately take aspirin. I used to wait until the pain was bad, but I finally figured out it makes more sense to take the aspirin at the first hint of trouble. I'd rather waste 10 cents worth of aspirin than take a chance of pancreatic damage. I switched from high doses of Motrin to 1300mg (4 tabs) of aspirin simply because I feel aspirin is safer. Aspirin is an anti-inflammatory, and it also things the blood, so that when I get tachycardia I lessen the chances of developing a clot. So I get a double punch.

    I use several spices that lower inflammation. For example, in my rice and vegetables for dinner tonight I added in a nice dose of the following:

    • Cayenne Pepper
    • Ginger
    • Garlic
    • Turmeric

    All of those spices are highly anti-inflammatory and garlic has another plus—it is a natural antibiotic that bugs do not become resistant towards. Cayenne pepper helps with pain as well, and ginger helps with nausea. Turmeric is a potent anti-cancer agent which has shown some promising attributes as an angiogenesis inhibitor. Garlic and cayenne have qualities similar to turmeric. I use those four spices a lot! And I use them liberally.

    Do Not Eat if You Are Not Hungry:

    I have a family member who thinks it helps to eat when they are nauseous, and most often they puke after eating. How dumb is that? What you need to understand is that if you are not hungry, I mean hungry, you can feel the hunger, your belly feels like it is starving and it is talking to you and it says: "feed me!" It is not a good thing to eat when you have pancreatitis. Not feeling the hunger is a signal that your pancreas doesn't want to go to work, and if you piss it off you'll pay. Trust me. So...

    I am not talking about your stomach making gurgling noises, or maybe it is dinner time and you think you need to eat. I'm talking about the fact that you know you are hungry and need to eat because you feel bonafide hunger pangs. If you aren't hungry—do not eat. Don't worry you won't starve. You can go up to two weeks without food but you do need to stay hydrated so drink water. But if you are not hungry don't eat.

    Eat at Home:

    One of the things I have learned the hard way is that it is much safer to eat at home and to eat only what I myself have prepared. The reason is simple. Your family and friends may care about you, even love you dearly, but they have been cooking their way for years. If they use a little butter, bacon fat, mayo, or marinade that chicken breast with a little wine or whatever—they inadvertantly think: "It's just a little, what's it gonna hurt?" Well, that little bit of bacon grease in the fried potaotes probably will make you very ill and could possibly lead to complications that kill you. You need to ask yourself: "Is it worth it?"

    I know this is in fact what happens because I have become ill eating food prepared by frineds and family. I found the easiest way to remedy the problem was to simply avoid the food prepared by others. I've had two wives and a myriad of live-in girlfriends. They all, even though it was unintentional, made me sick with their food. My own mother, who loves me dearly, has made me sick with her cooking. You absolutely must take responsibility for your own life (if you wish to live), and avoid eating food prepared by others. They simply don't get the significance of: "A little dab will do ya." And I don't mean that in a good way because that little dab may lead to the attack that turns chronic pancreatitis into an acute episode that ends your life with necrotizing pancreatitis or organ failure.

    You may think I am being "anal" about this, but I'm still alive after 30 plus years. I've learned the hard way and I've been extremely lucky. I also understand that my luck could run out at any time. I'd personally prefer it were much later than tomorrow or next week. So, again, you need to choose between what is best for your health and longevity and eating food prepared by others.

    All-in-one Multi-Vitamin Mineral Formulation

    A quality Multi-Vitamin-Mineral formulation is almost mandatory when you have pancreatitis. You will most likely need an extra boost of vitamins in order to receive the optimum levels of nutrition your body needs to repair itself and survive.

    All One Powder Multiple Vitamins & Minerals, Fruit Antioxidant Formula, 2.2-Pound Can
    All One Powder Multiple Vitamins & Minerals, Fruit Antioxidant Formula, 2.2-Pound Can

    Vitamin-Mineral formulations are not created equal. Most are absolute garbage. I use this formula myself and even though I wouldn't rate it as exceedingly outstanding it does trump 85 - 90% of the products on the market. Most of the vitamins, minerals, antioxidants and amino acids come from plant based sources, however some are still of the low quality synthetic composition. But the majority of the formula is quite good. It's easy to take and the absortion is very good and it beats the hell out of buying and taking 30 - 40 different single products of better quality, if you can even find them. I'm happy with it and feel the difference. Give it a try to see if it fits you.

     

    Pancreatitis Resources

    I may add information to this from time to time that is important for you to know if you suffer from pancreatitis, especially acute forms of the illness.

    Pancreatitis Support Groups

    One nice thing to have is a group of support people who actually know what you are going through in regards to pancreatitis. Most people such as family, friends, and co-workers have no clue what you endure daily due to pancreatitis, and some can be downright offensive due to ignorance. If you have recently been diagnosed or have suffered for quite sometime, you may find comfort in knowing you are not alone. Support groups are places to vent on a bad day, ask questions, and simply hang out with others who know what the pain and other symptoms are like and the problems you face daily.

    However, be advised!

    I have joined several support groups and they all have one thing in common which drives me nuts. They are full of sick people who give advice to others, which is guaranteed to keep you sick. If someone gives you advice (what they eat, what they take, what they do, what they think) and they are not pain-free and well—please—for your own well being do not listen. Be polite, whatever, but, I can dang well guarantee you that if you follow the advice of someone who is still sick or had to have their guts removed after years of being sick, you are gonna end up the same way by following that kind of advice. Following the advice of someone in a pancreatitis support group who is still sick, suffering pain, and looking for answers via surgeries and procedures is like following financial advice from your uncle who has gone bankrupt three times or that fat lady down the street who offers you tips on how to lose weight—it simply doesn't make sense.

    I'm serious.

    The information that is passed back and forth by the people I have found in pancreatitis support groups is so dangerous it simply makes me angry.

    This article was designed and updated for one reason.

    To help people heal their pancreas, if possible (not everyone will be able to heal even if they do exactly what I do because they are already so far gone it isn't possible).

    I have read the stories of people in support groups, who are so sick it is nothing less than heart-breaking yet they will not listen to someone who has been in a similar situation (maybe not as bad, maybe worse at one point), yet found a way to stop acute pancreatitis attacks dead in their tracks, heal the pancreas damage, and live mostly pain-free.

    If I'd have found someone like me when I was extremely ill, I'd have jumped at the chance to learn and do anything that made sense to stop that unbelievable pain.

    But, there are some really stupid people in the world, people who think they are wise yet have no clue. These same people eat foods that would have surely caused my death years ago if I had continued eating them, but I was lucky.

    Someone whispered in my ear and helped me find the truth.

    I am sharing that truth with you, free of charge.

    You'll find where I use certain supplements to heal and keep me healed, and I could care less where you buy them, just buy them and use them. This article is not about making money. Twenty-three cents, or even a buck or two from a sale doesn't turn me on. This is not my dream niche. I work online in areas that nail $25 - $200 per sale. I wouldn't walk across the street for twenty-three cents in commission let alone invest the time it takes to write and update this piece.

    So, if you happen to be some puke who thinks I am taking advantage of people who suffer, get your head out of your ass so you can see daylight.

    God save my ass.

    I have no clue as to why however I can come up with several hundred reasons why He should have simply let me die. He, God, showed me how to heal. He taught me how to do research and showed that what He whispered in my ear years ago has now been proven by science to work.

    If you should ask me a question I will tell you what I would do, not what you should do because I am not a doctor. I can't give medical advice, nor can I prescribe a course of treatment. I can tell you that what doctors do in the ER is almost totally wrong and why I wouldn't go in unless I hear that whisper in my ear telling me to go but...

    I would suggest that you do not ever do what I do (avoid the ER when prudent), because you can die from acute pancreatitis. I do not trust doctors. I have my reasons for that, but that does not mean I am right. If you have gotten this far along in this article, you know why I avoid doctors, especially when it comes to pancreatitis, and why unless I hear that whisper in my ear telling me I need life saving care, I'll never set foot in an ER ever again for acute pancreatitis.

    As for support groups, I cannot recommend them. You will receive too much erroneous information. I have been a member of about five groups and all have been what I'd call a bunch of sick, clueless people offering advice on how to stay sick.

    However, if you need support feel free to ask. There is only one of me and I don't spend all my time on this site, but when I see a comment in the form of a question, I answer it. If I know the answer I'll tell you what I know, and if I don't know the answer I'll tell you and then look for the best answer, hopefully supported by science so that you can make an intelligent decision.

    I can tell you this: doctors are not always right (they just think they are omnipotent), they call their business a "practice" for a damn good reason and that is because they practice on you. That is why I never do anything some white coat tells me to do (have a procedure, pop a pill, etc) without doing research on that procedure, medication, or surgery first whenever possible; and it is always possible unless you are comatose.

    If you would like to join a support goup then feel free, but pay extremely close attention to who you accept advice from because there is so much erroneous, damaging, and imbecillic postings in support groups that I actually cannot recommend them.

    pancreatitis help
    pancreatitis help

    When Pancreatitis Makes You Sick Our Lord and His Angels Will Help

    I honestly can't count the number of acute pancreatitis episodes I have experienced. When I was very sick, they came often and I am sure that it is only by the grace of God the creator and His angels that I am still alive.

    The doctor who diagnosed me said, "You're lucky to be alive."

    I didn't see any major resolution in sickness for another three years, but while in an attack I prayed—a lot. Talking to my Father helped, and I know that during the worst episodes He had angels keeping me safe. I never saw them, but, I was never in fear, just pain. And for those of you who have experienced the pain, the type that is so bad you begin to lose touch with reality, things seem to move slow, it seems like a foggy pain racked dream—you know what I am talking about right? Asking your Father in heaven for comfort may help you bear the pain.

    Important Warning

    Beware. I am not a doctor. I can't prescribe, diagnose, or dispense medical advice and you should do your own research as well as reading about what I personally have experienced and do. Any content on this page, about living with pancreatitis, should only be used for your reading pleasure, and should never be used to diagnose or treat any disease, condition, or physical impairment of any kind. You should always seek competent medical advice from a licensed physician (some do exist) before trying any natural remedy or starting any health program. Am I clear on that?

    Have You Found This Pancreatitis Information Helpful?

    • Yes
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    See results without voting

    © 2010 TheHealthGuy LM

    Any Pancreatitis Thoughts, Questions, or Stories? Feel Free to Share! 147 comments

    sousababy profile image

    sousababy 5 years ago

    This was excellent. I am so impressed with your honest and frank account of your experience. Many, many people do not know about eating bananas before they spot. Nor do people realize that cayenne pepper, ginger, garlic and turmeric have anti-inflammatory properties. This is very difficult disease to manage and your lens will help many, many people. I will post this on Amplify asap. Take good care, Rose


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @sousababy: Thank you ma'am :-)


    anonymous 5 years ago

    What excellent information you share from your personal experience and research. I love your strong emphasis on no alcohol or fat, you very definitely could be saving lives by sharing.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Thank you ma'am. I've seen people die. I've experienced pain. If I can help just ONE person living with pancreatits, well, that would make it all worthwhile. I sincerely hope this information is of use to someone and enables them to adapt, improvise and overcome.


    SandyMertens profile image

    SandyMertens 5 years ago from Frozen Tundra

    Very informative. Glad you could share your own experience.


    Cona7351 5 years ago

    Having been rushed into hospital almost a year ago with the most intense pain on my stomach I was diagnosed with chronic necrotising pancreatitis. I spent 2 weeks in icu but pulled through. I have a pseudocyst which is being drained in a couple of weeks. I suffered repeat attacks and intense pain after being dischargedfrom hospital. Some of which needed me to be rushed back. No doctor could tell me what I could do to stop these attacks. My wide then found your lens. I read it and was surprised at how common this horrible disease is and how many people have it. I never heard of it till I got it. I read about your regime and started it straight away. That must have been some 6 months ago now. I have not had another attack, my pain is under control and I can pretty much lead a normal life again. Before this I was always down, couldn't play around with my kids cos of the pain and pretty much got myself in a depressed state thinking there was no way to control this horrendous disease. I know I've thanked you so many times but I can't put into words how much of a difference your blog and this lens has made to my life and that of my families. The one thing I have found out though, for me, is that stress induces pain. I think it is because of the pseudocyst I have as I have been told it enlarges with stress, whether that is true or not I don't know. Maybe someone else has similar problems. All I'll say is I know that when I get stressed, I get pain. I also get pain if I overdo stuff. I have learnt, through my wife nagging at me is to not over do anything. I hate being lazy, sitting on a chair watching my wife run around trying to get every thing done. I like to help. I can help but I also have to rest a lot. I know when I am getting close to causing myself pain and stop and rest. If I get pain I take a couple extra grapeseed, circummin and vit c tablets. This tends to get rid of any pain. I hope that when my cyst is drained that I will eventually be able to do more as I believe that the cyst is causing me problems. My doctor agrees to. I'll let you all know. If anyone has had a cyst drained please let me know how it went and if it made any difference to you. if it wasn't for people like us sharing our experiences with this disease we would all be at a loss of what we could do to help. If I can help anyone by answering any questions I will. All I can say is read Pauls blog, along with the Facebook page he has links to and they go a long way to answering most questions. I wish every one the best and let's see if together we can't find a way to beat this.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @Cona7351: Thanks Cona I appreciate you sharing your story and hope you find relief. I have an idea of your pain. Thank you again for sharing.


    norma-holt profile image

    norma-holt 5 years ago

    What a horrible disease. Thanks for sharing your story and for making us aware of the effects of this problem. Hugs and prayers for your healing.


    anonymous 5 years ago

    Thankyou very much for such a wonderful and informative site. I was diagnosed only 3 months ago and have had 3 attacks since then. Your research and personal experience is helping me to understand my own journey. I realise it will be a long one.

    It has been reassuring to read that what I have done naturally appears to be correct, that is to eat small meals with no fat. I have also learnt that it takes about two weeks to recover from each attack. With your blog and this site I feel that what I am experiencing is real and normal with my condition and I thank you for that.

    I have applied for friendship with facebook and look forward to hearing from others with this illness. Thankyou again for such detail and support for sufferers and their families.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: I am super glad to hear you feel this information and my blog are of value. Thank you for your kind words. You are certainly welcome and I hope you find relief. My goal is to help as many people, who suffer with pancreatitis, as I possibly can to overcome the pain and damage.


    anonymous 5 years ago

    This information is very helpful. I have not been diagnosed with pancreatitis, but doctors have admitted that they do not know why I have abdominal pain. Years ago, as a teen, I was in an accident where about 700 pounds fell on me. I could barely breath for days, and was bruised pretty badly, but since I got up and walked, everyone thought I was OK. I have had chronic problems ever since. This is the first time I have had even a suggestion that anyone knew what it might be. I am sick after eating bacon, and as much as I love it, milk makes me sick to my stomach. I will try your suggestions and see if they help. Thank you.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: You are most welcome. I would suggest that you have your doc perform some tests such as a CT scan and ultrasound of the pancreas (to check for damage) and your gallbladder (to see if you have developed gallstones). Gallbladder disease, either with or without stones, can produce similar symptoms as Pancreatitis. If your gallbladder shows no sign of stones or infection at least that is ruled out and then it is time to get serious and zero in on your pancreas which may have received damage from the accident. Unfortunately most doctors have difficulty diagnosing Pancreatitis or Chronic Pancreatitis unless you have major damage or are in the middle of an acute episode and happen to draw blood at the right time and notice your enzymes are elevated. But you may get lucky and have one who can think on their feet and actually diagnose properly. I went through 14 before I found one of those :-)


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @norma-holt: Thank you ma'am :-)


    jopalei 5 years ago

    I just want to say Thank You for this Lens. This is the third time I've visited in 2 days. I was actually thinking of making my own Lens on pancreatitis (I'm relatively new to Squidoo) until I saw yours. Portions of it were like reading my autobiography. Clearly, you have much more experience with fighting it and have done FAR more research than I would have been able to do. I've only gotten through about half of the information you've provided, and it's more than I've been given or found on my own in the 6 years I've been dealing with the "Big P". Of course, I WILL be back again, so I'll keep this relatively short.I smoked, I drank, I ate whatever I wanted, I worked with every chemical known to the woodworking industry when I finished custom cabinetry, and I was in a bad car accident in 2003 when a guy fell asleep at the wheel, hit me from behind at 70 mph when I was sitting at a traffic light and my car rolled over 360 degrees - I walked away with very little injury, by the way. All of these things, or any combination, seem to have been the perfect storm for what happened in 2005. At 38 years old, I thought I was having a heart attack. Nope. Thankfully, I was diagnosed within 24 hours that I had pancreatitis with pseudocysts. The treatments, however.....let's just say I completely agree with you about doctors - finding one that knows anything is like a needle in a haystack, and if I'm paying you $150 an hour, you BETTER be helping me or I have no use for you. During the next four years, I was in the hospital 7 times, had 14 CT scans, 3 MRI's, a tube up my nose and down my throat to bypass my digestive tract for 8 days, so many IV drips I lost count, DiLaudid (medical heroine), Percocet, Vicadin, antibiotics, and a few other things I can't even remember right now. I also had endoscopic surgery similar to the video above, but instead of removing debris, it was a temporary stent inserted into the Central Duct to to keep it open. The stent was modified to - let me put this in pleasant terms - migrate and be expelled on its own. I have had an x-ray since, and apparently it did. Like you, I kind of gave up on the doctors unless I need them in an emergency or for something else. I do have one warning for evryone out there though, which I haven't seen mentioned yet. 2 years ago I thought I was having a severe attack when I had the SAME kind of pain and this time included - sorry about the graphic terms here - vomiting a quart of blood. I'm not saying this will happen to anyone else, but with nearly zero fat in my diet and so much fruit juice and other acidic foods, I was diagnosed with severe acidosis which ate away the lining of my stomach to the point it looked like hamburger - I saw the pictures. Just something to watch out for. That was the last time I was in the hospital. I've since done some of my own research and I have my own "regimen" which includes Solaray Pancreas Caps - I've tried plant based enzymes and they don't seem to work for me as well as these Porcine based ones. Let me know what you think of them. Having said that, the reason I didn't leave these comments yesterday is because after I left for work, on my way home I went out and bought grape seed, curcumin, and ibuprofen - I can't take aspirin due to the acidosis, which is why I mentioned it earlier. Well, I'm running out of time, but I'll be back. In closing for now, to use your war analogy - I think my major battles have been fought and won. I usually only have much milder attacks these days. The armistice has been signed, but the tensions remain - sort of like Korea, I guess. You'll find that I have an odd sense of humor sometimes and that's another important thing.....take pancreatitis seriously, but keep a sense of humor, too. One of the last commenters asked about stress - it's not good for anyone, especially those of us that have the "Big P". Don't obsess on the problem or other problems - act to correct them. Thanks again.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @jopalei: jopalei, thank you for the kind words in regards to this lens. I hope you find relief using the grape seed extract, curcumin and Ibuprofen. It works for me and seems to be working for others as well. I don't take Ibuprofen unless I have an acute pancreatitis episode, which thankfully I haven't had for quite sometime, but the vitamin C, grape seed extract and curcumin are a daily ritual.

    In regards to the acidosis - I personally am somewhat stumped because I have never been told I am acidic, in fact, my ph level is alkaline and from everything I have ever read, in regards to becoming alkaline, acidic foods such as lemons, grapefruit etc ... though very acidic themselves, do the exact opposite when introduced into the human body. They make it alkaline, which is a good thing because all disease dies in an alkaline and oxygenated environment. In other words, cancer for example, can not live in an akaline state. So your bout with acidosis is puzzling to me and I have never seen where it is a complication of pancreatitis but that doesn't mean it can not happen because in your case it obviously has.

    I appreciate the heads up and now that you have my curiosity peaked I'll have to look into the causes of acidosis more closely, especially in those who suffer from pancreatitis. If I find anything that even remotely points to pancreatitis, or the low fat diet for pancreatitis, as a possible cause or precursor to acidosis I'll post it either here on this lens or on my blog and probably on both. Thank you again and I wish you better health!


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @jopalei: Ok, I just quickly discovered some of the potential causes of acidosis that could occur due to Pancreatitis. I am simply going to post a link to an authoritative site and then cover the key points that may pertain to complications of panc (hypoglycemia, diabetes, alcohol, aspirin poisoning, shock). Usually, as long as the kidneys and lungs are not compromised acidosis shouldn't be a problem but you know murphy's law (whatever can go wrong will) right? So again, thank you for the heads up because it looks as though acidosis is in fact a potential complication that is entirely possible which it seems, NO ONE, except you jopalei, have ever thought to inform the public or panc sufferers about. Leave it to doctors to completely forget to tell us of this possible complication. Here is that site y'all can check out and see for yourselves that there are complications or resulting problems that can be directly attributed to pancreatits that could result in acidosis: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH000216...


    Runnn 5 years ago

    Informative lens. Thanks for sharing and all the best to you.


    anonymous 5 years ago

    Hi,

    My husband has not yet been formally diagnosed with pancreatitis but it is definitely leaning in that direction. He has been in the hospital 4 times within the last year due to severe dehydration from extreme vomiting. Almost always his lipase and amylase are very elevated. We have not yet found all of the triggers and I'm concerned because after this last bout just a few days ago the pain has not gone away and is there especially after eating. I am looking for ways to alleviate the symptoms and find the right diet for him. I have ordered a high quality multivitamin as well as various supplements, including vitamin c, a , and b. Also the woman at the health food store told me of great success that pancreatitis suffers had with aloe vera liquid. I'm willing to try anything. Please help. I'm so scared that he's going to become disabled and be in constant pain and we won't be able to care for our daughter or unborn son. I'm freaking out beyond belief and can't stop crying.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Hi Salina - I know it is scary when someone you love is sick and nobody seems to know what the heck is going on but I am not a doctor and can not legally diagnose or prescribe any sort of medical treatment. You may want to invest some time here on this lens and also my blog. By reading the information you may find help for your husband but it is imperative that you find a doctor who can diagnose your husband. If he does in fact have Pancreatitis, which to me sounds like a good possibility due to the rise in Lipase and Amylase levels, it is imperative to stop the inflammation and that can ONLY be done via a 48 - 96 hour fast (nothing by mouth but water) until his symptoms disappear and he is actually hungry. Then a strict VEGAN diet (small portions) cooked with NO OIL or FAT of any kind, and the addition of grape seed extract, curcumin and an anti inflammatory such as Ibuprofen (for pain). You can find my complete regimen on my blog or this lens. There is NO cure for Pancreatitis; However, I have survived, mostly pain free, for over 30 years. I have shared EXACTLY what I do on this lens and in my blog. I wish you the best. If you have specific questions all you need to do is ask and I'll answer to the best of my knowledge.


    anonymous 5 years ago

    @TheHealthGuy LM: I have read your lens and have gone to my health food store to get the grape seed extract and the curcumin as well as a multvitamin and hope to start him on them as soon as his pain subsides a little. He's worried that it will trigger another attack so he's holding back until he feels better. I have written down your regimen and am trying that out on him. Your story gives me hope that we can deal with this and he can live a somewhat normal life. Thank you. He goes to the Dr on Monday and I hope that we can get some more answers. His white count is also always up when he goes into the hospital but that could be because of all the puking.. ? Also I have looked at Sphincter Oddi Dysfunction (SOD) as a possible cause of his attacks but don't know of any men that have had it only women. I have also been told that men fair better with pancreatitis and I hope hope hope this is true.


    anonymous 5 years ago

    @TheHealthGuy LM: Also, how do I get to your blog?


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Salina, that is excellent but it is important to eliminate the inflammation as soon as possible to avoid more damage to his pancreas. The longer he waits, the more damage may occur but of course that is his choice. Ibuprofen or aspirin is very important as well. My doc (the one who finally figured out what was wrong with me) put me on demerol for pain. It did absolutely nothing to relieve the pain. Ibuprofen (800mgs) did. You can get Ibuprofen OTC (advil, motrin, or as Ibuprofen) and it usually comes in 200mg caps or tabs. He can take 4 and get the same or similar results that I received from 800mgs of prescription Ibuprofen. Make sure it is strait Ibuprofen. DO NOT use Tylenol. Tylenol causes liver damage. But keep in mind, this is a condition where time is of the essance. The longer his pancreas is inflamed the more damage he is going to incur and that will directly impact his longevity and/or quality of life.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Scroll up one module :-)


    anonymous 5 years ago

    @TheHealthGuy LM: I have tried to get my husband to take some aspirin or ibuprofen but he said the Dr told him not to because of his esophageal ulcer. I still think he should take it to get over the residual pain from his recent episode at least until the grapeseed extract and curcumin kick in. How long does that take by the way? Poor guy can't sleep because his stomach keeps waking him up. Do you also get stomach pain?


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Salina, I've had some horrific pain at times. Demerol (in shot or pill form) didn't even take the edge off it but Ibuprofen eliminated it, usually in less than 90 minutes. I honestly don't remember how long it took for the grape seed extract and curcumin to do it's thing and get rid of my pain but once it did I was and still am (unless I screw up with diet in some way) pain free. I cringe whenever I think of that pain I used to have during an Acute Pancreatitis episode. It use to feel like my guts were gonna explode. I have never been gut shot but I imagine the pain might be similar in intensity. I know this, I don't want it anymore and so I consume grape seed extract, curcumin and vitamin C at least twice per day, every day.


    anonymous 5 years ago

    @TheHealthGuy LM: I'm assuming that's exactly how he feels when he's sick. His main issue when he has these attacks is the severe nausea and vomiting. It's scary to watch how much he vomits and how often. This is what sends him to the hospital because he gets very dehydrated and his potassium bottoms out. You can just see the sweat pouring off of him. It's awful. I want to fix him right now but I know that's not realistic. I have my fingers crossed that the grapeseed extract and curcumin work as well for him as it does for you. I also read somewhere that curcumin works even better when combined with milk thistle....have you tried that? I know I have to start him off slow and only one or two supplements at a time but I'm anxious and he's so tired of me asking him if he's okay.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Milk thistle is used to cleanse the liver. I have no idea whether it has any usefulness in regards to the pancreas. As to your husbands vomiting, hasn't a doctor prescribed any anti-nausea meds? Have someone write him a script for compazine or phenergan. Phenergan comes in suppository form for eliminating nausea when vomiting up pills is likely. They come in 25mg sups and I have taken it with really good results, sometimes 2 sups are necessary but it works.


    anonymous 5 years ago

    @TheHealthGuy LM: He does have a script for both. And usually the compazine is what works because he has to take a suppository because pills are no way staying down. And it's almost always necessary for him to take two. I went to get him the curcumin but it said not to take if you have ulcers and he has an esophageal ulcer. But I did get him the grape seed extract as well as a potent multivitamin/mineral as well as an antiinflammatory blend. I'm hoping that combined with the aloe vera liquid and possible siberian pine nut oil will give him relief... Today he ate red grapes which almost immediately caused him pain and made him vomit and he is now laying down. I'm wondering if this was the cause of his continual abdominal pain after he was released from the hospital because that was the first thing he ate... I read one website that said it was one of the seven best foods for pancreatitits sufferers but then I read another forum where the members there had a hard time digesting them...


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Personally I wouldn't be eating ANYTHING if it were me and I don't care what others say. I'd be taking grape seed, curcumin and my anti-nausea meds until I wasn't puking anymore and I would NOT eat ANYTHING until I actually felt I was starving. IF it is pancreatitis he isn't going to get better eating. His pancreas needs to "rest." It can't rest if he eats. I'd be on water only until I was so hugry I thought I might pass out and I am not joking. You can go 2 weeks without food. He won't starve. But water is essential. And Once I was HUNGRY I'd drink juice ONLY, something like low sodium V8 juice or if you have a juicer make your own vegetable juice but continuous vomiting should be a clue that he is not ready for solid food of any kind.


    jopalei 5 years ago

    @TheHealthGuy LM: Salina:

    I am NOT a doctor either, and cannot give medical advice. I know your husband has a doctor's appointment soon - get him diagnosed before you even take anything I say into consideration. All I can do is tell you about my own personal experience (you can read my story below if you haven't already). I've been reading this thread since the beginning, and I agree with TheHealthGuy - I wouldn't consume ANYTHING but sips of water or sucking on ice cubes until he gets to see the doctor. When I was in the hospital, they wouldn't allow me anything for the first 24 hours but a wet sponge to suck on. After that, for the next 48 hours, I was allowed only ice cubes. Again, TheHealthGuy is correct in that IF it is pancreatitis, the digestive system must rest, or better yet, STOP as much as possible. I know, I know - almost everyone says "Well, you have to eat SOMETHING.".....NO YOU DON'T! Not yet, anyway. At the most extreme time when I knew I had pancreatitis, but had not known that I also had severe acidosis, I once went for 3 weeks without eating anything solid (don't do that, though.....I waited too long to go to the emergency room - a mistake I won't make again). That brings me to my next point - If I were you (your husband), I would NOT be consuming ANYTHING containing acid until he knows for sure that he does not have an acid problem of some kind. Like I said, I'm only speaking of my own personal experience, but I know when my problems were at their worst, even things that would seem like they should be good for my situation were not, like fruit, juices, some vegetables - heck, even Cream of Wheat gave me a problem the day I went to the hospital the last time. I STILL have a problem to this day if I eat too many grapes at one sitting, though I can eat a normal amount now. Also, before I go - along with telling the doctor everything you can about the situation in detail, remember colors - yes, colors. Sorry to be graphic again with the terminology, but if his stool is dark or black and/or his vomiting is red, it could - COULD (not necessarily) be a sign of internal blood loss - this happened with me due to the acidity of my stomach as it ate the lining away. I don't want to worry you unecessarily, just to remind you to tell the doctor everything in detail. If it seems the doc wants to rush to their next patient, keep them in the room with questions and more details as you think of them until you get SOME kind of diagnosis and hopefully, treatment. Good Luck.

    To TheHealthGuy: hope you don't mind me putting in my 2 cents - thanks.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @jopalei: jopalei, Of course I don't mind. Your comments are always welcome. I definitely agree that the first course of action is to get a definitive diagnosis. Unfortunately by the time that happens, should it be pancreatitis, he may have more damage.


    anonymous 5 years ago

    @jopalei: Jolapei,

    Thank you for your advise and relating your experience. When my husband goes to the hospital he is not allowed anything either for the first couple or few days. He gets IV fluids with a potassium drip. This is the first time he's had pain after his release though. But now it's gone from continual to off and on, usually after he eats. So far his diet consists mainly of soup.


    anonymous 5 years ago

    @TheHealthGuy LM: Salina,

    First of all hope your husband gets the help he needs real soon. These people are right. Stop ALL food. When I was rushed into hospital, well I don't remember as I was all drugged up but I wasnt allowed anything to eat for well over a week. For the first few days it was nothing but sponges on the end of a stick that I could dip in water to hydrate my mouth. I was then put on a liquid food drip (apparently it contained all the nutrients to help my body recover). This is all I had till well after a week in icu then I could have sips of water. After a couple weeks I had a small amount of solid food and then that gradually increased. (very slowly though so as to not shock my pancreas), and i was still getting the nutrients from the liquid stuff through a drip. It is a long, very long process that seems like it will never end, but all I can say is what works for me. I still get pain, and when I do, I stop eating straight away. Like The health guy says, his regime is excellent. I only really started to feel better by following it (very strictly). It won't happen over night but it will happen. I noticed reductions in pain pretty much straight away but the real difference is the diet to. It all seems a lot to go through but all I can say is trust me, it's well worth it. I have given Paul (the health guy) a lot of praise on various sites as what he kindly wrote about his situation really helped me. Get your husband to follow his regime (very strictly). I at the beginning I think I was taking 2000mg grapeseed, 2000mg curcummin and 4000mg vitamin c and a good multi vitamin. I also have to take Creon which I take 15 minutes before I eat as that helps my pancreas digest the food, and what helps the pancreas means it doesn't have to work so hard therefore causing less pain/damage. I gradually have reduced my intake of the supps now but when I get pain I increase them again, along with taking Asprin and Ibuprofen. That's what I have found works for me. I was on a he'll of a lot of morphine that my doctor precribed but I have pretty much taken myself off it. I say pretty much as because I have been on it so long (about a year) I am addicted to it and the less intake I get withdrawal symptoms which aren't nice. But give me 2 weeks and I'll be off it altogether, ready for my holiday to Florida with my kids (which to be honest a few weeks ago I was going to cancel as I didn't think I could do it) as I live in the uk and it is going to be one he'll of a hectic holiday but with the strong support I have from my wife and Pauls regime I am going. I am determined not to let this beat me any more. So all I can say is what worked for me, and that is what worked for the health guy. He knows what he is on about. I hope your husband finds some comfort soon. I know what he is going through. It can get easier but you have to be strict. Resting the pancreas and reducing the inflammation is so important to get on the road to feeling better. Good luck and take comfort knowing that others have got through this.

    Simon


    anonymous 5 years ago

    @TheHealthGuy LM: My husband had his doctor's appt today and he was referred to a GI specialist at Oklahoma University (which I was expecting). The doctor still does not want to pin a diagnosis of CP yet, he gaves us three diagnoses that he wants the GI to look at. One starts with an E or A and is a long word that I can't remember, I had meant to ask him to write it down but got caught up in the rest of the visit. I'm calling tomorrow to ask. The other two is a possible gastranoma or a carcinoid. He says one thing that seems to point away from CP is that his pain isn't in the upper center abdomen behind the breast bone usually it is on the entire right side of his abdomen and in his stomach area and the middle of his right side of his abdomen (I hope this makes sense). I don't really have high hopes but maybe... more waiting and guessing...


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Well Salina keep a good spirit. At least his doctor is trying to find out the real reason for your husbands sickness and that is the prudent course of action. Right now, it's a guessing game. It is better to KNOW what the problem is and thereby intelligently be able to go to the next step. Hang in there and find out what is really wrong. Good luck to you both.


    anonymous 5 years ago

    @TheHealthGuy LM: It has to be pancreatitis. This morning is a bad one. He does usually wake up not feeling good (nausea and pain) but this morning it's pretty bad. I know that he's been vomiting or at least gagging. I asked him if he needs to go to the hospital and he said no but he's pacing back and forth. I know he's worried about work because he should be getting called out anytime and truthfully I'm worried also, I'm pregnant and no one will hire me right now. I don't know what to do. Can ulcers do this to a person?


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: It may be beneficial to get him to the hospital ER.


    anonymous 5 years ago

    @TheHealthGuy LM: I want my husband to try your regimen but the doctor says that aspirin will aggravate his ulcer and it says the same thing on the curcumin bottle...


    anonymous 5 years ago

    @TheHealthGuy LM: Do you take the anti-inflammatory on a daily basis? I got him to take aspirin last night. Right now his major complaint is nausea. I am so frustrated and feel so awful that I feel this way but during every attack our entire lives are put on hold. I can't do laundry, dishes, anything because he takes a shower every 15 minutes and I want to make sure he has the hot water to do it. He paces around the house and is crabby and can barely acknowledge our little girl.


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Salina, no, I only take anti-inflammatories (aspirin and Ibuprofen) when I absolutely need to which is when I have an acute pancreatitis episode which hasn't happened in years. I do take grape seed extract, vitamin C and curcumin daily and all 3 have anti-inflammatory properties but no, I do not take OTC or prescription anti-inflammatories daily.


    anonymous 5 years ago

    Hello!

    I really enjoyed reading this lens. I fully agree with the 'treat for inflammation' ideology and have my own supplements etc that I take to manage my chronic pancreatitis. This is one of the most informative sites I have found so far for pancreatitis. I even printed it off and gave it to certain family members to read so that they can get a better understanding of the disease and how I intend to treat it. The head of my pancreas was left scarred and my pancreatic duct is unable to work due to a particularily bad acute attack with complications. I still cross my fingers for regeneration and think it's possible, especially since my symptoms are so mild (usually). So, take care and I look forward to using this site and all it's information as you update it!


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Kimberly - Thank you for visiting and I am glad you have found the information helpful. I hope you heal and overcome Pancreatitis. I sincerely wish you better health and a long happy life :-)


    mysterrio 5 years ago

    Very informative. Nice Lens


    anonymous 5 years ago

    Greetings, Health Guy! What an informative site! I was diagnosed with CP a few months ago, after having had 3 visits to the ER with acute attacks, the first one being gall bladder/gallstone related. When they removed my gall bladder, they said it was like mush. (I had had repeated acute attacks several times over a two year period prior to that and was misdiagnosed as having diverticulitis, so I would just let them pass...until the last one, which landed me in the ER.) I was never a particularly heavy drinker (I drank, but not to excess).

    I am now in almost constant pain. I have a precription for Oxycodone/APAP which I take on occasion, but mostly rely on Acetaminophen. One of my biggest problems is weight loss...I have gone from 162 lbs. in late March to 135 lbs. now. I can hardly eat much of anything...have actually become "afraid" of food. No matter how healthy or "right" I try to eat, it affects me anyway. I drink one or two bottles of Ensure a day and try to eat things that are both low-fat and carry enough calories to at least keep my weight stable or possibly gain weight. Not an easy task!!! Any recommendations??

    Also, do the NOW Foods Super Enzymes that you recommend take the place of Creon? My doctor has me on Creon 2400 capsules with every meal, but not sure they are doing a whole lot of good. I also take Floragen, which is a digestive enzyme as well. The Creon is quite expensive (something like $330 for a month's supply...fortunately, am still working and have insurance so they only cost me $20.00, but down the road, if I have to go on disability and Medicare, I doubt that I could afford them.)

    This is a horrible condition (and one I had never even heard of until I was diagnosed with it. I wouldn't wish it on anyone.) Thanks for all the time you've taken to put this site together. Have learned more from it than from any other.

    Regards,

    Keith


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: The only recommendations I have Keith would be to stop taking Acetaminophen because it is proven to cause liver failure. Switch to Ibuprofen or aspirin. Ibuprofen and ALL NSAID's carry risk but they actually address the inflammation of the pancreas (AP or CP) not the pain and once the inflammation resolves the pain does as well.

    No alcohol none, nada, zip. Watch your useage of mouthwash, vanillia extract and cold remedies because they may contain alcohol. (vanillia extract and mouthwash like Listerene DOES contain alcohol).

    The enzymes I use do take the place of Creon. Creon is a synthetic replication of panc enzymes I prefer natural as they tend to work better and are safer. Creon is made from pork and pork is HIGHLY inflammatory to the pancreas. Unfortunately most enzyme products are made from some animal but pork would certainly not be my first choice.

    Do NOT stop taking your meds without checking with your doc. I am NOT a doctor and can not give medical advice. I simply do certain things, for certain reasons, and the things I do work for me - that doesn't mean I know what will work for you or suggest you do anything I do.

    I hope you find a resolution to CP pain and damage.

    Thank you for visiting!


    anonymous 5 years ago

    Thanks for the response! I have not had a drop of alcohol of any kind since diagnosis and was never a huge drinker in the first place.

    My biggest question: How do you keep your weight up? Or do you? That is one of the most difficult areas for me...I simply cannot eat as much as I obviously need to bring my weight back up to the level it was. I was never the brawniest person to begin with, but now I'm feeling like I'm starting to look like an Auschwitz survivor...have gone down two pants sizes, my clothes hang on me. (I am embarrassed to admit this, but I even resorted to buying some padded underwear on-line so my pants would fit better, and even on hot days this summer, I wore long-sleeved t-shirts under my long-sleeved shirts. I was too ashamed of being so skinny that I didn't even wear shorts or t-shirts this summer except for around the house.

    Any advice?


    TheHealthGuy LM profile image

    TheHealthGuy LM 5 years ago from U.S.A. Author

    @anonymous: Keith, I must admit I have no good answer for you in regards to weight. With CP it is difficult to gain weight until healing takes place. If you are sick you either lose weight due to vomiting or malabsortion or both. Once you are able to eliminate AP and control the resulting CP, and when I say control I mean controlling the CP to the point you no longer have pain, nausea and vomiting, you may then also see your ability to eat foods that will help keep your weight up increase. Protein is necessary to keep muscle and when you can not consume enough protein it is difficult to build and or maintain muscle.

    Vegetable sources rich in protein include beans, lentils and beans.

    Once you have complete pain resolution (without drugs) and your pancreas has healed (no abdominal tenderness) you can begin adding foods such as chicken, turkey, fish, eggs, and milk for additional protein. And ...

    The malabsortion may see improvement as well thus allowing you to gain weight more easily. The secret is to control the CP and I only know of one way to accomplish that and of course I have posted about diet and supplements. It takes time but it does work. I also found that I did something, completely by accident, that turned out to be a big step towards my recovery ...

    Since I was no longer able to drink socially I began drinking grapefruit juice. I was diagnosed with AP and CP in 1979, started drinking grapefruit juice in I believe 1981. I drank a lot of it. My AP episodes stopped. I thought it was maybe diet and my drugs that did it but now there is evidence that points to grapefruit juice as the benefactor.

    I was AP free for like 7 years while drinking copious amounts of grapefruit juice. I could eat more foods and began to regain weight. I felt better, not great but better. Then in 1994 I found grape seed extract and in 1995 added curcumin. For some reason I got away from drinking grapefruit juice but the vitamin C, grape seed extract and curcumin obviously did a great job because soon (I don't remember how long exactly but it was NOT over night) I was pain free. No pain, a lot less nausea and then my abdominal tenderness disappeared. I actually began to feel almost normal however ...

    I wasn't quite normal or "cured" because without the supplements I became sick. With NO diet and supplements I again became sick. WITH BOTH diet and supplements I became well. And once I felt well, I also regained my weight and energy.

    I still can NOT eat like a normal person who does NOT have CP. I can't eat pork, lamb, duck, steak, roast (NO red meat, pork, lamb or duck). I can NOT drink alcohol. I can't eat a lot of oily foods (potato chips etc) or foods fried in fats and oils. But ...

    Unless I screw up by eating or drinking something I shouldn't I am pain free and have been for quite some time. I may be just lucky, but I don't think so. I think that, unless there is so much damage that the pancreas simply can not function, what I do will help anyone who decides to get serious about healing. It takes total dedication to a new lifestyle but it beats the hell out of pain and puking.


    JoleneBelmain profile image

    JoleneBelmain 4 years ago

    Wow, it's amazing what the human body can go through and still survive... you have an amazing story to tell, and I'm sure you help a lot of people suffering from this disease. It's always great for someone suffering to share their tips in life, kindness makes the world go round (a lot better than it otherwise would anyway).

    ~BLESSED~


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @JoleneBelmain: Thank you ma'am. I appreciate your visit, kind words and Angel Blessing. Semper Fi :-)


    anonymous 4 years ago

    Returning with a blessing....excellent information that I hope many will benefit from!


    Nanciajohnson profile image

    Nanciajohnson 4 years ago from Mesa, Arizona

    Thank you for putting this information together for anyone who struggles with such a terrible disease. You are a blessing with your willingness to share so much.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Hi Susie, Thank you for visiting :-)


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @Nanciajohnson: Thanks for visiting and kind words :-)


    anonymous 4 years ago

    Hey health guy, are you diabetic?


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: No Mark I am not diabetic.


    anonymous 4 years ago

    I had an attack of severe pancreatitis on January 2 while at work (I work night shift). It took the doctors several hours to determine what I had, and by that time I was totally out of it, in some sort of confused state. With the initial onset, I had no pain, just weakness and feeling that I was going into shock. I was hospitalized for 24 days, mostly because I was so confused. The doctors told my wife that if I survived, I would never work again, and that I would have years of rehab. I lost 60% of my pancreas and now I am watching what I eat. I never was a heavy drinker, and the only things that I think of that could have caused this is the chemicals I worked with when I was a chemical operator in a chlorine plant, or possibly genetic. Anyway, the doctors said that I would never work again. I was released from the hospital on January 26 and went back to a full schedule at work on Feb. 13. I am functioning at about 99% of my former ability and the weight loss and better diet has dropped my blood pressure and my cholesterol. Thank goodness I live fairly close to one of the good hospitals that know how to deal with this. The first hospital I was at said that I would be sure to die if they did not transfer me the 70 miles to the good hospital, and thankfully they got that transfer done in time. I just wanted to tell my little story and to let people know that a prediction of death or doom does not always come true.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Hi Steve, thanks for sharing your story. Yes, I know that not all predictions of doom and gloom come to stay, good things do happen! Your story is a good indication of that. I am glad to hear your pancreatitis resolved! Good luck to you!


    anonymous 4 years ago

    Great article-I have been living with this issue since highschool: Diagnosed as everything from ulcers to allergy. (I'm 42-female) When I collapsed in pain 6 months ago & wound up in the ER the blood tests, followed by the CT finally identified it. 5 scopings later, the remedy for the complete blockage was supposed to be surgery to remove the duct, re-duct into the intestine & remove the gall bladder. I am a teacher without a job or benefits & basically broke, this was supposed to be done thru medicaid--BUT, pancreatitus is not coded under medicaid. So with only 72 hours to the surgery date, everything is on hold.

    I have been doing everything you suggest (except for the supplements) & after significant weight loss I do feel stable- but scared of the next attack.

    Was your duct blocked? Did they ever suggest surgery? My blockage is scarred over so bad they cannot remove without surgery...I am scared & if you have any input I would love to hear it.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Hi Heidi, sorry to hear you are having pancreas difficulties. As far as I know I have had no duct blockage. I have never had surgery for pancreatitis and don't want surgery. I'm not comfortable recommending that folks should do anything because I'm not a licensed physician and do not wish to be prosecuted for practicing medicine without a license.

    What I have shared on this page is what I did and still do personally to keep as well as possible. If someone else does what I do, they do it completely at their own risk.

    I am walking a real tight rope on this page because people ask me stuff that if I answer could be construed as medical advice.

    I can not give that.

    I can only tell you what I would personally do and I have no clue what I'd do if I were in your shoes and I am even coming to the point where I hesitate to even say what I'd do because if someone does what I would do and for some reason they become worse I could be in deep shit even though everyone knows that IF they do ANYTHING I have done or still do it is at their own risk.

    I feel bad about being evasive but the laws prevent me from giving advice. I would however, if it were me, be asking the surgeon what problems or complications could arise from removing the duct and re-ducting into the intestine, if he'd let someone cut out his duct (do the surgery) and what can be expected if I were to choose not to have the surgery. I'd also want to know how many times he has personally performed the exact same surgery and what his complication ratio was.

    If your surgery happens I hope it is successful and you heal perfectly!

    Thank you for visiting.


    anonymous 4 years ago

    I want to thank you for sharing all this information. When we go through the fires in our lives we often think we are the only ones experiencing the condition. Not that I wanted anyone else to go through this, but it is helpful to know that I'm not the only one. I first got pancreatitis almost 23 years ago when my son was only 2 months old. I had a galbladder attack that caused the pancreatitis. I had my galbladder removed and as far as I was aware I was on the road to recovery. I wasn't told that I most likely would have an acute pancreatitis attack any time soon. Thank God I was attack free for almost 18 years. Recently I've had several acute attacks. After reading a small portion of your story and research I started taking the Curcumin, vitamin C, and Grapeseed. However once I was completely over the pain and eating solid foods again I have made the mistake of eating meat and have ended up back on a liquid diet. I'm learning to make the changes that I need to make in order to live. Thank you so much for sharing your experiences and research.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: You are welcome Rhonda. Thanks for sharing. I hope you recover nicely from the last acute pancreatitis attack and live pain free. Keep strong!


    anonymous 4 years ago

    Thank for your blog & info, I started to feel an attack coming on so I quickly went o gnc and got the grape seed extract and cucumin, I also added milke thistle & multi vit, along with a liquid vit c & naproxen, used the dosage you used and OMG it seems to have shut it down!!! Thank you for sharing what worked for you! I would have never tried this!


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Nines, you are welcome! I am pleased to know it works for you too! I am saddened to hear you too have pancreatitis but it is exciting to know that the regimen I use to stop my acute pancreatitis attacks works for you as well. Thank you for sharing your success! I hope you find healling by using the grape seed extract, curcumin and vit C long term.

    I've never used naproxen but it is very similar to ibuprofen so it should do just as well. I only use 800mgs of Ibuprofen or 1300 mgs of aspirin to stop an acute pancreatitis attack. I don't use it as a daily thing. The grape seed, curcumin, vit C and pancreatic enzymes are a daily regimen. I wish you continued good luck and healing!


    anonymous 4 years ago

    After many visits to doctors and months of research on net about pancreatitis

    I finally came across your lens where i could find answers to almost all my questions and problems.If grape fruit juice is serendipitous discovery for you your lens is equally serendipitous for me and many.god bless you.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Thank you for the kind words and I am glad you have found the information useful. I hope you are able to heal and enjoy a long life!


    anonymous 4 years ago

    THANK YOU!!!! I am a new pancreatitis patient. I have searched and researched, and I feel this is the best article yet. So much good info. I was really at a loss. Going to try everything. Will check with my doctor. He is pretty good. Diagnosed me right away on first attack. But while he made the diagnosis, I got good diet and vitamin info from your article. You are a GEM. Thanks again!!

    Deborah


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Your doctor diagnosed you right the first time? THAT is a miracle! Keep him! LOL Doctors like him are hard to find! Thanks for visiting. I hope you find healing and enjoy a long, pain free life!


    anonymous 4 years ago

    @anonymous: I too had this problem.Is there any improvement in your condition.I rely on yoga and health guy's diet regimen to combat this.


    anonymous 4 years ago

    can you get Acute pancreatitis from a car aCCIDENT?


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Hi Kathy - Yes you could or can. Abdomenal trauma is a known cause of pancreatitis so let's say you are in a bad car accident and the steering whell is slammed into your gut. If that were to damage your pancreas it could result in acute pancreatitis.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @TheHealthGuy LM: Nines, I spoke out of turn about naproxen. After doing some research about naproxen I found it is not quite the same as Ibuprofen. It is the same in regrad to the fact it is an NSAID like Ibuprofen but large doses of naproxen (over 500mgs) can become toxic whereas Ibuprofen, though not completely safe, is a much safer choice.


    anonymous 4 years ago

    This is the absolute best site on the net regarding pancreatitis, I can't thank you enough for your work and advice. My question is, I live on a farm and do a fair amount of physical work as well as play soccer on a competitive mens team. I had read that exercise is good for pancreatitis but am worried that I could possibly cause an attack by too much physical activity. Have you seen any research that shows a correlation between exercise and acute attacks ? I love playing sports but also am trying to live with minimal pain and want to find a nice balance. thanks again


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Hi Vaughn, thanks for visiting and your kind words. I have to admit I have not researched for a correlation between exercise and acute pancreatitis. Obviously unless there is abdominal trauma involved a healthy person doesn't need to worry but those who have an inflamed, unhealed pancreas due to previous AP or CP may have problems. I know that when I was very ill I would get nausea from riding in the car or running/jogging - so motion did have an effect when I was sick. I had never experienced motion sickness before even on board ship in heavy seas so I KNOW it was due to pancreatitis. Once I was healed up that little problem resolved but without doing more research I can not say that exercise can cause AP in those who suffer but likewise I cannot say it would not cause AP. Let me get back to you on this when I have a more definitive answer. Take care and have a pain free day!


    anonymous 4 years ago

    Semper fi! Thank you for the absolute best post on pancreatitis on the web! After spending much time researching this, and getting completely frustrated by the contradictory info available, your site is a breath of fresh air. Your experience is similar to mine. Had my first bout three years ago and went to the er where they admitted me.

    Had my second bout in February 2012, was advised to stay in the hospital. Did not! Survived. Had my third bout last week. Didn't have this advice as it would have reduced the time I spent in pain, and, boy, is this stuff painful!

    Will be implementing your suggestions about supplements.

    P.s. mine was caused by alcohol abuse, so that is totally out the window!


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Semper Fi Rick! Sorry to hear you too have this pancreatitis shit. Sucks don't it? No way for a warrior to tag out and be sure ya don't bro. That means stay off the booze. Watch your diet and learn the drill if ya want to live. Keep comms open, let me know how you are doing.


    anonymous 4 years ago

    Thank you for the information! I have suffered for along time with pain, diarreah, sweating,and fever and would get very sick and throw up. It would be over after that for about a month or two. Last year I went to the ER in excruciating pain only to be told I had acid reflux, I was angry because I knew the doctor was wrong. Also for about a week before I had this feeling in my upper parts right below my ribs I had pressure and a feeling of heaviness and not being able to catch my breath. Well i went home on pain meds and still not feeling well woke up the next morning with a sense that something bad was coming....I went to the planned family reunion pulled into the park and was hit once again with pain so bad I could not control my screaming at the ER they figured out that i had pancreatitis. I was there for 3 days and could not eat and on pain killers. I have had pains here and there since then but nothing like that. My question to you is: Do you think that following a no fat diet would benefit me or do you think i fall into that category of a sufferer. I seem to instinctivly know that another attack is waiting for me and I feel like its right around the corner. I have not went to another doc because you are right they act like its all in your head! I had my gallbladder removed 6 years ago and it took months to get anyone to listen to me about the pain until I ended up in the ER in again excruciating pain. And by the way they told me a stone had most likely blocked a duct but became disloged. Thank you


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Hi Annie, I am sorry that you are among those of us who have the pancreatitis pain t-shirt. Toanswer your question in regards to diet let me just say YES! It is imperative that your diet eliminates ALL acute pancreatitis triggers and allow your inflamed pancreas to heal. Your pancreas will NOT heal while you consume foods that piss it off. It is absolutely imperative to eliminate the inflammation and triggers. You can find all the things I personally have done and still do on this page and at my blog. I hope you find healing cuz being sick with AP/CP sucks.


    anonymous 4 years ago

    Wow, this is a very informative page on pancreatitis! Thank you for sharing your story, I'm sure that you are helping a lot of people suffering from the same thing. I'm happy to hear that you are still able to eat and that you're hanging in there 30 years later after the doctor told you that you would need a transplant within 10.

    My son is in 6th grade and wants to start playing football next year, this really scares me!


    anonymous 4 years ago

    I also have had pancreatitis since about 1979. Codeine is my saviour for pain. This latest episode is now on day 32. Yesterday I had a baked potatoe with butter and sour cream. How stupid of me. I thought I was over the worst of it, was off pain killers for two days. Wong assumption. Thank you ever so much for your blog. They do not see anything wrong on ultrasound. Pancreatitis started with Gallblader. They made me suffer with gallstones for 21 years before finally taking it out. But even after taking out my gallstones the pancreatitis has continued. I have also had kidney stones, stones in my tear ducts, stones in my saliva glands, and probably other places I don't know about. I also have Hashimotos thyroid, Sjogrens disease, Reflux esophagitis which caused me to change my diet completely, anemia - pernicius and magablastic, osteoarthritis all over controlled with steroid like injections, COPD - controlled, asthma, etc. So far I take 13 meds per day which is counting all my eyes,nose and mouth meds for Sjogrens. Never knew that Sjogrens could be a precusor to Pancreatitis. As I mentioned, I am now on day 32. Prior to this I went about 13 months without an attack which was wonderful. Obviously it was my diet that caused this latest attack. Should mention that I have also been on Mobicox an anti-inflammatory since 1998. As I am on disability I cannot afford grapdseed and others. Am hoping to get a loan from a friend soon so I can buy grapeseed, etc. Doctor recently put me on pancrease, very expensive and thank goodness covered by insurance. Pancrease is giving me lower stomach cramps, probably readjusting the bowels. I also had the fatty, greasy, stinky, floating stools. As I returned to a better stool formation, I thought the present flare up was improving. I was wrong. As mentioned I have been suffering off and on since 1979. I think my body has been regenerating the pancreas over the years or else my ultrasound would not look normal.

    Anne, Calgary, Alberta, Canada


    anonymous 4 years ago

    Thanks so much for this information! A thousand times more informative than most sites i've come across.I'm about to turn 24 and I have idiopathic CP. It started out as AP right after i turned 21 (no i wasn't drinking heavily), my initial attack was terrible, 2100 lipase and in the hospital for 10 days. Since then, I have been getting worse and worse. The doctors have been able to tell me absolutely nothing! I have had 3 CT scans, ultrasounds,an upper endoscopy, and an ERCP. Still nothing. My lipase levels haven't been under 200 since i've been diagnosed. I have inconsistent bowel movements and it drives me crazy. Stomach aches are the worst in the morning time but usually last all day. Does anyone know of a good gastro in the denver CO area?????? I feel like i am slowing dying. Also i have a question about coffee, I know caffeinne can't be good for people like us, but if i am not drinking any soda or anything else, do you think a cup of coffe a day would make me any worse?? Working in an office really sucks with pancreatitis - donuts always around, coffee just calling my name, sweets evvvvvvvvverywhere. My sympathy goes out to anyone else dealing with this terrible disease...


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: I wouldn't worry to much about your son playing football, just tell him to keep his head down and go in low lol. If we worry about all the things that could happen to us in life we wouldn't live life and enjoy it.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Actually there is research out that states coffee is good for those with pancreatitis. Not necessarily the caffiene but the flavonoids, antioxidants. Donuts on the other hand are full of FAT; not good.


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Hi Anne. I am missing a bunch of comments lately (they seem to be slipping through the cracks) so I apologize for not responding sooner. Your story doesn't sound fun, sorry you have pancreatitis and autoimmune disease as well. Many women with Sjogrens also have Celiac Disease. Has your doc checked? It's amazing what Celiac Disease does. It is systemic, especially undiagnosed and uncontrolled so IF that is a problem and you go completely grain free (gluten free) you could see your reflux disappear along with many other symptoms, just saying. And an anti-inflammatory diet for pancreatitis is extremely important. There are ONLY two enemies FAT and alcohol but fats appear in medium to high amounts in almost everything except fruit, vegetables, grains and legumes. It wasn't until I started eating a diet low in fat that I began to heal, which means no beef/red meat, no pork, no lamb, no duck nor anything that is made with or contains those as ingredients (broths, soups, etc are out). No mayo, butter, margarine, no cooking oil, no oil period. Oil is fat. Fat is the enemy.

    Good luck Anne :-)

    P.S. Drink grapefruit juice. White, unsweetened grapefruit juice. Ocean Spray is a good brand with no added sugar. Garpefruit juice could do wonderful things for you, it did for me. Grapefruit juice and diet were the first steps to my healing, then I found the supplements.


    anonymous 4 years ago

    thanks for all of the useful information, every bit of it helps. i have a milder case of pancreatitis and at my worst was only at a 238 lipase level. since then ive drank more water than i ever have in my life in order to cleanse my organs and flush my system. my lipase in my last test was at a 130 and it feels as though it is only getting better. i have been able to eat without experiencing any pain which is relieving, i feel as though i am lucky and it is going to pass. but i am in mental terror, this condition has caused me to worry about it becoming chronic because most information sites lead you to believe once you have pancreatitis it will never subside. is there any words of wisdom you could offer me to make me feel better about this situation. i am only 20 years old and my pancreatitis is NOT alcohol induced


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Divon, there is ALWAYS a chance that you could skate by. IF you had an extremely mild case of AP your pancreas may full recover and you may never have issues again but I wouldn't count on it especially if you continue to eat like a normal person and continue to drink alcohol.

    Knowing what I know now I can only suggest you adhere to a strong anti-inflammatory, low fat diet and take supplements for 6 months to a year in order to allow your pancreas to COMPLETELY heal and my thoughts are that the chance of total healing and escape from future episodes of AP and/or progression to CP would only be good IF you have had only ONE episode of acute pancreatitis and it was extremely mild. I hope you skate!


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: Divon - Dang I never get everything said at once. WHY did you have pancreatitis anyway? Do you know? That would tell you whether or not you had a chance of skating by CP. If it is due to heredity (hereditary pancreatitis) or autoimmune disease or high blood fat levels it may be very difficult to skate. Otherwise you may have a chance :-)


    anonymous 4 years ago

    Thanks for such wonderful and useful information i am 30 yrs young from India.

    I ve been diagnosed with Chronic Pancreatitis last month(Oct'2012) due to alcohol consumption .with the Impression of"Extensive smooth Dilation of pancreatic duct and its side branches"& also it is observed in MRCP that there is an intraductal lesion(8mm) in the distal most pancreatic duct.Dia of the Main pancreatic Duct ~ 10mm.

    Deliberately i am ready to lead my life w/o alcohol.Now the pain is reduced and i feel extensive pain in Back when i eat some oily or toast food.and i , As of now i am not taking any pills for pain.But during meal rarely i take Creon(10000,25000) as my Doctor advised to do so.

    Apart from this is it advisable to use the Grap seed extract & Curcumin.?

    And i m really worried and dreadful about my future.Give some heal through your valuable tips please:-)


    TheHealthGuy LM profile image

    TheHealthGuy LM 4 years ago from U.S.A. Author

    @anonymous: GTRajan as you know i can't or am not suppose to give advice about pancreatitis because I am not a doctor. I can and have told people what i personally do to avoid more attacks of acute pancreatitis and slow the progression even stop chronic pancreatitis through diet and supplements and that may or may not be right for you.

    I do not use creon but I do use a digestive enzyme product with pancreatin 4 x but if your doc has prescribed creon you be taking it as directed.

    If it were me and it has been I would do exactly what I say I do. I take grape seed extract, vitamin C and curcumin daily. It is simply a ritual I do not abstain from and I adhere to my diet.

    It is good to hear you kicked alcohol out of your life because for those of us with pancreatitis it is NOT condusive to a long life. Alcohol is highly inflammatory and toxic to a damaged pancreas.

    Good luck to you. I hope you heal.


    anonymous 3 years ago

    Hey healthguy sorry it took so long to get back at your reply and i am so thankful that you did respond to my question. my pancreatitis was deemed idiopathic after an array of tests (MRCP, Abdominal ultrasounds) came back as clean as a whistle. But my GI doctor thinks it could be due to a viral infection, because around the time of my flare up i had come down with a pretty bad flu. another even odder cause my doctor thinks could have caused it would be a temporary, medicated filling i received in my molar the day before my pancreatitis attack, the doctor said that there is a sure chance i could have had an ill reaction to the medication. But i am happy to report that since my initial attack which was about 2 months ago, i have not had another and the doctor is confident that i wont, seeing as i had one of the more "milder" attacks, but he has instructed me to not over indulge in fatty foods which isnt a problem because i am a regular in the gym going around 5-6 days a week and maintain a healthy physique. He has also advised me to minimize alcohol intake for several months which i also dont mind doing for the benefit of my own health. Never was a huge drinker in the first place only drinking maybe twice a month and never anything overboard. I do however continue to think about it every day and relate any feeling of sensation in the abdominal area to the pancreatitis. i am not sure as to when ill be able to clear my mind on the issue because it scares me to think about living life under strict guidelines. But nonetheless i pray every single day and that gives me a sense of calm in the situation because i am a firm believer in god having a plan for all of us (one that doesn't involve a pancreas i hope). But there is one question i want to ask, have you done any research on stem cell therapy in the regeneration of damaged pancreatic cells? i have found a websites that offer little insight on the topic but the information seems promising.


    TheHealthGuy LM profile image

    TheHealthGuy LM 3 years ago from U.S.A. Author

    @anonymous: Hi Divon, first you are welcome and second - no I have never researched stem cell therapy. In fact I know as much about stem cell therapy as I do about space flight which isn't much lol.


    TapIn2U profile image

    TapIn2U 3 years ago

    This is a serious problem we don't want to have. Thank you for the info. Sundae ;-)


    anonymous 3 years ago

    Rick,

    Thanks for the info! On 12/26 I was admitted to the ER with with Acute "viral" necrotizing pancreatitis. Growing up in the South Pacific I had falciparum malaria about a dozen times. The Dr.'s last month all assumed I was an alcoholic, treating my pancreatitis as such. No family history of it, no injury, hardly any alcohol ever, never any fatty foods. So I was assumed to be a liar and an alcoholic.

    If you have had malaria, (which ives forever in your bone marrow) have them run a malaria test. Recent study in India shows "falciparum malaria presenting as acute necrotizing pancreatitis"

    I was in the hospital for 3 weeks, half of that on live support. Liver shut down, kidneys failed, lungs filled with fluid etc. When I was released, I was told that I am ok to resume eating a fatty diet. (I am a vegetarian BTW, don't eat meat / fatty foods).

    Just wanted to toss in my $.02. If anyone reading this has ever had a tropical disease, see a tropical disease specialist as well as your current Dr. (that you trust).


    anonymous 3 years ago

    @TheHealthGuy LM: Hi HG, congratulations you are doing gr8 job.I was diagnosed with AP 10 months before due to Alcohol. thankfully the doctor quickly realized the problem and I was hospitalized for over a week. since then I stopped drinking with the help of AA. currently I am not on any medication and I really want to share that grapefruit juice is really wonderful, in addition to that i drink green juice (spinach, celery, coriander) with ginger and lime.

    keep the good work going. thx.


    TheHealthGuy LM profile image

    TheHealthGuy LM 3 years ago from U.S.A. Author

    @anonymous: Hi Jay thank you for the kind words and congrats on overcoming your thirst for alcohol. I commend you! Keep up the great job and continue healing. I wish you the best my friend.


    happynutritionist 3 years ago

    I don't have Pancreatitis, and am sorry for the pain you've been through, but am also so grateful that it has lead to such a resource as this page is. Thank you for sharing so much, and such wonderful natural solutions. Be well!


    Chocolatealchemy profile image

    Chocolatealchemy 3 years ago from London, United Kingdom

    What a great Lens - you've shared so much valuable info, thank you. I'm going to pass this on to someone I know who has pancreatitis. Here's to radiant glowing health!


    anonymous 3 years ago

    @anonymous: hello everyone my name is patricia and Im leaving this message on behalf of my brother, he have been suffering from chronic pancreatitis for over two years. Its so sad to say that my brother never have a good day.,his illness has taken a hugh impact on the entire family. Its so hard to see someone you love in so much pain. My brother hurts so bad until he be balled up in pain on the floor.he was just discharged from the hospital yesterday. I dont know whats going to take place with this situation. Every time he has a flare up he ends up with anurism which is very dangerous. the doctor said that his pancreas is almost burned out. The doctor also said that his pancreas is to damage to be removed. the pain just never stop its only get worst.and the doctors dont really seem to care they dont do a good job at all helping my brother with the pain he is going through. Its real bad when you in the hospital in still have to suffer


    MeirSprecher 3 years ago

    Dear Sir,

    My wife was diagnosed with acute pancreatitis in Feb. 2012. Since then she has had 12 further serious acute attacks. Her gallbladder was taken out and still she had attacks. We found your site and started with grape seed, curcumin and strict diet. Now the last months the attacks come wider apart in time and are of lower magnitude. She started to ta Creon pills on order of her doctor. That helped too, I think. These pills provide to digestive system with a supplement of the enzymes the pancreas creates, thus relieving the stress on the pancreas.

    My wife was diagnosed as having Celiac disease (allergy to Gluten) at the age of 49. I think both these diseases of the digestive tract are connected,but cannot find support for this.

    Thank you for providing us with hope that you can live with these diseases.

    By the way, being Jewish and living in Israel I can tell you that one of our famous rabbi's, "RAMBAM", he was the doctor to Salah a Din in the 15th century, and is by many believed to be one of the fathers of modern medicine, already wrote about the medical powers of Grape seed, Curcumine and many other natural herbs.

    PS. I found many products of grape seed via amazon. do you have some you advise?

    Thanks and again, you gave us hope.


    anonymous 3 years ago

    Hi

    I was diagnosed with acute pancreatitis when I was 5. Even I can't count the number of episodes till now. I am 24 now. Thank you for sharing your experience. I would like to share some other things I do during an episode that help me:

    1. sounds lame but it does help: put a towel dipped in cold water on your abdomen (this is something I learned from naturopathy)

    2. as and when your pain subsides start with sips of tender coconut water..it works wonders for me!

    3. I couldn't agree more when you said if you do't feel hungry don't eat..listen to your body..it will tell you what to do..if you have just introduced soft food after staying on liquids for a couple of days to give your pancreas some rest and you again start feeling some discomfort or pain..stop and go back one step..back to liquids..

    4. it is idiosyncratic.. each one needs to figure out what works best for them.

    5. stress and lifestyle also plays an important role..eating at regular intervals..small meals..regular exercise (not very intense)..(Typically I don't exercise a couple of weeks after an episode)

    6. most important your will power..to just bounce back each time.. you can't afford to loose it..

    there's a lot more to say..I ll add to it later..

    thanks a lot for sharing. I plan to try grape seed!

    good luck :)

    Charvi


    TheHealthGuy LM profile image

    TheHealthGuy LM 3 years ago from U.S.A. Author

    @anonymous: Hi Charvi, since 5 years old? That sucks. Until I started writing about my experiences and looking for new stuff I didn't even know kids were afflicted with pancreatitis in fact as I have mentioned previously I figured since most docs couldn't even recognize the symptoms that I was kinda by myself lol. Let us know how the grape seed extarct works out for you. Some people get relief with small doses, with others it takes a bunch. So what I did is I just kept increasing until I noticed a difference and then increased a bit more and stayed there. That with diet made ALL the difference.


    TheHealthGuy LM profile image

    TheHealthGuy LM 3 years ago from U.S.A. Author

    @MeirSprecher: Hi MeirSprecher, I am glad your wife is finding relief! I too am a Celiac and from my research I can tell you that Celiac Disease IS linked to pancreatitis. There are quite a number of autoimmune diseases linked to pancreatitis, (Sjorgren's Syndrome, RA, Lupus, CD and more). I use NOW Foods Grape Seed Extract because it is gluten free but it also contains vit C and is a good value. Jarrows is gluten free as well and I use their curcumin. Remember the diet! It is BOTH diet and supplements that create the real healing. Good luck to you and your wife :-)


    antago1 3 years ago

    I came to this page last night and now I can't leave! Such a blessing!

    Hey, my name is Tag. I've just turned 29 and I'm a recovering alcoholic. I've been socially drinking since 18, but I've turned to binge drinking for the last few years. This past summer, I've been experiencing some left-side sharp/burning back pain. Feels like something is moving around and pushing nerves around in there. I'm beginning to feel it in the middle of my abdomen and back as well. My indigestion is getting really bad (whenever I do eat) and I have little to no appetite, nausea (no vomit), and low energy. Since my first episode, I've been to the ER over 10 times for back and abdominal discomfort/pain, within the last couple months (sometimes twice in one day).

    A couple weeks ago, my PCP diagnosed me with Vitamin D defiency and told me that my lipase was normal and my amylase was a little raised (which it had been since my hospital visit, over 7 yrs ago. Normal < 40-140 and mines < 141-147, up and down). I began feeling a little better after my prescription of 50,000IU Vitamin D2 was filled, hoping for change! And I did get a little better! My girl thought that it would be a good idea to grab some wine (bad idea), in celebration of me not getting a 'Diagnosis of Death', since I'm a hypochondriac. (Shaking my head). This was the worst idea, as I decided to drink a glass of red wine three nights in a row! Third day, I started feeling sick again! And here I am now!

    So...my most recent ER results were: Normal Lipase, Normal Amylase, with all pancreas and liver function tests < NORMAL! In addition, they did two abdominal ultrasound tests, which showed nothing wrong with my liver nor pancreas! I demanded a CT scan, but the nurse felt that it wasn't necessary. She dismissively said that she'd speak to the head doctor, but to no avail. Five minutes later, she had an assistant attempt to issue me 'discharge' papers. I quickly rejected them and told the assistant that I'm still in PAIN, and to tell the nurse that! The "nurse" soon avoided me for the rest of my time in the ER, until I decided to leave (being that I was technically discharged).

    One day later....Here I am, in bed with no energy and I'm afraid to eat anything. I have a juicer that I use daily and I've been juicing and eating raw veggies for two months now. I'm concerned to have a chronic disease that may change my life drastically (for the worst)! Obviously I cannot be diagnosed over the Internet, but do you know what kind of condition that I may have?

    Thanks in advance,

    Tag


    freddybear 3 years ago

    I was diagnosed with chronic pancreatitis in July. Everything I have been researching talks about the pain.I have some nausea but no pain, have you ever heard of pancreatitis without any pain?


    Styxman 2 years ago

    Where do flax oil and omega III fit into restrictions on oil?


    JennZZ5508 2 years ago

    @freddybear: Freddy. Would love to hear your story. I haven't been diagnosed but know I have recurrent AP or CP. But moderate pain with no vomiting. Would love to hear what took you to a doctor and what scans or tests he did to determine your diagnosis.


    TheHealthGuy LM profile image

    TheHealthGuy LM 2 years ago from U.S.A. Author

    @freddybear: Hi Freddybear - yeah I have heard of that, in fact mine started that way. If you read my story you'll see where after I was hurt playing ball I suffered from nausea and heart burn. Pain came on several years later. Not real common but it does happen.


    TheHealthGuy LM profile image

    TheHealthGuy LM 2 years ago from U.S.A. Author

    @Styxman: Oil is oil. Even if it's GOOD oil it is still oil/fat.


    tina-desjardins-39 2 years ago

    Hi ,

    I was diagnosed with chronic pancreatitis recently. I'm a 53 year old female. I have never had an acute attack but my attacks were more mild, pain in top of abdomen wrapping around to the back. I was never an alcoholic.doctor are not sure why in have this disease but i do have mild scarring on my pancreas. I want in much pain when I first started seeing my GI doctor. I now have intermittent upper back pain under bra strap and get a filleting sharper pain in front upper abdomen that goes as fast as it comes. These pains are mild but daily.

    I've read your post and been on a strict low fat diet with chicken and turkey and salmon.ive been on this diet since November 2013.i take creon and also the supplements you suggested except for the cumcirin because I just had ulcers before and it may be tough on my stomache. Now I'm thinking I should just go vegan till there's no pain unless it's too late for me for 6 months.

    Here is my concern I have read that your brain needs fat to stay healthy and your organs as well. I have osteopenia but i know this disease can lead to osteoporosis .So I was taking a vitamin D capsule and a capsule of primrose oil if I stop the fat meaning zero fat and I'm small already could you end up being malnourished or can a person truly get by and stay healthy on very little oil?

    Secondly if I give up meat how much grams of carbohydrates should I have in a meal because I definitely do not want to become a diabetic?

    I feel this disease can make a person feel very alone! Your basically told you have here's some enzymes and good bye. When you really want to have some control to be able to help yourself and there's so many ppl out there who are alternative and will say oh sure they can help but they all have such different approaches who knows what to do. It's hard to know who to trust.

    If you could please address those 2 questions especially the one about fat I would be grateful since I really want to commit to this and try to stop the inflammation.

    And any other information would be helpful as well .

    Thankyou again


    TheHealthGuy LM profile image

    TheHealthGuy LM 2 years ago from U.S.A. Author

    @tina-desjardins-39: Hi Tina - I'm sorry you have pancreatitis and that it has taken me so long to see this comment and answer. It's true that the body needs some fat in the diet. Unfortunately with those of us who have pancreatitis we have to choose between what may happen someday versus what is actually happening now. I don't know how else to say this so I just be my normal blunt self ...

    Acute pancreatitis can kill you. Chronic pancreatitis can make you wish you were dead. So one has to choose between two evils and decide which one is best to avoid. Since I learned my next meal could be the one that ends my life (no drama, pure fact) I have chosen to address acute and chronic pancreatitis versus whatever could happen later due to an extremely low fat diet.

    I quote you: "I have never had an acute attack but my attacks were more mild, pain in top of abdomen wrapping around to the back." Trust me Tina you don't want an acute pancreatitis attack. The pain in most cases, whether severe or mild acute, is extreme. I just had a guy comment on my blog saying he has been shot (gun shot) and would prefer being shot to having another acute attack. I've had women say they have had several kids and would much prefer labor and birth versus another acute pancreatitis attack.

    Plus severe acute causes necrosis, dead and or dying pancreas tissue. If the necrosis becomes infected that could lead to surgical removal of the dead, infected pancreas issue and then the whole situation changes because of the tremendous damage that may or may not ever heal properly. Severe acute pancreatitis opens the door to complications such as acities, psuedocysts, organ failure and internal bleeding. And ...

    The mortality rate can be as high as 30%.

    Again, I have chatted with to many people who have suffered this fate and lived. Most live with extreme pain, nausea, vomiting, some with diabetes and more. Some have a pancreas so calcified it's basically bone.

    Chronic pancreatitis if not checked (put into remission) can lead to a horrible daily existence and death. So again, I made the choice to do everything I could to check chronic pancreatitis, put it in "remission" so to speak by avoiding almost everything that could possible promote it further because here's the scary part ...

    The pain of chronic pancreatitis can become much more than twinges or sharp pains that last minutes and go. The pain can become just like acute pancreatitis pain and be intractable, constant. Imagine pain so bad that it breaks through the most powerful narcotics and is CONSTANT and have to live with that day in and day out.

    I'm NOT trying to scare you or anyone else. I'm just pointing out that someone with chronic pancreatitis who does NOT do what is necessary to put it in remission, resolve the inflammation could end up exactly like I just portrayed. And sometimes it doesn't take long to escalate. You may be in deep kimchee if you have an acute attack.

    I know one woman who has lived with a bad case of unresolved chronic pancreatitis now for 19 years! She wakes up in pain, with nausea and vomits (normal morning routine). Sometimes the pain is so bad it brings her to her knees. She is one strong woman and very rarely misses a day of work but damn! That is one lousy way to have to live. So ...

    The jist of my answer is what do you want to do? Worry about your brain (memory), diabetes (which chronic pancreatitis can definitely cause), osteoporosis or pancreatitis?

    If you have any more questions visit my blog at beatingpancreatitis.com and leave a comment. I see those a lot faster. Good luck Tina and I wish you better days :-)


    TheHealthGuy LM profile image

    TheHealthGuy LM 2 years ago from U.S.A. Author

    @antago1: Wow sorry I missed your comment! Unfortunately I can't diagnose conditions because I do not have an M.D. so doing so would be illegal. Ultra sound is good for checking for gallstones but isn't the best for viewing the pancreas. The CT is pretty much the deal. EUS and MRI are good. MRI is in some ways better for looking at soft tissue that CT but the CT is the best diagnostic tool along with enzyme levels.

    IF it were me I'd find a good gastroenterologist and have a chat. See if someone could actually pinpoint my problem, draw a conclusion and formulate a proper treatment plan.


    MeirSprecher 2 years ago

    Hi,

    How are you, Mr "ThehealthGuy"

    I write to you in the name of my wife who has many "diseases". She is semiblind, has coeliakie and now also pancreatitis. I wrote to you sometimes (2, 3x) and you always answered quite quick. My thanks and appriciation for that.

    My wife had a very strong attack three weeks ago, including 4 days on intensive care, due to a starting of general organ breakdown. God be praised, she survived and is now again at home prepairing dinner for shabat (we live in Israel and are jewish)

    But the question is: We cannot order Viokase here in Israel or in Europe. The doctor said it would be good to try Viokase instead of Creon (the European drug) This as the ratio of the three enzymes in those two drugs are quit different and maybe the viokase ratio would be better for the particular enzyme housekeeping of her body. Maybe you would know how to get Viokase. Her docter is quit willing to proveide all nececary papers with the pharmacy.

    Thanks again for your help and health to all readers and writers on this blog.

    Meir A. Sprecher and Chana N. Sprecher-Afriat


    TheHealthGuy LM profile image

    TheHealthGuy LM 2 years ago from U.S.A. Author

    @MeirSprecher: I'm sorry but I have no idea how to get a prescription drug SAFELY without a doctor's approval (written prescription). There are dubious online sellers of that sort of thing but that isn't a safe way to get what you want. Good luck to you in your search and I hope your wife heals up and is able to stay well.


    lucaspro 2 years ago

    My girlfriend is 21 years old and she has had Pancreatitis on four separate occasions. I feel as if i can't get any answers anywhere about what caused this and i am really concerned with her health. I've read that prescription pills, alcohol or bad diet (basically nobody knows) can have a negative effect on the pancreas. She is sort of a heavy drinker, i mean we're young, we like to party, but i don't understand why it's effecting her like that. She doesn't drink anymore than the average 21 year old and it's not an everyday thing. I feel like the doctors are stating it is alcohol induced because they really have no clue and all they know about her is that she has a couple of nights a week that she likes to drink. Since her last spout with it(about 2 months ago) we have not been drinking, but she has been taking prescription pills quite often (oxycodone, hydrocodone). She seems fine as of now, but we also did this the last time she had Pancreatitis. I mean we did end up drinking again, but we were careful as to not overdo it. What worries me is that the prescription pill intake has not slowed down (hydrocodone, oxycodone) and now she is considering a prescription for ADHD medication. What effect could the prescription pills have on her pancreas? Will she have to stop drinking forever? Will her pancreas ever fully recover to were we need not worry ourselves?


    ehealthcity 2 years ago

    Is there anybody who will answer on this: How to reduce pancreatitis in children? Advance thanks.


    pgamble 2 years ago

    @lucaspro: hello Lucaspro,

    just reading your post and i hope you don't mind me responding to what you stated in your post. First of all i dont have pancreatitis, but my brother does, he has been dealing with this illness for over three years now and he stays in and out of the hospital due to so much pain that pancreatitis causes. However,he is dealing with chronic pancreatitis and it is far worst than acute. I noticed that you said your girlfriend consumes alcohol which is not good at all, as of now alcohol is her biggest enemy. My brother has never drinked but still ended up getting this horriable disease that keeps him hurting every single day. I hope that your girlfriend will take this disease serious and give up alcohol. I also pray that God will heal her pancreas. Take Care!!


    TheHealthGuy LM profile image

    TheHealthGuy LM 2 years ago from U.S.A. Author

    @ehealthcity: I seem to be missing a lot of comments. I apologize. I can't give medical advice but if it were my kid I'd do exactly what I did for myself (diet, supplements, Ibuprofen) with changes in dosing for Ibuprofen to fit body weight.


    Dlim83 2 years ago

    Hi i was diagnosed with pancreatitis when i was 13. Had a few relapses but it somehow went away until recently, 17 yrs later i had another attack and a few relapses till present. so 5 months and 3 relapses later, i went for an MRI and was diagnosed with pancreatic duct stones due to the several attacks in the past 5 mths. The doctor recommended ercp with possible stent placement if neccesary, but considering the amount of bad feedbacks on the procedure, do u think i should do it? Is there any other option that you know which might remove the stones or at least make it not grow bigger? I'd been following your diet program (vegan & oil free) for a month now and had been consuming grapeseed extract, curcumin, and vit c on a daily basis. Doctor had also prescribed creon to eat with my meals. I notice that a 40min treadmill actually help to remove the pain permanently for the day during relapses (at least till the next day), i dont know if anybody else is experiencing the same experience. Please give me some advice on whether i should do the ercp and if there's other options? Appreciate your help and support. Am so glad i found this blog!


    Joyce Broyles 2 years ago

    Hello there..I have not sent you a message in awhile. I did have your email address but somehow lost it. I am the one that sent you the info on Dr. Whitcomb's video. My daughter is the one with pancreatic . She tried all you suggested and has been better and certainly has not had relapse just still pain and nausea. I wanted to ask you about pregnancy and still taking all the supplements. Of course when we ask her doctors they have no idea what we are even talking about. She just found out and now is 8 weeks, for the first time though her enzymes came back elevated which is worrisome. And of course she is having more pain. I do not know if hormones have anything to do with the pancrease but I do know they effect alot more than anyone knows.She did not intend on getting pregnant untill she felt better and felt it was safe but God had different plans I suppose. This is her first and she is 33. She has back off of some of the supplements and was wondering if that could be why her enzymes went up or just hormonal? I know this maybe out of normal request but if you are your followers have any input it would be greatly appreciated. Thank you again for all you do and your time.


    BrokenPancreasMan 24 months ago

    I am so glad I found this page. I have been have issues for over a year now. I don't know what the problem is because all doctors I have seen haven't a clue what is going on.

    After much persistence on my wife's part I had Lipase and Amylase checked. Lipase was normal but Amylase was 7 times normal and more recently 10 times normal. Wife insisted on amylase electrophoresis which showed it was pancreatic and elastase which was normal. My levels have been monitored for 3 months now and amylase is always 7 to 10 times normal and lipase is normal. The docs won't diagnose CP because they say normal lipase and elastase rule that out especially since amylase is so high. Is this correct? Surely they are wrong.

    I have not had acute attacks. It seems to have been progressive. My issues started with reflux issues which I have now pinpointed to bile reflux. I get on and off mild pain in my upper left back. The weird thing is I can't think of any trigger. I don't drink alcohol. I had been on a low fat diet for 3+ years. No trauma to abdomen. I don't even know if what I have is pancreatitis but I highly suspect it is because there is no much else. CT and MRCP were normal. Docs are stumped and say I am too young to have anything serious (I'm 29).

    I feel your frustration with Docs. When sitting in there rooms listening to their BS I spend the time day dreaming about various ways I'd like to kill them. I've come up with some pretty gory scenarios. It's quite therapeutic.


    mangodashindia 23 months ago

    Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing.

    Keep Posting:)


    TheHealthGuy LM profile image

    TheHealthGuy LM 23 months ago from U.S.A. Author

    Hi Joyce! Of course I remember you. Sorry to hear your daughter is having difficulty. Now remember I am NOT a dodctor and quite honestly have not researched pregnancy and grape seed extract/curcumin that much but ...

    OB's give their pregnant patients pre-natal vitamins. I would conclude that normal, every day vitamins are fine. I have "skimmed" a couple med sites on grape seed during pregnancy and none recommend it but that is mainly because they don't know anything about it. I'm sure if grape seed extract (comes from grapes) were a horrible thing that grapes themselves, their juice etc would be taken off a pregnant woman's food list but that doesn't seem to be the case.

    I didn't check curcumin. I'd suggest investing an hour or two researching that particular subject. I should do so as well and write a blog post about what I find.


    TheHealthGuy LM profile image

    TheHealthGuy LM 23 months ago from U.S.A. Author

    I have to admit I really Like your thoughts regarding most doctors (laughing my ass off) and have had similar visions myself! Here's what I'd suggest - do searchs on the net for scholar type papers regarding conditions/diseases that raise amylase levels. I have to admit the docs may be right but they may also be wrong. Lipase most always rises with ACUTE pancreatitis. It does take about 4 hours of agony for both lipase and amylase to rise. With CP sometimes lipase and amylase levels are increased and sometimes they are normal. If the pancreas is damaged enough it may not be producing enzymes any longer and so enzymes don't rise even in those who are acutely ill. You'd know if that were the case cuz you'd be almost dead (guessing), at the very least, very ill. Anyway ...

    Keep the faith, keep looking for a doc who will actually LOOK for answers. Good luck to you.


    TheHealthGuy LM profile image

    TheHealthGuy LM 23 months ago from U.S.A. Author

    Hi Dlim83 - sorry I missed this comment and it has taken so long to respond. ERCP is kinda dangerous. It causes post procedure AP (acute pancreatitis) much to often. I, personally, probably wouldn't have that procedure done unless a doc could prove to me that it is the only way of saving my life. My personal opinion, and this IS only an opinion, a very uneducated opinion, is that anytime a doctor invasively tests or looks at a pancreas they usually do more harm than good. One little mistake, one scar etc can create a lifetime of hellish problems so, unless an invasively, surgical procedure is actually necessary to save my life it isn't gonna happen, BUT, that's me and my thoughts. I am NOT always right. You need to look at the research available, ask your doc exactly why he wants to do it, if the procedure isn't done are you going to die and if you were his child would he still do it? I'd also ask people who have had ERCP done, stents placed etc whether the procedure was worth it and if they'd do it again.


    shawn 23 months ago

    Dec 18th inducted into the CP hall of fame. by the grace of GOD I found your various blogs and have digested them daily. Fasted for 3 days should have gone longer. Started out on Vegie broth that HealthyGuy provided thank you since I was clueless as to where to start. Am know up to Vegie juice, grapefruit juice, Vegie soup with lentil now...Yaaaa! after not being able to eat and feeling like death I never knew how good food could taste. I would definitely like to see something on fruit as you mentioned in one of your replies to another viewer. I have always loved my fruit and being that I am ignorant to the fruit alcohol aspect feel victim to it when I introduced it to the diet..what he'll that was. And no I am not saying avoid fruit just be aware of the age. fruit its good and healthy except the ones mentioned in the blogs. I do take the supplements daily so everyone take them. I am still taking them 4 times a day and the fruit anti. Cannot take the curcumin found out the hard way, however I will try it again in 6mnths test the waters. thank you HealthyGuy for time, your wealth of knowledge and your willingness to share it. Thanks Avid reader. Semper Fi!


    TheHealthGuy LM profile image

    TheHealthGuy LM 23 months ago from U.S.A. Author

    Hi Shawn, Semper Fi! You are welcome. Sorry to hear you have joined the pancreatitis hall of pain. I know it sucks but it can get better. I understand correctly you are doing better?

    Fruits are great just not over ripe. Bananas seem to turn to alcohol quicker than others so when they have more than a couple spots on the peels it is time to avoid them.

    I gotta ask - do you have gallstones or SOD? If so I understand totally. If not what did curcumin do that was unpleasant? How much did you take to create the unwanted symptoms? Just curious. Some folks just don't do well with curcumin cuz it irritates their stomach, especially at higher doses.

    Keep up the progress in healing. I hope you feel better soon.


    Shawn 23 months ago

    Ok early 2014, I began experiencing gallbladder pain and while I cannot prove I passed a small stone or stones, I know something had taken place which caused me great pain and at my age I am pretty in tune with my body. Fast forward past all the Ultra sounds the CTs the MRCPs and no one could find anything wrong, however my pain I had experienced change! I no longer had pain but now was experiencing hot burning sensations below the area of my original pain. I would explain to my primary and GI doc that I could feel my gallbladder swell and contract and would get sharp pinching pains that moved, so since the docs did nothing I began to do a liver detox and gallbladder flush, soon after I began to feel great for exactly 5 months. In this time I also began taking a joint supplement with high levels of Glucosamine which in research causes the death of pancreatic cells. www.sciencedaily.com/releases/2010/10/101027111349.htm. The formula in which I was taking also had Tumeric. I am going longer but bare with me. Now remember I had been symptom free for 5 month and then had one of the worst cramping pains followed by the most sever burning pain I had experienced. I believe my gallbladder was once more filled with slug and had released it and the increased Tumeric while it is good had increased the bill flow and having either passed a stone and possibly having scared the Sphincerter, my belief is I created the perfect storm. A live that was not healthy and a gallbladder that still retained slug and a sphincter that may have been scared and even more a pancreas that had already endured some scaring from the original on set of this nightmare. Now had a EUS on the 18th and was given the CP DX and had still been taking Tumeric on its own but had switched to the curcumin and had the worst reaction of swelling and burning I had every experianced after the 3rd day I was ready to check myself in, But I took the Advil and supplements minus the curcumin and all stopped. I believe I either have an SOD issue and I also know the EUS played it's role. But to be safe I am going to avoid the curcumin for now but having read all the good on it I want it as one of my supplements and will try it again after I feel I have healed enough. Sorry ran long!


    TheHealthGuy LM profile image

    TheHealthGuy LM 22 months ago from U.S.A. Author

    Hi Shawn - yup sounds to me from all the research I've done (I'm NOT a doctor) that you may definitely suffer fom SOD and possibly gallstones or at least sludge. In that event you should NOT use turmeric or curcumin. Either one increases bile flow like you mentioned and that could become a serious issue. If your Sphincter of Oddi spasm due to the use of curcumin or turmeric that increased bile flow could cause acute pancreatitis. If you have had a diagnosis of CP it is even more important to avoid any more pancreas damage.

    Instead of curcumin, I'd use grape seed extract in combination with vitamin C and grapefruit seed extract. Appropriate doses of those 3 supplements should help you find the resolution. Now Foods Grape Seed extract in 100 mg v caps comes with 300 mgs of C in each cap. You get a "twofor" with that product and I use it myself. I'd do at least 200 mgs of grape seed 3 - 4 times a day and the grapefruit seed extract ( ONE tab) 2 times per day. Both the grape seed extract and C will help resolve inflammation and the grapefruit seed extract was proven in one study to protect the pancreas against acute pancreatitis.

    NOTE: IF you are on prescription medication check with your doc to find out if there is any reason you can NOT use/eat grapefruit BEFORE taking it. Some prescription meds DO NOT work with grapefruit and can actually be lethal.


    H L 21 months ago

    Hi,

    I came across this page after a recent attack in which the pain under my ribs for the last 2 years was so intense I couldn't believe it. I even started bleeding for no reason I know of, and this was after a night of drinking.

    Here's the thing. I've been seen everywhere for this mysterious problem. Recently, no less than TWO doctors diagnosed me with pancreatitis, but in a very offhand 'oh well you've got this but we'll keep looking' way. Not a word about diet or alcohol or any of the things I started discovering when I finally started to look that up.

    The second doctor, a gastroenterologist, I can at least say was good enough to put me through a lot of tests and found out that I have pancreatic divisum as well as cholecystitis. He told me I would need surgery to have a stent put in to fix the divisum and that I would need my gall bladder removed. However, he said it was not a big deal or an emergency, that he'd had patients come to him after 10 years with it and they were fine after the surgery. He said to get it done within 6 months or I would have chronic pancreatitis and there was nothing he could do.

    However, the first doctor also said I had 'recurrent pancreatitis' and the gastro sent me a letter referring to 'pancreatic attacks' as well. Neither doctor said a word about alcohol or diet, although the gastro asked about my drinking habits. In fact, the night before one of the tests, I asked if it was okay if I drank. He said it was.

    I seem to be discovering that pancreatitis - regardless of how you got it, in my case the birth defect - responds to alcohol the same way, that is, *don't drink it!* Also, that diet is very important.

    Now that I had that severe attack and the bleeding seems to have stopped (5 days later), I am exhausted, have quit drinking, and am changing my diet. The last two days were the first time in the last two years that I didn't wake up with horrible pain under my rib.

    That said, I have two questions. One is why the doctors didn't tell me about these dietary restrictions? It seems so dangerous for them to not have done so.

    Secondly, whether any of the other organs are effected; using the bathroom for example, as these were the first symptoms I ever noticed and spent a good long time with doctors trying to figure out what was wrong in that area (nothing at all, as it turns out, and yet the symptoms remain). Are you aware of any reason for this that would be associated with pancreatitis, and whether the dietary change might eliminate the symptoms for good?


    TheHealthGuy LM profile image

    TheHealthGuy LM 21 months ago from U.S.A. Author

    H L I'm sorry you are having a rough time. Did you go to the ER when you started bleeding? If not, you should have. You were obviously bleeding due to the attack. The pancreas can actually hemorrhage, most likely due to the enzymes eating away at blood vessel tissue or cells rupturing due to inflammation. Anyway bleeding is something that should never be taken lightly.

    I don't know why docotrs don't tell people that diet and alcohol should be adjusted (diet) and alcohol totally restricted. It is dangerous. A far as I am concerned if someone wants to remain ill most doctors (not all) will be glad to help because they make ZERO money from well people. And because they have that sheep skin that says they are an M.D. and a license to "practice" medicine that they are pretty much omnipotent. Unfortunately when it comes to pancreatitis most are severely lacking in competency.

    I hope I answered both your questions if not tell me where I missed the boat and I'll regroup. Remember I'm NOT a doctor. I'm only an opinionated quack so make sure you do your own research and do what seems to make the most sense to you. IF I were you I'd join some support groups not for advice on diet etc becuase most of those folks in support groups are sick and don't actually know what a good diet for pancreatitis is anyway. They follow their docs advice but what I'd want to know and what I'd try to find out IF I were you (pancreas divisum) is I'd try to find others with the defect and ask what they have had done to correct it, if it worked, for how long, about complications they may have personally experienced and whether they would do it again (this last questions answer really tells the story). Of course you're looking for someone who has had the stenting done to see what their actual results were. I'd do that asap so you have a good idea what to expect should you decide to go ahead. Good luck!


    H L 21 months ago

    Thank you for your response. Regarding the bleeding, no I did not; I am female and therefore wasn't certain exactly why that was happening (although it was definitely not at the right time for the usual reason, so I believe it was due to the attack).

    My second question was: are you aware of this having an effect on using the bathroom at all? Two years ago that was where the symptoms started and sent me on a wild goose chase (UTI, most doctors just blindly believed, although it wasn't, and various other ideas relating to that). It was expensive and scary, as I had my very worst attack in the first year, and no one seemed to know why.

    Thanks very much for your responses. I will find out what people that had the surgery for pancreas divisum think. I am not sure I want to do the surgery, as after that you can't really get it back.

    I still have a fairly positive view of the gastro. After 2 years and a correct diagnosis I will forgive him just about anything. However, I'm not happy that I've been playing Russian roulette *without knowing it* ever since.


    TheHealthGuy LM profile image

    TheHealthGuy LM 20 months ago from U.S.A. Author

    IF the blood was bright or dark red and coming from the anus it was most likely due to the attack and your gastro should be advised. I have no knowledge of pancreatitis causing urinary problems. Bowel problems yes, urinary no. I was simply talking about stenting, not TP/AIT. I have doubts about the long-term out come for most patients who undergo TP/AIT. I can NOT find any good reviews that are over 5 years old. It sounds like you have a pretty good gastro. Don't hold the diet and alcohol thing against him/her. I haven't met a doctor yet who is knowledgable about diet when it concerns a danaged pancreas. Many seem to think alcohol is even ok as long as you are not an alcoholic or do not have the genetic variant that increases the risk of alcoholic pancreatitis. Good luck HL I hope you find healing :-)


    Waqas 20 months ago

    I dont even know if you still view this page author but I needed some info. My uncle had an acute necrotising pancreatitis and went on a ventilator. He remained on the vent for 14 days in ICU before he was operated (major surgery). His pancreas were severely inflammed and he too much infection in his body as the WBC count was always rising. He has been in the hospital for almost 3 months now and have gone through 1 major surgery and 3-4 ERCP. He has 2 permanent drains in his abdominal area to suck out the infection and they ocasionally add a 3rd one as well depending upon the infection. The doctor has tried several anti biotics and surgeries but the infection doesnt go away. He has fever every now and then and getting weaker every day. We r absolutely clueless about doctor's approach and what will happen and any help would be greatly appreciated.

    P.S he cant eat or drink himself and is fed by drips etc. He tries light intake of food but either vomits or cannot digest. At this moment he can consume liquid food only.


    TheHealthGuy LM profile image

    TheHealthGuy LM 20 months ago from U.S.A. Author

    I'm not a doctor and can't give medical advice but if it were my uncle or dad I'd go to the store (sears, etc) and buy a black and decker juicer for about $30. I'd go to a health/vitamin store and buy pure grape seed extract, pure curcumin, pure vitamin C (pure with no other compounds that could be toxic) and colloidal silver (kills bacteria and viruses). Make sure you get capsules (grape seed, curcumin and C) that you can open and empty out. Then to a grocery store to buy organic tomatoes, cucumber, celery, spinach, watercress, carrots, onion and garlic. Use the juicer to make about one quart of fresh, organic vegetable juice and put it into a container (mason jar or even a plastic bottle you have cleaned thoroughly). Then I'd put in the fresh juice about 30 dropper fulls of colloidal silver, 1000 mgs of grape seed extract, 1500 mgs of curcumin and 3000 mgs of vit C and shake it until it is nicely mixed. Then I'd give my uncle/dad a small amount maybe an ounce to see how he tolerated it. If it stays down I'd give it to him every 30 minutes. IF he doesn't tolerate an ounce every 30 minutes I'd back off and try again in an hour or so with another ounce and then an ounce every hour to see how that worked. The stuff has to stay down in order to work. I'd also remove and ban ANY food by mouth except the organic vegetable juice with the supplements. I'd also ask his physcian to give him the equivalent of 800 mgs of ORAL Ibuprofen via IV. The IV amount may be different. ONLY Ibuprofen (anti-inflammatory drug) not some mix of something. IF they won't do that, for some reason, I'd ask why. If I heard some weird excuse like it isn't protocol, not approved or won't do any good then while I was at the store I'd buy Ibuprofen. Advil is Ibuprofen. Just make sure it is Ibuprofen and nothing else. It usually comes in 200 mgs tablets. IF you can find capsules that would even be better! Then you could mix it into his juice as well. By the way that juice will most likely taste AWFUL with those supplements and Ibuprofen mixed in but I'm thinking it will help and may be tolerated ok. That is what I'd do IF it were me and my relative. I'd also pray, a lot. God works some awesome miracles!


    Katrina 19 months ago

    Hi!! My boyfriend has had chronic pancreatitis for 7 years now but refuses to take enzymes to help him digest the food, he is now getting numbness in his legs but when he changes his position he's okay again so I'm not sure if he's got a trapped nerve or if it's related to his pancreas. Just like everyone else he is in pain daily as he is eating fatty foods everyday and hasn't got a stable diet, however after reading this blog I will defiantly be changing his diet and making sure it's low fat and he's taking the grape seed and curcuming capsules but I can't get him to take the enzymes. God bless you and Thank you for taking your time out to help others and raising people's hopes as doctors just say people with the disease have very limited time to live.


    TheHealthGuy LM profile image

    TheHealthGuy LM 19 months ago from U.S.A. Author

    You're welcome Katrina. Hope he begins to feel better. You can find more info on my blog.


    Katrina 19 months ago

    Does it have a bad affect if he doesn't take the enzymes?


    TheHealthGuy LM profile image

    TheHealthGuy LM 19 months ago from U.S.A. Author

    Katrina you'll soon know if the enzymes are an important item. IF he strictly adheres to a pancreatitis friendly low fat diet and still is having symptoms (bloating, nausea) after eating he probably needs them. Otherwise, if he improves he may be fine without them now.


    Diego 19 months ago

    I recently spent 6 days in the hospital with AP. I am 63 and and do not consume much alcohol. I am fit and run 5 miles every other day.

    This was my first attack ever and am nervous for my long term health and longevity. Initial cause of my attack was pancreas divisum.

    I'm lost, depressed and worried about dying. I have been out of the hospital about a week and have not yet had a follow-up with the specialist.


    TheHealthGuy LM profile image

    TheHealthGuy LM 19 months ago from U.S.A. Author

    Hi Diego sorry to hear you are not feeling well. It's amazing that you have lived 63 years with a birth defect (pancreas divisum) and have not had a problem until now. Does anyone know why the PD caused AP at this late date yet went for all those years without a problem? Maybe your specialist will be able to shed some light on the subject. It is normal to be lost, depressed and worried. However, you can do research and learn about pancreas divisum and what your options are in regards to treatment. I believe in many cases they can surgically fix pancreas divisum, usually by stenting if my memory serves me correctly. However, that does involve some risk. Like I said maybe your specialist can shed light on your situation. It may not be all that bad unless you sustained a lot of damage via your AP attack.


    greenrazor 19 months ago

    question,

    was in hospital 4-7-15 thru 4-19-15 for acute panky.icu for 8 days.panky infection,belly,legs and feet swole up.they shoved a tube down my nose [ oww !],catheter[M'fer] main lined my neck,morphine for 10 of those days,couldnt even get out of bed two of the days,paranoid and seeing things because of the morphine.i had an acute attack in 2002 simular but a little less severe.i was in hospital 5 days and seemed like i was back working [ diesel mechanic ] within a week now im 45 Y.O. male been back to work since 4-26-15 but am still somewhat weak,diarrhea and my side's at the bottom of my rib cage hurt especially my left side.tylanol dulls it and hydrac knocks it out for 2 to 3 hours but it comes back.sometime's pretty fierce and others almost no pain but always noticeable.G.I. hospital attending Doc at follow up last week didnt seemed concerned and my regular doc last friday didnt seemed concerned so ? do you think my panky is just still healing causing it or?i cant find any info about what happens after acute panky except your page and i like it.


    TheHealthGuy LM profile image

    TheHealthGuy LM 19 months ago from U.S.A. Author

    Hi greenrazor, sorry to hear you aren't feeling well. Ibuprofen work much better than tylenol and won't destroy your liver. Do you know why you are having AP attacks? Did anyone find a cause? You are probably still healing and if your diet is right you could be simply irritaing your pancreas with bad foods. By the way you can find a lot more info at my blog beatingpancreatitis.com and I check it more often for comments and questions


    trilobite55 profile image

    trilobite55 14 months ago

    Thanks for the incredibly helpful blog!! My journey with pancreatitis has been short and blessedly mild to now. I've had 3-4 bouts starting this year, and, painful, but I have a high pain tolerance, or they were mild, so none has sent me to the ER. I was diagnosed with pancreatitis on the 2nd try by my PCP, second blessing, and the pain ended in a matter of 24 hours each time, as soon as I cut out fat, alcohol and most sugar. My last bout was yesterday, which drove me back to the computer to see what was "safe" to eat. I already take 400mg ibuprofen for arthritis, so I added another 400 and it has worked. I was on the phone to the Doctor's office yesterday, but hung up when I realized my health insurance doesn't kick in until November. The PCP said we would wait to see if it resolved itself, and if I had another episode she would order tests. I guess I'll begin tests in November, then, but am going to try to see how far diet and supplements take me. I already take Curcumin for the arthritis, so am adding the grape seed and am going to try the grapefruit juice--or rather, I'm going to try to eat 1/2 grapefruit a day. I know it can interfere with certain meds, so my plan is to eat it before or with dinner, as I take the meds in the AM.

    Also, referencing the comment above, Tylenol is deadly!! I haven't used it in years!


    TheHealthGuy LM profile image

    TheHealthGuy LM 14 months ago from U.S.A. Author

    You are most welcome for the info. IF you are on prescription meds make sure you talk with your doc and/or pharmacist to find out if grapefruit or grapefruit juice is safe for you. Some medications react in a potential lethal manner with grapefruit so this is extremely important. Good luck to you in your recovery. I hope you never have another attack.


    PaulaP912 profile image

    PaulaP912 3 months ago

    My journey with acute and then chronic pancreatitis is like many others. My two tools to recovery were -

    Hyperbaric Oxygen treatment - YES it worked

    Food Addicts in Recovery Anonymous - Simple but not easy. Totally worth it to gain a healthy eating lifestyle with support from others.


    TheHealthGuy LM profile image

    TheHealthGuy LM 2 months ago from U.S.A. Author

    hey, whatever works :-)


    Janet 5 days ago

    It took 8-1/2 months, multiple ER visits, dozens of tests, and 8 different doctors to finally listen to me and diagnose pancreatitis. By then it had gone from acute to chronic. I will now be stuck with it for the rest of my life. I'm still angry that so many doctors refused to listen to me. I'm a smart woman with a technical background and had done a LOT of my own research. I was pretty convinced, just based on geographic location and symptoms, that it was pancreatitis. I mentioned this to every doctor. None would listen. One even rolled his eyes at me (I filed a complaint on him).

    I appreciate your article. My pancreatitis specialist recommended turmeric. I haven't tried vitamin C. I'll add that to the regimen. One thing that has helped me is getting a celiac block a couple of times a year. Dr. Patel uses a (for lack of a better description) side-scanning sonar he invented, attached to an endoscope, to examine my pancreas, drain the cyst, and inject time-release pain blocker medicine directly into my pancreas. It helps tremendously with the pain.

    I'm crossing my fingers that someday they find a cure. In the meantime, I live with acute attacks multiple times a week. Thankfully, each attack duration is less than an hour, but they almost always hit in the middle of the night. So in addition to the frequent pain, I tend to always be sleep deprived.

    It's good to find kindred souls.


    brianne 4 days ago

    I'm only 23 years old, i have been to emergency rooms, doctors and specialists and only now after 4 years have i finally got the diagnoses. I have always been looked over because of my age, they always dismissed me and said "its just bad heartburn". I have been s frustrated, iv always wanted an answer. Although it was relieving to know, its a serious condition i wish i never heard of. I am so happy I came across you article.

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